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NEWSLETTER Issue No 14—April 2013 www.gha.net.au/grics INSIDE THIS ISSUE: Prostate Cancer Roadshow 2 GRICS Strategic Plan 3 MDT and CHARM 4 GRICS Breast Cancer Conference 5 Upcoming Mee'ngs 5 Conference Presenta'ons 6 Stomal Online Package 7 Management of Febrile Neutropenia 8-10 Melanoma Project and HHF ICT Project 11 Adolescent and Young Adult News 12 Lymphoedema Prac''oners 13 Out and About— 14-15 Health Professionals Consumers 16-17 GRICS Postal Address: PO Box 424 Traralgon Vic 3844 Website: www.gha.net.au/grics Phone Number: 5128 0138 Fax Number: 5128 0198 Victorian Integrated Cancer Services Inaugural Conference 2013 Connec.ng care, driving best prac.ce and improving pa.ent outcomes We are delighted to invite you to a=end the Inaugural Victorian Integrated Cancer Services conference to be held at Rydges Melbourne (on Exhibi'on Street) from 13- 14 May 2013. This inaugural conference of the nine Integrated Cancer Services will be a forum for showcasing exci'ng work and developments across all aspects of cancer care in Victoria. The ICS are formal partnerships between health services that were formed in 2005 and represent Victoria’s cancer clinical network. The ICS aim to work with consumers, clinicians and health service managers to improve the planning and delivery of cancer care so that it is coordinated, appropriate and effec've. This two day conference will feature pa'ent focused, system focused and innova'on streams. Invited speakers include: Phyllis Butow NHMRC Senior Principle Research Fellow at the School of Psychology, University of Sydney NSW Chan Chea Consumer, Southern Melbourne Integrated Cancer Services Jon Emery Winthrop Professor of General Prac'ce at the University of Western Australia Anna Ugalde Centre for Pallia've Care St Vincent’s Hospital Melbourne Kerry Reid Searl School of Nursing and Midwifery CQUniversity Queensland Beth Wilson Consumer Former Victoria’s Health Services Commissioner To register and see the final program go to www.vics2013.org Page 2 Issue No 14—April 2013 www.gha.net.au/grics The Prostate Cancer Rural Educa.on Roadshow Gippsland Regional Integrated Cancer Services (GRICS) is proud to be working with the Prostate Cancer Founda'on of Australia (PCFA) to bring the prostate cancer rural educa'on road show to Bairnsdale on Wednesday the 28th of August 2013. GRICS was formed through a division of the Department of Health in 2004. The aim of GRICS is to work in collabora'on with health services throughout Gippsland to con'nually improve the service outcomes and experience of pa'ents across the Gippsland region. GRICS key areas of interest include improving care coordina'on, suppor'ng mul'disciplinary care, implemen'ng suppor've care approaches and reducing unwanted varia'on in care. In April 2012 the PCFA introduced the posi'on of a prostate cancer specialist nurse into Gippsland located at Latrobe Regional Hospital. Kelly Koschade is now coming up to her first year in the posi'on. Kelly plays an integral role in educa'ng and suppor'ng men and their families through varying aspects of their cancer journey. Kelly provides men with a central point of contact where they can have their ques'ons and concerns heard and be offered expert support and advice. Together GRICS and the PCFA are excited to be involved in the delivery of the prostate cancer educa'on road show in Bairnsdale to both health care professionals and the general public. This will be an opportunity not to be missed as the relevant informa'on will be provided from experts and specialist alike in the field of prostate cancer including a medical oncologist, urology surgeons and specialist care nurses. Further informa'on regarding the general outline of topics to be covered, 'ming of the sessions and venue loca'on are s'll to be confirmed. You will be updated with this informa'on in the near future. Un'l then if you have any ques'ons or queries regarding the prostate cancer educa'on road show please don’t hesitate to contact either Tennille Lewin at [email protected] or on (03) 5128 0138 or Kelly Koschade on (03) 5173 8713. Page 3 Issue No 14—April 2013 www.gha.net.au/grics GRICS Strategic Plan GRICS is currently working to develop their Strategic Plan for 2013-15. This work will clearly define the direc'on for GRICS over the next three years as we con'nue to work towards enhancing and improving cancer care across the Gippsland region. Seeking input from our stakeholders into the forma.on of the GRICS Strategic Plan is an important part of this process. GRICS believes stakeholder input is cri'cal to ensure the priori'es of our Strategic Plan are relevant, meaningful and connected to the direc'ons and aspira'ons of our primary stakeholders and broader community. Why is a Strategic Plan important? The priori'es defined within the Strategic Plan will outline the key themes and major focus areas for GRICS over the period 2013-2015. These priori'es will form the founda'on of how GRICS con'nues to engage with and strengthen exis'ng rela'onships with its stakeholders, pursue new partnerships as well as deliver on key service improvement objec'ves for regional cancer pa'ents over this period. What informa.on are we seeking? We are working to ensure the Gippsland plan is based on a thorough understanding of what is most important to our region as well as the environmental factors that influence how we operate. In par'cular, we need to take into account the specific and unique strengths, issues, challenges and opportuni'es relevant to Gippsland in the provision of cancer care and support services. We also wish to obtain input about the rela've importance and priority of ac'on areas across a range of key themes rela'ng to how GRICS operates in strengthening rela'onships, building capacity and connec'ng care. How can you help? Taking 20 minutes to consider your thoughts and perspec'ves to the ques'ons in a survey would be greatly appreciated. A copy of this survey is available by contac'ng GRICS on 03 5128 0137 or alternately email Enza Wright at [email protected]. The informa'on obtained from this survey process will be integrated with the work done to date in establishing key direc'ons of the Strategic Plan. Responses to the survey will be collated and reported to GRICS by stakeholder group only. Please note, all responses to the survey will remain anonymous and confiden'al. What is the comple.on date of the survey? All responses to the GRICS Strategic Plan survey must be received by close of business 24th May 2013. Page 4 Issue No 14—April 2013 www.gha.net.au/grics Mul.-disciplinary Team Mee.ngs Mul'disciplinary care has seen a significant amount of change over the past six months and will con'nue to do so in the future. The surgical MDC mee'ng that is hosted weekly at Latrobe Regional Hospital has recently seen the introduc'on of a Quality and Governance commi=ee that now meets bi-monthly. This commi=ee is chaired by the GRICS Medical Director, Dr John Scarle= and is made up of key stakeholders from all relevant disciplines. The commi=ee members from key disciplines including pathology and radiology are focussed on iden'fying areas for improvement and undertaking projects to con'nually strive for best prac'ce when providing mul'disciplinary care to pa'ents in Gippsland. The achievements of this commi=ee so far include increasing the length of the MDC mee'ng to an hour every week which allows for a larger number of pa'ents to be thoroughly discussed, the number of pa'ents able to be presented each week has increased to ten. Another achievement of the commi=ee includes the proficient flow of pa'ent informa'on required for appropriate decision making. For pa'ents with breast cancer this has been significantly improved with the implementa'on of data sharing processes between BreastScreen Victoria and Regional Imaging Limited. This model of quality improvement will soon be introduced to the lung MDC hosted at Central Gippsland Health Service (CGHS). The lung MDC hosted at CGHS with the help of Patricia Minter, Cancer Liaison Project Officer (a GRICS funded posi'on), has also had a significant number of changes recently. The lung MDC has increased its frequency to meet twice a month to be able to keep up with the number of pa'ents being referred into the service. The lung MDC has also recently engaged the regular a=endance of a pallia've care consultant and pathologist to ensure that lung cancer pa'ents in the region have access to mul'disciplinary care that provides a standard of care that meets best prac'ce standards. The pa'ent management system used across the region for the administra'on of the MDC mee'ngs is currently undergoing an in-depth review with the hope that an extensive upgrade of the programs capabili'es, user ability and data repor'ng will be able to be undertaken by the programing company. This will enable improved management of pa'ents across varying MDC’s held in the region to improve pa'ent care planning and follow up management . CHARM CHARM is an electronic chemotherapy prescribing program that has been funded by GRICS and the Department of Health. The project will be undertaken by the Gippsland Health Alliance (GHA) and implemented in all five chemotherapy day units in Gippsland. The ini'al stages of CHARM are well under way with the project manager from GHA (Herman Lau) and a member of the GRICS team (Tennille Lewin) a=ending the CHARM Health project officer training in Brisbane over three days in early February. Since their return from the training they have completed workflow process mapping of the five sites across the disciplines of administra'on, nursing, medical and pharmacy to allow for future state workflows to be developed with the inclusion of CHARM. Many key stakeholders have already been engaged in the ini'al stages of the project, although their involvement will increase over the period of the project. The next vital steps in the project include developing clinical advisory groups for each of the above men'oned disciplines to undertake extensive review of how CHARM is going to be used across the region. There will be plenty of opportunity for all relevant health sites to be involved in the implementa'on of this project and the team is excited to be working with the experienced staff to get the most out of this program. The implementa'on of CHARM aims to improve pa'ent safety around the administra'on of chemotherapy, improve medica'on safety for staff and pa'ents alike as well as streamline processes throughout Gippsland to ensure that evidence based prac'ce is achieved in all areas of chemotherapy administra'on. GRICS would like to thank all stakeholders involved in the project to date. Page 5 Issue No 14—April 2013 www.gha.net.au/grics GRICS Breast Cancer Conference The GRICS Breast Cancer Conference held on 22 February 2013 was a great success based on the very posi've feedback received from registrants. A total of 115 health professionals a=ended, represen'ng 26 health services across Gippsland. Speakers covered a diverse range of topics from diagnosis through to pallia've care. Thank you to the speakers: Dr Meenakshi Padmanabhan, Dr Phillip Jayasurya, Mr Cyril Tsan, Mr Eldon Mah, Dr Sachin Joshi, Dr Mahshid Jalilian, Maree O’Connor, Dan Mellor, Natalie Goroncy, Liz Crocker, Dr. Carrie Lethborg, Michelle McKimmie and Jenny Turra. Displays provided by Smith and Nephew, Amgen, Breast Cancer Network Australia, BreastScreen Victoria and Breacan added another dimension to the conference and registrants made the most of having the opportunity to talk to representa'ves from these organisa'ons. Other organisa'ons kindly provided plenty of show-bag reference materials. Registrants enjoyed the opportunity to network in the spacious areas of the Esso BHP Billiton Wellington Entertainment Centre in Sale. GRICS would like to thank everyone who supported the conference. Below: Mr Eldon Mah, Mr Cyril Tsan and Mr David Chan Above: Laura Flahavin and Miriam Newman with Yvonne and Ben from Smith & Nephew Above: Fiona McRae from BreaCan with Catherine Enter, McGrath Breast Care Nurse Upcoming Mee.ngs May 2013 Every Friday 7.45am to GRICS Surgical MDT mee'ng—Tutorial Room One Monash Building Latrobe 8.30am Regional Hospital—video conference available Tuesday 7th and 21st 8.00am to Lung MDT mee'ng Central Gippsland Health Service Tele health room Monash 8.45am Building—video conference available Thursday 9th 5.30pm to GRICS Haematology MDT mee'ng—Tutorial Room One Monash Building Latrobe 6.30pm Regional Hospital—video conference available June 2013 Every Friday 7.45am to GRICS Surgical MDT mee'ng—Tutorial Room One Monash Building Latrobe 8.30am Regional Hospital—video conference available Tuesday 4th and 18th 8.00am to Lung MDT mee'ng Central Gippsland Health Service Tele health room Monash 8.45am Building—video conference available Thursday 6th 5.30pm to GRICS Haematology MDT mee'ng—Tutorial Room One Monash Building Latrobe 6.30pm Regional Hospital—video conference available Page 6 Issue No 14—April 2013 www.gha.net.au/grics Conference presenta.ons 14th Na.onal Breast Care Nurse Conference Kerrie Missen, GRICS Cancer Services Improvement Coordinator presented at the 14th Na'onal Breast Care Nurse Conference on 28 February 2013. The presenta'on provided the audience with informa'on on the lymphoedema project undertaken by GRICS between 2010–2012. This project resulted in 12 Gippsland health professionals trained as Level 1 Lymphoedema prac''oners, one prac''oner trained at Level 2, and the implementa'on of the GRICS Lymphoedema Prac''oner Network, to provide ongoing support to all Lymphoedema Prac''oners in Gippsland. If you would like more informa'on on this project please contact GRICS. Kerrie Missen, Louise Cristofaro and Spiridoula Galetakis at the Victorian Integrated Cancer Services display at the conference. Survivorship Conference Michelle McKimmie, GRICS Cancer Services Improvement Coordinator, presented two posters at the Survivorship Conference in Adelaide on 2-3 February 2013. The first poster presented on behalf of GRICS and Gippsland Lakes Community Health was 'tled ‘Addressing the needs of survivors with lymphoedema - a transferrable model for providing lymphoedema services in a regional context’ provided informa'on on the lymphoedema project, in the context of survivorship. The second poster presented on behalf of GRICS was 'tled ‘Engaging with Survivors—A Regional Par'cipa'on Strategy’. If you would like a copy of the Lymphoedema handout please contact Kerrie Missen at GRICS on [email protected] or 0351 280062 or a copy of the Engaging with Survivors handout please contact Michelle McKimmie at GRICS on [email protected] or 0351 280059. 39th AASTN Conference Hobart was the des'na'on for Linda Raymond when she presented on behalf of GRICS, Latrobe Regional Hospital and Central Gippsland Hospital at the 39th Australian Associa'on of Stomal Therapy Nurses Conference on 22 March 2013. The 'tle of Linda’s presenta'on was ‘Mee'ng the challenge to educate non-stomal therapy nurses (NSTNs) on stoma care’, which described the project to develop the on-line self-directed stomal therapy care learning package. The presenta'on generated a lot of interest from the audience. As a result of this presenta'on, GRICS was contacted by a stomal therapist from a health service in Brisbane, who thought the package was “brilliant” and intends to u'lise the package in this Queensland health service. You can access this package easily – please refer to the following page for further details. Linda Raymond presen+ng at the AASTN Conference Page 7 Issue No 14—April 2013 www.gha.net.au/grics Self-directed learning package available on-line!!! Care of the Faecal or Urinary Stoma Gippsland Regional Integrated Cancer Services (GRICS) and Nurse and Midwife Educa'on Gippsland in conjunc'on with Latrobe Regional Hospital (LRH) and Central Gippsland Health Service (CGHS) would like to remind people that this learning package is available on-line. It can be accessed via: h=p://www.onwebfast.com/drug/login.htm Self Directed Learning Packages ‘Stomal Care’ (If you have any problems accessing this site, please contact your Nurse Educator) General access to the tutorial only, and not the competency, is available via the GRICS Website: www.gha.net.au/grics This package has been wri=en by LRH and CGHS Stomal Therapy Nurses for NON Stomal Therapy Nurses and other health professionals. It will help you to trouble-shoot some of the more common issues associated with stomas. • How to get the ‘right fit’ of an appliance • Allergies and sensi.vi.es • Excoria.on • Ulcera.on • Irregular shape • Hypergranula.on • Stenosis • Fungal infec.on • Hernia.on • High or Low Output For more informa'on go the GRICS Website: www.gha.net.au/grics or contact GRICS on 03 5128 0138. Links to the learning package have also been established on the Australian Government Cancer Learning website h=p://www.cancerlearning.gov.au/find/colorectal_ts.php#management_and_support_aTer_and_between_treatment and the Australian Associa.on of Stomal Therapy Nurses website h=p://www.stomaltherapy.com/reference_materials.php Change and disadvantage in regional Victoria: an overview Prepared by: The Policy and Strategy, Department of Planning and Community Development (DPCD). May 2011 Five reports providing an overview of disadvantage within each of Victoria’s regions including Gippsland are available. Each report contains maps of disadvantaged suburbs and towns and accompanying informa'on that describes the popula'on makeup of those towns. The separate region reports are available on the DPCD website: h=p://www.dpcd.vic.gov.au/home/publica'ons-and-research/urban-and-regionalresearch/Regional-Victoria/chnage-and-disadvantge-in-regional-victoria Page 8 Issue No 14—April 2013 www.gha.net.au/grics Immediate Management of Febrile Neutropenia / Neutropenic fever Febrile neutropenia is a medical emergency. Pa'ents receiving cancer treatment who develop a temperature of 38O or higher and/or develop shivers or shakes and begin to feel unwell must go to their nearest hospital emergency department immediately via ambulance. This can be life threatening and has to be taken very seriously. GRICS provides Gippsland Chemotherapy Units with Febrile Neutropenia Alert Cards to provide to pa'ents receiving chemotherapy. Pa'ents should carry this card with them at all 'mes and provide it to health professionals whenever seeking treatment because they are feeling unwell. The following informa'on was obtained on 3 April 2013 from eviQ - hEps://www.eviq.org.au/Home.aspx For pa.ents receiving treatment for cancer What are the signs and symptoms of infec'on? The signs and symptoms of an infec'on may include: • a temperature of 38oC or above • chills or shakes, unusual swea'ng • cough with yellow or green coloured sputum, shortness of breath • sore throat, sores in your mouth • redness or swelling on your skin (par'cularly around a central line) • loose or liquid bowel mo'ons • passing more urine than normal or a burning feeling when passing urine • blood or discharge in your urine • discharge from your eyes or ears • vaginal discharge and/or itching • flu-like symptoms such as body aches and feeling 'red If you develop an infec'on when your neutrophil count is low, it can be life-threatening and needs to be taken very seriously. Even if you feel well and you o • develop a temperature of 38 C or higher and/or • develop shivers or shakes or begin to feel unwell Go to your nearest hospital emergency department immediately via an ambulance. It could be life-threatening and has to be taken very seriously. When you arrive at the hospital it is important to tell them the following:• that you have cancer • the date of your last treatment • highest temperature you have had in last 24 hours • any chills/shakes • any other symptoms • any drug allergies (especially to an'bio'cs) Page 9 Issue No 14—April 2013 www.gha.net.au/grics Immediate Management of Neutropenic Fever ID: 000123 (V.2) Approved: 20 May 2011 Last Modified: 29 Oct 2012 Review Due:01 Jun 2013 Immediate management of neutropenic fever for health professionals Please ensure that all relevant staff within your health service are aware of these current clinical prac'ce guidelines. As these guidelines are subject to change please refer to eviQ - hEps://www.eviq.org.au/Home.aspx for up-to-date informa'on. This document was developed from the Australian consensus guidelines for the management of neutropenic fever in adult cancer pa'ents1 , with an aim to standardise the clinical approach to the management of neutropenic fever. Implementa'on of these guidelines requires considera'on of local factors. Defini.on of Neutropenic Fever For the purpose of this document neutropenic fever is defined as: • temperature of at least 38.3°C (or at least 38°C on two occasions) and neutrophil count of less than 0.5 x 109 cells/L, or less than 1.0 x 109 cells/L and predicted to fall to lower than 0.5 x 109 cells/L Note: • pa'ents with neutropenic sepsis may present with haemodynamic compromise without fever (e.g. if elderly, or on steroids) • neutropenic sepsis with or without fever is a medical emergency • all clinical signs indica'ng sepsis need to be acted upon immediately • the administra'on of empiric an'bio'cs should not be delayed in order to perform blood cultures Any delay in the commencement of an.bio.cs may cause increased morbidity and mortality Management All pa'ents presen'ng with fever following chemotherapy should be managed as if they have neutropenic fever and receive empiric an'bio'cs without wai'ng for laboratory confirma'on of neutrophil count. This management may be modified if neutrophil count and func'on are found to be adequate. Time to first dose: • pa'ents with features of systemic compromise (such as hypotension, hypoxia, confusion, major organ dysfunc'on) should receive an'bio'cs within 30 minutes of presenta'on aTer the immediate collec'on of blood cultures and administra'on of fluid support (grade C)* • clinically stable pa'ents should receive an'bio'cs within 1 hour of presenta'on aTer appropriate cultures have been taken (grade C)* • administra'on of an'bio'cs should not be delayed by the conduct of laboratory or radiological inves'ga'ons (grade C)* * Refers to the levels of evidence and grades of recommenda'ons used in the published guidelines Refer to flow diagram for more informa'on regarding ini'al pa'ent evalua'on and risk assessment. Step 1: Perform sep.c workup Blood cultures and other tests: • 1 set (aerobic and anaerobic bo=les) from each lumen of CVAD (if in situ) • 1 set from peripheral blood • full blood count with differen'al white cell count • electrolytes, urea and serum crea'nine • liver func'on • mid stream urine /catheter specimen urine • sputum (if clinically indicated) • faeces (if clinically indicated) • swab of central venous catheter exit site • swab of any other suspicious wounds/focal lesions Chest x-ray (if unavailable s'll proceed to step 2 and ensure arrangements for CXR have been made) DO NOT WAIT FOR RESULTS Page 10 Issue No 14—April 2013 www.gha.net.au/grics Immediate Management of Neutropenic Fever (con+nued) Step 2: Commence empiric an.bio.c therapy (doses are for normal renal func.on) Pa.ent group Pa.ents without features of systemic compromise (Beta-lactam monotherapy is recommended unless allergy to the recommended agent/s Recommenda.on (grading and level of evidence) No penicillin allergy: Piperacillin-tazobactam 4.5 g IV 6–8 hourly (grade A) OR Cefepime 2 g IV 8 hourly Other reasonable choice for monotherapy is ce7azidime 2 g IV 8 hourly (grade A) Non-life threatening penicillin allergy (rash): Cefepime 2 g IV 8 hourly (grade C) Other reasonable choices for monotherapy are ce7azidime 2 g IV 8 hourly or meropenem 1 g IV 8 hourly (grade C) Life-threatening (immediate) penicillin allergy or beta-lactam allergy: Aztreonam 1-2 g IV 8 hourly OR ciprofloxacin 400 mg IV 12 hourly (expert opinion) + vancomycin 1.5 g IV 12 hourly (if CrCl >90 mL/min) OR 1 g IV 12 hourly (if CrCl 60-90 mL/min)†* Pa.ents with systemic compromise (The combina'on of a beta-lactam an 'bio'c with an aminoglycoside is the regimen of choice) As for pa.ents without features of systemic compromise (expert opinion) (see above): + gentamicin 5 to 7 mg/kg ideal body weight IV once daily, adjusted to level +/– vancomycin 1.5 g IV 12 hourly (if CrCl >90 mL/min) OR 1 g IV 12 hourly (if CrCl 60-90 mL/min)†* Pa'ents with celluli's, obviously infect- As for pa.ents without features of systemic compromise (see above): ed vascular devices, or MRSA carriers + vancomycin 1.5 g IV 12 hourly (if CrCl >90 mL/min) OR 1 g IV 12 hourly (if CrCl with extensive skin breaks/ 60-90 mL/min)†* desquama'on Pa'ents with features of abdominal or perineal infec'on As for pa.ents without features of systemic compromise (see above): + metronidazole 500 mg IV/PO 12 hourly if receiving cefepime, ceTazidime or ciprofloxacin first-line (grade D) Alterna+vely, piperacillin-tazobactam or meropenem will provide adequate anaerobic cover, if required (grade B), other than for suspected or proven Clostridium difficile-associated diarrhoea or coli+s © Internal Medicine Journal 2011 *Clinicians caring for a pa+ent with immediate hypersensi+vity to one beta-lactam who have subsequently tolerated an alterna+ve suitable an+pseudomonal beta-lactam agent may elect to administer this second agent under careful supervision. †Refer to the Therapeu+c Guidelines version 14 for dosing guidance. For vancomycin, individual ins+tu+ons may use alterna+ve loading-dose protocols Note: Recommenda+ons for individual an+bio+cs may not align directly with the Therapeu+c Goods Administra+on (TGA) approved indica+ons. Therefore, following these recommenda+ons may lead to off-label use of some agents. Summary • beta-lactam monotherapy, such as piperacillin-tazobactam (Tazocin® ) or cefepime, is the empiric therapy of choice for all clinically stable pa'ents with neutropenic fever • an an'pseudomonal beta-lactam an'bio'c plus gentamicin is recommended for pa'ents with systemic compromise. All pa'ents in sep'c shock should receive an'bio'cs within 30 minutes of presenta'on, and all other pa'ents within 1 hour • vancomycin is not recommended as ini'al empiric therapy unless there is systemic compromise or an approved indica'on for its use This is ini.al immediate therapy only and subsequent treatment should be based on clinical findings and at the discre.on of the trea.ng clinician References 1. Tam CS, O'Reilly M, Andresen D et al. 2011 " Use of empiric an.microbial therapy in neutropenic fever". Intern Med J. Jan;41(1b):90-101 - Link to external ar.cle eviQ version 1.4.0 Page 11 Issue No 14—April 2013 www.gha.net.au/grics Melanoma shared care, a tripar.te approach for survival, the pa.ent, their GP and their specialist. This project is a collabora'on between the Victorian Melanoma Service, Alfred Health; Melanoma Pa'ents Australia, Gippsland Regional Integrated Cancer Services and SMICS. It aims to develop a model for long term care of survivors of malignant melanoma which incorporates pa'ent self-management; general prac'ce/specialist shared care; con'nuous suppor've care screening; pa'ent and family centred long term care planning; and electronic reminders. The project has now received ethics approval and has commenced par'cipant recruitment. The project team have been preparing various tools and documents including: • • risk stra'fied pathways data collec'on tools • recruitment processes • • pa'ent informa'on primary care educa'on. For further informa'on please contact: Colleen Berryman, Cancer Service Improvement Coordinator, SMICS on 9928 8599 or [email protected]. These project teams have the opportunity to meet with the other survivorship project funding recipients through an established Community of Prac'ce (CoP). This is a valuable opportunity to learn of each other’s successes and challenges in implemen'ng survivorship programs to improve the long term well-being of pa'ents who have undergone treatment for a cancer diagnosis and their families. The Health and Hospitals Fund (HHF) REGIONAL ICT mul.disciplinary mee.ng tender consulta.on In 2010 the Department of Health, Cancer Strategy and Development (DH, CS & D) secured $2.5 million from the Australian Government Health and Hospitals Fund (HHF) regional cancer centres funding to develop an informa'on communica'on technology (ICT) strategy. Dr Stephen Vaughan was engaged through HumeRICS by the DH, CS & D to consult with regional ICS regarding informa'on communica'on technology (ICT) requirements. In March 2012, a report containing recommenda'ons for regional cancer ICT was completed. The report iden'fied development of a mul'disciplinary (MD) team mee'ng ICT solu'on as the major priority. The DH, CS & D aims to support Mul'disciplinary (MD) teams across the regions by providing an effec've mee'ng management soTware solu'on to assist mee'ng prepara'on, documenta'on, communica'on, and team linkage. The DH, CS & D will undertake an open tender process to select a vendor to provide a suitable ICT solu'on. A recently completed project that involved a rigorous tender process provided the Southern Metropolitan Integrated Cancer Service (SMICS) project team with the experience and skills to develop tender documenta'on. This experience resulted in the selec'on of SMICS to develop the required tender documents for the DH, CS & D. SMICS conducted two consulta'ons in each of the regional ICS to develop: • a business requirements document (BRD) • all other tender documents required by DH, CS & D. Consulta'on one provided detailed informa'on about the project and the opportunity to discuss the expecta'ons of the second consulta'on with regional ICS managers, directors and ICS mul'disciplinary project team members. Following the first consulta'on, regional ICS managers and directors completed an on-line ques'onnaire, stakeholder analysis, IT environment diagram (interfaces) and MD team mee'ng administra'on flow diagram. Then each regional ICS was responsible for engaging their stakeholders, arranging a mee'ng/s for the second consulta'on and providing informa'on required for the second consulta'on. The purpose of the second consulta'on was to engage with regional ICS stakeholders to: • discuss the soTware solu'on business requirements provided in the ques'onnaire responses and stakeholder ideas • finalise the soTware solu'on business requirements from a regional perspec've, highligh'ng any real or poten'al risks • discuss and finalise the regional IT environment (interfaces) • discuss and finalise the MDT mee'ng administra'on workflow. GRICS and the HHF Regional MDM ICT project team wishes to sincerely thank those members of staff whom a=ended either of the consulta'ons. The informa'on provided to the project team has enabled them to develop the documents required by the Department of Health, Cancer Strategy and Development to tender for a vendor to provide a mul'disciplinary team mee'ng ICT soTware solu'on. Page 12 Issue No 14—April 2013 www.gha.net.au/grics AYA Oncology News Update—Exercise Programs: once treatment has finished The Flinders Centre for Innova'on in Cancer recently held its inaugural Cancer Survivorship Conference in South Australia. A highlight of the conference was the focus on physical wellbeing and the importance of exercise following a cancer diagnosis. It is well recognised that cancer and its associated treatments can bring about physical and psychosocial side-effects that impact upon ones physical func'on and quality of life. Exercise rehabilita'on programmes have shown to be safe, feasible and effec've. Benefits may include; • Improved muscle strength and endurance • Reduce cancer related fa'gue • Improve bone density and joint range of mo'on • Maintain / improve a healthy body weight • Increase cardiovascular and respiratory func'on • Lower levels of stress and anxiety • Improved func'onal capacity • Decrease re-occurrence of certain cancers All these outcomes can assist one during the recovery process and reduce common side effects of treatment such as fa'gue, nausea, anxiety, depression and muscle weakness. Exercise can also facilitate a healthy and ac've lifestyle and when combined with good nutri'on provide the plaaorm to allow one to integrate back into their daily life, peer groups, work and school life. Types of exercise programmes: Physical ac'vity can take on many forms such as walking, running, swimming, and aerobics. It can also include; • Group based exercise undertaken in a gym or community centre • Home based exercise programmes that have been specifically designed by an Exercise Physiologist. • Compe''ve sport • Incidental ac'vity – small amounts of ac'vity over the course of the day • Outdoor recrea'on such as hiking What you are able to do will depend on your current fitness level, treatments undertaken, and what your goals are. Where to from here? Exercise is permi=ed during and aTer treatment for cancer but it must be medically safe to do so. Cancer and its treatment can cause contraindica'ons to exercise. Ask for medical consent from either your GP or oncologist prior to undertaking a new programme. It may also be a good idea to consult an Exercise Physiologist, or Physiotherapist before star'ng a new exercise programme. This will allow for proper screening and assessment and will provide you with the right advice and guidance to ensure that your exercise program is safe and successful. If you have any ques'ons please feel free to contact Andrew Murnane, Exercise Physiologist, ONTrac at Peter Mac Victorian Adolescent & Young Adult Cancer Service [email protected] A new ini.a.ve available to all young people who have had a diagnosis of cancer regardless of treatment loca.on: Cer.ficate I in Voca.onal Prepara.on ONTrac at Peter Mac Victorian Adolescent and Young Adult Cancer Service in partnership with Murray Mallee Training Company (MMTC) is offering an accredited training program for young people who are experiencing, or have experienced cancer. The Cer'ficate I in Voca'onal Prepara'on is designed to provide training for young people to enhance their con'nued educa'on and employment prospects. It has a focus on orienta'on to work op'ons and prepara'on for further educa'on and training. Individual plans will be developed for each young person to meet their voca'on needs and ensure training goals are achieved. Contact: Nicole Edwards, Educa'on & Voca'on Advisor, ONTrac at Peter Mac ph 9656 1744, [email protected] Page 13 Issue No 14—April 2013 www.gha.net.au/grics Gippsland Lymphoedema Prac..oners Network Mee.ng The GRICS Gippsland Lymphoedema Prac''oners Network Mee'ng commenced in August 2012 and had its third mee'ng in April 2013. Mee'ngs are well a=ended and the number of members is increasing, as more Gippsland health professionals are trained as lymphoedema prac''oners. The network is open to all qualified Gippsland lymphoedema prac''oners, levels 1 and 2, working in the public and private sector. Educa'on is provided as an adjunct to most mee'ngs. At the April 2013 mee'ng, the members endorsed a brochure for Gippsland pa'ents and the community to create awareness of lymphoedema. An informa'on sheet for Gippsland GPs and health professionals, on the availability of lymphoedema prac''oners in Gippsland health services was also endorsed at this mee'ng. The pa'ent brochures and informa'on sheets will be made available throughout Gippsland in the near future. The topic of the educa'on session at the April 2013 network mee'ng was ‘Lymphoedema and Wound Management’, presented by Marianne Cullen, Gippsland Regional Wound Consultant, from Latrobe Community Health Service. Thank-you Marianne for the excellent workshop. Monitoring for the Early Detec.on of Breast Cancer Related Lymphoedema—Posi.on Statement Approved by the ALA Na+onal Council October 2012 The Australasian Lymphology Associa'on (ALA) endorses the need to monitor for the early detec'on of lymphoedema following breast cancer treatment. The early detec'on and management of sub-clinical lymphoedema may reduce the long term physical, func'onal and psychological effects caused by a later diagnosis and delayed management of the condi'on. The ALA endorses the use of bioimpedance spectroscopy (BIS) as a validated and reliable tool to enable early detec'on of breast cancer related lymphoedema (BCRL) of the arm.1,2 This posi'on statement has been developed by the Australasian Lymphology Associa'on (ALA) to provide an Australasian perspec've and to promote consistency in the monitoring for early detec'on of breast cancer related lymphoedema. The importance and benefits of early diagnosis of lymphoedema for medical prac''oners is explained on the ALA website www.lymphoedema.org.au. The ALA acknowledges the posi'on statement of the Na'onal Lymphedema Network: “Screening and Measurement for the Early Detec'on of Breast Cancer Related Lymphedema” updated April 2011 www.lymphnet.org. 1. 2. Czerniec SA, Ward LC, Refshauge KM, Beith J, Lee MJ, York S, et al. Assessment of breast cancer-related arm lymphedema--comparison of physical measurement methods and self-report. Cancer Invest. 2010 Jan;28(1):54-62. Hayes S, Janda M, Cornish B, Babstu=a D, Newman B. Lymphedema secondary to breast cancer: how choice of measure influences diagnosis, prevalence, and iden'fiable risk factors. Lymphology. 2008 Mar;41(1):18-28. Page 14 Issue No 14—April 2013 www.gha.net.au/grics OUT & ABOUT—HEALTH PROFESSIONALS Living with Cancer Educa.on Program Facilitator Update Based on demand GRICS is working with the Cancer Council Victoria to provide a Traralgon facilitator update. The revised ‘Living with Cancer Educa'on Program’ will be presented at the workshop. For all LWCEP facilitators who wish to con'nue delivering the program, it is necessary for at least one representa've from your organisa'on to a=end one of the update days, to ensure you are delivering the most up to date program and have access to current resources. We will also be looking at the Survivorship module, having a presenta'on by Dr Leisel Fitzgerald (filmed) and then spend some 'me sharing experiences and planning for programs in 2013. Date: Time: Venue: 8th May 2013 10.00am – 2.00pm Latrobe Valley Community Mental Health Service Building 3 - Conference Room 1 & 2 Washington Street Traralgon For further details or to register please contact: • Michelle McKimmie or Enza Wright—Phone 5128 0138 OR • Michelle Meachen LWCEP Program Manager Phone: 03 9635 5312 or 13 11 20 [email protected] CuNng cancer risk in mental health This four hour workshop is aimed at mental health professionals and community workers who want to update their skills and knowledge about early detec'on strategies and ways to minimise cancer risk. It aims to give par'cipants the skills and knowledge required to discuss cancer preven'on with individual clients and groups. Topics include: Current cancer sta's'cs: pa=erns of incidence and mortality in Victoria Risk factors: including modifiable and non-modifiable (e.g. obesity, alcohol consump'on, smoking) Cut your cancer risk strategies including an overview of the current Na'onal cancer screening. • • • A free workshop for health professionals and community workers working in mental health Date: Wednesday 29th May 2013 Time: 10am—2pm Venue: Latrobe Valley Community Mental Health Service Conference Building 3 – Conference Rooms 1 & 2 Washington Street Traralgon Register online: www.cancervic.org.au/for-health-professionals/training_courses_and_educa'on/preven'on-mental-health For further informa'on, contact: Rachel Mulqueeney, Community Health Professionals Coordinator Phone: (03) 9635 5424; Email: [email protected] Page 15 Issue No 14—April 2013 www.gha.net.au/grics OUT & ABOUT—HEALTH PROFESSIONALS May 2013 2nd and 4th May Australian Prac.ce Nurses Associa.on Na.onal Movers and Shakers Conference Pullman Melbourne Queens Road Albert Park. The program will feature a wide range of interna'onal and na'onal speakers addressing primary health care and the future direc'on of nursing. Whilst the Movers and Shakers Conference will primarily focus on furthering clinical skills it will also provide personal and professional development for a=endees 13—14 May Victorian Integrated Cancer Services Inaugural Conference 2013 Rydges Hotel Exhibi+on Street Melbourne This two day conference will feature pa'ent focused, system focused and innova'on streams. For registra'ons or further informa'on www.vics2013.org.au Wednesday 22nd 6.00pm to Adolescent and Young Adult Pallia.ve Care—Dr Rachel Hughes, Adolescent and Young 8.00pm Adult Pallia've Medicine Fellow at ONTrac at Peter Mac, will present on providing pallia've care for adolescents and young adults with cancer. Free session—supper will be provided. Mary Sargeant Educa+on Centre West Gippsland Healthcare Group Warragul Registra.ons: Online registra'ons at h=p://www.trybooking.com/CSAK Videoconferencing of this presenta.on will be available to health services in Gippsland. Please contact the Gippsland Regional Pallia.ve Care Consor.a (GRPCC) to arrange. More details: Judy Coombe, GRPCC, [email protected] or 03 5623 0684 (Tuesday and Thursday only). This forum is an ini'a've of ONTrac at Peter Mac, the Gippsland Region Pallia've Care Consor'um and the Gippsland Medicare Local. A=endance at this forum a=racts CPD and CNE points. July 2013 14—16 July ANZUP Cancer Trials Group Limited 2013 Annual Scien.fic Mee.ng Gold Coast Conven+on and Exhibi+on Centre Advancing genitourinary cancer care through research and collabora'on Further informa'on: go to www.anzup.org.au 25—26 July 11th Biennial Na.onal Rural Remote Social Work Conference ‘Diversity in Rural and Remote Communi'es: Responding to Challenges and Opportuni'es’ RACV Resort Inverloch. Further informa'on www.aasw.asn.au/events/category/vic Mar'n Butler [email protected] Olga Gountras [email protected] Later in the year 27 September Allied Health Symposium Gippsland 2013 Innova.ve Prac.ce: Sustainable Allied Health Workforce Monash University Gippsland Campus This bi-annual Gippsland Allied Health Symposium provides an opportunity for par'cipants to share ideas, exper'se and experiences around important areas of allied health prac'ce, professional development and research. The focus of the 2013 Gippsland Allied Health Symposium is ‘Innova+ve Prac+ce: Sustainable Allied Health Workforce’. Further informa'on: Please contact Deanna Korab, Department of Health, via email at [email protected] or on (03) 5177 2592 12—14 November COSA’s 40th Annual Scien.fic Mee.ng Adelaide Conven+on Centre Registra'on and abstract submissions are now open www.cosa2013.org . The theme for COSA’s 40th ASM “Cancer Care Coming of Age” will highlight geriatric oncology, and disease themes will concentrate on gastro-intes'nal cancers and encompass gastric, oesophagus and hepatobiliary tumours which are oTen neglected at major mee'ngs, as well as colorectal cancer. A draT program is available at h=p://www.cosa2013.org/program/ Page 16 Issue No 14—April 2013 www.gha.net.au/grics The GRICS Consumer Reference Group The GRICS Consumer Reference Group has now progressed into the third year with membership growing and commitment and enthusiasm remaining strong. At the end of each year GRICS undertakes an evalua'on of the Consumer Reference Group. A snapshot of the findings from 2012 evalua'on include; 100% of respondents either strongly agreed or agreed that they were; • Sa'sfied with their level of involvement with GRICS • Kept well informed while working with GRICS • Supported by GRICS in their consumer role • Not financially disadvantaged par'cipa'ng with GRICS • Able to be accommodated for their individual circumstances • Provided with adequate opportuni'es to contribute • Provided with educa'on at the mee'ngs that supported the work of the Consumer Reference Group • Sa'sfied with their role within the Consumer Reference Group and that the role was meaningful and met their volunteering needs The work undertaken within the GRICS Consumer Reference Group was presented in a poster at the Flinders Centre for Innova'on in Cancer Survivorship Conference in Adelaide in February 2013. In 2013 GRICS has engaged the Health Issues Centre to undertake an independent review of our consumer engagement performance against current na'onal and Victorian standards, best prac'ce and benchmarks in health services. Co Managers Kylie Halsall [email protected] 5128 0075 Administra.ve Officer Enza Wright [email protected] 5128 0138 Cancer Service Improvement Coordinator Peter Kevekordes 5128 0137 [email protected] Cancer Service Improvement Coordinator Michelle McKimmie 5128 0059 [email protected] Cancer Service Improvement Coordinator Kerrie Missen 5128 0062 [email protected] Cancer Service Improvement Coordinator Tennille Lewin 5128 0147 [email protected] Cancer Data and Informa.on Analyst Jody Neal 5128 0139 [email protected] Louise Cristofaro [email protected] 5128 0142 Page 17 Issue No 14—April 2013 www.gha.net.au/grics OUT & ABOUT—CONSUMERS Support Group Facilitator Update Loss and Grief Following on from a very successful support group facilitator update ‘Listen and Refer” in 2012, GRICS has invited the Cancer Council Victoria to host another session this year focusing on Loss and Grief. This is a free workshop open to all Cancer Support Group leaders, co-facilitators and consumer advocates. Date: Tuesday 7th May 2013 Time: 10am—3pm Venue: Latrobe Valley Community Mental Health Service, Building 3 – Conference Rooms 1 & 2, Washington Street Traralgon For further details or to register please contact: • Michelle McKimmie or Enza Wright—Phone 5128 0138 OR • Amanda Spillare Program Manager Cancer Informa'on and Support Service Cancer Council Victoria Phone: 03 9635 5396 Mee.ng Informa.on for 2013 Time: Place: 10am to 12.00pm Gippsland Disability Advocacy Inc 8 Hopetoun Avenue Morwell There may be 'mes in your role as a carer for someone with a disability, chronic “Working to build a Regional Support illness, aged frailty, or mental illness, when you may feel overwhelmed and Network for unpaid family alone. That need not be the case! There are others out there just like you, carers in all of Gippsland” with whom you can share your experiences. GCA’s Carer Support Group (CSG) was formed to meet the needs of unpaid carers. It seeks to enable carers—those who give so much to others—the opportunity to enjoy friendship, and the support they deserve, from others who understand what they’re going through. We offer a sympathe'c, non judgemental ear. Some'mes, a CSG mee'ng includes a guest speaker, or ac'vity. Some mee'ngs are more like social ou'ngs and may take place in other loca'ons. If we have your email address, we can keep you posted on what’s happening for each mee'ng. Otherwise, we recommend that you ring prior to the mee'ng for details. Because we want members to get the most from the CSG we welcome your input. So please, feel free to let the coordinator know what your interests are, as it may help us to plan future ac'vi'es. For further informa'on contact Dot Kitwood on 0402 457 241, email: [email protected] or go to the website: www.gippslandcarers.org Mee'ng dates for the remainder of 2013 are as follows: • 22nd May 2013 • 26th June 2013 • 24th July 2013 • • 25th September 2013 • 23rd October 2013 • 27th November 2013 • We look forward to seeing you! 28th August 2013