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MCR MINI-UPDATE APRIL 2017 Fellow Registrars, This year’s NCRW slogan “Putting the Pieces Together” is certainly apt as you try to pull pieces of information from various parts of the patient record into a cohesive and comprehensive abstract using coding rules from multiple manuals. We thank each of you for the considerable effort that you put into this work each day. Your conscientious work helps to assure that researchers and clinicians have a more complete “puzzle” image of trends in cancer incidence and outcomes of cancer care. I hope that you have some celebration or awareness activities planned that week. If you can make it to Columbia, please join us for lunch at 11:30 on Tuesday April 11 at Golden Corral in Columbia. Meanwhile, if you have 2 minutes to indulge in play, you can try your hand at putting together the 24 pieces of this virtual jigsaw puzzle: http://www.jigsawplanet.com/?rc=play&pid=177151082545&pieces=24 (If it shows as completed, click restart in the settings icon at lower left. You can also increase the number of pieces using the upper right “Play As” list) Have fun! DUE DATES Large hospitals (>500 cases/yr.) are to report Sept 2016 cases by April 15 and smaller facilities (<300 cases /yr.) report the 3nd Quarter of 2016 by April 15. EDUCATION NAACCR Webinars Attention: This month the live NAACCR Webinar is on the second Thursday instead of the first Thursday of the month. Live: April 13, 2017, 8-11 a.m., Collecting Cancer Data: Lip and Oral Cavity. To attend the live broadcast in Columbia, sign up here. http://www.signupgenius.com/go/30e0e49a4a82caafa7-naaccr15 NAACCR Recordings: Earn 3 CEs by viewing recorded webinars. Check out our Education and Training page to find out how you can receive access to the recorded NAACCR Webinars. http://mcr.umh.edu/mcr-education.php GoToMeeting Upcoming: May 10, 2017, 10-11 a.m., Breast Surgery Codes & MPH Rules. Sign up here: http://www.signupgenius.com/go/30e0e49a4a82caafa7-gotomeeting0510 GoToMeeting Recordings: Previous GoToMeeting presentations are posted to the MCR website as recordings. http://mcr.umh.edu/mcr-education.php MCR Help-Line Reach us at 1-800-392-2829 during regular office hours, or leave a message; a member of our QA team will return your call within one business day. Massachusetts Free Educational Webcast Save the Date Tuesday May 16, 2017 8 a.m. – 4 p.m. Once again the Massachusetts Cancer Registry and Dana-Farber institute will sponsor a free all-day webcast. The agenda has been posted and is attached to this email. You can listen to any or all of the presentations from your computer or device. No registration needed to listen via the web. URL for log- 1 MCR MINI-UPDATE APRIL 2017 in to the webcast will be emailed to all on this distribution list a few days prior to the workshop. NCRA CEUs will be available. Florida Cancer Data System (FCDS) FCDS Educational Webcast Series recorded from 2/16/2017 presentation: Female GYN Sites: Ovary, Adnexa & Peritoneum, Uterus, Cervix, Vagina, and Vulva. Access recording at: https://fcds.med.miami.edu/inc/educationtraining.shtml (FCDS Webcasts Tab) MCR NEWS Edits v16D and 2017 reporting As outlined in detail within my special blast email to this group on March 13, the MO v16D edit metafile is available to your vendors and on our website. We plan to install the new edit metafile on Web Plus later today (April 3), expecting that all facilities should have it installed and/or have addressed the issues cited in my email during their recent abstracting. If you have specific cases you had been holding because of faulty v16C edits, you will finally be able to upload them to Web Plus. You may continue to upload cases even if you are not yet in v16D, but you may find a few cases with errors flagged by the new edits. If the file is rejected, simply resolve those errors and re-submit the whole file. Mid-year Timeliness/Completeness Assessment Because Web Plus was not able to accept v16 cases until five months later than usual, and because some facilities are waiting on installation of edits v16D to validate held cases that had previously faulty edits applied, MCR will not issue mid-year letters assessing timeliness and completeness of 2016 case reporting. You are encouraged to assess your own progress and to work with administrators to provide you the resources to complete 2016 case abstracting for submission by July 15, 2017. At this point in the year (end of March) you should have cases through Sept. 2016 abstracted (75% of your expected caseload for the year). ABSTRACTING TIPS Diagnostic Confirmation Before assigning diagnostic confirmation code 7 based on imaging results, be sure the radiography report contains reportable terminology listed on page 3 of FORDS. If no reportable terminology is used in the imaging report but there is physician documentation that the results represent malignancy, assign diagnostic code 8 – Clinical diagnosis only (other than 5, 6 or 7). Reportability is based on the physician’s clinical judgement that the findings represent malignancy. STANDARD SETTTER/NATIONAL NEWS NAACCR: What You Need to Know for 2017 – Important Revisions! This document has been revised. Please see Appendix C Revision Control for a table of the changes. https://www.naaccr.org/implementation-guidelines/ NAACCR: Annual Report to the Nation, 1975-2014, Featuring Survival “The American Cancer Society (ACS), the Centers for Disease Control and Prevention (CDC), the National Cancer Institute (NCI), and the North American Association of Central Cancer Registries (NAACCR) collaborate to provide annual updates on cancer occurrence and trends in the United States. This Annual Report highlights survival rates. Cancer death rates continue to decrease in the United States. 2 MCR MINI-UPDATE APRIL 2017 However, progress in reducing death rates and improving survival is limited for several cancer types, underscoring the need for intensified efforts to discover new strategies for prevention, early detection, and treatment and to apply proven preventive measures broadly and equitably.” This work would not be possible without contributions by the entire cancer surveillance community. Thank you! Report: https://academic.oup.com/jnci/article-lookup/doi/10.1093/jnci/djx030 Infographics: https://academic.oup.com/jnci/article-lookup/doi/10.1093/jnci/djx030 NCRA: Policy Statement on Monitoring Changes in Cancer Registry Operations NCRA has issued a policy statement on Monitoring Changes in Cancer Registry Operations to express the vital role of the CTR in the abstraction process, and the value they add to the data collection process. 3 MCR MINI-UPDATE APRIL 2017 The Informatics Committee took the lead in drafting the policy statement and corresponding white paper. Their work is in response to the changing relationship between the cancer registry profession and technology. Read the policy statement and the white paper. NCRA: Two New Staging Short videos at http://www.cancerregistryeducation.org/best-practices Using the Manuals: Breast (16 min.) Using the Manuals: Lung (21 min.) National Quality Measures Clearing House This is not required by MCR, but many cancer programs want to institute quality measures; some measures can be assessed using your registry data. You can set up a free account to get emails about quality measure ideas at: https://qualitymeasures.ahrq.gov/accounts/signinlanding For example, I saw two measures this month that you might volunteer to track for your facility from registry data: Lung cancer: percentage of patients with clinical stage IB or higher, but no evidence of metastatic disease, who have had a mediastinal lymph node sampling procedure performed prior to the initiation of curative intent therapy. 2016 Dec. NQMC:010991 American College of Chest Physicians - Medical Specialty Society. Lung cancer: percentage of patients with lung cancer who have an American Joint Committee on Cancer (AJCC) current edition clinical lung cancer stage documented prior to curative intent therapy. 2016 Dec. NQMC:010992 American College of Chest Physicians - Medical Specialty Society. American Cancer Society Publications Colorectal Cancer Facts & Figures 2017-2019 https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/colorectalcancer-facts-and-figures/colorectal-cancer-facts-and-figures-2017-2019.pdf Colorectal cancer statistics, 2017 http://onlinelibrary.wiley.com/doi/10.3322/caac.21395/full REGISTRY TO RESEARCH Future of Testicular Germ Cell Tumor Incidence in the United States: Forecast Through 2026 (CINA data) https://www.naaccr.org/future-testicular-germ-cell-tumor-incidence-united-states-forecast-2026/ Over the Past 20 Years, 5-Year Mortality in Men with Advanced Prostate Cancer Has Dropped Significantly (Danish Registry) http://www.practiceupdate.com/c/49897/32/1/?elsca1=emc_conf_ASCOGU2017Post1&elsca2=email&elsca3=practiceupdate_onc&elsca4=201721_ASCOGU2017Post1&elsca5=conference&rid=NTU2MjE4MTE1NjYS1&lid=10332481 Testosterone and Prostate Cancer Risk: Favorable and Less Aggressive (Swedish registry data) http://ascopubs.org/doi/full/10.1200/JCO.2016.69.5304 Beyond Positive Margins and Extracapsular Extension: Evaluating the Utilization and Clinical Impact of Postoperative Chemoradiotherapy in Resected Locally Advanced Head and Neck Cancer (NCDB data) http://ascopubs.org/doi/full/10.1200/JCO.2016.68.2336 4 MCR MINI-UPDATE APRIL 2017 Death within 1 Month of Diagnosis in Childhood Cancer: An Analysis of Risk Factors and Scope of the Problem (SEER data) http://ascopubs.org/doi/full/10.1200/JCO.2016.70.3249 Higher Risk of Adverse Outcomes for Births to Young CA Survivors (North Carolina Cancer Registry data) http://jamanetwork.com/journals/jamaoncology/fullarticle/2612803 Factors Associated with Early Mortality among Patients with De Novo Metastatic Breast Cancer: A Population‐Based Study (SEER data) http://theoncologist.alphamedpress.org/content/early/2017/02/27/theoncologist.2016-0369 Impact of Metastatic Pattern on the Prognosis in Stage IV Breast Cancer at Initial Diagnosis (SEER data) https://link.springer.com/article/10.1007%2Fs10549-016-4066-7 Brain Metastases in Newly Diagnosed Breast Cancer: A Population-Based Study (SEER data) http://jamanetwork.com/journals/jamaoncology/article-abstract/2610293 Primary Lymphoma of the Female Genital Tract (SEER data) http://www.gynecologiconcology-online.net/article/S0090-8258(17)30164-6/abstract Nodular Lymphocyte Predominant Hodgkin Lymphoma in Sweden between 2000 and 2014: An Analysis of the Swedish Lymphoma Registry http://onlinelibrary.wiley.com/doi/10.1111/bjh.14567/abstract NEWS & RESOURCES OF INTEREST MU Research Findings Could Affect Vaccine, Cancer Research http://medicine.missouri.edu/news/20170313-mystery-of-memory-cells.php Adults with Disabilities Screened Less Often for Colorectal Cancer (MU Researcher) http://www.ajpmonline.org/article/S0749-3797(17)30011-9/fulltext Cancer Screening Test Use — United States, 2015 https://www.cdc.gov/mmwr/volumes/66/wr/mm6608a1.htm Large-Scale Skin Cancer Screening Initiative Feasible http://jamanetwork.com/journals/jamaoncology/article-abstract/2604819 ASCO: State of Cancer Care in America (infographic) and link to full text http://www.asco.org/sites/new-www.asco.org/files/content-files/research-andprogress/documents/2017-socca-report.pdf Temporal Trends in Treatment and Subsequent Neoplasm Risk among 5-Year Survivors of Childhood Cancer, 1970-2015 http://jamanetwork.com/journals/jama/fullarticle/2605800 5 MCR MINI-UPDATE APRIL 2017 Prediction of Overall Survival in Stage II and III Colon Cancer beyond the TNM System https://academic.oup.com/annonc/article/2981957/Prediction-of-overall-survival-in-stage-II-and-III Poor Diet in Adolescence May Raise Risk of Early Breast Cancer http://www.practiceupdate.com/c/50343/2/1/?elsca1=emc_enews_dailydigest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4 MTE1NjYS1&lid=10332481 Cholesterol, Cholesterol-Lowering Medication Use, and Breast Cancer Outcome in the BIG 1-98 Study http://ascopubs.org/doi/full/10.1200/JCO.2016.70.3116 Soy Linked to Prolonged Survival in Some Breast Cancer Patients http://onlinelibrary.wiley.com/doi/10.1002/cncr.30615/abstract Nine US Deaths Linked to Breast Implant-Associated Cancer https://medicalxpress.com/news/2017-03-deaths-linked-breast-implant-associated-cancer.html#jCp Pathological Characterization of Male Breast Cancer http://www.ejcancer.com/article/S0959-8049(17)30726-8/pdf Estimating the Risks of Breast Cancer Radiotherapy: Evidence from Modern Radiation Doses to the Lungs and Heart and From Previous Randomized Trials http://ascopubs.org/doi/full/10.1200/JCO.2016.72.0722 Detecting Blood-Based Biomarkers in Metastatic Breast Cancer: A Systematic Review of Their Current Status and Clinical Utility http://www.mdpi.com/1422-0067/18/2/363 Effect of Palliative Radiotherapy on Painful Bone Metastases http://jamanetwork.com/journals/jamaoncology/article-abstract/2601221 Stereotactic Ablative Body Radiotherapy for the Treatment of Spinal Oligometastases http://www.clinicaloncologyonline.net/article/S0936-6555(17)30079-1/pdf Hormonal Maintenance Tx Ups PFS in Low-Grade Serous Cancer http://ascopubs.org/doi/abs/10.1200/JCO.2016.71.0632 Biomarker in Nasal Passages May ID Lung Cancer in Smokers https://academic.oup.com/jnci/article/109/7/djw327/3053477/Shared-Gene-Expression-Alterations-inNasal-and Rare Thyroid Malignancies: An Overview for the Oncologist http://www.clinicaloncologyonline.net/article/S0936-6555(17)30069-9/pdf Clinical Implications of Microscopic Extrathyroidal Extension in Patients with Papillary Thyroid Carcinoma http://www.sciencedirect.com/science/article/pii/S1368837517300283 6 MCR MINI-UPDATE APRIL 2017 The New Key Player in Head and Neck Cancer Care http://www.curetoday.com/articles/the-new-key-player-in-head-and-neck-cancer-care?p=1 FDA Approves Bavencio for Metastatic Merkel Cell Carcinoma http://www.practiceupdate.com/c/51190/2/1/?elsca1=emc_enews_dailydigest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4 MTE1NjYS1&lid=10332481 FDA Approves Zejula for Certain Female Cancers http://www.practiceupdate.com/c/51349/2/1/?elsca1=emc_enews_dailydigest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=NTU2MjE4 MTE1NjYS1&lid=10332481 Scripps Florida Scientists Develop New Drug Delivery Method for Cancer Therapy http://www.medicalnewstoday.com/releases/316461.php Body Weight Trajectories and Risk of Esophageal and Gastric Cardia Adenocarcinomas: A Pooled Analysis of NIH-AARP and PLCO Studies http://www.nature.com/bjc/journal/vaop/ncurrent/abs/bjc201729a.html Vasectomy Cleared of Association with Advanced Prostate Cancer http://ascopubs.org/doi/full/10.1200/JCO.2016.70.0062 Baseline Tumor Volume as a Prognostic Factor in Recurrent Glioblastoma https://academic.oup.com/neuro-oncology/article-lookup/doi/10.1093/neuonc/now187 Metastatic Kidney Cancer or a Separate Lung Cancer? Expert Urges Patients, Doctors to Learn the Difference http://www.curetoday.com/articles/metastatic-kidney-cancer-or-a-separate-lung-cancer-expert-urgespatients-doctors-to-learn-the-difference-?p=1 Report Links Excess Weight to Eight More Cancer Types http://www.cancertodaymag.org/Winter2016/Pages/Report-Links-Excess-Weight-to-Eight-MoreCancer-Types.aspx The Impact of Vitamin D Pathway Genetic Variation and Circulating 25-hydroxyvitamin D on Cancer Outcome: Systematic Review and Meta-analysis http://www.nature.com/bjc/journal/vaop/ncurrent/full/bjc201744a.html The Risk of Melanoma and Hematologic Cancers in Patients with Psoriasis http://www.eblue.org/article/S0190-9622(16)30896-9/fulltext 7 MCR MINI-UPDATE APRIL 2017 It was certainly a busy month in cancer research publishing! I hope you agree that it is an exciting time to be active in the cancer field! Thanks again for all you do, Nancy H. Rold, CTR Operations Manager Missouri Cancer Registry and Research Center 8 MCR MINI-UPDATE APRIL 2017 Massachusetts Cancer Registry (MCR) Educational Workshop Hosted by Dana-Farber / Brigham and Women’s Cancer Center (DF/BWCC) Yawkey Building Conference Room 307 Boston, MA 02115 Date: May 16, 2017 AGENDA 8:00 am - 8:45 am Registration 8:45 am - 9:30 am Welcome Quality and Patient Safety Joseph Jacobson, MD, Chief Quality Officer, Senior Physician, Dana-Farber Cancer Institute (DFCI), Associate Professor of Medicine, Harvard Medical School (HMS) 9:30 am - 10:15 am Breast Cancer Rachel A. Freedman, MD, MPH, Associate Clinical Director, Breast Oncology Center, Senior Physician, DFCI, Assistant Professor of Medicine, HMS 10:15 am - 11:00am Stomach Cancer Thomas A. Abrams, MD, Senior Physician, Gastrointestinal Program, DFCI, Assistant Professor of Medicine, HMS (Tentative) 11:00 am - 11:15 am Break 11:15 am -11:45 am Cancer Control Plan Gail Merriam, MSW, MPH, Program Director, Massachusetts Comprehensive Cancer Prevention and Control Network, Massachusetts Department of Public Health (MDPH) 11:45 am -12:00 pm Kentucky Query System Susan T. Gershman, MS, MPH, PhD, CTR, Director, MCR, Office of Data Management and Outcomes Assessment, MDPH 12:00 pm - 1:15 pm LUNCH (on your own) 1:15 pm - 2:00 pm Personalized Medicine (To Be Determined) 9 MCR MINI-UPDATE APRIL 2017 2:15 pm - 3:00 pm Lymphomas and Leukemias (To Be Determined) 3:00 pm - 3:45 pm Adolescent and Young Adult Cancers Ann S. LaCasce, MD, MMSc, Director, DF/Partners CancerCare Hematology-Medical Oncology Program, Senior Physician, DFCI, Associate Professor of Medicine, HMS 10