Download Variables - Rutgers University

NJ CCC Database Field Definitions
Values
Cancer Site or Type
Breast
Cervical
Childhood
Colorectal
Lung
Leukemia/Lymphoma
Oral/Oropharyngeal
Ovarian
Prostate
Melanoma
Definition/Related Terms
Types and/or locations of cancer. Neoplasm, benign, malignant tumor,
carcinoma
Breast cancer, mammary, lymphedema (in relation to breast cancer)
Cervical cancer, cervix, uterine cervix
Childhood cancers, children with cancer, acute lymphocytic leukemia,
AML, Hodgkin’s disease, non-Hodgkin’s lymphoma, malignant bone
tumors, cancer of central nervous system, rhabdomyosarcoma
Colorectal cancer, colon cancer, rectal cancer, cancer of anus, cecum, large
intestine, small intestine, small bowel, large bowel
Includes lung cancer, bronchial, pulmonary, respiratory
Leukemia, lymphoma, lymphocytic leukemia, non-Hodgkin’s lymphoma
Oral cancer, oropharyngeal cancer, cancer of the lip, oral cavity, pharynx,
tongue, gum, gingival, alveolar mucosa, buccal mucosa, oropharynx,
mouth, or palate.
Ovarian cancer, ovary
Prostate cancer, prostatic cancer
Melanoma, malignant melanoma, skin cancer, dermatology
Other Skin Cancer
Any other skin cancer other than malignant melanoma, basal or squamous
skin cancer
Liver
Stomach
Liver cancer, hepatic cancer, cancer of bile duct
Stomach cancer, gastric cancer, gastrointestinal cancer
Friday, May 02, 2003
Use notes
May need to double-code
with Leukemia/Lymphoma
May need to be doublecoded with Childhood
cancer
If type of skin cancer not
specified, code both
Melanoma and Other Skin
Cancer
If type of skin cancer not
specified, code both
Melanoma and Other Skin
Cancer
1
Values
Secondary malignancy
Other Cancer Site or
Type
Continuum of Care
Definition/Related Terms
Secondary malignancy, second malignant neoplasm, secondary cancer
Steps in the process of responding to cancer, ranging from efforts to prevent the
occurrence of cancer (primary prevention) through to assisting those who have
survived the disease in coping with its aftermath (survivorship).
Primary prevention
Primary prevention refers to the elimination of risk factors for disease
In asymptomatic persons.
Early detection
Early detection, detection, diagnostic test, screening, secondary prevention
Treatment
Treatment, cancer treatment services, cancer care services, X-ray, radiation
therapy, chemotherapy, complementary and alternative therapies (CAM),
referral
Rehabilitation, follow-up care
Palliative care, palliation, end of life, pain management, quality of life,
hospice, psychosocial needs/support in relation to terminal illness
Survivorship, cancer survivors, late effects, psychosocial needs/support in
relation to former cancer patients, follow-up care
Rehabilitation
Palliative care/End of
Life
Survivorship
Use notes
Any strategy with this code
should be cross-coded with
… (list to be supplied by
Peg Knight)
Any other cancer type or
site not listed above.
May be double coded with
strategies for eliminating
specific risk factors (e.g.,
smoking cessation Tobacco, dietary changes Diet, healthy weight Obesity, increasing
physical activity – Physical
Activity, sun protection –
UV radiation, etc.)
May be double coded with
specific screening tests
2
Values
Screening/Diagnostic
Test
Mammography
Clinical Breast Exam
(CBE)
Pap test (include Thin
Prep)
Colposcopy
Colonoscopy
Virtual Colonoscopy
Flexible Sigmoidoscopy
Fecal Occult Blood Test
(FOBT)
Double-contrast barium
enema
Prostate Specific Antigen
(PSA)
Oral cancer exam
Spiral CT scan
Other Screening Test
Definition/Related Terms
Tests used for screening for or diagnosing cancer.
Use notes
Test for breast cancer, mammography, mammogram, screening
mammogram, diagnostic mammogram
Test for breast cancer
Test for cervical cancer, Pap test, Papanicolaou test, Pap smear, Thin prep,
liquid cytology
Diagnostic test for cervical cancer, colposcopy, cone biopsy, Loop
Electrosurgical Excisional Procedure (LEEP)
Test for colorectal cancer
Test for colorectal cancer (non-invasive colonoscopy with use of CT or
MRI imaging)
Test for colorectal cancer
Test for colorectal cancer
Test for colorectal cancer
Test for prostate cancer
Test for oral cancer
Test for lung cancer
Any other screening or
diagnostic tests not listed
above
Strategy Area
General areas in which those wishing to address cancer in all its many facets can
engage in activities.
Research/Evaluation
Research, assess, review, literature review, study/ies, program evaluation,
assessment, needs assessment, focus groups, interviews, surveys,
questionnaires, evidence of efficacy or effectiveness or cost-effectiveness
3
Values
Surveillance
Public Education
Provider Education,
Licensing/Registration,
Recruitment
Planning
Insurance (issues)
Language
Transportation
Program/Intervention
Definition/Related Terms
Surveillance, reporting systems, cancer registry, tumor registry; data, New
Jersey data; prevalence, incidence, morbidity, mortality; specific
surveillance systems (e.g., Behavioral Risk Factor Surveillance System,
Youth Risk Behavior Survey)
Public education, curriculum (school as opposed to professional education),
awareness, health communication, social marketing, media (or mention of
specific media, e.g., television), media campaign, teaching (the public as
opposed to professionals), providing information for general public;
culturally appropriate information and approach; specific educational
products (e.g., brochure, flyer, website); conference (to build awareness as
opposed to professional); laypeople, lay community
Continuing education, curriculum (professional education as opposed to
school), teaching (professionals as opposed to the public), work with
professional associations, consensus panels or forums or professional
conferences, developing practice guidelines or protocols, information for
health care providers; cultural competence, culturally appropriate care;
health careers, healthcare professionals, licensing, registration; recruitment
into healthcare fields; training in healthcare fields, clinical internships and
residencies
Planning, strategic planning, prioritize
Insurers, third-party payers, Medicare, Medicaid, health plans, health
insurance plans, health maintenance organizations (HMOs), managed care
organizations (MCOs), reimbursement, coverage
Language, language barriers, translation, interpreters, specific language
names
Means of transportation to treatment or screening tests (e.g., cars, buses,
vans, taxis, volunteer drivers), transportation vouchers, area-wide
transportation (AWT) system
Program, intervention, strategy, service, resources (programmatic as
opposed to monetary), resource guide (summarizing programs, providers,
and services)
Use notes
May be double coded with
Collaboration
May be double coded with
Access
May be double coded with
Access
4
Values
Collaboration
Access to Care
Definition/Related Terms
Coordination among agencies and organizations, partners, partnership,
coalition; engage or involve others; work together with; multidisciplinary
Access to care, barriers to care, unavailability of appointment times, patient
navigation or navigators
Quality Assurance
Quality assurance, quality control, quality improvement
Funding/Resource
Development
Funds, resources (monetary as opposed to programmatic), grants, proposals,
state general revenue, donations, foundations, funding agencies, seed
money
Information dissemination, media (radio, television, newspapers,
newsletters), social marketing, communication plan, media campaign,
health communication
Information
Dissemination
Policy/Advocacy
Infrastructure
Health Disparities
Clinical Trials
Risk Factor
Tobacco
Alcohol
Use notes
May be double coded with
Planning
May be double coded with
Insurance, Language,
Transportation, Health
Disparities
May be double coded with
Provider Education
May be double coded with
Policy/Advocacy
May be double coded with
Public Education, Provider
Education,
Policy/Advocacy
Advocacy, advocate, lobby, policy, legislation, regulation, law, legislator(s), May be double coded with
advocacy organizations, private voluntary organizations
Information Dissemination,
Funding/Resource
Development
Infrastructure, health systems, health systems change
Differences in cancer burden (high risk) for different races, ethnicities,
May be double coded with
genders, language groups, socioeconomic status, income level, geography
Access, Insurance,
(e.g., urban/rural); minorities; (medically) underserved, underrepresented;
Language, Transportation
uninsured, underinsured; service gaps
Clinical trials, clinical research, pharmaceutical research
Factors that affect cancer risk and strategies for reducing risk factors.
Tobacco, cigarettes, cigars, chewing tobacco, smoking, smoking cessation,
quitting, environmental tobacco smoke, second-hand tobacco smoke, indoor
clean air (cross-code with Environmental Hazards)
Alcohol, alcohol consumption, drinking, binge drinking, binging
5
Values
Other (Non-medicinal)
Drug
Obesity
Occupational Exposures
Physical Activity
Diet
Environmental Hazards
Family History
Medical Therapy
Infectious Agents
UV Radiation
Population Factors
Geographic Area
Socioeconomic Status
(SES)
Insurance Status
Definition/Related Terms
Non-medicinal drugs other than alcohol and tobacco; medicinal drugs used
for non-medicinal purposes (i.e., misuse of prescription drugs)
Obesity, overweight, body mass index (BMI), weight
Occupational exposures (carcinogens), workplace exposures (carcinogens),
job-related exposures (carcinogens)
Physical activity, exercise
Diet, nutrition, 5-a-day, fruits and vegetables, eating patterns, food, dietary
supplements, cachexia, malnutrition, dietician, neutraceuticals
Environmental hazards (exposures, carcinogens), environmental factors,
indoor clean air (cross-code with Tobacco)
Family history, genetics, genetic markers, genes
Medical therapy, medication (e.g., estrogenic agents, prior chemotherapy),
prior radiation therapy
Use notes
Prior cancer therapy may
also be double-coded with
Secondary Cancer or to
Treatment
Infectious agents, infections, Epstein-Barr virus, Human Immunodeficiency
Virus (HIV), helicobacter pylori, human papillomavirus, hepatitis B virus,
hepatitis C virus
Ultraviolet radiation, sun exposure, sun protection, SPF
Aspects of subpopulations within the general population that may influence either
their susceptibility to contract cancer or their ability to access treatment and other
services. Additional population factors that may influence cancer risks, treatments,
or strategies are listed separately below and include gender, race/ethnicity, and age.
Geographic area, urban, rural, suburban, mention of a specific county or
substate region
Socioeconomic status (SES), income level
Uninsured, underinsured
6
Values
Immigration Status
Definition/Related Terms
Immigrant, foreign-born, illegal alien, illegal immigrant
Special Needs
Gender
Female
Special needs, mentally or physically challenged
Cancer risks, treatments, or strategies specific to one gender.
Female, women
Male
Male, men
Race/Ethnicity
Cancer risks, treatments, or strategies specific to a race or ethnicity.
Asian
Black
Hispanic
Asian (or mention of a specific Asian country, e.g., Viet Nam)
Black, African-American, of African descent
Hispanic, Spanish-speaking, Latino/a (or mention of a specific Spanishspeaking country, e.g., Puerto Rico)
White, Caucasian
Native American, American Indian, specific tribal name
Cancer risks, treatments, or strategies specific to an age group.
Child, infant, elementary school, preschool, day care (approx 0-12)
Adolescent, teen, teen-ager, middle school, high school (approx 13-17)
Young adult, college-age (approx 18-24)
White
Native American
Age Groups
Child
Adolescent
Young Adult (college
age)
Adult
Senior
Use notes
May also be double-coded
with Insurance Status,
Race/Ethnicity, Language,
Access to Care as
appropriate
Double code with cancers
that only or predominantly
affect women (Breast,
Cervical, Ovarian)
Double code with cancers
that only or predominantly
affect men (Prostate)
May code with Health
Disparities in strategy area
Adult (approx 25-64)
Senior citizen; elderly; residents of nursing home, assisted living facility,
retirement home (community), elder care facility; gerontology (approx ≥
65)
7
Values
Partners for Strategy
Definition/Related Terms
Partners that are the target of strategies or whose assistance may be
necessary to accomplish the strategy.
Community-based
organizations (CBOs)
Faith-based
Organizations
Health Care Provider
Organizations/
Professional Associations
Media
Community-based organization (CBO), grass-roots organization;
community leaders or representatives of such organizations
Faith-based organizations, churches, religious organizations; representatives
of such organizations (e.g., pastors, ministers)
Health care provider organizations or professional associations (e.g., NJ
Dental Association); members of such organizations (e.g., dentists, doctors,
nurses, allied health professionals)
Media; specific mention of media partners (radio, newspaper, television,
etc.)
School, Headstart, EvenStart, daycare (center), preschool, elementary
school, middle school, secondary school, high school, grades Kindergarten
through 12; staff of such schools (e.g., principals, school nurses)
Worksite, workplace; industry, corporation; employers, employees
Hospitals, clinics, ambulatory care facilities; health plans, health
maintenance organizations (HMOs) and managed care organizations
(MCOs) in their role as providers of care (as opposed to their role as
insurers); staff of such institutions
Academic institution, college, university, professional school (e.g., school
of medicine and dentistry), clinical internships and residencies, community
college, trade and technical school; faculty, staff, and students of such
institutions
Decision makers, policy makers, legislators, other elected officials
Insurers, third-party payers, Medicare, Medicaid, insurance companies,
health insurance plans; health plans, health maintenance organizations
(HMOs) and managed care organizations (MCOs) in their role as insurers
(as opposed to their role as providers of care); staff of such organizations
Advocacy organizations; specific mention of such an organization (e.g.,
American Cancer Society, Susan G. Komen Foundation)
Schools
Worksites
Hospitals and Clinics
Academic Institutions
Decision makers
Insurers
Advocacy Organizations
Use notes
Code for partners
mentioned in strategy
rather than principal
change agents.
8
Values
Cancer Patients and
Their Families
Parents
Health Department
Government agencies
Laboratories
Pharmaceutical
Companies
Other Partner
Definition/Related Terms
Cancer patients, cancer survivor; parents/families of cancer
patients/survivors
Parents in general as opposed to parents of cancer patients, parents, families
State health department, county health department, city health department,
local health department and units within these (e.g., Division of Chronic
Disease); staff of such health agencies
Federal government (e.g., CDC, NCI, NIH, HRSA), state government,
county government, local government, city government; representatives of
such agencies (e.g., police, health and human service professionals)
Laboratories, clinical laboratories, diagnostic laboratories
Pharmaceutical companies; specific mention of such a company (e.g.,
Merck)
Use notes
Any other partner not
mentioned above
9