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PROCAM (Professionals Cancer Awareness Measure) for Train the Trainers Project 3/1/14 Aims and objectives The overall aim of the measure is to assess GP Trainers knowledge, capability and skills relating to the early diagnosis of cancer. It has been developed with Cancer Research UK and you are the first community of GPs to use it. Please complete this 10 minute questionnaire – it is a key part of the evaluation of the project. Specific objectives : Knowledge of potential cancer signs and symptoms Knowledge of NHS cancer screening programmes, eligibility, local uptake/coverage, Age extension, flexi sig screen for 55y olds, awareness of different language screening leaflets , prostate managed risk programme,PSA shared decision making tool Knowledge and current practice of available cancer risk assessment tools Perceived risk and severity of cancer Attitudes towards cancer and early diagnosis Beliefs about their role in diagnosing cancer earlier Beliefs about patient attitudes towards cancer – also CAM in their own population Confidence in teaching GPRs about cancer diagnosis in primary care Knowledge of NHS cancer screening programmes, eligibility, local uptake/coverage? There are a range of NHS national screening programmes. Please could you say whether you think there is a screening programme for each of the cancers listed below? Please circle your answer. PLEASE TICK ONE BOX FOR EACH ROW. Bowel cancer Yes No Not sure If yes, What age are people invited to take part? What age does it finish? What options are there for patients after programme completion age? As a GP, do you think Yes No Not sure you are able to request a kit for one of your patients? Have you ever looked at Yes No Not sure your practice level uptake/coverage of this type of screening? Do you or your practice do anything to increase uptake of this type of screening? Oral cancer Yes No If yes, What age are people invited to take part? What age does it finish? What options are there for patients after programme completion age? Not sure 1 As a GP, do you think Yes No you are able to request screening for one of your patients? Have you ever looked at Yes No your practice level uptake/coverage of this type of screening? Do you or your practice do anything to increase uptake of this type of screening? Not sure Cervical cancer Yes No If yes, What age are women invited to take part? What age does it finish? What options are there for patients after programme completion age? As a GP, do you think Yes No you are able to request screening for one of your patients? Have you ever looked at Yes No your practice level uptake/coverage of this type of screening? Do you or your practice do anything to increase uptake of this type of screening? Not sure Breast cancer Yes No If yes, What age are women invited to take part? What age does it finish? What options are there for patients after programme completion age? As a GP, do you think Yes No you are able to request screening for one of your patients? Have you ever looked at Yes No your practice level uptake/coverage of this type of screening? Do you or your practice do anything to increase uptake of this type of screening? Not sure Skin cancer Yes No If yes, What age are people invited to take part? What age does it finish? What options are there for patients after programme completion age? As a GP, do you think Yes No you are able to request screening for one of your patients? Not sure Not sure Not sure Not sure Not sure Not sure Not sure 2 Have you ever looked at Yes No your practice level uptake/coverage of this type of screening? Do you or your practice do anything to increase uptake of this type of screening? Not sure Prostate cancer Yes No If yes, What age are men invited to take part? What age does it finish? What options are there for patients after programme completion age? As a GP, do you think Yes No you are able to carry out screening for one of your patients? Have you ever looked at Yes No your practice level uptake/coverage of this type of screening? Do you or your practice do anything to increase uptake of this type of screening? Not sure Not sure Not sure As a GP Trainer: Have you given a tutorial on earlier diagnosis of cancer/2 week wait referral in the last year? Yes/No Is cancer diagnosis part of the educational plan for new registrars? Yes/No Have your Registrars ever conducted a cancer diagnosis audit? Yes/No Has a Registrar missed a cancer diagnosis? If yes, what impact did it have on the registrar/yourself and the practice? Yes/No Education and revalidation Has cancer ever been part of a personal appraisal or educationalist/pdp? If so what topic was chosen? Yes/No Have you used any recent resources to obtain cancer information? If so, what? Yes/No Do you use on-line learning materials eg BMJ Learning, Doctors.net or RCGP? Yes/No Have you completed any cancer specific modules in the last 3 years? If so, which? Yes/No 3 Knowledge and current practice of available tools –please circle answer: Which, if any, of the following tools.... Comparative (practice profile) cancer performance data RCGP cancer audit tool Significant Event Analysis for cancer Cancer Revalidation toolkit for GP's Risk Assessment Tools Q Cancer ...are you aware of? ...have you used? Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Yes, no, Don’t know Perceived risk and severity of cancer If I carried on with my current lifestyle I think my chances of developing cancer at some point in my life would be… Almost Almost zero Very small Small Moderate Large Very large certain Compared to other men and women your age, do you think your chances of developing cancer are: Much lower A little lower About the same A little higher Much higher How much do you agree with the following statements: Strongly disagree Disagree Not sure Agree Strongly agree If I developed cancer it is likely that I would die from the disease Attitudes towards cancer and early diagnosis For each of the statements can you tell me how much you personally agree or disagree with each item? These days, many people with cancer can expect to continue with normal activities and responsibilities. Strongly disagree Tend to disagree Tend to agree Strongly agree Most cancer treatment is worse than the cancer itself. Strongly disagree Tend to disagree Tend to agree Strongly agree I would NOT want to know if I have cancer. Strongly disagree Tend to disagree Tend to agree Strongly agree ‘Many people who get cancer can be completely cured’ – Strongly disagree Tend to disagree Tend to agree Strongly agree 4 Some people think that a diagnosis of cancer is a death sentence. To what extent do you agree or disagree that a diagnosis of cancer is a death sentence? Strongly disagree Tend to disagree Tend to agree Strongly agree I believe there is good evidence that diagnosing most cancers at an earlier stage improves survival Strongly disagree Tend to disagree Tend to agree Strongly agree For each of the following cancers please indicate your level of agreement with the following statement: “Earlier diagnosis of cancer is important to ensure better outcomes.” Strongly agree Agree Neither agree or disagree Disagree Strongly disagree Breast cancer Prostate cancer Ovarian cancer Colorectal cancer Lung cancer Skin cancer Beliefs about their role in diagnosing cancer earlier Thinking about your role in primary care, please rate how much you agree or disagree with the following statements Strongly Disagree Neither Agree Strongly disagree agree nor agree disagree I see cancer prevention as part of my role There is too much emphasis on the early diagnosis of cancer in primary care I could take a more active role in cancer prevention I feel well equipped to discuss the link between cancer and lifestyle behaviours with the public I feel well equipped to discuss with the public how to respond to potential signs and symptoms of cancer 5 Beliefs about patient’s attitudes towards cancer To what extent do you feel that these statements describe the attitudes or beliefs of patients at your practice ( accepting that everyone has individual beliefs and experience)? These days, many people with cancer can expect to continue with normal activities and responsibilities. Strongly disagree Tend to disagree Tend to agree Strongly agree Most cancer treatment is worse than the cancer itself. Strongly disagree Tend to disagree Tend to agree Strongly agree I would NOT want to know if I have cancer. Strongly disagree Tend to disagree Tend to agree Strongly agree ‘Many people who get cancer can be completely cured’ – Strongly disagree Tend to disagree Tend to agree Strongly agree Some people think that a diagnosis of cancer is a death sentence. To what extent do you agree or disagree that a diagnosis of cancer is a death sentence? Strongly disagree Tend to disagree Tend to agree Strongly agree Confidence in diagnosing cancer/knowledge of screening Thinking about your role, how confident are you in your ability to discuss the following with members of the public? PLEASE TICK ONE BOX FOR EACH ROW. Not at all Not very Fairly Very confident confident confident confident What action people should take in response to any unusual or persistent changes to their body The potential for signs and symptoms to indicate cancer NHS cancer screening programmes Awareness of CRUK initiatives/campaigns/resources Which, if any, of the following initiatives run by Cancer Research UK are you aware of? Aware Not aware Not sure National Awareness and Early Diagnosis Initiative (NAEDI, in partnership with the Department of Health Cancer Insight newsletter Early diagnosis education 6 microsite on Doctors.net.uk Postal mailing of sample patient information leaflets Primary care engagement facilitators Cancer research UK module on the Royal College of General Practitioners e-learning cancer portal Talk Cancer training Cancer Awareness Roadshow Nurse helpline CancerStats website Likely use of CR-UK’s information How likely are you to use Cancer Research UK as a source of information about cancer prevention and/or early diagnosis? PLEASE TICK ONE BOX FOR EACH ROW. Very unlikely Unlikely Neither unlikely Likely Very likely or likely Individual characteristics – please circle Gender Male Female Age band 25-30 30-35 35-40 40-45 45-50 50-55 55-60 60+ Employment Full time Part time GP type Partner Salaried Locum GP Registrar Does your current role include any of the following? GP Appraiser Programme Director CCG lead for cancer Other, please specify Macmillan GP Practice cancer lead Other, please specify Does the practice routinely code 2 week wait referrals? Yes/No Does the practice act on non-participants to the bowel screening programme? Yes/No 7 How many GP’s work in your practice (what’s the headcount)? 1 2-5 6-10 11+ How many GP trainees work in your practice? 1 2 3 3+ What is your current practice list size? <2000 2000-<5000 5000-<10,000 10,000-<20,000 >20,000 patients Experience as a GP Registrar Qualified in past year 1-5 years 5-10 years 10-15 years Experience as a Trainer Qualified in past year 1-5 years 10-15 years 15 years+ 5-10 years 15 years+ Optional questions – These questions are not included but can be used to stimulate discussion in the practice or small group teaching at VTS sessions Other areas in ‘Professionals cancer awareness measure doc’ not currently included Urgent Care Referrals (2 week wait) o Do you understand the system of UCR? o Do you fax forms? o Do you use C and B? o Do you add further data/separate covering letter? o Do you send information about your patients social /co-morbidities to hospital on referral? o Do you get the 24 hour fax back diagnosis of cancer letters back from secondary care? o Which hospitals/units do you use? o Do you receive adequate/timely information back from secondary care? Cancer Screening Programmes o Do you know the details of screening in bowel cancer ( ie the plain instructions)? Consultations o Have you had consultation skills training in the last 5 years? o Are you aware of cancer risk calculators? o Do you use them in consultations? o Do you take photographs of skin referrals? o Do you have a structure/detailed template for cancer care reviews? The practice o Does the practice hold SEA meetings which include cancer diagnosis? o Has your practice taken part in the GP Cancer Audit? o Are you aware of practice cancer profiles? o Have you used them? 8 Clinical Governance o Have you a system of identifying and reviewing late/missed or emergency first presentations of cancer? o Is this personal to you or a practice based system? Emotional o Have you missed a diagnosis of cancer? If so, please provide brief details. o Are you currently looking after patients with delayed/missed diagnosis? o Have you found it challenging to look after cancer patients? o Do you feel you have an effective emotional support network? o Has it ever been hard to deal with the emotions of looking after a patient with cancer? If so, please give brief details. o Do you keep a register of or follow up on 2ww patients who subsequently been given the “all clear”? 9