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I.AM.Me. “I accept me for me!” So why can’t you? Presented by: Break the Circle of Stigma Is a peer-operated, mental health education organization, dedicated to providing self-help and recovery-oriented community programs. Break the Circle of Stigma is funded in part by the NYS Office of Mental Health through the Erie County Department of Mental Health, Spectrum Human Services and through grants, donations and fundraising efforts. I.AM.Me. Is a collaborative community partnership program between Break the Circle of Stigma and Restoration Society Inc. Contact Information: James Rohl – Director, 66 Englewood Avenue, Buffalo, NY 14214. Phone: 835-1919 ext. 21, Email: [email protected], Website: www.breakthecircleofstigma.org Restoration Society Inc. 66 Englewood Avenue, Buffalo, NY 14214. Phone: 832-2141, Website: www.restoration-societyinc.org Copyright 2008 Break the Circle of Stigma 1 I.AM.Me. “I accept me for me!” So why can’t you? A Partnership: Break the Circle of Stigma partnered with many mental health customers, staff, organizations and other community members in developing this presentation. I wish to personally thank everyone for their encouragement, support and positive influence in making this presentation possible. Jim Rohl 2 I.AM.Me. Purpose of Presentation… To increase understanding of stigma and related terminology. To increase the awareness and understanding of the subjective experiences of stigma To positively impact societal beliefs that stigma does impede recovery and quality of life. To increase understanding of how stigma impedes recovery and quality of life. To inspire, motivate and implement positive social and system reform. To encourage customers, peers, service providers and other community members to speak out against stigma, discrimination, prejudices and other social injustices. 3 I.AM.Me. Expected Outcomes… Helps to encourage clinicians and other service providers to include stigma as a verifiable goal in treatment and recovery options and expected outcomes. Helps to encourage and initiate change in public opinion by addressing how stigma impedes recovery and quality of life. Helps to encourage more individual’s with mental health diagnoses and problems to seek treatment and help. Helps organizations to create and establish new initiatives to support customers, employees, students, etc., who have a mental health diagnosis. Helps to encourage the creation of new programs, community initiatives and partnerships to address stigma and stigma related concerns. 4 I.AM.Me. Terminology and Definitions… STIGMA: 1. 2. A social process that exists of elements of labeling, stereotyping, separation, status loss, and discrimination that occurs in a power situation that allows them (Link & Phelan). A social process or related personal experience characterized by exclusion, rejection, blame or devaluation that results from experience or reasonable anticipation of an adverse social judgment about a person or group. In health related stigma, this judgment is based on an enduring feature of identity conferred by a health problem or health related condition (Weiss and Ramakrishna). INTERNALIZED STIGMA: The devaluation, shame, secrecy, and withdrawal triggered by applying negative stereotypes to oneself (Corrigan, 1998). STEREOTYPE: The belief that all members of a group possess the same characteristics or traits exhibited by some members of that group. DISCRIMINATION: Unjustifiably different treatment given to different people or groups (Manser & Thompson, eds., 1999 Combined Dictionary Thesaurus, Edburgh, Chambers). Any measure entailing a distinction among persons depending on their confirmed or suspected health status (Carael et. al., 2000). 5 I.AM.Me. Stigma Impedes Recovery by Eroding an Individual’s: SOCIAL STATUS • SOCIAL NETWORK • SELF-ESTEEM All of which contribute to poor outcomes, including: Unemployment Isolation Delayed Treatment-seeking Treatment-refractory symptoms Prolonged Course of Treatment and Recovery Avoidable Hospitalizations Information based on: University of California, Postprints, “Internalized stigma of mental illness: psychometric properties of a new measure 2003, Jennifer E. Boyd, University of California San Francisco. 6 I.AM.Me. I am not a mental illness! i am a father, a mother, a brother and a sister… i am a teacher, a construction worker, and a manager… i am an artist, a writer, a poet and a musician… i am a unique, successful and talented individual… i am Jim, Tasha, or Mary… My name is not bipolar or schizophrenia or… i am your friend, your neighbor… and, i am your equal. 7 I.AM.Me. I have Mental Illness… Mental Illness includes such disorders as schizophrenia, schizo-affective disorder, bipolar disorder, major depressive disorder, obsessive compulsive disorder, panic and other severe anxiety disorders, autism and pervasive developmental disorders, attention deficit/hyperactivity disorder, borderline personality disorder, and other severe and persistent mental health disorders that affect the brain, and subsequently the whole body. 8 I.AM.Me. I have Mental Illness… “These disorders can profoundly disrupt how I think and feel, my moods and actions, and my ability to relate to others and my capacity for coping with the demands and challenges of life.” Mental Health Disorders affect people of all walks of life…including people of different age, race, religion and income. Mental illness is not the result of personal weakness, lack of character, or poor upbringing. 9 I.AM.Me. I have Mental Illness, and… “I ACCEPT IT!” So…why can’t you? 10 I.AM.Me. Top 10 Myths About Mental Illness Misconceptions about mental illness are pervasive, and the lack of understanding can have serious consequences for millions of people who have psychiatric illness (mental illness), according to the National Alliance for Research on Schizophrenia and Depression (NARSAD). The largest not-for-profit organization raising and distributing funds for psychiatric research, NARSAD surveyed mental health professionals nationwide to determine the most common myths about mental illness. NARSAD received 102 responses from the experts, which included members of NARSAD’s Scientific Council and Psychiatrists around the country. Source: PRNewswire, October, 2001 11 I.AM.Me. Top 10 Myths About Mental Illness “Misconceptions about mental illness contribute to the stigma, which leads many people to be ashamed and prevents them from seeking help,” said Constance Lieber, NARSAD President. “Dispelling these myths is a powerful step toward eradicating the stigma and allaying the fears surrounding brain disorders.” Source: PRNewswire, October, 2001 12 I.AM.Me. Top Ten Myths About Mental Illness Myth #1: Psychiatric disorders are not true medical illnesses like heart disease and diabetes. People who have mental illness are just “crazy.” Fact: Brain disorders, like heart disease and diabetes, are legitimate medical illnesses. Research shows there are genetic, biological, environmental and developmental causes for psychiatric disorders, and they can be treated effectively. Myth #2: People with a severe mental illness, such as schizophrenia, are usually dangerous and violent. Fact: Statistics show that the incidence of violence in people who have a brain disorder is the same that it is in the general population. Those suffering from a psychosis such as schizophrenia are more often frightened, confused and despairing than violent. Source: PRNewswire, October, 2001 13 I.AM.Me. Top Ten Myths About Mental Illness Myth #3: Mental illness is the result of bad parenting. Fact: Most experts agree that a genetic susceptibility, combined with other risk factors, leads to a psychiatric disorder. In other words, mental health disorders may have a physical cause. Myth #4: Depression results from a personality weakness or character flaw, and people who are depressed could just snap out of it if they tried hard enough. Fact: Depression has nothing to do with being lazy or weak. It results from changes in brain chemistry or brain function, and medication and/or psychotherapy often help people recover. Source: PRNewswire, October, 2001 14 I.AM.Me. Top Ten Myths About Mental Illness Myth #5: Schizophrenia means split personality, and there is no way to control it. Fact: Schizophrenia is often confused with multiple personality disorder (more commonly known as Dissociative Identity Disorder). Actually, schizophrenia is a brain disorder that robs people of their ability to think clearly and logically. The estimated 2.5 million Americans with schizophrenia have symptoms ranging from social withdrawal to hallucinations and delusions. Medication has helped many of these individuals to lead fulfilling, productive lives. Myth #6: Depression is a normal part of the aging process. Fact: It is not normal for older adults to be depressed. Signs of depression in older people include a loss of interest in activities, sleep disturbances and lethargy. Depression in the elderly is often undiagnosed, and it is important for seniors and their family members to recognize the problem and seek professional help. Source: PRNewswire, October, 2001 15 I.AM.Me. Top Ten Myths About Mental Illness Myth #7: Depression and other illnesses, such as anxiety disorders, do not affect children or adolescents. Any problems they have are just a part of growing up. Fact: Children and adolescents can develop severe mental illnesses. In the United States, one in ten children and adolescents has a mental disorder severe enough to cause impairment. However, only about 20 percent of these children receive needed treatment. Left untreated, these problems can get worse. Anyone talking about suicide should be taken very seriously. Myth #8: If you have a mental illness, you can will it away. Being treated for a psychiatric disorder means an individual has in some way “failed” or is weak. Fact: A serious mental illness cannot be willed away. Ignoring the problem does not make it go away, either. It takes courage to seek professional help. Source: PRNewswire, October, 2001 16 I.AM.Me. Top Ten Myths About Mental Illness Myth #9: Addiction is a lifestyle choice and shows a lack of willpower. People with a substance abuse problem are morally weak or “bad”. Fact: Addiction is a disease that generally results from changes in brain chemistry. It has nothing to do with being a “bad” person. Myth #10: Electroconvulsive therapy (ECT), formerly known as “shock treatment,” is painful and barbaric. Fact: ECT has given a new lease of life to many people who suffer from severe and debilitating depression. It is used when other treatments such as psychotherapy or medication fail or cannot be used. Patients who receive ECT are asleep and under anesthesia, so they do not feel anything. Break the Circle of Stigma and our partners do not necessarily endorse the use of ECT. Source: PRNewswire, October, 2001 17 I.AM.Me. Some days… i am so tired i can’t get out of bed… i am so sad and i cry for no reason… i am feeling so lonely, trapped and scared… i am hopeless and feel like giving up… Artwork: Molly Rich 18 I.AM.Me. Some days… i am tired of taking I need patience in medications… finding the right meds to manage my i am tired of the side symptoms. effects… Many people need i am feeling ugly meds for various because i have reasons, right? gained so much weight… I try hard not to let the hurtful judgments i am afraid people of others stop my will find out, and recovery! then what…? 19 I.AM.Me. STOP! I am not mentally ill! i am not mentally ill, nor psycho, crazy, insane, or… i am not lazy, dumb, or retarded… i am not violent, nor am i a criminal… i am not helpless… When you label me or call me hurtful names it only makes me feel worse. Do not assume to know something about me. Ask me! Doing for me and not with me teaches me helplessness. 20 I.AM.Me. I have Mental Illness… Mental Illness is treatable. Most people with serious mental illness may need medication to help manage symptoms, but also rely on supportive counseling, self-help groups, intensive psychiatric rehabilitation, drop-in centers, rehabilitation club houses and other alternatives. Some people may require assistance with housing, vocation, income and other community services in order to achieve their highest level of recovery and to reclaim their lives so devastated by mental 21 illness. I.AM.Me. STOP! Please listen to me… Stigma is disrespect! Stigma is bigotry! Stigma is discrimination! 22 I.AM.Me. Stigma is… Stigma is not just the use of the wrong word or action, it is disrespect. Stigma is the use of negative and categorizing language to identify people with mental illness. Stigma is a formidable barrier preventing individuals and families from getting the help they so desperately deserve and need due to the fear of being discriminated against. Stigma, unveiled, is a lack of compassion and love for one another. 23 I.AM.Me. Stigma is…(con’t.) The use of this language wrongfully suggests and reinforces “social selection” or grouping. To the stigmatized person, this is a placement of disgrace; for all social categorization results in an “outcast of the norm” or illness first ideology. 24 I.AM.Me. Stigma is continued… Stigma can be choice: one’s personal and negative choice to consciously mark an individual as less than equal. Stigma is a socially induced and predetermined judgment: a mark of shame and disgrace, leading to inequality, disdain and ostracism. Stigma can also result from communication and behaviors triggered by our unconscious habits. Our choice to stigmatize often occurs do to a combination of cultural perceptions and triggers. 25 I.AM.Me. Stigma is continued… Stigma is control: thinking it is better to cast aside that which we fear or do not understand, than to let it disrupt the safe and ordered little world we need to believe exists in order to feel in control. TAKE A MINUTE TO REALLY THINK ABOUT IT! 26 I.AM.Me. Stigma fact… One in five Americans suffers from a diagnosable mental illness in any given year, yet only one-third actually receive treatment. Why? The answer is… STIGMA 27 I.AM.Me. More than just words… Stigma is the absence of love for our fellow man. Stigma is disrespect. Stigma is a personal choice to wrongfully judge another. Stigma is the use of negative labels to identify a person with mental illness. Stigma is the use of hurtful words when describing a person with mental illness. Stigma is a social virus that preys on the socially unaccepted. Stigma is so strong that it places “a wall of silence” and fear around the topic of mental illness. 28 I.AM.Me. Stigma fact… Many people would rather tell their employers that they have committed a crime and were in jail, than admit to being in a psychiatric hospital. Why? The answer is… STIGMA 29 I.AM.Me. Stigma is a barrier that also… Prevents people from being able to openly, honestly and safely discuss their issues surrounding mental illness. Discourages families and friends from seeking help for the individual due to the fear of being rejected by their neighbors and social circle. Discourages many people from remaining in treatment. Interferes with recovery by helping to establish and reinforce a belief system based on the stigmatized views of society. Discourages people from actively pursuing and achieving their goals and dreams. 30 I.AM.Me. Stigma is a barrier that also… Discourages social acceptance, inclusion and equality – leading to fear, mistrust and isolation. Stigma is reinforced by the self-perpetuating circle of misconception and fear spread throughout society. This action continuously reinforces internalized stigma and is extremely detrimental to all individuals in society. 31 I.AM.Me. Stigma results in… Fear, mistrust and violent behaviors towards individuals with mental illness. Reputed, repressed and rejected points of view directed about and towards the character of the individual. Inadequate health insurance coverage. External rejection from friends, family and church, neighbors, employers, co-workers, caregivers, etc. Discrimination and violations of our basic human rights. Violations of the “American with Disabilities Act.” 32 I.AM.Me. Stigma results in… Poor ethics, judgment, treatment, and best practices by health providers. Damage to the overall well-being of society. Loss of employment, housing, education, finances, social status, religious affiliation, and so much more… Loss of personal identity, often leading to confusion about one’s role in family and society. Feelings of rejection, loneliness, denial and depression. 33 I.AM.Me. Important fact! Four of the leading causes of disability worldwide are mental disorders. Among developed nations, including the United States, major depression is the leading cause of disability. Also near the top of the rankings are bi-polar disorder (manicdepressive illness), schizophrenia, and obsessive-compulsive disorder. The direct cost of mental health services, which include spending for treatment and rehabilitation, is approximately $69 billion in the United States. Indirect costs, which refer to lost productivity at the workplace, school, and home, are estimated at $78.6 billion. Mental Illness is Real! Source: PRNewswire, October, 2001 34 I.AM.Me. Major causes of Stigma… Lack of education and awareness of mental illness. Caused and reinforced by the media and entertainment industries. They sensationalize mental illness and often present individuals with mental illness as dangerous and violent. Stereotypes – members of society can form fixed mental pictures due to fear of the unknown, which are then held in common to all individuals. Some people choose to be ignorant. Lack of grace, faith, hope, compassion, empathy and love towards one another. 35 I.AM.Me. Major causes of Stigma… Uneasiness – stigma emerges when people feel awkward or uneasy when talking about unusual behaviors associated with some individuals who have mental illness. Fixed and prejudiced ideology transferred, or inherited from one to another. Sociological differences – culture, race, ethnicity, religion, politics, resulting in categorization, segregation, and discrimination. Culture Shock – when people are subjected or exposed to an environment without adequate preparation, stigma can and usually occurs. 36 I.AM.Me. So…are you still listening? STIGMA IS A CHOICE! MENTAL ILLNESS IS NOT! 37 I.AM.Me. How can you choose to prevent stigma… Educate yourself: Education helps to eliminate the fear associated with mental illness, paving the way for improved understanding and acceptance of all individuals diagnosed with mental illness Choosing to be better informed about mental illness will help you to resist and better evaluate the inaccurate stereotypes so common in today’s world. Obey the laws of the Americans with Disability Act (ADA): The ADA prohibits discrimination against people with disabilities in all areas of public life – including housing, employment and public transportation. Insist the media be accountable: Speak out against inaccurate and stereotyped information. Write, call or email individuals or organizations, and let them know your concerns. Provide them with accurate information to use. 38 I.AM.Me. How can you choose to prevent stigma… Be compassionate and respectful towards all people: Do not make assumptions or judgments based on misinformation or lack of knowledge. All people regardless of their disability deserve to be treated with respect, compassion and love. Never refer to people as “nuts, insane, psycho, or crazy.” These labels are dehumanizing and hurtful to the individual. Think about the person, not the label. Use language that refers to the person first, such as: Juan has bipolar disorder, or Sue has a mental illness. Never use the term “the mentally ill.” 39 I.AM.Me. How can you choose to prevent stigma… Recovering from a mental disorder is extremely difficult! Please don’t make it harder! 40 I.AM.Me. Do you now understand? Acceptance and support leads to recovery! Love the person, hate the illness! 41 I.AM.Me. How can you choose to prevent stigma… Recognize and appreciate the strengths of the person. Openly congratulate the person on his/her accomplishments. By sharing and communicating the successes and victories of individuals with mental illness with others, you are helping to positively change their mental image and attitude towards others. Our focus changes from negative or deficit based to positive and strength based. Positive support helps individuals to regain and strengthen selfesteem and confidence often lost or weakened from their experiences with mental illness. Bob is working extremely hard at his recovery! Terry returned to work after 5 years! Tremaine went back to school! 42 I.AM.Me. Communicate with others! When you communicate the acceptance, support, strengths and success of individuals with mental illness to others… You are helping to Break the Circle of Stigma 43 I.AM.Me. How can you choose to prevent stigma… Recognize the contributions to society by individuals with mental illness. Individuals with mental illness have and continue to make great contributions to society. Appreciate the “Real Life Stars” who have shown an enormous amount of courage and strength in overcoming their personal hardships. Bob has reclaimed his role of fatherhood. Marisol has overcome many barriers to her recovery and now is driven by passion and purpose. “People with Mental Illness Enrich our Lives.” (NAMI, http://www.nami.org) 44 I.AM.Me. People with Mental Illness Enrich our Lives. Abraham Lincoln – The revered sixteenth President of the United States suffered from severe and incapacitating depression that occasionally led to thoughts of suicide, as documented in numerous biographies by Carl Sandburg. Brooke Shields – Talks about her disabling post partum depression in her book “Down Came the Rain: My Journey Through Postpartum Depression.’ John Keats – The renowned poet’s mental illness is documented in “The Dynamics of Creation” by Anthony Storr and The Broken Brain: “The Biological Revolution in Psychiatry” by Nancy Andreasen, M.D. NAMI/People with Mental Illness Enrich Our Lives http:.//www.nami.org) 45 I.AM.Me. People with Mental Illness Enrich our Lives. John Forbes Nash Jr. – Has a lifetime history of schizophrenia but is now doing very well, as has been documented in the book “A Beautiful Mind” and the academy award-winning movie of the same name. Ernest Hemingway – The Pulitzer-winning novelist’s suicidal depression is examined in “The True Gen: An Intimate Portrait of Ernest Hemingway by Those Who Knew Him” by Denis Brian. Patty Duke – The Academy Award-winning actress told of her bipolar disorder in her autobiography and made-for-TV movie, “Call Me Anna” and A Brilliant Madness: “Living with Manic-Depression Illness” co-authored by Gloria Hochman. NAMI/People with Mental Illness Enrich Our Lives (http:.//www.nami.org) Schizophrenia.com (http://www.schizophrenia.com/family/Famous.html. 46 I.AM.Me. People with Mental Illness Enrich our Lives. Tremaine – Has a long-time history of anxiety and depression, but is now doing much better. He is back in school, learning new computer skills, feeling more comfortable in social settings and exhibiting confidence and leadership. Tremaine brings calm to the chaos surrounding our lives. Thank you. Rick – Has struggled long and hard to overcome many obstacles in his life and recovery, and exhibits an inner strength seldom seen in today’s world. His intellect, insight and compassion for others leads his volunteer efforts. Rick enriches the lives of those around him. Thank you. 47 I.AM.Me. I have Mental Illness…and I have a question for YOU and for OTHER people who have it too. Do You Have the Hope and Self-determination to Recover? 48 I.AM.Me. Are you determined to recover? Do you accept the fact that your mental health disorder is real? Do you have knowledge about your mental health disorder? Do you understand how your disorder is affecting your life; your feelings, thoughts, behaviors and beliefs? Do you understand how your disorder is affecting the environment around you? Do you take responsibility for your current mental state, including your symptoms? Do you use your disorder as an excuse for the problems and challenges you face in your life? Do you choose to follow the medical advice of your doctor for treatment of your mental health disorder and/or other physical problems? 49 I.AM.Me. Are you determined to recover? Do you actively participate in your treatment and recovery plan/s? Do you allow yourself to be dependent on the mental health system and other “supports” for your well-being and to make major life decisions for you? Do you partner with your doctor with regard to prescribed medication designed to help manage your symptoms? Do you search out and find out how others cope with symptoms or difficulties on a day-to-day basis? Do you learn, apply and practice coping skills and recovery strategies that you have chosen for yourself? Do you try to be a role model for other people who have mental illness and are working hard to recover? 50 I.AM.Me. Do you believe you can recover? Do you believe that you have a right to a satisfying, joyful and purposeful life? Do you believe that you can and will fulfill your desires, dreams and goals? Do you believe that you can and will recover from mental illness? Do you believe that there are people who truly want to see you succeed and are willing to help? 51 I.AM.Me. “I think…thus I believe!” Internalized stigma creates a complex set of thoughts and beliefs that negatively impacts your recovery and quality of life, examples of these effects, are… Expectations Actions Reactions Inhibitions Avoidance Loss of confidence Social withdrawal And a “Why Try” attitude” 52 I.AM.Me. “I think…thus I believe!” “Why should I even bother to try…” This attitude usually develops within a person after repeated experiences of rejection resulting in the anticipation of failure. “It seems like every time I try, I experience hurt, distress, embarrassment or humiliation.” 53 I.AM.Me. Internalized stigma can result in… Avoidance “If I started dating again she would eventually find out about my mental illness and break up with me!” Withdrawal “I think they know something is wrong with me…they gossip, avoid me, and don’t call or invite me out with them anymore! Reactions “I have an intense embarrassment about my behaviors after I come out of a state of depression, mixed state or mania.” 54 I.AM.Me. Internalized stigma can result in… Expectations “They probably thought I was mad or would do something like attack them.” Loss of Confidence “I feel there is no point in applying for jobs because my applications would fail. People like me can’t work.” Actions “When I was homeless, I think it was an advantage, because when I was homeless that’s how I got my new apartment and the most help.” 55 I.AM.Me. “Control leads to disempowerment!” “Why should I even bother, I am just too darned tired to try to fight it.” This attitude usually develops within a person after repeated experiences resulting from perceived or actual encounters of concernment, distrust, loss of control, threats or force. “I know that control is only formally taken away from me while I am subject to compulsory legal powers, usually during periods of involuntary admission to a psychiatric hospital.” “But, even when admitted on a voluntary basis, I am not really free to leave as I wish. Sometimes there is an implied or actual threat that if you try to be discharged against the advice of medical staff, you can be legally detained.” “From a provider point of view it is a mixed message of 56 blending care, concern, and force or threat.” I.AM.Me. “Where is the respect?” “Why should I even try when I am looked down upon?” This attitude usually develops within a person after repeated experiences resulting from perceived or actual encounters of disregard, being viewed as irrational or otherwise disrespected. “My views are often not taken seriously by staff and are often disregarded if they do not coincide with mental health professionals.” “My opinions are not viewed as rational because I am usually perceived as being irrational.” 57 I.AM.Me. “I feel so powerless!” “Why should I even try when no one wants to hear what I have to say?” This attitude usually develops after repeated experiences resulting from perceived or actual encounters of struggling to be heard and to make independent and substantial life changes. “So long as users of mental health services are subject to involuntary interventions in supposedly voluntary services, the power differential between consumers and professionals will remain real and continue to be an overwhelming obstacle to any kind of real equality in decision-making.” 58 I.AM.Me. Powerlessness! Power differentials often occur among mental health service providers, staff and individuals who are diagnosed with mental illness. They also occur elsewhere in the community: individuals with perceived or actual authority intentionally or unintentionally, abusing their power. People with serious mental illness can have a very difficult time being heard. Thinking and feeling as though they actually do not have the power to make real and substantial change in their lives. Discriminatory actions whether actual or perceived: discrimination tends to stick in the memory of service users and may override the benefits that treatment, rehabilitation and recovery services offer. Reinforcing self or internalized stigma which interferes or prevents free activity, expression and functioning. 59 I.AM.Me. Powerlessness can trigger… Actual or perceived powerlessness can trigger spontaneous and delayed mental, emotional, physical and spiritual reactions that interfere with treatment, recovery and positive, purposeful and lasting change. Results in negative or poor communication Confusion and loss of focus Emotionally driven communication and physical actions Increased symptoms Social and internal withdrawal (escapism, isolation) Fight or flight responses 60 I.AM.Me. Powerlessness can trigger… Actual or perceived powerlessness can trigger spontaneous and delayed mental, emotional, physical and spiritual reactions that interfere with treatment, recovery and positive, purposeful and lasting change. Habitually driven or compulsive responses such as; irrational thoughts, nail biting, fidgeting, smoking, excessive eating/not eating, gambling, pornographic viewing, drugs and alcohol. Attention seeking communication and behaviors (innate need to feel wanted, valued and desired Loss of confidence, trust, hope, belief and faith in oneself, others, treatment and other service providers. 61 I.AM.Me. I have Mental Illness…and I have another question for YOU and for OTHER people who have mental illness. Are You Contributing to Stigma? 62 I.AM.Me. How could you be contributing to stigma? Do you label, categorize, stereotype or judge other people with mental illness, yet expect people in society not to do the same to you? “I’m not like Bob, he is a schizophrenic and drug addict – and by the way…I am working hard to recover, Bob is not!” Do you blame your mental illness for the negative behaviors you choose to display to others? “It’s not my fault that I get angry or yell at others, it is just a part of my illness!” 63 I.AM.Me. How could you be contributing to stigma? Do you deny that your mental illness is real and blame it on poor upbringing, personal weakness or other factors? “I am the direct result of bad parenting and if only my parents would have done a better job I wouldn’t be having these problems.” Do you take responsibility for the symptoms associated with your individual mental health disorder? “This is just who I am – Bipolar!…you know, “mentally ill.” I get kind of crazy sometimes and do weird things, but that’s just me.” 64 I.AM.Me. How could you be contributing to stigma? Do you understand your particular mental health disorder and know how it affects your life? “The doctor doesn’t tell me anything! I don’t even know what my diagnosis is! How can I be expected to know?” Do you know what medications you are on and what they are expected to help you with? “I can’t remember what they are! Besides, I don’t even think they are working! That’s why I don’t take them all the time!” 65 I.AM.Me. How could you be contributing to stigma? Are you working hard to recover and to reclaim your life so that you can once again be a contributing member of society? “Look! I have a mental illness and will be on medication for the rest of my life. How can I be expected to go back to work? And, by the way I am on SSI/SSD and public assistance…so I have nothing to worry about!” Do you believe that learning to manage your illness requires hope, self-determination, dedication and time? The only thing I need is the right medication! Then I can get back to the way my life was. 66 I.AM.Me. Do I really affect people’s perceptions of me? Is it possible that I can negatively influence how other people perceive me? YES! Is it possible that through my actions and behaviors I leave myself vulnerable to misunderstanding? YES! Is it possible that through my actions I contribute to the stigma that encircles people with mental illness? YES…YES…YES…YES…YES…YES…YES! 67 I.AM.Me. What is YOUR Intention? CONNECTING WITH YOURSELF AND OTHERS Learning to affect positive change within yourself and others is a process of re-connecting with your natural or true self. It is a process of letting go of ego and often of control, and choosing a new path – a new intention, one driven by discipline, wisdom, love and surrender. It is through this new intention that we can successfully connect with others allowing the natural process of change to occur and be sustained. 68 I.AM.Me. Breaking the circle of stigma that surrounds people with mental illness is the…. RESPONSIBILITY OF EVERYONE! Recipients of mental health disorders Mental health treatment and recovery programs Friends and family members Media Government The entire community The entire world 69 I.AM.Me. Now do you understand? Breaking the circle of stigma, just like recovering from mental illness… REQUIRES A TEAM EFFORT! Let’s all get on the same team! 70 I.AM.Me. We can all put things right! “To put the world right in order, We must first put the nation in order; To put the nation in order, We must first put the family in order; To put the family in order, We must first cultivate our personal life; We must first set our hearts right. Confucious 71 I.AM.Me. Thank You! Break the Circle of Stigma and everyone who helped to put this presentation together, would like to thank you for the opportunity to share it with you. Special thanks to my friend and editor Dana Murphy. James Rohl Phone: 716-835-1919 ext. 21 Email: [email protected] For More Information on Stigma: AD Council – www.adcouncil.org ADS Center – www.stopstigma.samhsa.gov Break the Circle of Stigma – www.breakthecircleofstigma.org Center for Mental Health Services – www.mentalhealth.org/stigma National Alliance on Mental Illness – www.nami.org National Mental Health Awareness Campaign – www.nostigma.org 72