Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
Transforming Cancer Services Team for London Operational Flowchart Prostate Cancer Enhanced Follow-up Patient identified as suitable for primary care follow up using patient identifier (attachment 1 overleaf) Patient already having primary care follow up Patient is informed by practice Letter sent to secondary care urologist to request transfer (Attachment 2) No Secondary care agree that patient followed up in primary care according to protocol? Consultant team follow-up in hospital Yes Send Living with Prostate cancer letter (Attachment 4 overleaf). Use EMIS/VISION Template at reviews. Letter sent from Urology consultant to GP with detailed discharge advice. Practice to inform patient about transfer of care. Patient to receive a copy of discharge/transfer letter Welcome appointment: Initial 30 minute appointment for new patients with clinician to review: Prostate care plan that patient has completed Discuss treatment so far, any side effects of treatment, discuss support needs and provide relevant information. Practice send out “Welcome pack” to patient 4 weeks from transfer that includes the following: 1. 2. 3. Welcome pack Patient survey with TCST addressed envelope Prostate Care plan (Attachments 3 overleaf) PSA test at 6 months with any other required bloods See advice given by secondary care at point of discharge outlined in the discharge summary). If results are abnormal according to the discharge advice given by consultant – refer back to secondary care via Urgent Referral letter and route. Follow up appointment with GP/PN to: (attachment 4 overleaf) Discuss the results of blood tests Carry out consultation using Prostate Follow-up Template. LIS claim made quarterly using excel spread sheet. Attachment 5 overleaf. Repeat in 6 months (or as stated on transfer of care letter) 1 Transforming Cancer Services Team for London Attachments Attachment 1 Attachment 2 Attachment 3 Patient Identifier tool to help find prostate cancer patients that are suitable for primary care follow-up. Letter to secondary care requesting transfer of patient for primary care follow-up. Use one letter per patient. For CUH please address to Mark Lynch, for any other trust please address to their consultant urologist/oncologist. Practice to inform patient if transfer to primary care is agreed by secondary care consultant Welcome Letter, Survey and Welcome Appointment to be sent 4 weeks from receipt of transfer to practice. Survey to be sent with SAE to : Barbara Gallagher/Sandra Dyer, Transforming cancer Services Team for London , SE CSU, 1 Lower Marsh, London SE1 7NT. Attachment 5 Transfer of care letter to Secondary Care June 2015.dot Welcome pack documents Attachment 4 Patient Identifier tool.pdf Welcome Letter to prostate cancer patient July 2015.doc Survey One Word 2003.doc Welcome Appointment to be arranged with patient Holistic Care Plan to be used in Welcome Appointment and be reviewed in subsequent follow-up appointment. This can be integrated into VISION/EMIS web. Living with prostate cancer letter (for existing patients). Send out when recalling for PSA blood and review. Prostate Cancer Care Plan July 2015.doc Letter to Existing patients July 2015.doc Urgent re-referral/ Advice only letter to Secondary Care. Urgent follow up letter June 2015.doc Advice only template June 2015.doc Attachment 6 Guides to upload the Prostate Cancer follow-up consultation templates for EMIS or Vision clinical systems. Importing_an_EMIS web template .pdf Vision instructions for downloading and importing PSA Guideline. 2 Transforming Cancer Services Team for London Attachment 7 CCG Reporting Spread sheet for remuneration. LIS reporting tool.xls Attachment 8 Maintain Prostate Cancer Register to mitigate and reduce risk of patients lost to follow up/ or delayed PSA and follow up. Prostate cancer Register.xls Attachment 9 CPD accredited educational resources suitable for GPs, practice and primary care nurses and Allied Health Professionals. Final July 2014 Prostate_Cancer_Education_resources.d Primary_Care_Nurse s_Tool_ pdf http://prostatecanceruk.org/croydontoolkit Attachment 10 Primary care Follow up protocol. Designed to assist primary care where there is a lack of guidance in their discharge summary (historical discharges). This does not replace individualised discharge advice. Please note that secondary care recommendations for DEXA for patients on hormone treatment or Sigmoidoscopy post radiotherapy/brachytherapy there are no commissioned pathways currently. Follow up in protocol primary care V1 April 2015.pdf Frequently asked Questions You may find the following answers to frequently asked questions useful. 1. What is the Enhanced Prostate Cancer LIS? This is a Local Incentive Scheme (LI) which provides an incentive for primary care to provide follow up to stable patients with prostate cancer or those who are on a watchful waiting pathway. 2. What is the difference between watchful waiting and active surveillance? Watchful waiting is offered to patients when radical (curative) treatment would not be appropriate due to their comorbidities or whose cancer may never cause problems during their lifetime. Any treatment offered will be to control the cancer as opposed to a cure. Watchful waiting will normally be provided in primary care (NICE CG 175 2014). Active surveillance is also an approach that delays treatment, the aim of any treatment will be curative however. It is suitable for some men with localised prostate cancer. It is always carried out in secondary care as it involves prostate biopsies and MRI scans as well as regular PSA testing and interpretation. 3. How to upload the EMIS/Vision template There are guides available on how to upload for both systems (Attachment 6 above.) 4. What is a Prostate Cancer Care Plan? This has been developed to help patients identify their needs relating to the side effects of treatment and the consequences of their disease and to help structure appointments. It is intended to be used at the welcome appointment and for patients coming back for review who have not had the opportunity to discuss their supportive needs before. It was adapted from a validated tool designed to assess the holistic needs of patients with cancer whilst in secondary care. It will be tested as part of the evaluation of the primary care prostate cancer project. The project team welcomes comments on the use of this tool (contact details at end of this document). 3 Transforming Cancer Services Team for London 5. What is the Prostate Cancer Disease Register? This is a register of all the patients in one practice who have prostate cancer. This provides a record of who is having primary care follow up and also of those who may be suitable in the future. It also provides details of when PSA tests and reviews are due. 6. Which read codes should I use to identify patients within primary care? The patient identifier tool (Attachment 1) provides the read codes and process required to identify suitable patients for the LIS 7. How can I learn more about prostate cancer, side effects of treatment and consequences of the disease? The project team recommends the completion of the modules identified in the attached guide (Attachment 9). In addition Prostate Cancer UK provides a wide range of resources aimed at health care professionals on their website: http://prostatecanceruk.org/for-health-professionals The project team has also developed a tool kit to enable primary care nurses and allied health professionals provide care to this patient group. This has been developed with the support of Prostate Cancer UK and Macmillan Cancer Support. This is available here: http://prostatecanceruk.org/croydon-toolkit 8. As a busy practice our GPs are already inundated and we fear that we will struggle with the number of extra patients and appointments. After visiting nearly all the practices in Croydon we know that on average each practice will be accommodating between 1 and 8 patients per month depending on the number of patients you have. The transfer from secondary care will be a slow trickle so you will not have patients flooding into your practice. Practice Nurses and Allied Health Professionals are ideally placed to conduct Welcome Appointments and follow up care. Support is available from the project ream until September 2015. 9. Where can I find out more about primary care management of patients discharged from secondary care after treatment? The follow up protocol (attachment 10) has been developed to help clinicians in safely managing this patient group. We know that, historically, discharge information from secondary care was not always comprehensive and that guidance around follow up changes when new evidence emerges. The protocol is designed as an addition to any individualised discharge advice and has been endorsed by secondary care clinicians. Advice on dexa scanning for the hormone therapy patients and Sigmoidoscopy post radiotherapy/brachytherapy is based on local guidance from secondary care, currently there is no commissioned pathway for these. Contact details for Project Team: Sandra Dyer, Nurse Lead: [email protected] and Dr Jaimin Patel, GP Lead: [email protected]. Project support available until 30.9.15 To help the project team evaluate the process and tools developed for the project please complete the following on line survey after completing a consultation with patients: https://www.surveymonkey.com/r/3YJL5ZX (please complete once only, survey open until 30/9/15) 4