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Download Prostate Cancer The Holistic Approach 26th Congress SIU
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EUROPA UOMO The European Prostate Cancer Patients Coalition L. Denis Monaco, October 6,2006 Europa Uomo: Who? Coalition of 18 National/Regional Prostate Cancer Patient Organisations. Legal, non government (NGO). Membership: Legal registration Patient support activities Agree manifesto OCA, 2006 Manifesto (I) 1. To find ways and means to promote quality of life for prostate cancer patients and their families. 2. To promote the dissemination and exchange of evidence-based information on prostate cancer. 3. To promote prostate awareness and appropriate diagnosis and prognosis. Keywords: QoL, Evidence-based, Awareness OCA 2006 Manifesto (II) 4. To emphasise the need for appropriate early detection. 5. To campaign for provision of and access to optimum treatment. 6. To ensure quality supportive care throughout and after treatment. 7. To promote multiprofessional quality care and appropriate medical infrastructure. Keywords: Early detection, optimal treatment, quality & multiprofessional care OCA, 2006 Manifesto (III) 8. To acknowledge good clinical practice and promote its development. 9. To ensure that all men fully understand any proposed treatment options, including entry into clinical trials and their right to a second opinion. 10. To promote the advancement of prostate cancer research. Keywords: Good clinical practice, clinical trials, prostate cancer research OCA, 2006 HOLISTIC MEANS: Optimal Medical Treatment We need information, education. Multiprofessional expertise and patience required. + Patient Centered Care We need psychological, emotional, social support / contact required. OCA, 2006 The Lost Patient Contradictory information (doctor, media, friends) Statistics Outcomes not comparable Loss of personality in the process A lot of experts ? Unflexible guidelines Evidence Based Oncology OCA, 2005 Doctor/Patient Partnership Expectations: Results: One shop info stop Clear choice and control Time to decide Outcomes and QoL Access to clinical trials Contact multiprofessional team Informed, involved patient Prostate passport Patient satisfaction Patient defined QoL Discipline and political support Overall progress medical care OCA, 2006 Europa Uomo Partnerships European School of Oncology International Consultation Urological Diseases European Coalition Cancer Patients European Association of Urology International Prostate Health Council European Society Medical Oncologists International Union Against Cancer Global Prostate Health Coalition 2004 2004 2004 2005 2005 2006 2006 2006 OCA, 2006 Our immediate request Support/create patient organisations Early diagnosis vs. overtreatment Carefull choice of primary treatment based on available prognostic factors Prevention metastatic disease Sustained hope of HRPC treatment OCA, 2006 The survival of the Hippocratic oath and patient respect in the complexity of medical technology and multiprofessional care remain an integral part of our civilization and medical progress. OCA, 2006 Europa Uomo Secretariat OCA Lange Gasthuisstraat 35-37 2000 Antwerp – BELGIUM Tel.: +32.3.223.53.54 Fax.: +32.3.223.53.52 E-mail: [email protected] Web: www.cancerworld.org/europauomo
