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The EPEC-O TM Education in Palliative and End-of-life Care - Oncology Project The EPEC-O Curriculum is produced by the EPECTM Project with major funding provided by NCI, with supplemental funding provided by the Lance Armstrong Foundation. E P E C EPEC - Oncology Education in Palliative and End-of-life Care - Oncology O Module 5 Survivorship Objectives Define cancer survivor Identify challenges and barriers for survivors Utilize practical interventions to support survivors Employ strategies for self care Video Importance of cancer survivorship numbers Cancer as chronic disease Public knowledge/involvement Definition of cancer survivor ‘Any person living with cancer anytime’ - National Coalition for Cancer Survivorship Specific concerns of cancer survivors . . . Health insurance Job loss Non-medical costs Lack of mental health providers . . . Specific concerns Emotional concerns Fear of abandonment Physical symptoms Quality of survivor Symptom control Respectful care Maintenance of social role Contributing to society Physicians and the emotional environment Emotional connectedness ‘Cheerleader’ role Guilt Reimbursement issues Survivor goals – diagnosis Acute disequilibrium Find ‘best’ care MD role – focus on clear plan Survivor goals – treatment Complete treatment Maintain independence MD role Prevent/treat side effects Provide information Survivor goals – remission Redefine ‘normal’ Psychosocial rehabilitation Re-invest in life MD role – management fear of recurrence Survivor goals – recurrence/advancing cancer Maximize sense of control Realignment of relationships Palliative care/hospice MD role Clarify plan Honest communication Recurrent / advancing disease . . . Physician communication Listen Tell patients and families what they want to know ‘There’s always something to do’ No abandonment . . . Recurrent / advancing disease Physician communication Truth Symptom management Involve patient/family in decision process Present new advances Refer as appropriate Survivor goals – end-of-life Dignity Community contribution Control emotions Find meaning Best care E P E C O Summary