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ABOUT YSC Young Survival Coalition (YSC) was founded in 1998 by three young women who were under the age of 35 when diagnosed with breast cancer. They were discouraged by the lack of resources available and the underrepresentation of young women in breast cancer research. Today, YSC is the go-to organization for young women facing a breast cancer diagnosis. Among other services, YSC: LEARN MORE. SPREAD THE WORD. • Provides information, resources and support from diagnosis through long-term survivorship; 877.972.1011 • Educates and empowers young women to be their own best health advocates; youngsurvival.org • Works with healthcare providers, researchers and legislators to educate them about the unique issues young women face, and • Advocates for more studies on breast cancer in young women and access to quality care. /youngsurvivalcoalition @YSCBuzz YSC YoungSurvival Learn more about common myths and living a healthy life in our Awareness & Outreach Educate & Support “Breast Health and You” guide. Fundraise KNOW YO U R BOD Y ©Copyright 2014. All rights reserved. Connect to Support 1 Archie Bleyer et al., “The distinctive biology of cancer in adolescents and young adults,” Nature Reviews Cancer 8 (2008). 2. American Cancer Society. Breast Cancer Facts & Figures 2013-2014. – Kalin, age 24 at diagnosis 3. Ruddy, K. et al., “Presentation of breast cancer in young women,” Journal of Clinical Oncology 27:15S (2009). Learn More BREAST CANCER FACTS YOUNG WOMEN CAN AND DO GET BREAST CANCER. That’s why it’s important to know the facts, know what’s normal for you and speak up when something is different. Breast cancer is the most common cancer in women ages 15 to 39.1 It is estimated that nearly 13,000 cases of breast cancer in women under age 40 will be diagnosed each year.2 KNOW YOUR BODY Nearly 80 percent of young women diagnosed with breast cancer find their breast abnormality themselves.3 The first step to empowerment is to become familiar with your breasts and what is normal for you. It is important to see your doctor immediately if you notice a sign or symptom of breast cancer, such as: Until we better understand the causes of breast cancer, it’s important for all women to know the facts and be their own health advocates. • Lump or unusual thickening in the breast or underarm area • Change in color or rash on the skin of the breast • Unusual nipple discharge • Swelling of all or part of the breast • A change in size or shape of the breast • Itchy, sore or scaling area of the nipple • Dimpling on breast skin or a nipple turning inward Never let a doctor tell you that you are “too young” for breast cancer. Pictured below are real survivors diagnosed between ages 14-42. • Breast or nipple pain that does not go away Note: If you are pregnant or breastfeeding, normal changes to the breast and nipple may be more dramatic. But if you see something that concerns you, ask your doctor. Young women can be diagnosed with breast cancer while pregnant or nursing. TALK TO YOUR DOCTOR Medical Icon If you notice something unusual, talk to your doctor. If your concern is not taken seriously, you may have to insist on discussing whether additional testing, beyond a physical exam, is appropriate. Ultrasound, mammography, MRI and/or biopsy can be used to investigate something suspicious. If the lump or other symptoms do not go away after one menstrual cycle and your doctor does nothing more than a clinical exam, find another doctor. KNOW YOUR FAMILY HISTORY Family Tree “Young women should be advocates for their own health. Understanding symptoms of breast cancer and what I should do if I find something is empowering.” – Lisa, 22 Most women with breast cancer do NOT have a family history, but it is important to know your maternal and paternal family cancer history and share it with your healthcare provider. Mutations (alterations/changes) in breast cancer-related genes like BRCA1 and BRCA2 increase a woman’s risk of developing breast cancer, especially at a young age. However, hereditary or genetic (BRCA) cancers only account for 5 to 10 percent of all breast cancer cases.