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ONCOLOGY 2014 Advocate Good Shepherd Hospital ANNUAL REPORT Michael B Soble, MD Introduction Commission on Cancer Guidelines Survivorship Spiritual and Social Services Clinical Trials Message from the Cancer Committee Chair Michael B Soble, MD, Chair, Cancer Committee Advocate Good Shepherd Hospital It is my responsibility and privilege to present this report of Advocate Good Shepherd Hospital’s cancer program for 2014. We continue to work to deliver the excellent care that our community and our patients deserve and demand in the form of state-of-the-art diagnostic testing and treatment. We also strive to develop programs to help people affected by cancer cope with their diagnosis and treatment. In this report, you will find data and statistics compiled by our registry about our program. You will learn about our National Accreditation Program for Breast Centers (NAPBC) certified breast program, inpatient oncology unit, and outpatient treatment center where we care for patients. There is information on the teams of professionals who care for people and their families including physicians, nurses, pharmacists, therapists, dietitians, genetic counselors, hospital administrators, and cancer registrars. We could not do the nationally recognized and honored work that we do without everybody involved. Just in 2014, we improved our program by restructuring our Nurse Navigator Program and hired two Oncology Nursing Society (ONS) certified nurses to help people make their way through the complex health care system and get the care they need. We have started to develop survivorship plans to address any physical or psychosocial effects of treatment after it is complete. We have created a program to identify psychosocial distress in patients so they can get the support they need and have developed a yoga program to go with our continuing and new support groups. We have also taken steps to ensure that genetic counseling services will remain available on site, at Advocate Good Shepherd Hospital. We have no intention of sitting still, either. We firmly believe that we must continue to improve so in 2015 we plan to study and report on the care of our patients with prostate cancer, improve and expand the services we provide to people with leukemia, lymphoma and myeloma, further expand our support programs by incorporating a meditation, stretching and flexibility class, and improve our community’s overall knowledge base by offering an “Oncology 101” class with a variety of speakers. We are going to continue to evaluate and improve accessibility to the genetic counseling services we offer, especially for people and families affected by colon cancer and other gastrointestinal malignancies. We remain dedicated to clinical research and you will find details of some of the ongoing study we are participating in. We will also continue to work with our community through Relay for Life, National Cancer Survivors Day, the American Cancer Society and a host of other programs. And we will continue to develop and mature the programs that we started this year. As always, I am extremely proud of the work done by all of the physicians and associates who care for people with cancer and the many people who have helped bring you this report. They continue to make a daily impact on people’s lives. On behalf of the Cancer Committee, please take a few moments and review the information in our report and reflect on how much it means to our community to have these services available so close to home. Thank you for your continued support. Michael B Soble, MD Chair, Cancer Committee Advocate Good Shepherd Hospital 1 Cancer Care at Advocate Good Shepherd Hospital A dvocate Good Shepherd Hospital’s Center for Cancer Care cancer program ranks among the nation’s finest for quality cancer care close to home. It is accredited as a Comprehensive Community Cancer Program by the Commission on Cancer of the American College of Surgeons. The cancer program received their 2007 Outstanding Achievement Award as one of only 66 hospitals nationwide to earn “Accreditation with Commendation” in all available standards. In 2013, Good Shepherd Hospital once again underwent the on-site survey process which resulted in “Accreditation with Commendation” in all available standards (Gold Status) thus becoming eligible for the 2013 Outstanding Achievement Award. Commission on Cancer Guidelines G ood Shepherd Hospital’s cancer program is committed to following the guidelines and standards established by the Commission on Cancer of the American College of Surgeons. Our goals are: •To provide the best possible care and support to our cancer patients and their families. •To offer the finest diagnostic, therapeutic, and surgical resources to our primary care physicians, oncologists and surgeons. •To improve our community’s health through comprehensive cancer prevention and early detection programs. Good Shepherd Hospital’s Center for Cancer Care treats cancer patients of all ages, with tumors of any type, size, and location. Its multidisciplinary team of highly skilled and caring medical and radiation oncologists, general and specialty surgeons, specialty nurses, nutritionists, genetic counselors, exercise specialists, other cancer specialists, and spiritual counselors focus on each patient’s unique physical, emotional, and spiritual needs. They work as a team with each patient and his or her family to formulate an individualized treatment plan. Along with standard cancer-fighting diagnostic and therapeutic technologies, they offer a wealth of advanced innovations and options. To learn more about Good Shepherd Hospital’s Cancer Program or for more information on cancer diagnoses, treatment, prevention, and support services, please call 1.800.3.ADVOCATE (1.800.323.8622) or visit our website at advocatehealth.com/gshp. Breast Center Receives Accreditation from NAPBC T his year the Good Shepherd Hospital Breast Center earned a full, three-year accreditation from the National Accreditation Program for Breast Centers (NAPBC), a prestigious program administered by the American College of Surgeons. The NAPBC is a non-governmental, not-for-profit organization that identifies and recognizes breast centers providing quality care in the United States. It is a consortium of national, professional organizations dedicated to the improvement of the quality of care and outcomes of women with breast diseases. To receive accreditation from the NAPBC, breast centers must undergo a voluntary, rigorous evaluation and on-site survey, and meet certain performance standards. Centers are selected based on their multidisciplinary approach to diagnosing and treating breast disease. Good Shepherd’s Breast Center was accredited based on its numerous programs focused on diseases of the breast and women’s health using a multidisciplinary approach to care. World-class surgeons, oncologists, radiologists and nurse navigators are with patients from the very beginning to ensure the patient’s treatment is integrated. 2 Cancer Program Practice Profile Reports (CP3R) Outcome Analysis Thomas Weyburn, MD Cancer Committee Member T he cancer program at Good Shepherd Hospital is committed to providing patients in the community the best in cancer diagnosis and treatment. As a nationally accredited program by the Commission on Cancer, we are held to the highest standards within the industry. As part of our accreditation, there are required performance levels on certain metrics reflected in data collected by our cancer registry which would also allow for appropriate means to address any deficiencies perceived. This allows the program to continually strive for continuous quality improvement and perform at or above the national benchmark. The quality measures for appropriate breast cancer management in 2012 are listed in the table below. These include a surveillance measure for breast conserving surgery which reflects a national trend in the increased incidence of mastectomy as opposed to lumpectomy and radiotherapy from 2011 to 2012. Image or palpation needle biopsy diagnosis of breast cancer prior to lumpectomy or mastectomy is a quality improvement measure (Standard 4.5), expected to be at or above the 80th percentile for 2012. The remaining listed measures are accountabililty measures (Standard 4.4) and expected to be at or above the 90th percentile for 2012. As reflected in the chart, Good Shepherd Hospital performs at a level exceeding expected national standards for the reported measures of breast cancer management. This continued evaluation is performed on a quarterly basis by our Cancer Liaison Physician and reported to the Cancer Committee to ensure that we continue to provide comprehensive quality care to patients in the Good Shepherd community. Estimated Performance Rates 3 Select Breast and Colorectal Measures 2006 2007 2008 2009 2010 2011 2012 Case Review Radiation therapy is administered within 1 year (365 days) of diagnosis for women under age 70 receiving breast conserving surgery for breast cancer. (BCS/RT) 100% 100% 92.7% 100% 100% 100% 98% BCS Combination chemotherapy is considered or administered within 4 months (120 days) of diagnosis for women under 70 with AJCC T1c NO MO, or Stage II or II ERA and PRA negative breast cancer. (MAC) 100% 100% 100% 100% 100% 100% 100% MAC Tamoxifen or third generation aromatase inhibitor is considered or administered within 1 year (365 days) of diagnosis for women with AJCC T1c NO MO, or Stage II or III ERA and/or PRA positive breast cancer. (HT) 95% 85.7% 87.9% 95.2% 98.2% 96.6% 97% HT Clinical Programs and Services Inpatient Oncology Unit C ancer is a life changing event and a hospitalization compounds a cancer patient’s anxiety and distress. The 4 Center oncology team recognizes the unique needs and challenges faced by cancer patients and their families. Team members strive to deliver patient centered care and our team goal is “to provide knowledgeable, comprehensive, and compassionate care that addresses the physical, psychosocial, and emotional needs of our patients and their families.” The 4 Center team is comprised of nurses, clinical technicians, care managers, dieticians, pharmacists, a nurse navigator, and social service. The clinical manager in tandem with the clinical nurse specialist guides the team in the delivery of safe, quality, evidence based care. Staff supports patients to cope with the challenges brought on by a cancer diagnosis and the side effects often experienced with treatment. Team members meet daily to coordinate care for the patient and plan for a seamless transition to the home or rehab setting. Cancer care changes at a rapid pace. New therapies and technology are constantly evolving, therefore nurses and other professionals participate in ongoing education focusing on specific cancer sites, new cancer resources, and novel treatment agents, such as targeted drug therapy designed to block the growth and spread of cancer by targeting specific molecules involved in tumor growth and progression. To insure the delivery of safe, evidence-based cancer care, all nurses that administer chemotherapy have successfully completed the Oncology Nursing Society’s Chemotherapy/ Biotherapy Course. Nearly half of the 4 Center nurses have also achieved certification in oncology nursing through the Oncology Nursing Society. This certification is the formal recognition of specialized knowledge, skills, and experience in oncology nursing. Oncology nurses educate patients on what to expect before, during and after treatment. With this new knowledge, patients are empowered to participate in their care. However, the team recognizes that patients are individuals. They respect that some patients want answers and seek information, while others just want to be heard. Staff members are trained to actively listen, take cues from patients, ask questions, and provide the best support they can. As appropriate, they use humor, share experiences, and assure patients that they are not alone. 4 Customized Treatment Teams G ood Shepherd Hospital creates a special team to address each cancer patient’s unique condition and situation. By bringing together the combined skills of specialty physicians and other professionals, we’re able to meet each individual’s personal requirements. Depending on the patient’s needs, a team might include personally selected general and specialty surgeons, medical and radiation oncologists, anesthesiologists, specialized nurses, technologists, and other clinical professionals. • Medical oncologists deliver expert and compassionate care, working closely with each patient, his or her primary care physician, and family members. • Skilled surgeons specialize in general surgery as well as thoracic, gynecologic, neurologic, urologic, head and neck, and plastic/reconstructive surgery. IORT Enhancing Recovery and Saving Lives A lthough standard breast radiation treatment for lumpectomy patients remains highly effective, it is administered five times a week for up to seven weeks following surgery, which presents a problem for some patients. Recent studies show that between a quarter and a third of lumpectomy patients avoid standard radiation because of time, distance, or accessibility problems, thereby risking recurrence and endangering their recovery. Good Shepherd Hospital’s Intraoperative Radiotherapy (IORT) System has helped overcome these problems. With IORT, patients complete their radiation therapy during their breast cancer surgery instead of afterwards— an innovation that enhances recovery and can save countless lives. “By using intraoperative radiation, patients can choose to have a lumpectomy but still receive the recommended dose of radiation therapy without disrupting their day-to-day lives.” – James Ruffer, MD Thanks to IORT, physicians can deliver targeted radiation therapy treatment directly to the tumor during surgery, immediately following a lumpectomy. This radiation technology uses a single 20-30-minute targeted dose of radiation to eliminate entirely the need for external beam radiation therapy following surgery or to reduce significantly the time frame formerly needed. The INTRABEAM® System provides patients with a targeted single-dose radiation treatment delivered intraoperatively (during surgery) after removal of the tumor. Before the surgeon closes the incision, a radiation oncologist directs the radiation to the exact area where the tumor was removed for just 20-30 minutes, and then the surgeon closes the incision. According to surgeon Barry Rosen MD, vice president of medical management at Good Shepherd Hospital and one of the first doctors on staff to use IORT during breast cancer surgery, “For many women, the challenge with breastconserving surgery is the seven weeks of radiation therapy they need following surgery. By using intraoperative radiation, patients can choose to have a lumpectomy but still receive the recommended dose of radiation therapy without disrupting their day-to-day lives.” Says radiation oncologist James Ruffer MD, “Good Shepherd Hospital chose to adopt this system because of the impact it can have on our patients’ lives. In addition to the convenience of a one-time treatment, this new system also shows additional benefits including less irritation of healthy breast tissue, minimized exposure to the chest cavity and underlying organs, and fewer skin reactions such as redness, rashes, and irritation.” Not all women are candidates for this procedure. The best candidates are those with smaller tumors that are diagnosed in the early stages of breast cancer. Of these, about 15 percent of patients may still need standard radiation, but for a much shorter time frame. 5 Patient Navigation A cancer diagnosis can be a complex and confusing time for patients and their families. The Center for Cancer Care at Good Shepherd Hospital provides care and support for patients with a cancer diagnosis and their families when they need it most. The patient navigation program ensures the comprehensive and varied cancer care services offered at Good Shepherd are accessible throughout the patient’s entire treatment process. The program is provided at no cost and consists of the following resources: • Women’s Health Navigator • Oncology Nurse Navigator •Dietician • Genetic Counselor • Lymphedema Treatment Program • Certified Physical Therapist • Resource Center •Programs/Classes • Partners with organizations for supportive services An oncology nurse navigator and women’s health navigator are available to: •Facilitate timely access to healthcare and supportive services •Provide personalized information and support treatment decisions •Provide educational materials •Collaborate to devise a plan of action to diminish stress •Provide transportation options to and from appointments •Locate facilities/services closer to the patient’s home •Attend appointments and procedures with patients •Community outreach and education •Wellness programs within Good Shepherd For more information about the navigation program, call 847.620.4760. Healing Yoga for the Cancer Survivor A s an organization committed to overall wellness, the Oncology Department partnered with the Advocate Good Shepherd Hospital Health & Fitness Center to offer a program that patients could embrace after treatment, and even during treatment if they choose. Yoga immediately came to mind. Yoga can be the ideal balance of whole body exercise, engaging the mind, breath and body all in one session. With an outstanding yoga program in place, the Fitness Center was proud to work side by side with the Oncology Department to find the right time and place for Breast Health Specialist When people discover they have breast cancer, they suddenly face a frightening and potentially life-changing experience, filled with questions and uncertainty. At a time when they need a friend and counselor, Good Shepherd Hospital’s Breast Health Specialist/Breast Navigator steps in to fill that need. Breast cancer patients and their loved ones come to know her and rely on her for information, gentle care, and support in finding their way through the challenges of treatment and recovery. Working in the hospital’s Breast Care Center, she helps patients by educating them and preparing them for a breast biopsy, staying at their side throughout the procedure, and serving as a resource to them and their families afterward. In the event of a cancer diagnosis, she remains with them, providing education about their disease and the potential next steps for treatment. 6 their patients to practice. Yoga stimulates muscles, enhances blood flow, and the breathing techniques used during practice can bring body awareness and calm. It is a wonderful, gentle way to get stronger and restore peace of mind to those who really need the reassurance that they can exercise in a meaningful way while honoring their current limitations. The classes are offered free of charge at our Fitness Center, and the participants have shared their gratitude for this program. They look forward to this weekly opportunity to focus on healing, moving, and connecting mind, body and spirit. We are proud to off this program to survivors, past, present and future. Lymphedema Program G ood Shepherd Hospital Rehabilitation Services designed and implemented an evidenced based performance improvement project for patients post breast cancer surgery. The purpose of the project was to detect early functional disability using a standardized assessment tool and provide early intervention in the form of education and or physical therapy treatment. From April 2013 to October 2014, the womens health navigator provided 94 newly diagnosed patients with breast cancer information regarding potential functional disability and invited patients to receive follow-up screening calls made by a certified Lymphedema physical therapist. Fifty nine patients received three month interval follow-up screening calls using the D.A.S.H. (Disability of the arm, shoulder, and hand) tool to detect functional deficits caused by pain, decreased range of motion, or Lymphedema. Twenty patients identified by the D.A.S.H. required Physical Therapy evaluation and treatment. The womens health navigator continues to provide education to patients post breast cancer surgery regarding potential functional deficits and need for appropriate referral to outpatient physical therapy. Survivorship and Psychosocial Care B eing newly diagnosed with cancer, or experiencing a change in treatment, can be a distressing time for patients and their families. At Good Shepherd Hospital we recognize the importance of identifying and assisting our patients with their identified stressors. Utilizing the NCCN Screening Tool for Distress Management, patients complete the tool at designated times during their care. Based on the results, patients are referred to supportive services both within Advocate Health Care and at resources within the community. The Psychosocial Support Team at Good Shepherd Hospital has been identified as: Mission and Spiritual Care, Social Work, Rehab Services, Financial Services, Nutrition Services, Genetics, Mental Health Providers, Oncology Advanced Nurse Clinician, and support groups. Good Shepherd offers several support groups for our patients: 7 • Yoga for Cancer Survivors – Weekly Yoga for Survivors • A Time to Heal – Monthly Breast Cancer Support Group • Lymphedema Support Group – Quarterly Support Group • Look Good Feel Better – ACS – Monthly Image Renewal Class Good Shepherd Hospital also works in partnership with community support services like Us Too, the American Cancer Society, Immerman Angels, and more. For more information about our psychosocial resources, call 847.620.4760. Survivorship means different things to different people, but it often describes the process of living with, through and beyond cancer. The transition from active treatment to post treatment care is critical to optimal long term health. This understanding has launched new and exciting survivorship programs which support patients and their families along the continuum of care to make them aware of follow-up care and healthy living beyond cancer. The purpose of the survivorship program is to provide continued support and assistance to cancer survivors and their families. Patients that are eligible to participate and agree to the program will have a care plan initiated by the nurse navigator at the beginning of their treatment. Upon the completion of their treatment, this information will be reviewed at the survivorship visit with the nurse navigator. This document will include a treatment summary and serve as a guide for monitoring and taking care of their health in the future. This discussion will include an explanation of possible late and long term effects of the treatment received as well as health maintenance recommended by the National Comprehensive Cancer Network (NCCN). Patients are also provided with information such as; recommended follow up tests, nutrition tips, management of physical changes, emotional health and much more. A copy of the Treatment Summary and Care Plan will be provided and sent to the primary care physician and any other physicians per patient request. No matter how it is defined, survivorship is unique for every person. Everyone has to find his or her path to navigate changes and challenges that occur as a result of living with cancer. The team at Good Shepherd Hospital is here to help. For more information regarding the Survivorship Program, call 847.620.4760. Relay for Life E ach year, a team from Good Shepherd Hospital participates in the Relay for Life in Barrington. This year the Good Shepherd Team was joined by three Advocate sites for the event. The Relay for Life is an annual event that is sponsored by the American Cancer Society. It is held to celebrate cancer survivors, remember loved ones, and raise funds to fight the disease. For more information, visit RelayForLife.org. National Cancer Survivors Day Celebration G ood Good Shepherd Hospital hosted its annual celebration of life on National Cancer Survivors Day. The theme this year was “Survivors Rock”. Attendees enjoyed an afternoon filled with music, laugher yoga, inspirational speakers, and fellowship. For more information about National Cancer Survivors Day, go to http://www.ncsd.org/. Making Strides – Good Shepherd Hospital participated in the Making Strides Against Breast Cancer walk this year. Making Strides is the largest network of breast cancer awareness events in the nation. Every breast cancer walk and event is an incredible and inspiring opportunity to honor those who have battled breast cancer, raise awareness about what we can do to reduce our breast cancer risk, and raise money to help the American Cancer Society fight the disease with research, information, services, and access to mammograms for women who need them. Pink Heals – In July, the Pink Heals Tour brought their pink fire trucks along with firefighters in matching pink uniforms to Good Shepherd Hospital. The crew delivered a message of hope and healing to cancer patients and survivors in our area. Founded in 2007, the Pink Heals organization drives pink fire trucks, police cars and ambulances across the nation, making stops to raise awareness and money to help in the fight against cancer. 8 Community members, cancer patients and cancer survivors joined the pink trucks at Good Shepherd to thank the firefighters for their show of support. In addition to visiting with the traveling firefighters, guests also signed the pink trucks which are now on their way to show support in the next stop on their tour. Pink Tea – Good Shepherd Hospital was a part of the first Pink Tea, held at Deer Path of Huntley. Deer Path is the only affordable assisted living community for adults ages 22 – 64, who are living with disabilities in the Chicago suburban area. This event was held in October to bring awareness to this community of the importance of breast health. Education was provided on self-breast exams and well as mammography. It was a time for residents to ask questions, enjoy fellowship and fun while learning how to better care for themselves. For more information, call 847.515.1800 or visit deerpath-dslf.com. Lake Barrington Shores Golf Outing – Annually, the 9-hole women’s league at Lake Barrington Shores Golf Club hold a luncheon to honor and celebrate those touched by breast cancer. This luncheon follows a round of golf. Women donate money, sell raffles tickets and have contests on a few holes with winners…closest to the hole, longest drive, longest putt made. The money collected at this wonderful event is donated to the Good Shepherd Hospital Breast Care Center. Good Shepherd staff attend this event to provide education, answer questions and provide support to all women and to promote good health and encourage women to care for themselves. Care4 Breast Cancer – Every year, Good Shepherd Hospital participates in the Family Health Partnership Care 4 Breast Cancer 5K Run/Walk held in Woodstock, Ill. The fundraiser helps to raise money to pay for mammograms, ultrasounds and biopsies when there is no other payer source identified. The money also helps to support the in-house cancer screening services (clinical breast exams) and education, as well as, special programs like Celebremos La Vida program, which provides a one stop shop for clinical breast exams and mammograms and breast health education. Each year, 300 uninsured McHenry County women receive services from the fundraiser at no cost to them. Not only is Good Shepherd Hospital a gold sponsor for the event, but the hospital also provides education about the importance of mammograms and helps answer questions about the breast exam process. A nurse from Good Shepherd Hospital’s Breast Health Center attends the event to help answer any clinical questions. This year, the Care4 Breast Cancer has raised over $145,000 and has had a recordnumber of 2,200 runners/walkers participate. To learn more, visit http://hpclinic.org. 9 Community Education, Prevention, and Support Services Good Shepherd Hospital Support Initiatives T here’s no getting away from it. A patient’s life changes after cancer treatments are completed, and so does the patient. Good Shepherd Hospital is uniquely capable of providing the physical and emotional tools each patient needs and, as a faith-based institution, the spiritual tools as well: •Our staff provides information on specific cancers and related services as well as resource materials on risk factors, risk reduction, prevention, early detection, treatment, and aftercare options. •The hospital offers a number of groups and other activities that give people vital support, companionship, and entertainment. •HUGS (847.842.4760), our dedicated cancer information phone line, enables cancer patients to speak with experts about their diseases and to get information regarding hospital cancer services, events, and support groups. •Good Shepherd Hospital’s teams participate in the annual Barrington Relay for Life event, sponsored by the American Cancer Society. •We sponsor cancer-related educational seminars and screening events for patients, families, and the community. •Our board-certified oncology chaplain provides long-term pastoral support to help patients and their families deal with cancer diagnosis, treatment, and aftercare. American Cancer Society G ood Shepherd Hospital has a long standing partnership with the American Cancer Society (ACS) in helping patients and their families cope with a cancer diagnosis. The Cancer Resource Center at Good Shepherd Hospital is filled with valuable information about the free programs and services the ACS offers. From the time of diagnosis, through the course of treatment, and even after treatment is completed, the ACS is there to offer information, day-to-day help, and emotional support. A cancer diagnosis is difficult but finding help shouldn’t be. Some of the resources and programs available to cancer patients through the ACS include: •The Reach To Recovery® program lets you talk one-on-one with a trained volunteer about breast cancer diagnosis and treatment. The volunteers are breast cancer survivors, so they know the fear and worry that comes with a diagnosis. •The Look Good Feel Better® program is a free, community-based program that helps those who are in active cancer treatment ways to cope with the appearance-related side effects of treatment. Volunteer beauty professionals and general program volunteers teach practical, hands-on tips at local group workshops. Participants learn about skin care, nail care, and hair loss. Each participant gets a free makeup kit to use during the workshop and take home. •The Wig Boutique program offers free wigs to cancer patients. This program is open to all cancer patients regardless of income or health insurance status. •Transportation for patients to and from treatment. The ACS is available 24 hours a day, seven days a week, at 1.800.227.2345 or visit them online at cancer.org 10 Social and Spiritual Services Social Services S ocial Services are staffed by licensed social workers and licensed clinical social workers who address a patient’s physical, psychological, social, and financial concerns. They are available to provide consultative services at Good Shepherd Hospital. Services are provided to cancer patients and their caregivers throughout the continuum of care and may be requested by patients, families, and any member of the inter-disciplinary healthcare team. The spectrum of services covers the support needs that result from a cancer diagnosis and helps ensure the best possible outcomes for the patient and his/her support network. Some of these needs include but are not limited to: •Behavioral Health Issues •New Cancer Diagnosis Counseling •Chronic Pain Treatment Options •Financial Issues •Guardianship Questions •Hospice & Palliative Care Needs •Legal Issues •Care Conferences •End-of-Life Concerns •Psychosocial Assessments and Counseling •Supportive Counseling and Resources Contact phone number: 847.842.4108 Treating the Mind, Body and Spirit C haplains from Good Shepherd Hospital’s Office for Mission and Spiritual Care offer spiritual and emotional support, prayer, arrangements for sacramental ministry, and contact with local faith communities. The oncology chaplains offer spiritual support for both inpatient and outpatient cancer patients of all religious traditions. Chaplains also assist patients in the preparation of advance medical directives, including the Illinois Durable Power of Attorney for Health Care, and provide consultation for ethical decision-making. Clinical Trials I n the United States, one in about eight women (12%) will develop invasive breast cancer. Breast cancer is the second leading cause of death in women. Death rates from breast cancer have been declining since 1989 and there are more than 2.8 million breast cancer survivors in the United States. The medical team at Good Shepherd Hospital has been assisting with the fight to prevent and treat breast cancer through research. Currently patients at Good Shepherd Hospital are participating a research study to determine if vitamin D deficiency may be a contributory factor to breast cancer. The aim of the study is to determine if lower levels of vitamin D are associated with more aggressive tumor type. To date, 32 patients have volunteered to be a part of the study. The study consists of a simple blood test to determine Vitamin D levels at the time women are undergoing diagnostic testing for breast cancer. Many women who have volunteered state they have agreed to participate since they have an interest in preventing breast cancer for the next generation. At Good Shepherd Hospital, 110 women have also participated in a research study to identify blood based biomarkers when undergoing a breast biopsy. Biomarkers can be utilized for enhancing the diagnosis, prognosis, and for predicting drug responses. While multiple biomarkers exist, biomarkers for early detection and increased risk remain a challenge. The goal of the study was to identify a biomarker that would reflect a functional change indicating early disease. Improved understanding of biomarkers should allow better stratification of patients to drive treatment decisions, and increase patient survival while reducing morbidity. In conjunction with the Cleveland Clinic, the Radiation Department participated in a retrospective review of patients who underwent intraoperative radiation therapy (IORT) for breast cancer. The goal was to establish a centralized North American database to allow for the examination of collected information through statistical analysis. This collective information allows for investigation, evaluation and reporting of clinical outcomes of patients who have received IORT treatment. Cancer Risk Assessment and Genetic Counseling C ancer genetic services at Good Shepherd Hospital provides consultations for individuals who may be at increased risk of developing cancer due to his or her personal or family history of cancer. Genetic counseling is provided by an American Board of Genetic Counseling (ABGC) board-certified genetic counselor, licensed by the state of Illinois. This is in accordance with the Commission on Cancer’s 2012 Cancer Program Standards for risk assessment and genetic counseling. Patients are provided with cancer genetic risk assessment and empathetic pre-test counseling, according to the evidence-based cancer guidelines published by the National Comprehensive Cancer Network (NCCN). This involves the use of pedigree analysis with available risk assessment models to determine whether a family history is suggestive of sporadic, familial or hereditary cancer. Pre-test counseling includes a conversation of why testing is being discussed, how results may impact medical management, cancer risks associated with the genetic condition(s) in question, the likelihood of a positive result, the technical aspects and accuracy of the test, economic considerations, risks of genetic discrimination and an explanation of the federal Genetic Information Nondiscrimination Act (GINA), psychosocial aspects, and confidentiality. Specifically, potential test results are discussed: true-positive, true-negative, indeterminate (or uninformative), and inconclusive (variant of unknown significance). Post-test counseling incorporates disclosure of results, a discussion of the significance of the results, an assessment of the impact of the results on the emotional state of the individual, and a discussion of medical management options. This information is communicated to the referring physician in a summary letter. In addition, identification of a gene mutation associated with a hereditary predisposition to cancer in an individual necessitates a discussion of possible risk to relatives and the importance of informing relatives. Testing options continue to expand as molecular panels using next-generation sequencing become available for hereditary cancer conditions. The specialized training in cancer genetics is ongoing, and our providers are up-to-date with this information that can greatly impact the patient and family members. For more information, contact the Division of Genetics of Advocate Medical Group at 847.723.7705. Annual Cancer Data 2013 Analytic Cancer Cases by Gender 2013 Analytic Cancer Cases by Age Male Female 4% 10% 12% 57% 21% 43% 40-49 50-59 60-69 70-79 80-89 Other 24% 29% Top 5 Analytic Cancer Sites for 2012 Good Shepherd Hospital vs the State of Illinois and the United States Cancer Site Female Breast GSH Count GSH Percent Illinois Count Illinois Percent U.S. Count U.S. Percent 196 26% 9,230 13.8% 232,670 13.9% Prostate 79 11% 8,820 13.2% 233,000 27.2% Lung 93 12% 9,100 13.6% 224,210 13.4% Colo-Rectal 65 9% 5,530 8.3% 136,830 8.2% Bladder 84 11% 3,090 4.6% 74,690 4.5% American Cancer Society 2012 Facts & Figures, Estimated New Cases Excludes basal and squamous cell skin cancers and in-situ carcinomas except urinary bladder This 2014 Annual Report is dedicated to the Cancer Committee that continues to be the backbone of the cancer program at Good Shepherd Hospital. Many thanks for their time, effort, and contributions to the delivery of quality cancer care in our community and this annual outcomes report. 2014 Cancer Committee Leadership Other Required Members Michael Soble, MD, Chairman, Medical Oncology Rabbi Jodie Futornick, Pastoral Care and Palliative Care James Ruffer, MD, Cancer Liaison Physician, Radiation Oncology Kevin Kirshenbaum, MD, Diagnostic Radiology Lanndon Rose, Cancer Program Administrator Marylou Sylwestrak, RN, OCN, Oncology Nursing Coordinators and Required Members Oliver Kim, MD, Cancer Conference Coordinator, Pathology Barb Koenig, Psychosocial Services Coordinator, Social Worker Lisa Landvogt, CTR, Cancer Registry Quality Coordinator, Cancer Program Coordinator Seth Marcus, Cancer Genetics Thomas Weyburn, MD, Medical Oncology Daniel Wool, MD, General Surgery Other Members Susan Brady, BSN, ONS, Oncology Health Navigator Julie Mayer, Community Outreach Coordinator, Director, Community Outreach Charlotte Dioguardi, BSN, Manager Breast Center and NAPBC Accreditation Mary Roesch, Quality Improvement Coordinator, Director, Quality Management Robert Flanigan, MD, Honorary Physician and Community Representative Bonnie Schleder, RN, Clinical Research Coordinator, Research Trent Gordon, Business Development Jody Hagestedt, Rehabilitation Services Jason Jahnke, Regulatory Patty Jasonowicz, Rehabilitation Kary Muller, American Cancer Society Herbert Reisel, MD, Medical Oncology Diana Rizzo, Cancer Registrar (CTR) Barry Rosen, MD Hospital Administration and General Surgery Katie Sobeski, Cancer Registry Assistant Gretchen Vanderbosch, Dietician Heidi Wiltse, BSN, ONS, Women’s Health Navigator 450 West Highway 22, Barrington, IL 60010 advocatehealth.com/gshp 1/15 MC-2503