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GRAMPIAN NHS BOARD THE AIDS (CONTROL) ACT 1987 REPORT 2001/2002 DR HELEN HOWIE Consultant in Public Health Medicine Grampian NHS Board Acknowledgements Aberdeenshire Council Mrs A Davidson, Senior Planning Officer (Community Care) Social Work Department Aberdeen City Council Mr Ray Inkster, Principal Planning and Development Officer, Social Work Blood Transfusion Service Dr Henry Hambley, Clinical Director Drugs Action, Aberdeen Ms Luan Bruce Deputy Manager Grampian Buddy Group Grampian NHS Board Ms Fiona Aitken, Bloodborne Virus Training Co-ordinator Mr Grahame Cronkshaw, Drug Misuse Policy Manager Mr Alan Leitch, Financial Accountant Ms Gillian Anderson, Health Promotions, Programme Manager Priority Topics Grampian University Hospitals Trust Mr I Bovaird, Community Dental Service Ms Susan Davidson, Clinical Pharmacist Dr R Laing, Consultant Physician, The Infection Unit Dr D J Lloyd, Consultant in Perinatal Medicine Dr Pamela Molyneaux, Consultant Virologist Dr Gordon McKenna, Consultant Physician, Genito-urinary medicine Grampian Primary Care Trust Mrs Eileen McKenzie, HIV Specialist Nursing Service, Genito-Urinary Medicine Mr John Cosgrove, Nurse Specialist, Moray Drugs and Alcohol Team Dr G Flett, Consultant, Family Planning and Reproductive Health Medicine, Square 13 Ms Sue Gordon, Specialist Nurse Substance Misuse Service Phace Scotland Grampian Gay Men’s Health Project Mr Mark Thomson – Project Manager Lesbian, Gay and Bisexual Switchboard Moray Council Ms Jean Sinclair, Senior Social Work Practitioner Moray Drug & Alcohol Services Scottish Prison Service Ian Smillie, HMP Craiginches 2 Table of Contents Page 2 Acknowledgements Introduction 4 Epidemiology 4 Part 1 – Return for Treatment and Care 1.1 Finance 1.1.1 Hospitals 1.1.2 Voluntary and non-statutory 1.2 Accessibility 1.2.1 Open Access Services provided 1.2.2 Hospital episodes for patients with HIV infection 1.3 Drug Therapy 1.4 Primary Care Involvement 1.5 Co-ordination 1.6 Consumer Involvement 1.7 Training 1.8 Community Care 10 10 11 11 12 13 Part 11 – Prevention and Non-Treatment Returns 2.1 Budget Monitoring 2.2 Agency Monitoring 2.3 Effectiveness Monitoring 14 15 16 Appendix 1 – Statistical returns: Statistics on newly reported HIV infected persons 1 April 1999-March 2002 Statistics on newly reported HIV infected persons cumulative to March 2002 Statistics on number of HIV cases not known to be dead cumulative to March 2002 Statistics on AIDS cases and deaths March 2002 Appendix 2 – Agency Reports Health Promotions HIV Prevention 2001/2002 Report HIV/Sexual Health Specialists Nurses Grampian Buddy Group Grampian Body Positive Aberdeen and North East Blood Transfusion Service Grampian Needle Exchange Service HIV/AIDS 2001/2002 Budget 7 7 7 8 9 18 19 20 21 22 22 23 23 24 25 26 Copies of this report can also be found on the Grampian NHS Board website on www.show.scot.nhs.uk/ghb 3 Introduction This year’s AIDS Control Act Report covers the period April 2001 to 30 March 2002 and follows the format introduced by the Scottish Executive. I am very grateful to the individuals and the services listed in the acknowledgements for their contributions to this report. I would like to record my thanks to Fiona Aitken who compiled this report and to Diane McGregor for her administrative support. I would like to thank Dr Aileen Downie, Consultant Physician at GUM, for her contribution to the management of people with HIV. She retired in mid 2002 and I welcome her successor Dr Gordon McKenna who brings with him a wealth of experience in the field of HIV. Dr McKenna will be developing the services for HIV positive people by providing an additional treatment service. Epidemiology World-wide there are an estimated 40 million people living with HIV. HIV/AIDS is the leading cause of death in sub-Saharan Africa and the fourth biggest killer world-wide. An estimated 60% of people with HIV live in Commonwealth countries, especially in Africa and India, and as a result the UK may see more imported cases than other European counties. At June 2002 3458 people had been diagnosed with HIV in Scotland. Of these 1,303 were known to have died and 1,132 have been registered with AIDS. There was a slight increase in number of new cases diagnosed in first six months of 2002 in comparison to earlier years. Over the last couple of years Grampian has seen an increase in the incidence of HIV. Heterosexual transmission is now the most common risk factor, with an increase in the number of women becoming infected compared to previous years. During the period of April 2001 to March 2002 there have been 19 new cases diagnosed and this is an increase from 16 in the previous year, (see Figure 1). Figure 1 New HIV Infections in Grampian 1993 - 2002 30 Nos of new cases 25 20 15 10 5 0 1993 - 94 1994 - 95 1995 - 96 1996 - 97 1997 - 98 Year Apr - Mar 4 1998 - 99 1999 - 00 2000 - 01 2001 - 02 Fourteen of these cases were attributed to heterosexual transmission, only two to sexual intercourse between men, none to injecting drug use, one to blood transfusion abroad, one mother to child and one was unknown (Appendix 1). Most of the cases attributed to heterosexual transmission are thought to have acquired their infection abroad. Figure 2 shows the changing distribution of routes of acquisition. Figure 2. Newly Reported HIV infected persons by risk factor (cumulative to March 2002) 250 Others 200 IDU Nos of cases Heterosexual MSM 150 100 50 0 92/93 93/94 94/95 95/96 96/97 97/98 98/99 99/2000 2000/01 2001/02 Year At March 2002 the cumulative total of reported HIV cases in Grampian was 199, of whom 137 were still alive. One new AIDS case was diagnosed and one person has died from AIDS during the reporting period and there are seven people living with AIDS in Grampian. Improvements in anti-retroviral treatments have delayed progression from HIV infection to AIDS and whilst these changes are encouraging they also mean that more patients will require long term care in the future. Bloodborne viruses, namely HIV, hepatitis B and hepatitis C, are a local priority in Grampian because we have high rates of hepatitis B, hepatitis C and small but increasing numbers of people with HIV. The numbers of cases of hepatitis B and hepatitis A had not returned to normal levels following the recent outbreaks, which were primarily amongst injecting drug users, in Aberdeen City. At December 2001 1600 cases of hepatitis C had been identified in Grampian and 72% were associated with a history of injecting drug use. This gives Grampian the second highest rate of people diagnosed as HCV antibody positive in Scotland, second only to Glasgow. Grampian has not only seen a general increase in the incidence of HIV and other bloodborne viruses but also drug use and sexually transmitted diseases resulting in increasing demands on service providers. The Bloodborne Pathogens Strategy Implementation Group continue to oversee ongoing work to raise awareness of bloodborne viruses, encourage timely diagnosis, reduce the spread of these infections and ensure effective 5 investigation and management of the patients affected. In the last year new developments to address these include: specialist bloodborne virus posts created in the Substance Misuse Service, Maternity Hospital and Drugs Action an increase in number of services providing needle exchange plans to develop the C Card condom distribution scheme a sexual health needs assessment is being undertaken to inform the development of a local strategy. a multidisciplinary working party is planning the implementation of HIV antenatal screening to commence 1st Nov 2002. 6 Part 1 1.1 Return for Treatment and Care FINANCE 1.1.1 Hospitals Funding for HIV/AIDS treatment and care is now included in the Grampian NHS Board’s general allocation. Funding is then allocated to GUHT to enable provision of HIV treatments, care and laboratory services. 1.1.2 Voluntary and non-statutory Various voluntary and non-statutory services are funded from the HIV prevention budget (see Prevention and Non-Treatment Returns) including: Body Positive, Buddy Group, Grampian & Moray Lesbian Gay and Bisexual Switchboard, Drugs Action, Grampian Gay Men’s Health Project. 1.2 ACCESSIBILITY Patients access all HIV related care and treatment at Aberdeen Royal Infirmary either on an inpatient or outpatient basis. Patients may have to travel significant distances to access services. Genito-Urinary Medicine (GUM) services are predominantly based within Aberdeen City. Although GUM rural counselling services are available in Fraserburgh, Peterhead, Turiff, Huntly and Banff, there are still many areas where people have to travel long distances to access the service. At present there are no services in Moray. In addition to outpatient facilities at GUM and the Infection Unit, specialist nursing staff from GUM review patients at home or by telephone. Specialist nurses also provide a testing service at the Family Planning Clinic. There is very good working relationship between Family Planning and GUM however this could be improved by greater integration of these services. For example women attending for termination may be in a higher risk group and the GUM health advisors are available to support patients attending for surgical terminations but a similar service is not available for those requesting medical termination. New services for adults and young drug users were developed in 2000-2001. Additionally two new needle exchange services provides a service in target areas. However there continues to be a need to further expand needle exchange services particularly in Aberdeenshire and some areas in Aberdeen City. In addition gaps have been identified in the provision of needle exchanges at weekends and evenings. Women involved in prostitution and men who have sex with men tend not to access mainstream/statutory services and therefore they benefit from services delivered where they work. Various outreach projects are provided by Drugs Action, Grampian Police and Phace Scotland to address these needs. 7 1.2.1 Open access services provided Service GUM HIV testing open access available Service Provider GUM Clinic, Aberdeen (GUHT/GPCT) GUM rural service (5 areas) Square 13 Centre for Reproductive Health (GPCT) by GUM GUM Clinic (in addition to routine testing accelerated testing is provided 2 days a week) GUM Rural Service GUM provide testing services in hospital/prison GUM provide testing in Turning Point and Substance Misuse – Community GPCT/GP services Substance Misuse in Pregnancy clinic - GUHT GUM Clinic GUM rural service Square 13 Centre for Reproductive Health Drugs Action / Drugs Action Outreach Substance Misuse Service Turning Point Substance Misuse – Community Drugs Workers Aberdeen Prison Grampian Lesbian, Gay and Bisexual Switchboard Drugs Action Drugs Action Aberdeen Outreach Services 11 Community Pharmacies GPCT Substance Misuse Service Moray & Fraserburgh Counselling Needle Exchange Although some of services above are available on a ‘walk-in’ basis the majority require appointments. ‘Open access’ does not imply 24-hour access and some services have endeavoured to alter opening times to accommodate service users but there continue to be gaps in the flexibility of times offered. HIV patients managed by the Infection Unit can self refer for assessment, treatment and management. Services such as substance misuse, dietetics, occupational therapy, HIV pharmacist and social work, all important in the care of people with HIV, are available on referral from General Practitioners, medical staff and some nursing staff at the Infection Unit or the GUM Clinic. Although patients’ dental care should be managed by their own dentists, if HIV associated conditions exist patients can be referred to the Community Special Needs Dental Service. The number of clients seeking HIV antibody test counselling sessions from GUM has increased by 155 this year resulting in 2,249 sessions taking place. During all pre and post test counselling sessions the health advisors take the opportunity to discuss safer sex, safer drug use, prevention of transmission of 8 HIV, hepatitis B and C and other relevant infections. Condoms and literature on health promotion are freely available to clients. HIV antibody tests are carried out in the Department of Medical Microbiology, Aberdeen Royal Infirmary. Repeat reactive samples are sent to the HIV Reference Laboratory, Gartnaval Hospital, Glasgow for confirmation. The total number of people tested for HIV antibody in Grampian during 2001-2002 has increased this year to 2,225 people tested. The following table shows the source of these tests. Source Number of people tested Primary Care GUM Clinic Hospitals Prisons Other Total 751 882 519 51 22 2,225 Other services which have the availability of open access A Grampian AIDS Line provides information and support to the public Drugs Action provides a telephone helpline, information and advice on drug related concerns Grampian Lesbian Gay and Bisexual Switchboard. This year has seen the closure of Moray Lesbian Gay and Bisexual Switchboard Phace Scotland – Grampian Gay Men’s Health Project Drugs Action and Grampian Police provide outreach work for sex industry workers. Hepatitis B and A immunisation provided by GP’s and GUM nurses based at Drugs Action. 1.2.2 Hospital episodes for patients with HIV infection Provider No of in-patient episodes 52 Infection Unit, GUHT No. of day-patient episodes Average (mean) length of in-patient stay for patients with HIV disease Provider GUHT Total Bed Days Total No of HIV/AIDS patients Average length Of stay 259 24 10.8 All in patient episodes are at the Infection Unit in GUHT. Due to advances in drug therapies the number of inpatient episodes for management of HIV infection has declined in the last few years. 9 1.3 DRUG THERAPY Until March 2002 all anti-retrovirals were prescribed by the Infection Unit, however this service is now also offered by GUM. Drugs Hospitals Ganciclovir (oral) Combination Therapies Dual Triple Quadruple Cost £6,432 £36,000 £326,280 £62,040 No. of patients 1 3 55 4 N.B. a new drug introduced this year Keltra has been counted as one single drug Percentage of patients in each of the listed disease stages receiving combination therapy Stage of Disease Number of patients Number Receiving Combination Therapy Percentage Receiving Combination Therapy E1 (Asymptomatic) 24 8 33% E2 (Symptomatic) 34 29 90% E3 (AIDS) 25 25 100% Although patients are offered treatment there are many different reasons why some patients may not have commenced combination therapy e.g. due to personal preference or side effects. Patients receiving viral load testing The cost of unfunded assays for HIV viral load testing to the Department of Medical Microbiology was £17,564 1.4 PRIMARY CARE INVOLVEMENT Proportion of HIV/AIDS patients in shared care with GPs In this context ‘shared care’ is defined as GPs awareness of patients’ diagnosis and involvement in discussion or treatment. There is probably little ‘shared care’ in the sense of the General Practitioner playing a role in the specialist management of HIV related disease and making decisions about therapy. All patients managed by the Infection Unit are known to their GP’s. GP’s have endeavoured to provide vital support for patients whilst maintaining anonymity and confidentiality which are of major concern for individuals living in rural communities. There has been some concern noted that some Dental Practitioners are not happy to see HIV patients and consequently inappropriately refer patients to Maxillofacial Surgery Department and/or community dental service. 10 1.5 CO-ORDINATION The Bloodborne Pathogens Strategy Implementation group was established in 2001 to implement the strategy and improve co-ordination and collaboration of agencies involved. This multi-agency group consists of representatives from health care, local authorities, voluntary agencies, prison, drugs services and sexual health services. In addition there are various subgroups, which feed into the main group these include: Needle Exchange, Joint Community Care Planning Group for people with HIV/AIDS, Bloodborne Virus Public Awareness and World AIDS Week Planning Group. Five Drugs Alcohol and HIV Forums operate within Grampian. All of these enable staff to share information, promote best practice and contribute to the development of services. Community Care Plans for the three local authorities have been produced which include HIV related issues. There is a wealth of multi-agency working initiatives ongoing in Grampian: Integrated Drug Services, are being further developed in line with the Scottish Executive Joint Future Programme Buddy Group and Body Positive benefit from the co-ordination and support provided by the nurses at GUM. Grampian Police, Drugs Action and Phace Scotland provide joint outreach work targeting sex industry workers and men who have sex with men. Midwifery staff, Social Work, Substance Misuse and Drugs Action provide specialist clinics for pregnant women with substance misuse problems. Various statutory and voluntary services are involved in the fourth stage of the Aberdeen/Gomel Teenage pregnancy Twinning Initiative where young mothers are visiting Aberdeen. 1.6 CONSUMER INVOLVEMENT Service users including people with HIV are actively encouraged to attend both Drug Alcohol and HIV Forums and Community Care Planning Group for People with HIV. However due to lack of membership, within the Body Positive group, they are unable to provide representation. Phace Scotland will be undertaking a needs assessment for HIV positive people in 2002-2003. Aberdeen City Drugs Alcohol Forum has appointed a member of staff to assess user views of current services. Interviews with service users are currently taking place. Drugs Action is continuously assessing their clients’ views and suggestions. A recent audit was conducted to assess the accessibility of needle exchange services. Results of the audit are currently been reviewed. Following consultation with relevant at risk groups and positive people a variety of campaign materials have been produced to increase awareness, promote prevention and provide information for those infected and affected by bloodborne viruses. As a result of an audit to GP surgery’s GUM rural 11 counselling service is endeavouring to increase awareness of the service by advertising. 1.7 TRAINING A recent audit was conducted to review training on bloodborne viruses throughout Grampian, including who provides training and groups requiring training to identify any gaps. It has been acknowledged by many sectors that the request for training is not as great as it should be, due to staff’s lack of awareness of the relevance of training. There continue to be many gaps in the provision of training in the voluntary and statutory sector and plans to address these are underway. During 2001-2002 there were a variety of training sessions covering various aspects of bloodborne viruses including HIV throughout Grampian. Many specialists in the field regularly carry out training e.g. nurses, doctors, health promotion specialists, Phace Scotland and drug workers. Training is aimed at a variety of different groups e.g. Local Authorities, health care staff, voluntary staff, prison staff, workplace staff. Some organisations provide awareness raising sessions on sexual health and drugs e.g. school, community groups, prison and voluntary organisations. Regular ongoing training provided: BBV Clinical Training Co-ordinator provides a series of training sessions throughout the year to relevant staff including health care workers, other voluntary and statutory sector staff. Health Promotions run multi-agency staff training on drugs and sexual health Health Promotions provide training for workplaces GUM specialist staff involved in regular HIV sexual health training Specialists provide training within the universities and colleges NHS Grampian Public Health Team provides infection control training Infection Control Nurses and Occupational Health staff frequently provide training to health care staff STRADA have commenced training in the North East on drugs alcohol and BBVs Amongst the difficulties is the availability of training for specialists working in the fields of bloodborne viruses, drugs and sexual health. There is a lack of funding available for attendance at training out-with Grampian and difficulties are experienced by both the statutory and voluntary sectors in the release of staff to attend training events. 12 1.8 COMMUNITY CARE Although both NHS Grampian and the social work department have a role in providing care, specific HIV 24-hour care in the community relies heavily on informal carers. A 24-hour home care service to support individuals in the community that includes those with HIV is available however is rarely requested for this client group. Communication between acute and community services is improving with the availability of HIV Specialist Nurses being available at the Infection Unit at particular times in the week allowing HIV positive individuals the opportunity to see their multidisciplinary team at one appointment. The Local Authorities have a Carers Strategy where carers are entitled to an assessment of their own needs. Aberdeenshire Council has a palliative care strategy developed in partnership with health care staff. There are no specific inpatient respite facilities available for individuals infected with HIV, thus patients are nursed in their terminal stages in the Infection Unit which is not felt to be appropriate. Individuals needs are assessed and prioritised on an individual basis. 13 Part 11 – PREVENTION AND NON-TREATMENT RETURNS 2.1 BUDGET MONITORING Year 2001/2002 2000/2001 1999/2000 1998/1999 Total prevention Allocation 772,476 520,476 385,751 271,000 Total Prevention Spend 612,476 * £520,476 £385,751 £271,000 Under-spend of £160,000 carried forward to 2002/2003 to fund predetermined commitments arising from local and national strategy. The AIDS Control Act Report 1997/1998 omitted spend of funds allocated to Substance Misuse BREAKDOWN OF TOTAL EXPENDITURE BY TARGET GROUP Target Population Gay & Bisexual men1 People with links to high prevalence countries (at present sub-Saharan Africa) 2 Women partners of men in the above groups People with AIDS and HIV3 Injecting Drug Users4 Other: Sex industry workers Young people sexual health needs assessment BBV prevention Public Awareness Campaign Health promotion activities including: health education, resources, training for professionals, condoms, direct services to young people in formal and informal education settings. Specialist posts in sexual health, drugs and bloodborne viruses TOTAL 1. 2. 3. 4. Total Expenditure £77,426 £22,000 As above £12,120 £251,873 £15,000 £22,000 £30,851 £181,206 612,476 Aberdeen & Moray Lesbian, Gay & Bisexual Switchboards, Grampian Gay Men’s Project Workplace education – Travel Health Buddy Group, Body Positive, HIV secondary prevention Needle exchange Services and Drugs Action 14 2.2 AGENCY MONITORING Amounts and percentages of expenditure from the ring-fenced prevention budget spent Sector Amount Percentage Statutory Health Total Health Promotion, family planning, sexual health, primary care, community care, education Substance misuse* GUM Other statutory health Voluntary/Non-statutory Local Authorities Prisons Other Total prevention spread *where paid from HIV prevention allocation 15 £256,057 42% £130,873 Nil Nil £225,546 Nil Nil 21% Nil Nil 37% Nil Nil £612,476 100% 2.3 EFFECTIVENESS MONITORING Steps taken to ensure that the commissioning of HIV prevention work is evidence-based in relation to risk groups targeted; effectiveness of interventions used and monitoring of work being undertaken Target Groups Evidence based commissioning Men who have sex with Men Sex Industry Workers Intravenous Drug Users (IDU) Grampian Gay Men’s Project continues to address the findings of the Sexual Health Needs Assessment undertaken in 2001 Services to sex industry workers are provided on an outreach basis providing access to needle exchange, condoms and information/advice. The findings of a needs assessment undertaken drives the development of this service. Following an audit to assess IDU’s knowledge, access to injecting equipment and perceived risk of sharing injecting equipment, a group has been established and is currently addressing services, injecting equipment availability and providing information to IDUs. NHS Grampian and SCIEH conducted a case control study to investigate the outbreak of hepatitis A in IDUs in Grampian. Hepatitis A immunisation and health promotion education continues following this. Drugs Action is currently involved in local and national research projects on IDU’s A&E have completed an audit including information on IDUs, and plan to review the provision of health promotion activities. General Public Young People The BBV public awareness campaign continuously evaluates information developed on prevention of BBV. Youth and adult lifestyle surveys are currently been conducted. A young people’s sexual health needs assessment was undertaken in 2001/2002 to identify physical and psychological barriers to accessing sexual health services. The findings have been used to inform the planning and delivery of sexual health and HIV prevention activities including policy development, training of professionals and increasing access to sexual health services and free condoms. In response to the high rate of teenage pregnancies in Moray a pilot project has been established in the Health Promotions, Health Information Centre. The service provides young people with information on lifestyle issues, including sexual health, provision of contraception, pregnancy testing and chlamydia testing. 16 Professionals with a health promotion remit The plan to increase BBV education to professionals is in progress following an audit of identifying need and evaluation of existing training. Effectiveness of interventions Regular and continuous evaluation is carried out Monitoring of work undertaken Regular auditing of activity reporting is standard across all funded groups including drug misuse services, needle exchange and health promotion Have there been any notable problems or successes in this area? Grampian Gay Men’s HIV Prevention Project, continues to develop. The appointment of voluntary workers has facilitated further work to the target group. The success of the ‘Get Rubbered’ postal condom distribution scheme has resulted in the continuation of this service. The HIV specialist nurses, Buddy Group, Body Positive and Health Promotions and other services all play a valuable role in providing a service for those infected, affected and at risk of HIV infection and a more detailed report is provided in Appendix 2. 17 APPENDIX 1 AIDS (CONTROL) ACT 1987: STATISTICS ON NEWLY REPORTED HIV INFECTED PERSONS Health Board: Grampian 1 April 2001 to 31 March 2002 (as at 31 March 2002) Signed Name: Tel No: How person probably acquired the virus Male Female Total Sexual intercourse between men 2 0 2 Sexual intercourse between men and women 8 6 14 Injecting drug use (IDU) 0 0 0 IDU and sexual intercourse between men 0 0 0 Blood factor (eg haemophiliac) 0 0 0 Blood/Tissue transfer (e.g. transfusion) 1 0 1 Mother to child infected 0 1 1 Other/undetermined 1 0 1 TOTAL 12 7 19 Notes: 1 2 Cases are allocated to a particular health board based on the patient’s Health Board of Residence. If this is not known, they are allocated based on Health Board of Specimen origin. This table, supplied by The Scottish Centre for Infection and Environmental Health (SCIEH) – Tel 0141 300 1100 – is for the 2000/2001 reports by Health Boards under the AIDS (Control) Act 1987. 18 AIDS (CONTROL) ACT 1987: STATISTICS ON NEWLY REPORTED HIV INFECTED PERSONS Health Board: Grampian Cumulative to 31 March 2002 Signed Name: Tel No: How person probably acquired the virus Male Female Total Sexual intercourse between men 70 0 70 Sexual intercourse between men and women 43 34 77 Injecting drug use (IDU) 22 6 28 IDU and sexual intercourse between men 2 0 2 Blood factor (e.g. haemophiliac) 6 0 6 Blood/Tissue transfer (e.g. transfusion) 2 3 5 Mother to child infected 2 1 3 Other/undetermined 6 2 8 153 46 199 TOTAL Notes: 3 4 Cases are allocated to a particular health board based on the patient’s Health Board of Residence. If this is not known, they are allocated based on Health Board of Specimen origin. This table, supplied by The Scottish Centre for Infection and Environmental Health (SCIEH) – Tel 0141 300 1100 – is for the 2000/2001 reports by Health Boards under the AIDS (Control) Act 1987. 19 AIDS (CONTROL) ACT 1987: STATISTICS ON NEWLY REPORTED HIV INFECTED PERSONS Health Board: Grampian Number of cases NOT KNOWN TO BE DEAD; Cumulative to 31 March 2002 Signed Name: Tel No: How person probably acquired the virus Male Female Total Sexual intercourse between men 41 0 41 Sexual intercourse between men and women 37 28 65 Injecting drug use (IDU) 13 4 17 IDU and sexual intercourse between men 1 0 1 Blood factor (eg haemophiliac) 2 0 2 Blood/Tissue transfer (eg transfusion) 2 2 4 Mother to child infected 0 1 1 Other/undetermined 5 1 6 101 26 137 TOTAL Notes: 5 6 Cases are allocated to a particular health board based on the patient’s Health Board of Residence. If this is not known, they are allocated based on Health Board of Specimen origin. This table, supplied by The Scottish Centre for Infection and Environmental Health (SCIEH) – Tel 0141 300 1100 – is for the 2000/2001 reports by Health Boards under the AIDS (Control) Act 1987. 20 AIDS (CONTROL) ACT 1987: STATISTICS ON REPORTED AIDS CASES AND DEATHS Health Board: Grampian Year ending 31 March 2001 Signed Name Tel No Period 1 April 2001 to 31 March 2002 Cumulative to 31 March 2002 People with AIDS – First reported from this Health Board - reported to, and accepted by SCIEH in period Numbers of above known to have died in period - cumulative number reported to, and accepted by SCIEH in period Numbers of above known by 31 March 2002 to have died Known to be resident of this Health Board 1 1 0 0 39 39 31 33 Notes: 1. 2. This form should be completed as part of the reports made by Health Boards under the AIDS (Control) Act 1987 The form should be completed from information provided by SCIEH 21 Appendix 2 Health Promotions HIV prevention 2001/2002 Health Promotions continues to be the leading source of health information in Grampian. During 2001/2002 a total of 187,207 drug and sexual health leaflets were distributed to professionals via the resource scheme. Health Promotions operates a condom distribution scheme which can be accessed by professionals working within the community, in 2001/02 87,000 condoms were distributed. Health Promotions continues to run the Safer Sex Website www.safersex.org.uk. The provision of training to professionals continues to be a priority, with 288 professionals attending drug and sexual health training during 2001/2002. The following courses were offered: Drugs Education and Awareness (course accredited by Robert Gordon University) HIV Prevention/Sexual Health Awareness Personal relationships and sexuality foundation course for staff working with people with learning disabilities. Sexuality, youth and community work. Health Promotions provides interactive workshops in relation to drugs and sexual health to secondary school children across Grampian. Demand for direct input to schools and community settings increased steadily during 2001/2, resulting in the provision of 211 sessions to young people in a range of formal and informal educational settings. Health Promotions is the managing organisation for Scotland’s Health at Work Award Scheme (SHAW). With the aim of increasing the number of Scottish workplaces with a drug policy a partnership was established with Scotland Against Drugs (SAD) in 1998 and this partnership continues successfully. In order to establish the success of the activities carried out through the SAD/SHAW partnership, retrospective evaluation is currently being undertaken. During 2001/2002 Grampian based companies have received assistance in developing workplace drug policies. In many cases this has been supported through the provision of training sessions for managers and awareness raising sessions for employees. Report from the HIV/ Sexual Health Specialist nurses The work of the HIV/Sexual Health specialist nurses encompasses work within the GUM Clinic and specialist counselling and liaison work within the community. The current staffing is one full time specialist nurse (team leader), two full time and one part time specialist nurses. There are also four community nurses who are specially trained and supported by the specialist nurses who offer an HIV/sexual health service in Turriff, Banff, Fraserburgh, Peterhead and Huntly areas. Throughout the year the team of specialist nurses has continued to provide a flexible counselling, nursing and advisory service. This includes pre and post test HIV counselling; support and nursing care to HIV positive people and their carers; liaison between primary and secondary care; co-ordination and supervision of Body Positive and Grampian Buddy Group; training and updating health care staff, community groups, prisons and students. Other areas of work includes co-ordination of the HIV rural 22 counselling service, pre and post test counselling for hepatitis B and C. Contact tracing for patients diagnosed with sexually transmitted infections is a major part of the work undertaken. In addition the nurses attend various groups and committees to address BBV and sexual health issues across Grampian. The team is experiencing an increasing demand for their services. During 2001-2002 the number of patients seen has increased by 1,258 from the previous year with a total of 3,940 patients seen, in addition 2,495 telephone contacts were made. A major contributory factor to the increase in demand is counselling, health education and contact tracing for sexual transmitted infections. Patients referred to health advisors for contact tracing this year is: Number of contacts sought by the health advisors Number of contacts found by the health advisors 741 956 565 In addition there has been an increase in demand for HCV testing and between January 2001 and December 2001 225 patients were tested. Grampian Buddy Group Grampian Buddy Group are trained volunteers who befriend and support people who are living with HIV/AIDS. They are seen as an additional support service and not put in place instead of a professional health service worker. Individuals who are in a Buddying relationship meet as required by the service user and the Buddy group meets monthly. Volunteers who are not in a Buddying relationship have a vital role in supporting those who are. Presently 6 people are in a buddying relationship. This year nine volunteers have been recruited, giving a total of twenty buddies. There have been training weekends held over the last year with a residential training weekend planned for later in the year. New Volunteer guidelines have been distributed to every member, together with Code of Practice booklets. Two members of the group attended the Mastery weekend, which was held at Body Positive in Glasgow. The Buddy Group launched its own web site in time for World AIDS day which has attracted a lot of interest world-wide. Grampian Body Positive Grampian Body Positive is a self-help group open to anyone in Grampian infected with HIV. Its aim is to provide a safe environment for people to share experiences, combat isolation and stigma. Individuals infected with HIV remain reluctant to attend meetings, although they still make use of the organisation’s resource material related to HIV. A few people living with HIV have used some of the resources to visit and liaise with other HIV organisations in the UK. The HIV/Sexual health specialist nurses provide support for Grampian Body Positive but they feel that this role has developed inappropriately causing conflict in their roles. The Aberdeen and North LHCC HIV/Sexual health group is currently addressing this matter. 23 Aberdeen and North East Blood Transfusion Service Grampian HIV Positive patient CD4 count information 2001-002 Number of CD4 counts performed on HIV positive patients: - 279 Number of HIV positive patients ‘active’ at 31st March 2002: – 83 Grampian HIV positive patients CD4 counts at 31st March 2002 CD4 count Number Risk Group >500 25 6 IVDU, 6HX, 10HET, 1AFR, 2U/K 400 – 500 9 1 IVDU 3HX, 3 HET, 1 U/K 300 – 400 20 2 IVDU, 7HX, 8 HET, 3 U/K 200 – 300 12 1 IVDU, 7HX, 6 HET, 2 U/K 100 – 200 7 1 IVDU, 6HET, 3HX, 2 U/K <100 5 1 HET 3HX 1U/K IVDU=intravenous drug user HX=homosexual, HET=heterosexual, AFR=African, U/K =Unknown 24 Needle Exchange Services in Grampian 2001/2002 1999/2000 2000/2001 2001/2002 6 9 2 7 9 2 7 9 2 120,000 150,000 20,000 75% 150,000 150,000 25,0000 75% 212,500 160,000 25,000 75% 65,000 GHB 20,000 ACC* 85,000 105,000 28,000 Community Pharmacists Grampian 65,000 GHB 52,000 Primary Care Trust - 45,000 GPCT Number of Needle exchange sites in Grampian - Drugs Action - Community Pharmacists - Grampian Primary Care Trust Number of needles supplied - Drugs Action Community Pharmacists Grampian Primary Care Trust Fraserburgh/Elgin Exchange Rate Costs Drugs Action *ACC 52,000 45,000 45,000 -Aberdeen City Council 25 HIV/AIDS 2001/02 Budget Expenditure 2001/02 £ 1 HIV/AIDS Health Promotion & Prevention Health Promotion - General/Training & Condoms HIV/AIDS Clinical Training Co-ordinator Aberdeen Gay Switchboard Body Positive Buddy Group 116,897 32,921 9,426 2,020 10,100 1999/2000 Developments HIV Clinical Training (HQ) Moray Gay Lesbian Switchboard HIV Secondary Prevention Needle Exchange - Aberdeenshire 10,760 3,000 0 20,500 2000/01 Developments Needle Exchange - Aberdeen Sex Industry Workers Public Awareness Gay Men's Project Condoms Young People 45,000 15,000 30,851 65,000 6,000 22,000 389,475 11 HIV/Drugs Related Training - Health Promotion Drugs Action - Needle Exchange Service Needle and Syringe Exchange Services in A'shire Injecting Equipment - Reported to GHB Health Promotions Adviser 10,621 40,000 25,000 33,529 22,007 131,157 Non Recurring 2000/01 Carry Forward - Confirmed (Non Recurring) Kemnay Needle Exchange 2001/02 New Monies Hepatitis B Immunisation Needle Exchange - Staffing Maternity Services BBP post Specialist Blood Borne Pathogen Post (DA) 1,628 25,000 20,000 10,000 Contribution to GPS budget - Methadone shortfall 91,844 TOTAL BUDGET 612,476 Funding Carried Forward to 2002/03 160,000* 772,476 * This was carried forward to meet the following agreed commitments: Antenatal HIV Screening, Specialist BBV posts, C Card scheme, Needs Assessment for Vulnerable Young People and HIV positive people, pilot of a rural needle exchange and condoms. 26