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Personal Health Information Management - PHIM A relevant example for information sharing CaringBridge.org -http://www.caringbridge.org/ For example, http://www.caringbridge.org/visit/depasquale An overall message Increasing responsibility of the patients to be in charge of their treatments. Studies show that more engaged and involved patients respond better to treatment Health care is fragmented and specialists do not communicate with each other, except through the specialist Health care is part of a larger life picture that involves activities not directly related to the health treatments. Fragmentation Various doctors Caregivers Family Work Other interests and activities How much should each know? Whose responsibility is it that the treatment is right? Personal Health Records Tools provide record of health history to the patient. Information generally web based Access needs to be open to those who need the information to treat the patient, but protected from those who should not see it. Keep a record of medications, allergic reactions, potential interactions of medications, past conditions, surgery, test results, etc. Data collection Home health management technologies collect information about conditions Pacemakers can be read through a phone connection to provide an update on the patient’s condidition from home Diabetes monitors check blood sugar levels Some devices monitor for a number of conditions and send an alert if a danger is detected These are especially valuable for people with chronic conditions who live alone. Study findings demostrate needs: Information is fragmented People do not always know what to do with information when the have it People forget or cannot find information when it is needed People can become overwhelmed by available information People’s approach to PIM needs support Further details, from radiology Radiology & IT presentation by Dr. David Meyer