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2013-02-13 The National Board of Health and Welfare The process of developing National Guidelines supports implementation Arvid Widenlou Nordmark Department of Knowledge Based Policy and Guidance National Guidelines Project Manager for breast, colorectal and prostate cancer E-mail: [email protected] 1 2013-02-13 National Guidelines • Contribute to the efficient use of health care and social resources, distributed according to need, and governed by systematic and transparent priority setting • Support county and municipality councils planning and working with local health care and social programs • Provide support for activities based on science (and at some occasions on proven experience) • Focus on areas in need of guidance = Controversial areas, different practices, and Cost vs. Effiency Content of Guidelines • Scientific based reviews on medicine and health economics • Rank order (1-10) • Interventions that should not be part of routine health care – Not to do – Research & Development • Relevant quality/performance indicators • Expected consequences 2 2013-02-13 The guideline process COMMUNICATION & SUPPORT INDICATORS - GOOD CARE PREPARING & DELIMITATION SCIENTIFIC FOUNDATION - searching, reviewing & grading PRIORITIZING - recommendations COMMUNICATION & SUPPORT INDICATORS - GOOD CARE PRELIMINARY VERSION - regional seminars FINAL VERSION National Assessment and Evaluation UPDATING National Guidelines for Breast, Colorectal and Prostate Cancer An example of updating a guideline • Project started fall 2010 • Scientific foundation during 2011 • Prioritizing during 2012 • Preliminary version 2013 (6th of March) • National and regional conferences spring 2013 • Final version 2013/2014 3 2013-02-13 Preparing & delimination • Hearing or other activity to define condition and interventions • In which areas are the biggest needs of guidance? • A new guideline or an update? • In this project we had national guidelines from 2007 as a starting point Scientific foundation • systematic search of literature • assess and summarise the scientific evidence/summary of findings • grading the strength of evidence – GRADE collaboration for an open and systematic process • A large number of experts are involved, about 100 in this project 4 2013-02-13 Prioritizing How to form a priority-setting group • Involvement of stakeholders by a nomination process • Balancing regional and professional interests • Conflicts of interests • Training-camp – Framework, purpose of National Guidelines, earlier experiences, ground-rules, practice! 5 2013-02-13 Priority-setting group Profession M.D. M.D. M.D. OT (arbetster.) Nurse Nurse M.D. Counselor Physiotherapy M.D. M.D. M.D. Nurse M.D. M.D. M.D. M.D. Speciality Oncology Radiology Oncology Diagnose Breast Breast Prostate Cont. Nurse Cont. Nurse Surgeon Breast Colorectal Colorectal Oncology Palliative Radiology Cont. Nurse Urology Surgeon Urology General pract. Colorectal Colorectal Prostate Prostate Breast Prostate Name Nils-Olof Bengtsson Pal Bordas Lars Franzén Ulrika Persson Agneta Eriksson Anne-May Ryytty Per Nilsson Aina Johnsson Ylva Dahlin Maria Albertsson Per-Anders Heedman Christer Lundstedt Anna-Carin Börjedal Rolf Lundgren Anders Cohen Eva Johansson Marcela Ewing Region Norra Norra Norra Norra Stockholm-Gotland Stockholm-Gotland Stockholm-Gotland Stockholm-Gotland Stockholm-Gotland Sydöstra Sydöstra Södra Södra Södra Uppsala/Örebro Uppsala/Örebro Västra Preliminary version • The starting point of formalizing the implementation by involving – County councils/commissioners (political decision makers, managers) – Medical and nursing professions – Patient organizations • National and regional conferences – GAP-analyses – Process of open consultation 6 2013-02-13 Final version • • • • Consider the result from the open consultation Adjust recommendations New recommendations? Consequences are completed from the regions GAP-analyses • Settle an organization for quick update and adjustment National Assessment and Evaluation • To illuminate differences in cancer care between different counties and hospitals regarding organizational factors, processes, results and costs • To evaluate cancer care in Sweden departing from: – the intentions of the Health and Medical services Act – the National guidelines • To evaluate whether the results are as good as expected 7 2013-02-13 Publications and ongoing projects Published: • Musculo-skeletal diseases • Primary prevention (life-style) • Dental-care • Cancer (breast, colorectal, prostate and lung cancer) • Schizophrenia • Dementia • Depression and anxiety • Diabetes (I and II) • Stroke • Cardiac care • Drug abuse Ongoing: • Cancer (update of breast, colorectal and prostate) • Drug abuse (update) • Asthma and COPD (update) • Cardiac diseases (update) • Palliative care BACKUP 8 2013-02-13 Condition Health Symptoms Dementia Behavioral / psychological symptoms Co-morbidity y Intervention Prevention Assessment Follow-up Nursing and care science Palliative treatment Daily activities Medicine Housing g Staff training 9