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Breast Cancer Wellness M A G A Z I N E Empowering MIND • BODY • SPIRIT SPECIAL TRIBUTE 25Years Susan G Komen for the Cure The Power of Purpose Hala Moddelmog: Her Story of Service, Strength, and Survival Is Nutrition Nonsense? Pay Attention to Your Emotional Needs PRSRT STANDARD US POSTAGE PAID PERMIT 205 BOLINGBROOK, IL FREE Volume 2, Issue 3 Fall 2007 contents Fall 2007 23 ON OUR COVER Hala Moddelmog CEO and President of Susan G. Komen for the Cure, 6 year breast cancer survivor 26-27 Seamless, smooth and fabulous. Introducing, Leila, the new molded foam T-shirt bra from Amoena. Now you can show off your figure flawlessly under all your favorite clothes. The side lace detail adds just the right touch of style without compromising a smooth and seamless look and soft nylon pockets hold a breast form or symmetry shaper securely in place. The new Leila bra looks and fits so fabulously, you’ll want more than one! Available in nude in sizes 34-44A; 32-44B; 32-42C; 32-40D; 32-38DD. To find an Amoena retailer near you, visit the store locator on TheBreastCareSite.com or call 1-800-741-0078. In the spring of 2007, Hala was introduced to breast cancer advocates in the Middle East, including the countries of Israel and Jordan. It was an alarming experience for Hala to learn that in some cultures it is a standard and acceptable practice that when a woman is diagnosed with breast cancer, her husband will automatically take a second wife. This shocking knowledge only convinced Hala more that her life was being drawn toward worldwide empowerment and leadership for women and for breast cancer. F E AT U R E S POWER OF PURPOSE 7 Before i die, will i have made a difference? A TRIBUTE 23 Special tribute to the Susan g Komen for the Cure for 25 years of making a worldwide difference for breast cancer HALA MODDELMOG 26 Her story of service, strength and survival WORDS FROM SUZY KOMEN’S BEST FRIEND 28 SUSAN G KOMEN’S HEART AND SOUL 29 PASSION WITH PURPOSE IS A VERY POWERFUL COMBINATION 30 ITS OUR JOB TO MAKE SURE THEY KNOW HELP IS AVAILABLE 31 AT AGE 25, SHOCK, PAIN, AND FEAR CAME WITH DIAGNOSIS 32 TRIBUTES 33-35 Honoring 25 years of commitment Insist on Amoena / www.amoena.com ©2007 All rights reserved. Amoena USA Corporation, GA 30144-4582, Kennesaw, USA Amoena is a registered trademark of Amoena Medizin-Orthopädie-Technik GmbH. D E PA RT M E N TS PAY ATTENTION TO YOUR EMOTIONAL NEEDS 10 Christine Horner, MD explains the importance of processing your emotions effectively to improve how your mind and body react to stressful situations. IS NUTRITION NONSENSE? 14 GIRL TALK FOR SURVIVORS 16 TOO MUCH OF A GOOD THING CAN CERTAINLY BE BAD! 20 Dr Holly Lucille outlines six ways to help restore hormonal function to your body FALLING INTO A ROUTINE 39 Ann Leach provides 5 important ways to empower the caregiver GIVE BACK BEFORE YOU GIVE UP 40 AMOENA FOR ME 42 NEW ASSISTANT EDITOR AT BCW 43 Meet Donna St Jean Conti SURVIVING & THRIVING 44 A CALL TO SELF 53 PINK PAGES 68 www.breastcancerwellness.org 3 publisher’s letter Dear Friends, Please welcome Donna St Jean Conti – the Assistant Editor for the Breast Cancer Wellness Magazine. Donna is a seven-year breast cancer survivor. Her fight led her to meet extraordinary people and to have amazing experiences that she knew had to be published as inspirational stories. Now, Donna stands ready to write your inspirational stories, ones that make hearts soar as they illustrate the resilience of the human spirit in the face of great challenges. Three stories will appear in each issue. In addition, please welcome Heather Jose – as a new contributing writer for the magazine. Heather was featured in the 2007 summer issue, and is a power-filled reminder that each day we must try our best to meet the challenges of the healing journey. Heather is an amazing woman and an amazing survivor. She was diagnosed with a death sentence of less than six months to live, and that was eight years ago. Heather’s column will help tackle the delicate issues of young women facing the challenges of breast cancer. The Breast Cancer Wellness Magazine pays Tribute to Nancy Brinker, Hala Moddelmog, leaders, executive directors, associates, staff members, and thousands of volunteers and leaders of the Susan G. Komen for the Cure organization that help drive The Promise made between two sisters into a reality someday soon. Please continue to hold them and all breast cancer warriors and all breast cancer foundations in your prayers so that the vision can remain clear for our world to be one without breast cancer. Mark your calendars for Wellness Wednesdays at 12:00 noon CST for the new internet radio show, “Inspire!”, hosted by Carolyn Gross. Our website, www.breastcancerwellness.org has the direct link to connect with these weekly informative and uplifting messages from breast cancer survivors and leading experts in the field of holistic health. Come sail with us on the 2nd annual Breast Cancer Survivors Cruise April 24-28, 2008. It is time that we meet and discuss the issues close to your heart, and it is another special time for us to laugh, to cry, and to celebrate the moments in our lives. Many survivors that have already signed up are taking advantage of the best discounts and the best availabilities. Thank you Amoena for sponsoring the second annual Breast Cancer Survivors cruise! We look forward to this great time together. Join us on the internet radio show for breast cancer survivors! Inspire! Airs on Wellness Wednesdays at 12:00 noon CST. To tune in: www.breastcancerwellness.org Effective this summer, the Breast Cancer Wellness organization is now qualified as a 501c3 as a charity nonprofit organization under the name of ONE Health Institute. Our mission continues to educate and empower women and men for their breast cancer wellness journeys. My prayer and invitation is for each of us to experience healing and wellness to the fullest. Wellness Blessings, Beverly Vote, Publisher/Editor www.breastcancerwellness.org 5 FALL 2007 Volume 2, Issue 3 Show Mey the Wa Out Mary Ann thought she had everything going her way Until breast cancer was to change her every day. In anguish, Mary Ann cries out, her pleas full of doubt. She was in a dark hole with no light to show her way out. She thought she had hope when a doctor walked by. Why didn’t he understand her tear filled cry? He wrote her a prescription and went on his scheduled way. But her hopes and her direction were still in dark dismay. Again, Mary Ann cries out, her pleas full of doubt. This time a priest nearby heard her shout. He walked to the hole Mary Ann was in. I hear your cries, I will pray for your sin. Bless you my child, he had to say, And gave three Hail Marys to anoint her way. Once again, Mary Ann cries out, her pleas full of doubt. Quietly a stranger responds, I know your fears inside and out. I know the secrets hidden within. I know too well this hole that you are in. The stranger jumped without hesitation Into the hole filled with so much tribulation. Bewildered, Mary Ann cries out, her pleas full of doubt. What have you done, why are you here? I appreciate your grace, But now we are both in this dark, dark place. Shhhsssh, says the stranger to Mary Ann. I hear your cries, your pleas full of doubt. I have been here myself, as a survivor showed me, I will show you the way out. –Beverly Vote, 15 year breast cancer survivor “Show Me the Way Out” is the mission statement of the Breast Cancer Wellness Magazine. 6 Breast Cancer Wellness Magazine PUBLISHER Bevery Vote [email protected] ASSISTANT EDITOR Donna St. Jean Conti [email protected] ______________ DIRECTOR OF SALES Bonnie Phelps [email protected] SALES ASSOCIATE Kaye Crippen [email protected] SALES ASSOCIATE Holly Hendrick [email protected] ______________ ART DIRECTOR Stacie L. Hill [email protected] The Breast Cancer Wellness Magazine P.O. Box 2040 Lebanon, MO 65536 417.532.9763 Fax 417.532.9783 breastcancerwellness.org The Power of Purpose T h e r e i s p u r pos e a n d pow e r i n e v e r y th i n g by Beverly Vote Along with the diagnosis of breast cancer comes fear, unfamiliar medical terms, a new way of trying to manage even the simplest of tasks, and more decisions than most of us are prepared to handle at one time. But the diagnosis also brings these questions: Do my loved ones truly know that I love them? How will I live the rest of my life? Before I die, will I have made a difference? And we want to know what is our life purpose. Published quarterly for Breast Cancer Wellness. Reader discretion is advised. Publisher of The Breast Cancer Wellness Magazine does not endorse or promote any product or service of advertisers of this publication nor does it verify the accuracy of any claims made in the advertisements or articles. This magazine is not intended to replace the care and advice of expert medical professionals. All rights reserved. Reproductions of any information appearing in this publication in whole or in part cannot be made without the express written permission of the publisher. Many have defined the diagnosis of breast cancer as a life-changing experience, yet at the time of diagnosis most of us do not know what it is we are to be changing into or where the road will lead us. It is the not-knowing that often times is perplexing and uncomfortable. However: Did Nancy Brinker, Founder of the Susan G. Komen for the Cure, know that when she made The Promise to her beloved sister she would create an unstoppable momentum through worldwide patient, volunteer, political, and medical advocacies? Did Nancy know that her passion and commitment to this heartfelt purpose would not only change the world, but also herself and millions of others in the process? Did Hala Moddelmog, CEO and President of Susan G. Komen for the Cure, know that when she was diagnosed with breast cancer that in a few short years she would be leading the world’s largest grassroots movement for breast cancer? Did she know that she would reflect upon her current life and make new choices based on something deep within her that was steering her in a new way and with a new understanding of her strengths? Did she know that her strengths would help other women to recognize their strengths as well? Did any of us know that our lives would be changed to a different perspective and with a new purpose from a diagnosis of breast cancer and that we would learn so rapidly to start living our life in a way that matters most to us? I have met hundreds of women that consciously chose to change their lives and how they serve u www.breastcancerwellness.org 7 Christine Clifford Beckwith, CSP Don’t forget to laugh! ™ Diagnosed with breast cancer in 1994, Christine Clifford Beckwith wrote five humorous portrayals of her story in her books entitled, Not Now…I’m having a No Hair Day; Our Family Has Cancer, Too! and Cancer Has Its Privileges: Stories of Hope & Laughter. She is CeO/President of The Cancer Club, today the world’s largest producer of humorous and helpful products for people with cancer, which offers a free monthly enewsletter, Prayer List and more. www.cancerclub.com. Let Christine touch your heart on page 40. Kim Dalzell, Ph.D, R.D., L.D. Nature’s Answers to Cancer As a respected holistic health professional, Kim developed a nutrition course for the first u.S. government-funded complementary medical residency program in illinois. She was selected as a medical advisor for Lifetime Television Walgreen’s Health Corner TV show, served as spokesperson for Cancer Treatment Centers of America, and was invited to colloborate with Dr John LaPuma (ChefMD) and Dr Andrew Weil. www.challengecancer.com. Dr Dalzell’s answers your questions on page 14. Christine Horner, MD Christine Horner, MD is a board certified and nationally recognized surgeon, author, expert in natural medicine, professional speaker and a relentless champion for women’s health. She spearheaded legislation in the 1990s that made it mandatory that insurance companies pay for breast reconstruction following mastectomy. She is the author of Waking the Warrior Goddess: Dr Christine Horner’s Program to Protect Against and Fight Breast Cancer, winner of the independent Book Publishers Award 2006 for “Best Book in Health, Medicine, and nutrition.” For more information go to www. drchristinehorner.com read Dr Horner’s empowering message for breast cancer survivors on page 10. Ann Leach Caring for the Caregiver Ann has been coaching caregivers to avoid burnout and practice self-care since 1988 when she founded the Cancer Support network in illinois after serving as her mother’s caregiver through her mother’s final stages of cancer. now a Missouri girl, Ann continues coaching clients and speaking around the country and writing. Ann is a board member of the Missouri Association of Publications. . She enjoys the area’s many lakes and is expressing her creativity by designing beaded necklaces with a water theme. Her website here. See her column on page 39. Laurie Seligman, M.A. Wellness Educator for the project “Three Women on Their Healing Journeys” Laurie is a Motivational Speaker, Wellness educator, and is trained in the fields of energy Medicine, Mind Body research, Acoustic Therapy and Brain Waive entrainment with The Monroe institute. She created Conscious Fitness, a layered program of daily mental, emotional, spiritual and physical fitness. She holds a Masters in Spiritual Psychology from the university of Santa Monica. A partial list of clients include Cedar’s Sinai Medical Center, Kaiser Permanente, Mission Hospital, Motion Picture Television Wellness Center, upland Hospital, Antelope Valley Hospital, Medical Speakers network, Wellness Community, and Cordelia Knott Center. Her upcoming book, “Whispers from the Heart” is now available through iuniverse and she is currently completing “The Missing Link to Transforming your life: The Worthiness Factor”, scheduled for release in 2008. Laurie lives in Los Angeles with her Jack russell Terrier, Zoe, and one brave bamboo plant. www.transformationconsultinginc.com. read about the upcoming project on page 53. 8 Breast Cancer Wellness Magazine The Power of Purpose Heather Jose column is on page 16. Diagnosed with stage iV breast cancer at 26, Heather Jose chose to fight the cancer head on by putting together a plan to battle cancer on a daily basis. eight years later, Heather is healthy and using her experiences to speak to healthcare providers and patients about how much their actions and words can impact success. Heather is the author of “Letters to Sydney: Every Day I am Killing Cancer”. Her husband Larry is a high school coach and they have two children, Sydney and Ty. www.heatherjose.com. Heather’s heartfelt Holly Lucille, ND, RN Heatlthy Hormones Dr. Lucille is a licensed naturopathic Physician who lectures throughout the nation and has been featured on Lifetime Television for Women and the Discovery Health Channel. She has been a guest on a number of radio show speaking on naturopathic medicine. She is the author of Creating and Maintaining Balance: A Women’s guide to Safe, natural, Hormone Health. (iMPAKT Health, 2004) and recently joined forces with Jon Benson, the author of Fit Over Forty to develop “naturopause” an informational audio program focusing on nutrition and exercise to optimize normal hormonal transitions including menopause and andropause. Dr. Lucille has been promoted as an expert in her field and has a heartfelt passion for the individual wellness of all people and wholeheartedly believes in the mystery and magic of the healing process. Page 20. Donna St. Jean Conti Assistant Editor, Breast Cancer Wellness Magazine Donna is a seven-year breast cancer survivor who was diagnosed at 34. She found that writing about her cancer-related experiences helped, and she even found joy in the uplifting experiences that came through amazing, real-life and serendipitous encounters. Donna is now an award-winning professional writer and marketing communications practitioner who specializes in public relations. She is president of St. Conti Communications in Mission Viejo, Calif. (www. stconticommunications.com) and also operates a blog, The St. Conti Communicator. Donna provides compelling breast cancer survival stories each issue. read them on pages 44-49. {continued from p. 7} others after a diagnosis of breast cancer. Many have changed relationships, careers, and lifestyles. Many breast cancer survivors have become mastectomy fitters, nurses, caregivers, volunteers, authors, speakers, designers of pink ribbon products, fundraisers, leaders, philanthropists, musicians, therapists, movie producers, talk show hosts and made changes to what they were most passionate about. Most survivors have set out to live their remaining days with the purpose of making the most of life, and many are choosing to live their life anew by applying the Golden Rule more often. A few suggestions for exerting more power into your purposes for healing, for sharing, for living, and for making a difference, for others as well as yourself, are: reflect upon what the breasts symbolize to you. Do breasts represent the heart center of your feminine being, an expression of what is nourishing, joyous, beautiful, creative, soft, compassionate, and loving? if so, express more of these attributes into your experiences. The purpose of this is is to aid in the grieving process, whether you lost a breast, a part of a breast, or if you lost an image you once had of yourself. if breasts are symbolic of love to you, both expressing and receiving love, from heart to heart, exchange more heart to heart expressions with others, not only loved ones, as well as casual acquaintances and strangers. This serves to heal the whole-being. Start hobbies or engage in activities that make you feel alive and passionate. everything formed from a place of passion or from a place within your heart of caring are the most enjoyable and beautiful creations. Creativity helps everyone to feel more alive. Do for another that you wished had been done for you in your healing experience. if you wished you had been sent flowers, send flowers to a newly diagnosed breast cancer patient with a note that you are available to help if they would like. if you wished someone would have helped drive you to your treatments, make yourself available for a patient on a regular basis for this. The time spent driving back and forth to treatments will bring joy and healing to both of you. if your medical center was cold and uninviting, ask if you can provide flowers and plants or artwork for it. Perhaps it needs your care and compassion as a volunteer at its center. (When i was diagnosed with breast cancer, i had no role model for healing, or how to achieve wellness, thus i started this free publication with survival stories in hopes that others would never feel alone or feel the fear that i felt 15 years ago.) if you feel that your needs were not being met, learn to become a good listener. if you feel you lost your beauty because of breast cancer, help another rediscover her authentic beauty - help her feel and express beauty as often as possible whether it is her physical beauty, inner beauty, her garden, her home, or her surroundings. Create a personal mission statement that reflects your core beliefs and values and how you wish to live your life. When asked, let people know what you stand for. remind others how they have made a difference in your life and thank them. give yourself permission to explore your talents and gifts and enjoy them for yourself as well as share these newly found gifts with others. Don’t wait until the gifts are developed, share them with joy and as an expression of what you are doing. Practice finding and creating more beauty, joy, and love in your life every day. Find purpose and power in everything and in every expereince. give daily thanks for love, joy, family, and your life and for all that empowers you. n THere iS PurPOSe AnD POWer in eVeryTHing BCW Contributors www.breastcancerwellness.org 9 Pay Attention to Your Emotional Needs by Christine Horner, MD Emotion Molecules Each feeling that you have creates a biochemical reaction in your body. In her book Molecules of Emotion, Candice Pert, Ph.D., documented that every thought you think, every emotion you express, triggers the release of neuro-transmitter molecules that spread throughout your body. These molecules of emotion, in turn, cause the release of other chemicals and hormones or may stimulate impulses in your nervous system. When you feel positive and upbeat, healing chemicals and hormones are released by your mind/body that enhance your inner healing intelligence, stimulate your immune system, and strengthen your health. On the other hand, negative emotions, unresolved anger, repressed and suppressed emotions, and stress can take a big toll on your health. When you feel down and depressed, stress hormones and other chemicals that obstruct your healing intelligence, impair your immune system and weaken your health become abundant. It’s no wonder researchers have found that the chemicals released in response to your emotions can affect your risk of breast cancer as well as many other diseases. The good news is that there are many techniques that you can use to process your emotions effectively and reduce how much your mind/body reacts to stressful situations. If you’ve ever questioned the mind/ body connection, think back to a time when you just missed hitting another car or almost fell down the stairs. Your heart started racing, your breathing increased, a prickly sensation may have rushed through your body, you felt a little lightheaded, had a sinking feeling in your stomach, and maybe even started trembling. When you become angry or upset your face turns red, your blood pressure goes up, and your skin may break out in hives. In these situations, your body is reacting to a flood of chemicals released by your brain and nervous system. The connection between mind and body is 10 Breast Cancer Wellness Magazine L’Bri Pure n’ Natural Aloe-Based Skin Care is natural skin care for women who expect the best. Experience the healing and restorative power of Aloe. As the very first ingredient in our skin care products, Aloe provides 75 nutrients, 200 active compounds, 20 essential minerals, 18 amino acids, and 12 vitamins along with synergistic herbs that heal, nurture and repair the skin. See and feel the difference. Our skin care formulas help prevent aging, reverse fine lines and wrinkles, smooth out skin irregularities and heal and nourish the most sensitive skin including those with rosacea, eczema and psoriasis. clearly an intimate one; you can’t separate them. The Science of How Emotions Affect Our Immune System When you feel an emotion, scientists say that it’s processed through the brain’s limbic system and the hypothalamus. The hypothalamus releases neuropeptides, which then stimulate the pituitary gland to release hormones. All the endocrine glands, especially the adrenals, react to these hormones by producing other hormones that can weaken or strengthen the function of the immune system. Certain immune system cells called “lymphocytes” have receptors that receive messages from the molecules released by thoughts and feelings. The hypothalamus also has receptors for peptides released by the immune system’s lymphocytes. A two-way communication takes place between your emotional center and your immune system. Anger, fear, and rage produce neurochemicals that strain your body and can damage your organs. Whereas, laughter reduces levels of cortisol and epinephrine, stress hormones that are released by the adrenal glands. Laughter also stimulates the activity of the immune system. In a study published in Alternative Therapies in Health & Medicine in March 2002, researchers found that laughter increased natural killer (NK) cell function, as well as that of many other types of immune-system cells. These immune-boosting effects lasted for twelve hours after “humor intervention.” Depression and suppression of strong emotions can generate such a blow to your immune system that it nearly stops functioning. Depressed women are nearly four times more likely to get breast cancer than those who have never been depressed, according to researchers at the University of Pennsylvania. u Fall in love with L’Bri. L’Bri skin care products are free of synthetic fragrances and coloring agents, parabens, sodium lauryl/laureth sulfate, propolyene glycol, drying alcohols and pore clogging waxes. Try our FREE* sampler collection on us! Order yours at www.lbri.com or contact us at 1-800-742-8828 Receive a total of 8 different skin care and body care samples, each especially selected for your skin type. *Pay only a minimal shipping and handling fee of $5.75. www.breastcancerwellness.org 11 Pay Attention to Your Emotional Needs To Be Human Is to Be Emotional We are spiritual beings having a human experience. The human experience involves a wide range of feelings and emotions—from sadness, resentfulness, and hatred, to compassion, forgiveness, and love. As human beings, it is part of our journey to continually feel and process emotions. Imagine if you felt nothing— no compassion, no desire, no joy, no sense of accomplishment, no pride, no pleasure, no pain. Nothing could move you to tears—not the most exquisite beauty of Nature, not the birth of your child, not the atrocities of war. Nothing! It’s hard to even imagine. Feelings and emotions were designed for a reason: They give purpose to life. The Energy Center of Emotion The ancient Ayurvedic texts describe energy centers called chakras, which are located in different areas of the body. The heart chakra is referred 12 Breast Cancer Wellness Magazine {continued from p. 10} to as the fourth chakra. In Sanskrit, it’s called the Anahata chakra. It’s said to be the energy center that enables you to feel higher emotions, such as love, compassion, forgiveness, tolerance, happiness, and joy. Your heart is what allows you to “feel,” according to Ayurveda. It is the center of your emotions and the home of your consciousness. Activating and balancing the heart expands your consciousness. The heart chakra is considered to be the fundamental center for your growth as a human being. Dr. Caroline Myss, medical intuitive and author of Anatomy of the Spirit: The Seven States of Power and Healing and Why People Don’t Heal and How They Can, says that the fourth chakra focuses on your feelings about your internal world. Your emotional responses to your own thoughts, ideas, attitudes, and inspirations, as well as the attention you give to your emotional needs, are all contained within this chakra. Anatomically, the fourth chakra is located right over your heart and breasts. Energetically speaking, everything you feel with your heart also affects your breasts. According to Dr. Myss, breast cancer is a fourth chakra issue. The fourth chakra has to do with how you express the emotions that you feel and your capacity to form mutually beneficial, balanced relationships with others and with yourself. In Dr. Myss’s experience, women who develop breast cancer have issues of hope and trust. They often suffer from hurt, sorrow, and unfi nished business. In a 1995 study, women who had suffered a major loss such as divorce, loss of a job, or some other stressful trauma within the past five years were twelve times more likely to have breast cancer than those who hadn’t had one. According to Christiane Northrup, M.D., in her book Women’s Bodies, Women’s Wisdom, studies that look at the different personality patterns of women with different types of cancers found some statistically significant common patterns in women with breast cancer. For example, they tended to have emotionally distant fathers; they had a greater tendency to stay in loveless marriages; and during their childhood, they most likely had the responsibility of caring for their younger siblings. These women also had a greater probability of not taking care of their own physical needs and getting proper medical care. Behavioral studies show that women who develop breast cancer have a tendency to be caregivers. They take care of everyone else’s needs before they take care of their own. Taking Care of Your Needs Take a look at your life, and make sure you’re taking care of your own needs. Don’t sacrifice what you need to do to take care of yourself in order to take care of other people. Nurture yourself by doing things that make you feel good. As a very wise friend of mine says, “The best way to take care of other people is to take care of yourself fi rst.” n Christine Horner, MD Christine Horner, MD is a board certified and nationally recognized surgeon, author, expert in natural medicine, professional speaker and a relentless champion for women’s health. She is the author of Waking the Warrior Goddess: Dr. Christine Horner’s Program to Protect Against and Fight Breast Cancer, winner of the independent Book Publishers Award 2006 for “Best Book in Health, Medicine, and nutrition.” For more information go to www.drchristinehorner.com. www.breastcancerwellness.org 13 is nutrition Nonsense? Maybe it’s time to throw out the broccoli and bite into a refi ned white bagel after all. Why not? In light of the latest study released in July of this year, I’m not so sure I would blame you for thinking this way. Researchers from the WHEL Randomized Trial (conducted from 1995 to 2000 with subjects being followed for seven years thereafter) reported that a diet high in fruits and vegetables and low in fat did not reduce cancer recurrence rates in women with a history of early stage breast cancer. This absolutely counters what many nutritionists (myself included) have recommended to patients for years. So what are you supposed to believe? Let’s say it out loud—some of you are seriously wondering if diet makes a difference. This dietary dilemma has been a frequent topic of conversation with my patients who want proof that if they make changes to their diet they will reap rewards of better health and enhanced longevity. And certainly, we have many studies to suggest that is the case. But the WHEL study findings just may be the last straw for many of you who are tired of hearing about confl icting nutritional recommendations. One of my past clients painfully explained her take on the nutritional controversy in a recent email: “Fighting genetics, a metabolic stand-still heightened by chemo and a hysterectomy and reduced energy levels is a daily struggle. In all honesty, women like me (and there are a LOT of us) need ammunition to get the strength to take that on for the long haul. There is this small voice that constantly says, “why bother, it won’t do you any good anyway. Most of us would agree it is worth it if it will make a difference; but one study showing benefit seems to be neutralized by a study showing it doesn’t make any difference. It is maddening to say the least.” You have a right to feel confused and frustrated. You may even have a right to throw a bran muffi n at your favorite nutritionist. The studies are confl icting—and as a health care professional in the midst of the controversy, even I get frustrated with the ever-changing recommendations. The beauty of science, however, is that through constant research and followup we get better at figuring out what works and what doesn’t work, what by Kim Dalzell appears to be promising, and what appears to be realistic in terms of outcome. Accolades to scientific advancement aside, that still may leave you with a huge question mark about diet. The media didn’t help when they recently splashing about sensationalized headlines suggesting we all might as well go back to the McDonaldized way of life. Unfortunately, the media are not experts in discerning whether or not study methodology is sound, nor are they able to critically assess the other components of these women’s lives, such as their weight status, how much saturated fat they consumed, or if they were compliant in following the guidelines established for them. There will always be controversy Dedicated to pleasing you emotionally and physically in a private & pleasant atmosphere. The&Wig Salon Ltd. Mastectomy Boutique Call for a FREE Consultation! Certified Staff kind of food you put into your body affects the structure and ultimately the function of your cells. That is basic physiology 101. Unfortunately, medical doctors do not receive information about nutrition and therefore, do not pass the importance of a good diet onto their patients. At the end of the day, knowledge of the confl icting nutritional findings leaves you with two choices: throw your hands up in the air and say, “whatever will be, will be” or fight. Fight for your husband, your kids, the life you knew and loved, the life you miss. Fight for you. I believe wholeheartedly (and have plenty of patients who would attest to it) that nutrition is one of the most powerful tools we have to prevent and fight cancer. Cancer outcome aside, by changing your diet you will have more energy, your body will feel and work better, you will have reduced your risk of other chronic diseases and you will have been able to “do something yourself” about your health destiny. Taking action, steeped in faith and hope, is always a good thing. The alternative, quite frankly, is death of body, mind and spirit. Wishing you continued hope and optimal healing in your journey. n by Kim Dalzell, PhD, RD, LD Author, Challenge Cancer and Win! and Oncology nutritionist. Visit www.naturesanswertocancer.com for more health advice. 1-800-832-2983 Comprehensive approach to cancer: 1. The foundation for healing requires that one learns how to stop producing cancer. 2. Selectively target and eliminate cancer cells with minimal to no harmful effects on healthy cells using IPT, IV Vitamin C and other modalities. 3. Balance and enhance the immune system with a variety of therapies including ozone. TURBANS • HATS • HAIRBANDS • WIGS • WIG ACCESSORIES • MASTECTOMY PRODUCTS An Oasis of Healing MAJOR CREDIT CARDS ACCEPTED • GIFT CERTIFICATES AVAILABLE 210 N Center St, Suite 102, Mesa, AZ 85201 1008 W. JERICHO TURNPIKE • SMITHTOWN, NY 11787 14 631.864.7560 in science, but the common threads of eating well in order to live well are ever present. Common sense tells us that what we eat affects our health. Why is it that people from Japan, who have a lower incidence of breast cancer, relocated to the United States, embrace a Westernized diet and lifestyle, and have breast cancer rates similar to Americans? And what about the newest study from China, where obesity and disease rates are increasing dramatically? Researches studied the habits of 1,459 women with breast cancer compared to 1,556 matched controls between the ages of 25-64 years. Their diets were classified as “meat-sweet” (typical American diet rich in refined sugars, animal foods and milk) or “veggie-soy” (comprised of plants, soy foods and fresh water fish). Not surprisingly, the women who ate the meat sweet diet had double the risk of developing estrogen positive breast cancer as the veggie-soy eaters. The majority of scientific evidence continues to show that populations of people who eat a low fat, high fiber, plant-based diet have lower rates of almost all forms of cancer and degenerative diseases and even when people in these populations develop cancer, they have much higher survival rates. The Breast Cancer Wellness Magazine 480-834-5414 www.anoasisofhealing.com, [email protected] www.breastcancerwellness.org 15 Girl Talk for Survivors On a dark December day in 1998 I became an involuntary member of the young survivors club. I didn’t want to join. In fact, I had spent two days praying that I wouldn’t be eligible. By being a part of this group everything that was familiar to me was fleeing and I was left with uncertainty and fear. Maybe you have been there as well. Inducted into the club because of breast cancer at young age. I was twenty-six. As if it weren’t enough to have cancer, I was also in limbo. Constantly being told, ‘you’re too young to have cancer.’ My friends, God bless them, just couldn’t relate as I began to deal with issues that they never even considered. They were very helpful in many ways but I always felt set apart in normal conversations. While they were able to discuss when they would have baby number 2 or 3, I would quietly think ‘If only that were my biggest problem’. My ability to be carefree was gone. Are you in the young survivors club? Have you faced menopause, infertility, loss of breasts, body image issues, or the possibility of dying young and leaving behind young children that might not even remember you? These are just a few of the issues that may accompany the words, ‘it’s cancer’. Don’t get me wrong, I know that I am blessed to be a survivor. Continuing to have a quality life for eight years after stage IV cancer is a gift, and I am thankful for that. But sometimes it seems as though I have already been through things that my friends won’t face for years. I mean really, do you 16 Breast Cancer Wellness Magazine by Heather Jose want to talk about hot flashes to your peers who are having babies or do you want to admit to the next generation that you understand what they are going through even though you are still in your twenties? It just never feels as though there is a perfect fit. I found over time that I have more in common with other survivors that I barely know who have been in my shoes at a similar stage of life. Women who have heard the same words as I have and felt the same despair at their situation. They have been frustrated at people who complain over every little thing instead of being thankful for their good fortune. And they have questioned their femininity and sex appeal after having a double mastectomy praying that their husbands really mean it when they say the words, ‘you’re beautiful’. These are the women that understand when I talk about finding childcare in order to get treatment and the women who sympathize with me when my ability to have more children was destroyed in order to kill cancer. Cancer has shaped each of our lives in a way that most of us ever imagined. For me it has brought unique perspective and opportunities that I never envisioned. It has helped me to be courageous and to find strength that I never knew I had in order to face the challenges that came with doing treatment and creating wellness on a daily basis. There have been many challenges, and they continue to evolve as time goes on. In some ways I feel old beyond my years having dealt with things that most women my age haven’t faced yet. Should a thirty something really be thinking about osteoporosis, and whether or not my life has made a difference? How do I switch from deep issues to daily life which includes flag football, piano lessons and ‘did you brush your teeth?’ It is our goal with this column to unite as young survivors to discuss the lives that we live. We can use the words that only we understand, from our lives as cancer fighters and as young moms, wives and friends. We can switch from treatment talk to nutrition struggles, to kids dealing with cancer. Most of all, we can know that we are not alone. Together we are stronger, openly discussing issues that are unique to young breast cancer survivors. I am thankful to be a new columnist for “Girl Talk for Survivors” for The Breast Cancer Wellness Magazine so that together we can discuss these important challenges and issues that are heaviest on our hearts and minds. Email your experiences, questions, or challenges to [email protected]. n Heather Jose Diagnosed with stage IV breast cancer at 26, Heather Jose chose to fight the cancer head on putting together a plan to battle cancer on a daily basis. Eight years later, Heather is healthy and using her experiences to speak to healthcare providers and patients about how much their actions and words can impact success. Heather is the author of “Letters to Sydney: Every Day I am Killing Cancer”. www.heatherjose.com. www.breastcancerwellness.org 17 Flax Research for Breast Cancer 1. Flaxseed is one of the richest dietary sources of lignans, phytoestrogens thought to protect against cancer of the breast, prostate, and colon. - Dr Andrew Weil (www.naturalhealthweb. com) 2. Research has found that women who eat the highest amounts of omega-3s have the lowest risk of breast cancer. Flax is the richest plant source of omega-3 fatty acids. - Christine Horner, MD 3. Flaxseed is very high in alphalinolenic acid, one of the ‘protective’ omega-3s. Studies have explored the theory that alpha-linolenic acid inhibits the development of breast cancer. -Jane Reinhardt-Martin, RD, LD 4. Flax provides omega-3 fatty acids which help to lower the risk of breast cancer by quieting inflammation and by decreasing the rate at which breast cells divide in response to estrogen. Inflammation is a key factor in the initiation and progression of a variety of diseases including heart disease, rheumatoid arthritis, skin diseases, and cancers such as breast cancer. If you have breast cancer, omega-3s have been found to help shrink breast tumors and prevent them from spreading to other parts of the body. Christine Horner, MD 5. Flax provides more “lignans” than any other edible plant. Lignans provide high concentration of protection for breast cancer. - (www.flaxhealth.com) 6. Flaxseed is high in lignans, up to 800 times the amount as in any tested plant food. Lignans (a phytoestrogen) have been called by H. Adlercreutz (in his article “Phytoestrogens: Epidemiology and a Possible Role in Cancer Protection”), natural cancerprotective compounds. Flax seed is also high in alpha linolenic acid (ALA) which has been found to be promising as a cancer fighting agent. (www. flaxhealth.com) 7. The American National Cancer Institute has singled out flaxseed as one of six foods that deserve special study. Flax seed, high in fiber, lignans, alpha linolenic acid, is a key player in the fight against cancer, particularly breast and colon cancer. (www.flaxhealth.com) n Disclaimer: Confirm with your health care professional on the benefits of flax for your healing regime. As winner of this contest, Terri Cameron is being awarded 3 deluxe gift packs of flax seeds from North American Nutrition (www. golden flax.com), one for herself, and two gift packs to “Pay It Forward” to friends or breast cancer survivors of her choice. Terri Cameron has not been diagnosed with breast cancer but believes in researching what is available for her health and wellbeing. Announcement of the Flax Seed Contest Winner: Terri Cameron – Republic, Missouri a u l t k r l i W a V Take a... to Raise Funds and Awareness for Stage IV Breast Cancer Patients www.galtogalwalk.org You are invited to walk with us from Oct. 1–31, 2007 Even though we live in all parts of the country, it’s easy for us to walk together via the virtual walk to raise funds and awareness for stage IV breast cancer patients. Registration is simple: go to www.galtogalwalk.org. For a minimum donation of $3.00, you can design your character and you will be added to the walk landscape where you can invite friends and family to join you. As a supporter, you will receive a virtual goody bag with items donated by the Foundations strategic partners. Walkers may also purchase merchandise featuring their character on www.designhergals.com to support The Gal to Gal Foundation. You will also be joined by celebrities... Lynn Redgrave, Kristin Chenoweth, Molly Sims, Mena Suvari, Diane Farr, Leisha Hailey, Punch Hutton, Marg Helgenberger, and Jorja Fox. Supporters will participate in The Gal to Gal Walk by creating their virtual likeness online and then watching themselves talk a virtual walk across America. The walk begins in the Virtual World of Harvard Square in Boston, MA and concludes on the Golden Gate Bridge in San Francisco, visiting 29 cities along the way. The landscape walkers travel through will change on a daily basis, giving you a reason to return; new walkers will be joining all the time, sharing their stories and building momentum as more people participate in this innovative fundraising effort. Jeanne Fitzmaurice, founder of Design-her Gals and Gal to Gal Foundation, thanks you for your support so that the Foundation can continue to benefit individuals who are facing the most difficult battle of their lives. The goal of the Gal to Gal Foundation is to raise awareness and funds for stage IV breast cancer patients and their families and to bring dignity and comfort to those who need it most. 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When there is too much estrogen and not enough progesterone to counteract its effects, the situation is called estrogen dominance. Estrogen dominance is a multi factorial situation and is caused by such things as exposure to excess environmental xenoestrogens, use of synthetic estrogens such as the birth control pill and hormone replacement therapy (HRT), anovulation (lack of ovulation during menstrual cycle, which is not uncommon among women older than 35), digestion issues (which tax the estrogen-detoxification process in the liver), unrelenting stress (which strains the adrenals and the thyroid), unresolved emotional issues, poor diet and negative lifestyle factors such as smoking and alcohol use. How does estrogen dominance specifically alter women’s health? It has been linked to a wide range of conditions, including increase in PMS symptoms, uterine fibroids, and endometriosis, as well as symptoms including allergies, decreased libido, fatigue, fibrocystic breasts, headaches, infertility, irritability, and fat gain around the abdomen and on the top of the thighs. In addition, numerous studies demonstrate excess estrogen can cause breast, uterine, and ovarian cancers (which are all considered estrogen dependent cancers), and cervical dysplasia (a precancerous condition characterized by abnormal changes to cervical tissues). It is easy to see how, in our contemporary lifestyles, estrogen can begin to dominate the hormone scene, with the prevalence of xenoestrogens; the use of HRT and oral contraceptives; diets skewed in favor of nonorganic fruits, vegetables, meats, and dairy products (which frequently contain xenoestrogens); stressful lifestyles; and increased estrogen production because of anovulation, imbalanced ovarian function and hysterectomies. Cancer is among the most disconcerting of the possible outcomes of estrogen dominance. Because cancer 20 Breast Cancer Wellness Magazine rates are increasing every decade, it is likely that cancer has touched your life in some profound way. I know I am seeing more women with estrogen-dependent cancers in my clinical practice than ever before. The American Cancer Society (ACS) estimates one in three women will develop some type of cancer in her lifetime. Breast cancer rates have increased from one in 20 in 1960 to one in eight today, though the rates have slowed since the 1990s. But the ACS says breast cancer incidence rates have increased lately in women older than 50. Among the risks the ACS lists for breast cancer are long menstrual history (early onset of menses and late menopause) and use of oral contraceptives and postmenopausal estrogens and progestin. These risk factors increase the lifetime exposure to estrogen. The connection between excess estrogen and certain cancers is clear. Harmful estrogens are difficult to detoxify and are stored in fat. In a recent study published in the Journal of the National Cancer Institute, researchers linked obesity to breast cancer. Women with a higher body mass index (BMI), which equated to higher levels of body fat, also had elevated hormone levels, particularly of estradiol, which is the more potent of the estrogens produced in the body. The researchers concluded, “The increase in breast cancer risk with increasing BMI among postmenopausal women is largely the result of the associated increase in estrogens.” According to a study featured in Cancer Causes and Control, women can reduce their breast cancer risk by maintaining a normal weight, because that reduces the amount of hormones stored in fat. Other things that are extremely important to remember to protect your tissues from an excess of estrogen and begin to restore function in your hormonal system are: q Eat a diet full of organic whole foods and fiber and get at least 5-9 servings of fruits and vegetables each day. q Identify and decrease any unrelenting chronic stress and support your adrenal and thyroid glands with proper rest and supplementation. q Restore any digestive imbalances and make certain that you have plenty of good bacteria on board to crowd out any over growth of yeast or bad bacteria. q Decrease exposure to xenoestrogens by wearing and using safe products free of hormone disruptors such as parabens and phalates. I recommend Theo Colburn’s book “Our Stolen Future” for further reading. q Search for a practitioner that will offer safe and natural relief for symptoms during hormonal transitions and decrease your use of HRT. Try visiting www. naturopathic.org. q Decrease your use of alcohol and if you smoke, please stop. Next issue we will talk more about the powerful hormone estrogen and how to make sure it is being metabolized in a way that actually has health benefits! n Dr. Holly Lucille N.D., R.N. 6399 Wilshire Blvd., Suite 401 Los Angeles, CA 90048 323-658-9151 (p) / 815-425-8815 (f ) www.AllHealLucille.com www.DrLucilleInfo.com www.breastcancerwellness.org 21 savepinklids Saranne Rothberg Andrea Ivory Jeanne Fitzmaurice Randi Passoff Beverly Vote Sandra Walters Tenille Oderwald LaTondria Carter everylidmatters Every lid you collect helps us raise $1.5 million* to support Susan G. Komen for the Cure in the fight against breast cancer. Do your part, collect pink lids and bring us one step closer to a cure. everyonematters Every year, Yoplait® honors 25 individuals for their extraordinary efforts in the fight against breast cancer. Their motivation and creativity help make a difference in the lives of people they touch. They inspire us with their determination, and are making a difference in our lives, too. For their tireless efforts in the fight against breast cancer, we salute all of the Yoplait Champions, and their supporters. Meet these champions and hear their stories at yoplait.com *For every pink lid mailed in by December 31, 2007, Yoplait® will make a 10¢ donation to Susan G. Komen for the Cure. $500,000 guaranteed minimum donation. ©2007 General Mills A Tribute These heartfelt words of my dear friend, Susan Little, say it well. On behalf of The Breast Cancer Wellness Magazine and thousands and thousands of women in the world whose lives have been touched by the compassion and commitment of Nancy Brinker and her grassroots organization and the millions of indviduals that are helping to create a world without breast cancer, we honor the largest breast cancer awareness organization in the world and we say THANK YOU. – Beverly Vote, Publisher W hat an amazing twenty-five years this has been! From a group of two to a group of millions…..one can only guess at the number of lives that have been saved as a result of that commitment made between sisters. Many years later, this is what Susan G. Komen for the Cure has done for me: When breast cancer struck back in 1998, I jumped in with both feet and learned everything that I could about the “whys and hows and what-to-do’s” of the disease. And, while my husband and children were my loudest cheerleaders and greatest advocates for “the cure,” I came to realize that there was a huge population of underinsured and underserved women in our community who needed the same access to mammograms that I had. Fortunately, I worked for a state social services agency whose administrator, Carmen Schultz, was a proactive force in any initiative that had the potential to make life better for those we served. So, in conjunction with our local health department, we were able to put together a coalition as part of the Breast and Cervical Cancer Control Project that resulted in a number of women able to obtain mammograms with subsequent diagnosis and treatment options. The Komen Foundation was instrumental in providing guidance and leadership in those efforts. I was honored and privileged to participate in the Susan G. Komen for the Cure – St. Louis event in 2006 where my daughter and I were among well over 60,000 participants. Along with a daughter-in-law and grand- son, I have shared the day in Kansas City, as well. Emotions ranged from thankfulness at being there with so many others who came together for the festivities to tears from those family members and friends who had lost loved ones to breast cancer over the years. The event organizers, the volunteers, the newly diagnosed who walked side by side with the longterm survivors (I clasped the hand of an eighty-seven year old survivor!) – these are the folks who keep the energy flowing through this grass roots movement. Thank goodness for the corporate sponsors who give center stage to breast cancer prevention, early diagnosis, and treatment issues for, without them, the task would be far more daunting, indeed. And thank you, Nancy Brinker, for working tirelessly and passionately on behalf of your sister. In health care arenas throughout the world, your efforts have carried over to many, many other grassroots movements that address not only breast cancer but other preventable and curable diseases, too. The future holds such promise for so many, and what a legacy that is! Susan K. Little Eldon, MO www.breastcancerwellness.org 23 A Tribute A LETTER FROM NANCY G. BRINKER, FOUNDER OF SUSAN G. KOMEN FOR THE CURE: F irst and foremost, i’d like to express my gratitude to Breast Cancer Wellness for this great Tribute to Susan G. Komen for the Cure. When I started this organization 25 years ago as a promise to my sister, Susan G. Komen, who died from breast cancer, I had a vision. We’re a quarter of a century into that vision and I now call myself a breast cancer survivor. I often marvel at what has been accomplished in such a short period of time - millions of people around the world taking my promise to Susan and making it their own. It is tempting to trumpet the tremendous accomplishments of this organization and its caring, dedicated people - for there are so many wondrous successes. But I’d rather use this space to talk about two more important things: cancer survivors and the future. Today, there are more than ten million cancer survivors around the world. We are people who faced breast cancer and other types of cancer head-on, and through courage and perseverance, have lived. The work breast cancer survivors and activists do brings critical issues to the forefront; issues such as improving health care for the economically disadvantaged, the importance of regular breast cancer screening, cuts in cancer research funding, inadequate health insurance or the reduction in the number of cancer treatment facilities. Despite all the progress and promise - the fi rst-ever decline in cancer rates, research breakthroughs in genomics, increased rates of diagnosis - I have never been as worried about our nation’s commitment to the war on cancer as I am today. Why is our nation no longer expressing outrage over a disease that kills more Americans every year than died in all the wars of the 20th century? A culture of complacency has developed in our nation. Together, we can determine the future of the war on cancer. We can change the bureaucracy. We can change the health care system. We can change the way the world views the war on cancer. There is still tremendous work to be done. Even after more than 25 years of research, we still don’t know what causes breast cancer and we don’t know how to prevent it. If we do not fi nd the cures, in the next 25 years an estimated ten million women could die from breast cancer. Susan G. Komen for the Cure will continue to lead the movement for a world without breast cancer, as we’ve already invested nearly $1 billion in breast cancer research and community outreach programs. We’re making this historic pledge: over the next decade, we will invest another $1 billion, including some $600 million for cuttingedge research. And we will bring together thought leaders from a myriad of fields to tackle the great social and economic roots of cancer disparities and research. 24 Breast Cancer Wellness Magazine Above: nancy g. Brinker at the national race for the Cure in Washington, D.C., in memory and in honor of her sister, Susan. Below: nancy g. Brinker at the Hungarian Bridge Walk, Hungary. Right: Sisters Susan g. Komen and nancy g. Brinker in the late 1970s. In the words of Marie Curie, “I never see what has been done. I only see what remains to be done.” My friends, we know what remains to be done. The only question is: Do we - as a nation, a cancer community, as individuals - have the will to do it? My conviction is this: What began as a promise to my sister will end in the cures. Will you help me? With love and gratitude, Nancy G. Brinker Founder www.breastcancerwellness.org 25 A Tribute HALA MODDELMOG, CEO AND PRESIDENT OF SUSAN G KOMEN FOR THE CURE Her Story of Service, Strength and Survival S omething didn’t feel right. In mid-summer of 2001, while showering in the Bahamas during a vacation with her daughter and another mother-daughter duo, Hala Moddelmog felt something in her breast, and thought “yikes.” Hala made an appointment with her primary care physician immediately following her return home. Upon his initial examination, her physician concluded that something didn’t feel right. He immediately advised a mammogram, which failed to show any problems or concerns. Hala is thankful that her physician was professionally astute and persistent and advised her to have further testing. A sonogram conveyed that Hala, 45 at the time, had invasive lobular carcinoma, a form of breast cancer that many times is not detectable by mammography. Because her physician felt there was a high probability for recurrence in the other breast and because there were micro cells in her lymph nodes, Hala opted for a double mastectomy. Her surgery was on September 4, 2001. A week later, while recovering at home, Hala would watch America’s life changing experience of 9-11 play over and over on the television. Not only would America never be the same, but at the same moment in time, breast cancer was creating a personal life-changing experience for Hala. Hala’s greatest concerns were for her children and her husband. She knew the experiences and impact of losing a mother at a young age as she was only 17 when her own mother died. Therefore, the possibility of leaving her 13-year-old daughter Kierstin and 16-year-old son Ty motherless weighed heavily in Hala’s thoughts. At the time of her diagnosis, Hala was President of Church’s Chicken, which employed well over 10,000 men and women. During this attack on America, she was concerned for the safety and well being of the employees of Church’s that were traveling throughout the world as part of their job. Their whereabouts and well being remained in her thoughts as she faced her own life-challenging experience. Coupled with the 9-11 trauma that America was watching unfold, Hala’s friend lost his wife in a car accident where their 16-year-old daughter was driving. All of this came crashing down - Hala was experiencing a life threatening disease, personal grief, the worst assault in America’s history, concerns for her employees and the corporate organization, preparing to start chemotherapy treatments, and dealing with the multifaceted impact of all of this on her family. With her unwavering strength, Hala was able to instinctively focus on her health, not only for herself, but for the well- 26 by Beverly Vote Breast Cancer Wellness Magazine being of her family. This was not impossible, but was duly challenging because she was concerned corporate America and Wall Street would not be fully understanding of a woman needing personal health time and support beyond the challenges of her job. Hala quickly put her diagnosis into a different perspective and knew that she could make it through whatever was before her. She chose to keep her diagnosis of breast cancer as private as possible with the hopes of not disrupting the professional confidence placed in her by her corporate management. This decision is something that she still reflects upon to this day. Of concern is how our corporate society treats the health needs of all individuals who are facing life-threatening diseases. After nearly 10 years as President of Church’s, Hala left the corporate world. While volunteering for the Brand Atlanta campaign, an associate mentioned that Susan G. Komen for the Cure was seeking a new CEO and President for their new worldwide commitment and mission, and encouraged Hala to consider this possibility. A few days later, Hala and her husband Steve were carefully reading through the job description and criteria for the Komen position, and Steve instantly agreed with her that many things about this position felt right for Hala. Since 2001, Hala has been instinctively drawn to make a difference for breast cancer so that her daughter, son, and husband never have to fear breast cancer in their lives again. In addition, she wants to personally stand as a reminder for women to commit to have their mammograms as professionally advised, but to also follow diagnostic testing until everything feels right, leaving no shadow of a doubt. If she had just accepted the mammogram, which did not show the lobular cancer, she might not be cancer free today. In the spring of 2007, Hala was introduced to breast cancer advocates in the Middle East including the countries of Israel and Jordon. It was an alarming experience for Hala to learn that in some cultures it is a standard and acceptable practice that when a woman is diagnosed with breast cancer, her husband will automatically take a second wife. This shocking knowledge only convinced Hala more that her life was being drawn toward worldwide empowerment and leadership for women and for breast cancer. Hala has been married to her husband Steve for 22 years. They have two children, Ty, a student at Dartmouth, and Kierstin, who is attending the University of Colorado in Boulder. In her free time, Hala enjoys water and snow skiing, traveling and reading, but her greatest joy is spending time with her family. Currently this is quite challenging due to her extensive business travel and her children’s hectic college schedules. Keeping connected with family means trading e-mails and quick cell phone calls on most days. Hala is grateful for the gift of her life and her family. She feels that working for Susan G Komen for the Cure and its mission to end breast cancer forever is also a gift. “It is the opportunity I really wanted. I am not a scientist, nor have I been involved in the medical field, but Nancy Brinker’s passion, drive, and commitment to not rest until this disease is wiped off the face of the earth is an experience unlike any other. When I evaluated the role and commitment of this position, and looked at what I could provide through my professional and personal experiences, I knew I could make a difference towards this cause. The totality of the organization’s dedication to community advocacy and the sheer level of integrity gave me the intense desire to participate by sharing my expertise and leadership skills. Komen launched the strongest grassroots movements in the world today, and to be involved with the organization is a gift of which I am extremely grateful. I am humbled to serve as President and CEO of the world’s largest grassroots network of breast cancer survivors and activists who work tirelessly to save lives, empower people, ensure quality care for all, and energize science to find the cures. Thanks to events like Komen Race for the Cure, the organization has invested nearly $1 billion over the past 25 years to cutting edge research and community-based programs, and I intend to do everything in my power to ensure we invest that much if not more in the next ten years. We’re on a mission.” Hala Moddelmog, president and chief executive officer, joined Susan G. Komen for the Cure in September 2006. As CEO, Ms. Moddelmog is responsible for all aspects of the organization’s management including budgets, forecasts, managing business units including the global Affiliate network, policies, procedures and compliance, and the development and successful implementation of the organization’s objectives and strategies to end breast cancer forever. She works closely with Komen volunteers, staff and the board of directors. As a 6-year breast cancer survivor and former Fortune 500 executive with a passion for championing women’s issues and community engagement, Ms. Moddelmog’s commitment to Komen’s mission is fueled in her belief in the power of hope, the strength of survivors and the belief that one day the cures will be found. She embraces the core values of Komen, which seek to build a culture of hope through inclusion, honesty, passion and empowerment. Prior to joining Komen for the Cure, she served as founder and CEO of Catalytic Ventures, a consulting firm that worked with private equity investments in the food service industry. She was the first woman in corporate America to lead an international quick service restaurant brand in 1995 when she was named president of Church’s Chicken, a division of Atlanta-based AFC Enterprises. She subsequently led Church’s to record sales and profit performance. She also held executive management and marketing positions at Church’s Chicken, Arby’s Franchise Association and BellSouth. Ms. Moddelmog has served on the boards of Leadership Atlanta, the Atlanta Police Foundation, the B.B. King Museum Foundation and Women Looking Ahead magazine. She is a recipient of the Women’s Foodservice Forum Emerging Leader Award, the International Franchise Association Bonny LeVine Award, the Restaurant Hospitality Rising Star Award and the Roundtable for Women in Foodservice Pacesetter Award. In 2003 she received the Women of Achievement Award from the YMCA of Greater Atlanta. Ms. Moddelmog earned a bachelor’s degree in English from Georgia Southern University and a master’s degree in journalism and mass communications from the University of Georgia. She received an honorary doctorate from Georgia Southern University. n www.breastcancerwellness.org 27 A Tribute BREAST CANCER WELLNESS MAGAZINE ‘A TRIBUTE’ NANCY BYRD, VICE PRESIDENT OF DOMESTIC AFFILIATE NETWORK FOR SUSAN G KOMEN FOR THE CURE Words from Suzy Komen’s Best Friend “S by Beverly Vote uzy and i were extremely close. It was the kind of special friendship one is so fortunate and gifted to have in a lifetime. As Suzy and I modeled professionally, we met at a fashion show at a large charity event in Peoria; quickly we became what some might call ‘soul sisters’. Soon we discovered many common interests, understandings and goals way beyond the fashion scene. She was my best and dearest friend, and it was my privilege to know her.” “Suzy battled breast cancer for three years after being diagnosed at 33. She was a devoted wife and mother to two young children. She was courageous and strong, always with a smile on her beautiful face. When she lost her battle in 1980, I was by her side as she took her last breath. Suzy’s outer beauty was magnificent only to be surpassed by an inner beauty of perseverance, kindness and determination. She fought the insidious disease of breast cancer at a time when it was almost unthinkable to mention. It was also a disease associated with much older women, not someone young, fit and vibrant. It was Suzy’s fervent wish that women would not have to experience the threat of breast cancer.” Suzy’s sister, Nancy Brinker, was driven to find a cure for breast cancer. She had promised Suzy she would do everything she could do to help other women. At the time of Suzy’s death Nancy did not yet know just how she could make a difference … but did know she WOULD make a difference! With the help of a handful of friends Nancy held an October fundraising event the year following Suzy’s death. Linda well remembers. “It was an all women’s polo match and luncheon held at Nancy’s ranch outside Dallas, Texas.” The following year, Linda returned to Dallas for the first Susan G. Komen Race for the Cure. As a recreational runner and trained dancer she was thrilled to be first out of the chute “for about 30 seconds!” “With over 1,000 participants in that first Race, I felt Suzy’s presence with me as I ran just as I feel her spiritual connection and love today.” After that first Susan G. Komen Race for the Cure in Dallas, Linda left with a surge of excitement to bring the Race to Peoria, IL, hometown of sisters, Susan G. Komen and Nancy G. Brinker. With a sense of urgency, she jumped in full force to make it happen. After 18 months of research and development, knocking on doors, making phone calls and putting blinders on in dealing with the naysayers, Linda was ready to take the concept and her plan to the Junior League of Peoria. She and Suzy had enjoyed membership in the League and had worked together on many projects. But collaboration between two not-for-profit organizations, Susan G. Komen for 28 Breast Cancer Wellness Magazine the Cure and The Junior League of Peoria, at that time was uncharted territory. An added touch was needed… Then, opportunity struck. When she learned former First Lady Betty Ford was to make an appearance in Galesburg, Illinois, an hour from Peoria, Linda decided to try to maneuver her way through security to greet Mrs. Ford. (The two had met in Dallas during several Komen events). Linda courageously made a request of the First Lady: a letter of endorsement supporting her mission in Peoria. Funding, organization, cooperation and Mrs. Ford’s letter led the way to Peoria’s first Race for the Cure. The Junior League of Peoria Women’s Health Awareness Project culminated with the first regional site of Race for the Cure outside Dallas in 1986. It was truly a milestone for Linda. Twenty thousand dollars was raised with 1,258 participants. In its 22nd Race for the Cure held this past Mother’s Day weekend, over $750,000 were raised with approximately 25,000 people attending from the Peoria community and beyond. Linda’s lifelong passion and mission continue. Through the years she has developed prototypes for other Races throughout the United States. In 2006 she was a delegate of the U.S. State Department and Susan G. Komen for the Cure launch of the U.S.-Middle East Partnership for Breast Cancer Awareness and Research, a series of events and speaking engagements bringing together health professionals, breast cancer survivors and local advocates in the United Arab Emirates (UAE). n Affiliates and Volunteers are the Heart and Soul by Beverly Vote N ancy Byrd first became involved with the Susan g. Komen for the Cure in 1986 as a volunteer because she had close friends that had been diagnosed with breast cancer. But in December 1993, just months after joining the Susan G. Komen organization as a staff member, Nancy Byrd was diagnosed with breast cancer. Not only was Nancy Byrd facing the life challenges of breast cancer, she was doing so while she felt she was living in a glass house. At the time of her diagnosis, no one within the Komen Headquarters had ever had breast cancer other than Nancy Brinker. Nancy Byrd’s diagnosis made it very real for the other staff members, as her new associates watched her undergoing treatment, they asked questions, and they asked more questions. “It was a very public experience“, says Nancy Byrd. She was 45 at the time and had just become the interim Executive Director nationally. But through it all, Nancy Brinker, founder of Susan G. Komen for the Cure, provided Nancy Byrd with caring and steadfast support. “For me personally“, says Nancy, “I wouldn’t have had the information that I needed when I was diagnosed with breast cancer if it weren’t for the Komen organization, Nancy Brinker, and Nancy Brinker’s book, “The Race is Run One Step at a Time“. There are so many decisions to be made when diagnosed with breast cancer and not a lot of time for the learning curve.” Nancy’s 21 year history of knowing Komen for the Cure as a volunteer, and in her work with the country’s Affi liates, and as a breast cancer survivor, Nancy knows how important her purpose in life is, how important Susan G. Komen for the Cure was for her own healing experience, and how important her job is to help the Affi liates fulfi ll their missions in their communities. Under her guidance, she has helped the Komen Affi liates implement programs such as “Komen on the Go” which started as an outreach program for young women and the college community to educate women about breast health. Now the program has been expanded and combined with the “Komen Community Challenge,” which includes reaching young women but also their mothers. “Our dedication to The Promise is strong. We are continuing to place mammography opportunities into rural areas, adding new Komen Affi liates, and adding programs that promote breast health education, and serve the many needs of those facing breast cancer within communities all across the United States,” says Nancy. Today, as Vice President of Domestic Affi liate Network, Nancy Byrd works with the 122 Domestic Affi liates. “The Affi liates and the thousands of volunteers are the heart and soul of the Komen organization. Many of these volunteers work 40 - 60 hours a week. They have true compassion and commitment for making a difference. The Affi liates are the face of the Susan G. Komen for the Cure in each of these communities. They are the grassroots of the mission of The Promise, and they are amazing individuals. I have never seen more passion and dedication than what the Komen volunteers and Komen Affi liates have,” says Nancy Byrd. For more information about The Promise, Komen on the Go, and Komen Challenge, go to www.komen.org. n www.breastcancerwellness.org 29 A Tribute Passion with Purpose is a Very Powerful Combination “M by Beverly Vote y life is an example of being at the right place at the right time”, says Donna Sanderson, Executive Director for the Sacramento Valley Affiliate of Susan G Komen for the Cure. “Only two months after becoming involved with Komen for the Cure, I was diagnosed with breast cancer. I learned first-hand, up-close and personal, how valuable Komen’s message of early detection can be. Becoming involved with this organization and being diagnosed with breast cancer helped me expand my artificial boundaries. I learned a new sense of strength. For a long while after being diagnosed with breast cancer, I shied away from the label of ‘breast cancer survivor’ until I saw how my experience might make a difference for someone else.” In 1996, an associate persuaded Donna to attend the Komen Affiliate conference in Dallas on behalf of the Sacramento Valley Affiliate. It was at that national conference that Donna learned how Komen’s resources could benefit her local community. She learned how well organized and committed the Susan G Komen for the Cure was to ending breast cancer. This type of grass-roots activism was exactly what she wanted to bring home to the Sacramento area. Donna continued to feel that she was at the right place at the right time when she was elected to be the first President of the Sacramento Affiliate’s Board of Directors, and then to be appointed to the position of their first Executive Director. The first Komen Race for the Cure in her community had 2,039 participants. In May 2007, the Sacramento Valley Affiliate held their 11th annual Race for the Cure. In the past 11 years, it has grown to over 24,000 participants, raising over $2,500,000 for the cause! Donna believes that this is a good example of the compassion and generosity of the people of Northern California. “We receive many calls from members of our community that do not know what to do when a loved one, friend or co-worker has been diagnosed with breast cancer. The local race has provided a much needed avenue for co-survivors to show public support by volunteering, forming a team or donating to the cause. The 2,000 survivors wearing pink shirts and hats participating on race day show the people in the community that you can survive this disease. Early detection is the key”. Because of Donna Sanderson’s extraordinary service in community outreach, she has been selected to serve as one of the 25 U.S. breast cancer delegates to meet with 25 international delegates for the first-ever Susan G. Komen for the Cure Global Advocate Summit. At the Summit, to be held 30 Breast Cancer Wellness Magazine September 29-30, 2007 in Budapest, Hungary, Advocates from 21 states and 30 countries will seek to elevate the dialogue on breast cancer’s global impact and to share the strategies they use to combat breast cancer in their local communities. As a 14-year breast cancer survivor and an educational psychologist, Sanderson is passionate about building on and sharing an appreciation and respect for other cultures. “I recognize that we have the opportunity to unlock components that may fulfill our commitment to access to quality care for all, both in scientific research and psycho-social issues” said Sanderson. “We will not have achieved our mission until we end breast cancer forever. The Global Advocate Summit is an important step toward that goal.” “As someone who has experienced the shock of being told they have a potentially deadly disease, I felt that my training as a psychologist finally had some personal purpose. I knew that a positive attitude, perseverance and determination could make a difference in my treatment experience and living the rest of my life. As any cancer survivor can tell you, part of the process of recovery is reprioritizing your life. It is a gift of the process. Cancer helped me to see what is truly important in life and what are mere distractions. What I was wholly unprepared for was the intensity of my passion and the sense of purpose I feel everyday I walk into our Affiliate office. Sometimes it has been overwhelming. When I feel I can really make a difference in our community, then it becomes difficult to separate the rest of my life from what I do for Komen and the cause. It is a constant balancing act but one that I know I must continue in order to give my best to meeting Komen’s promise to save lives and end breast cancer forever. I am learning that passion with purpose is a very powerful combination. If we can harness all the passion that people have for the cause, we really can end breast cancer for ever!” Donna can be reached at [email protected]. n it’s Our Job to Make Sure They Know Help is Available “I by Beverly Vote t is because of Susan g. Komen for the Cure that i am alive today,” said a very grateful young Native American woman to Christy Southard. “I found a lump in my breast and I thought I was going to die because I had no insurance, and no way to pay for any treatments. Then someone told me that the Komen for the Cure organization had special programs that could provide for my mammogram and help with treatment.” Christy Southard, Executive Director of the Tulsa, Oklahoma Affiliate of Susan G Komen for the Cure, appreciated hearing firsthand of this breast cancer survivor’s testimony. Christy wants everyone in her community to know of the programs and the community outreach that are provided by the Komen for the Cure. Christy became involved in the Race for the Cure in 1999, and in 2003 co-chaired the Race, followed by three years as the Race Sponsorship cochair. In April 2006, Christy became the first employee and first Executive Director for the Tulsa Affiliate. Christy feels honored to be working with such a dynamic organization, both locally and nationally, and marvels at the level of commitment that the volunteers for this cause display. She feels honored to be working with so many volunteers that have such a level of passion to be helping others. “I see the tremendous amount of time and energy our volunteers expend on the Race and our other Affiliate educational and fundraising programs, and I am constantly amazed at all they manage to get done. In fact, because of the dedication of our volunteers, we have doubled the amount of money we raise in just four short years!” One component of the Komen’s mission is to empower people to become activists in the breast cancer movement, and it’s important to Christy that every person in Tulsa who wants to participate be given that opportunity. “Receiving a breast cancer diagnosis, whether yours or a loved one’s, can make you feel helpless. Having an organization like Komen for the Cure, where you can become a voice, an activist, helps people to feel like they can do something about it.” Another component of the Komen’s mission is ensuring quality care for all. Christy said that Komen is focused this year on closing the gap in healthcare disparities, both nationally and locally. “Oklahoma has one of the highest uninsured populations in the U.S., so we know there are people in Tulsa County who need our help. It’s our job to make sure they know help is available. Through our grant program, we currently provide funding to two organizations in Tulsa County where women can receive low-cost or no-cost mammograms. But it’s not just enough to provide the service – we need to make sure women know it’s available to them and how to access it. We are partnering with these organizations to conduct education and awareness programs in churches, schools, and community groups. Our goal is to make sure every woman knows the importance of breast selfexam and mammography in relation to early detection and surviving this disease, along with a phone number to call if she needs financial assistance.” Every year, Christy and her mom, Carol, walk the Tulsa Race for the Cure together. Christy’s mom, now 73, is a 20 year breast cancer survivor. This cause is a personal commitment for Christy because she has lost four friends in the last two years to this disease, and her paternal grandfather and maternal great-aunt were breast cancer survivors. In her personal time, Christy enjoys spending time with her family and her four nephews and three great-nieces, being a discussion leader in Bible Study Fellowship, and teaching Sunday School and leading Bible Studies in her home church. This fall Christy will have the opportunity to combine her passion for breast cancer with her love of travel when she travels to Budapest, Hungary to participate as one of the 25 U.S. delegates to the Komen Global Advocate Summit. But of course, that’s only after she and her mom walk in the Tulsa Race for the Cure on Saturday, September 15th! For more information on the Tulsa Race and the Tulsa Affiliate go to www.komentulsa.org. n www.breastcancerwellness.org 31 A Tribute SHEILA SEILER, EXECUTIVE DIRECTOR GREATER EVANSVILLE AFFILIATE At Age 25, Shock, Pain, and Fear Came with Diagnosis by Beverly Vote S heila Seiler was diagnosed with breast cancer in 1990. She was only 25 years old, and had recently given birth to her fi rst son when she felt a lump in her breast. At age 25, it really didn’t enter her mind that it could be breast cancer. Yet Sheila and her doctor monitored the lump carefully for a couple of months until one morning there was a significant change - the lump had become larger. After having a mammogram, ultrasound, and surgical biopsy, Sheila was diagnosed with breast cancer. She immediately was scheduled for a modified radical mastectomy. The Race for the Cure came to her area in September 1998, and at that time, Sheila wanted no part of anything that was connected with breast cancer, let alone a huge gathering of breast cancer survivors. She felt so overwhelmed by the diagnosis and the shock, pain, and fear that came with being diagnosed at age 25 with breast cancer. However, the following year, Sheila went to the Komen Evansville Race for the Cure by herself. Sheila had always been painfully shy, yet she started the Race by herself. Moments into the survivor parade, Sheila was overwhelmed with uncontrollable tears, and she pulled her friend Judy from the sidelines with her to finish. Her sobbing was so overwhelming that Sheila could barely stand. Following the Race, Sheila called the local Race organizer Mary Beth Owen and thanked her for bringing the Race to Evansville. She immediately signed up to become a part of the Teams Committee because the experience had impacted her so deeply. Three years ago, Sheila left her full time position that she dearly loved and accepted a part time position as administrative assistant with the Evansville Affi liate. Sheila was giving up a job working with at-risk children, and giving up a job that had full health and retirement benefits. 32 Breast Cancer Wellness Magazine Breast cancer has taught Sheila how strong she is. She overcame her shyness, went to college, and made a personal proclamation that the message of being one’s own health advocate and literally and figuratively taking your life into your own hands is what we each must do. Sheila regularly teaches Breast Self-Exams and speaks about the importance of breast health to high school students, women’s groups, local business organizations, and even family reunions. In November of 2006, Sheila Seiler was appointed the Executive Director for the Susan G. Komen for the Cure Greater Evansville Affi liate. “It is so important to me that I reach as many people as I can. Young or old, men or women, it doesn’t matter. Everyone needs to understand the importance of literally taking your breast health into your own hands. If you don’t know how to do a breast self-exam – I will teach you. If you can’t remember to do it – I will send you a monthly email reminder. If you have questions or concerns – call me and I will help you. My mother once asked how could God do this to me (referring to my breast cancer). I say God has blessed me with an opportunity. What better way to reach people than to have lived through it yourself?” The area in which Sheila lives has a very high rate of breast cancer yet the fatality rate is very low. When asked how this could be, Sheila says it is due to the hard work of Susan G. Komen for the Cure to teach breast self-exams, get women screened regularly, and fi nd breast cancers early. It’s summed up very simply – the best protection is early detection. Sheila and her husband, Tim, have been married for 23 years. They have two sons, Austin, age 17 and Dillon, age 15, who are both active in football and baseball. In her spare time, Sheila loves to relax at home with her family, swim, and attend her sons’ sporting events. Occasionally, she spends time with her girlfriends at weekend getaways for scrapbook enthusiasts. n Former First Lady Barbara Bush “Through the years I have watched with heartache as loved ones have battled breast cancer. Breast cancer is not fatal anymore as knowledge has proven to be a most powerful Better education and early detection are direct results of the hard work of Susan G. Komen for the Cure. I salute them on their 25th Anniversary weapon. and their S U C C E S S which has been key in giving our future generations nothing less than a legacy of life.” – Barbara Bush Missouri’s First Lady Mrs. Melanie Blunt Susan G. Komen for the Cure continues to play an invaluable role in the fight against breast cancer. Komen for the Cure’s support for breast cancer education, research, and patient services and its unwaivering commitment to eradicating breast cancer as a life-threatening disease has made an impact on women too numerous to count. Breast cancer touched my life personally, when as a teenager I lost my mother to the disease. I appreciate the selfless contributions that have made Komen for the Cure what it is today and for the difference the organization has made in my life and in the lives of so many others. Standing with volunteers, survivors, family members and supporters at any Komen for the Cure event, it is easy to witness the spirit of hope that the organization has come to embody. I congratulate Komen for the Cure on 25 years of impacting women’s health and raising awareness about breast cancer! I am honored to have participated in Susan G. Komen Races for the Cure, legislative days, and educational outreach programs and look forward to the day, together, we find a cure for breast cancer. Related Bio information: Mrs. Blunt serves as honorary chair and spokesperson for Susan G. Komen for the Cure, Mid-Missouri Affiliate. She led teams in both the St. Louis and Kansas City Komen Race for the Cure and participated in both the organization’s legislative day at the Capitol and educational PSA’s. She is an advocate for Women’s Health and Wellness and shares Komen for the Cure’s commitment to finding a cure for breast cancer. www.breastcancerwellness.org 33 A Tribute Mark Goldstein Breast cancer survivor, Komen race for the Cure runner, 2003 yoplait Champion and 2005 recipient of the Komen “Suzy Award” I came to be involved with Susan G. Komen for the Cure by way of rejection. Not, for a moment, believing that a man could develop breast cancer, I was diagnosed in May, 1988 at age 55. My treatment included a modified radical mastectomy, followed by chemotherapy and radiation. I soon realized that I could use the uniqueness of breast cancer in men as a platform for heightening awareness and advocacy for all people. Motivated by the restriction that a particular Race for the Cure® was “for women only,” I started my fight for awareness. In 1992, I, and my family, signed up and showed up, only to be told, “You can’t run, you’re a man!” We did anyway and I haven’t stopped since. Now, years later in 2007, as a member of the National “Honorary Team New Balance” and with the support from Susan G. Komen for the Cure, I have run in every Komen Race (114) plus duplicates, for a total of 169 Races throughout the country and internationally. My overriding motivation is the fulfi llment of the goal that men should not die from breast cancer out of ignorance! And the realization that you survive the disease, but you, the individual, must conquer the emotions! Not a day passes that I do not think of breast cancer. With the sponsorship of New Balance Athletic Shoes and the wonderful reception from most of the Race for the Cure locations, I plan my days, months and years around the opportunity to run in as many Races as I can. As an extension to my running, I am a member of a number of support groups and also make presentations focusing on awareness and attitude. Who would have ever thought I would feel so good being “In the Pink?” Now, at age 74, I cannot describe how motivating it is to be a part of the single most uplifting organization in the arena of disease eradication and personal fulfi llment. How, in the company of those wonderful, optimistic and defiant survivors can a person be more elevated and fulfi lled? I am one of them. Rakhi Dimino, M.D., OBGYN 34 Breast Cancer Wellness Magazine Marci Shimoff Co-author of Chicken Soup for the Woman’s Soul, author of Happy for no reason, featured teacher in the hit film, The Secret I thank Susan G. Komen for the Cure and the thousands of compassionate and caring people across the country who’ve helped us all, women and men, become more aware of the importance of nurturing our health and well-being. I appreciate the difference you’ve made over the past 25 years within our communities and the world in which we live. Pati Slay, St. Louis Celebrating 7 years cancer free and counting! Susan G. Komen For The Cure is like a “pink thread” bonding sister to sister, community to community; throughout the world. As one pink thread, like one promise, might seem weak, when multiplied one at a time, we see its strength is abounding. Komen started our pink thread providing awareness, education, promoting mammograms, embracing early detection, and donating funds endorsing the latest treatment technology. Thank you Nancy Brinker for keeping one promise that continues to make such a difference. Thank you! Houston Affiliate Board of Directors Member Jane Ali I first learned about Susan G. Komen for the Cure when I was in high school and started running Race for the Cure. Over the last 16 years, I have become more and more involved. I started volunteering on the day of the Race, then by helping with registration for the Race. Before I knew I was helping in many more ways. In the process, I went to medical school and eventually became an OBGYN. Now everyday, I do breast exams on women and teach them about how to do their own exams and when to get mammograms. Unfortunately, sometimes I’m the one to tell them they have a breast cancer. As my career developed, so have my activities with Komen for the Cure. Now, I give presentations to new volunteers about breast cancer so that they can go out in the community and teach more women. I am also on the Board of Directors for the Komen Houston Affiliate. And of course, I am still very involved with the Race! I volunteer with Susan G. Komen for the Cure because I believe that we really have made a difference in the last 25 years. The number of women getting mammograms has increased, the survival rate from breast cancer is much better, and the treatments have improved dramatically. I believe that this is a fight that we can win, and that someday soon we will find a cure. In the meantime, we can fund research toward this goal, and help women get the screening they need for early detection. Komen for the Cure has made a difference in my life, because everyday in my job I teach women about their breast health. When I first learned about Komen, I was in high school. Now, I am an OBGYN taking care of women everyday, and helping them keep their bodies healthy. Thank you Susan G. Komen for the Cure! What a journey we have been on together. I was diagnosed in April 2005. I found the lump in my breast while exercising. After the doctor visits and deciding on what treatments you’re going to do, the next thing you do is go online and find out as much information as you can. Komen.org is so informative and answered so many questions for me. Everything they do is top notch. You have inspired and educated so many people. When I read the Komen story I wanted top notch treatment and I wanted answers to my questions. I didn’t rely on one person telling me what to do. All of this was from Suzy’s story and what happened to her. My mother had breast cancer and a mastectomy and she just listened to her local doctor and did not seek other opinions. From all the research you have done, we know to research everything, ask questions and don’t be intimidated by doctors and surgeons. I appreciate all you are doing for the cause. Keep up the good work. Marathon of Miracles Foundation, Santa Monica, CA www.eclipsesports.com www.breastcancerwellness.org 35 ng Readi a good boo k Hu Lunc h with a friend ggin g my family the park n i nic c i p A When fighting metastatic breast cancer...* little things count In a clinical trial, the tumor response rate was nearly double for patients who received ABRAXANE.1† Only ABRAXANE combines proven chemotherapy, paclitaxel, with albumin—a very small protein that could make a big difference. ABRAXANE uses albumin, a human protein, to deliver the chemotherapy. It does not contain chemical solvents, like cremophor. This eliminates the need for premedication with steroids or antihistamines for hypersensitivity reactions caused by these solvents. Plus, since ABRAXANE is administered in just 30 minutes (compared to 3 hours for solvent-based paclitaxel), you’ll have more free time to spend enjoying the little things that really matter. 1.ABRAXANE [prescribing information]. Los Angeles, CA: Abraxis Oncology, a Division of Abraxis BioScience, Inc; May 2007. † Compared to those who received solvent-based paclitaxel. 36 *ABRAXANE is indicated for the treatment of breast cancer after failure of combination chemotherapy for metastatic disease or relapse within 6 months of adjuvant chemotherapy. Prior therapy should have included an anthracycline unless clinically contraindicated. IMPORTANT SAFETY INFORMATION One of the more important side effects associated with chemotherapy is neutropenia, which is a decrease in the number of infection-fighting white blood cells (neutrophils). Normal levels range from approximately 1,500 cells/mm3 to 1,800 cells/mm3 (but vary according to several factors, such as age and race). If levels fall below 500 cells/mm,3 your risk of developing an infection increases and treatment may be interrupted. To avoid the risk of serious infection and fever, your doctor will monitor your absolute neutrophil count (ANC) during therapy. Women should avoid becoming pregnant while being treated with ABRAXANE. Tell your doctor if you are pregnant, if you become pregnant, or you plan to become pregnant while taking ABRAXANE. Discuss with your doctor how ABRAXANE may affect fertility. Nursing a baby while taking ABRAXANE is not recommended because the drug may be present in breast milk. The most important adverse events included lower white and red blood cell counts, infections, tingling and numbness, nausea, vomiting, diarrhea, muscle and joint aches, and mouth sores. Other adverse reactions included weakness, visual disturbances, fluid retention, hair loss, and liver and kidney dysfunction. Low platelet counts, allergic reactions (which in rare cases were severe), cardiovascular reactions, and injection site reactions were uncommon. FIGHT THE CANCER, NOT THE TREATMENT ® Sensory neuropathy (numbness, tingling, or burning in the hands and feet) can occur with ABRAXANE and other paclitaxel medications. Severe sensory neuropathy can improve with proper management, as prescribed by your doctor. You should tell your nurse or doctor if you experience numbness, tingling, or burning in your hands or feet while taking ABRAXANE. Please talk to your doctor or nurse if you have questions regarding the potential side effects of ABRAXANE therapy. You may want to review the Product Information, including Warnings, Precautions, and Contraindications, on the adjacent page. Copyright © 2007 Abraxis BioScience, Inc. and AstraZeneca Pharmaceuticals LP. All Rights Reserved. Breast Cancer Wellness Magazine Visit abraxane.com or talk with your doctor to learn if ABRAXANE is right for you. ABRAXANE is marketed under a co-promotion agreement between Abraxis BioScience, Inc. and AstraZeneca. Abraxis Oncology is a division of Abraxis BioScience, Inc. All Abraxis BioScience, Inc. corporate names, names of services, and names of products referred to herein are trade names, service marks and/or trademarks that are owned by or licensed to Abraxis BioScience, its divisions or its affiliates, unless otherwise noted. AO-500/250891 6/07 www.breastcancerwellness.org 37 ® Rx Only Table 1: Frequencya of Important Treatment Emergent Adverse Events in the Randomized Study on an Every-3-Weeks Schedule (Continued) Percent of Patients ABRAXANE Paclitaxel Injection 260/30minb 175/3hc,d (n=229) (n=225) Brief Summary of Full Prescribing Information. WARNING ABRAXANE for Injectable Suspension (paclitaxel protein-bound particles for injectable suspension) should be administered under the supervision of a physician experienced in the use of cancer chemotherapeutic agents. Appropriate management of complications is possible only when adequate diagnostic and treatment facilities are readily available. ABRAXANE therapy should not be administered to patients with metastatic breast cancer who have baseline neutrophil counts of less than 1,500 cells/mm3. In order to monitor the occurrence of bone marrow suppression, primarily neutropenia, which may be severe and result in infection, it is recommended that frequent peripheral blood cell counts be performed on all patients receiving ABRAXANE. Note: An albumin form of paclitaxel may substantially affect a drug’s functional properties relative to those of drug in solution. DO NOT SUBSTITUTE FOR OR WITH OTHER PACLITAXEL FORMULATIONS. INDICATION: ABRAXANE for Injectable Suspension (paclitaxel protein-bound particles for injectable suspension) is indicated for the treatment of breast cancer after failure of combination chemotherapy for metastatic disease or relapse within 6 months of adjuvant chemotherapy. Prior therapy should have included an anthracycline unless clinically contraindicated. CONTRAINDICATIONS: ABRAXANE should not be used in patients who have baseline neutrophil counts of <1,500 cells/mm3. WARNINGS: Bone marrow suppression (primarily neutropenia) is dose dependent and a dose limiting toxicity. ABRAXANE should not be administered to patients with baseline neutrophil counts of <1,500 cells/mm3. Frequent monitoring of blood counts should be instituted during ABRAXANE treatment. Patients should not be retreated with subsequent cycles of ABRAXANE until neutrophils recover to a level >1,500 cells/mm3 and platelets recover to a level >100,000 cells/mm3. The use of ABRAXANE has not been studied in patients with hepatic or renal dysfunction. In the randomized controlled trial, patients were excluded for baseline serum bilirubin >1.5 mg/dL or baseline serum creatinine >2 mg/dL. Pregnancy – Teratogenic Effects: Pregnancy Category D ABRAXANE can cause fetal harm when administered to a pregnant woman. Administration of paclitaxel protein-bound particles to rats on gestation days 7 to 17 at doses of 6 mg/m2 (approximately 2% of the daily maximum recommended human dose on a mg/m2 basis) caused embryo- and fetotoxicity, as indicated by intrauterine mortality, increased resorptions (up to 5-fold), reduced numbers of litters and live fetuses, reduction in fetal body weight and increase in fetal anomalies. Fetal anomalies included soft tissue and skeletal malformations, such as eye bulge, folded retina, microphthalmia, and dilation of brain ventricles. A lower incidence of soft tissue and skeletal malformations were also exhibited at 3 mg/m2 (approximately 1% of the daily maximum recommended human dose on a mg/m2 basis). There are no adequate and well-controlled studies in pregnant women using ABRAXANE. If this drug is used during pregnancy, or if the patient becomes pregnant while receiving this drug, the patient should be apprised of the potential hazard to the fetus. Women of childbearing potential should be advised to avoid becoming pregnant while receiving treatment with ABRAXANE. Use in Males Men should be advised to not father a child while receiving treatment with ABRAXANE (see PRECAUTIONS: Carcinogenesis, Mutagenesis, Impairment of Fertility for discussion of effects of ABRAXANE exposure on male fertility and embryonic viability). Albumin (Human) ABRAXANE contains albumin (human), a derivative of human blood. Based on effective donor screening and product manufacturing processes, it carries an extremely remote risk for transmission of viral diseases. A theoretical risk for transmission of Creutzfeldt-Jakob Disease (CJD) also is considered extremely remote. No cases of transmission of viral diseases or CJD have ever been identified for albumin. PRECAUTIONS: Drug Interactions No drug interaction studies have been conducted with ABRAXANE. The metabolism of paclitaxel is catalyzed by CYP2C8 and CYP3A4. In the absence of formal clinical drug interaction studies, caution should be exercised when administering ABRAXANE (paclitaxel protein-bound particles for injectable suspension) concomitantly with known substrates or inhibitors of CYP2C8 and CYP3A4 (see CLINICAL PHARMACOLOGY). Potential interactions between paclitaxel, a substrate of CYP3A4, and protease inhibitors (such as ritonavir, saquinavir, indinavir, and nelfinavir), which are substrates and/or inhibitors of CYP3A4, have not been evaluated in clinical trials. Hematology ABRAXANE therapy should not be administered to patients with baseline neutrophil counts of less than 1,500 cells/mm3. In order to monitor the occurrence of myelotoxicity, it is recommended that frequent peripheral blood cell counts be performed on all patients receiving ABRAXANE. Patients should not be retreated with subsequent cycles of ABRAXANE until neutrophils recover to a level >1,500 cells/mm3 and platelets recover to a level >100,000 cells/mm3. In the case of severe neutropenia (<500 cells/mm3 for seven days or more) during a course of ABRAXANE therapy, a dose reduction for subsequent courses of therapy is recommended (see DOSAGE AND ADMINISTRATION). Nervous System Sensory neuropathy occurs frequently with ABRAXANE. The occurrence of grade 1 or 2 sensory neuropathy does not generally require dose modification. If grade 3 sensory neuropathy develops, treatment should be withheld until resolution to grade 1 or 2 followed by a dose reduction for all subsequent courses of ABRAXANE (see DOSAGE AND ADMINISTRATION). Injection Site Reaction Injection site reactions occur infrequently with ABRAXANE and were mild in the randomized clinical trial. Given the possibility of extravasation, it is advisable to closely monitor the infusion site for possible infiltration during drug administration. Carcinogenesis, Mutagenesis, Impairment of Fertility The carcinogenic potential of ABRAXANE has not been studied. Paclitaxel has been shown to be clastogenic in vitro (chromosome aberrations in human lymphocytes) and in vivo (micronucleus test in mice). ABRAXANE was not mutagenic in the Ames test or the CHO/HGPRT gene mutation assay. Administration of paclitaxel protein-bound particles to male rats at 42 mg/m2 on a weekly basis (approximately 16% of the daily maximum recommended human exposure on a mg/m2 basis) for 11 weeks prior to mating with untreated female rats resulted in significantly reduced fertility accompanied by decreased pregnancy rates and increased loss of embryos in mated females. A low incidence of skeletal and soft tissue fetal anomalies was also observed at doses of 3 and 12 mg/m2/week in this study (approximately 1% to 5% of the daily maximum recommended human exposure on a mg/m2 basis). Testicular atrophy/degeneration has also been observed in single-dose toxicology studies in rodents administered paclitaxel protein-bound particles at 54 mg/m2 and dogs administered 175 mg/m2 (see WARNINGS). Pregnancy – Teratogenic Effects: Pregnancy Category D (See WARNINGS section). Nursing Mothers It is not known whether paclitaxel is excreted in human milk. Following intravenous administration of carbon-14 labeled paclitaxel to rats on days 9 to 10 postpartum, concentrations of radioactivity in milk were higher than in plasma and declined in parallel with the plasma concentrations. Because many drugs are excreted in human milk and because of the potential for serious adverse reactions in nursing infants, it is recommended that nursing be discontinued when receiving ABRAXANE therapy. Pediatric Use The safety and effectiveness of ABRAXANE in pediatric patients have not been evaluated. Geriatric Use Of the 229 patients in the randomized study who received ABRAXANE, 11% were at least 65 years of age and <2% were 75 years or older. No toxicities occurred notably more frequently among elderly patients who received ABRAXANE. ADVERSE REACTIONS: The following table shows the frequency of important adverse events in the randomized comparative trial for the patients who received either single-agent ABRAXANE or paclitaxel injection for the treatment of metastatic breast cancer. Table 1: Frequencya of Important Treatment Emergent Adverse Events in the Randomized Study on an Every-3-Weeks Schedule Percent of Patients ABRAXANE Paclitaxel Injection 260/30minb 175/3hc,d (n=229) (n=225) Bone Marrow Neutropenia < 2.0 x 109/L < 0.5 x 109/L Thrombocytopenia < 100 x 109/L < 50 x 109/L Anemia < 11 g/dL < 8 g/dL Infections Febrile Neutropenia Bleeding 38 80 9 82 22 2 <1 3 <1 33 1 24 2 2 25 <1 20 1 2 (Continued) Breast Cancer Wellness Magazine Hypersensitivity Reactione All 4 12 Severef 0 2 Cardiovascular Vital Sign Changesg Bradycardia <1 <1 Hypotension 5 5 3 4 Severe Cardiovascular Eventsf Abnormal ECG All patients 60 52 Patients with Normal Baseline 35 30 Respiratory Cough 7 6 Dyspnea 12 9 Sensory Neuropathy Any Symptoms 71 56 f Severe Symptoms 10 2 Myalgia/Arthralgia Any Symptoms 44 49 Severe Symptomsf 8 4 Asthenia Any Symptoms 47 39 Severe Symptomsf 8 3 Fluid Retention/Edema Any Symptoms 10 8 f Severe Symptoms 0 <1 Gastrointestinal Nausea Any symptoms 30 22 3 <1 Severe symptomsf Vomiting Any symptoms 18 10 4 1 Severe Symptomsf Diarrhea Any Symptoms 27 15 Severe Symptomsf <1 1 Mucositis Any Symptoms 7 6 Severe Symptomsf <1 0 Alopecia 90 94 Hepatic (Patients with Normal Baseline) Bilirubin Elevations 7 7 Alkaline Phosphatase Elevations 36 31 AST (SGOT) Elevations 39 32 Injection Site Reaction <1 1 a Based on worst grade b ABRAXANE dose in mg/m2/duration in minutes c paclitaxel injection dose in mg/m2/duration in hours d paclitaxel injection pts received premedication e Includes treatment-related events related to hypersensitivity (e.g., flushing, dyspnea, chest pain, hypotension) that began on a day of dosing. f Severe events are defined as at least grade 3 toxicity g During study drug dosing. Myelosuppression and sensory neuropathy were dose related. Adverse Event Experiences by Body System Unless otherwise noted, the following discussion refers to the primary safety database of 229 patients with metastatic breast cancer treated with single-agent ABRAXANE in the randomized controlled trial. The frequency and severity of important adverse events for the study are presented above in tabular form. In some instances, rare severe events observed with paclitaxel injection may be expected to occur with ABRAXANE. Hematologic Neutropenia, the most important hematologic toxicity, was dose dependent and reversible. Among patients with metastatic breast cancer in the randomized trial, neutrophil counts declined below 500 cells/mm3 (Grade 4) in 9% of the patients treated with a dose of 260 mg/m2 compared to 22% in patients receiving paclitaxel injection at a dose of 175 mg/m2. In the randomized metastatic breast cancer study, infectious episodes were reported in 24% of the patients treated with a dose of 260 mg/m2 given as a 30-minute infusion. Oral candidiasis, respiratory tract infections and pneumonia were the most frequently reported infectious complications. Febrile neutropenia was reported in 2% of patients in the ABRAXANE arm and 1% of patients in the paclitaxel injection arm. Thrombocytopenia was uncommon. In the randomized metastatic breast cancer study, bleeding episodes were reported in 2% of the patients in each treatment arm. Anemia (Hb <11 g/dL) was observed in 33% of patients treated with ABRAXANE in the randomized trial and was severe (Hb <8 g/dL) in 1% of the cases. Among all patients with normal baseline hemoglobin, 31% became anemic on study and 1% had severe anemia. Hypersensitivity Reactions (HSRs) In the randomized controlled metastatic breast cancer study, Grade 1 or 2 HSRs occurred on the day of ABRAXANE administration and consisted of dyspnea (1%) and flushing, hypotension, chest pain, and arrhythmia (all <1%). The use of ABRAXANE in patients previously exhibiting hypersensitivity to paclitaxel injection or human albumin has not been studied. During postmarketing surveillance, rare occurrences of severe hypersensitivity reactions have been reported with ABRAXANE. The use of ABRAXANE in patients previously exhibiting hypersensitivity to paclitaxel injection or human albumin has not been studied. Patients who experience a severe hypersensitivity reaction to ABRAXANE should not be rechallenged with the drug. Cardiovascular Hypotension, during the 30-minute infusion, occurred in 5% of patients in the randomized metastatic breast cancer trial. Bradycardia, during the 30-minute infusion, occurred in <1% of patients. These vital sign changes most often caused no symptoms and required neither specific therapy nor treatment discontinuation. Severe cardiovascular events possibly related to single-agent ABRAXANE occurred in approximately 3% of patients in the randomized trial. These events included chest pain, cardiac arrest, supraventricular tachycardia, edema,thrombosis, pulmonary thromboembolism, pulmonary emboli, and hypertension. Cases of cerebrovascular attacks (strokes) and transient ischemic attacks have been reported rarely. Electrocardiogram (ECG) abnormalities were common among patients at baseline. ECG abnormalities on study did not usually result in symptoms, were not dose-limiting, and required no intervention. ECG abnormalities were noted in 60% of patients in the metastatic breast cancer randomized trial. Among patients with a normal ECG prior to study entry, 35% of all patients developed an abnormal tracing while on study. The most frequently reported ECG modifications were non-specific repolarization abnormalities, sinus bradycardia, and sinus tachycardia. Respiratory Reports of dyspnea (12%) and cough (6%) were reported after treatment with ABRAXANE in the randomized trial. Rare reports (<1%) of pneumothorax were reported after treatment with ABRAXANE. Rare reports of interstitial pneumonia, lung fibrosis, and pulmonary embolism have been received as part of the continuing surveillance of paclitaxel injection safety and may occur following ABRAXANE treatment. Rare reports of radiation pneumonitis have been received in paclitaxel injection patients receiving concurrent radiotherapy. There is no experience with the use of ABRAXANE with concurrent radiotherapy. Neurologic The frequency and severity of neurologic manifestations were influenced by prior and/or concomitant therapy with neurotoxic agents. In general, the frequency and severity of neurologic manifestations were dose-dependent in patients receiving single-agent ABRAXANE. In the randomized trial, sensory neuropathy was observed in 71% of patients (10% severe) in the ABRAXANE arm and in 56% of patients (2% severe) in the paclitaxel injection arm. The frequency of sensory neuropathy increased with cumulative dose. Sensory neuropathy was the cause of ABRAXANE discontinuation in 7/229 (3%) patients in the randomized trial. In the randomized comparative study, 24 patients (10%) treated with ABRAXANE developed Grade 3 peripheral neuropathy; of these patients, 14 had documented improvement after a median of 22 days; 10 patients resumed treatment at a reduced dose of ABRAXANE and 2 discontinued due to peripheral neuropathy. Of the 10 patients without documented improvement, 4 discontinued the study due to peripheral neuropathy. No incidences of grade 4 sensory neuropathies were reported in the clinical trial. Only one incident of motor neuropathy (grade 2) was observed in either arm of the controlled trial. Reports of autonomic neuropathy resulting in paralytic ileus have been received as part of the continuing surveillance of paclitaxel injection safety. Cranial nerve palsies have been reported during postmarketing surveillance of ABRAXANE. Because these events have been reported during clinical practice, true estimates of frequency cannot be made and a causal relationship to the events has not been established. Ocular/visual disturbances occurred in 13% of all patients (n=366) treated with ABRAXANE in single arm and randomized trials and 1% were severe. The severe cases (keratitis and blurred vision) were reported in patients in a single arm study who received higher doses than those recommended (300 or 375 mg/m2). These effects generally have been reversible. However, rare reports in the literature of abnormal visual evoked potentials in patients treated with paclitaxel injection have suggested persistent optic nerve damage. Arthralgia/Myalgia Forty-four percent of patients treated in the randomized trial experienced arthralgia/myalgia; 8% experienced severe symptoms. The symptoms were usually transient, occurred two or three days after ABRAXANE administration, and resolved within a few days. Hepatic Among patients with normal baseline liver function treated with ABRAXANE in the randomized trial, 7%, 36%, and 39% had elevations in bilirubin, alkaline phosphatase, and AST (SGOT), respectively. Grade 3 or 4 elevations in GGT were reported for 14% of patients treated with ABRAXANE and 10% of patients treated with paclitaxel injection in the randomized trial. Rare reports of hepatic necrosis and hepatic encephalopathy leading to death have been received as part of the continuing surveillance of paclitaxel injection safety and may occur following ABRAXANE treatment. Renal Overall 11% of patients experienced creatinine elevation, 1% severe. No discontinuations, dose reductions, or dose delays were caused by renal toxicities. Gastrointestinal (GI) Nausea/vomiting, diarrhea, and mucositis were reported by 33%, 27%, and 7% of ABRAXANE treated patients in the randomized trial. Rare reports of intestinal obstruction, intestinal perforation, pancreatitis, and ischemic colitis have been received as part of the continuing surveillance of paclitaxel injection safety and may occur following ABRAXANE treatment. Rare reports of neutropenic enterocolitis (typhlitis), despite the coadministration of G-CSF, were observed in patients treated with paclitaxel injection alone and in combination with other chemotherapeutic agents. Injection Site Reaction Injection site reactions have occurred infrequently with ABRAXANE and were mild in the randomized clinical trial. Recurrence of skin reactions at a site of previous extravasation following administration of paclitaxel injection at a different site, i.e., “recall”, has been reported rarely. Rare reports of more severe events such as phlebitis, cellulitis, induration, skin exfoliation, necrosis, and fibrosis have been received as part of the continuing surveillance of paclitaxel injection safety. In some cases the onset of the injection site reaction in paclitaxel injection patients either occurred during a prolonged infusion or was delayed by a week to ten days. Given the possibility of extravasation, it is advisable to closely monitor the infusion site for possible infiltration during drug administration. Asthenia Asthenia was reported in 47% of patients (8% severe) treated with ABRAXANE in the randomized trial. Asthenia included reports of asthenia, fatigue, weakness, lethargy and malaise. Other Clinical Events Rare cases of cardiac ischemia/infarction and thrombosis/embolism possibly related to ABRAXANE treatment have been reported. Alopecia was observed in almost all of the patients. Nail changes (changes in pigmentation or discoloration of nail bed) were uncommon. Edema (fluid retention) was infrequent (10% of randomized trial patients); no patients had severe edema. The following rare adverse events have been reported as part of the continuing surveillance of paclitaxel injection safety and may occur following ABRAXANE treatment: skin abnormalities related to radiation recall as well as reports of Stevens-Johnson syndrome, toxic epidermal necrolysis, conjunctivitis, and increased lacrimation. As part of the continuing surveillance of ABRAXANE, skin reactions including generalized or maculo-papular rash, erythema, and pruritis have been observed. Additionally, there have been case reports of photosensitivity reactions, radiation recall phenomenon, and in some patients previously exposed to capecitabine, reports of palmar-plantar erythrodysaesthesiae. Because these events have been reported during clinical practice, true estimates of frequency cannot be made and a causal relationship to the events has not been established. Accidental Exposure No reports of accidental exposure to ABRAXANE have been received. However, upon inhalation of paclitaxel, dyspnea, chest pain, burning eyes, sore throat, and nausea have been reported. Following topical exposure, events have included tingling, burning, and redness. OVERDOSAGE: There is no known antidote for ABRAXANE overdosage. The primary anticipated complications of overdosage would consist of bone marrow suppression, sensory neurotoxicity, and mucositis. DOSAGE AND ADMINISTRATION: After failure of combination chemotherapy for metastatic breast cancer or relapse within 6 months of adjuvant chemotherapy, the recommended regimen for ABRAXANE for Injectable Suspension (paclitaxel protein-bound particles for injectable suspension) is 260 mg/m2 administered intravenously over 30 minutes every 3 weeks. Hepatic Impairment The appropriate dose of ABRAXANE for patients with bilirubin greater than 1.5 mg/dL is not known. Dose Reduction Patients who experience severe neutropenia (neutrophil <500 cells/mm3 for a week or longer) or severe sensory neuropathy during ABRAXANE therapy should have dosage reduced to 220 mg/m2 for subsequent courses of ABRAXANE. For recurrence of severe neutropenia or severe sensory neuropathy, additional dose reduction should be made to 180 mg/m2. For grade 3 sensory neuropathy hold treatment until resolution to grade 1 or 2, followed by a dose reduction for all subsequent courses of ABRAXANE. Preparation and Administration Precautions ABRAXANE is a cytotoxic anticancer drug and, as with other potentially toxic paclitaxel compounds, caution should be exercised in handling ABRAXANE. The use of gloves is recommended. If ABRAXANE (lyophilized cake or reconstituted suspension) contacts the skin, wash the skin immediately and thoroughly with soap and water. Following topical exposure to paclitaxel, events may include tingling, burning and redness. If ABRAXANE contacts mucous membranes, the membranes should be flushed thoroughly with water. Given the possibility of extravasation, it is advisable to closely monitor the infusion site for possible infiltration during drug administration. Limiting the infusion of ABRAXANE to 30 minutes, as directed, reduces the likelihood of infusion-related reactions (see PRECAUTIONS: Injection Site Reaction). No premedication to prevent hypersensitivity reactions is required prior to administration of ABRAXANE. Preparation for Intravenous Administration ABRAXANE is supplied as a sterile lyophilized powder for reconstitution before use. AVOID ERRORS, READ ENTIRE PREPARATION INSTRUCTIONS PRIOR TO RECONSTITUTION. Each mL of the reconstituted formulation will contain 5 mg/mL paclitaxel. 1. Aseptically, reconstitute each vial by injecting 20 mL of 0.9% Sodium Chloride Injection, USP. 2. Slowly inject the 20 mL of 0.9% Sodium Chloride Injection, USP, over minimum of 1 minute, using the sterile syringe to direct the solution flow onto the INSIDE WALL OF THE VIAL. 3. DO NOT INJECT the 0.9% Sodium Chloride Injection, USP, directly onto the lyophilized cake as this will result in foaming. 4. Once the injection is complete, allow the vial to sit for a minimum of 5 minutes to ensure proper wetting of the lyophilized cake/powder. 5. Gently swirl and/or invert the vial slowly for at least 2 minutes until complete dissolution of any cake/powder occurs. Avoid generation of foam. 6. If foaming or clumping occurs, stand solution for at least 15 minutes until foam subsides. Calculate the exact total dosing volume of 5 mg/mL suspension required for the patient: Dosing volume (mL) = Total dose (mg)/5 (mg/mL). The reconstituted suspension should be milky and homogenous without visible particulates. If particulates or settling are visible, the vial should be gently inverted again to ensure complete resuspension prior to use. Discard the reconstituted suspension if precipitates are observed. Discard any unused portion. Inject the appropriate amount of reconstituted ABRAXANE into an empty, sterile IV bag (plasticized polyvinyl chloride (PVC) containers, PVC or non PVC type IV bag). The use of specialized DEHP-free solution containers or administration sets is not necessary to prepare or administer ABRAXANE infusions. The use of an in-line filter is not recommended. Parenteral drug products should be inspected visually for particulate matter and discoloration prior to administration whenever solution and container permit. Stability Unopened vials of ABRAXANE are stable until the date indicated on the package when stored between 20°C to 25°C (68°F to 77°F), in the original package. Neither freezing nor refrigeration adversely affects the stability of the product. Stability of Reconstituted Suspension in the Vial Reconstituted ABRAXANE should be used immediately, but may be refrigerated at 2°C to 8°C (36°F to 46°F) for a maximum of 8 hours if necessary. If not used immediately, each vial of reconstituted suspension should be replaced in the original carton to protect it from bright light. Discard any unused portion. Stability of Reconstituted Suspension in the Infusion Bag The suspension for infusion prepared as recommended in an infusion bag should be used immediately, but may be stored at ambient temperature (approximately 25°C) and lighting conditions for up to 8 hours. HOW SUPPLIED: Product NDC No. No. 103450 68817-134-50 100 mg of paclitaxel in a single use vial, individually packaged in a carton. Storage Store the vials in original cartons at 20°C to 25°C (68°F to 77°F). Retain in the original package to protect from bright light. Handling and Disposal Procedures for proper handling and disposal of anticancer drugs should be considered. Several guidelines on this subject have been published.1-8 There is no general agreement that all of the procedures recommended in the guidelines are necessary or appropriate. U.S. Patent Numbers: 5,439,686; 5,498,421; 6,096,331; 6,506,405; 6,537,579; 6,749,868; 6,753,006 REFERENCES: 1. Recommendations for the Safe Handling of Parenteral Antineoplastic Drugs. Publication No. 83-2621. For sale by the Superintendent of Documents, US Government NIH Printing Office, Washington, DC 20402. 2. AMA Council Report. Guidelines for Handling Parenteral Antineoplastics. JAMA, 1985; 253(11):1590-1592. 3. National Study Commission on Cytotoxic Exposure Recommendations for Handling Cytotoxic Agents. Available from Louis R Jeffrey, ScD, Chairman, National Study Commission on Cytotoxic Exposure. Massachusetts College of Pharmacy and Allied Health Sciences. 179 Longwood Avenue, Boston, Massachusetts 02115. 4. Clinical Oncology Society of Australia. Guidelines and Recommendations for Safe Handling of Antineoplastic Agents. Med J Australia, 1983; 1:426-428. 5. Jones RB, et al: Safe Handling of Chemotherapeutic Agents: A Report from the Mount Sinai Medical Center. CA-A Cancer Journal for Clinicians, 1983; (Sept/Oct) 258-263. 6. American Society of Hospital Pharmacists Technical Assistance Bulletin on Handling Cytotoxic and Hazardous Drugs. Am J Hosp Pharm, 1990; 47:1033-1049. 7. Controlling Occupational Exposure to Hazardous Drugs. (OSHA WORK-PRACTICE GUIDELINES.) Am J Health-Syst Pharm, 1996; 53:1669-1686. 8. ONS Clinical Practice Committee. Cancer Chemotherapy Guidelines and Recommendations for Practice. Pittsburgh, Pa: Oncology Nursing Society; 1999:32-41. ABRAXANE is marketed under a co-promotion agreement between Abraxis BioScience, Inc. and AstraZeneca. Copyright © 2007 Abraxis BioScience, Inc. and AstraZeneca Pharmaceuticals LP. All Rights Reserved. AO-502/250892 05/07 Falling Into a Routine ‘fresh start’ in that role? This is the perfect time of year to redesign your caregiver role. Just as the children are beginning a new experience of learning time management as they go from class to class, so too can you as you go from task to task. Here’s how: 1. Take ten minutes to journal what’s by Ann Leach 3. Call a family meeting and share your list with those who care about you. Remember, ‘family’ can also include good friends who want to support you and not just those blood relatives. Ask for their help and suggestions for solutions to the parts of caregiving that you are tiring of. not working in your role as a caregiver. You might write something like ‘I don’t like always having to pick up the medication at a pharmacy that’s so far from home,’ or ‘it bothers me that well-meaning friends call at night, just as I am getting mom/grandma/sister/aunt/ wife ready for bed.’ 4. Create a gentle timeline. For those 2. Take another ten minutes to review on your calendar. Just fifteen minutes to sit on the porch or read a chapter in a good book can do wonders to restore your soul. It happens every year about this time: children are settling into a new school year, their mothers cherishing a quiet day at work or at home, without the distraction of how to entertain the kids during the long summer days. As caregivers, your days may have a totally different routine that includes doctor appointments, trips to the pharmacy and the library to copy insurance forms and other documents for your patient. Or perhaps that routine must simply be inserted into an already full day of responsibilities. The fall months bring a melancholy all their own, especially with the turning of the leaves and the crispness of the temperature. We anticipate a new beginning; a fresh start. So how do you as a caregiver get a the list and circle the ones you have some control over and write out their solution. For example, ‘driving across town for medication’ could turn into ‘call to transfer the prescriptions to the pharmacy down the street’ and ‘well-meaning friends calling at bed time’ could be solved by asking people to call between 6:30 p.m. and 8:30 p.m. nightly. changes that are yours to make, set a time to begin and record the actions on your calendar. Do not overwhelm yourself by attempting to make a number of changes at once, instead, introduce one new change every week. 5. Be sure to include some ‘me’ time Fall is a time of new beginnings and new routines. Let this time work on your behalf as you evaluate your many ways of caring for your loved one and for yourself. Let me know how you’re doing! Email me at [email protected]. n Ann Leach Not quite sure how to follow these tips on a regular basis? Contact Ann at ann@ annleach.net for further support. Helping caregivers chart their course through the waves of change Visit www.life-preservers.org to purchase your copy of 101 Tips for Caregiver Coping & 101 Tips for Caregiver Grieving By Ann Leach, The Caregiver Coach Need coaching support or a conference speaker? Contact Ann at 417.624.3377 Breast Cancer Wellness Readers – Take $1 off the purchase price! www.breastcancerwellness.org 39 Give Back Before You Give Up mfort ng voice of co lt li ea h ’s st Jo difcu Let Dr. ugh the most help you thro healing journey! times of your I by Christine Clifford Beckwith, CSP I was diagnosed with breast cancer at the age of 40 in December of 1994. By May of ’95, I was deep in the heart of treatments. A friend talked me into participating in something called “The Race for the Cure” on Mother’s Day in Minneapolis where I live. I remember that day as if it were yesterday. Handed a bright pink t-shirt and a hat to cover my bald head at registration, I felt rather conspicuous until I looked around and saw others wearing the same t-shirt and cap. Two thousand people ran in that race that day, and when they summonsed the survivors for a group photograph, I felt overwhelmed when I was joined by 200 women. This year’s Race in Minneapolis had over 40,000 participants and over 4,000 breast cancer survivors. The Race and the Susan G. Komen Foundation helped bring cancer out of the closet. To this day, I can’t participate in a Race without my eyes filling with tears, remembering how they helped me feel like I wasn’t alone. I made two promises to myself twelve years ago when I was diagnosed with breast cancer: If I lived, I wanted to find something in my life that would bring me meaning, help other people, and continue to generate income for my family. I found that gift by starting my company, The Cancer Club. Today, with our Prayer List, free eNewsletter, gifts for cancer patients, articles, references and more, our little company has helped hundreds of thousands of people worldwide find humor and hope in their own personal journey. My second promise was if I found that “meaning in my life”, I would do whatever I could to help the world find the cure for cancer. An avid golfer, with many connections throughout the golf industry as well as in my professional life, I knew I could convey the passion and drive necessary to run a successful fundraising event. My expectation was, with the love and support of family, friends, and the community, we could make a difference. I never dreamed, as a team of concerned corporations and individuals, that we would “blow them out of the water”. In five years our event has raised over $1,000,000 for breast cancer research. Don’t wait until catastrophe strikes your life before you make a decision to give something back. The rewards you will receive from the accomplishments of making a difference will far exceed other awards in your life. n –Sam Walton Christine Clifford Beckwith, CSP Christine Clifford Beckwith, Professional Speaker, is President/CEO of The Cancer Club, a company designed to sell humorous and helpful products for people with cancer. She is the author of five books including Not Now... I’m Having a No Hair Day and Cancer Has it’s Privileges: Stories of Hope & Laughter. You can reach Christine at 952-9440639, email her at: [email protected] or visit her website at: www.cancerclub. com and register for a free monthly eNewsletter. Don’t forget to laugh!™ Premier Manufacturer of Non-Surgical Breast Reconstruction Products Using state-of-the-art laser technology, ContourMed offers breast prostheses with various styles, colors, and nipple designs that conform to the woman’s natural body. Optional adhesive disc and magnetic technology are available for secure placement. 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The world’s finest custom breast prosthesis. w w w. c o n t o u r m e d . c o m [email protected] 40 Breast Cancer Wellness Magazine 501-907-0530 888-301-0520 2821 Kavanaugh Blvd., Suite 2 Little Rock, AR 72205 In CD $169.99 or audio cassette $139.99 # 1: Begin Again — Helps you to create a healing team around you, so your body can completely relax. # 2: Surgery Serenity — Prepares your body and mind for surgery, to encourage rapid healing and recovery. # 3: Liquids of Life — Helps to empower the immune system, minimize side-effects of chemo, and boost the effectiveness of the bodymind’s role in treatment. # 4: Choices — Helps you feel safe and in control at a time when life is lled with uncertainty. # 5: Listening to the Body — Teaches you how to dialogue with your body’s rather subtle form of communication. # 6: Transition — Helps you to create a new sense of self, and put you more in touch with your life’s purpose. # 7: Rays of Hope — Teaches you the importance of setting healthy boundaries, using “light” as a symbolic metaphor for affective radiation treatment. # 8: Road of Recovery — Explores new beliefs when you are so tired that you are convinced you will never feel well again. # 9: Welcome Wellness — Helps to restore trust in your body, & better manage the anxiety that comes with wellness checkups. “High expectations are the key to everything.” ncludes: Understanding Your Journey (main book), interactive journal, and 9 recorded guided imagery sessions ... Yes! Send me a FREE subscription! SIGN UP TODAY TO RECEIVE YOUR FREE SUBSCRIPTION Sign up online at www.breastcancerwellness.org or use this form. NAME:________________________________________________________________ ADDRESS:_ ____________________________________________________________ CITY, STATE, ZIP:_ _______________________________________________________ EMAIL_ _______________________________________________________________ Send to: The Breast Cancer Wellness Magazine, P. O. Box 2040, Lebanon, MO 65536 www.breastcancerwellness.org The Cancer Involvement Program 314-821-8102 www.ONEhealthpublishing.com Normally $139 $169 Cassettes CDs... Special GIFT RATE $89 $119 Cassettes CDs.... www.breastcancerwellness.org 41 for me Wear Your Bras and the Clothing You Love With Confidence by Beth Hohl In a perfect world everything would be symmetric. As most know, we don’t live in a perfect world, and everything is not symmetric. Women who have had breast conserving surgery or reconstruction may know this better than anyone. The left side may be slightly different than the right or visaversa. Sometimes there is a noticeable difference. In this case, even the best fitting bra may not be enough to create the visual symmetry for your desired natural looking contour. To meet this need, Amoena has designed special symmetry shapers so that women can look their best in their clothes at all times. Symmetry shapers are great for after lumpectomy, multiple biopsies, and reconstruction, to balance naturally uneven breasts, to offset imbalance that results from the natural aging process, as an enhancer during reconstruction or when plastic surgery is not an option. We have even designed them with an attachable adhesive if you wish to wear strapless tops or dresses. Some Balance Symmetry Shapers For women who have undergone breast conserving surgery, Amoena Balance Symmetry Shapers, such as the Balance Triangle, fills in missing tissue just where a woman needs it most. 42 Breast Cancer Wellness Magazine shapers are designed to fill the whole cup, while others are made to be a fill-in for missing breast tissue. These shapers are comfortable, lightweight, and inexpensive, and the best part is now you can wear the bras and clothing styles you love with confidence. The true test to see if you are truly symmetric…try on your favorite bra with a sweater and take a good look in the mirror. Sweaters are great for this test because they usually ‘cling’ to the body and provide a realistic view. You will notice immediately whether there are any symmetry issues. Obviously the key to this test is wearing the right size bra and that it fits well. A good fitting bra hugs the chest and provides separation without gaping. The cup should fit smoothly and completely cover the breast. The straps should fit snugly without cutting into the shoulders and sides. You should be able to get two fingers side-by-side under the strap. If you see a difference in your symmetry, you might then consider a symmetry shaper designed to give you balance where you need it most. Amoena is the world’s leader for knowing how to fit women properly after breast cancer surgery, and throughout all of her life’s changes to her breast. Professional and caring fitters know how to assist you for your fitting needs. If you have had breast surgery, your medical insurance may cover these products. To locate a specialty boutique near you, you can go to the store locater at www.thebreastcaresite.com. n New Assistant Editor at BCW Donna St Jean Conti is a seven-year breast cancer survivor who was diagnosed with a Stage 2 tumor at the age of 34 when her children were just four and two years old. She was blessed to be surrounded by a hardworking husband and extremely supportive family, friends, colleagues and neighbors, and it was this outpouring of support from so many sources that inspired her to give back and pay forward whenever possible. She found that the best way she could do so was through her heartfelt, inspirational short stories, two of which were published in two different Chicken Soup for the Soul book titles. Her stories also have been published in numerous women’s and cancer-related magazines, including The Breast Cancer Wellness Magazine, COPING, OC Metro, Today’s Woman, and Women’s World. She serves on the volunteer speakers’ bureau for Susan G. Komen for the Cure, Orange County. Donna is an award-winning, professional writer and marketing communications practitioner who specializes in public relations. She is accredited by the National Public Relations Society of America and certified by the American Association of Advertising Agencies. She received a Bachelor’s degree with high honors in communications from the School of Communications at California State University, Fullerton. She is president and owner of St. Conti Communications, Inc. in Mission Viejo, Calif. Her influencers include Robert Fulghum, Erma Bombeck and Susan Jeffers. She knows that a positive mind set and a “can-do” approach combined with exercise and daily meditation make it possible to accept challenges with grace and to overcome obstacles. n Donna St. Jean Conti, Assistant Editor Breast Cancer Wellness Magazine Leila, 2152 Molded Foam T-Shirt Bra Amoena’s new Leila T-Shirt bra features molded, seamless soft cups that create a smooth silhouette under all your favorite clothes. Beth Hohl Product Manager, Amoena USA www.breastcancerwellness.org 43 SURVIVING & THRIVING Reaching for Our Recovery... While Racing Dragons by Donna St. Jean Conti The first time I met Barbara Singleton was seven years ago when I was a newly diagnosed breast cancer patient. One of my first calls was to the American Cancer Society (ACS) through which I participated in its Reach to Recovery mentoring program. Barbara was my assigned mentor, and she showed me her breasts. The last time I saw her was in June 2007. She was training for a dragon boat race. Barbara is a 64-year-old two-time cancer survivor (throat cancer in 1992 and breast cancer in 1997) and a dragon boat racer. Her strength and soaring spirit are immediately obvious, and she shares them with everyone she meets. She still volunteers as an ACS Reach to Recovery mentor and helps run ACS booths at health fairs and expositions where she hands out pamphlets and answers questions. On meeting Barbara, I knew I wanted to be like her. Strong yet not afraid to reveal her vulnerabilities, she’s the perfect mentor. Whether she is talking with cancer patients or on the water racing dragons, Barbara’s life is full of purpose. She’ll tell you it keeps 44 Breast Cancer Wellness Magazine her positive. “When you face the thing you’re most scared of, you find out how strong you are,” she says. “I’ve faced the dragon under my bed.” Barbara’s mother died of breast cancer when Barbara was just 16 years old. Her mother underwent a radical mastectomy that left her horribly scarred. She later succumbed to the disease. “I knew I would have breast cancer,” Barbara says. “And, when I was diagnosed and told I should have bilateral mastectomies, I went straight to a support group and balled my eyes out. After seeing my mother’s disfiguration, I was scared of how I would look after surgery. Of course, this was after getting past the ‘am I going to die’ fear.” The women in Barbara’s support group were very understanding, and, when several offered to show her what they looked like after surgery, Barbara jumped at the chance to see. She found relief in seeing their rather beautiful reconstructions. “That’s why I offer to show my reconstructed breasts to newly diag- nosed patients. It’s important for them to know that they can be beautiful and look whole again after surgery,” she says. “I even find that it helps significant others cope with what’s to come.” “I have to applaud the women who came before us,” Barbara adds. “Women like my mom who stepped up and spoke out to turn the mind set of the medical establishment.” She’s quick to point out that it was those brave women before us with organizations like the American Cancer Society (http://www.cancer.org/docroot/ home/index.asp) and Susan G. Komen for the Cure (http://cms.komen.org/ komen/index.htm) who worked to raise awareness and who launched searches for the cure that made it possible for all of us to talk so openly about breast cancer. “That’s why I volunteer,” she says. “I’m giving back and paying forward.” In 2003, Barbara’s breast cancer awareness activities lead to her dragon boat racing. While at a conference, she read a pamphlet about dragon boat racing that discussed its beneficial impact on the health of breast cancer survivors. The pamphlet was published to dispel the myth that breast cancer survivors who have undergone lymph node dissection should not exercise using their affected arms for fear of lymph edema. After reading that, she was hooked. She had always been athletic, so the thought of not exercising post surgery seemed wrong. When Barbara started dragon boat racing, she was part of an all-breastcancer-survivor team where she found great camaraderie and support. Over time, the team makeup changed. It now includes between 18 and 20 women and men, several of whom are cancer survivors or disabled. They train at the Newport Aquatic Center (www.newportaquaticcenter) in Newport Beach, Calif., under the coaching of general manager Billy Whitford. In May 2006, they were selected to represent the United States at the dragon boat races in Miluo River, Nanning, and Guangxi, China, where they placed 5th in the 800 meter and 6th in the 500 meter. “That’s very impressive considering the average age of our team is over 50,” Barbara says. “One of our members just turned 80.” According to DragonBoats.com (a Canadian Breast Cancer Foundation Sponsor), dragon boating began in China in 278 B.C. while the former state of Chu was being invaded by Qin armies. At the time, an exiled poet named Qu Yuan, who was a Chu patriot, threw himself into the Miluo River rather than see his state conquered. Distraught locals raced in their boats to save him, but he drowned. The re-enactment of the villagers racing out to save Qu Yuan became dragon boat racing. Celebrated on the fifth day of the fifth lunar month of the Chinese Calendar, dragon boat racing is an important Chinese tradition and an annual event held in over 40 countries. According to Whitford, dragon boating is similar to outrigging or canoeing, but uses bigger, longer, heavier boats. Each competition boat has 20 participants, most of them paddling in unison while one person calls out instructions and one person steers. During races, the person who calls out instructions also beats a drum that sets the paddling rhythm. Whitford adds that it is all about timing and endurance. “This dragon boat racing team has meant an evolution of the Newport Aquatic Center,” says Whitford. “Watching them has been humbling and inspiring for everyone here, especially our other, younger competitive teams. Barbara and our other dragon boat racers may never be first across a finish line, but they are already winners,” beams Whitford. Woodrow Wilson is quoted as say- Barbara Singleton and Billy Whitford at the Newport Aquatic Center before a dragon boat practice. ing, “You are not here merely to make a living. You are here to enable the world to live more amply, with greater vision, and with a finer spirit of hope and achievement. You are here to enrich the world. You impoverish yourself if you forget this errand.” Through her outreach to new breast cancer patients and her efforts to educate people about breast cancer, Barbara is metaphorically beating the drum and living a purposeful life that enables others to live more amply. Even while racing dragons, she has purpose. “I want people to know that breast cancer survivors can be strong and beautiful,” she says. n Donna St. Jean Conti, Assistant Editor Are you thriving despite your challenges? Do you know a breast cancer survivor who is your personal inspiration or hero? Tell Donna, and the story might appear in a future column. Send to: [email protected]. www.breastcancerwellness.org 45 Surviving & Thriving Jennifer Terry Finds Happiness at 71.5 mph It may have been about the thrill of almost literally facing death headon. It might have had purpose in showing daughters what women can do. It may have been about doing something she’d always wanted to do. Whatever her motivation, Jennifer Terry found happiness roaring head first, her face inches from the ice, getting certified with the United States Bobsled and Skeleton Federation. In four days, this wife, mother, and breast cancer survivor learned how to skeleton on the world’s fastest bobsled track. Some people, on receiving a cancer diagnosis, react by doing something dangerous to regain some control over their lives. One might think that’s what Jennifer did, but that would be wrong. Jennifer chose to learn skeleton racing after a friend suggested that she bypass breast cancer support groups in favor of seeking her happiness. Little did her friend know that Jennifer would decide skeleton racing would make her happy. So, following a year of cancer related treatment including chemotherapy, Jennifer took a break and registered for a training clinic at the Utah Olympic Park in Park City, before completing breast reconstruction. Jennifer explains, “I’m a thrill seeker. I’ve raced dirt bikes, driven a dragster, bungie jumped, hung my toes off the edge of Yosemite’s half dome, and jumped horses. Naturally, I thought speeding down the fastest ice track in the world, face first, one inch from the ice, without breaks would be perfect!” Jennifer shares this story: It was a huge class of about 25, mostly young, single men, and then me, a 41-year-old house wife with one boob. After a classroom briefing, we headed ¾ up the track to begin our adventure. It was zero degrees! The instructors suggested that everyone wear warm but close-fitting clothing. It couldn’t be too bulky, because they wanted us to have good contact with the sleds. I chose thin layers of long 46 Breast Cancer Wellness Magazine underwear and a ski shell. I then padded up with a helmet, chest protector, elbow guards and ski gloves. The first run was brutal. Though we were reaching speeds around 55 mph, the instructor told us we were banging into the side walls, because we weren’t carrying enough speed! The first night, some people were very beat up. Some dropped out. I called the instructor and said it was the scariest thing I ever did. I told him I was ready to quit and was hoping he’d offer some encouraging words; he didn’t. He said I would go faster the next day. I was sick with fear. I didn’t eat and had trouble sleeping. My mind told me I was going to die. Logic told me that no one has died doing skeleton. So, I went back. Why? Because I had two little girls watching me do this, and I didn’t want to see me as a quitter. This was the first time in my life I actually had to face my fears. Because I knew what to expect, the second day was worse. One woman admitted she cried before coming to class. I felt the same way. The third day was the most terrifying. This was the day we started from the top. One man got a concussion, another woman a hand injury. I figured, if there were going to be a day to die, this would be it. I changed my strategy - no more fighting the sled or trying to keep my head up. I would try to survive. So, I talked to the instructor and reviewed the proper technique. Ironically, it was time to relax, get low in the sled, keep my head down, just go. The instructor gave me a gentle push off the starting line. Everything was a blur. I would describe the ride as a combination of the most intense roller coaster ride I’d ever been on and a fighter jet ride. I reached 70 mph and made it down in one piece, without hitting walls. I survived. I was thrilled, and, when I stepped off the track, I cheered with a big smile. It was a huge feeling of accomplishment for me. I did something really extreme and defied death! The last day we started from the by Donna St. Jean Conti Above: Jennifer Terry with daughter, Zia in the warming hut at the Utah Olympic Park in Park City. Right: Jennifer Terry on the skeleton run. top again. This time the instructor gave me a running start instead of a nudge. He wanted me to go faster. I had a great time the day before, so I decided to stick with the same technique - survive. I hung on for dear life and made it down. I bumped into some walls but stayed focused and got down in one piece and went 71.5 mph. I earned my one-mile certification! My daughters, Mira (three) and Zia (five), came everyday to cheer for me. We’ve watched national competitions and World Cup events. Zia doesn’t seem to know the difference between a World Cup athlete and Mommy sliding down the track. She probably thinks it’s perfectly normal for mommies to do that sort of thing! My cancer treatment seemed endless and was very unpleasant. If I were to compare my skeleton experience to my cancer treatment, I would have to say that the skeleton was much scarier. But those four days gave me lifelong memories of facing my fears, finding strength to go back, and showing my kids I’m not a quitter. Comparatively, it made my cancer treatment seem easier. Will I ever do the skeleton again? I think about it a lot. The instructor said I would be conflicted after this experience, because nothing else will ever be that intense. He said I’ll come back if I want that intensity again. He may be right. Jennifer’s husband, Paul, put her accomplishment into perspective saying, “Her fastest run on the one-mile track was 59.54 seconds. Do the math. Her speed on that run was 71.5 mph. At that speed, she pulled three to four Gs in the big turns. Go that fast in your car; then lean out and hold your face an inch from the ground. Do it a foot from the center divider. Have someone sit on your head to simulate the G force. That should give you an impression of what Jennifer felt like careening down that track.” Jennifer’s words echo those from Georgia O’Keeffe who said, “I’ve been absolutely terrified every moment of my life, and I’ve never let it keep me from doing a single thing I wanted to do.” Jennifer Terry shows us there are things scarier than cancer treatment and that one can survive it all. It takes determination – deciding not to quit. She also proves that sometimes one finds happiness while facing fears. n Donna St. Jean Conti, Assistant Editor Are you thriving despite your challenges? Do you know a breast cancer survivor who is your personal inspiration or hero? Tell Donna, and the story might appear in a future column. Send to: [email protected]. 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Well, anyone who can look for laughter in the face of a breast cancer diagnosis while working to improve her community is truly inspiring. Tina Pruitt Campbell, a northern Virginia resident, is such a person. Diagnosed on March 15, 2007 with Stage I Ductal Carcinoma in Situ, Tina underwent bi-lateral mastectomy surgery on March 28. Her response was to educate herself, pass on the knowledge and relieve the stress through laughter. Bob Newhart once said, “Laughter gives us distance. It allows us to step back from an event, deal with it and then move on.” You could say Tina took a step back and hopped on. After her surgery, she wore bunny ears as she left the hospital, prompting a laughing elderly volunteer to say, “Hey, those look like Playboy bunny ears.” She replied, “Yep, that’s the point and that’s me!” Tina is a working mother and wife. She fi nds much in her husband, Jack, and four-year-old son, Riley, to keep her positive. “A four year old is a source of humor on a daily basis,” says Tina. “It was hard for us not to laugh when Riley was asking about my ‘sick humps!’ I can’t honestly say that my situation is all laughs, but I have dealt with everything the best I can by joking with doctors, family and friends. It is really a way to manage the day-to-day things. I did not want people to be sad and felt it was not healthy for me to even hear about people being sad,” says Tina. The people around were inspired by her response and keep her smiling through hugs and humor, and, although their parents reside in Florida and Pennsylvania, they also have been great sources of support. Their phone conversations about her 48 Breast Cancer Wellness Magazine by Donna St. Jean Conti Tina Pruitt Campbell at a Woman’s Club event. Tina Pruitt Campbell following bi-lateral mastectomy surgery. surgery and recovery include joking about the situation - to lighten the mood, keep things positive. Also, driven to make a difference, Tina fi nds purpose in the newly formed Dominion Woman’s Club, part of the Greater Federation of Woman’s Clubs (www.gfwc.org) that received its charter in April. The group works to make a difference in its community through arts, conservation, education, home life, international affairs, and public affairs projects. In midMarch, Tina accepted a nomination to be the second vice president of membership. “Tina is a genuinely caring and compassionate individual,” says longtime friend, Debbie Carroll. “After her diagnosis and surgery, she still attended our many community functions and neighborhood gatherings. She even entertained friends by hosting a St. Patrick’s Day party and recently hosted a summertime picnic.” Tina has played Bunco for four years with a neighborhood group of 15 women. She recognized the power in accepting their help as these women along with their husbands rallied around her family. As Tina says, “They lifted my spirits daily, absolutely daily, and continue to give me strength.” For example, she was amazed when they completely decorated her house for her return from the hospital with flowers along the walk, wreaths on the front doors, balloons, and even a big banner signed by everyone. Her Bunco friends would say it is Tina who gives them strength. “From the moment Tina told us about her breast cancer, she was more concerned about how her friends and family would handle it than about herself,” says Carroll. “She is an inspiration by fi ghting this battle with a positive attitude and zest for life. Of course, we can’t deny her humor. When Tina went for her ‘fi lls’ (breast implant expansions) she made jokes about how she could already see cleavage developing so soon after her mastectomies. Even before her surgery she nicknamed her new breasts Bada and Bing, which gave us a big laugh.” Another friend, Lisa Braden, says, “Tina seemed to face this dreaded disease as just another project. She immediately began researching her options and soon realized that she could help others with this same diagnosis. She decided that knowledge and humor were her best weapons. Tina emailed us with news, and she launched a blog. Her messages are uplifting and encouraging. She asked us to treat her condition positively and with humor. No tears.” “If you can help or inspire just one person it is worth sharing your story,” Tina says. “So, I wish for that one person who may happen on my story to become inspired by taking control of what she can to better understand about breast cancer and improve her life overall.” Many people decide to participate in breast cancer related walks after they’ve been touched by the disease. Even in this case, part of Tina’s purpose was to lighten things up. To prepare for a June 2 breast cancer walk, she invited her fellow participants for a silly hat decorating party. She made sure that her hat literally shined. “My co-workers gave us hats, and each of us decorated them differently - pom poms, feathers, bling, glitter, trim - all in pink of course. Mine was all bling. I had tiaras with ‘Celebrate Life’ spelled out on the brim and Jack and Riley’s names on the sides. I also had a train on the back with bling on its tails. We had a blast - glue guns, feathers, rhinestones and pom poms were a’flyin,” she says. Tina adds that they received compliments from smiling admirers during their walk. “We did seem to standout with our fun and spirited headwear,” she says. “Not a lot of humor there... just good times and lots of bling and fluff.” “It is about the smiles and comfort throughout the day and how that makes everyone feel good,” says Tina. When they walked, it was in solidarity together with Tina, who told Braden, “Lisa, I’m sorry this year we have to walk this race, but I promise next year we will run it.” We’re certain they will. n Donna St. Jean Conti, Assistant Editor Are you thriving despite your challenges? Do you know a breast cancer survivor who is your personal inspiration or hero? Tell Donna, and the story might appear in a future column. Send to: [email protected]. www.breastcancerwellness.org 49 Dr. Phil, The Talking Parrot of The Caribbean Seas. Join Captain PegLeg (Peggie Sharry) of the Dymanite Divas and Captain Bev Bonny (Beverly Vote) of the Bonny Bunch, and captains of the Survivors Sisters and the Carefree Cruisers (TBA). Starting at $399 1-800-810-8610 Sponsored by Amoena and The Breast Cancer Wellness Magazine Enjoy 5 days and 4 nights on The Celebrity Century and experience The Caribbean in style. We sail out of Miami. This fun filled excursion is for breast cancer survivors, caregivers, friends, family, and anyone that wishes to join us. Deposit of $100 reserves your cabin. Call Shelly Williams at Great Southern Travel, 1-800-810-8610 or email at [email protected]. Dr Phil The Talking Parrot advises: Five days and four nights to have fun, fellowship, and many good times with women and fellow survivors from across the country. Make your cabin reservations right away to ensure the lowest prices. A deposit of $100 holds your cabin. Prices start at $399 P/P based on double occupancy. Be one of the first to get your secret key for the She-Pirates of the Sea Scavenger Hunt on day two of the cruise. You will receive your map and eye patch for your team (colored coordinated of course as you are the “High” She-Pirates of the Sea.) And, you will also be sent the best recommendations for your scavenger day lunch. Shop, relax, sunbathe, enjoy workshops on health and beauty, lounge, laugh, and let go throughout this special time just for you. Invite whomever you want to join you on this fun filled excursion. Get your passports early, as passports are now required on all cruises outside of USA. There are 3 levels of cabins: Inside Stateroom starting at $399* Ocean View Stateroom starting at $509* Veranda Stateroom starting at $699* *Per Person and Based on Double Occupancy *Add’l gov’t taxes apply. Special Tribute for all Amoena Retailers that are joining us. THREE WOMEN ON THEIR HEALING JOURNEYS II A Call to Self o t e s i u r C a n ! Wi n a e b b i r a C e th Leslie Kestin, Culver City, CA, 2007 winner of the 1st annual Breast Cancer Survivors Cruise Contest The 2nd Annual Breast Cancer Survivors Cruise Contest At the beginning of 2007, three breast cancer survivors were led by a dream team of experts to help them empower their journey toward wellness. Bettina, Alaine, and Diane were supported in their journeys over a course of six months; today, they are available to support others in their healing choices. This next project of “Three Women on Their Healing Journeys” will be an invitation to any one that wishes to join in. If you are open, willing, and ready to take the next step forward in your Breast Cancer Wellness Journey, please join me along with three other women on their journeys as they share their experiences honestly with the readers of The Breast Cancer Wellness Magazine. As a Wellness Coach, I can guarantee that you will get your hands dirty. It’s inevitable and it’s daunting, yet it’s so exilerating to see and to be able to create new wellness opportunities together. We will be joined once again with the country’s leading experts in their Sponsored by Amoena, TheBreastCareSite.com and The Breast Cancer Wellness Magazine April 24 - 28, 2008 Celebrity Century Sail with us to Miami, Key West, Cozumel, Mexico and the Caribbean Seas! Enjoy being pampered, a fun-filled scavenger hunt, and the company of breast cancer survivors and family and friends. Dr. Kim Dalzell Dr. Sandy Jost by Laurie Seligman, M.A., Wellness Coach fields: Dr Sandy Jost, creator of The Cancer Involvement Program. She will teach what guided imagery is, why it is so beneficial for breast cancer wellness, how simple it is to use, and how to make it a regular process for your maximum healing efforts. Dr Kim Dalzell is a certified holistic oncology nutritionist and a contributing writer for this publication. Her wit and wisdom will guide you for your maximum healthy support. Your body must have the proper nutrients in order to heal, and Dr Dalzell is our advocate for knowing the latest information on what is best for breast cancer wellness. My work as your wellness coach is patient-driven. That means, we journey together and you are at the center of your recovery and transformation. It is my honor to companion you and to assist you in releasing what is standing in your way of becoming well, to identify and embrace new truths, and to call your strength and spirit back. I am there to encourage you each step of the way. Healing is an inside job, not just a return to a prior level of full physical capacity. Breast cancer is a call to self to transform from within which needs nuturing, compassion, strengthening, trust, and accountability. With a Wellness Coach by your side, it is easier for both of us to peer into your unknown and make it known so that positive life changes can become yours. If you would like to be considered as one of the three women for the next six months and are willing to openly share your experiences of transformation, please email me at laurie@ breastcancerwellness.org. Requests are to be received prior to Oct 31. However, everyone call follow along in our weekly conference calls. The exact time for this project to begin will be posted at www.breastcancerwellness.org on November 1. n r u o Y e r a Sh Journey The winner will be selected by random drawing and announced February 2008. Contest includes a cabin for TWO! REGISTER TODAY AT www.theBreastCareSite.com 52 Brought to you by the Breast Cancer Wellness Magazine. For more information, contact [email protected] Breast Cancer Wellness Magazine www.breastcancerwellness.org 53 2007 Yoplait Champion Jeanne Fitzmaurice BEND, OREGON When Purpose and Passion Collide by Beverly Vote The Story of Founding Gal, Jeanne Fitzmaurice “When passion and purpose collide, magical things happen.” This is the philosophy that has guided Design-her Gals’ founder, Jeanne Fitzmaurice’s success as an entrepreneur and crusader to support Stage 4 breast cancer patients and their families. Ask Jeanne about her most meaningful success story. She won’t tell you that it was building an online community of 250,000 members in two years. And while she may mention making Oprah Magazine’s O List or receiving the 2007 Yoplait Champion award for contributions in the battle against breast cancer, she will tell you her biggest accomplishment to date was “When a Stage 4 breast cancer patient said logging onto Designhergals.com after a day of chemotherapy was a ray of sunshine in her otherwise bleak day.” Prior to founding Design-her Gals, Jeanne had a successful career in resort management. In 1998 Jeanne left the resort management industry to be a full-time mom. However, with the help of a dear friend, Jeanne founded a personalized stationery company which she took online as an interactive website which allowed customers to create their virtual selves and place them on stationery and other gifts. Sadly, the very same day that Jeanne decided to launch designhergals.com, she received a call that changed her life. Jeanne’s friend was diagnosed with Stage 4 breast cancer. This echoed the sad news of her cousin, Robin, who lost her battle with breast cancer a few years prior. Jeanne had an epiphany. She would put “her Gals” to work and shed light on a dark topic in a fun and whimsical way. The Gal to Gal Foundation was established specifically for Stage 4 patients, addressing the fact that there were limited resources for the disease in this final stage. She was determined to design a company to empower and celebrate women while raising awareness and funding for a cause close to her heart. The Gal to Gal Foundation, a non-profit partner of Design-her Gals, receives 5% of every sale made on www.designhergals.com. The Gal to Gal Foundation will be making “virtual” history this October when a virtual walk will be launched where supporters will create their virtual likeness online at www.galtogalwalk.org and watch themselves and others “virtually walk” across America over 31 days. With a goal to register 1 million walkers, the event is already generating a tremendous amount of attention and support of major corporate partners, celebrities and scores of organizations who will be helping to spread the message of hope and support for Stage 4 breast cancer patients and their families. Proceeds from this walk will fund wishes through Making Memories Organization for Stage 4 patients and sponsor the first social network and resource website for stage 4 patients and their families. Jeanne Fitzmaurice finally found her purpose and her passion - and magical things are happening! Frequently sought after for media interviews and public speaking appearances, Jeanne is an expert on branding, reinventing oneself and other marketing topics. Having won several high profile awards in leadership and innovation, Jeanne’s dedication and business acumen have earned her the respect of her community and colleagues. n . . . making women “feel like me again” PWigs & Turbans PLymphedema Pumps PCompression Hosiery PMastectomy Bras PBreast Prostheses PCustom Prostheses Certified Fitters In 14 locations to serve you. Call for a FREE “Fit Kit” to assure a perfect fit! See our Web site for the location nearest you or to shop online. www.w-h-b.com Free newsletters available online! P Franchise opportunities available for new locations 888-708-9982 ST. JOHN’S HOSPITAL–LEBANON THE GIFT OF TIME FROM YOUR COMMUNITY HOSPITAL For Dawn Jones, time matters. Diagnosed with cancer last year, the mother of four was facing hours of exhausting travel for treatments, at the time she most needed her strength. But she’s getting the care she needs –right here at home– from St. John’s Hospital–Lebanon. Our hospital’s temporary on-site Cancer Care program is delivering personalized treatment to Lebanon residents. Upon opening in 2008, our 3,000-squarefoot state-of-the-art Curry Cancer Center will provide expanded local diagnostic, surgical and treatment options for Dawn and other patients like her. Receiving cancer care close to home saves time. And for some of us, that’s a precious thing. For more information on Cancer Care services at St. John’s Hospital–Lebanon, call 417-533-6419 or visit us online at www.stjohnslebanon.com. 54 Breast Cancer Wellness Magazine www.breastcancerwellness.org 55 2007 Yoplait Champion www.americanbiosciences.com Avé -The good news is spreading A miracle of nature, a triumph of science. Have you heard the good news about Avé? Friends are telling friends about how this unique dietary supplement helps support appetite, energy and overall quality of life.* Physicians, nutritionists and other experts are recommending it because of the extensive published research that supports its use. Avé is the only dietary supplement which contains Avemar®, an all-natural, nutritional compound made by the fermentation of wheat germ by baker’s yeast through a patented process. It has been the subject of clinical trials and other research described in more than 20 articles in peer-reviewed medical journals, many of which are available via the National Library of Medicine website, www.pubmed.gov, with the search term “Avemar“. We support the L YOUNG SURVIVA ON ITI COAL ited (Young Women Un SM er ) nc Against Breast Ca org al. viv ur gs www.youn Once daily use is shown to support the foundations of good health by supporting the regulation of cell metabolism and immune function, which can be disrupted by environmental toxins, physical injury and emotional stress.* Although these sound like benefits only a doctor can appreciate, they are benefits you can actually FEEL in terms of appetite, energy and quality of life. You’ll feel good about using Avé, satisfaction guaranteed.** Wendy Chioji WINTER PARK, FLORIDA “That News Anchor with Breast Cancer” When I was diagnosed with stage II breast cancer in 2001, I was determined not to be “That News Anchor With Breast Cancer.” I wasn’t going to be the poster girl. I wasn’t going to let cancer define my life. Looking back, it’s hard to imagine the level of naivete and lack of vision I had at that time. My cancer treatment was very public, as I am the anchor at WESH TV in Orlando, Florida and have been here for nearly two decades. We ran occasional, short blurbs on television to let folks know when I had surgery, started and stopped chemo and a clinical trial, when I finished treatment and when I by Wendy Chioji was selected to ride across the country with Lance Armstrong and the Tour of Hope in 2003. As I met more and more cancer survivors and patients, I realized how blessed I was that my prognosis was good and it looked like I was going to live. One day, in the mall, a woman came up to me and asked, “Why do you get to live and my sister had to die of breast cancer?” I thought about that for a very long time, and here’s my answer: Everything happens for a reason. The reason I got to live is because I have this incredible platform from which to talk about survivorship and clinical trials and hope. And I do it all the time, in large groups and small, to people I don’t know and people I love. The fact that I got to live is the reason I will continue to challenge myself in my personal life (I’ve now done nine half ironman triathlons, and have signed up for my first full distance Ironman in 2008) and in my professional life. It’s also what pushes me to raise money for the good fight: This year I’ll pass the $100,000 fundraising mark for the Lance Armstrong Foundation. Today, I can tell you that cancer doesn’t define my life, but it taught me the value of passion and knowledge and strength and love. And I’ll spend the rest of my days trying to deserve to be the one who got to live. n Nature and Science For Better Health Call 888-884-7770 for a FREE Sample and Supporting Research *These statements have not been evaluated by the FDA. This product is not intended to diagnose, treat, cure, or prevent any disease. ** Avé is sold via health food stores, pharmacies and doctors, and all resellers honor our return policy. Consumers will receive a complete refund on one open, partially or completely used box of Avé, and any number of unopened boxes. Avé is a trademark, and Avemar is a registered trademark of Biromedicina, Rt. ©2007 American BioSciences, Inc. 56 Breast Cancer Wellness Magazine www.breastcancerwellness.org 57 First Annual Breast Cancer The first annual breast cancer survivors cruise was a beautiful experience. Not only the magnificantly beauty of Alaska, but also enjoying it together with fellow breast cancer survivors and their families. Thank you Amoena, Mary Olsen Kelly, and Dr Kim Dalzell, and every one that travelled Alaska together for making it a lifetime experience. I look forward to the second annual cruise to the Caribbean; it will be as beautiful in its own way. –Beverly Vote, Publisher The Breast Cancer Wellness Magazine Survivors Cruise to Alaska 2007 Yoplait Champion Colleen Johnson KANSAS CITY, MISSOURI Leading the Charge Colleen Johnson, Senior Director of Program Development for Saint Luke’s Cancer Institute has been active in women’s health care for more than 25 years. Her passion dedication and tireless efforts have dramatically improved the care and prevention of disease for thousands of women. Having earned her nursing degree by working nights as a nursing assistant on a post-partum-gynecological surgical floor, she knew immediately that women’s health care was the field for her. Within one year of earning her R.N. degree, she was encouraged to apply to the University of Texas Women’s Health Care Nurse Practitioner program earning her certification as an Advanced Practice Nurse. Johnson decided to specialize in breast disease approximately 15 years ago.” Breast disease is such an anxiety provoking issue for women and such an important part of routine health care. “I felt that by specializing in this area I could truly make a difference in many women’s lives. Breast care is never dull because the care and maintenance is unique for every women and that extends to the entire family.” Seeing the needs in her community for increased access to health care for women, Colleen has led the charge to create many programs for breast cancer support. She initiated Saint Luke’s Cancer Institute’s transportable mammography program which screens more than 1500 low income women annually, Missys’ Mirror the only cancer appearance center in the Kansas City area, a newly diagnosed breast cancer class open to the community, and the nurse navigator program which provides support to breast cancer patients and their families. Colleen has donated thousands of hours of clinical and educational charity care and has taken voluntary 24 hour call for the last 8 years to meet the needs of patients. She is a board member of the Young Survivors Coalition and serves on the steering committee of the National Consortium of Breast Centers. 60 Breast Cancer Wellness Magazine Laurie Seligman WELLNESS COACH www.transformationconsultinginc.com In this inspiring memoir of spiritual transformation, Laurie learns to take control of her destiny, rising from a series of physical challenges and loss; three surgeries in three years, death of her mother to cancer, and the sudden end to her lifestyle, finances, health care and pension as a result of disablement. She experiences a complete life makeover, and with the assistance of free swimming dolphins, overcomes her perception of diminished self worth as a woman and a human being, and emerges with new purpose and life direction. Laurie serves as Wellness Coach for The Three Women on Their Healing Journey. To contact Laurie for her professional wellness services for your healing journey, phone 323-782-1001. Her dedication and hard work has awarded her the Kansas City 2005 Local Hero in the “BMW Ultimate Drive” a collaborative effort between BMW and the Komen Breast Cancer Foundation and was one of only 25 in the country to be chosen as a 2007 Yoplait Champion for her contributions in the fight against breast cancer. Yoplait, Self magazine and the Susan G. Komen Breast Cancer Foundation sponsor this award. Johnson continues to see patients, even though much of her work is in program development. “You don’t know what is important to develop without hearing directly from patients.” Presently, Johnson is working to support a statewide program to increase breast cancer screening for all women in Missouri. She is also developing a partnership with Saint Luke’s Cancer Institute and Walter Reed Army Hospital, to participate in a congressionally funded research project looking into a cure for breast cancer. n www.breastcancerwellness.org 61 Japan’s Leading Alternative Cancer Therapy “AHCC” Gains Acceptance in the U.S. Reducing side-effects of chemotherapy and helping induce remission By Dr. Debbie Bemis Currently based at the Ludwig Institute for Cancer Research, Dr. Bemis was involved in nutraceutical research in her previous position as a scientist at the Columbia-Presbyterian Medical Center. She is an associate member of the American Association for Cancer Research and a member of the AHCC Research Association to which she contributed this article. Have you ever talked to your doctor about using nutritional supplements as a part of your treatment regimen or posttherapy? If so, then chances are that you were discouraged from using them. But now, an innovative biotechnology company from Japan is working to change that by making the case to mainstream U.S. physicians that these natural compounds should be used alongside pharmaceutical drugs during treatment and for managing remissions post-therapy. One on Japan’s most widely-used nutraceuticals targeting cancer is Active Hexose Correlated Compound, known commonly as “AHCC”. A fermented extract produced from the mycelium of hybridized medicinal mushrooms grown in the extract of rice bran, AHCC been shown to significantly improve the immune system by increasing the production of the body’s “killer cells”, whose function is to destroy abnormal cells and invading organisms in the body. Currently used in over 700 clinics throughout Asia, AHCC has gained wide acceptance due to the volume of research devoted to its applications. As the subject of over 100 research papers from the world’s leading research centers, AHCC has been studied at prestigious U.S. institutions such as the UC Davis Cancer Center, Columbia Presbyterian Medical Center, the Yale School of Medicine and the Harvard-affiliated Brigham and Women’s Hospital, among others. Just Like You Post-Mastectomy Boutique Located in Key West Plaza In West Monroe, Louisiana Toll Free 877-730-7403 Amoena, Jodee, ABC, Camp, and more—we carry all major brands of pocketed bras We have pajamas and lingerie specially designed to hold a breast prosthesis Our staff has over 30 years of experience in insurance billing and post-mastectomy fittings We ship anywhere!! The most important factor driving the acceptance of AHCC at cancer clinics has been its impact on reducing the sideeffects of chemotherapy. AHCC has been shown to help reverse the suppression of immunity (that results from cytotoxic chemotherapy treatments) by significantly raising patients’ white blood cell counts, as well as contribute to the prevention of chemically induced alopecia (hair loss), the reduction of nausea and vomiting and the protection of the bone marrow (by helping prevent myelo-supression and anemia, which contribute to the patient’s fatigue). Numerous animal studies and a few human clinical trials have also been conducted to measure the effect of AHCC on tumor mass, tumor growth and metastasis. While the results from animal models have been very promising, more clinical trials are needed. However, in one landmark study of 269 post-surgical liver cancer patients, the group taking AHCC (113 patients) showed a 14% higher rate of survival than those in the placebo group (156 patients). More importantly, only 49% of the patients in the AHCC group had recurrence of cancer compared to 67% in the control group (the results were statistically significant). www.justlikeyoulouisiana.com In his book on AHCC, Dr. Dan Kenner who extensively studied this compound writes that the “data from the treatment of over 100,000 patients with various types of cancer has shown that 60% of the patients have benefited to some degree and many have found it effective enough to induce remission”. In spite of these impressive results, AHCC should not be perceived as a “magic pill” – rather it is a complementary cancer therapy to be used alongside pharmaceuticals as a part of a holistic approach to cancer care. For more information on AHCC, please contact Quality of Life at 877-937-2422 or via email at [email protected]. This article was submitted and sponsored by the AHCC Research Association 62 Breast Cancer Wellness Magazine www.breastcancerwellness.org 63 Purchase a Pink Ribbon Bagel today! During October Visit any Springfield or Branson area Panera location and support the BCFO with the purchase of a Pink Ribbon Bagel. 25¢ from each bagel purchased will be donated to the BCFO to support the following programs and services: • Nonmedical Financial Assistance for women facing breast cancer • Free Screening Mammogram Program • Free Lymphedema Garment Program • Education, Support Groups and Mentor Support Recent thank you notes from those benefiting from these programs – “I feel like a burden has been lifted from me because of what your organization has done” “Your assistance was a lifeline during turbulent times” Mark Your Calendar Educational Series continued... Awareness, Diagnosis & Treatment: Physician Panel Tuesday, November 6 • 6:00 PM CoxHealth South Foster Auditorium For more information please call: Breast Cancer Foundation of the Ozarks 330 N. Jefferson, Ste B Springfield, MO 65806 417-862-3838 1-866-874-1915 www.bcfo.org Need Washing? A little girl had been shopping with her Mom in Wal-Mart. She must have been 6 years old, this beautiful red haired, freckle faced image of innocence. It was pouring outside. The kind of rain that gushes over the top of rain gutters, so much in a hurry to hit the earth it has no time to flow down the spout. We all stood there under the awning and just inside the door of the Wal-Mart. We waited, some patiently, others irritated because nature messed up their hurried day. I am always mesmerized by rainfall. I got lost in the sound and sight of the heavens washing away the dirt and dust of the world. Memories of running, splashing so carefree as a child came pouring in as a welcome reprieve from the worries of my day. The little voice was so sweet as it broke the hypnotic trance we were all caught in “Mom let’s run through the rain,” she said. “What?” Mom asked. “Lets run through the rain!” She repeated. “No, honey. We’ll wait until it slows down a bit,” Mom replied. This young child waited about another minute and repeated: “Mom, let’s run through the rain,” “We’ll get soaked if we do,” Mom said. “No, we won’t, Mom. That’s not what you said this morning,” the young girl said as she tugged at her Mom’s arm. This morning? When did I say we could run through the rain and not get wet? “Don’t you remember? When you were talking to Daddy about his cancer, you said, ‘If God can get us through this, he can get us through anything!” The entire crowd stopped dead silent. I swear you couldn’t hear anything but the rain. We all stood silently. No one came or left in the next few minutes. Mom paused and thought for a moment about what she would say. Now some would laugh it off and scold her for being silly. Some might even ignore what was said. But this was a moment of affirmation in a young child’s life. A time when innocent trust can be nurtured so that it will bloom into faith. “Honey, you are absolutely right. Let’s run through the rain. If GOD let’s us get wet, well maybe we just needed washing,” Mom said. Then off they ran. We all stood watching, smiling and laughing as they darted past the cars and yes, through the puddles. They held their shopping bags over their heads just in case. They got soaked. But they were followed by a few who screamed and laughed like children all the way to their cars. And yes, I did. I ran. I got wet. I needed washing. Circumstances or people can take away your material possessions, they can take away your money, and they can take away your health. But no one can ever take away your precious memories. So, don’t forget to make time and take the opportunities to make memories everyday. Keep in touch with your friends, you never know when you’ll need each other... and don’t forget to run in the rain! n Real Purity , for the products you and your family use every day. ® Hair/skin/body care, cosmetics, toothpaste, deodorant (really works!) and more! On your body or down your drain, Real Purity® is committed to offering products that are free of harsh chemicals, solvents or animal by products that are not toxic to you or Mother Nature. Call us today @ 1-800-253-1694 or visit us on the web @ www.realpurity.com. First time customer orders will receive a free sample of their choice. 64 Breast Cancer Wellness Magazine www.breastcancerwellness.org 65 Dear Reader, inspiration hope Just over a year ago, The Breast Cancer Wellness Magazine was launched as a free subscription for breast cancer patients and survivors. Its subscription base has grown more than we expected, and we appreciate the compliments and words of gratitude that we have received about the magazine. It is a great honor to work for this cause and to meet breast cancer survivors and to share their amazing survivor stories. Our mission is to continue to bring you more breast cancer survivor stories, and ideas that empower mind, body, and spirit for healing. At this time we are asking for your help to defray some of the costs to mail the magazine. As you know, postal costs have recently went up, and the requests to receive the magazine continues to grow as well. That is why we are asking readers to help us out through a voluntary donation. This contribution is only for those who choose to, at whatever amount is comfortable. By using this ‘pay it forward’ principle, this helps provide the magazine to other breast cancer patients and survivors. Thank you very much in advance for helping to publish and deliver the magazine, so that we can continue to bring you inspirational messages for healing. Kindest regards, Beverly Vote Publisher Voluntary Contribution Form support YES, I am happy to help provide assistance for the magazine. $5 ______$10_______$20_______ Other ________ Please make payable to: The Breast Cancer Wellness Magazine P. O. Box 2040 Lebanon, MO 65536 THANK YOU! “There is a light in this world... a healing spirit much stronger than any darkness we may encounter. We sometimes lose sight of this force, where there is suffering and too much pain, And suddenly the spirit will emerge Through ordinary people and answer in extraordinary ways. God speaks in the silence of the heart when we listen.” –Mother Teresa “Treatable and Beatable is a marvelous book-full of the kind of insight and empowering information that everyone needs to know!” -Christiane Northrup, MD From Cancer Survivor To Cancer “Thriver” Cancer can be a new beginning... It doesn’t have to be a nightmare or death sentence. Treatable and Beatable encourages cancer patients to claim their power and explore options the moment they are diagnosed. It details one woman’s journey healing stage three breast cancer using immuno-therapy and a cancer vaccine. She kept her breast and was spared many of the physical trials traditional patients endure. Author: Women’s bodies, Women’s Wisdom, The Wisdom of Menopause, Mother-Daughter Connection Reading this book, you will learn: -A variety of practical and spiritual techniques to ensure successful healing -How immunotherapy boosts the body’s defense system with a tailored cancer vaccine, destroying tumors and leaving healthy cells intact. -Nutritional practices and detoxification rituals that strengthen your immune system. $19.95 www.breastcancerwellness.org To Order, Toll Free (866) 246-0462 or visit www.treatableandbeatable.com www.breastcancerwellness.org 67 Pink Pages Breast Cancer Wellness Pink Pages and Website provides you the easiest and most convenient wellness resource directory at your fingertips. MAR K E T P L A C E Gifts For Survivors Celebrate the Survivor in Your Life!”™ Visit www.SurvivorPosters.com. Customize a poster featuring your survivor’s bio among famous Breast cancer survivors $14.95 and up. 5% off to breast cancer organizations. Hats & Headwear Prairie Pink Do Rags DoRag Bandana – Designed by Breast Cancer Survivor from SD. Unique, Colorful, Educational Tool for Breast Cancer Awareness 605.348.2404 / 605.343.4956 www.prairiepinkdorags.com Lymphatic Drainage Therapy LDT using vibrational energy via the lymphstar pro to detoxify the lymphatic system and reduce or eliminate lymph edema. Organic Clothing Cottonfield Organics. Featuring 100% Organic Cotton Clothing, Underwear, Sleepwear For Men And Women. Also Offering Hemp Clothing. Phone: 888-954-1551. cottonfieldusa.com Organic Products Totally Organic. Care for your body, health and home, with affordable organic products. Skin Care, Body Care, Cosmetics, Cloth Diapers, Health Supplements, Clothing, Underwear, Bedding & Mattresses, FSC Certified Children Funiture. Toll Free: (888) 8133350. www.totallyorganic.us Absolutely Organic. Natural Collection Of Acne, Baby, Body, Hair, Skin And Fragrance Free Botanical Products. You Can Be Toxic Free! Katy, TX. 281-579-1664. absolutelyorganic-toxicfree.com Brandi Owens, RN, CLT 480-529-6323 [email protected] desertsageherbs.com Yes! Mastectomy Products Mastectomy Products NEARLYOU.COM Nearly You Breast Forms - Bras - Swimsuits AMOENA • NEARLY ME TRULIFE (CAMP) FREE SHIPPING Order Online at The Breast Cancer Wellness Magazine is looking for two experienced sales representatives for creating new business opportunities. Ideal opportunity to work from home. Commission basis. NEARLYOU.COM or Call 1-866-722-6168 Bach Medical Supply Certified mastectomy fitters on site featuring prosthetics, bras, sports bras and swimsuits. 1711 E. Sunshine Springfield, MO 1-800-288-2224 417-883-1400 Sign up online at www.breastcancerwellness.org or use this form. NAME: _______________________________________________________________ ADDRESS: ____________________________________________________________ CITY, STATE, ZIP: _______________________________________________________ EMAIL _______________________________________________________________ Send to: The Breast Cancer Wellness Magazine, P. O. Box 2040, Lebanon, MO 65536 www.breastcancerwellness.org Skill Set / Requirements: • Ability to work independently • Highly personable • Ambitious and pro-active • Telephone, fax, and internet Contact Director of Sales, Bonnie Phelps at 417 581 3438 or email: [email protected] breastcancerwellness.org Appointments Requested, Though Not Required Contact Director of Sales, Bonnie Phelps at [email protected] or call 417-581-3438 ask for the Pink Pages Special. SIGN UP TODAY TO RECEIVE YOUR FREE SUBSCRIPTION Send me a FREE subscription! w w w. 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PLUS experts in the field of mind-body-spirit therapies will speak out on the latest news for our healing journeys. Go to www.breastcancerwellness.org to tune in! Also, see who the scheduled guests are, how to call in, and listen to archived shows. You won't want to miss a single show. Sponsored by The Breast Cancer Wellness Magazine Hosted by Carolyn Gross author of Treatable and Beatable it’s a cause that fits us all. Coldwater Creek is a National Series Sponsor of the Susan G. Komen Race for the Cure® m i s s e s p e t i t e s wo m e n ’s | s t o re s c a t a l o g s o n l i n e | c o l d w a t e rc r e e k . c o m | 1 - 8 0 0 - 2 6 2 - 0 0 4 0 jacket {H28459} $119 | tee {H42203} $29 | jeans {H17600} $69