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AUSTRALIAN PROSTATE CANCER RESEARCH Our Mission: No Man Dies of Prostate Cancer Australian Prostate Cancer Research impacts the world through research and development of paradigm-shifting practices in prostate cancer care and treatment. Australian Prostate Cancer Research 14–20 Blackwood Street North Melbourne VIC 3051 [email protected] www.prostatecancerresearch.org.au Twitter @AustProstate Contents Messages from our Chairman and Executive Team 4–5 Our Impact 2014 6 PROSTMATE 7 Australian Centre for Prostate Cancer & Men’s Health 8 The Guest Fundraising Dinner 9 15th Asia Pacific Prostate Cancer Conference 10 Our Research 11 Community Support 12 Financial Summary 13 Our Board 14 Our People 15 Thank you 16 Chairman and Executive Director Report The reporting period was one of exploration for Australian Prostate Cancer Research as we learned from our colleagues overseas and worked more closely than ever with men facing prostate cancer to unearth their unmet needs. There is undoubtedly an increasing sense of importance in addressing health conditions specific to men. We know from our own research than men do badly in health statistics; even worse in regional and remote areas. Healthcare costs are rising at unsustainable rates and we must research more effective treatments and more efficient ways of delivering care. At our 2014 Asia-Pacific Conference, we heard from Prof Larry Goldenberg from Vancouver Prostate Centre about the importance of involving a more holistic approach to men’s health alongside prostate cancer care. We share this vision and earlier in 2013, we held a successful event, led by Board Director Bill Guest, to raise funds for a revolutionary facility targeting improved prostate cancer and men’s health care. In October 2013 we commenced the design of a large-scale research project to deliver a new model of care for prostate cancer, through a comprehensive ‘one-stop-shop’ for public patients. Laurence G Cox AO, Chairman The Australian Centre for Prostate Cancer and Men’s Health will open in Melbourne’s Parkville precinct late 2014. We intend for this bold project to provide the world with the best-practice blueprint for clinical care in prostate cancer. The Centre will develop new protocols in patient management and a holistic approach to the patient care pathway. Furthermore, we aim to integrate on-site screening, imaging, pathology and genetic analysis for patients requiring these tests. At the time of this report, we have in excess of 950 patients signed up to our online clinical care pilot - PROSTMATE. The project was officially launched to the public in November 2013 and we are excited to be leading the way in personalised, online clinical care for our area of focus. Together with the new Centre, PROSTMATE allows us to conceptualise a more efficient healthcare system where we can reduce the burden of patients presenting to physical clinics unnecessarily, through the use of technology. We also welcome a number of new staff over the past year to our growing team at Australian Prostate Cancer Research and, of course, we thank our many donors, without whom we could not pursue our unique and cutting-edge research. The coming year promises to be a landmark one not only for our organisation, but for men with prostate cancer and men’s health more broadly. 4 Laurence G Cox AO, Chairman and Prof Anthony Costello, Executive Director Prof Anthony Costello, Executive Director “The coming year promises to be a landmark one not only for our organisation, but for men with prostate cancer and men’s health more broadly. ” Statement from the CEO 2014 has been a year of dramatic changes for our organisation as well as the broader landscape of men’s health and prostate cancer care and treatment. Prostate cancer remains the second most common cancer death in Australia, a statistic that’s on the forefront of our minds as we research and develop better treatments and models of care to support Australian men and their families. Technological innovations should make it ever easier to put men in touch with their health — devices such as fitbit and the new Apple iPhone, infrared heart rate monitors and even sleep cycle and fitness tracking applications seamlessly connect consumers to their health. These advances in technology mean that the landscape of healthcare delivery will change rapidly and Australian Prostate Cancer Research has been at the forefront of these trends, launching the world first prostate cancer care program that is exclusively delivered online, including specialist consultations delivered via video chat. James Garland, CEO Australian Prostate Cancer Research is the key communication channel to clinicians and allied health professionals in prostate cancer globally. We are the hosts of the largest conference and congress in prostate cancer, attracting top specialists from the United States, Canada, Europe and the Asia Pacific. These meetings offer a fantastic network to disperse the latest key information on research outcomes and developments in treatments as well as master classes and workshops to share our expertise. We feel lucky to have been able to forge strong coalitions, alliances and partnerships at both national and international levels which have led to important milestones in prostate cancer care, such as the internationally published Melbourne Consensus on PSA Testing. We have worked tirelessly behind the scenes on the opening of our new clinic, the Australian Centre for Prostate Cancer and Men’s Health. We are fortunate to work with deeply committed Board members on achieving our goals, and we thank our Board member Bill Guest for his wonderful efforts to fundraise for our groundbreaking and innovative men’s health facility. The Centre will deliver new, evidence-based treatments to patients and we will continue to research new methodologies and incorporate them into our clinical model. Finally, I would like to give my thanks to our Chairman Laurence Cox, Executive Director Prof Anthony Costello and our Directors, as well as our donors who so generously and passionately support us. James Garland, CEO “We are fortunate to work with deeply committed Board members on achieving our goals.” 5 Our impact 950 prostate cancer patients joined PROSTMATE, our online cancer support program We acquired 7OO SQUARE METERS FUNDRAISERS RAN OVER 10,000km COMBINED IN THE 100 DAY CHALLENGE FOR AUSTRALIAN PROSTATE CANCER RESEARCH Over 600 guests ’s Parkville in Melbourne e first to establish th CENTRE AUSTRALIAN CANCER TE FOR PROSTA HEALTH AND MEN’S attended the 15th Asia-Pacific Prostate Cancer Conference in Melbourne We connected with over 3000 We managed a repository of over 36,000 individual samples from radical prostatectomies NEW FACEBOOK FOLLOWERS PROSTMATE was highly commended FOR INNOVATION AT THE AUSTRALIA AND NEW ZEALAND INTERNET AWARDS (ANZIA) PROSTMATE PROSTMATE is Australia’s first web-based, personalised support system for men and families dealing with prostate cancer, launched by Australian Prostate Cancer Research in November 2013 following a six month trial with 50 prostate cancer patients. The need for this revolutionary program was identified by men with prostate cancer who can struggle to navigate facets of their treatment. PROSTMATE is tailored to the needs of each patient, gives them access to the right information and expert advice from prostate cancer specialists at the right time. Most men don’t get to see a prostate cancer specialist nurse, a psychologist or other allied health professionals when they are diagnosed with prostate cancer and PROSTMATE will now allow anyone access to these services. PROSTMATE also offers tools to track progress, treatments and appointments and access to expert support via tele-health consultations delivered via phone or video chat. PROSTMATE has been developed by a multidisciplinary team of urologists, radiation and medical oncologists, general practitioners, nurses, allied health professionals and consumers. www.prostmate.org.au ‘Our next steps for this program include broadening reach throughout Australia and engaging more men and their families to use PROSTMATE. We also hope to further build on the clinical integration potential of the program as we see great value in this aspect of PROSTMATE for both clinicians and patients. ’ Dr. Addie Wootten, Clinical Psychologist and PROSTMATE Project Lead PROSTMATE SNAPSHOT Launch in November 2013 Personalised online support for prostate cancer patients and families Over 950 members with a quarter of members from rural and regional areas of Australia PROSTMATE was highly commended for Innovation at the 2014 Australia and New Zealand Internet Awards 7 Australian Centre for Prostate Cancer & Men’s Health Australian Prostate Cancer Research is proudly ringing in a new era in healthcare for men. The Australian Centre for Prostate Cancer & Men’s Health will launch in November 2014, setting a new benchmark for comprehensive prostate cancer and men’s health care, and addressing a massive unmet need in health support for men. Dr Joe Pereira, Operations Manager, was hired earlier in the year to source the site and develop the Centre’s facilities. Located at 14-20 Blackwood Street, next to the Victorian Comprehensive Cancer Centre in Melbourne’s health precinct, the Centre will open its doors to the public at the end of 2014. The clinic and services are tailored to suit men — including a comfortable and relaxing waiting room that offers business facilities, a meeting room and free WIFI, leather lounges and a putting green. Ten state of the art consulting rooms will be fitted to deliver a range of treatments from prostate cancer care to physiotherapy and psychological consultations. Each room also offers amazing views of the Melbourne skyline. A fully equipped gym will allow exercise physiologists and allied health staff to work with patients to improve their physical fitness and establish tailored exercise routines and fitness programs. Centre SNAPSHOT 8 14-20 Blackwood Street Onsite pathology services 700 square metres Men’s lounge waiting room 10 consultation rooms Onsite Parking 2 dedicated procedure rooms Tissue Bank and Lab ‘Taking on the development of the Australian Centre for Prostate Cancer and Men’s Health has been a rewarding and exciting professional challenge. It has been amazing to see our vision for a groundbreaking new healthcare facility for men come to life and we have reached many milestones already: from securing a fantastic centre location, finalising the designs for the layout of the centre, working with partners to fit out our state of the art consulting rooms, labs and patient areas such as the reception area, and recruiting fantastic staff. ’ Dr Joseph Pereira, Operations Manager Top left: Building exterior for the Australian Centre for Prostate Cancer and Men’s Health Top right: Joseph Pereira, Operations Manager The Guest Fundraising Dinner The Australian Centre for Prostate Cancer and Men’s Health would not be possible without the vision and determined support from our Board member and Melbourne businessman Mr Bill Guest. Along with Dr. Daniel Moon and Prof Tony Costello, Mr Guest was determined to streamline and improve the clinical pathway for public prostate patients. The collective research led to the concept of a onestop-shop model of care, tailored specifically to men. The dream: to build such a facility and research the outcomes, compared to care in the standard public system. Mr Guest hosted a special fundraising dinner in October 2013 at his residence with 70 of his friends and business partners, who collectively pledged $600,000 to kick-start the Australian Centre for Prostate Cancer & Men’s Health. Our sincere thanks to Bill, our partners and the many men who have donated at the dinner and since October 2013 for this revolutionary step forward in prostate cancer and men’s health. ‘There are a lot of people who wouldn’t be able to access the kind of treatment I was able to find, so this public health project is incredibly important. It’s a complex and confusing area of medicine. Our Centre will deliver excellence in prostate cancer care to Australian men. ’ Bill Guest, Australian Prostate Cancer Research Board member and Patron of the Australian Centre for Prostate Cancer and Men’s Health Above left: Comedian Vince Sorrenti and the Hon Peter Dutton MP Above centre: Guests enjoying the dinner Above right: Channel Nine’s Jo Hall and Board Director Bill Guest Left: Prof Tony Costello and Eddie McGuire 9 15th Asia-Pacific Prostate Cancer Conference Above left: Opening of the 15th Asia Pacific Prostate Cancer Conference; above right: Prof Tony Costello and the Hon Peter Dutton MP The Hon Peter Dutton MP, Minister for Health and Sport, welcomed over 600 delegates to the 15th Asia-Pacific Prostate Cancer Conference in Melbourne in September 2014. The Minister addressed the need for continued support of Australian men living with prostate cancer and their families. “The Government recognises prostate cancer is a major health issue – and this conference is a great opportunity for local and international experts to share views on management, treatment and latest research,” Mr Dutton said. Professor Tony Costello, Australian Prostate Cancer Research’s Executive Director, introduced and welcomed the Minister, and stressed the need for a change in prostate cancer care for Australian men and families. Professor Costello announced the creation of the Australian Centre for Prostate Cancer and Men’s Health, which the Minister will officially open in November 2014. Conference SNAPSHOT 31 August—2 September 2014 Melbourne Convention Centre Over 600 attendees 10 Opened by the Hon Peter Dutton MP Prostate Cancer World Congress announced — Cairns, Queensland 18–21 August 2015 The Prostate Cancer World Congress will take place in August 2015. It will bring together world leaders in prostate cancer presenting their expertise and current research on all areas of prostate cancer. To see the latest announcements visit www.prostatecancercongress.org.au “The Minister addressed the need for continued support of Australian men living with prostate cancer and their families.” Our research Specialist Tumour Tissue Collection for Research Pelvic Floor Study Biorepository Manager Michael Kerger collects, prepares and analyses post-operative prostatic tissue and matches the results to patients’ clinical data, capturing all relevant information. This unique project provides a high quality resource for use by medical scientists in the quest to better understand and treat men with prostate cancer. The study is a pilot randomised control trial to evaluate the effectiveness and usefulness of using an animated pelvic floor model in educating prostate cancer patients about correct pelvic floor exercise technique prior to undergoing radical prostatectomy. The study will determine if this additional education impacts their return to urinary continence. The animation was developed by the investigators and was funded by an educational grant from Tolmar. The animation series videos can be viewed on our website prostatecancerresearch.org.au Partner Program Funded by beyondblue, the Partner Program was developed by Australian Prostate Cancer Research’s Clinical Psychologist and eHealth Program Manager Addie Wootten. It is a 6 week online program testing this model for supporting partners of men with prostate cancer and assessing the benefits for participants. The partner program offers 6 modules of interactive information and exercises as well as downloadable offline exercises designed to engage partners to work through issues as a couple. There is a forum where participants are encouraged to share their experiences. We are continuing to recruit pilot participants in order to have a larger sample of pilot data which we will use to apply for further grant funding to comprehensively assess the efficacy of this intervention using a randomised controlled trial methodology. My Road Ahead My Road Ahead is an online CBT-based self-directed intervention which aims to provide experiential as well as information and psychoeducational material to men diagnosed with prostate cancer across a range of topic areas delivered across 6 modules. 144 patients were recruited and randomly assigned to the three groups. There was a significant education in psychological distress for those participants who received the program and forum as compared to those who received the program or the forum alone. The paper outlining these preliminary results has been submitted to European Urology. We intend to submit a NHMRC application for further funding to evaluate this program within the clinical setting in March 2015. Peter MacCallum Cancer Centre PROSTMATE Pilot This pilot aims to test the use of online delivery of cancer care within the Urology Department of Peter MacCallum Cancer Centre. The project investigates if PROSTMATE can be integrated into the department’s clinical model and become an accessible, equitable and effective model of care online. NeoAdjuvant Trial in Prostate Cancer This trial involves patients taking a cocktail of hormone therapy drugs aimed at dramatically reducing the presence of cancer in the prostate prior to radical prostatectomy. 11 Community support The Giving Tree Art Auction for Australian Prostate Cancer Research Mary and Fred Schepisi hosted an auction of unique works of art on 23 January 2014 at Mossgreen Auction Rooms in Melbourne to raise funds for Australian Prostate Cancer Research. The inspiration for Mary Schepisi, the driving force behind the event, was both her relationships with friends and family experiencing prostate cancer and her long-standing friendship with Australian Prostate Cancer Research’s Executive Director Professor Tony Costello. Leading Australian contemporary artists, including Vincent Fantauzzo and Chris Bond, donated works to the event. With special thanks to Mary Schepisi, Mossgreen Auction Rooms and all contributing artists. Right: Contemporary artist Darren Wardle was among the generous artists who donated work. ‘I decided to support the vitally important and life saving research of Australian Prostate Cancer Research, after my husband underwent a radical prostatectomy in 2013 and I witnessed first hand the impressive results of that research.’ Mary Schepisi 100 Day Challenge Australian Prostate Cancer Research is the recipient of funds raised by participants in the 100 Day Challenge, a fundraising concept developed by CMI Events in Melbourne. The 100 Day Challenge launched in July 2014, challenging participants to log their daily exercise kilometres to their personal dashboards on www.challenge100.org via the STRAVA app on their smartphone, raising funds for the Australian Centre for Prostate Cancer and Men’s Health. The 100 Day Challenge developed a great following on social media and has attracted teams of athletes who have come up with creative ways to raise funds – the Dedicated Wilderness Adventure Club ran 3137 kilometers collectively (the distance from Melbourne to Perth). The 100 Day Challenge concluded in October 2014. Blue September In 2014 we again partnered with Blue September, fighting cancer in men. The Blue September campaign raises money for men’s cancers and proceeds go directly to Australian Prostate Cancer Research and the Australian Cancer Research Foundation. 12 Thank you to the Blue September team for their continued partnership and fundraising efforts, allowing us to develop and deliver our programs. www.blueseptember.org.au 100 Day Challenge Ambassadors Michael Gale and Scott Cummings. Financial summary The financial report for Australian Prostate Cancer Research has been audited and a summary of the finances is represented below. For a full copy of audited financial records please contact [email protected] 0.7% 4.6% 22.1% 23.8% Revenue 2013/2014 21.8% Expenditure 2013/2014 47.4% 60.3% 11.4% 8.0% 47.4% General donations 8.0% Trust funds/grants 21.8% Congress/conference 22.1% Third party 0.7% Interest 60.3% Research projects including congress/conference 11.4% Research dissemination 23.8% Event support/Awareness 4.6% Administration 13 Our Board Mr Laurence G Cox AO, Chairman Mrs Amanda Milledge Laurie has been involved in Australian and International securities markets since 1960 and in the medical research industry since the formation of the Murdoch Children’s Research Institute in 1985. He was awarded the Order of Australia for services to the securities industry in 1996. Mandy is a former lawyer and Pro Bono Co-ordinator who now works independently in the not-for-profit arena. She is a trustee of the Collier Charitable Trust and a Director of the Lord Mayor’s Charitable Foundation. Mr Leon L’Huillier, Deputy Chair Leon is an experienced Chief Executive and Company Director and has substantial experience across a range industries, government, the not for profit sector and sport. He is a Director of ALH Group Limited, a former Director and Audit Chairman of Woolworths Limited, and a former Chairman of the Investment Board of Lend Lease Corporation. Prof Anthony Costello, Executive Director Tony is one of the leading prostate specialists internationally and is Professorial Fellow & Head of Department of Urology, The Royal Melbourne Hospital, affiliated with Department of Surgery, University of Melbourne. Tony pioneered robotic surgery in Australia. Mr Bill Guest Bill is the Chairman/Director of Guest Group. He has held many senior corporate roles and also served as Director of the Melbourne Football Club. Bill has been on the Board of CARE Australia since 2000 and is the Chair of the CARE Australia Fundraising and Communications Committee. Mr Kevin Luscombe AM 14 Kevin is Chairman of management consultants, Growth Solutions Group. His career background has covered senior corporate management and Board roles in Australia, USA, and South East Asia and most recently in Europe, and as owner and Chairman of successful marketing services companies in Australia. Mr David Shaw David is a partner at Campbell & Shaw Solicitors, and has been engaged with Australian Prostate Cancer Research since it formed its Board in 2011. David is a former AFL Commissioner and was Essendon Football Club president from 1993 to 1996, having also played in four grand finals for Essendon. Mr John Waters John has worked in the commercial legal sector for more than three decades. He was a Partner of Mallesons Stephen Jaques from 1987 until his retirement from the partnership in late 2009. He worked in the Dispute Resolution Group where he specialised in all aspects of corporate litigation. Mr Michael Andrew Michael is the former global CEO of KPMG international, member of UN partnerships forum and international business council representative. He is the current chair of the B20 anti-corruption taskforce. He has 26 years experience as a KPMG partner, is the former vice chair of the committee for Melbourne and MCC committee member. Our people James Garland, CEO James has worked in the non-government sector for over 10 years. James received a Bachelor of Commerce from the University of Melbourne and a MBA from Swinburne University. He chairs the biannual CEO forum for non-profit leaders and is a member of several non-profit organisations. Joseph Pereira, Operations Manager Joe has a PhD in Cancer and Cell Biology and a wide range of experience in scientific service management and project and facility management. Joe’s focus at Australian Prostate Cancer Research is the establishment of the Australian Centre for Prostate Cancer and Men’s Health. Addie Wootten, Clinical Psychologist and eHealth Program Manager Addie is a clinical psychologist and has worked in prostate cancer research since 2003. She has led a number of large psycho-oncology research programs and is particularly interested in online tools to support patients and their families. David Blashki, PROSTMATE Coordinator David completed a Bachelor of Health Science and held several roles in the corporate health & wellbeing industry before he joined Australian Prostate Cancer Research to coordinate PROSTMATE. Tina Shaw, Marketing Manager Tina started her career in the UK after graduating from University College London with a Master’s Degree. She worked for a variety of arts funding bodies in project management and marketing before taking on the marketing of Australian Prostate Cancer Research. Sally Marasco, Business Development Manager Sally has extensive experience in project management, fundraising and business development. She is responsible for the delivery of the Asia-Pacific Prostate Cancer Conference & Prostate Cancer World Congress and managing pharmaceutical partnerships. Jamie Wilzcek, Media Manager Jamie has 18 years experience in television and radio, specifically reporting and producing. Jamie worked in media promotion for a national not for profit organization before joining Australian Prostate Cancer Research. Kate Hatton, Partnership Manager Kate’s background is in the finance industry, she has held various positions in corporate finance and stockbroking. Kate developed an interest in the not for profit sector during her involvement with mateswithcancer. Michael Kerger, Urological Biorepository and Data Manager Michael established the urological biorepository with a focus on Prostate Cancer tissue in 2005. His focus is developing a world-leading annotated accurate high quality prostate cancer tissue resource for research. David Gray, Prostate Cancer Specialist Nurse Dave has worked in the field of urology for 6 years, has coordinated the surgical theatre lists for urological procedures and most recently worked as a specialist nurse caring for men with prostate cancer. Dave completed his Masters of Nursing (Urology & Continence) in 2012. Colin Shiel, Finance and Administration Manager Colin oversees the Financial, IT and HR function and contractual obligations for Australian Prostate Cancer Research. Colin has many years of experience within various corporate services roles across the Health Sector, Property, University Sector, Insurance and Banking. 15 Thank you for all your support AbbVie AGI & Staff Anglesea SLSC Apex Electrical Contracting Astellas Astra Zeneca Paul Auckett Glen Bartlett Deborah Bartlett-Pitt Clive Bartrouney Bates Smart Bayer Pierre Bernardi BJ Mathers Gary Black Blue September Anthony Bongiorno Jack Bongiorno Anthony Burgess Andrew Burnes Andrew Buxton Geraldine Buxton Michael Buxton Glenn Calder Campbell & Shaw Barristers & Solicitors Greg Campbell Carlo Vaccari Trust Greg Carns Andrew Cattermole Chris Chadwick Chinese Restaurateurs Assoc City Circle Demolition & Excavation Clare Cousins Architects Michael Coade Colliers International Australia Complete Traffic Services James Connell Joe Connor Frank Costa Georgina Costello Barbara Cotterell Julie Ann Cox Laurence Cox Jane Crittenden Grant Custance Clyde Davenport Colin DeLutis Bill Denton Device Technologies Diadem du Chateau Chun The Hon Peter Dutton MP Jeanie Evans Andrew Facey Family Day Bike & Car Show Charles Farquharson Ferring Pharmaceuticals FFF Ltd (Fox Classic Car Collection) William Forrest Found Design Studio Babette Francis Geoff Freeman Isaac Fried Colin Galbraith Michael Gannon Mike Gibson Barry Gilbert Godfrey Hirst Judith Gorr Mark Granter Alan Guest Bill Guest David Hains Tony Hancy Hansen Yuncken Andrew Hanson Keith Harrison John Hatfield David Hayes Laurie Heale Mark Healy David Hendy Gerard Higgins John Higgins Craig Hutchison I & S Mandie Charitable Trust Peter Ingham Intuitive Surgical Ispen Janssen J.L. 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