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Is this how it needs to be? the reaction of the average patient & partner Scared to talk sex! the reaction of the average oncology professional: Scared to talk sex! the reaction of the average Psychosex counsellor Scared of cancer! To be discussed: • Female / male differences • Quality of life issues • Sexuality in the palliative / terminal phase of cancer • Assessment tools Typical female-male differences Male More orientated towards The “act of SEX” Female More orientated towards relationships physical contact sensuality The erogenous zones Just Some case histories “Intimacy is a casualty in the battle against cancer” Extrapolating from the literature, the percentage of disrupted sexuality and intimacy both in male and in female cancer patients is in the range of 35 - 50% What is sex? • Intercourse (included oralcourse, analcourse) • Outercourse (included masturbation & petting) • Stroking, massaging, sensuality • Getting excited by fantasy, watching, etc. • Enjoying oneself being naked / being sexual • Feeling feminine / masculine Reasons for sex? Love Intimacy Relationship (relation) Reasons for sex? Lust Fun Pleasure (recreation) Reasons for sex? Childwish (procreation) Relation Recreation Procreation Habit / custom That sounds neither very romantic nor very creative! It makes ‘the next time’ rather sad when sex has become impossible (for instance by cancer) However, continuing the habit is probably a very good way physically ‘to stay in a good condition’ and sexually ‘to keep things going’ The ‘use it or lose it’ principle Are there advantages to having sex? In women: Ongoing sexual activity is related to less postmenopausal vaginal atrophy In men: High ejaculation frequency (whatever method) is related to: Less prostate cancer 1 Every increase of 1 ejaculation / week reduces the risk of prostate cancer by 5% 1. Giles ea BJU International 2003; 92: 211 In men: A higher ejaculation / orgasm frequency is accompanied by: ● Less male breast cancer 2 ● 50% less mortality risk (in the 45-59 yr age range) this is the same for frequent intercourse 3 2. Petridou et al. Br J Cancer, 2000; 83: 1234. 3. Davey Smith et al. BMJ; 1997: 315: 1641. In women & men: depression and suicide: Celibacy is associated with increased levels of depression & suicidal tendencies in young males (he- / ho- / bi-sexual) Masturbation is associated with less depression (in heterosexual men & women) Sex for QoL? In women strong associations were found between sexual interest and well-being Sexual desire increased dramatically in periods of well-being. A youthful appearance in women and men is enhanced by sex ● People whose age was regularly underestimated had an active (& high frequency) sex life Weeks & James. Secrets of the superyoung, 1998 The importance of sexuality in cancer care Sex can: relax emotionally console and comfort relax physically distract from pain reduce pain (in women) improve self esteem in both men and women The importance of sexuality in cancer care Sex is also a way • to cope with anger & confusion • to stick to life • to say farewell Sexuality in the palliative phase Continue to follow up progress at every visit When there is a partner, don’t forget him/her Don’t discuss serious matters without the partner being present except when he/she is a real burden (for the patient) Don’t forget that the partner is involved as well In case of a male partner: he too can have sexual problems! Sexuality in the palliative phase • adequate pre-sex painkillers • adequate lubrication Consider advice on: • proper timing in case of fatigue • adapted techniques in case of vaginal shortening or stenosis • adequate stimulation --- Take time • other erogenous zones or artificial vibration) Basic Lube (only if there is nothing else!) • K-Y Lubricating Jelly is a water soluble personal lubricant.. Most doctors recommend K-Y Jelly, as water based K-Y Jelly is safer and more effective than other lubricants. Clear, non greasy K-Y Jelly is the perfect supplement to your own natural moisture, so that your lovemaking is instantly more pleasurable. K-Y is safe to use with condoms, unlike petroleum jelly or baby oil. K-Y is clear and clean-rinsing, easy and convenient to use, non-greasy and non-sticky, hygienic and pH balanced, fragrance free and alcohol free. Better • • • • Replens Vaginal Moisturiser replaces essential moisture lost through vaginal dryness (vaginal atrophy). Vaginal dryness is a result of the natural ageing process, and not only affects lovemaking, but often leads to itching, irritation and discomfort. Use Replens three times a week to provide continuous moisture and comfort. Pre-filled applicators enable you to place hygienically the right amount of Replens exactly where it is needed, high up inside the vagina. Replens is also hormone free and safe to use with condoms. Best • • SYLK is derived from an extract of the kiwi fruit vine and contains no synthetic compounds, making it a natural substance. Every woman at some stage in her life experiences vaginal dryness which can be due to a variety of reasons. Hormone fluctuations and drug side effects can cause dryness. Having a pH the same as your skin means it is extremely gentle and non-irritating. It has no chemical base whatsoever, unlike most other supplements and lubricating gels, thereby making it fully natural in every respect and totally safe to use with tampons and condoms...it is a perfect substitute for the body's natural lubricating system. Unknown as yet (awaiting report from users!) • Astroglide is fairly new to the UK, but it is the second best selling "lube" in the US. Astroglide is such a good lubricant, you need much less than you do with other types of lubricant, making it great value. This product is not a spermicide or contraceptive. Sexuality in the palliative phase If the patient patient is “palliative” formerly ‘forbidden treatment’ may be discussed • adequate oestrogen replacement • adequate testosterone replacement Note: The level of testosterone below which sexual symptoms usually occur is not known nor do we understand brain and genital receptor sensitivity to testosterone. • ‘serious’ pain relieving medication • unauthorised solutions???? HRT • • • • • Pros and cons Consultation with oncology specialist Controversial Routes & administration Alternatives – no evidence Vaginal dilators • Following radiotherapy to the vagina, cervix or pelvis, the woman may experience some internal scarring (adhesions) to the treated area, which can make the vagina narrower, drier and less elastic. Preventing the formation of scar tissue within the vagina helps ensure that it remains supple so that sexual intercourse and vaginal examinations can be performed without discomfort or pain. Kaplan’s Assessment • • • • • • • • • Main complaint Sexual status Masturbatory status Medical assessment Psychiatric assessment Family and psychosexual history Relationship history Evaluation of current relationship Summation PLISSIT MODEL The Ex-PLISSIT model is an extension of the much-used PLISSIT model. The PLISSIT model was developed by Annon (1976) for use by practitioners in meeting the sexuality and sexual healthcare needs of patients. The acronym PLISSIT signifies the four levels of intervention – • • • • Permission, Limited Information, Specific Suggestions, and Intensive Therapy. As the level of intervention increases, greater knowledge, training and skills are required (Seidl et al 1991). Age does not protect you from love. But love, to some extent, protects you from age! Jeanne Moreau born 1928 Einde presentatie woet @ gianotten . com Thank you!