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Social Media Plan OVERVIEW This is a social media guide for the members of the Heart Failure Policy Network in order to engage on Twitter, LinkedIn and Facebook to publicise the event in the lead up and to amplify the discussions during the event. The social media messages specifically highlight the Heart Failure Policy Toolkit and call to action, using the World Heart Day discussions as a hook to reach out to a wider stakeholder group. Members can make use of these prepared messages on their Twitter and Facebook accounts or within relevant LinkedIn groups. Twitter The hashtag to be used specifically for the event and discussions around it is: #HeartFailurePolicyNetwork. In addition to this please find below suggestions for additional hashtags to be used when forming your own tailored messages in relation to social media discussions on heart failure, we have also listed the handles of key heart failure stakeholders so that you can more easily adapt or amend your social media messages to reach them directly. KEY HASHTAGS #heartfailure #CongestiveHeartFailure #Cardiomyopathy #HeartFailureAwareness #Hearthealth #breathlessness #Cardiomyopathy #Cardiology #WorldHeartDay #WorldHeartDay2015 #misdiagnosis #Healthyheart #Heartcondition #patient #heartchoices @escardio @Europarl_EN @MEPHeartGroup @marctarabella @HealthPolicyPtp KEY HANDLES @pumpinghearts @worldheartfed @MEPHeartGroup @FelixGutzwiller ORIGINATOR OF THE MESSAGE General @DGSante @EPHA_EU @EP_Environment @IanDuncanMEP TWITTER MESSAGES To be posted week commencing 21 September 2015 Next week in @Europarl_EN the #HeartFailurePolicyNetwork launches the #HFtoolkit identifying priorities for change in #heartfailure As #WorldHeartDay approaches, #Heartfailure must be recognised as an #EU & national priority #HeartFailurePolicyNetwork Next week on #WorldHeartDay2015 join the conversation around #heartfailure by using #HeartFailurePolicyNetwork How 2 bring #heartfailure into mainstream #healthpolicy? Follow discussions using #HeartFailurePolicyNetwork on #WorldHeartDay 29 Sept. 2015 What is being done to lead policy change for #heartfailure #patients? Look no further http://bit.ly/1LDCZgr #HeartFailurePolicyNetwork 1 Social Media Plan At least 15 million adults live with HF in Europe– It needs to be a political priority! #HeartFailurePolicyNetwork The #HeartFailurePolicyNetwork and @Europarl_EN will discuss #heartfailure – join us on #WorldHeartDay http://bit.ly/1hQ8MOa The #HeartFailurePolicyNetwork discuss #diagnosis #prevention #patientcentredcare in the @Europarl_EN on 29 Sept. #WorldHeartDay On #WorldHeartDay I will be joining discussions on #heartfailure policy priorities on 29 Sept. will you? Join in #HeartFailurePolicyNetwork Convert policy recommendations into policy actions – let us know how you think it can be done #HeartFailurePolicyNetwork http://bit.ly/1hQ8MOa What can #EU and Member States do to combat #heartfailure? Find out at the event on 29 Sept. http://bit.ly/1hQ8MOa To be posted week on 29 September 2015 Academics (4-6 tweets) It’s #WorldHeartDay2015 will you be making #Heart Choices Not Hard Choices? http://bit.ly/URnQ2q via @worldheartfed The policy priorities for #heartfailure if you don’t know get to know #HeartFailurePolicyNetwork #WorldHeartDay2015 http://bit.ly/1LDCZgr Glad to be a part of the #HeartFailurePolicyNetwork working towards improving the management and care for #patients with #HF #WorldHeartDay theme: #heart #healthy environments! The risk of #heartfailure can be reduced by 80% by adopting #healthier lifestyles! And it’s finally here! #WorldHeartDay & #HeartFailurePolicyNetwork #policytoolkit & #calltoaction launch http://bit.ly/1K16DFM To be posted week commencing 21 September 2015 Research from #Scotland and #Sweden shows #heartfailure patients admitted to hospital have lower survival rates than those admitted with #cancer 1 in 10 patients hospitalised with #heartfailure die in hospital. Join the debate on 29 Sept. http://bit.ly/1hQ8MOa #HeartFailurePolicyNetwork 1 in 3 #heartfailure patients will die in <1 year #HeartFailurePolicyNetwork discuss policy priorities in the @Europarl_EN on 29 Sept To be posted on 29 September 2015 Patient groups Join the discussion on #WorldHeartDay today! With #EU politicians, #patients, academics & #cardiologists by using #HeartFailurePolicyNetwork From research to policy – The #HeartFailurePolicyNetwork toolkit launch today @Europarl_EN in Brussels!! http://bit.ly/1K16DFM To be posted week commencing 21 September 2015 The #HeartFailurePolicyNetwork will launch its policy toolkit at the @Europarl_EN on 29 Sept. Tools 4 a common #HF pathway included! #Telemonitoring #patient monitoring & self-management #technologies, all innovations for improving #heartfailure #patient care #HeartFailurePolicyNetwork Looking forward to launching the #HeartFailurePolicyNetwork #CallToAction on 29 Sept. http://bit.ly/1hQ8MOa 2 Social Media Plan To be posted on 29 September 2015 Policymakers Did you know: #fatigue #breathlessness, swelling of the ankles/legs/tummy are all symptoms of #heartfailure #HeartFailurePolicyNetwork Making a difference 4 #heartfailure patients! That is why I'm part of the #HeartFailurePolicyNetwork #WorldHeartDay Today is the day, #HeartFailurePolicyNetwork launches the #policytoolkit @Europarl_EN a lever for #policy change http://bit.ly/1K16DFM To be posted week commencing 21 September 2015 15 mill. adults live with #heartfailure in Europe! That's why policy change is needed! #HeartFailurePolicyNetwork http://bit.ly/1LDCZgr Next week #HeartFailurePolicyNetwork takes the next step #policytoolkit #calltoaction – policy change for patients is needed! Celebrate #WorldHeartDay2015 with #HeartFailurePolicyNetwork in the @Europarl_EN Join the #HeartFailurePolicyNetwork discussions to move the needle & improve lives of #heartfailure patients across Europe! http://bit.ly/1hQ8MOa To be posted on 29 September 2015 Health professionals I am working with fellow politicians, patients & academics on the #HeartFailurePolicyNetwork to push #heartfailure up the political agenda! We need to start now - prevent a crisis before the expected rise in #heartfailure in the future! #HeartFailurePolicyNetwork We, The #HeartFailurePolicyNetwork launch our policy toolkit & #calltoaction today in the @Europarl_EN http://bit.ly/1K16DFM To be posted week commencing 21 September 2015 #Heartfailure is more common than breast & colon cancers! #HeartFailurePolicyNetwork #Heartfailure care should be focused on reducing the risk of death &improving quality of life of patients #HeartFailurePolicyNetwork How can #patients, #healthcare professionals & #policymakers work together at national or regional level on #heartfailure? I will be joining the #HeartFailurePolicyNetwork on 29 Sept in @Europarl_EN for the launch of its #policytoolkit will you? http://bit.ly/1hQ8MOa Across #Europe, only 3% of people can properly identify main symptoms of #heartfailure #awarenessraising #HeartFailurePolicyNetwork To be posted on 29 September 2015 Did you know that #heartfailure is the leading cause of hospitalisation in people over 65? #WorldHeartDay #HeartFailurePolicyNetwork Changes at the policy level can help save lives and make more efficient use of #health resources #HeartFailurePolicyNetwork Happy #WorldHeartDay2015 Join the debate on #heartfailure by using #HeartFailurePolicyNetwork The #HeartFailurePolicyNetwork launches a policy toolkit and call-to-action today in the @Europarl_EN http://bit.ly/1K16DFM 3 Social Media Plan Facebook & LinkedIn To be posted week commencing 21 September 2015 For attendees of the launch: Heart failure is a surprisingly common condition, with 1 in 5 people at risk of developing heart failure in their lifetime, and 15 million people currently living with the condition in Europe. Many cases of heart failure could be prevented with the adoption of a healthier lifestyle, but awareness is low. The Heart Failure Policy Toolkit is an innovative resource, which distils the latest evidence and helps policymakers identify the necessary policy changes in heart failure across Europe. I will be joining the Heart Failure Policy Network on 29 Sept in European Parliament to launch the toolkit & call to action http://agenda.euractiv.com/events/bringing-heart-failure-mainstream-health-policy-131127 Specifically for HFPN members: Heart Failure is a ‘forgotten condition’ within chronic disease. I am a member of the Heart Failure Policy Network (HFPN) and we are calling on the EU Member States to commit to improving the lives of people living with heart failure across Europe by focusing on 10 policy priorities. Join us at the European Parliament on the 29th September for the launch of the HFPN toolkit and call to action. http://agenda.euractiv.com/events/bringing-heart-failure-mainstream-health-policy-131127 To be posted on 29 September 2015 For attendees of the launch: Today at the European Parliament, the Heart Failure Policy Network is launching a toolkit to raise awareness and help policymakers identify the necessary changes in HF across Europe. The toolkit focuses on 10 key actions including investment in tools and resources in primary care, timely diagnosis, appropriate prevention measures and person-centred care. Check out the heart failure toolkit at http://bit.ly/1K16DFM Specifically for HFPN members: The burden of heart failure in Europe is significant, with over 15 million adults living with the condition in Europe. The Heart Failure Policy Network is holding an event today (11.00 – 13.00) in the European Parliament. The event will launch a policy toolkit on heart failure and call upon national governments to commit to improving the lives of people living with heart failure across Europe. Attend the event and join the discussion. #HeartFailurePolicyNetwork Today – On World Heart Day - I will be discussing policy challenges and opportunities for #heartfailure patients across Europe at the European Parliament in Brussels. Heart failure is a serious chronic condition where the heart cannot pump enough blood to support the needs of other organs in the body. Up-to-date clinical guidelines exist for the management of HF, but adherence is poor and treatment varies enormously between settings. Changes at the policy level can help save lives and make more efficient use of #healthcare resources. http://bit.ly/1K16DFM 4