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Cancer Society of New Zealand Inc: Te Kahui Matepukupuku o Aotearoa Expression of Interest to Provide a Pilot Cancer Education Programme Living Well The Cancer Society of New Zealand (CSNZ) is adapting the Living Well Programme (LWP) to be delivered by and for Maori. The LWP is one of the support services offered by the CSNZ. The programme has been shown to have positive outcomes for participants including enhanced well-being, and increased knowledge and understanding of cancer and its treatment. Although this programme has been delivered in Aotearoa New Zealand for several years, Maori participation has remained low and the Cancer Society wants to address this trend. CSNZ wants to work in partnership with Maori providers to combine skills, knowledge and expertise in a collaborative approach to adapt the LWP for delivery by and for Maori. The pilot is part of the process to adapt an existing programme to make it more useful for Maori. There has been a pre-pilot trial programme delivered by and for Maori. Evaluation findings from that programme have helped shape the pilot. Background The Living with Cancer Education Programme (LWCEP) was developed by the Cancer Council Victoria (CCV) and has been regularly reviewed, tested and improved since 1985. It is delivered to a wide range of participants including minority ethnic groups in Victoria, Australia and has been successfully translated into several languages. CCV has been generous in its support of CSNZ and has allowed the programme to be adapted for delivery in Aotearoa New Zealand. Further modification of the programme to improve Maori access has been endorsed by CCV. LWP is for those with cancer and their whanau. It is an educational and support programme that aims to increase knowledge of cancer and its treatments, encourage discussion on common concerns and coping mechanisms, and encourage participants to learn from each other. Sessions are delivered by trained facilitators who have a manual that sets out the structure of the programme. The aim of the programme is to help those with cancer and their whanau to: Have confidence to discuss common concerns in a safe setting Increase their knowledge of cancer and its treatments Increase their knowledge of oncology services Develop the confidence to ask questions Learn from each other Build on coping skills – practical, emotional and spiritual Learn about support options available, and Plan for the future Living Well Programme Pilots CSNZ will fund delivery and evaluation of one programme in each of three pilot sites. There will be a formal selection process for pilot sites. We are seeking a range of provider locations, one urban, one rural and one geographically isolated site. Criteria for selection The selection panel’s criteria for evaluating each Expression of Interest include: Provider’s capacity to deliver pilot and sustain programme in an on-going way Sound organisational and governance structure Provider’s experience in delivering similar programmes Provider’s experience in delivering services for those affected by cancer Willingness to adhere to the standards for delivery of the pilot programme Willingness to participate in evaluation processes being conducted by Suaree Borrell,Te Rau Matatini and Joanne Doherty Prevalence of cancer in provider region Provider location (urban/rural/isolated area) Standards for delivery of the Living Well Programme Pilots The programme is run for one two hour session per week, over six weeks. It is for people with a cancer diagnosis and whanau. The programme will be run by two trained facilitators in line with the following standards: 1. Facilitators acknowledge that the LWP is a structured, educational programme originally developed by the Cancer Council Victoria (CCV) and must be professionally presented; 2. Programmes are delivered in accordance with the CCV LWCEP facilitators’ manual as adapted for Aotearoa New Zealand under CSNZ guidelines; 3. Programmes are delivered by two trained co-facilitators 4. Participants have a pre-programme discussion with the facilitator about their expectations and needs in relation to the programme; 5. There are preferably 8-16 participants for each programme; 6. The programme is held at a suitable venue which is warm, comfortable, private and accessible, with access to the necessary equipment; 7. Facilitators de-brief after each session; 8. The approved evaluation form is given to each participant; 9. The completed evaluation forms along with any comments on the course are reviewed and collated by both facilitators; 10. Following reflective discussion, feedback is shared with evaluators and provider. What we expect of you: If you are selected and agree to deliver a pilot programme the Cancer Society will expect you to: Send up to three facilitators for two days free training during September 2010 (probably 23/24 September) Organise a Living Well programme: Decide on dates and venue for programme, (preferred starting date in October 2010) Advise CSNZ of dates and venue for programme Advertise programme and select participants Facilitators prepare for programme delivery Run programme for six weeks with no fewer than 8 participants in line with the standards Work with programme evaluators to provide feedback on the pilot experience Share the findings of programme evaluations What you can expect of us: The Cancer Society will work with pilot providers to: Note: Cover the costs for travel, accommodation and training up to three facilitators Provide up to $3,000 to cover the costs of running the 6 week programme Provide a Programme Manual, a Facilitator Information Manual and other resources needed for programme Provide supportive liaison from Cancer Society for facilitators A pre-pilot programme will be run and evaluated during July/August 2010. You will be advised of any significant findings that may impact on the delivery of the pilot programmes. Cancer Society of New Zealand Inc: Te Kahui Matepukupuku o Aotearoa Expression of Interest to Pilot Living Well Programme Please complete this form by 30 July 2010 and send it to: Susan Sutcliffe Cancer Society PO Box 12700 Wellington [email protected] Organisation Name Organisation Contact Details Address Phone email Contact Person Legal status of organisation Organisation structure and governance arrangements (attach notes or diagram if preferred) Purpose of organisation What services does the organisation provide for people affected by cancer? What experience does the organisation have in facilitating health education programmes? Who will be the facilitators for the Living Well Programme Describe the organisation’s capacity to deliver the pilot and sustain the programme into the future Outline your commitment to share the programme and evaluation findings Do you agree to deliver the programme in line with the Standards? Yes / No Do you agree to participate in the evaluation process for the pilot? Yes / No