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PROSTATE CANCER Facilitator Guide AN INITIATIVE OF THE AKDN WORKPLACE WELLNESS PROGRAMM E Facilitator Guide Contents Overview .......................................................................................................... 3 Session delivery model............................................................................. 3 Materials and equipment....................................................................... 5 Session plan ................................................................................................... 5 Session introduction and goals ........................................................... 5 Pre-assessment test ..................................................................................... 5 Instructional video ..................................................................................... 6 Open discussion ........................................................................................... 6 Session feedback .......................................................................................... 8 Basic terminology ....................................................................................... 9 Frequently-asked questions ............................................................... 10 Reference materials ................................................................................ 14 Annex A: Pre-assessment test ............................................................ 11 Annex B: Participant feedback form ............................................ 12 An initiative of the AKDN Workplace Wellness Programme Overview This Facilitator Guide is the Workplace Wellness Champion’s primary resource for delivering an awareness session on prostate cancer. It aims to help you, the facilitator, run an awareness session in your company without the need for external support or expertise. The objective is for you and other Workplace Wellness Champions to become self-sufficient in the delivery of awareness sessions in order to scale the Workplace Wellness initiative in as many organisations, locations and contexts as possible. This Facilitator Guide contains detailed suggestions on how to conduct the awareness session and provides some additional information on the topic at hand to help you prepare and run the awareness session seamlessly and confidently. Amongst other things, this Facilitator Guide gives you: Recommendations on how to structure the awareness session on prostate cancer Suggestions of questions to stimulate discussion among participants A pre-prepared Pre-Assessment Test on prostate cancer A pre-prepared Session Feedback Form A link for downloading the Instructional Video on prostate cancer Basic terminology related to prostate cancer Frequently Asked Questions on prostate cancer Further references on prostate cancer Session delivery model The awareness session on prostate cancer is part of the WellbeingNET blended learning series on workplace wellness and general wellbeing. The awareness sessions are intended to be engaging, hands-on and highly interactive and should therefore not exceed 25 participants per session. The goal is for participants to raise their level of awareness of the topic at hand and to become motivated to share the information they gain in the awareness session with their colleagues, family members and community members. PROSTATE CANCER Facilitator Guide 3 An initiative of the AKDN Workplace Wellness Programme As the awareness session facilitator, you are responsible for organising the session at a company location and inviting participants from your company to attend. In the session, participants will watch an instructional video together, engage in group discussion, and take short self-assessment quizzes to check their level of understanding and reinforce their learning. Please note that the awareness session on prostate cancer is intended for a female audience. Awareness sessions rely on a high level of interactivity, discussion and sharing. To ensure such a high level of engagement, which is not always easy to achieve, you are encouraged to practice your general facilitation skills and to use gamification techniques, such as icebreakers and energisers. Your goal should be to make learning fun and engaging and to ensure all participants get the most out of the session. PROSTATE CANCER Facilitator Guide 4 An initiative of the AKDN Workplace Wellness Programme Materials and equipment To effectively facilitate the awareness session, you will need the following materials and equipment: Printed Self-Assessment Forms on prostate cancer (1 per participant) Computer to project the video (1) Video projector (1) White wall or screen (1) External speakers (2) Wellbeing NET Instructional Video on prostate cancer loaded onto the computer Printed Session Feedback Forms (1 per participant) Session plan Time Activity Resources 5 min Introduction and goals 5 min Pre-assessment test Pre-assessment 10 min Instructional video Prostate cancer video 15 min Open discussion 5 min Session feedback Session feedback form Total session time: 40 minutes Session introduction and goals In the session introduction, you should briefly introduce the topic that will be covered in the awareness session to make sure everyone understands what the objective of the session is. To set participants’ expectations, briefly explain how the session will be structured and how long it will take. Pre-assessment test Next, hand out the Pre-Assessment Test on prostate cancer to the participants. Give participants about 5 minutes to answer the Yes/No questions on this test. PROSTATE CANCER Facilitator Guide 5 An initiative of the AKDN Workplace Wellness Programme Pre-assessment tests play a critical role in instruction. They focus the participants’ attention on the topic and motivate them to find out more. A pre-assessment test is not an exam. Once the participants have completed the Pre-Assessment Test, move on to the next step – the Instructional Video. There is no need to review the results of the pre-assessment or the extent to which participants got answers wrong or right. The Pre-Assessment Test’s main purpose is to pique the interest of participants. The Pre-Assessment Test on prostate cancer can be found in Annex A. Answers to pre-assessment test: YES: 1, 2, 4, 5, 7, 8, 9, 10 NO: 3, 6 Instructional video A short Instructional Video on prostate cancer adapted to your audience and the needs of the Workplace Wellness Programme has been provided for you. The video is designed to be short and engaging and use relatively simple language that most can understand. It can be downloaded from Wellbeing NET at: www.wellbeingnet.org/modules/ Make sure to load the Instructional Video onto a computer ahead of the awareness session and then project it to the participants. You are encouraged to watch the video several times ahead of the awareness session in order to become familiar with its content. You are also advised to check the technical setup for the video projection ahead of time as well as on the day of the awareness session to make sure the computer, projector, speakers and Instructional Video are all working properly. Open discussion Once the participants have viewed the Instructional Video, you should lead them through a process of reflection of what they saw and how it might PROSTATE CANCER Facilitator Guide 6 An initiative of the AKDN Workplace Wellness Programme relate to them. This should take the form of an open large-group discussion and should take at least 15 minutes – or longer, if more time is available. Please be sure to take the necessary steps to create a positive atmosphere in which all participants feel at ease. Participants should feel free to ask any questions they might have. They should feel supported by the facilitator and the group throughout the awareness session. A positive environment will maximise both discussion and learning. Below are some suggested open-ended questions that may help you to begin a more open discussion around prostate cancer: 1. Was there any information in the video that surprised you? Was there any information in the video that seems contrary to what you previously knew about prostate cancer? 2. Is there anything in the video that wasn’t completely clear and that you would like to discuss further? Do you have any other questions about prostate cancer? 3. Based on what you heard in the video, who do you think is most at risk of developing prostate cancer? 4. Do you all know about your family’s cancer history, if any? Have you ever had the chance to discuss your family’s cancer history with your parents or other relatives? Discuss with the person sitting next to you what you can do to learn about your family’s cancer history. Next, let’s share some of these ideas with the whole group. 5. What steps can organisations such as ours take to promote prostate cancer prevention among their employees? 6. What role do you think each one of us can play in preventing prostate cancer, not just within our organisation but also within our communities? What can we do together to raise awareness about prostate cancer more generally? 7. Take a couple of minutes to think about the concrete steps that you can take to prevent prostate cancer in yourself and your family. Discuss these with the person next to you. Let’s then share some of these key points with the entire group so that we can all learn from each other. PROSTATE CANCER Facilitator Guide 7 An initiative of the AKDN Workplace Wellness Programme Session feedback Once you have concluded the discussion, please be sure to hand out the Participant Feedback Form which you can find in Annex B. Make sure to have enough copies printed out before the start of the session (one per participant) and to collect the completed forms at the end of the session. After collecting the forms, please access the online Wellbeing NET Feedback Form to submit the session’s information and feedback. PROSTATE CANCER Facilitator Guide 8 An initiative of the AKDN Workplace Wellness Programme Basic terminology Adherence: Closely following a given treatment plan (taking the correct dose at the correct time). Benign: Refers to a tumour that is not cancerous. Benign tumours don’t have the ability to invade nearby healthy tissue or spread to other parts of the body and are therefore much less dangerous than malignant tumours. Biopsy: Removal of a tissue sample that is then examined under a microscope to check for cancer cells. Bladder: An organ that collects and stores urine. Cancer: A group of more than 100 different diseases that can begin almost anywhere in the body, characterised by abnormal cell growth and the ability to invade nearby tissue. Cell: The basic unit that makes up the human body. Chemotherapy: The use of drugs to kill cancer cells. Chronic disease: A disease or condition that persists or progresses over a long period of time. CT scan: The abbreviated term for “computed” or “computerised axial tomography”. The test may involve injecting a radioactive contrast into the body. Computers are then used to scan for radiation and to create cross-sectional images of internal organs. Gene: A length of DNA that carries the genetic information necessary for the production of a protein. Genes are located on chromosomes and are the basic units of heredity. Immune system: System in the human body that protects the body by fighting/killing bacteria, viruses and other foreign cells. Localised cancer: Cancer that is confined to the area where it started and has not spread to other parts of the body. Lymph nodes: One of many small, bean-shaped organs located PROSTATE CANCER Facilitator Guide 9 An initiative of the AKDN Workplace Wellness Programme throughout the lymphatic system. They are important in the function of the immune response and also store special cells that can trap cancer cells or bacteria that are traveling through the body through the lymph. Malignant: Refers to a tumour that is cancerous. Malignant tumours can invade nearby healthy tissue or spread to other parts of the body. Pandemic: Refers to an epidemic that has spread over several countries or continents, usually affecting a large number of people. Precancerous: Changes in cells that may, but do not always, become cancerous. Also called pre-malignant. Prostate: A small gland, the size of a walnut, found only in males. It’s located just in front of a man’s rectum, between his bladder and his urethra and makes some of the fluid that is part of semen. Prostate gland: Walnut-sized male sex gland. It lies underneath the bladder. Radiation therapy/Radiotherapy: The use of high-energy rays (such as X-rays) to kill or shrink cancer cells. The radiation may come from a machine outside the body (external radiation) or from radioactive materials placed inside the body near cancer cells (brachytherapy or internal radiation). Remission: The disappearance of the signs and symptoms of cancer, but not necessarily the entire disease. The disappearance can be temporary or permanent. Tumour: A mass formed when normal cells begin to change and grow uncontrollably. A tumour can be benign (non-cancerous) or malignant (cancerous, meaning it can spread to other parts of the body). Also called a nodule or mass. Urethra: A little tube that carries urine from the bladder, through the penis, to the outside world. Frequently-asked questions What is prostate cancer? PROSTATE CANCER 10 Facilitator Guide An initiative of the AKDN Workplace Wellness Programme Prostate cancer is a type of cancer which affects men. It occurs when a tumour forms in the tissue of the prostate. In its early stage, prostate cancer needs the male hormone testosterone to grow and survive. What are the symptoms of prostate cancer? Most men will not experience any symptoms if prostate cancer is caught early. Some of the symptoms which men will experience include: Difficulty in having an erection Pain or stiffness in the lower back, hips or upper thighs A need to urinate frequently, especially at night Inability to urinate Weak or interrupted flow of urine These symptoms can also indicate the presence of other diseases. If there are no symptoms, how is prostate cancer detected? Most prostate cancers are first found during screening with a prostatespecific antigen (PSA) blood test or a digital rectal exam (DRE). Is a son more likely to get prostate cancer if his father had it? Genes which are inside every cell of our body are inherited from parents. Genes control how the body grows, works and what it looks like. If something goes wrong with one or more genes, it can sometimes cause cancer. Studies show that a man is two and a half times more likely to get prostate cancer if his father or brother had it, compared to a man who has no relatives with a history of prostate cancer. The chances of getting prostate cancer may be even greater if the father or brother was under 60 when diagnosed, or if the man has more than one close relative who has had prostate cancer. Does drinking alcohol increase one’s risk of getting prostate cancer? PROSTATE CANCER 11 Facilitator Guide An initiative of the AKDN Workplace Wellness Programme It is not exactly known if alcohol has a specific effect on one’s risk of getting prostate cancer. However, it is known that drinking too much alcohol can make you gain weight. Being overweight increases your risk of advanced or aggressive prostate cancer. Being overweight also increases your risk of other health problems such as heart disease and other types of cancer. Where can prostate cancer spread to? Prostate cancer can spread beyond the prostate, to the area just outside of it (locally advanced prostate cancer) or to other parts of the body (advanced prostate cancer). What is locally advanced prostate cancer? This is cancer that has started to break out of the prostate, or that might have spread to the area just outside the prostate. This might include: the seminal vesicles (two glands that sit behind the prostate and produce some of the fluid in semen) pelvic lymph nodes (part of the immune system, near the prostate) neck of the bladder back passage (rectum). What is advanced prostate cancer? This is cancer that has spread from the prostate to other parts of the body. It develops when tiny prostate cancer cells move from the prostate to other parts of the body through the blood stream or lymphatic system. Prostate cancer can spread to any part of the body, but most commonly to the bones. Another common place for prostate cancer to spread to is the lymph nodes (sometimes called lymph glands). Will I have to undergo chemotherapy? Chemotherapy is only offered if your cancer has spread beyond the prostate to other parts of the body. Chemotherapy does not get rid of prostate cancer but aims to shrink it and slow down its growth. This helps some men to live longer and can help to control or delay symptoms such as pain. PROSTATE CANCER 12 Facilitator Guide An initiative of the AKDN Workplace Wellness Programme Should I get a second opinion from a doctor who specialises in another approach? Doctors who treat prostate cancer often specialise in a particular treatment approach, which influences what they recommend. A doctor who specialises in radiation oncology, for example, is likely to recommend radiation. A surgical oncologist will feel most comfortable recommending surgery. It is advised to seek a second or even third opinion before making a decision on the treatment option. PROSTATE CANCER 13 Facilitator Guide An initiative of the AKDN Workplace Wellness Programme Reference materials 1. American Cancer Society. (2016) Prostate Cancer. Available from: http://www.cancer.org/cancer/prostatecancer/detailedguide/prostatecancer-what-is-prostate-cancer 2. CancerUK. (2016) Frequently asked questions about prostate cancer. Available from: http://prostatecanceruk.org/prostateinformation/further-help/faq 3. Globocan. (2016) Prostate Cancer Estimated Incidence, Mortality and Prevalence Worldwide in 2012. Available from: http://globocan.iarc.fr/old/FactSheets/cancers/prostate-new.asp 4. NIH Senior Health. (2013) Prostate Cancer. Available from: http://nihseniorhealth.gov/prostatecancer/faq/faqlist.html 5. Prostate Cancer Foundation. (2015) Understanding Prostate Cancer. Available from: http://www.pcf.org/site/c.leJRIROrEpH/b.5699537/k.BEF4/Home.htm 6. Prostate.com. (2016) Glossary of medical terms. Available from: http://www.prostate.com/patient/ProstateCancerTools/ProstateCancer Glossary.aspx 7. Webmed. (2016) Prostate Cancer Health Centre. Available from: http://www.webmd.com/prostate-cancer/features/prostate-cancerquestions?page=4 8. WHO. (2005) Global Action Against cancer. Available from: http://www.who.int/cancer/media/en/GlobalActionCancerEnglfull.p df?ua=1 9. World Cancer Research Fund International. (2014) Prostate cancer statistics. Available from: http://www.wcrf.org/int/cancer-factsfigures/data-specific-cancers/prostate-cancer-statistics PROSTATE CANCER 14 Facilitator Guide An initiative of the AKDN Workplace Wellness Programme PROSTATE CANCER 12 Facilitator Guide An initiative of the AKDN Workplace Wellness Programme Annex A: Pre-assessment test Take five minutes to answer yes or no to the following questions. A preassessment test is not an exam. It will help you discover what you may already know about the topic. Yes 1. Prostate cancer is a non-communicable disease. 2. The prostate is found only in males. 3. Prostate cancer is transmitted through sexual contact. 4. Prostate cancer can be prevented. 5. The risk of developing prostate cancer increases with age. 6. Prostate cancer treatments work best when the cancer is caught early. 7. Women can develop prostate cancer. 8. Decreasing the amount of fatty, greasy foods you eat can help prevent prostate cancer. 9. Adopting a healthier lifestyle, eating healthier food, and exercising regularly can all help to prevent prostate cancer. 10. Treatments for prostate cancer include surgery and radiation therapy. No An initiative of the AKDN Workplace Wellness Programme Annex B: Participant feedback form Now that you have participated in a Wellbeing NET Session, let us know how it went! Your feedback will be used to improve future sessions. 1. Date of session Example: 15 December 2016 2. Gender Mark an X in one box Male Female 3. Module Mark an X in one box Lung cancer Breast cancer Cervical cancer Prostate cancer 4. Please indicate your level of agreement with the statements below: Mark only one X per row. Neither Strongly disagree Disagree agree nor disagree I would recommend this session to a colleague The facilitator was prepared, knowledgeable and engaging I learned something in this session that will help me to change my personal behaviour 5. What did you like most about this session? Agree Strongly agree An initiative of the AKDN Workplace Wellness Programme 6. What areas can be improved for future sessions?