Download c/- Funding Division MidCentral District Health Board PO Box 2056

c/- Funding Division
MidCentral District Health Board
PO Box 2056
Palmerston North
P | 06 350 8622
E | [email protected]
Central Cancer Network Programme Update
(covers the period 29/5/12 to 22/8/12)
Updates on the CCN Website
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www.centralcancernetwork.org.nz
Central Region Palliative Care Minutes and link to individual videoed sessions of the forum
Cancer Consumer Representative Minutes
Collaboration in Action
The following meetings have been facilitated and/or attended by the team this period:
 Local Cancer Network meetings
 Central Region Palliative Care Network forum (18/7)
 National Cancer Consumer Representatives Advisory Group (27/6)
 Consumer Representative Forum (5/7)
Faster Cancer Treatment (FCT)
Work programme supports the collection and reporting of indicators used to measure the timeliness of
cancer treatment and related improvements to service delivery.
Regional FCT Steering Group – the group has been established and met via teleconference to
review and approve the regional FCT plan. A face to face is planned for later in the year.
DHB FCT Implementation Groups - Groups have been established in each DHB to support
implementation of the FCT programme in DHBs over the next few years.
FCT Regional Implementation Plans – the draft plan was completed and presented to the MOH end
of June. The plan focuses on the processes and resources which need to be put in place to develop
the reporting requirements around the indicators. The networks are awaiting notification for the MOH
re the investment in the plan. From July 1st DHBs are required to start capturing these indictors and
CCN is working with DHBs to achieve reporting around these.
Care Coordination – The regional stocktake was completed in June and provided to the MOH to
inform the work around the new care coordination funding. An Expert Advisory Group has been
established to guide the development of these new positions and includes Jo Anson (CCN) and Sue
Wood (DHB ead Director of Nursing for Cancer). It is expected that this funding will be rolled out in
the October round of funding to DHBs.
National Tumour Stream Standards – work on all eight national tumour groups (bowel, breast,
gynaecological, haematological, head and neck, melanoma, upper gastro-intestinal, sarcoma) has
commenced with national forums and meetings underway. CCN is hosting the haematological group.
Lung Tumour Stream
Work programme aims to identify service issues across the CCN region for lung cancer patients and
to develop and promote standards for service delivery.
Stocktake of Current Service Provision for Lung Cancer Patients in NZ –Between August 2011
and July 2012 the NLCWG undertook a stocktake questionnaire and gap analysis to determine the
level of services being provided to patients with lung cancer and how close current service provision
was to meeting the new national standards for lung cancer. The collated information has been
reported in 2 documents:
1. A dashboard report which summarises DHB performance against each of the 13 standards
2. A stocktake report which provides an overview of the methodology used for the stocktake and
a summary of current provision of services for patients with lung cancer by DHB and regional
cancer network areas.
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Capital & Coast | Hawkes Bay | Hutt Valley | MidCentral | Tairawhiti
Taranaki | Wairarapa | Whanganui
The Chair of the NLCWG has recently provided a copy of the Gap Analysis of Service provision for
Lung Cancer Patients in NZ Report to the Cancer Programme Steering Group (CPSG) for discussion.
The CPSG will agree on how to action the report prior to dissemination to wider stakeholder groups.
Bowel Tumour Stream
Work programme aims to identify the service issues across the CCN region for patients with bowel
cancer, and to develop and promote standards for service delivery.
National Bowel Cancer Working Group (NBCWG) - We are not aware of any specific activity this
period.
Evaluation of the NZ Global Rating Scale (GRS) – A 12 month development trail of the endoscopy
service improvement tool known as GRS has just been completed and the report has been provided
to the MOH. The findings of the evaluation will partly inform the decision on a national roll out by the
MOH and how this might best be implemented.
Whanganui Bowel Pathway Project - An audit of 10-20 urgent and semi urgent referrals for
suspicion of bowel cancer has been undertaken by Whanganui DHB. The data has been forwarded
to Semisi.Aiono for still analysis.
Head and Neck Tumour Stream
Work programme aims to identify the service issues across the CCN region for patients with bowel
cancer, and to develop and promote standards for service delivery.
Regional Clinical Audit of Dental Services for H&N Cancer Patients – A Regional Clinical Dental
Forum was held in Wellington on the 30th May. The following actions were agreed:
1. Dental assessment should happen prior to MDM discussion
2. Develop a regional prior approval process for funding of complex dental care
3. Escalate funding of complex dental cases to National H&N Cancer Working Group
4. Audit report to be forwarded to National H&N Cancer Working Group once established
5. Robin Whyman to present audit findings to NZDA Conference in August
Gynae – Oncology Tumour Stream
Work programme aims to identify the service issues across the CCN region for patients with
gynaecological cancer, and to develop and promote standards for service delivery.
No specific activity this period. The National Plan for Gynaecology Cancer Services is still under
discussion and has not yet been released for circulation to wider stakeholder groups. This will be
progressed by the national gynaecological tumour stream group.
Multi-disciplinary Meetings (MDM)
Work programme aims to improve access to an MDM opinion and to enable cancer treatment MDMs
to function more efficiently.
MDM Regional Conferencing Project – the dates for installation of the video conferencing solution
to support cancer MDMs have now been finalized. These have been scheduled as follows.
Capital & Coast
Hutt Valley
MidCentral
Wairarapa
Hawkes Bay
Taranaki
Whanganui
10th Sept to 17th Sept
24th Sept to 28th Sept
8th Oct to 12th Oct
22nd Oct to 26th Oct
30th Oct to 2nd Nov
12th Nov to 16th Nov
26th Nov to 30th Nov
General MDM Development – Government funding to extend MDMs for all main cancer tumour
streams is to be used for additional MDM activity. Work that is required to be undertaken over the next
12 months includes:
1. Patient information leaflet – circulated and agreed
2. The function of MDM coordination is scoped at each site
3. Agreed referral pathways established for all local and regional MDMs
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Capital & Coast | Hawkes Bay | Hutt Valley | MidCentral | Tairawhiti
Taranaki | Wairarapa | Whanganui
4. Review all local and regional MDMs, do these meet the needs of the region, and are they
resourced appropriately?
 Clinicians agree which MDMs should have a regional focus and which DHB should host
these.
 Develop a regional funding model to ensure funding is channelled appropriately between
host and referring DHBs
5. MOH Guidance for implementing quality MDMs is implemented:
 Meeting protocols are developed – all DHBs will have terms of reference
 Membership of existing MDMs is reviewed
 Criteria for discussion is developed
6. Documentation processes will need to be established. Initially this may have to be paper based
but electronic proformas will be rolled out alongside implementation of Concerto. This will capture
the following information:
 Meeting outcomes – communicated back to the initial referrer and GP (if different).
 Collection of data – core data sets agreed for each MDM which support clinical decision
making
 Audit – agree on an audit tool for monitoring MDMs
Cancer Centre Update
Work programme supports improved relationships and the identification of collaborative activities
between the two cancer centres in the central region
Radiation Oncology –National wait time target is being met by both centres (patients receive
radiation therapy within 4 weeks). RCTS and WBCC are working with the MOH to model future linac
capacity requirements for the region.
Medical Oncology (MO) – the Steering Group (Dr Andrew Simpson, Chair) have developed a 12
month national work plan for the New Models of Care for Medical Oncology. The plan covers both
service and workforce development activities and is awaiting Ministerial sign-off.
Engagement with Iwi/Maori
Work programme supports engagement and partnerships with Maori to improve overall cancer care
and address inequalities
Hei Āhuru Mōwai: National Māori Cancer Leadership Group (NMCLG) – Hei Āhuru Mōwai Inc. is
now an incorporated society and has held its inaugural hui in May 2012. A Maori Provider
Development grant proposal has been successful. The group is now formalising its terms of
reference; work plan and communication plan. The second meeting of Hei Āhuru Mōwai Inc is
currently being planned for September 2012.
Engagement with Pacific Communities
This work programme aims to support engagement and partnerships with Pacific communities to
improve overall cancer care and address inequalities
Discussions are underway with the DHB Pacific Advisors in Capital & Coast, MidCentral and Hawkes
Bay to identify where CCN can best work to support Pacific communities and cancer control going
forward.
Engagement with Consumers
Work programme supports engagement and partnerships with Consumers to improve overall cancer
care and address inequalities
National Cancer Consumer Representative (CCR) Contract
The second meeting of the cancer consumer representatives was held in June. Representation
includes consumers from each of the regional cancer networks, national cancer organisations and
Maori.
The group confirmed the terms of reference and the workplan. A proposed training package for
consumer representatives was presented and will be further developed. The group confirmed their
role as providing advice and guidance to cancer organisations regarding consumer representation
and inclusion.
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Capital & Coast | Hawkes Bay | Hutt Valley | MidCentral | Tairawhiti
Taranaki | Wairarapa | Whanganui
Patient Story project with UCOL
CCN and UCOL are currently scoping the potential of patient stories being integrated into the learning
outcomes of three groups of professional at UCOL, as a research project. The project group has
appointed 2 consumer representatives. Awaiting the signed Memorandum of Understanding from
UCOL and will then commence the literature review.
Consumer Representation on National Health IT Board Projects
Stephanie Fletcher has been appointed as a consumer representative to provide input on a number of
national IT projects. Steph’s involvement enables the network to keep abreast of developments in this
space and to ensure that a cancer perspective is provided. Activity this period includes:
 Attendance at the HINZ conference in Auckland
 Wairarapa Better Sooner More Convenient Governance Group
 NHITB consumer panel meeting – note that road shows have commenced to inform the public of
the progress of Connected Health Records
Addressing Inequalities Pilot Funding
Work programme supports Local Cancer Networks to identify and address inequalities in their districts
 Round 1 Funding – Most projects now complete. Awaiting evaluation report for the Pacific radio
project and Hawkes Bay are yet to complete their pacific focussed initiative.
 Round 2 Funding – Projects are now underway.
Supportive Care
This work programme aims to improve the delivery of supportive care services for cancer patients
Patient Diary (Cancer Society NZ lead) – Stephanie has taken over as joint project lead with Sarah
Penno, CSNZ. The resource, called “My Health Matters’, has been developed, and will be piloted in a
joint initiative between CSNZ, MDHB and CCN. A reference group has been established and the
project scoped. Provider training will commence August with the dissemination of the kits starting mid
September
Service Directory – CCN is exploring ways of promoting the web-based resource including placing
stickers on all cancer resources from the Cancer Society and Cancer Centres. Talks still need to be
had with some providers.
Community Health Development Project
Project aims to identify opportunities to improve the integration of planning and delivery of health
promotion activities to better support community health development.
No activity this period. Equity Project Manager to review information and discuss next steps with the
Advisory Group.
Regional Cancer Nurse Directors’ Programme
Project supports cancer nursing leadership, networking and development across the region
The Nursing in Cancer Care Strategy has been drafted and feedback has been provided by the
Advisory Group. A paper will be presented at the NZ Regional Cancer Networks forum in Aug to
discuss the potential for the strategy to be adopted nationally.
Central Region Palliative Care Network (CRPCN)
This network provides a forum to enable key stakeholders to share information and work
collaboratively in the ongoing planning and development of palliative care services across the region.
CRPCN Education Forum – this annual forum was held in Palmerston Nth on the 18th July, attended
by over 70 health workers and researchers. The theme was Vulnerable Populations and Palliative
Care and presentations covered health literacy, Maori workforce models, research on cultural
components of the Liverpool care pathway and nursing models in primary care. Videos and
presentations from the day can be found on the CCN website.
Regional Service Planning
Regional Services Plan - the plan for regional cancer services has been completed for 2012/13 and
covers the following mandatory areas of focus:
 Timely and improved access to radiotherapy and chemotherapy services
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Capital & Coast | Hawkes Bay | Hutt Valley | MidCentral | Tairawhiti
Taranaki | Wairarapa | Whanganui
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Timely and improved access to diagnosis and cancer treatment services – faster cancer
treatment programme and MDM development
Development of regional data repositories
Improved colonoscopy wait times and quality of service
CCN Work Plan 2012/13 – the plan has been drafted and will be discussed at the Regional Clinical
Forum and local cancer network meetings over the next few weeks.
Regional Clinical Forum – this was held on the 21st Aug in Wellington and attended by over 60
clinicians and managers from across the region. Key topics covered the Faster Cancer Treatment
programme, MDM development plan, Nursing in Cancer Care plan and clinical leadership.
Tairawhiti Cancer Services Review – TDH Board have announced that they will be shifting their
tertiary cancer services from MDHB to Waikato from July 2013. As a result Tairawhiti shifted into the
Midland Cancer Network (MCN) at the end of June 2012. CCN, MCN and TDH worked through a
transition plan.
Additional Activities for this period:
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Submission on the Central Region Transport & Accommodation Report
Submission on the Health Quality & Safety Commission’s Partners in Care Framework
Major Activities Planned for Next 6 - 8 Weeks:
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Faster Cancer Treatment – working with DHBs to:
 Collate the first few months of FCT data
 Identify and assess options for a more automated data collation process going forward
 Ongoing MDM development including Video conferencing implementation commenced
 identify and implement new care coordination roles
 Implement project and analytical resource as identified in the plan (subject to MOH funding)
 Working with CRISP to identify the requirements around the FCT work
 Working with the Haematology Work Group to draft standards for the Lymphoma and
Myeloma pathways
Completing the Nursing in Cancer Care Strategy and commencing implementation
Establishing the Regional Oncology Social Work lead position (subject to CCN Governance Group
approval)
Supporting the development of the regional smokefree plan (TAS lead)
Supporting the My Health Matters pilot (Cancer Society NZ lead)
Supporting submission writing workshops in Palmerston Nth and New Plymouth (PHA lead)
Prince2 project training for management team members
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Capital & Coast | Hawkes Bay | Hutt Valley | MidCentral | Tairawhiti
Taranaki | Wairarapa | Whanganui