Download Pediatric Cardiology Outcomes Report

A Fulfilled Life
Adele
NONPROFIT ORG.
U.S. POSTAGE
PAID
PERMIT NO. 7118
MERRIFIELD, VA
Inova Children’s Hospital
3300 Gallows Road
Falls Church, VA 22042
From the moment her daughter
Adele was born, Kim Spitz knew
something was wrong. The baby
was sluggish. She struggled to
eat. She rarely cried. Doctors
reassured Kim and her husband
Doug that everything was fine.
“Nobody seemed to take our
concerns seriously,” Kim says.
After numerous appointments, a pediatrician finally
detected a heart murmur. Adele needed to go straight
to the Emergency Room. Stunned, Kim and Doug rushed
the infant to Inova Children’s Hospital, where Jin Park,
MD, one of Inova Children’s pediatric cardiologists,
performed an echocardiogram and delivered a
devastating diagnosis: Adele had total anomalous
pulmonary venous return (TAPVR), a rare congenital
malformation in which all four pulmonary veins do
not connect normally to the left atrium. Her heart was
obstructed and dangerously enlarged. She would need
surgery urgently to repair the defect.
Kim and Doug struggled to digest the news. “We
were relieved to have an explanation, but also panic
stricken,” Kim recalls. “We had no idea what lay ahead.”
The hospital’s pediatric heart surgery team, led by
cardiac surgeon Lucas Collazo, MD, rallied to provide
reassurance and support. They had performed this type
of procedure many times before – on babies just as
small – with excellent results. Their confidence buoyed
the couple in the time leading up to Adele’s procedure.
But as nurses wheeled away their one-month-old
daughter for open heart surgery, Kim collapsed in Doug’s
arms. “It was just about the most grueling thing we could
ever experience,” she says.
Dr. Collazo and his very experienced surgical team
performed a complex repair procedure to restore normal
blood circulation to Adele’s heart. They reconnected
the pulmonary veins in the proper position, closed
off the abnormal connections between blood vessels
and closed the atrial septal defect. The surgery was a
complete success.
When she saw her daughter in the intensive care unit,
Kim recalls a “symphony of medical paraphernalia”
surrounding the infant. A tangle of tubes and wires
covered every patch of skin. But she noticed something
else as well – for the first time in her life, Adele was
moving like a normal baby.
The little girl spent the next few weeks in the hospital,
gaining strength and weight. Finally, Kim and Doug were
able to take their daughter home to Aldie, where she
continued to astound her family with her rapid progress.
Today, she is a healthy, thriving 15-month-old, who loves
to go out, meet people and play with her three-year-old
sister, Lilly. “She is so beautiful, with such personality and
attitude,” says Kim. “She has a thirst for life. If she didn’t
have that drive imagine how different things would be
today.”
The family is eternally grateful to Dr. Collazo and the
entire Inova Children’s Hospital team for saving Adele’s
life. “They gave us our daughter back and we will forever
carry a piece of them in our hearts,” Kim says. “It’s
amazing to think that if this had happened in the past,
our child would have died. But today she can be fixed
and treated and go on to live a very fulfilled life.”
“It’s amazing to think that if this had happened in the past,
our child would have died. But today she can be fixed and
treated and go on to live a very fulfilled life.”
Kim Spitz
2014
Inova Children’s Hospital
Pediatric Cardiac Outcomes
About Inova Children’s Hospital
Inova Children’s Hospital is Northern Virginia’s
only children’s hospital. Our 186-bed, full service
children’s hospital offers a complete range of
services in more than 35 pediatric specialties
including cardiology and cardiac surgery,
gastroenterology, hematology/oncology,
nephrology and kidney transplant, general
surgery and radiology.
Located on the Inova Fairfax Medical Campus,
Inova Children’s Hospital serves as the region’s
referral center, with the only pediatric trauma
care center and Pediatric Intensive Care
Unit (PICU) in Northern Virginia. Our Level IV
Neonatal Intensive Care Unit (NICU) is a national
leader, providing highly-specialized care to the
most premature or ill newborns. Our PICU and
NICU have been nationally recognized for their
quality of care with the Beacon Gold Award for
Pediatric Critical Care, the Joint Commission’s
Gold Seal of Approval for Premature Infant Care,
and U.S. News & World Report has named
Inova Children’s Hospital amoung the top in the
nation for Neonatology, Cardiology and
Heart Surgery.
Our physicians focus on children - whether
they face a single procedure or multiple
procedures requiring a variety of specialists.
We provide high-quality services,
compassionate patient care and
state-of-the-art technology, enabling us
to remain the pediatric hospital of choice
for physicians and families.
Cardiac Surgery
Cardiac Vascular & Thoracic
Surgery Associates, P.C.
703.280.5858
Lucas Collazo, MD
Medical Director
Shelly Fleischer, PA
Chris Van Eyck, PA
Cardiology
Child Cardiology Associates
703.876.8410
Patrick Callahan, MD
Steven Herold, MD
Jared Hershenson, MD
William Kirby, MD
Jennifer Lindsey, MD
Jennifer O’Neil, MD
Harish Rudra, DO
Christopher Talluto, MD
James Thompson, MD
Children’s Heart Associates
571.292.9940
Mohamed Mardini, MD
Children’s Heart Institute
866.645.4055
Hasan Abdallah, MD
Robert Barlow, MD
Amir Dangol, MD
Georgios Hartas, MD
Thammineni Kalpana, MD
Louay Toni, MD
Rahel Zubairi, MD
Pediatric Cardiology Associates
703.573.0504
Annette Ansong, MD
Alan Benheim, MD
Robert Escalera, MD
Sharon Karr, MD
Jin Park, MD
Sherif Tawfik, MD
Pediatric Cardiac Anesthesia
Ahmed Elrefai, MD
Erin Foley, MD
Jennifer Maher, MD
Benjamin Cramer, MD
Robert Mesrobian, MD
Pediatric Preventive
Cardiology and Obesity
The Healthy Heart Center
800.784.8590
Wali Gauvin, MD
Electrophysiology
Inova Medical Group - Arrhythmia
703.289.9400
Ted Friehling, MD
Children’s Heart Institute
866.645.4055
Rahel Zubairi, MD
Inova Children’s Heart
Program Contacts
Adult Congenital Heart Clinic
703.776.3599
Pediatric Cardiac Service Line Leader
Lisa Jacobs, RN, PNP-AC
703.776.6652
Pediatric Cardiac Services
Vanessa Alecia, RN, FNP-BC
Pediatric Cardiovascular Surgery
Nurse Practitioner
703.776.3521
Pediatric Cardiac Intensive Care
and PICU
Swati Agarwal, MD
Gail Green, MSN, RN, CCRN
Clinical Director
703.776.6478
Pediatric Cardiac and
Intermediate Care Units
Stephanie Donatuti, BSN, CPN
Clinical Director
703.776.2926
Cardiac Child Life Services
Hanna Bratt, CCLS
Cara Calderon, CCLS
Jamie Gentile, CCLS
703.776.6486
Fetal Care Program
Kelly Gallo, RN
Patient Navigator
703.776.6371 or [email protected]
Single Ventricle Clinic
Jaime Langdon, RN
Patient Navigator
703.776.5049
G33814/7-15/8500
Inova Children’s Hospital is
ranked among the best in the
nation for Neonatology and
Cardiology & Heart Surgery
A Fulfilled Life
Adele
NONPROFIT ORG.
U.S. POSTAGE
PAID
PERMIT NO. 7118
MERRIFIELD, VA
Inova Children’s Hospital
3300 Gallows Road
Falls Church, VA 22042
From the moment her daughter
Adele was born, Kim Spitz knew
something was wrong. The baby
was sluggish. She struggled to
eat. She rarely cried. Doctors
reassured Kim and her husband
Doug that everything was fine.
“Nobody seemed to take our
concerns seriously,” Kim says.
After numerous appointments, a pediatrician finally
detected a heart murmur. Adele needed to go straight
to the Emergency Room. Stunned, Kim and Doug rushed
the infant to Inova Children’s Hospital, where Jin Park,
MD, one of Inova Children’s pediatric cardiologists,
performed an echocardiogram and delivered a
devastating diagnosis: Adele had total anomalous
pulmonary venous return (TAPVR), a rare congenital
malformation in which all four pulmonary veins do
not connect normally to the left atrium. Her heart was
obstructed and dangerously enlarged. She would need
surgery urgently to repair the defect.
Kim and Doug struggled to digest the news. “We
were relieved to have an explanation, but also panic
stricken,” Kim recalls. “We had no idea what lay ahead.”
The hospital’s pediatric heart surgery team, led by
cardiac surgeon Lucas Collazo, MD, rallied to provide
reassurance and support. They had performed this type
of procedure many times before – on babies just as
small – with excellent results. Their confidence buoyed
the couple in the time leading up to Adele’s procedure.
But as nurses wheeled away their one-month-old
daughter for open heart surgery, Kim collapsed in Doug’s
arms. “It was just about the most grueling thing we could
ever experience,” she says.
Dr. Collazo and his very experienced surgical team
performed a complex repair procedure to restore normal
blood circulation to Adele’s heart. They reconnected
the pulmonary veins in the proper position, closed
off the abnormal connections between blood vessels
and closed the atrial septal defect. The surgery was a
complete success.
When she saw her daughter in the intensive care unit,
Kim recalls a “symphony of medical paraphernalia”
surrounding the infant. A tangle of tubes and wires
covered every patch of skin. But she noticed something
else as well – for the first time in her life, Adele was
moving like a normal baby.
The little girl spent the next few weeks in the hospital,
gaining strength and weight. Finally, Kim and Doug were
able to take their daughter home to Aldie, where she
continued to astound her family with her rapid progress.
Today, she is a healthy, thriving 15-month-old, who loves
to go out, meet people and play with her three-year-old
sister, Lilly. “She is so beautiful, with such personality and
attitude,” says Kim. “She has a thirst for life. If she didn’t
have that drive imagine how different things would be
today.”
The family is eternally grateful to Dr. Collazo and the
entire Inova Children’s Hospital team for saving Adele’s
life. “They gave us our daughter back and we will forever
carry a piece of them in our hearts,” Kim says. “It’s
amazing to think that if this had happened in the past,
our child would have died. But today she can be fixed
and treated and go on to live a very fulfilled life.”
“It’s amazing to think that if this had happened in the past,
our child would have died. But today she can be fixed and
treated and go on to live a very fulfilled life.”
Kim Spitz
2014
Inova Children’s Hospital
Pediatric Cardiac Outcomes
About Inova Children’s Hospital
Inova Children’s Hospital is Northern Virginia’s
only children’s hospital. Our 186-bed, full service
children’s hospital offers a complete range of
services in more than 35 pediatric specialties
including cardiology and cardiac surgery,
gastroenterology, hematology/oncology,
nephrology and kidney transplant, general
surgery and radiology.
Located on the Inova Fairfax Medical Campus,
Inova Children’s Hospital serves as the region’s
referral center, with the only pediatric trauma
care center and Pediatric Intensive Care
Unit (PICU) in Northern Virginia. Our Level IV
Neonatal Intensive Care Unit (NICU) is a national
leader, providing highly-specialized care to the
most premature or ill newborns. Our PICU and
NICU have been nationally recognized for their
quality of care with the Beacon Gold Award for
Pediatric Critical Care, the Joint Commission’s
Gold Seal of Approval for Premature Infant Care,
and U.S. News & World Report has named
Inova Children’s Hospital amoung the top in the
nation for Neonatology, Cardiology and
Heart Surgery.
Our physicians focus on children - whether
they face a single procedure or multiple
procedures requiring a variety of specialists.
We provide high-quality services,
compassionate patient care and
state-of-the-art technology, enabling us
to remain the pediatric hospital of choice
for physicians and families.
Cardiac Surgery
Cardiac Vascular & Thoracic
Surgery Associates, P.C.
703.280.5858
Lucas Collazo, MD
Medical Director
Shelly Fleischer, PA
Chris Van Eyck, PA
Cardiology
Child Cardiology Associates
703.876.8410
Patrick Callahan, MD
Steven Herold, MD
Jared Hershenson, MD
William Kirby, MD
Jennifer Lindsey, MD
Jennifer O’Neil, MD
Harish Rudra, DO
Christopher Talluto, MD
James Thompson, MD
Children’s Heart Associates
571.292.9940
Mohamed Mardini, MD
Children’s Heart Institute
866.645.4055
Hasan Abdallah, MD
Robert Barlow, MD
Amir Dangol, MD
Georgios Hartas, MD
Thammineni Kalpana, MD
Louay Toni, MD
Rahel Zubairi, MD
Pediatric Cardiology Associates
703.573.0504
Annette Ansong, MD
Alan Benheim, MD
Robert Escalera, MD
Sharon Karr, MD
Jin Park, MD
Sherif Tawfik, MD
Pediatric Cardiac Anesthesia
Ahmed Elrefai, MD
Erin Foley, MD
Jennifer Maher, MD
Benjamin Cramer, MD
Robert Mesrobian, MD
Pediatric Preventive
Cardiology and Obesity
The Healthy Heart Center
800.784.8590
Wali Gauvin, MD
Electrophysiology
Inova Medical Group - Arrhythmia
703.289.9400
Ted Friehling, MD
Children’s Heart Institute
866.645.4055
Rahel Zubairi, MD
Inova Children’s Heart
Program Contacts
Adult Congenital Heart Clinic
703.776.3599
Pediatric Cardiac Service Line Leader
Lisa Jacobs, RN, PNP-AC
703.776.6652
Pediatric Cardiac Services
Vanessa Alecia, RN, FNP-BC
Pediatric Cardiovascular Surgery
Nurse Practitioner
703.776.3521
Pediatric Cardiac Intensive Care
and PICU
Swati Agarwal, MD
Gail Green, MSN, RN, CCRN
Clinical Director
703.776.6478
Pediatric Cardiac and
Intermediate Care Units
Stephanie Donatuti, BSN, CPN
Clinical Director
703.776.2926
Cardiac Child Life Services
Hanna Bratt, CCLS
Cara Calderon, CCLS
Jamie Gentile, CCLS
703.776.6486
Fetal Care Program
Kelly Gallo, RN
Patient Navigator
703.776.6371 or [email protected]
Single Ventricle Clinic
Jaime Langdon, RN
Patient Navigator
703.776.5049
G33814/7-15/8500
Inova Children’s Hospital is
ranked among the best in the
nation for Neonatology and
Cardiology & Heart Surgery
About Our Program
The Congenital Heart Program at Inova Children’s
Hospital, ranked 47th in the nation in cardiology by U.S.
News & World Report (2015-2016), has been caring for
the hearts of our region’s children for more than 25
years. Our pediatric cardiologists, electrophysiologists,
anesthesiologists, radiologists, perinatologists and
cardiac surgeons have dedicated their practice to
helping children overcome complex congenital heart
abnormalities. Part of the Inova Heart and Vascular
Institute, the Congenital Heart Program is able to provide
a lifetime of care, starting before birth through childhood
and throughout adult life in the Adult Congenital Program.
Recent program achievements include:
• In 2014, the pediatric and fetal echo program
received ICEAL certification. This certification
is based on the IAC Standards and Guidelines
for Echocardiography Accreditation. It is a
testament to the protocol driven approach that
the echocardiography technologists and pediatric
cardiologists follow each day within the hospital
setting.
• This year, the Cardiac Neurodevelopmental
Clinic was established to serve the Norwood,
deep hypothermic arrest, and cardiac ECMO
patient population. Each child is seen by a
neuropsychiatrist, who determines if addtional
support services such as physical therapy,
occcupational therapy, speech or specialized
school services are needed.
• The 2014 Star Kid Fun run, which supports the
cardiac program, succeeded in raising more than
$150,000 with 1,600 runners and walkers.
• The Inova Children’s Hospital Neonatal Intensive
Care Unit, where most of the cardiac patients
spend their first few days – or months – of life
has again been recognized by U.S. News &
World Report as being among the nation’s top
50 Neonataology programs. The NICU was also
recertified by the Joint Commission with the
Gold Seal for the Care of Prematurity. The Inova
Children’s Hospital NICU was the first in the nation
to receive this award.
Pediatric Interventional Catheterizations by Type 2010-2014
Congenital Cardiac Catheterizations Volume: 2010-2014
PDA
■ Pediatric Interventional ■ Pediatric Diagnostic ■ Adult Interventional and Diagnostic
2
0
1
0
2
0
1
1
2
0
1
2
2
0
1
0
110
130
104
88
2
0
1
4
70
0
30
60
7
Melody
20
0
2
0
1
0
7 5
13
1
39
38
34
2
0
1
2
28
8
28
11 5
53
2
0
1
3
95
89
90
120
150
36
7
23
10
33
43
41
30
60
90
120
116
51
130
128
100
108
34
0
0
118
38
2
0
1
4
11
3
2
0
1
4
3
59
141
135
43
2
0
1
3
01
ICD
186
26
2
0
1
2
44
103
117
2
0
1
1
0
132
82
48
2
0
1
1
94
2
0
1
3
Hybrid
Pediatric Electrophysiology Procedures by Type: 2010-2014
■ Pediatric Open ■ Pediatric Closed ■ Adult Congenital
Balloon Dilation
2
122
77
ASD
Septostomy
120
88
Coil
Inova Children’s Congenital Heart Surgery Volume 2010-2014
50
15
56
2
0
1
1
18
49
10
2
0
1
2
17
52
7 5
2
0
1
3
11
58
5
2
0
1
4
16
49
100
150
200
20
40
Researchers from the Inova Translational Medicine Institute
are focused on discovering unknown genetic indicators for
congenital anomalies in the study Incidence and Burdon
of Congenital Anomalies, Genetic Disorders and Genetic
Suspicion in the Neonatal Intensive Care Unit. The goal
of the study is to identify genomic and molecular factors
that have significant linkage to congenital anomalies and
disorders in neonates and children that have not been
answered by traditional genetic testing. The basis of the
study is the trio-based whole-genome sequencing of the
child and both parents.
EP
Ablation
2
0
1
0
0
150
Pacers
13
6
60
5
7
1
Ongoing Studies
2
80
Research Focus
100
Closure of Atrial Septal Defects with the Amplatzer
Septal Occluder
James Thompson, MD
Contegra Pulmonary Valve, HDE
Lucas Collazo, MD
Dilations= PV,AoV, Coarct, Branch PAs, Conduits and Stents
National Collaborative to Improve Care of Children with
Complex Heart Disease
Harish Rudra, MD
Inova Children’s Mortality Rate as Compared to National Benchmarks
Expected STAT (basesd on STS/EACTS)
Actual Inova Children’s
Heart Surgeries
Expected Congenital Heart
Surgeons Society Mortality
Risk Adjustment for Congenital
Surgery (RACHS based on 2007 data)
5
4.1
3.9
4
3.3
3
3.5
3
2.6
2
3.3
2.7
2.6
2.4
2.9
2.6
2.1
2.2
4.1
2.4
2.2
2
1.4
1
0.4
0
2010
2011
2012
2013
2014
Anti-coagulation practices after cardiovascular surgery in
pediatric patients in the pediatric intensive care unit with
central venous catheters in place from 2009-2011
Charlene Davenport, MD
Volume and Survival by Surgical Procedure: 2010 - 2014
Surgical Procedure
2012
Volume
2012
Survival
2013
Volume
2013
Survival
2014
Volume
2014
Survival
19
100%
20
100%
15
100%
91%
6
100%
5
100%
7
100%
100%
13
100%
8
100%
3
100%
100%
5
100%
7
100%
8
88%
13
100%
27
96%
26
100%
17
100%
100%
7
100%
7
86%
3
100%
9
100%
2
100%
3
100%
4
100%
3
100%
3
66%
Partial Anomalous
Pulmonary Venous Return (PAPVR)
5
100%
2
100%
3
100%
4
100%
2
100%
Caval Pulmonary
Connections (Glenns and Fontans)
7
100%
17
100%
12
100%
16
100%
11
73%
Coarctation of the Aorta
9
100%
10
100%
14
100%
10
100%
8
100%
Systemic-Pulmonary Shunt
10
80%
9
100%
3
66%
4
100%
3
100%
Pacemakers and ICDs (primary and
replacements)
20
100%
13
100%
8
100%
9
100%
11
100%
Norwood/ Damus-Kaye-Stansel/Hybrids/Truncus with IAA
10
80%
15
93%
2
50%
8
100%
5
80%
ECMO Support
12
58%
12
58%
4
50%
5
80%
6
33%
2010
Volume
2010
Survival
Ventricular Septal Defect (VSD)
27
100%
14
Tetralogy of Fallot (TOF)
10
100%
11
Atrial Septal Defect (ASD)
4
100%
6
Arterial Switch for TGA (includes with
VSD, with Aortic arch repair)
9
78%
6
20
100%
Atrioventricular Canal Repair (AVC)
6
Total Anomalous
Pulmonary Venous Return (TAPVR)
Valves/Conduits
2011
2011
Volume Survival
100%
Incidence and Burden of Congenital Anomalies,
Genetic Disorders and Genetic Suspicion in Neonatal
and Pediatric Patients
Joseph Vockley, PhD, and Rajiv Bajeva, MD
About Our Program
The Congenital Heart Program at Inova Children’s
Hospital, ranked 47th in the nation in cardiology by U.S.
News & World Report (2015-2016), has been caring for
the hearts of our region’s children for more than 25
years. Our pediatric cardiologists, electrophysiologists,
anesthesiologists, radiologists, perinatologists and
cardiac surgeons have dedicated their practice to
helping children overcome complex congenital heart
abnormalities. Part of the Inova Heart and Vascular
Institute, the Congenital Heart Program is able to provide
a lifetime of care, starting before birth through childhood
and throughout adult life in the Adult Congenital Program.
Recent program achievements include:
• In 2014, the pediatric and fetal echo program
received ICEAL certification. This certification
is based on the IAC Standards and Guidelines
for Echocardiography Accreditation. It is a
testament to the protocol driven approach that
the echocardiography technologists and pediatric
cardiologists follow each day within the hospital
setting.
• This year, the Cardiac Neurodevelopmental
Clinic was established to serve the Norwood,
deep hypothermic arrest, and cardiac ECMO
patient population. Each child is seen by a
neuropsychiatrist, who determines if addtional
support services such as physical therapy,
occcupational therapy, speech or specialized
school services are needed.
• The 2014 Star Kid Fun run, which supports the
cardiac program, succeeded in raising more than
$150,000 with 1,600 runners and walkers.
• The Inova Children’s Hospital Neonatal Intensive
Care Unit, where most of the cardiac patients
spend their first few days – or months – of life
has again been recognized by U.S. News &
World Report as being among the nation’s top
50 Neonataology programs. The NICU was also
recertified by the Joint Commission with the
Gold Seal for the Care of Prematurity. The Inova
Children’s Hospital NICU was the first in the nation
to receive this award.
Pediatric Interventional Catheterizations by Type 2010-2014
Congenital Cardiac Catheterizations Volume: 2010-2014
PDA
■ Pediatric Interventional ■ Pediatric Diagnostic ■ Adult Interventional and Diagnostic
2
0
1
0
2
0
1
1
2
0
1
2
2
0
1
0
110
130
104
88
2
0
1
4
70
0
30
60
7
Melody
20
0
2
0
1
0
7 5
13
1
39
38
34
2
0
1
2
28
8
28
11 5
53
2
0
1
3
95
89
90
120
150
36
7
23
10
33
43
41
30
60
90
120
116
51
130
128
100
108
34
0
0
118
38
2
0
1
4
11
3
2
0
1
4
3
59
141
135
43
2
0
1
3
01
ICD
186
26
2
0
1
2
44
103
117
2
0
1
1
0
132
82
48
2
0
1
1
94
2
0
1
3
Hybrid
Pediatric Electrophysiology Procedures by Type: 2010-2014
■ Pediatric Open ■ Pediatric Closed ■ Adult Congenital
Balloon Dilation
2
122
77
ASD
Septostomy
120
88
Coil
Inova Children’s Congenital Heart Surgery Volume 2010-2014
50
15
56
2
0
1
1
18
49
10
2
0
1
2
17
52
7 5
2
0
1
3
11
58
5
2
0
1
4
16
49
100
150
200
20
40
Researchers from the Inova Translational Medicine Institute
are focused on discovering unknown genetic indicators for
congenital anomalies in the study Incidence and Burdon
of Congenital Anomalies, Genetic Disorders and Genetic
Suspicion in the Neonatal Intensive Care Unit. The goal
of the study is to identify genomic and molecular factors
that have significant linkage to congenital anomalies and
disorders in neonates and children that have not been
answered by traditional genetic testing. The basis of the
study is the trio-based whole-genome sequencing of the
child and both parents.
EP
Ablation
2
0
1
0
0
150
Pacers
13
6
60
5
7
1
Ongoing Studies
2
80
Research Focus
100
Closure of Atrial Septal Defects with the Amplatzer
Septal Occluder
James Thompson, MD
Contegra Pulmonary Valve, HDE
Lucas Collazo, MD
Dilations= PV,AoV, Coarct, Branch PAs, Conduits and Stents
National Collaborative to Improve Care of Children with
Complex Heart Disease
Harish Rudra, MD
Inova Children’s Mortality Rate as Compared to National Benchmarks
Expected STAT (basesd on STS/EACTS)
Actual Inova Children’s
Heart Surgeries
Expected Congenital Heart
Surgeons Society Mortality
Risk Adjustment for Congenital
Surgery (RACHS based on 2007 data)
5
4.1
3.9
4
3.3
3
3.5
3
2.6
2
3.3
2.7
2.6
2.4
2.9
2.6
2.1
2.2
4.1
2.4
2.2
2
1.4
1
0.4
0
2010
2011
2012
2013
2014
Anti-coagulation practices after cardiovascular surgery in
pediatric patients in the pediatric intensive care unit with
central venous catheters in place from 2009-2011
Charlene Davenport, MD
Volume and Survival by Surgical Procedure: 2010 - 2014
Surgical Procedure
2012
Volume
2012
Survival
2013
Volume
2013
Survival
2014
Volume
2014
Survival
19
100%
20
100%
15
100%
91%
6
100%
5
100%
7
100%
100%
13
100%
8
100%
3
100%
100%
5
100%
7
100%
8
88%
13
100%
27
96%
26
100%
17
100%
100%
7
100%
7
86%
3
100%
9
100%
2
100%
3
100%
4
100%
3
100%
3
66%
Partial Anomalous
Pulmonary Venous Return (PAPVR)
5
100%
2
100%
3
100%
4
100%
2
100%
Caval Pulmonary
Connections (Glenns and Fontans)
7
100%
17
100%
12
100%
16
100%
11
73%
Coarctation of the Aorta
9
100%
10
100%
14
100%
10
100%
8
100%
Systemic-Pulmonary Shunt
10
80%
9
100%
3
66%
4
100%
3
100%
Pacemakers and ICDs (primary and
replacements)
20
100%
13
100%
8
100%
9
100%
11
100%
Norwood/ Damus-Kaye-Stansel/Hybrids/Truncus with IAA
10
80%
15
93%
2
50%
8
100%
5
80%
ECMO Support
12
58%
12
58%
4
50%
5
80%
6
33%
2010
Volume
2010
Survival
Ventricular Septal Defect (VSD)
27
100%
14
Tetralogy of Fallot (TOF)
10
100%
11
Atrial Septal Defect (ASD)
4
100%
6
Arterial Switch for TGA (includes with
VSD, with Aortic arch repair)
9
78%
6
20
100%
Atrioventricular Canal Repair (AVC)
6
Total Anomalous
Pulmonary Venous Return (TAPVR)
Valves/Conduits
2011
2011
Volume Survival
100%
Incidence and Burden of Congenital Anomalies,
Genetic Disorders and Genetic Suspicion in Neonatal
and Pediatric Patients
Joseph Vockley, PhD, and Rajiv Bajeva, MD
About Our Program
The Congenital Heart Program at Inova Children’s
Hospital, ranked 47th in the nation in cardiology by U.S.
News & World Report (2015-2016), has been caring for
the hearts of our region’s children for more than 25
years. Our pediatric cardiologists, electrophysiologists,
anesthesiologists, radiologists, perinatologists and
cardiac surgeons have dedicated their practice to
helping children overcome complex congenital heart
abnormalities. Part of the Inova Heart and Vascular
Institute, the Congenital Heart Program is able to provide
a lifetime of care, starting before birth through childhood
and throughout adult life in the Adult Congenital Program.
Recent program achievements include:
• In 2014, the pediatric and fetal echo program
received ICEAL certification. This certification
is based on the IAC Standards and Guidelines
for Echocardiography Accreditation. It is a
testament to the protocol driven approach that
the echocardiography technologists and pediatric
cardiologists follow each day within the hospital
setting.
• This year, the Cardiac Neurodevelopmental
Clinic was established to serve the Norwood,
deep hypothermic arrest, and cardiac ECMO
patient population. Each child is seen by a
neuropsychiatrist, who determines if addtional
support services such as physical therapy,
occcupational therapy, speech or specialized
school services are needed.
• The 2014 Star Kid Fun run, which supports the
cardiac program, succeeded in raising more than
$150,000 with 1,600 runners and walkers.
• The Inova Children’s Hospital Neonatal Intensive
Care Unit, where most of the cardiac patients
spend their first few days – or months – of life
has again been recognized by U.S. News &
World Report as being among the nation’s top
50 Neonataology programs. The NICU was also
recertified by the Joint Commission with the
Gold Seal for the Care of Prematurity. The Inova
Children’s Hospital NICU was the first in the nation
to receive this award.
Pediatric Interventional Catheterizations by Type 2010-2014
Congenital Cardiac Catheterizations Volume: 2010-2014
PDA
■ Pediatric Interventional ■ Pediatric Diagnostic ■ Adult Interventional and Diagnostic
2
0
1
0
2
0
1
1
2
0
1
2
2
0
1
0
110
130
104
88
2
0
1
4
70
0
30
60
7
Melody
20
0
2
0
1
0
7 5
13
1
39
38
34
2
0
1
2
28
8
28
11 5
53
2
0
1
3
95
89
90
120
150
36
7
23
10
33
43
41
30
60
90
120
116
51
130
128
100
108
34
0
0
118
38
2
0
1
4
11
3
2
0
1
4
3
59
141
135
43
2
0
1
3
01
ICD
186
26
2
0
1
2
44
103
117
2
0
1
1
0
132
82
48
2
0
1
1
94
2
0
1
3
Hybrid
Pediatric Electrophysiology Procedures by Type: 2010-2014
■ Pediatric Open ■ Pediatric Closed ■ Adult Congenital
Balloon Dilation
2
122
77
ASD
Septostomy
120
88
Coil
Inova Children’s Congenital Heart Surgery Volume 2010-2014
50
15
56
2
0
1
1
18
49
10
2
0
1
2
17
52
7 5
2
0
1
3
11
58
5
2
0
1
4
16
49
100
150
200
20
40
Researchers from the Inova Translational Medicine Institute
are focused on discovering unknown genetic indicators for
congenital anomalies in the study Incidence and Burdon
of Congenital Anomalies, Genetic Disorders and Genetic
Suspicion in the Neonatal Intensive Care Unit. The goal
of the study is to identify genomic and molecular factors
that have significant linkage to congenital anomalies and
disorders in neonates and children that have not been
answered by traditional genetic testing. The basis of the
study is the trio-based whole-genome sequencing of the
child and both parents.
EP
Ablation
2
0
1
0
0
150
Pacers
13
6
60
5
7
1
Ongoing Studies
2
80
Research Focus
100
Closure of Atrial Septal Defects with the Amplatzer
Septal Occluder
James Thompson, MD
Contegra Pulmonary Valve, HDE
Lucas Collazo, MD
Dilations= PV,AoV, Coarct, Branch PAs, Conduits and Stents
National Collaborative to Improve Care of Children with
Complex Heart Disease
Harish Rudra, MD
Inova Children’s Mortality Rate as Compared to National Benchmarks
Expected STAT (basesd on STS/EACTS)
Actual Inova Children’s
Heart Surgeries
Expected Congenital Heart
Surgeons Society Mortality
Risk Adjustment for Congenital
Surgery (RACHS based on 2007 data)
5
4.1
3.9
4
3.3
3
3.5
3
2.6
2
3.3
2.7
2.6
2.4
2.9
2.6
2.1
2.2
4.1
2.4
2.2
2
1.4
1
0.4
0
2010
2011
2012
2013
2014
Anti-coagulation practices after cardiovascular surgery in
pediatric patients in the pediatric intensive care unit with
central venous catheters in place from 2009-2011
Charlene Davenport, MD
Volume and Survival by Surgical Procedure: 2010 - 2014
Surgical Procedure
2012
Volume
2012
Survival
2013
Volume
2013
Survival
2014
Volume
2014
Survival
19
100%
20
100%
15
100%
91%
6
100%
5
100%
7
100%
100%
13
100%
8
100%
3
100%
100%
5
100%
7
100%
8
88%
13
100%
27
96%
26
100%
17
100%
100%
7
100%
7
86%
3
100%
9
100%
2
100%
3
100%
4
100%
3
100%
3
66%
Partial Anomalous
Pulmonary Venous Return (PAPVR)
5
100%
2
100%
3
100%
4
100%
2
100%
Caval Pulmonary
Connections (Glenns and Fontans)
7
100%
17
100%
12
100%
16
100%
11
73%
Coarctation of the Aorta
9
100%
10
100%
14
100%
10
100%
8
100%
Systemic-Pulmonary Shunt
10
80%
9
100%
3
66%
4
100%
3
100%
Pacemakers and ICDs (primary and
replacements)
20
100%
13
100%
8
100%
9
100%
11
100%
Norwood/ Damus-Kaye-Stansel/Hybrids/Truncus with IAA
10
80%
15
93%
2
50%
8
100%
5
80%
ECMO Support
12
58%
12
58%
4
50%
5
80%
6
33%
2010
Volume
2010
Survival
Ventricular Septal Defect (VSD)
27
100%
14
Tetralogy of Fallot (TOF)
10
100%
11
Atrial Septal Defect (ASD)
4
100%
6
Arterial Switch for TGA (includes with
VSD, with Aortic arch repair)
9
78%
6
20
100%
Atrioventricular Canal Repair (AVC)
6
Total Anomalous
Pulmonary Venous Return (TAPVR)
Valves/Conduits
2011
2011
Volume Survival
100%
Incidence and Burden of Congenital Anomalies,
Genetic Disorders and Genetic Suspicion in Neonatal
and Pediatric Patients
Joseph Vockley, PhD, and Rajiv Bajeva, MD
A Fulfilled Life
Adele
NONPROFIT ORG.
U.S. POSTAGE
PAID
PERMIT NO. 7118
MERRIFIELD, VA
Inova Children’s Hospital
3300 Gallows Road
Falls Church, VA 22042
From the moment her daughter
Adele was born, Kim Spitz knew
something was wrong. The baby
was sluggish. She struggled to
eat. She rarely cried. Doctors
reassured Kim and her husband
Doug that everything was fine.
“Nobody seemed to take our
concerns seriously,” Kim says.
After numerous appointments, a pediatrician finally
detected a heart murmur. Adele needed to go straight
to the Emergency Room. Stunned, Kim and Doug rushed
the infant to Inova Children’s Hospital, where Jin Park,
MD, one of Inova Children’s pediatric cardiologists,
performed an echocardiogram and delivered a
devastating diagnosis: Adele had total anomalous
pulmonary venous return (TAPVR), a rare congenital
malformation in which all four pulmonary veins do
not connect normally to the left atrium. Her heart was
obstructed and dangerously enlarged. She would need
surgery urgently to repair the defect.
Kim and Doug struggled to digest the news. “We
were relieved to have an explanation, but also panic
stricken,” Kim recalls. “We had no idea what lay ahead.”
The hospital’s pediatric heart surgery team, led by
cardiac surgeon Lucas Collazo, MD, rallied to provide
reassurance and support. They had performed this type
of procedure many times before – on babies just as
small – with excellent results. Their confidence buoyed
the couple in the time leading up to Adele’s procedure.
But as nurses wheeled away their one-month-old
daughter for open heart surgery, Kim collapsed in Doug’s
arms. “It was just about the most grueling thing we could
ever experience,” she says.
Dr. Collazo and his very experienced surgical team
performed a complex repair procedure to restore normal
blood circulation to Adele’s heart. They reconnected
the pulmonary veins in the proper position, closed
off the abnormal connections between blood vessels
and closed the atrial septal defect. The surgery was a
complete success.
When she saw her daughter in the intensive care unit,
Kim recalls a “symphony of medical paraphernalia”
surrounding the infant. A tangle of tubes and wires
covered every patch of skin. But she noticed something
else as well – for the first time in her life, Adele was
moving like a normal baby.
The little girl spent the next few weeks in the hospital,
gaining strength and weight. Finally, Kim and Doug were
able to take their daughter home to Aldie, where she
continued to astound her family with her rapid progress.
Today, she is a healthy, thriving 15-month-old, who loves
to go out, meet people and play with her three-year-old
sister, Lilly. “She is so beautiful, with such personality and
attitude,” says Kim. “She has a thirst for life. If she didn’t
have that drive imagine how different things would be
today.”
The family is eternally grateful to Dr. Collazo and the
entire Inova Children’s Hospital team for saving Adele’s
life. “They gave us our daughter back and we will forever
carry a piece of them in our hearts,” Kim says. “It’s
amazing to think that if this had happened in the past,
our child would have died. But today she can be fixed
and treated and go on to live a very fulfilled life.”
“It’s amazing to think that if this had happened in the past,
our child would have died. But today she can be fixed and
treated and go on to live a very fulfilled life.”
Kim Spitz
2014
Inova Children’s Hospital
Pediatric Cardiac Outcomes
About Inova Children’s Hospital
Inova Children’s Hospital is Northern Virginia’s
only children’s hospital. Our 186-bed, full service
children’s hospital offers a complete range of
services in more than 35 pediatric specialties
including cardiology and cardiac surgery,
gastroenterology, hematology/oncology,
nephrology and kidney transplant, general
surgery and radiology.
Located on the Inova Fairfax Medical Campus,
Inova Children’s Hospital serves as the region’s
referral center, with the only pediatric trauma
care center and Pediatric Intensive Care
Unit (PICU) in Northern Virginia. Our Level IV
Neonatal Intensive Care Unit (NICU) is a national
leader, providing highly-specialized care to the
most premature or ill newborns. Our PICU and
NICU have been nationally recognized for their
quality of care with the Beacon Gold Award for
Pediatric Critical Care, the Joint Commission’s
Gold Seal of Approval for Premature Infant Care,
and U.S. News & World Report has named
Inova Children’s Hospital amoung the top in the
nation for Neonatology, Cardiology and
Heart Surgery.
Our physicians focus on children - whether
they face a single procedure or multiple
procedures requiring a variety of specialists.
We provide high-quality services,
compassionate patient care and
state-of-the-art technology, enabling us
to remain the pediatric hospital of choice
for physicians and families.
Cardiac Surgery
Cardiac Vascular & Thoracic
Surgery Associates, P.C.
703.280.5858
Lucas Collazo, MD
Medical Director
Shelly Fleischer, PA
Chris Van Eyck, PA
Cardiology
Child Cardiology Associates
703.876.8410
Patrick Callahan, MD
Steven Herold, MD
Jared Hershenson, MD
William Kirby, MD
Jennifer Lindsey, MD
Jennifer O’Neil, MD
Harish Rudra, DO
Christopher Talluto, MD
James Thompson, MD
Children’s Heart Associates
571.292.9940
Mohamed Mardini, MD
Children’s Heart Institute
866.645.4055
Hasan Abdallah, MD
Robert Barlow, MD
Amir Dangol, MD
Georgios Hartas, MD
Thammineni Kalpana, MD
Louay Toni, MD
Rahel Zubairi, MD
Pediatric Cardiology Associates
703.573.0504
Annette Ansong, MD
Alan Benheim, MD
Robert Escalera, MD
Sharon Karr, MD
Jin Park, MD
Sherif Tawfik, MD
Pediatric Cardiac Anesthesia
Ahmed Elrefai, MD
Erin Foley, MD
Jennifer Maher, MD
Benjamin Cramer, MD
Robert Mesrobian, MD
Pediatric Preventive
Cardiology and Obesity
The Healthy Heart Center
800.784.8590
Wali Gauvin, MD
Electrophysiology
Inova Medical Group - Arrhythmia
703.289.9400
Ted Friehling, MD
Children’s Heart Institute
866.645.4055
Rahel Zubairi, MD
Inova Children’s Heart
Program Contacts
Adult Congenital Heart Clinic
703.776.3599
Pediatric Cardiac Service Line Leader
Lisa Jacobs, RN, PNP-AC
703.776.6652
Pediatric Cardiac Services
Vanessa Alecia, RN, FNP-BC
Pediatric Cardiovascular Surgery
Nurse Practitioner
703.776.3521
Pediatric Cardiac Intensive Care
and PICU
Swati Agarwal, MD
Gail Green, MSN, RN, CCRN
Clinical Director
703.776.6478
Pediatric Cardiac and
Intermediate Care Units
Stephanie Donatuti, BSN, CPN
Clinical Director
703.776.2926
Cardiac Child Life Services
Hanna Bratt, CCLS
Cara Calderon, CCLS
Jamie Gentile, CCLS
703.776.6486
Fetal Care Program
Kelly Gallo, RN
Patient Navigator
703.776.6371 or [email protected]
Single Ventricle Clinic
Jaime Langdon, RN
Patient Navigator
703.776.5049
G33814/7-15/8500
Inova Children’s Hospital is
ranked among the best in the
nation for Neonatology and
Cardiology & Heart Surgery