Download View survey - Becker Medical Library

Genomic Information Needs Project
Survey contents for the Genomic Information Needs of Basic Science Researchers, Clinical
Research Professionals and Healthcare Professionals
Contents
Genomic Information Needs Project........................................................................................... 1
SURVEY FLOWS: ..................................................................................................................... 5
Flow for those who only work in research (i.e. Basic Science Researchers) ........................... 5
Consent Block ..................................................................................................................... 5
Affiliation Information Block ................................................................................................. 5
Demographic Information Block .......................................................................................... 5
Screener Block ................................................................................................................... 5
Research Background Block ............................................................................................... 5
Genomic Education All Block .............................................................................................. 5
Genomic Education Researcher Block ................................................................................ 5
Databases and Software Block ........................................................................................... 5
Staying Current Block ......................................................................................................... 5
Seeking Information Block .................................................................................................. 5
Library Use/Wrap Up Block ................................................................................................. 5
Incentive Block .................................................................................................................... 5
Flow for those who work in research and with patients (i.e. Clinical Research Professionals) 6
Consent Block ..................................................................................................................... 6
Affiliation Information Block ................................................................................................. 6
Demographic Information Block .......................................................................................... 6
Screener Block ................................................................................................................... 6
Clinical Background Block ................................................................................................... 6
Research Background Block ............................................................................................... 6
Genomic Education All Block .............................................................................................. 6
Genomic Education for Researchers Block ......................................................................... 6
Genomic Education for Healthcare Professionals Block ...................................................... 6
Genomic Testing Block ....................................................................................................... 6
Study Management Block ................................................................................................... 6
Databases and Software Block ........................................................................................... 6
Staying Current Block ......................................................................................................... 6
Seeking Information Block .................................................................................................. 6
Library Use/Wrap Up Block ................................................................................................. 6
Incentive Block .................................................................................................................... 6
Flow for those who work only with patients (i.e. Healthcare Professionals) ............................. 7
Consent Block ..................................................................................................................... 7
Affiliation Information Block ................................................................................................. 7
Demographic Information Block .......................................................................................... 7
Screener Block ................................................................................................................... 7
Clinical Background Block ................................................................................................... 7
Genomic Education All Block .............................................................................................. 7
Genomic Education for Healthcare Professional Block........................................................ 7
Genomic Testing Block ....................................................................................................... 7
Staying Current Block ......................................................................................................... 7
Seeking Information Block .................................................................................................. 7
Library Use/Wrap Up Block ................................................................................................. 7
Incentive Block .................................................................................................................... 7
Flow for those who spend most of their time in class (i.e. Teacher or Student) ....................... 7
Consent Block ..................................................................................................................... 7
Affiliation Information Block ................................................................................................. 7
Demographic Information Block .......................................................................................... 7
Screener Block ................................................................................................................... 7
Staying Current Block ......................................................................................................... 7
Seeking Information Block .................................................................................................. 7
Library Use/Wrap Up Block ................................................................................................. 7
Incentive Block .................................................................................................................... 7
QUESTION BLOCKS: ................................................................................................................ 8
CONSENT ................................................................................................................................. 8
Q1 Welcome!........................................................................................................................ 8
AFFILIATION INFORMATION ................................................................................................... 9
Q2 Please choose the name of your organization or institution. ............................................. 9
DEMOGRAPHIC INFORMATION .............................................................................................. 9
Q4 Please provide the name of your department(s) and your current job title. ........................ 9
Q5 Which of the following best describes your role?............................................................... 9
Q6 Tell us more about your role on campus (including reason(s) you selected “Other” as your
role in a previous question)....................................................................................................10
Q7 As faculty or staff, please choose your functional role. .....................................................10
Q8 As faculty or staff, please indicate the year you completed the following degree(s) (as
applicable): ............................................................................................................................10
Q9 As a student or trainee, what is your current program or role? .........................................11
Q10 As a student or trainee, what year did you begin your current program or role? .............11
SCREENER QUESTION ..........................................................................................................11
Q11 How would you classify your overall role? ......................................................................11
STAYING CURRENT ................................................................................................................12
Q12 What are the most important types of information sources that you rely on to stay current
in your field? ..........................................................................................................................12
Q13 On average, how often do you use information sources (such as the ones you listed in
the previous question) to stay current? ..................................................................................12
SEEKING INFORMATION ........................................................................................................13
Q14 Where do you go to find information about a new topic? ................................................13
Q15 In the past 12 months, have you looked for information on a specific topic and not been
able to find any information, or as much information as you would have liked? .....................14
Q16 What were the topic(s) that you were unable to find any information on, or as much
information as you would have liked? ....................................................................................14
Q17 Please tell us what the challenges were in obtaining the desired information. ................14
LIBRARY USE/WRAP UP .........................................................................................................15
Q18 How do you like to receive word about events offered at Washington University? .........15
Q19 In the past 12 months, for what reason(s) did you use Becker Library’s resources and/or
space?...................................................................................................................................16
Q20 In the past 12 months, for what reason(s) did you get assistance from Becker Library
personnel? ............................................................................................................................17
Q21 Please identify some barriers that prevent you from getting your work done: .................18
Q22 In your opinion, what are the strengths of Becker Library? .............................................18
Q23 In your opinion, what are the weaknesses of Becker Library? ........................................18
Q24 Are there any new and different services you’d like to see provided by Becker Library? 19
Q25 Please share any other comments you have about genomic medicine, Becker Library, or
this survey. ............................................................................................................................19
INCENTIVE...............................................................................................................................19
Q26 Please provide your email address to win one of thirty $50 Amazon gift cards:..............19
Q27 Are you willing to participate in a focus group? ..............................................................19
CLINICAL BACKGROUND .......................................................................................................20
Q28 What is your clinical area of focus? ................................................................................20
Q29 In which settings do you spend your time?.....................................................................22
Q30 How often do you see patients? .....................................................................................22
GENOMIC EDUCATION ALL....................................................................................................22
Q31 What genetics training have you completed in the last 10 years? How effective was this
training? ................................................................................................................................23
Q32 Which of the following topics related to genetics and genomics would you like to learn
more about? ..........................................................................................................................24
GENOMIC EDUCATION FOR HEALTHCARE PROFESSIONALS ...........................................26
Q33 Would you be receptive to any of the following types of support when working with
patients?................................................................................................................................26
GENOMIC TESTING ................................................................................................................26
Q34 Which of the following genetic needs have you been faced with in the past 10 years
when working with patients? How prepared do you feel to address these situations?............27
Q35 If patients asked questions about direct to consumer (DTC) genomic tests or genetic
tests ordered in the clinic, did they want to know: ..................................................................29
Q36 What online or print resources do you suggest to patients who need information on
genetic diseases or related issues? .......................................................................................29
Q37 Do you agree or disagree with the following statements? ..............................................30
RESEARCH BACKGROUND ....................................................................................................30
Q38 What are your primary research interests: ....................................................................30
Q39 Please list your primary research techniques. ................................................................31
Q40 What are the primary system(s) you study: ....................................................................31
GENOMIC EDUCATION FOR RESEARCHERS .......................................................................32
Q41 Would you be receptive to any of the following types of support when planning or doing
your research? ......................................................................................................................32
STUDY MANAGEMENT ...........................................................................................................33
Q42 Are you involved with Clinical Trials? .............................................................................33
Q43 What is your role in the clinical trials process? ...............................................................34
Q44 What resources do you consult for information about clinical trials?...............................35
Q45 Which Washington University resources have you used for your clinical trial work? ......37
DATABASES AND SOFTWARE ...............................................................................................37
Q46 What are the most important individual web-based scientific databases that you use to
do your research? .................................................................................................................37
Q47 What are the most important individual software tools that you use to do your research?
..............................................................................................................................................38
Q48 Are there additional databases or software tools that you would like to see freely
available on the Research Pod computers in Becker Library? ...............................................39
Q49 Are there additional databases or software tools that you would like to see available at
reduced cost through Becker Library managed site licenses? ...............................................39
Q50 Are there training workshops or classes that you would like to see offered by the
Bioinformatics@Becker program at Becker Library? .............................................................39
SURVEY FLOWS:
Flow for those who only work in research (i.e. Basic Science Researchers)
Consent Block
Affiliation Information Block
Demographic Information Block
Screener Block
Research Background Block
Genomic Education All Block
Genomic Education Researcher Block
Databases and Software Block
Staying Current Block
Seeking Information Block
Library Use/Wrap Up Block
Incentive Block
Flow for those who work in research and with patients (i.e. Clinical
Research Professionals)
Consent Block
Affiliation Information Block
Demographic Information Block
Screener Block
Clinical Background Block
Research Background Block
Genomic Education All Block
Genomic Education for Researchers Block
Genomic Education for Healthcare Professionals Block
Genomic Testing Block
Study Management Block
Databases and Software Block
Staying Current Block
Seeking Information Block
Library Use/Wrap Up Block
Incentive Block
Flow for those who work only with patients (i.e. Healthcare Professionals)
Consent Block
Affiliation Information Block
Demographic Information Block
Screener Block
Clinical Background Block
Genomic Education All Block
Genomic Education for Healthcare Professional Block
Genomic Testing Block
Staying Current Block
Seeking Information Block
Library Use/Wrap Up Block
Incentive Block
Flow for those who spend most of their time in class (i.e. Teacher or
Student)
Consent Block
Affiliation Information Block
Demographic Information Block
Screener Block
Staying Current Block
Seeking Information Block
Library Use/Wrap Up Block
Incentive Block
QUESTION BLOCKS:
CONSENT
Q1 Welcome!
Please read the following consent information. After reading the information, you may provide
your consent and confirm you are 18 years of age or older by continuing into the survey.
•
•
•
•
•
•
•
•
•
The purpose of this study is to provide the Becker Medical Library with a better
understanding of the genomics information needs at Washington University in St. Louis
and its affiliates, and possibly beyond. Participation from the greater scientific and
healthcare community is welcome. You are invited to take this survey if you work or
study in the fields of research or healthcare and are 18 years of age or older.
The survey will take 15 to 60 minutes to complete. Your participation in the survey is
voluntary. You may skip any questions you prefer not to answer. Any responses you
provide will be collected.
You may end the survey at any time, but you will not be able to re-enter the survey
where you left off. Leaving the survey indicates your completion of this survey.
We will keep the information you provide confidential. However, federal regulatory
agencies and Washington University, including the Washington University Institutional
Review Board (a committee that reviews and approves research studies) may inspect
and copy records pertaining to this research. If we write a report about this survey we
will do so in such a way that you cannot be identified.
There are no known risks from taking this survey, and you will not benefit
personally. However we hope that others may benefit in the future from what we learn
as a result of this survey.
You will not have any costs for taking this survey. If you decide not to take this survey, or
if you stop participating at any time, you won't be penalized or lose any benefits for
which you otherwise qualify.
You will not be paid for taking this survey. However, if you complete the survey and
provide your email address, you will be entered into a drawing for one of thirty $50
Amazon gift cards. If you win a gift card, you will need to provide your social security
number (SSN) in order for us to pay you. Your SSN will not be retained for research
purposes. Your email address will not be used in the analysis of research data, nor will
it be provided to outside parties. You may also choose to participate in a focus group.
If you have any questions about the survey, please call the Becker Medical Library at
(314)362-7080 and ask for Dr. Kristi Holmes or Dr. Marcy Vana, or email them at
[email protected]. You may also visit our project website.
If you have questions about the rights of research participants, please contact the
Human Research Protection Office, 660 S. Euclid Ave., Campus Box 8089, St. Louis,
MO 63110, (314) 633-7400 or 1-(800)-438-04455 or email [email protected]. To
offer input about your experiences as a research participant or to speak to someone
other than the research staff, call the Human Research Protection Office at the number
above.
Thank you for your consideration. Continuing forward into the survey indicates your willingness
to participate in this survey and confirms that you are 18 years of age or older.
AFFILIATION INFORMATION
Q2 Please choose the name of your organization or institution. Please select
all that apply.
 Washington University in St. Louis and local partners (including WU School of Medicine,
Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis Children's Hospital,
Missouri Baptist, etc.) (1)
 Other (please specify): (2) ____________________
Q3 What is the zip code of your primary place of employment?
Zip Code: (1)
DEMOGRAPHIC INFORMATION
Q4 Please provide the name of your department(s) and your current job
title. Please separate multiple answers with a comma. If not applicable, leave blank.
Department(s): (1)
Job title: (2)
Q5 Which of the following best describes your role? Please select all that apply.





Faculty (1)
Staff (for example: administrative, clinical, research, other) (2)
Student (3)
Trainee (4)
Other (please specify): (5) ____________________
Answer If Which of the following best describes your role?Please select all that apply. Other
(please specify): Is Selected
Q6 Tell us more about your role on campus (including reason(s) you
selected “Other” as your role in a previous question).
Year began current role: (1)
Is there additional information you'd like to share about your role? (2)
Answer If Which of the following best describes your role? Please select all that apply. Faculty
Is Selected Or Which of the following best describes your role?Please select all that apply. Staff
(for example: administrative, clinical, research, other) Is Selected
Q7 As faculty or staff, please choose your functional role. Please select all that
apply.
 Physician (1)
 Researcher or investigator (2)
 Nurse (3)
 Study Coordinator (4)
 Administrator (5)
 Data Coordinator (6)
 Clinical Research Assistant (7)
 Teacher/Educator (8)
 Other (please specify): (9) ____________________
Answer If Which of the following best describes your role?Please select all that apply. Faculty Is
Selected Or Which of the following best describes your role?Please select all that apply. Staff
(for example: administrative, clinical, research, other) Is Selected
Q8 As faculty or staff, please indicate the year you completed the following
degree(s) (as applicable):
Year completed (1)
MD (1)
PhD (2)
RN (3)
MPH (4)
MS (5)
Other (please specify): (6)
Answer If Which of the following best describes your role?Please select all that apply. Student Is
Selected Or Which of the following best describes your role?Please select all that apply. Trainee
Is Selected
Q9 As a student or trainee, what is your current program or role? Please
select all that apply.
 MD program (1)
 PhD program (2)
 MD/PhD program (3)
 MS program (4)
 Resident (5)
 Clinical Fellow (6)
 Postdoctoral Fellow (7)
 Other (please specify): (8) ____________________
Answer If Which of the following best describes your role?Please select all that apply. Student Is
Selected Or Which of the following best describes your role?Please select all that apply. Trainee
Is Selected
Q10 As a student or trainee, what year did you begin your current program
or role?
1
9
9
5
(1
)
1
9
9
6
(2
)
1
9
9
7
(3
)
1
9
9
8
(4
)
1
9
9
9
(5
)
2
0
0
0
(6
)
2
0
0
1
(7
)
2
0
0
2
(8
)
2
0
0
3
(9
)
2
0
0
4
(1
0)
2
0
0
5
(1
1)
2
0
0
6
(1
2)
2
0
0
7
(1
3)
2
0
0
8
(1
4)
2
0
0
9
(1
5)
2
0
1
0
(1
6)
2
0
1
1
(1
7)
2
0
1
2
(1
8)
2
0
1
3
(1
9)
Y
e
ar
(1
)
SCREENER QUESTION
Q11 How would you classify your overall role?




All of my time is spent working with patients (1)
All of my time is spent doing research (2)
I work with patients and also do research (3)
The majority of my time is spent teaching or doing classwork (medical school or graduate
classes) (4)
2
0
1
4
(2
0)
STAYING CURRENT
Q12 What are the most important types of information sources that you rely
on to stay current in your field?
For Example: Conferences or society meetings:
ASCO Annual Meeting, ACC Annual Meeting Seminars: Grand rounds, CME, Division of
Cardiology weekly seminar Websites: NCI, NHGRI Newsletters: GeneticAlliance newsletter
Mailing Lists/Listservs: NCBIAnnounce, UCSC Genome Browser mailing list Social Media:
Twitter accounts or hashtags, YouTube channels, Facebook Journals: Nature Cell, Public
Library of Science Biology (PLoS Biology) Databases: Scopus, PubMed, data repository
alerts
Please separate multiple sources with a comma. You may list up to 5 sources for each
category.
Conferences or society meetings: (1)
Seminars: (2)
Websites: (3)
Newsletters: (4)
Mailing Lists/Listservs: (5)
Social Media: (6)
Journals: (7)
Databases: (8)
Other (please specify): (9)
Q13 On average, how often do you use information sources (such as the
ones you listed in the previous question) to stay current?
Daily (1)
Weekly
(2)
Monthly
(3)
Quarterly
(4)
Annually
(5)
Never (6)
Conferences
or society
meetings: (1)






Seminars: (2)






Websites: (3)






Newsletters:
(4)






Mailing
Lists/Listservs:
(5)






Social Media:
(6)





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Journals: (7)




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Databases:
(8)


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Other (please
specify): (9)
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SEEKING INFORMATION
Q14 Where do you go to find information about a new topic? For example:
Google, Wikipedia, PubMed, Scopus, online books, UpToDate, Coursera, colleagues, the
library, etc. Please separate multiple sources with a comma.
Q15 In the past 12 months, have you looked for information on a specific
topic and not been able to find any information, or as much information as
you would have liked?
 Yes (1)
 No (2)
Answer If In the past 12 months, have you looked for information on a specific topic and not
been able to find any information, or as much information as you would have liked? Yes Is
Selected
Q16 What were the topic(s) that you were unable to find any information on,
or as much information as you would have liked?
Please separate multiple
topics with a comma.
Answer If In the past 12 months, have you looked for information on a specific topic and not
been able to find any information, or as much information as you would have liked? Yes Is
Selected
Q17 Please tell us what the challenges were in obtaining the desired
information.
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
LIBRARY USE/WRAP UP
Q18 How do you like to receive word about events offered at Washington
University?
Very useful (1)
Useful (2)
Not useful (3)
Email directly from
department, program,
center, etc. (1)



Displayed on digital
signage in common
areas (2)



Displayed on posters
in common areas (3)



Announced on social
media (for example,
Twitter and
Facebook) (4)



Handouts such as
flyers or brochures
(5)



Announced on topicbased list servs or
mailing lists (6)



Announced on
websites or online
newsletters (for
example, Becker
Briefs) (7)



Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q19 In the past 12 months, for what reason(s) did you use Becker Library’s
resources and/or space?
Please select all that apply.










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Used Research Pod computers in Becker Library (1)
Used computers in Becker Library (other than Research Pod computers) (2)
Photocopied material (3)
Performed literature searches using Becker Library's databases or tools (4)
Searched for or made use of journal articles, books, or databases or other materials (in print
or online) (5)
Picked up or dropped off materials (6)
Quiet reading or working space (7)
Made use of meeting space in Becker Library (for example, conference rooms or the King
Center) (8)
Visited an Exhibit or Presentation (9)
Used archival and/or special collections (10)
I have not used Becker Library's resources or space in the past 12 months (11)
Other (please specify): (12) ____________________
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q20 In the past 12 months, for what reason(s) did you get assistance from
Becker Library personnel? Please select all that apply.








Received assistance with a literature search (1)
Received assistance finding an article, book, or other print or online resource (2)
Received assistance in the selection or use of software (3)
Received assistance with systematic review(s) (4)
Received assistance with reference management software (for example: EndNote) (5)
Received assistance on assessing my research impact (6)
Received research support through Becker Library's Bioinformatics@Becker program (7)
Attended class organized by Becker Library (for example: EndNote, PubMed searching,
Galaxy training) (8)
 Received assistance on complying with NIH Public Access Policy (9)
 I have not asked for assistance from Becker Library personnel in the past 12 months. (10)
 Other (please specify): (11) ____________________
Q21 Please identify some barriers that prevent you from getting your work
done:
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q22 In your opinion, what are the strengths of Becker Library?
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q23 In your opinion, what are the weaknesses of Becker Library?
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q24 Are there any new and different services you’d like to see provided by
Becker Library?
Q25 Please share any other comments you have about genomic
medicine, Becker Library, or this survey.
INCENTIVE
Q26 Please provide your email address to win one of thirty $50 Amazon gift
cards: In order to be entered into the drawing, you must provide an email address. The
drawing will be held on June 20, 2014 and recipient(s) will be contacted by email. Your email
address will not be used in the analysis of research data, nor will it be provided to outside
parties.
Email address to enter drawing: (1)
Q27 Are you willing to participate in a focus group?
Participants will receive a
catered meal or snacks as part of their participation. You must provide us with your email
address in order to participate. Your email address will not be used in the analysis of research
data, nor will it be provided to outside parties. You may be contacted by email between May
2014 and July 2014 about participating in a focus group located at the Becker Library (660 S.
Euclid Ave., St. Louis, MO 63110). No reimbursement for travel costs will be provided.
 Yes, I am willing. (1)
 No thanks. (2)
CLINICAL BACKGROUND
Q28 What is your clinical area of focus? Please select all that apply.

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
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






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
















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



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
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Adolescent Medicine (1)
Allergy and Immunology (2)
Anesthesiology (3)
Ambulatory Medicine (4)
Cardiology (5)
Critical Care Medicine (6)
Dermatology (7)
Diagnostic Medicine (8)
Bone and Mineral Diseases (9)
Cardiology (10)
Health Behavior (11)
Emergency Medicine (12)
Endocrinology (13)
Family Medicine or Family Practice (14)
Gastroenterology (15)
General Medical Sciences (16)
Genetics and Genomic Medicine (17)
Geriatrics & Nutrition (18)
Hematology (19)
Hospital Medicine (20)
Infectious Diseases (21)
Internal Medicine (22)
Pathology (Laboratory Medicine) (23)
Medical Education (24)
Medical Genetics (25)
Newborn Medicine (26)
Neurology (27)
Nuclear Medicine (28)
Obstetrics & Gynecology (29)
Oncology (30)
Ophthalmology (31)
Otolaryngology (32)
Pathology (Anatomic & Clinical) (33)
Pediatrics (34)
Physical Medicine and Rehabilitation (35)
Preventative Medicine (36)
Psychiatry (37)
Pulmonary (38)
Radiology (39)
Renal (40)
Rheumatology (41)





Sleep Medicine (42)
Surgery (all specialties) (43)
Urology (44)
I do not yet have a clinical area of focus. (45)
Other (please specify): (46) ____________________
Q29 In which settings do you spend your time? Please select all that apply.











Rural location (1)
Urban location (2)
Private office-based practice (3)
Academic medical clinic (4)
Academic hospital (5)
Community hospital (6)
Longer term care facility or assisted living facility (7)
Urgent care center (8)
Free or reduced cost medical clinic (9)
Veterans Affairs (VA) hospital (10)
Other (please specify): (11) ____________________
Q30 How often do you see patients? (7 days per week, 52 weeks per year)
Outpatients (days per week) (1)
Inpatient (weeks per year) (2)
Other (please specify): (3)
GENOMIC EDUCATION ALL
Q31 What genetics training have you completed in the last 10 years? How
effective was this training? Please indicate using the scale below. Please select all that
apply.
Completed training in the
past 10 years?
Yes (1)
No (2)
Effectiveness of completed training
Effective (1)
Somewhat
Effective (2)
Not Effective
(3)
CME/CE course in
genetics (1)





Genetics course in
college (2)





Genetics course in
medical school (3)





Genetics course in
graduate school
(4)





Residency course
in genetics (5)





Genetics course
during clinical
fellowship or
postdoc (6)





Grand Rounds on
genetics (7)





Training session at
professional
meeting (8)





Self directed
genetics education
(through journal
articles, online
tutorials, etc) (9)





Seminar/Workshop
in genetics (10)





Other (please
specify): (11)





Q32 Which of the following topics related to genetics and genomics would
you like to learn more about?
Very Interested (1)
Somewhat Interested
(2)
Not Interested (3)
Consumer Genomics
(including direct to
consumer tests) (1)



Current application of
genomics in
diagnosis and
treatment (2)



Delivery of complex
health information to
the public (3)



Molecular
Biology/Genetics
Refresher (4)



The Genetic Basis of
Disease (5)



Statistics for Genome
Research (6)



Genomes and
Genome Browsers
(7)



Consent and Tissue
Banking (8)



Research Ethics (9)



Genome Sequencing
Technologies (10)



Copy Number
Variation (11)



Analysis of the
Transcriptome (12)



Computational
Genomics (13)



Data and Research
Software (14)



Proteomics and Mass
Spectroscopy (15)



Genome Engineering
(16)



Functional Genomics
via Induced
Pluripotent Stem



(iPS) cells (17)
Metabolomics (18)



Epigenetics (19)



Pharmacogenomics
(20)



Genetic Variation and
Disease (21)



Genomics of the
Microbiome (22)



Somatic Genomics
(23)



Germline Genomics
(24)



Case Studies (various
topics) (25)



Susceptibility
Genetics (26)



Emerging Uses of
Genomics Data (27)



Other (please
specify): (28)



GENOMIC EDUCATION FOR HEALTHCARE PROFESSIONALS
Q33 Would you be receptive to any of the following types of support when
working with patients?
Very Interested (1)
Somewhat Interested
(2)
Not Interested (3)
Finding credible
health information for
my patients (1)



Finding clinical testing
facilities (2)



Finding information
about clinical trials
and clinical trial data
(3)



Finding information in
the literature about
diseases (for
example:
advancements in
diagnosis, treatment,
research) (4)



Finding specialists for
referral (5)



Finding educational
or certification
opportunities (6)



Gaining access to
point of care tools (for
example: UpToDate)
(7)



Other (please
specify): (8)



GENOMIC TESTING
Q34 Which of the following genetic needs have you been faced with in the
past 10 years when working with patients? How prepared do you feel to
address these situations? Please select all that apply.
Which of the following
have you faced in the
past 10 years?
Yes (1)
No (2)
How prepared do you feel to address these
situations?
Prepared
(1)
Somewhat
Prepared
(2)
Not
Prepared
(3)
Not
Applicable
(4)
Counseling
patients on
genetic testing
options (1)






Discussing
genetic test
results with
patient (2)






Collecting
family history
information and
applying it in
practice (3)






Advising or
providing
information to
patient or
patient’s family
about a genetic
disorder (4)






Consulting with
patients about
direct to
consumer test
results (5)






Interpreting
genetic test
results (6)






Diagnosing
patient with
genetic
disorder (7)






Knowing when
to order genetic
testing (8)






Knowing how
to order genetic






testing (9)
Treating patient
with genetic
disorder (10)






Knowing when
to refer patient
to clinical
geneticist or
genetic
counselor (11)






Knowing how
to find a clinical
geneticist or
genetic
counselor for a
referral (12)






Incorporating
genetic test
results to
prescribe
medications
(13)






Recommending
lifestyle
changes or
screening tests
at an earlier
age to
individuals who
are found to be
at increased
risk (14)






Maintaining the
genetic privacy
of patients (15)






Q35 If patients asked questions about direct to consumer (DTC) genomic
tests or genetic tests ordered in the clinic, did they want to know:











What you know about the test(s) (1)
Whether you think they are at risk for a particular disease (2)
What you know about the benefits of testing (3)
What you would do in their situation (4)
How the test results may change their care (5)
How a test result could potentially impact their family members (6)
What you know about the company or companies that are offering the test (7)
Whether the cost is appropriate for the type of information they will obtain (8)
Patients do not ask questions. (9)
This does not apply to my work. (10)
Other, please indicate: (11) ____________________
Q36 What online or print resources do you suggest to patients who need
information on genetic diseases or related issues? Please be as specific as
possible with your responses.
Q37 Do you agree or disagree with the following statements?
Agree (1)
Disagree (2)
No opinion (3)
I am knowledgeable
about the genetic
basis of common
disease. (1)



At this time, genetic
testing for risk for
common diseases
offers information that
is clinically useful. (2)



Within the next five
years, genetic
medicine will improve
clinical outcomes. (3)



Within the next five
years, patients’ desire
for genetic testing in
response to routine
health concerns will
increase. (4)



Genetic testing will
motivate patients to
adopt healthy
behaviors. (5)



Patients should
always consult a
health care
professional for
proper interpretation
of genetic testing
results. (6)



Privacy issues
surrounding genetic
information are
overwhelming. (7)



RESEARCH BACKGROUND
Q38 What are your primary research interests: For example: breast cancer, iPS
cells, diabetes, MAPK pathway, endocytosis, transcriptional networks, etc. Please separate
multiple interests with a comma.
Q39 Please list your primary research techniques.
For example: DNA/RNA
sequencing, flow cytometry, echocardiography, algorithm development, proteomics and mass
spectroscopy, in situ hybridization, etc. Please separate multiple techniques with a comma.
Q40 What are the primary system(s) you study:













Human (1)
Mouse (2)
Rat (3)
Zebrafish (4)
Drosophila (5)
Yeast (6)
Viruses (7)
Bacteria (8)
Fungi (9)
Protists (10)
Metazoa (11)
Plants (12)
Other (please specify): (13) ____________________
Please select all that apply.
GENOMIC EDUCATION FOR RESEARCHERS
Q41 Would you be receptive to any of the following types of support when
planning or doing your research?
Very Interested (1)
Somewhat Interested
(2)
Not Interested (3)
Selecting the most
appropriate software
for the task (1)



Software training (2)



Accessing free
software in the library
(3)



Accessing reducedprice software
through librarymanaged group or
site licenses (4)



Finding and
accessing public data
sources (5)



Assistance with
submitting data to
repositories (6)



Finding core research
facilities (7)



Getting help with
statistics,
measurement
methods and
research design (8)



Finding information
about clinical trials
and clinical trial data
(9)



Keeping track of
publications (for
example: using
reference
management
software such as
Papers or EndNote)
(10)



Finding funding
opportunities (11)



Finding collaborators
(12)



Finding biological
samples in
repositories (13)



Complying with public
access mandates
(such as the NIH
Public Access Policy)
(14)



Identifying various
and appropriate
publishing options for
manuscripts,
presentations, and
posters (for example:
journals, or
repositories) (15)



Assessing and
reporting the impact
of my research (16)



Finding opportunities
to present my
research (17)



Keeping track of the
latest developments
in my field (18)



Other (please
specify): (19)



STUDY MANAGEMENT
Q42 Are you involved with Clinical Trials?
 Yes (1)
 No (2)
If No Is Selected, Then Skip To End of Block
Q43 What is your role in the clinical trials process? Please select all that apply.














Design studies (1)
Seek funding to support the study (2)
Coordinate activities with industry partners (3)
Scheduling patient visits (4)
Collecting biological samples (5)
Coordinate sample banking (6)
Analyzing biological samples (7)
Reporting adverse events (8)
Data Analysis (9)
Reporting findings (10)
Submitting and tracking protocol with IRB (11)
Recruiting patients (12)
Consenting patients (13)
Other (please specify): (14) ____________________
Q44 What resources do you consult for information about clinical trials?
Please select all that apply.
Have used resource
(1)
Have NOT used
resource (2)
Not aware of
resource (3)
CenterWatch (1)



ClinicalTrials.gov (2)



ClinicalTrialsSearch.org
(3)



Current Controlled
Trials (4)



FDA Running Clinical
Trials (5)



HSRProj: Health
Services Research
Projects in Progress (6)



International Clinical
Trials Registry Platform
(7)



ISRCTN Register (8)



EU Clinical Trials
Register (9)



National Cancer
Institute Clinical Trials
(10)



National Institute of
Mental Health Clinical
Trials (11)



National Research
Register (NRR) Archive
(12)



NIH RePORTER (13)



PROSPERO:
International
Prospective Register of
Systematic Reviews
(14)



UK Clinical Research
Network: Portfolio
Database (15)



Volunteer for Health
(16)



Other (please specify):
(17)



Q45 Which Washington University resources have you used for your
clinical trial work? Please select all that apply.



















Center for Applied Research Sciences (CARS) (1)
Center for Community-Engaged Research (CCER) (2)
Center for Clinical Research Ethics (CCRE) (3)
Clinical Research Unit (CRU) (4)
Clinical Trials Unit (CTU) (5)
Center for Clinical Studies (CCS) (6)
Dissemination & Implementation Research Core (DIRC) (7)
Genome Technology Access Center (GTAC) (8)
Human Imaging Unit (HIU) (9)
Pediatric Clinical Research Unit (PCRU) (10)
Recruitment Enhancement Core (REC) (11)
Regulatory Support Center (RSC) (12)
Research Design & Biostatistics Group (RDBG) (13)
Research Participant Registry (Volunteer for Health) (14)
Siteman Cancer Center Clinical Trials Core (CTC) (15)
Tissue Procurement Core (TPC) (16)
Translational Research Methods & Analysis Center (TRAC) (17)
My clinical trials have not used Washington University resources (18)
Other (please specify): (19) ____________________
DATABASES AND SOFTWARE
Q46 What are the most important individual web-based scientific databases
that you use to do your research? Please list up to five in order of importance, with
#1 as most important. Also, indicate how often you use them. For example: PubMed,
GenBank, National Cancer Institute&#39;s Comprehensive Cancer Database, HCUP, AHRQ,
SEER, SEER-Medicare, ENSEMBL, KEGG, Reactome, TIGR, SWISSPROT, dbSNP, FlyBASE,
WormBASE, ChemIDPlus, ChemBank, Transfac, Protein Data Bank (PDB), NCI-Nature
Pathway Interaction Database, Human Gene Mutation Database (HGMD), etc.
Daily (1)
Weekly (2)
Monthly (3)
Quarterly (4)
Annually (5)
1. (1)





2. (2)





3. (3)





4. (4)





5. (5)





Q47 What are the most important individual software tools that you use to
do your research? Please list up to five in order of importance, with #1 as most important.
Also, indicate how often you use them. For example: Excel, Adobe Illustrator, Lasergene Core
Suite, FlowJo, GraphPad Prism, DAVID, SPSS, GeneGo MetaCore, Galaxy, etc.
Daily (1)
Weekly (2)
Monthly (3)
Quarterly (4)
Annually (5)
1. (1)





2. (2)





3. (3)





4. (4)





5. (5)





Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q48 Are there additional databases or software tools that you would like to
see freely available on the Research Pod computers in Becker
Library? Please separate multiple tools with a comma.
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q49 Are there additional databases or software tools that you would like to
see available at reduced cost through Becker Library managed site
licenses? See list of available software at Becker Library. Please separate multiple tools
with a comma.
Answer If Please enter the name of your organization or institution. Please select all that apply.
Washington University in St. Louis and local partners <div style="margin-left: 40px;">(please
include WU School of Medicine, Barnes-Jewish Hospital, Siteman Cancer Center, St. Louis
Children&#39;s Hospital, Missouri Baptist, etc.)</div> Is Selected
Q50 Are there training workshops or classes that you would like to see
offered by the Bioinformatics@Becker program at Becker Library? For
example: training on specific software packages, databases, or computer languages Please
separate multiple ideas with a comma.