Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 1 Us TOO Prostate Cancer Education and Support Wm. Beaumont Hospital , Royal Oak, MI Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 2 About Us TOO No one needs to face prostate cancer alone. Us TOO provides the forum for sharing, caring and learning through its many programs and services designed for both men with cancer and their loved ones. In addition to providing education and support programs, Us TOO is an active advocate for patients. We are committed to making sure patients have access to the programs, medications, treatments and health care professionals they need for the best possible outcomes. “To know the road ahead, ask those coming back” Chinese proverb Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 3 About Us TOO Grassroots organization started in 1990 by five prostate cancer survivors 501(c)(3) not-for-profit charitable organization We are dedicated to communicating timely, reliable information, regarding early detection and treatments of prostate cancer So, informed choices may be made in a timely manner Ultimately, Us TOO strives to enhance the quality of life for all those affected by prostate cancer Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 4 Us TOO International 325 Chapter Support Groups Internationally 295 United States (44 states) 10 Canada 8 England 5 Scotland 1 each Australia Bahamas Barbados Belgium Germany India Spain Support Groups Provide: Regular meetings for men, their families & friends 2nd Tuesday of each month at 6:30pm at the Beaumont Royal Oak Administration Building We provide personal information sharing from “survivors”; including discussions on current prostate cancer topics Outside speakers & physicians provide unbiased information related to: Prostate cancer treatment options Diet, nutrition & research Mental health, coping strategies and more Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 5 Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 6 New Diagnosis Treatment Options Post-Treatment Issues Experienced a Relapse or, Advanced Disease Overview & Statistics Early Detection Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon Clinical Trials & Studies Emerging Treatments Special News for African American Men 7 Our Hot Sheet monthly newsletter highlights the latest in treatment strategies as well as emerging treatments 22,000 monthly HotSheet newsletters are distributed through our Support Groups Regular Online updates are available Also, Us TOO distributes Prostate Cancer NEWS You Can Use via email to interested subscribers. Topics highlight latest news of interest to patients and concerned others Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 8 Other Helpful Resources for Families Us TOO International 1/800/808-7866 National Cancer Institute 1/800/422-6237 Cancer Care 1/800/813-4673 Cancer Hope Network 1/877/467-3638 Cancer Information Service & Counseling Line 1/800/525-3777 Patient Advocate Foundation 1/800/532-5274 Be careful of information overload and “dot com websites” Vs “dot ORG” Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 9 Receiving the news that you or a loved one has prostate cancer is traumatizing, Life is suddenly out of control Feelings may emerge such as: Helplessness Anger Guilt Sadness Shame Fear Isolation Grief Anxiety And Possibly Blame Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 10 Monthly meetings provides peer-to-peer support for patients and families We focus on “peer support” and “patient directed care and treatment” Provide patient and family information gathering for informed decision-making This includes the need to make the “right” decision! Support also includes, Pre and Post procedure support for: Newly diagnosed patients (pre-treatment) Patients in treatment and Post treatment support And re-occurrence Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 11 Monthly meetings Includes “partnering” with a survivor with “like procedure” (pre through post treatment). Caregiver support for family members, including, wives, family members and partners. The added burden of cancer is sometimes made worse by conflicting messages from family, friends and coworkers… Positive Attitudes Only Through These Doors… Chose information carefully, i.e., Us TOO and your doctor Vs Internet sources Us TOO Volunteers also gives one-on-one support and local health fairs & community health activities Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 12 The Numbers Will Increase as The Baby Boomers Age 39 Million Baby-Boomers are aging and at risk One in 6 of the 39 million Baby Boomer men translates to 6.6 million men at risk and in need of screening, information and support. Despite advances, 30,000 deaths due to Prostate Cancer happen each year, that is 90 American men each day. Within the next 9 years (2015), we will see an increase of nearly 70% to 50,000 deaths per year. In the next 14 years, by 2020, the total number that die from PCa will be 650,000. More than the number of men killed in all US wars in the last 100 years (since 1900…642,352 deaths). Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 13 Earl Woods 74, father of Tiger Woods, dies of cancer at age 74 at his home in Cypress California. Earl Dennison Woods was born March 5, 1932, in Manhattan, Kan., raised there and went to college there — at Kansas State. He was granted a scholarship at Kansas State as a baseball catcher. At the time he was the only black athlete in the Big Seven (now the Big 12). He earned a degree in sociology in 1953, joined the Army in 1954 and stayed 20 years. He did two tours of duty in Vietnam and attained the rank of lieutenant colonel in the Green Berets. Mr. Woods had heart problems, diabetes and poor circulation in his legs. His prostate cancer returned in 2004. He passed away on May 3, 2006. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 14 A Special Message for African American Men about Prostate Cancer. Every hour in the United States, three African American men are told they have prostate cancer. In less than 100 minutes, another African American man will die from the disease. In the single decade of the 1990’s, prostate cancer killed about 350,000 men, slightly more than the entire population of Cincinnati, Ohio. Is prostate cancer a more aggressive disease in African Americans? Or, is the outcome due to medical access and treatment information? Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 15 So, what are the signs and Symptoms Early-stage prostate cancer may not be associated with any obvious signs or symptoms, or may cause symptoms that can be mistaken for those of other disorders. Most cases of prostate cancer are not detected until they have spread out of the prostate and begin to cause noticeable symptoms. The signs and symptoms of prostate cancer may include: Pelvic pain Blood in the urine Frequent need for urination Painful ejaculation & Difficult or painful urination Bone pain Loss of appetite & weight Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 16 Recommendations Establish a ‘baseline’ PSA value and get annual examinations: 1. ( Birthday, Father’s Day, or, September which is Prostate cancer Awareness Month). By age 40 for African American men and men with a family history of prostate cancer. No later than age 45 for all other men. 2. Know your PSA – Keep a record of the exact numbers, not just that it is “in the normal range?” 3. Track changes in your PSA Annual prostate exams should include: PSA (Prostate Specific Antigen) blood test, plus DRE (Digital Rectal Exam) Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon Make it a calendar event so you remember! An increase of 0.75 (25%) or more is a red flag – see your doctor for follow-up. 17 Prostate Health Recommendations Us TOO believes that following these recommendations will detect prostate cancer earlier, decrease deaths from it, and improve quality of life. Earlier detected disease is more easily and effectively treated. The benefits of early detection and treatment outweigh the cost and inconvenience of late treatment. Benefits are in the form of reduced overall cost and increased effectiveness of treating the disease. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon Preparation and communication are essential. Despite advances, 30,000 deaths due to Prostate Cancer happen each year, that is 90 American men each day. Recognizing the Baby Boom generation is entering the high incidence age, more presence in the national media is needed. There are slightly more cases of Prostate Cancer diagnosed each year than Breast Cancer (230,000 Vs. 216,000, the top two cancer diagnoses). An American man is 33% more likely to develop Prostate Cancer than an American women is to get Breast Cancer. 18 Making a Difference Together “Early Detection Is The Cure!” “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.” Margaret Mead Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 19 Caregivers Prostate cancer is a disease of the patient, the partner or spouse, and the family. While the patient experiences cancer in their body, those closest to the patient have an experience of prostate cancer that is very real. The challenges of the caregiver may not show up on a lab chart or test result, yet they are often equally painful and traumatic. Their experience can leave them feeling helpless, confused and alone. Their lives are also dramatically impacted by the diagnosis and treatment of prostate cancer. They too, experience the treatments, the doctor visits, interrupted sleep, sadness, fear and grief. Us Too Prostate Cancer Education & Support Group Beaumont, Royal Oak Rev: 5/3/2006 R. Witherspoon Caregivers Diagnosis: Diagnosis can be a very stressful and emotional time for the patient and those people who stand beside him. Days, weeks and even months later, diagnosis can feel like a blur. Information overload is very common. Treatment: Treatment can be a long and challenging process. Simply becoming aware of treatment options then making a decision can be overwhelming in itself. What is your role in treatment decisions and in HIS course of treatment? Living with Prostate Cancer: You may not have cancer in your body, yet you are experiencing cancer. You are experiencing stress, uncertainly, anxiety just like him, and this impacts your body’s well-being too. How do you cope with the uncertainty and interruption in your life? Us Too Prostate Cancer Education & Support Group Beaumont, Royal Oak Rev: 5/3/2006 R. Witherspoon Caregivers Recovery: Every patient hopes for recovery. After prostate cancer, how do you return to “normal”? Has “normal” changed? Has your relationship changed? Your outlook? Your hopes? When does hopeful living return? Advanced Disease: Sometimes recovery is not possible and the cancer progresses. Sadly, for some, thoughts of recovery turn to questions of care and hospice. How do you respond to these decisions and make peace with the potential outcome? Us Too Prostate Cancer Education & Support Group Beaumont, Royal Oak Rev: 5/3/2006 R. Witherspoon Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 23 Prostate Cancer Overview & Statistics The causes of prostate cancer are not fully understood, although it is believed that multiple factors can contribute to your overall risk, including your family background, ethnicity, diet, and environmental factors. Doctors can seldom explain why one man develops the disease and another does not. Research has shown that men with certain risk factors are more likely than others to develop prostate cancer. A risk factor is something that may increase the chance of developing a disease. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 24 Prostate Cancer Overview & Statistics Age: This is the strongest risk factor for prostate cancer. The disease is rare in men younger than 45, but the chance of getting it goes up sharply as a man ages. Family history: A man’s risk of prostate cancer is higher than average if his brother or father had the disease. Race: Prostate cancer is more common in African American men. It is less common in Asian and American Indian men. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 25 Statistics Every year over 232,090 men are diagnosed with prostate cancer, and about 30,350 die. If detected early, prostate cancer is often treatable. 1 in 6 men is at a lifetime risk of prostate cancer A man with one close relative with the disease has double the risk. With two close relatives, his risk is fivefold. With three, the chance is 97%. Two men every five minutes are diagnosed with prostate cancer. Risk begins to increase significantly at age 50 for white men and at age 40 for African-American men Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 26 Statistics African-American men are more likely than whites to develop prostate cancer, whereas many Asian populations have the lowest rates of prostate cancer. African American males have a prostate cancer incidence rate up to 60% higher than while males and double the mortality (death) rate of white males. Every 100 minutes an African American male dies from prostate cancer. Prostate cancer is the fourth leading cause of death among African American men over the age of 45. Diets high in fat may increase your risk of prostate cancer by increasing testosterone, which stimulates prostate cell growth Is prostate cancer a more aggressive disease in African Americans? Or, is the outcome due to medical access and treatment information? Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 27 The Prostate Knowing more about the prostate and prostate cancer is the first step in coming to terms with a diagnosis of prostate cancer. The following section describes the prostate and what happens in prostate cancer. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 28 Where is the prostate and what does it do? The prostate is a small gland located at the bottom of the bladder, surrounding the topmost section of the urethra, the tube that drains urine from the bladder It produces prostatic fluid It’s connected to the seminal vesicles, which produce fluid that mixes with prostatic fluid to form semen, the substance in which sperm is transported Tubes from the testicles carry sperm to the prostate where the sperm are mixed with semen Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 29 A Healthy Prostate Cells make up all of your body’s tissues and organs, including the prostate. Normally, cells within the prostate grow, divide, interact, and die to make sure the prostate functions properly. Cells within the prostate are held together tightly and when cells growing within the prostate bump into each other, they normally stop growing or die off to make room for new cells. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 30 Prostate Cancer Prostate cancer cells have lost control and grow on top of each other, forming a tumor. Cancer cells can also break away from the prostate and travel throughout your body, attach to other tissues, and continue to grow, a process called metastasis. What causes normal prostate cancer cells to become cancer cells isn’t fully understood, but it involves a disruption of the processes that control normal cell growth and death. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 31 Important Facts Every African American Should Know About Prostate Cancer. Us TOO strongly recommends that all African American men see their doctor for a digital rectal exam (DRE) and prostate specific antigen (PSA) blood test annually beginning at the age of 40 and to carefully track their PSA test score each year. An increase of 0.75 (or 25%) in your PSA score over the period of one year warrants further investigation. Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon Prostate cancer incidence and mortality rates are based on 2003-2004 estimates by the American Cancer Society 32 Us Too Prostate Cancer Education & Support Group GM Presentation 5/18.2006 R. Witherspoon 33