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Overcoming Stigma: Strategies for Integrated Care Settings Gretchen Grappone, LICSW Marty Boldin, LICSW, MLADC, LCS, CPS Gretchen Grappone, LICSW [email protected] Trainer and consultant in VA Medical Centers, civilian hospitals and community mental health centers DBT & CBT clinician at community mental health center Social worker on inpatient behavioral health unit Person with lived experience of depression Marty Boldin, LICSW, MLADC, LCS, CPS Ph.D. candidate and Dean's Fellow, Boston University School of Social Work Recovery representative to the Governors Commission for Alcohol and Drug Abuse Prevention, Treatment, and Recovery Addiction and mental health treatment professional with 30 years of clinical experience Objectives for Today Review the most common types of stigma associated with mental illness and substance use disorders Recognize the effects of stigma on clients, family members & health professionals Explain strategies for assessing and addressing the presence of stigma in a clinical setting MHCGM’s Stigma Assessment & Reduction Initiative “Effective stigma change initiatives attend to all relevant dimensions of the stigma complex, regardless of the specific level that is the target of the campaign.” Ending Discrimination Against People with Mental and Substance Use Disorders: The Evidence for Stigma Change (National Academies of Science, Engineering & Medicine, 2016) Defining Stigma Stereotypes, prejudice and discrimination that are associated with mental illness and substance use disorders Involves loss of status among an individual or a group and separation from non-stigmatized people (Corrigan & Watson, 2002; Link and Phelan 2001) Defining Stigma (in a more palatable way) Negative attitudes about, and behavior toward, people with a mental illness or substance use disorders Actions that result in a LOSS OF OPPORTUNITY (Thornicroft, Rose, Kassam & Sartorious, 2007) Different Types of Stigma We endorse/perpetuate/experience stigma either explicitly (within our own awareness) or implicitly (outside of our awareness) (Stull et al., 2013) Public Stigma General public endorses stereotypes and prejudices that result in discrimination against people with mental illness (Corrigan, Roe & Tsang, 2011) Also referred to as social stigma or enacted stigma (Livingston & Boyd, 2010) Self-stigma Self-stigma, also called internalized stigma, happens when a person with mental illness or substance use disorder endorses negative stereotypes about themselves (Barney, Griffiths, Jorm, &, Christensen, 2006) Self-stigma often viewed as an internalization of public stigma (Corrigan & Rao, 2012). Perceived Stigma Belief that stigmatizing ideas about mental illness and substance use disorders are held by others (Brohan, Gauci, Sartorius & Thornicroft, 2011) Label Avoidance Choosing not to seek mental health or substance use treatment to avoid being assigned a stigmatizing label. (Corrigan, Watson, Byrne & Davis, 2005) Some argue label avoidance as one of the most harmful forms of stigma. (Corrigan, Roe & Tsang 2011) Stigma by Association The effects of stigma are extended to someone linked to a person with mental health difficulties. (Van der Sanden et al., 2013) Also known as courtesy stigma and associative stigma (Goffman,1963; Verhaeghe & Bracke, 2012) Health Professional Stigma Any time a social worker, doctor, nurse, occupational therapist, nursing home employee, psychologist, physical therapist, pharmacist, hospital employee, drug and alcohol counselor, dentist, mental health counselor, licensed nursing assistant, APRN, or health center employee allows stereotypes and prejudices about mental illness and substance use to negatively affect client/patient care. (Grappone, 2014) Structural Stigma Laws, institutional policies or other societal structures that result in decreased opportunities for people with mental illness or substance use disorders Happens at all levels of public and private institutions (Corrigan, Markowitz & Watson, 2003; Bos,Pryor, Reeder & Stutterheim, 2013; National Academies of Science, Engineering & Medicine, 2016 ). Effects of Stigma “We argue that stigma is in fact a central driver of morbidity and mortality at a population level.” (Hatzenbuehler, Phelan, & Link, 2013) Life expectancy 20-25 years less than people without mental illness (mostly due to preventable conditions) (Colton & Manderscheid, 2006; Lawrence et al., 2013) Effects of Stigma People with mental illness less likely to receive evidence‐based treatments for heart disease, stroke, asthma & diabetes (Druss et al., 2010) One study suggests the higher level of stigma endorsed by health professional, the less likely patient with mental illness is referred to a specialist (Corrigan et al., 2014) Effects of Stigma Diagnostic Overshadowing Health professionals inaccurately attributing physical symptoms and behaviors to a person’s mental illness or substance use disorder (Jones, Howard and Thornicroft, 2008) Effects of Stigma % of people unwilling to be friends with work closely with marry into family Depression 23 49 42 Schizophrenia 34 64 61 Alcohol dep. 37 75 72 Drug dependence 60 82 89 Illness (Pescosolido, 2013) Effects of Stigma Borderline Personality Disorder Research shows people viewed as manipulative, dangerous, treatment resistant by health professionals & public (Rivera-Segarra et al., 2014) Military Stigma in military may be enhanced due to a culture that requires self-reliance & toughness (Tanelian & Jaycox, 2008) Effects of Substance Use Disorder Stigma People with substance use disorder seen as being more responsible for their illness than those with mental illness (Corrigan, Kuwabara & O'Shaughnessy, 2009) Substance users seen as violent, manipulative and unmotivated by many health professionals (Boekel et al.,2013 ) Perceived stigma can cause people to drop out of substance abuse treatment (Brener et al., 2010) Effects of Stigma in the ER Emergency room staff are often not trained to work with people with mental illness and may view them as disturbing to other patients, difficult to treat and time-consuming ER staff may be at an increased risk of stigmatizing attitudes since, by the nature of their work, they see patients when they are in crisis (Newton et al., 2008; Santucci, Sather & Baker, 2003; Olshaker & Rathlev, 2006 Thornicroft, Brohan, Kassam & Lewis-Holmes, 2008) Effects of Stigma on the Family Family & caregivers report fewer social connections (Lazowski et al., 2012) Parents feel shame, fears labeling of child, feels responsibility for illness of child & is a barrier to treatment (Koerting et al., 2013) Significant other or relatives blamed when client does not follow treatment plan (Corrigan & Miller, 2004) Effects of Stigma at a Mental Health Center Stigma by association in mental health professionals linked to: Less job satisfaction Depersonalization More emotional exhaustion Self-stigma in recipients of service (Verhaeghe & Bracke, 2012) Effects of Co-Occurring Stigmas Structural racism linked to increased risk of heart attack in Blacks (Lukachko et al., 2014) Societal homophobia linked to 12-year shorter life expectancy for gay, lesbian & bisexual individuals and more likely to die as a result of suicide much younger (at 37 years old vs. 55 years old for low-prejudice areas) (Hatzenbuehler, 2014) Obese individuals viewed as unintelligent, lazy, unsuccessful, lacking willpower (Puhl & Heuer, 2010) Effects of Stigma on Mental Health Professionals “So many people have begged me to come forward, and I just thought — well, I have to do this. I owe it to them. I cannot die a coward.” Marsha Linehan, Ph.D. (Carey, 2011) “Silence about mental illness bred a quiet ugliness and set in place the conditions for unnecessary suffering and death.” Kay Redfield Jamison (Jamison, 2009) Effective stigma reduction strategies Focus on changing behaviors rather than changing attitudes Focus on sustained anti-stigma programs rather than campaigns Increase knowledge of effectiveness through evaluation (Stuart, 2015) Effective stigma interventions Contact with someone in recovery most effective way of reducing public stigma (Corbiere, Samson, Villotti & Pelletier, 2012) Education about mental illness not as effective as contact interventions (except for teens) (Corrigan, Roe & Tsang, 2011) Effective stigma reduction strategies Most effective when targeted, local, credible, continuous & involve contact (Corrigan, 2011) Effective stigma interventions Mental Health Commission of Canada addresses health professional stigma through targeted behavioral changes (skill acquisition, exposure to uncomfortable topics in primary care settings) (MacCarthy et al., 2013) Structural stigma reduction strategies Include stigma assessment and interventions throughout in clinical treatment (Acosta et al., 2014) See example: Clinical Stigma Assessment and Action Plan (Atlas Research, 2015) Consider using validated self-stigma assessment with clients (Ritsher, Otilingam, & Grajales, 2003). Structural stigma reduction strategies Stigma Reduction & Action Plan Clinical treatment plan & Agency plan (Grappone, 2015) Planning session Groups will pick one type of stigma and brainstorm agency strategies for assessing & reducing stigma Q&A with Rik Cornell, LICSW The Mental Health Center of Greater Manchester’s Stigma Assessment and Reduction Initiative: Creating sustained structural stigma reduction Objectives for Today Review the most common types of stigma associated with mental illness and substance use disorders Recognize the effects of stigma on clients, family members & health professionals Explain strategies for assessing and addressing the presence of stigma in a clinical setting THANK YOU FOR MORE INFORMATION Atlas Research 805 Fifteenth Street NW, Suite 910 Washington, DC 20005 202.717.8710 www.atlasresearch.us