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HOSPICE CARE Prepared by Nesreen farouk police officer 2nd Term Doctorate Degree Under Supervision of Dr. Namat Alla GOMA lecturer of Medical-Surgical Nursing, Faculty of Nursing Ain Shams University 2010 Out Lines Introduction. Definitions. History of Hospice. Characteristics of Hospice. Goal of Hospice Care. Advantages of Hospice Care. Disadvantages of Hospice Care. Myths of Hospice Care. Hospice Care team. Hospice care services. Ethical and Legal issues regarding hospice care. Nursing Role for patient who dies at home. Application for nursing process in hospice care for dyeing patient. Introduction There is a common belief that a hospice is where everyone goes to die. That is not true. Hospice care is based on a philosophy of emotional, spiritual, physical support, and comfort for people in the final phase of life twelve to fourteen days, after which many patients return home. Hospice Hospice is a philosophy of care. The hospice philosophy or viewpoint accepts death as the final stage of life. Hospice Care Hospice care is meant for the time when cancer treatment can no longer help you, and you are expected to live 6 months or less& when a life-limiting illness no longer responds to cure-oriented treatments Hospice Care Program It is a Program that provides a centralized plan of palliative and supportive services to dying persons and their families. Hospice Concept It offers a comprehensive program of care to patients and families facing a life threatening illness. Hospice is primarily a concept of care, not a specific place of care. Hospice History In 1967 Dame Cicely Saunders, a British physician, was the first to apply the term "hospice" to specialized care for the terminally ill. Believed in holistic hospice care, combining the talents of physicians, nurses, social workers to address every aspect of patient care. In 1981 The hospice concept to discuss the needs of terminally ill patients and their families. It is goal was to restore dignity, and add value to the last months of patients' lives. In 1985 The hospice continued to grow and meet the needs of more patients from a larger area. In 1997 A strong team of dedicated professionals had been assembled and was now servicing many places. The name was changed to the now-familiar Hospice Care Team. Characteristics of Hospice It is a major unit of care for patient and family. Its services are extended to the family during the time of bereavement ( shock ). Hospice care can be discontinued with agreement of the patient, family and attending physician. Goals of Hospice Care Enable patients to continue an alert, pain- free life. Manage any symptoms. Affirm life and does not hasten or postpone death. Treats the person rather than the disease. Focus on quality rather than length of life. Provide family-centered care. Involve the patient and the family in making decisions. Hospice care can be given in the patient's home, a hospital, nursing home, or private hospice facility. Care is provided for the patient and family 24 hours a day, 7 days a week. Advantages of Hospice Care Provide specialized palliative care. Provide expertise for difficult problems. Allows terminally ill children and their families to remain together in the comfort and dignity of their home. Rely on knowledge and skill of an interdisciplinary team of professionals. Advantages (Cont.) Treats the client, not the disease. Emphasizes the quality of life, not the duration Provide expert in managing pain and symptom. Allow a terminally ill person to be as comfortable and pain-free as possible. Disadvantages of Hospice Restrictions placed on the various aspects of treatment. Hospitalizations are discouraged once a patient is under hospice care. Participation in experimental treatments or clinical trials isn’t allowed as they are considered life-prolonging. Some treatments or procedures that are considered life- prolonging, such as tube feeding may not be covered. Pressure on places may restrict length of stay. Need to secure funding. Seven Myths of Hospice Care Myth #1: Hospice Care Means Giving Up Hope. Myth #2: Patients can only receive hospice care for a limited amount of time. Myth #3: Hospice Is Only for Cancer Patients. Myth #4: Hospice Is Only for Patients who Are Close to Death or Actively Dying. Myth #5: A patient needs Medicare or Medicaid to afford hospice services. Myth #6:A physician decides whether a patient should receive hospice care Myth #7: : Once a patient elects hospice care, he or she cannot return to traditional medical treatment. Hospice Care Team Doctors. Nurses. Primary care giver . Spiritual counselors. Social workers. Volunteers. Role of the Physician Directed the services required to the patient Obtain admission history and physical examination, prescribed tests and medication. Follows the client throughout the illness and certifies death. Role of the Nurse Makes an initial home visit to assess. Observe the patient ongoing condition and discuss findings with team members. Administer the medications as prescribed patient compliance and evaluate . Determine the effects of medication regimen. Answer the questions and assist other team members as needed. Work with staff members to assist the family in bereavement and reorganize their lives. Ensure that each patient’s care is maximized. Role of Primary Care Givers Identify changes in the patient s condition that might not be noticeable to others. Suggest approaches to care that meet with everyone’s approval. Role of Volunteers Provide emotional support run errands assist with physical care. Help with child care and house hold tasks. Provide care for their families. Provide special empathy and understanding. Spiritual Counselors Many people in hospice care have connections to some spiritual services in their community, but the hospice can provide additional services, if desired. Social Workers: Social workers provide counseling and support. They can also help patient sort out insurance and other financial concerns. Bereavement Counselors Trained bereavement counselors offer support and guidance for loved one's family during and after his or her death. They continue to provide support for up to a year after loved one's death. Hospice Care Services Interdisciplinary team. Pain and symptom control. Spiritual & Respite care. Home care and inpatient care. Family conferences. Bereavement care. Staff support. Coordination of care Hospice Care Settings Home Hospice Care. Hospital-Based Hospices. Long Term Care Facility-Based Hospices Ethical and Legal Dimensions Regarding Hospice Care Advance Directives. Euthanasia. Passive Euthanasia. Active Euthanasia. Assisted Suicide. Terminal Weaning. Cardiopulmonary Resuscitation. Comfort Care. Life-Sustaining Treatment. Relation between Loss and Hospice Patient Definition of Loss It is actual or potential situation in which a valued person objects or situation is changed or removed. Sources of Loss Loss of loved or valued person. Loss as an element of illness. Separation from an accustomed environment and provide security. people who Types of Loss Actual loss. Perceived loss. Anticipatory loss. Maturational loss. Situational loss. GRIEF Definition It is a emotional and behavioral reaction to loss, it occurs with loss caused by separation as well as with loss caused by death. Grief is manifested in thoughts, feeling, and behaviors. DEATH AS A FINAL LOSS Definitions Dying It is a process of decline in body functions that results in death. Death is a final cessation of all vital functions in a person. Types of Death • Heart Lung Death. • Cerebral or Brain Death. . Manifestations of Impending Death Relaxation of the facial muscles Difficulty swallowing. Gradual loss of the gag reflex. Diminished body movement and reflexes. Cyanosis of the extremities. Weak, and irregular pulse. Low blood pressure. Coldness of skin. Rapid, shallow, irregular or abnormally, respirations. Changes level of consciousness. THE DYING PERSON'S BILL OF RIGHTS o Should be treated as living human being. o Maintain a sense of hopefulness. o Should have the right to be cared. o Let he/she express feelings and emotions about death in his/her own way. o Participate in decisions. Should not leave him/her to diealone. Be free from pain. Should have questions answered honestly. Should obtain help from family. Discuss and enhance religious or spiritual STAGES OF DYING Denial and isolation. Anger "why me?“ Bargaining. Depression "crying and not speaking much“. Acceptance "preparing to death”. Nursing Role for a Client Who Dies at Home Remove all equipmen Prepare the body for transportation. Make sure the physician has been notified. Refer the family to a bereavement support group. Application of Nursing Process to Care Dying Person Physical & Emotional Assessment Assess holistic client conditions. Assess discomforts of dying client. Assess patient's and family's emotional condition. Assess adequacy of coping behavior. Assess patients attitude toward death. Spiritual Assessment Assess religious belief, need for hope. Assess client and family's attitude toward death and dying. Assess client's preferences concerning death desire to be at home or in a hospital or hospice setting, Assess decisions concerning resuscitation, advanced life support, organ donation. Nursing Diagnosis Ineffective breathing pattern related to disease progression Fear related to death Grief related to loss. Powerlessness related to terminal illness. Ineffective coping related to increased emotional and physical dependence on other. Planning Deciding on realistic goals, both long and short term for the dying client. Planning to meet the physical, emotional, developmental and spiritual needs. Support client's self-esteem by asking for their opinions and make decisions with the client not for the client. Implementation Meeting the client's physical needs. Meeting psychological needs. Meeting spiritual needs. Psychological support. Therapeutic communication. Maintenance of self-esteem and sense of dignity. Promoting comfort. Prevention of loneliness. Providing a soothing environment. Meeting family needs. Evaluation Evaluation activities include the following: Listening to the client's reports of feeling in control of the environment surrounding death. Observing the client's relationship with significant others. Listening to the client's thoughts and feelings related to hopelessness or powerlessness. Application of Nursing Process to Care of Hospice Patient's Body after Dying Assessment Determine that the patient is dead by ABC. Determine if the physician and family have been notified. Notify the nursing supervisor. Check the medical record for the name of the mortuary where the body will be taken. Planning Contact the mortuary and inform them. Ask when mortuary personnel may be expected to arrive. Contact any individuals involved in organ procurement. Obtain a postmortem kit or supplies for cleaning, wrapping, and identifying the body. Implementation o o o o o o o o Pull the curtains about the bed. Don gloves. Remove all medical equipment connected. Remove hairpins or clips and dentures. Close the eyelids. The body is carefully batted. Place the body supine with the arms extended at the side or folded over the abdomen. Place a small rolled towel beneath the chin to close the mouth. Apply one or more disposable pads between the legs and under the buttocks. Attach an identification tag to the ankle or wrist. Wrap the body with a sheet. * Tidy bedside area and dispose of soiled equipment. * Remove gloves and wash your hands. * Leave the room and close the door. * Make an inventory of valuables and send them to an administrative office. * Notify housekeeping after the body is removed from the room. Evaluation The body is cleaned and prepared. The body is transferred to mortuary Document Assessments that indicate patient is died. Time of death. Persons notified of death. Care of the body. Time body is transported to the morgue. Postmortem Care Care of the body after death (Involves cleaning and preparing the body to enhance its appearance during viewing at the funeral home, ensuring proper identification and releasing the body to mortuary personal. Any Question?