Download Cancer Society of New Zealand Inc

Cancer Society of New Zealand Inc: Te Kahui Matepukupuku o Aotearoa
Expression of Interest to Provide a Pilot Cancer Education Programme
Living Well
The Cancer Society of New Zealand (CSNZ) is adapting the Living Well Programme (LWP) to
be delivered by and for Maori. The LWP is one of the support services offered by the CSNZ.
The programme has been shown to have positive outcomes for participants including
enhanced well-being, and increased knowledge and understanding of cancer and its
treatment. Although this programme has been delivered in Aotearoa New Zealand for
several years, Maori participation has remained low and the Cancer Society wants to
address this trend.
CSNZ wants to work in partnership with Maori providers to combine skills, knowledge and
expertise in a collaborative approach to adapt the LWP for delivery by and for Maori. The
pilot is part of the process to adapt an existing programme to make it more useful for
Maori. There has been a pre-pilot trial programme delivered by and for Maori. Evaluation
findings from that programme have helped shape the pilot.
Background
The Living with Cancer Education Programme (LWCEP) was developed by the Cancer
Council Victoria (CCV) and has been regularly reviewed, tested and improved since 1985. It
is delivered to a wide range of participants including minority ethnic groups in Victoria,
Australia and has been successfully translated into several languages. CCV has been
generous in its support of CSNZ and has allowed the programme to be adapted for delivery
in Aotearoa New Zealand. Further modification of the programme to improve Maori access
has been endorsed by CCV.
LWP is for those with cancer and their whanau. It is an educational and support
programme that aims to increase knowledge of cancer and its treatments, encourage
discussion on common concerns and coping mechanisms, and encourage participants to
learn from each other. Sessions are delivered by trained facilitators who have a manual
that sets out the structure of the programme.
The aim of the programme is to help those with cancer and their whanau to:
 Have confidence to discuss common concerns in a safe setting
 Increase their knowledge of cancer and its treatments
 Increase their knowledge of oncology services
 Develop the confidence to ask questions
 Learn from each other
 Build on coping skills – practical, emotional and spiritual
 Learn about support options available, and
 Plan for the future
Living Well Programme Pilots
CSNZ will fund delivery and evaluation of one programme in each of three pilot
sites. There will be a formal selection process for pilot sites. We are seeking a
range of provider locations, one urban, one rural and one geographically isolated
site.
Criteria for selection
The selection panel’s criteria for evaluating each Expression of Interest include:
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Provider’s capacity to deliver pilot and sustain programme in an on-going
way
Sound organisational and governance structure
Provider’s experience in delivering similar programmes
Provider’s experience in delivering services for those affected by cancer
Willingness to adhere to the standards for delivery of the pilot
programme
Willingness to participate in evaluation processes being conducted by
Suaree Borrell,Te Rau Matatini and Joanne Doherty
Prevalence of cancer in provider region
Provider location (urban/rural/isolated area)
Standards for delivery of the Living Well Programme Pilots
The programme is run for one two hour session per week, over six weeks. It is for
people with a cancer diagnosis and whanau. The programme will be run by two
trained facilitators in line with the following standards:
1. Facilitators acknowledge that the LWP is a structured, educational
programme originally developed by the Cancer Council Victoria (CCV) and
must be professionally presented;
2. Programmes are delivered in accordance with the CCV LWCEP facilitators’
manual as adapted for Aotearoa New Zealand under CSNZ guidelines;
3. Programmes are delivered by two trained co-facilitators
4. Participants have a pre-programme discussion with the facilitator about
their expectations and needs in relation to the programme;
5. There are preferably 8-16 participants for each programme;
6. The programme is held at a suitable venue which is warm, comfortable,
private and accessible, with access to the necessary equipment;
7. Facilitators de-brief after each session;
8. The approved evaluation form is given to each participant;
9. The completed evaluation forms along with any comments on the course are
reviewed and collated by both facilitators;
10. Following reflective discussion, feedback is shared with evaluators and
provider.
What we expect of you:
If you are selected and agree to deliver a pilot programme the Cancer Society will
expect you to:
Send up to three facilitators for two days free training during September 2010
(probably 23/24 September)
Organise a Living Well programme:
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Decide on dates and venue for programme, (preferred starting date in
October 2010)
Advise CSNZ of dates and venue for programme
Advertise programme and select participants
Facilitators prepare for programme delivery
Run programme for six weeks with no fewer than 8 participants in line
with the standards
Work with programme evaluators to provide feedback on the pilot
experience
Share the findings of programme evaluations
What you can expect of us:
The Cancer Society will work with pilot providers to:
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Note:
Cover the costs for travel, accommodation and training up to three
facilitators
Provide up to $3,000 to cover the costs of running the 6 week
programme
Provide a Programme Manual, a Facilitator Information Manual and
other resources needed for programme
Provide supportive liaison from Cancer Society for facilitators
A pre-pilot programme will be run and evaluated during July/August
2010. You will be advised of any significant findings that may impact
on the delivery of the pilot programmes.
Cancer Society of New Zealand Inc:
Te Kahui Matepukupuku o Aotearoa
Expression of Interest to Pilot Living Well Programme
Please complete this form by 30 July 2010 and send it to:
Susan Sutcliffe
Cancer Society
PO Box 12700
Wellington
[email protected]
Organisation Name
Organisation Contact
Details
Address
Phone
email
Contact Person
Legal status of
organisation
Organisation
structure and
governance
arrangements
(attach notes or
diagram if preferred)
Purpose of
organisation
What services does
the organisation
provide for people
affected by cancer?
What experience
does the organisation
have in facilitating
health education
programmes?
Who will be the
facilitators for the
Living Well
Programme
Describe the
organisation’s
capacity to deliver
the pilot and sustain
the programme into
the future
Outline your
commitment to share
the programme and
evaluation findings
Do you agree to deliver the programme in line with the Standards?
Yes / No
Do you agree to participate in the evaluation process for the pilot?
Yes / No