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UCL Institute of Neurology Queen Square The Institute of Neurology is a specialist postgraduate institute of UCL. It is closely associated in its work with the National Hospital for Neurology & Neurosurgery, University College London Hospitals' NHS Foundation Trust, and in combination they form a national and international centre at Queen Square for teaching, training and research in neurology and allied clinical and basic neurosciences. The Institute of Neurology is a key component of the newly formed Faculty of Brain Sciences at UCL, and has eight academic Departments. These encompass clinical and basic research within each theme: Brain Repair and Rehabilitation (Professor Xavier Golay); Clinical and Experimental Epilepsy (Professor Matthew Walker), Clinical Neurosciences, Royal Free campus, (Professor Tony Schapira), Imaging Neuroscience (Professor Ray Dolan); Molecular Neuroscience (Professor John Hardy), which includes the Reta Lila Weston Institute of Neurological Studies (Professor Tom Warner); Motor Neuroscience and Movement Disorders (Professor Linda Greensmith); Neurodegenerative Disease (Professor John Collinge); Neuroinflammation (Professor Ken Smith). In parallel, there are currently six Divisions representing professional affiliations: Clinical Neurology; Neurosurgery; Neurophysiology; Neuropathology; Neuropsychiatry and Neuropsychology; and Neuroradiology and Neurophysics. The Institute employs over 500 staff, occupies some 12,000 sq m of laboratory, lecture room and office space, and has a current annual turnover of £53m. The Institute receives over £33m per annum in grants for research from the principal medical charities concerned with neurological diseases, and from government agencies such as the Medical Research Council. Approximately 18% of the Institute's funding is obtained from the Higher Education Funding Council for England which has awarded high ratings for the Institute in each of the national Research Assessment Exercises since 1986. The Institute currently holds over 300 active grants, supporting research into the causes and treatment of a wide range of neurological diseases, including movement disorders, multiple sclerosis, epilepsy, brain cancer, stroke and brain injury, muscle and nerve disorders, cognitive dysfunction and dementia, and the work of the Institute's clinical academic staff is closely integrated with the Hospital's care of patients. Generous support for research is provided through grant awards from the medical research charities: in particular, the Brain Research Trust http://www.brt.org.uk Continuing the record of exceptional achievement in previous Research Assessments (RAE), the Institute performed very strongly in the 2008 RAE. Almost 100 FTE staff were submitted for evaluation, including a number of outstanding early career researchers. Overall 70% of our research was deemed to be internationally competitive or world leading, and submitted papers were very highly cited, with an average citation rate over the assessment period of 40 times per paper. Three areas of research in particular were identified as world-leading: Cognitive neuroscience & human brain imaging, Inherited diseases & molecular, cellular and genetic neuroscience, and Neurodegenerative disease. UCL Neuroscience is currently rated second in the world by ISI Essential Science Indicators, and four of the top twelve most highly cited authors working worldwide in neuroscience and behaviour are based at the IoN. In the calendar year 2012, Institute staff published more than 1180 papers, 24 book chapters and 4 books. Forty-two papers were published in the top 50 of all scientific journals (ranked by Thomson impact factors), including Science, Nature, Cell and New England Journal of Medicine. There are seven Fellows of the Royal Society at Queen Square. A number of important research centres are based at the Institute of Neurology. These include: The Leonard Wolfson Experimental Neurology Centre http://www.ucl.ac.uk/lwenc Dementia Research Centre http://www.dementia.ion.ucl.ac.uk/ Wellcome Trust Centre for Neuroimaging http://www.fil.ion.ucl.ac.uk/ MRC Prion Unit http://www.prion.ucl.ac.uk/ MRC Centre for Neuromuscular Disease http://www.cnmd.ac.uk/ Department of Health Dementias and Neurodegenerative Diseases Research Network (DENDRON) http://www.nihr.dendron.org.uk/ The Institute also has active collaborative research programmes with the Institute of Cognitive Neuroscience and the Gatsby Computational Neuroscience Unit, co-located at Queen Square and which will play an important role in the new Sainsbury Wellcome Centre for Neural Circuits and Behaviour. The UCL Institute of Neurology has a significant postgraduate teaching and training portfolio, with over 200 graduate students at Queen Square, and taught MSc courses in: Advanced Neuroimaging; Brain and Mind Sciences (an innovative two year, two centre programme); Clinical Neuroscience; and Clinical Neurology. A new distance-learning Diploma in Clinical Neurology (E-Brain) was launched in Autumn 2011. Excellent graduate students of the highest quality are recruited to both ION and UCL-wide PhD programmes, including the ION hosted MRC DTA funded 4-year PhD in Clinical Neurosciences, and the Wellcome 4-year PhD in Neuroscience, which are supported through Research Council, charity and industry funded studentships. Institute staff contribute to undergraduate teaching of clinical neurology for the UCL Medical School. Full details of the Institute’s research and teaching activity can be found on the Institute of Neurology website at http://www.ucl.ac.uk/ion UCL Institute of Neurology Department of Neurodegenerative Disease Job Description Post Clinical Research Nurse, Prion Disease Grade UCL Grade 7 Responsible to Dr Simon Mead, Consultant Neurologist/ National Prion Monitoring Cohort Coordinator Professor John Collinge, Head of Department of Neurodegenerative Disease Ms Michele Gorham, National Prion Clinic Service Manager Clinical Trials Manager Accountable to Ms Michele Gorham, Lead Clinical Nurse Specialist Prion Disease/ Service Manager The MRC Prion Unit The MRC Prion Unit is integrated into the Department of Neurodegenerative Disease at the UCL Institute of Neurology. The Unit /Department is directed by Professor John Collinge and comprises approximately 130 staff researching all aspects of prions, prion diseases and other neurodegenerative diseases. The National Prion Clinic The National Prion Clinic is based at the National Hospital for Neurology and Neurosurgery, one of the eight specialist hospitals attached to UCLH. It receives referrals from all over the country of sporadic, iatrogenic, inherited and new variant forms of prion disease. The clinic is directed by Professor John Collinge, with support from Consultant Neurologist Dr Simon Mead. In addition there are 3 medical clinical research fellows, a lead clinical nurse specialist and clinic manager, a family counselling support therapist and a team of medical and administrative secretarial staff and a part time neuropsychologist. The National Prion Monitoring Cohort The National Prion Monitoring Cohort is an observational cohort study collecting longitudinal prospective data on all patients diagnosed with or at high risk of human prion disease, regardless of whether or not they are receiving treatment. This study of these rare diseases will monitor clinical disease progression (including changes in neurological and neuropsychological rating scales) and response to therapeutic and other interventions. This cohort will help to determine the natural history of different human prion diseases including the rate of change in neurological rating scales and the most appropriate standardised outcome measures for assessing disease progression or evaluating clinical interventions. It is intended to assess potential surrogate markers for disease progression and to provide prognostic data to inform and support patients, their carers and families. University College London Hospitals UCLH is proud to be a three star NHS hospital with a reputation for innovation, delivery of NHS Plan targets and providing patient focused care. It has ambitions to be an excellent centre for clinical services, teaching and research. Based in Central London, UCLH has eight specialist hospitals, which provide care and treatment for local people, commuters and visitors to London as well as highly specialised services for patients referred from virtually every country in the world. Overview of the Role Job Summary/ Statement Patient Care, Research and Clinical Activity To contribute to the day-to-day running of the National Prion Clinic, working and communicating with the interdisciplinary team to facilitate seamless and effective care management. This will include management of patient caseload, clinical activities and procedures, clinical drug trials and infection control advice for patients based at the National in conjunction with ward staff and also patients based at other hospitals nationally and on an out patient basis. To influence patient care using a multi-faceted approach that includes clinical expertise teaching and research, and in so doing equip primary carers with the required skills and knowledge to facilitate a high standard of care to the maximum number of patients, in line with Good Clinical Practice and Infection control guidelines. To accurately record data collected according to the National Prion Monitoring Cohort, in accordance with Good Clinical Practice in Good Clinical Trials. Home visits or visits to other hospitals would be part of the responsibilities. For assessment and diagnostic visits the post holder will be accompanied by a research fellow or Consultant Neurologist. Liaison with carers, district nurses, general practitioners and other support for the patient can be a major part of ongoing involvement for staff. Specific Responsibility Clinical practice: Full assessment of patient’s Nursing needs and facilitation of same in conjunction with medical assessments and communication of same to the rest of the Multi-disciplinary team both internally and externally. Care of both inpatients at the National Hospital in liaison with ward staff and also of outpatients attending the National Prion Clinic as part of the MRC’s trial. Some home visits or visits to other hospitals would be part of the responsibilities. It is proposed that there would be two teams, a research fellow and nurse specialist, going jointly on these visits. UK driving licence desirable. Liaison with carers, district nurses, general practitioners and other support for the patient can be a major part of ongoing involvement for staff. Educational, Research To identify and agree objectives for own professional development which reflect the needs of the Prion Clinic, including CNO 10 key roles To maintain and develop own knowledge skills within the specialty through a planned approach to continuing professional development To support colleagues in the development of knowledge and skills through acting as an assessor, teacher and facilitation To identify and plan resources required for own learning and development To reflect on own practice through clinical supervision / mentorship and to develop skills as a clinical supervisor / mentor to others To maintain own and others’ awareness of relevant research evidence relating to speciality and participate in applying this to practice To contribute to the development of local evidence based standards, policies and guidelines related to the speciality To collaborate with other members of the healthcare team in relevant research and audit activities related to the speciality To identify areas of risk and poor quality, and addresses these through appropriate governance structures and forums Consultation, Collaboration To develop and maintain others’ awareness of own role within the specialty and wider organisation, maintaining mechanisms for contact and referral To participate in implementing national standards and frameworks at a local level within the speciality To provide specialist advice and support to colleagues within the organisation To maintain involvement and active input to multi disciplinary meetings and appropriate local bodies / forums to contribute to practice and service development To disseminate appropriate information to others in the speciality and wider organisation. To maintain mechanisms to support patient involvement and feedback related to the speciality. Leadership To participate in developing clinical services and research studies and collaborate with the multi-disciplinary team to achieve this To maintain appropriate channels and styles of communication to meet the needs of patients, relatives and carers, managers, peers and other professions / agencies. To use effective prioritisation, problem solving and delegation skills to manage time effectively To develop and maintain a peer network of support, information and learning with other nurse specialists at a local and national level General The postholder will: attend staff meetings and training as required; carry out any other duties as are within the scope, spirit and purpose of the job as requested by the Principal Investigators; actively follow and promote UCL policies including Equal Opportunities and Race Equality policies; maintain an awareness and observation of Fire and Health & Safety Regulations. This job description reflects the present requirements of the post, and as duties and responsibilities change/develop, the job description will be reviewed and be subject to amendment in consultation with the post holder. Other To be aware of and adhere to UCLH Trust policies and procedures: Health and Safety at Work Act; Data Protection Act 1998; Other relevant legislation and agreed practice and policy Person Specification Essential Registered Nurse – Part 1,2 or relevant section of the register Experience of teaching / assessment programme or willingness and previous experience of formal & informal teaching of patients & staff Able to demonstrate significant experience at Band 5 Demonstrates awareness of the importance of working as part of a multidisciplinary team Communicates effectively verbally, in writing and in electronic formats Communicates with patients and carers in an empathetic manner Demonstrates understanding of good practice in Customer Care Demonstrates reflective practice Demonstrates understanding of principles of Clinical Governance, e.g. Risk Management, audit and quality Experience of applying evidence based practice to clinical practice. Experience in acting as a clinical supervisor and mentor to others Demonstrates awareness of research and evidence-based practice Ability to help initiate, sustain and evaluate change Ability to prioritise own work load Acts on own initiative and problem-solves utilising resources available Ability to work across organisational and professional boundaries Committed to providing safe, effective and timely-patient-centred care in accordance with NMC code of Conduct and Trust core standards Demonstrates evidence of professional development in line with the NHS Knowledge and Skills Framework and maintains an updated portfolio Monitors and maintains health, safety and security of self and others Promotes, monitors and maintains best practice in health, safety and security Respects the privacy and dignity of the individual Understands the implications of equal opportunities in practice Desirable Relevant specialist post graduate programme Previous experience in neurology, and palliative care Completed / completing Degree in nursing Appointment The post is available immediately and is funded by the Biomedical Research Centre of UCL/UCLH to March 2015 in the first instance. Starting salary on UCL Grade 7 scale in the range £32,699 - £39,523 per annum superannuable. It will be subject to a probationary period of nine months, satisfactory references, and satisfactory health clearance by the Occupational Health Department. Annual Leave: 33 days per annum (27 days’ annual leave + 6 UCL ‘closure’ days) Hours of work: 36.5 hours per week Applications You should apply for this post through UCL's online recruitment where you can download a job description and person specification. If you have any queries regarding the application process, please contact Miss E Bertram, Personnel Manager, Institute of Neurology (email: [email protected]). Informal visits are recommended, Please contact Miss Michele Gorham [email protected] Closing Date: 31 January 2014