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scale.Tonight I find myself angry. The picture of Vicki's dad going unfed, as did
mine 7 years ago; nothing changes. I've grown to almost loathe the use of the word
care. I see it as a usurpation and I really dislike that all of us continue to use
it. Like lambs. Maybe people think I'm silly when I've pushed for us not to use it
anymore. But it's got to be us, because health""care"" won't stop the selfidentification. Wishing won't make it so. Mostly, medicine ought not have a lock on
the notion of care. Most everyone in every endeavor take care in what we do.
Medicine seems, to me, to want to own the notion of care because it'll always come
down to ""well we have good people who really do care"". That may be true. But we
cannot continue allowing that ultimately weepy sentiment to leech our resolve to
redefine and restate our experience. Want to change the playing field even a
miniscule amount? Take ""care"" out of the conversation, and before putting it back
in wait until it manifests itself predominently.""I too experienced the loss of
both my parents within two months of each other from 'treatment' at a rural
hospital in WNC. My father preceded my mother, who most likely passed prematurely.
Thirteen years have not mitigated or brought any resolution. Words do have meaning
and it is particularly gulling to read health""care"", board certified, always
consult your physician, we 'care', excellence in health""care"". Their ineptness is
well known yet nothing changes. Garrick Sitongia, those statistics are my mantra
except they are from the last WHO report done in the year 2000 - someone deemed it
was too 'expensive' to do it anymore(Bu$h adm.). US is most likely closer to 57th
now in care and still number one in cost. We all know here that the figures are not
correct as there is under reporting going on. This is Appalachia at it's worst. mill town attitude I thought - except now it seems it is nation wide. Only those
who have been actively involved - actually lost a loved one under Mengele torture
treatment realize what is going on. Those who are bereaved or damaged themselves
are tasked to blow the whistle along with the pain and sorrow. We are now blessed
with the internet and can share our stories - never to be silent until health'care'
is a reality, as Bert Sebilia said - take ""care"" out of the conversation and
before putting it back in wait until it manifests itself predominantly. Hoping for
peace of mind for all of us in our quest to put humanity, humane medical treatment
back in true care.""Beyond tragic Vicki... Words fail period. As I read all of our
horror stories, I can't help but notice that, more often than not, patients who are
harmed or killed have undergone an 'elective' surgery they most likely didn't need
in the first place. (This s is what happened to me!) I didn't need surgery nor did
I consent to it. Now, I'm disabled. Here's my story And, more often than not, these
surgeries were suggested during a 'checkup' or 'wellness' visit we really didn't
need. Those of us who've been unfortunate enough to experience our 'healthcare'
system up close and personal know that it is not a HEALTHcare system at all for it
has little to do with health and nothing to do with CARE.""I am a nurse with 30
years of hospital experience. I have advocated for my father when he was
hospitalized, only to be told by his surgeon that I was not making any friends
among the staff. I informed him that I would advocate for my father, and was not
there to make friends. I'm deeply sorry that this series of errors happened to your
father, Vicki. I have a few bits of advice for people who think a loved one has
been harmed: 1) Report it all the way to the top. Demand to see the chief medical
officer of the hospital. Do not stop at lower-level administrators who have no
power to change things. 2) If you are too stressed yourself (which happens easily
when a loved one is seriously ill), enlist the help of a friend or family member,
or a qualified professional advocate. Many studies confirm that intensive care is
disruptive to families, as well as patients. You will need help. And one more: 3)
take care of yourself. You simply cannot be there 24/7. If you try to be, you'll
suffer for it. You can be most effective as an advocate if you are rested,
nourished, and cared for yourself.""The statement made to you Teresa about how
you're not making any friends says everything about how patients and their families
are viewed by medical 'professionals'. What kind of thing is that to say? When I
read that, I felt like I had been punched in the stomach. Too many memories I
guess... We are treated with such disrespect. Talk about being kicked when you're