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NJ CCC Database Field Definitions Values Cancer Site or Type Breast Cervical Childhood Colorectal Lung Leukemia/Lymphoma Oral/Oropharyngeal Ovarian Prostate Melanoma Definition/Related Terms Types and/or locations of cancer. Neoplasm, benign, malignant tumor, carcinoma Breast cancer, mammary, lymphedema (in relation to breast cancer) Cervical cancer, cervix, uterine cervix Childhood cancers, children with cancer, acute lymphocytic leukemia, AML, Hodgkin’s disease, non-Hodgkin’s lymphoma, malignant bone tumors, cancer of central nervous system, rhabdomyosarcoma Colorectal cancer, colon cancer, rectal cancer, cancer of anus, cecum, large intestine, small intestine, small bowel, large bowel Includes lung cancer, bronchial, pulmonary, respiratory Leukemia, lymphoma, lymphocytic leukemia, non-Hodgkin’s lymphoma Oral cancer, oropharyngeal cancer, cancer of the lip, oral cavity, pharynx, tongue, gum, gingival, alveolar mucosa, buccal mucosa, oropharynx, mouth, or palate. Ovarian cancer, ovary Prostate cancer, prostatic cancer Melanoma, malignant melanoma, skin cancer, dermatology Other Skin Cancer Any other skin cancer other than malignant melanoma, basal or squamous skin cancer Liver Stomach Liver cancer, hepatic cancer, cancer of bile duct Stomach cancer, gastric cancer, gastrointestinal cancer Friday, May 02, 2003 Use notes May need to double-code with Leukemia/Lymphoma May need to be doublecoded with Childhood cancer If type of skin cancer not specified, code both Melanoma and Other Skin Cancer If type of skin cancer not specified, code both Melanoma and Other Skin Cancer 1 Values Secondary malignancy Other Cancer Site or Type Continuum of Care Definition/Related Terms Secondary malignancy, second malignant neoplasm, secondary cancer Steps in the process of responding to cancer, ranging from efforts to prevent the occurrence of cancer (primary prevention) through to assisting those who have survived the disease in coping with its aftermath (survivorship). Primary prevention Primary prevention refers to the elimination of risk factors for disease In asymptomatic persons. Early detection Early detection, detection, diagnostic test, screening, secondary prevention Treatment Treatment, cancer treatment services, cancer care services, X-ray, radiation therapy, chemotherapy, complementary and alternative therapies (CAM), referral Rehabilitation, follow-up care Palliative care, palliation, end of life, pain management, quality of life, hospice, psychosocial needs/support in relation to terminal illness Survivorship, cancer survivors, late effects, psychosocial needs/support in relation to former cancer patients, follow-up care Rehabilitation Palliative care/End of Life Survivorship Use notes Any strategy with this code should be cross-coded with … (list to be supplied by Peg Knight) Any other cancer type or site not listed above. May be double coded with strategies for eliminating specific risk factors (e.g., smoking cessation Tobacco, dietary changes Diet, healthy weight Obesity, increasing physical activity – Physical Activity, sun protection – UV radiation, etc.) May be double coded with specific screening tests 2 Values Screening/Diagnostic Test Mammography Clinical Breast Exam (CBE) Pap test (include Thin Prep) Colposcopy Colonoscopy Virtual Colonoscopy Flexible Sigmoidoscopy Fecal Occult Blood Test (FOBT) Double-contrast barium enema Prostate Specific Antigen (PSA) Oral cancer exam Spiral CT scan Other Screening Test Definition/Related Terms Tests used for screening for or diagnosing cancer. Use notes Test for breast cancer, mammography, mammogram, screening mammogram, diagnostic mammogram Test for breast cancer Test for cervical cancer, Pap test, Papanicolaou test, Pap smear, Thin prep, liquid cytology Diagnostic test for cervical cancer, colposcopy, cone biopsy, Loop Electrosurgical Excisional Procedure (LEEP) Test for colorectal cancer Test for colorectal cancer (non-invasive colonoscopy with use of CT or MRI imaging) Test for colorectal cancer Test for colorectal cancer Test for colorectal cancer Test for prostate cancer Test for oral cancer Test for lung cancer Any other screening or diagnostic tests not listed above Strategy Area General areas in which those wishing to address cancer in all its many facets can engage in activities. Research/Evaluation Research, assess, review, literature review, study/ies, program evaluation, assessment, needs assessment, focus groups, interviews, surveys, questionnaires, evidence of efficacy or effectiveness or cost-effectiveness 3 Values Surveillance Public Education Provider Education, Licensing/Registration, Recruitment Planning Insurance (issues) Language Transportation Program/Intervention Definition/Related Terms Surveillance, reporting systems, cancer registry, tumor registry; data, New Jersey data; prevalence, incidence, morbidity, mortality; specific surveillance systems (e.g., Behavioral Risk Factor Surveillance System, Youth Risk Behavior Survey) Public education, curriculum (school as opposed to professional education), awareness, health communication, social marketing, media (or mention of specific media, e.g., television), media campaign, teaching (the public as opposed to professionals), providing information for general public; culturally appropriate information and approach; specific educational products (e.g., brochure, flyer, website); conference (to build awareness as opposed to professional); laypeople, lay community Continuing education, curriculum (professional education as opposed to school), teaching (professionals as opposed to the public), work with professional associations, consensus panels or forums or professional conferences, developing practice guidelines or protocols, information for health care providers; cultural competence, culturally appropriate care; health careers, healthcare professionals, licensing, registration; recruitment into healthcare fields; training in healthcare fields, clinical internships and residencies Planning, strategic planning, prioritize Insurers, third-party payers, Medicare, Medicaid, health plans, health insurance plans, health maintenance organizations (HMOs), managed care organizations (MCOs), reimbursement, coverage Language, language barriers, translation, interpreters, specific language names Means of transportation to treatment or screening tests (e.g., cars, buses, vans, taxis, volunteer drivers), transportation vouchers, area-wide transportation (AWT) system Program, intervention, strategy, service, resources (programmatic as opposed to monetary), resource guide (summarizing programs, providers, and services) Use notes May be double coded with Collaboration May be double coded with Access May be double coded with Access 4 Values Collaboration Access to Care Definition/Related Terms Coordination among agencies and organizations, partners, partnership, coalition; engage or involve others; work together with; multidisciplinary Access to care, barriers to care, unavailability of appointment times, patient navigation or navigators Quality Assurance Quality assurance, quality control, quality improvement Funding/Resource Development Funds, resources (monetary as opposed to programmatic), grants, proposals, state general revenue, donations, foundations, funding agencies, seed money Information dissemination, media (radio, television, newspapers, newsletters), social marketing, communication plan, media campaign, health communication Information Dissemination Policy/Advocacy Infrastructure Health Disparities Clinical Trials Risk Factor Tobacco Alcohol Use notes May be double coded with Planning May be double coded with Insurance, Language, Transportation, Health Disparities May be double coded with Provider Education May be double coded with Policy/Advocacy May be double coded with Public Education, Provider Education, Policy/Advocacy Advocacy, advocate, lobby, policy, legislation, regulation, law, legislator(s), May be double coded with advocacy organizations, private voluntary organizations Information Dissemination, Funding/Resource Development Infrastructure, health systems, health systems change Differences in cancer burden (high risk) for different races, ethnicities, May be double coded with genders, language groups, socioeconomic status, income level, geography Access, Insurance, (e.g., urban/rural); minorities; (medically) underserved, underrepresented; Language, Transportation uninsured, underinsured; service gaps Clinical trials, clinical research, pharmaceutical research Factors that affect cancer risk and strategies for reducing risk factors. Tobacco, cigarettes, cigars, chewing tobacco, smoking, smoking cessation, quitting, environmental tobacco smoke, second-hand tobacco smoke, indoor clean air (cross-code with Environmental Hazards) Alcohol, alcohol consumption, drinking, binge drinking, binging 5 Values Other (Non-medicinal) Drug Obesity Occupational Exposures Physical Activity Diet Environmental Hazards Family History Medical Therapy Infectious Agents UV Radiation Population Factors Geographic Area Socioeconomic Status (SES) Insurance Status Definition/Related Terms Non-medicinal drugs other than alcohol and tobacco; medicinal drugs used for non-medicinal purposes (i.e., misuse of prescription drugs) Obesity, overweight, body mass index (BMI), weight Occupational exposures (carcinogens), workplace exposures (carcinogens), job-related exposures (carcinogens) Physical activity, exercise Diet, nutrition, 5-a-day, fruits and vegetables, eating patterns, food, dietary supplements, cachexia, malnutrition, dietician, neutraceuticals Environmental hazards (exposures, carcinogens), environmental factors, indoor clean air (cross-code with Tobacco) Family history, genetics, genetic markers, genes Medical therapy, medication (e.g., estrogenic agents, prior chemotherapy), prior radiation therapy Use notes Prior cancer therapy may also be double-coded with Secondary Cancer or to Treatment Infectious agents, infections, Epstein-Barr virus, Human Immunodeficiency Virus (HIV), helicobacter pylori, human papillomavirus, hepatitis B virus, hepatitis C virus Ultraviolet radiation, sun exposure, sun protection, SPF Aspects of subpopulations within the general population that may influence either their susceptibility to contract cancer or their ability to access treatment and other services. Additional population factors that may influence cancer risks, treatments, or strategies are listed separately below and include gender, race/ethnicity, and age. Geographic area, urban, rural, suburban, mention of a specific county or substate region Socioeconomic status (SES), income level Uninsured, underinsured 6 Values Immigration Status Definition/Related Terms Immigrant, foreign-born, illegal alien, illegal immigrant Special Needs Gender Female Special needs, mentally or physically challenged Cancer risks, treatments, or strategies specific to one gender. Female, women Male Male, men Race/Ethnicity Cancer risks, treatments, or strategies specific to a race or ethnicity. Asian Black Hispanic Asian (or mention of a specific Asian country, e.g., Viet Nam) Black, African-American, of African descent Hispanic, Spanish-speaking, Latino/a (or mention of a specific Spanishspeaking country, e.g., Puerto Rico) White, Caucasian Native American, American Indian, specific tribal name Cancer risks, treatments, or strategies specific to an age group. Child, infant, elementary school, preschool, day care (approx 0-12) Adolescent, teen, teen-ager, middle school, high school (approx 13-17) Young adult, college-age (approx 18-24) White Native American Age Groups Child Adolescent Young Adult (college age) Adult Senior Use notes May also be double-coded with Insurance Status, Race/Ethnicity, Language, Access to Care as appropriate Double code with cancers that only or predominantly affect women (Breast, Cervical, Ovarian) Double code with cancers that only or predominantly affect men (Prostate) May code with Health Disparities in strategy area Adult (approx 25-64) Senior citizen; elderly; residents of nursing home, assisted living facility, retirement home (community), elder care facility; gerontology (approx ≥ 65) 7 Values Partners for Strategy Definition/Related Terms Partners that are the target of strategies or whose assistance may be necessary to accomplish the strategy. Community-based organizations (CBOs) Faith-based Organizations Health Care Provider Organizations/ Professional Associations Media Community-based organization (CBO), grass-roots organization; community leaders or representatives of such organizations Faith-based organizations, churches, religious organizations; representatives of such organizations (e.g., pastors, ministers) Health care provider organizations or professional associations (e.g., NJ Dental Association); members of such organizations (e.g., dentists, doctors, nurses, allied health professionals) Media; specific mention of media partners (radio, newspaper, television, etc.) School, Headstart, EvenStart, daycare (center), preschool, elementary school, middle school, secondary school, high school, grades Kindergarten through 12; staff of such schools (e.g., principals, school nurses) Worksite, workplace; industry, corporation; employers, employees Hospitals, clinics, ambulatory care facilities; health plans, health maintenance organizations (HMOs) and managed care organizations (MCOs) in their role as providers of care (as opposed to their role as insurers); staff of such institutions Academic institution, college, university, professional school (e.g., school of medicine and dentistry), clinical internships and residencies, community college, trade and technical school; faculty, staff, and students of such institutions Decision makers, policy makers, legislators, other elected officials Insurers, third-party payers, Medicare, Medicaid, insurance companies, health insurance plans; health plans, health maintenance organizations (HMOs) and managed care organizations (MCOs) in their role as insurers (as opposed to their role as providers of care); staff of such organizations Advocacy organizations; specific mention of such an organization (e.g., American Cancer Society, Susan G. Komen Foundation) Schools Worksites Hospitals and Clinics Academic Institutions Decision makers Insurers Advocacy Organizations Use notes Code for partners mentioned in strategy rather than principal change agents. 8 Values Cancer Patients and Their Families Parents Health Department Government agencies Laboratories Pharmaceutical Companies Other Partner Definition/Related Terms Cancer patients, cancer survivor; parents/families of cancer patients/survivors Parents in general as opposed to parents of cancer patients, parents, families State health department, county health department, city health department, local health department and units within these (e.g., Division of Chronic Disease); staff of such health agencies Federal government (e.g., CDC, NCI, NIH, HRSA), state government, county government, local government, city government; representatives of such agencies (e.g., police, health and human service professionals) Laboratories, clinical laboratories, diagnostic laboratories Pharmaceutical companies; specific mention of such a company (e.g., Merck) Use notes Any other partner not mentioned above 9