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Screening and Teaching for Discharge Patsy J. Hammonds, RN, C, MS, CNA Objectives Provide recent birth and admission statistics Identify admission criterion for Level I, II, and III nurseries Evaluate the knowledge level of the parents and their educational needs Evaluate the needs of the infant prior to and following discharge. Identify screening measures necessary for appropriate discharge Provide information on SIDS to increase the parents awareness of how to be proactive in the care of their infant Provide information on infant care and safety issues that are relevant to the care of an infant being discharge from the hospital Identify home care needs and red flags General Birth and Admission Statistics for 2006-2007 1 4.3 million infants born in the US 148,403 infants born in GA 21,007 Preterm infants born in GA 14,209 LBW infants <2500gms in GA 2,682 VLBW infants <1500gms in GA The data above was obtained from the Georgia Department of Human Resources, Division of Public Health http://health.state.ga.us Statistics Continued 10-12% of all infants (preterm and term) are admitted to Level II or Level III Nurseries Average LOS <1500grams: 2-4 months; LOS >1500 grams: 17-30 days Neonatal survival for 23-25 weeks gestation is 1176% 27% of infants <1000gms at birth who have normal Head Ultrasounds at discharge have severe to moderate CP or other severe neurodevelopmental challenges. Kelly M. Journal of Pediatric Health Care “The Medically Complex Premature Infant in Primary Care” November/ December (2006) 20 (6)367-373 Need for Admission into a Level I, Newborn Nursery >34 weeks, healthy Absence of prenatal care Birth trauma Murmur Hyperbilirubinemia Infant of a Diabetic Mother (IDDM) Infection risk factors (GBS, PROM, elevated temperature…(etc.) Substance abuse Temperature control issues Weight loss >8% Need for further nonoxygen observation (TTN, transition) Need for Admission into a Level II Intermediate Care Nursery RDS (minimal-moderate O2 need) Spontaneous pnuemothorax TTN Feeding issues (cleft’s, etc.) Apnea of prematurity <34 weeks gestation or <2250 grams**(This is changing in some instances as insurance companies are refusing to pay for the low birth weight infants in the Intermediate Nurseries) Infection Narcotic withdrawal IV therapy for glucose management Perinatal challenges during birth (asphyxia, etc.) Monitoring (arrhythmias, etc.) Need for Admission into a Level III NICU Nursery Respiratory distress or respiratory failure Prematurity (<1250 grams or <30 weeks gestation Cardiac deficit Diaphragmatic hernia Hematologic issues (DIC, hemolytic disorders, etc) Neurologic deficits (seizure activity, depressed skull fracture, etc) Congenital anomalies requiring supportive or diagnostic care Abdominal wall defects (i.e. gastroschisis, omphalocele) Neurologic defects (i.e. hydrocephalous, myelomeningocele) Post operative monitoring WHEN SHOULD YOU START DISCHARGE PLANNING??? Discharge planning should start the day of delivery. Waiting until the day of discharge is too late!!! Remember to plan ahead! Keep families informed. Educate them as you help them to prepare for their transition home. Using a team approach is the best way to plan. Parents Physicians Nurses Patient Care Coordinator Lactation Respiratory Therapy Speech-Language Physical/Occupational Therapy Nutrition Pharmacists Parents Most important members of the discharge team, they are the one’s that are taking the infant home Must learn to care for the infant Must be prepared with the necessary items at home to care for the infant Must be versed on special needs that the infant may have Physicians and Nurses Provide the level of care that the infant needs Observe the infant’s and parents status day to day. Interact with the family unit daily Bring in other team members as needed and have periodic meetings as necessary throughout the stay, keeping the family informed as the infant makes progress, with the ultimate goal being discharge. Patient Care Coordination checks on many things… Limited financial resources/no insurance Documented substance abuse during pregnancy/positive drug screen Documented signs/symptoms of abuse/neglect/domestic violence Terminal stages of illness New diagnosis of Cancer History of postpartum depression No prenatal care/limited prenatal care Adoption/surrogate birth Teen pregnancy HIV/AIDS Patient unable to care for self or infant Extended length of stays for either vaginal or cesarean births If the infant requires home nursing or home care equipment, be sure to keep in close contact with your facility’s discharge planner or case manager. It may take several days to weeks for approval and arrangement of home care and equipment. Lactation Preterm baby Infants with a dysfunctional suck Multiple gestation Baby in NICU or Intermediate Nursery H/O breast reduction/augmentation Flat or inverted nipples Baby weight loss greater than 10% Patient’s request Lactation will see all families, including bottle feeding infants to help with feeding difficulties Respiratory Therapy Collaborate with the physician and the nursing staff to treat infants with any breathing problems Participate with the group as the infant and the family is prepared for discharge Speech and Language Therapy Baby with poor coordination with feeds (i.e. suck, swallow, breath and initiation) Baby with any oral motor abnormality Baby greater than 34 weeks with feeding problems Physical/Occupational Therapy Baby with hypersensitivity and/or compromised neurological status Baby with poor tone or abnormal resistance to movement and greater than 34 weeks Pharmacists Reviewing discharge medications Helping secure special medications for the preterm infant being discharged home Discharge Packet, Information and Teaching Newborn metabolic screening* Hearing screening* Eye exams* Hepatitis B vaccine* Car seat test* Synagis* Safety* Feeding and elimination* Baby care* Red Flags* Discharge Packet, Information and Teaching Home phototherapy CPR instruction Lactation instruction and support Discharge summary Babies Can’t Wait or other developmental assistance programs Home health arrangements if necessary (O2, feeding, equipment, apnea monitor, phototherapy, etc.) Follow-up with Pediatrician, and Specialist visits as needed. Georgia Newborn Screening Program Effective January 1, 2007 The Georgia Newborn Screening Panel has expanded its screening tool from 13-29 tests. There will be a $40.00 fee for specimens. Georgia Newborn Screening website for updates: http://health.state.ga.us/programs/nsmscd/ Georgia Department of Human Resources, Division of Public Health, Newborn Screening Program http://health.state.ga.us/programs/nsmscd/ Why do we do Newborn Screening? Newborn screening can identify potentially fatal diseases or ones that may cause extensive brain damage within the first few days of life. All are treatable with diet and/or medications and it is important to get treatment early. It is a test required by Georgia Law. Newborn Screening as of January 1, 2007 Phenylketonuria Congenital Hypothyroidism Maple Syrup Urine Disease Galactocemia Tyrosinemia Homocustinuria Congenital Adrenal Hypoplasia Biotinidase Deficiency Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD) Sickle Cell Anemia (3 types) Isovaleric acidemia Glutaric acidemia type I 3OH-3-CH3 glutaric aciduria Multiple carboxylase deficiency Methylmalonic acidemias (2 types) 3 Methylcrotonyl-CoA carboxylase deficiency (3MCC) Propionic acidemia Beta- ketothiolase deficiency Very long-chain acyl-CoA dehyrogenase deficiency (VLCAD) Long-chain L-3-OH acyl CoA dehydrogenase deficiency (LCHAD) Trifunctional protein deficiency Carnitine uptake defect Citrulinemia Argininosuccinic acidemia Cystic fibrosis Newborn Hearing Screening Can be done within a few hours after birth (results can be affected by debris and fluid in the ear canals) Allows for early treatment if hearing loss is found Early treatment can improve the baby’s language and brain development May be delayed if currently on or recently on antibiotic therapy Hearing screening and follow-up are tracked by the State just like the Metabolic Screening Infant Eye Exams Eye exams when applicable: Infant birth weight less than 1300 grams (gestational age < 30 weeks) Perform initial eye exam at 4-6 weeks of age Continue Q1-2 week follow-up until satisfactory development Infant birth weight less than 1800 grams (gestational age <36 weeks) and received Supplemental Oxygen Perform initial eye exam at 5-7 weeks of age Continue Q1-2 week follow-up until satisfactory development Infants with prolonged Supplemental Oxygen exposure see above guidelines Hepatitis B Vaccine All infants should get their first Hepatitis B vaccine prior to discharge from the hospital and should complete the series by 6-18 months of age. Immunizations American Academy of Pediatrics 2008 Guidelines. Infant Car Seat Safety 98 % of infants under the age of 1 year are restrained when riding in vehicles 80% of child restraint devices are used incorrectly Motor vehicle accidents remain the leading cause of death in children under 4 years of age Infants should be in rear facing car seats that are secured in the back seat until 1 year of age AND 20 pounds 3-M’s of Infant Car Seat Safety Measurement Mounting Mobility Definition of Sudden Infant Death Syndrome (SIDS) The sudden and unexpected death of an apparently healthy infant usually under one year of age which remains unexplained after a: --complete medical history --death scene investigation --postmortem examination SIDS is a diagnosis of Exclusion What We Know The cause(s) of SIDS remains unknown SIDS cannot be predicted or prevented No one is to blame for a SIDS death o Not parents o Not caregivers o Not emergency personnel or other health care providers What Happens Baby is usually healthy or may have had sniffles or a cold Baby is put down for a nap or night Found dead minutes to hours later No sign of struggle or distress SIDS can happen in any family Facts about SIDS The leading cause of death in infants between one month and one year of age in the U.S. Happens in about one of every 1000 live births Happens most often between two and four months of age Happens most often in the winter Incidences of SIDS doubles in the African American population and triples in the Native American population SIDS is NOT Caused By: Suffocation Vomiting or choking Child abuse Disease or illness Immunizations Maternal Risk Factors Young--- less than 19 years of age Tobacco use doubles the risk of SIDS Substance use is associated with increased risk Limited or late prenatal care Short intervals between pregnancies Infant Risk Factors for SIDS Male gender Infant age Low birth-weight Multiple births Premature birth Babies can die of SIDS without having risk factors! Multifactorial SIDS Theory Infant’s Physiologic Responses SIDS Development Environment Infant’s Physiologic Responses Oxygen reduced, carbon dioxide increased Arousal response deficit Subtle brainstem dysfunction Slow development Development—Age Vulnerability 2-4 months-------75% 4-6 months-------15% Respiratory system is unstable in all infants May take less of an environmental stress to trigger SIDS at this age Environmental Factors Sleep positions Smoking Bedding Swaddling Season Minor Respiratory Symptoms Drug use Poverty Limited prenatal care Ten Ways to Reduce the Risk of SIDS Always place a baby on his or her BACK TO SLEEP even for naps. Never allow smoking around a baby. Place a baby on a firm, flat surface to sleep. Remove all soft things such as loose bedding, pillows, and stuffed toys from the sleep area. Never place a baby on a sofa, waterbed, soft chair, pillow or bean bag. Take special precautions when a baby is in bed with you. (Infant should sleep alone, no co-bedding) Make sure a baby doesn’t get too hot. Keep baby’s face and head uncovered during sleep. Share this information with everyone who cares for the baby Consider using a pacifier at nap and bedtime once breastfeeding has been well established. Smoking Respiratory infections are frequent infants who are exposed to smoke from cigarettes. Smoking is one factor associated with Sudden Infant Death Syndrome Parents who smoke should be encouraged to quit, otherwise to smoke only outside the home as smoke is absorbed by the infant even when the smoking occurs in another room in the house. Advise the parents not to smoke in the car or closed spaces around the infant. Synagis Synagis is given to the infant to protect them from RSV. Respiratory syncytial virus (RSV) is the most common cause of bronchiolitis and pneumonia among infants and children under 1 year of age. During their first RSV infection, between 25% and 40% of infants and young children have signs or symptoms of bronchiolitis or pnuemonia. The majority of children hospitalized for RSV infection are under 6 months of age. Indications: Siblings school age or in day care, smokers in the home, congenital heart disease, or less than 35 weeks. **Synagis is not a vaccine or an immunization. Baby Care Discuss circumcision with the OB or Pediatrician. Do not clean the umbilical stump with alcohol or soap and water. Fold the diaper down below the umbilical stump to allow for drying. It is not necessary for daily baths. The infant should not be submerged in a bath tub until the umbilical stump and/or the circumcision is completely healed. Be sure to wash hands before and after diaper changes. Check and change diapers prior to and after feedings. Feeding and Elimination 6-8 wet diapers per day 1-3 stools per day (more if breast feeding) Wash your hands before and after each feeding Discuss with your Pediatrician or Lactation Consultant regarding a breast feeding plan DO NOT BOTTLE PROP Do not microwave breast milk or formula Do not give infant water Do not dilute ready to feed formula, and always prepare the concentrated formula, and powdered formula according to directions Do not give infant honey or sugar RED FLAGS- When to Call or See the Pediatrician Labored or difficulty with breathing Bleeding from orifices Changes in skin color (yellowing of skin or bluish/gray tinge Excessive vomiting Refusal to feed several times in a row Excessive lethargy or weakness Signs of pain (excessive crying or screaming) Fever greater than or equal to 100.4 degrees Irritated eyes with drainage Safety Protect infant from infection by limiting exposure to crowds, sick individuals, or toddlers for the first month. Dress the infant appropriately for the temperature, do not overdress. Avoid direct sun exposure (>15 minutes). Stress the importance of car seat restraint. Reinforce that seats must be used properly. Encourage parents to examine toys and small objects for loose parts that could obstruct airways as well as rattles that contain small objects that could choke the baby if the rattle breaks. Safety If pacifier is needed, encourage a one-piece pacifier that cannot come apart and cause choking Never tape or tie the pacifier to the infant Advise parents to remove items from a baby’s reach that can be harmful and put all medication/toxic substances out of reach of children Check the crib to be sure that the slats are no greater than 23/8 inches apart The mattress should be firm, pillows, bumper pads, wedgies, and stuffed animals should not be used in the crib Adjust the hot water supply to the faucets to the lowest tolerable setting (approximately 120 degrees) Time for the Baby Bird to fly Any Questions??? Time to Hit the Road