Download PDF Document - Montana Cancer Consortium

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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
INTRODUCTION
A mission of The Montana Cancer Control Coalition (MTCCC) is “to develop,
implement, promote, and advocate for a statewide, coordinated, integrated approach to
cancer control for all Montanans.” The Montana Comprehensive Cancer Control Plan
states that an important step to achieving this mission is to provide links to evidencebased cancer information. The Treatment & Research Team, with the assistance of the
rest of the MTCCC, developed a resource list of science and evidence-based cancer
information websites. The websites are divided into categories and subcategories to
facilitate efficient use of the information. To the extent possible, we have chosen sites
representing little or no commercial bias. This is a document that will evolve with the
science and with time. The document will be reviewed and updated annually by the
Treatment and Research Team.
LINKING POLICY
No endorsement is intended or made of any hypertext link, product, service, or
information either by its inclusion or exclusion from this page or site. While all attempts
are made to ensure the correctness and suitability of information under our control and to
correct any errors brought to our attention, no representation or guarantee can be made as
to the correctness or suitability of that information or any other linked information
presented, referenced, or implied. All critical information should be independently
verified. Any questions should be directed to the administrators of this or any other
specific sites.
Nothing contained in this site is or should be considered, or used as a substitute for,
medical advice, diagnosis or treatment. The services provided on this site are here to
educate about cancer control and related medical issues. This site and its services do not
constitute the practice of any medical, nursing or other professional health care advice,
diagnosis or treatment.
The Montana Cancer Control Coalition particularly highlights Health On the Net
(HON)-code accredited sites (indicated by an asterisk). This is the leading
organization providing quality and trustworthiness of medical and health information
on the web. Created in 1995, HON is a non-profit, non-governmental organization,
accredited by the Economic and Social Council of the United Nations.
See http://www.hon.ch/visitor.html (CTRL + click to follow this link).
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Index
Cancer Care Guidelines Repository
Clinical Trials Information
Disease Specific
Bladder
Bone
Brain
Breast
Carcinoid
Cervical
Childhood
Colorectal
Esophageal
Gastrointestinal
Head & Neck
Hodgkin’s Disease
Kidney
Larynx
Leukemia
Leukemia & Lymphoma
Lung
Lymphoma
Melanoma
Multiple Myeloma
Oral
Ovarian
Pancreatic
Prostate
Sarcoma
Skin
Testicular
Thyroid
Financial
Children
Disease Specific
General
Government
Prescription Drug Coverage
Travel and Housing
General Cancer Reference
National Cancer Centers of Excellence
State Cancer Centers
Supportive Care
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Cancer Care Guidelines Repository
Web site: www.aahpm.org
American Academy of Hospice and Palliative Medicine (AAHPM)
Web site: www.cancer.org *
American Cancer Society (ACS)
Web site: www.acr.org
American College of Radiology (ACR)
Web site: www.headandneckcancer.org
American Head and Neck Society (AHNS)
Web site: www.apos-society.org
American Psychosocial Oncology Society (APOS)
Web site: www.breastsurgeons.org
American Society of Breast Surgeons (ASBS)
Web site: www.asco.org
American Society of Clinical Oncology (ASCO)
Web site: www.fascrs.org
American Society of Colon and Rectal Surgeons (ASCRS)
Web site: www.astro.org
American Society for Therapeutic Radiology and Oncology (ASTRO)
Web site: www.auanet.org
American Urological Association (AUA)
Web site: www.aosw.org
Association of Oncology Social Work (AOSW)
Web site: www.cap.org
College of American Pathologists (CAP)
Web site: www.cancer.gov
National Cancer Institute (NCI)
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.nccn.org
National Comprehensive Cancer Network (NCCN)
Web site: www.ons.org
Oncology Nursing Society (ONS)
Web site: www.surgonc.org
Society of Surgical Oncology (SSO)
Web site: www.sts.org
Society of Thoracic Surgeons (STS)
Clinical Trials Information
Web site: www.mtcancer.org
The Montana Cancer Consortium is a nonprofit organization whose mission is to
bring "state of the art" cancer treatment to Montana and Northern Wyoming
through clinical trials sponsored by the National Cancer Institute.
Web site: www.breastcancerprevention.com
Clinical research studies offer the best hope for the proper evaluation of drugs and
medical techniques. This site offers the opportunity to obtain credible information
on clinical trial research and to assess your chances of getting breast cancer.
Web site: www.cancertrialshelp.org
A non-profit organization founded in 1997, the Coalition was chartered to
increase participation in high-quality cancer clinical trials, thereby accelerating
development of new cancer therapies. Today the Coalition offers a full suite of
programs and services designed to increase the understanding of cancer clinical
trials and boost participation. Close-knit collaborative relationships with
healthcare industry partners concentrate on streamlining and promoting cancer
clinical trials in both the public and private sectors, enhancing the clinical trials
experience for physicians and patients alike.
Web site: www.clinicaltrials.com
Clinicaltrials.com is an internet resource for finding clinical trials in the United
States and Canada.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.clinicaltrials.gov
ClinicalTrials.gov provides regularly updated information about federally and
privately supported clinical research in human volunteers. ClinicalTrials.gov
gives information about a trial's purpose, who may participate, locations, and
phone numbers for more details. The information provided on ClinicalTrials.gov
should be used in conjunction with advice from health care professionals.
Website: http://prevention.cancer.gov/programs-resources/programs/ccop
Community Clinical Oncology Program (CCOP)
Website: http://ctep.cancer.gov
Cancer Therapy Evaluation Program (CTEP)
Website: http://transformingtrials.cancer.gov
Clinical Trials Working Group (CTWG)
Website: http://ncccp.cancer.gov
NCI Community Cancer Centers Program
Website: www.cancer.gov/clinicaltrials/conducting/developments/ncd179n
Centers for Medicare and Medicaid Services (CMS)
Website: http://www3.cancer.gov/admin/gab/
NCI Grant Process
Website: www.ctsu.org
Clinical Trials Support Unit
Website: www.ncicirb.org
Central Institutional Review Board
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Disease Specific
Bladder
Web site: www.bcan.org
Bladder Cancer Advocacy Network
Web site: www.blcwebcafe.org *
Bladder Cancer WebCafe
Bone
Web site: www.imbcr.org
Institute for Myeloma & Bone Cancer Research
Brain
Web site: www.abta.org
American Brain Tumor Association
Web site: www.braintumorfoundation.org
The Brain Tumor Foundation
Web site: www.cbtf.org
Children’s Brain Tumor Foundation
Web site: www.braintumor.org
National Brain Tumor Foundation
Web site: www.braintumor.org
National Brain Tumor Society
Web site: www.pbtfus.org
Pediatric Brain Tumor Foundation
Breast
Web site: www.avonfoundation.org
Avon Foundation
Web site: www.breastcanceralliance.org
Breast Cancer Alliance
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.bcrfcure.org
The Breast Cancer Research Foundation
Web site: www.breastcancer.org *
Breastcancer.org is a nonprofit organization dedicated to providing the most
reliable, complete, and up-to-date information about breast cancer.
Web site: www.cancer101.org
CANCER101
Web site: www.cancerinformation.com
Cancer Information
Web site: http://www.dslrf.org/
Dr. Susan Love Research Foundation
Web site: www.expeditioninspiration.org
Expedition Inspiration
Web site: www.cancer.gov/cancertopics/types/breast
Health & Human Services
Web site: www.her2support.org *
HER2Support.org
Web site: www.ibcresearch.org
Inflammatory Breast Cancer Research Foundation
Web site: www.ibcsupport.org
Inflammatory Breast Cancer Support
Web site: www.lbbc.org
Living Beyond Breast Cancer
Web site: www.menagainstbreastcancer.org
Men Against Breast Cancer
Web site: www.mothersdaughters.org
(MSDBC) Mother’s Supporting Daughters with Breast Cancer
Web site: www.myselftogetheragain.org
Myself: Together Again
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.nabco.org
National Alliance of Breast Cancer Organizations
Web site: www.cdc.gov/cancer/nbccedp
National Breast Cancer & Cervical Cancer Early Detection Program
Web site: www.breastcancerdeadline2020.org
Since 1991, the National Breast Cancer Coalition's trained advocates have lobbied
at the national, state and local levels for public policies that impact breast cancer
research, diagnosis and treatment. The grassroots advocacy effort has hundreds of
member organizations and tens of thousands of individual members working
toward increased federal funding for breast cancer research and collaborating with
the scientific community to implement new models of research, improve access to
high-quality health care and breast cancer clinical trials for all women, and
expand the influence of breast cancer advocates everywhere breast cancer
decisions are made.
Web site: www.nationalbreastcancer.org
National Breast Cancer Foundation
Web site: www.pink-link.org
Pink-Link
Web site: www.ribbonsofpink.org
Ribbons of Pink Foundation
Web site: www.sharecancersupport.org
SHARE: Self Help for Women with Breast Cancer
Web site: www.sharsheret.org
Sharsheret
Web site: www.sistersnetworkinc.org
Sisters Network, Inc
Web site: www.komen.org
Susan G. Komen for the Cure is the world's largest grassroots network of breast
cancer survivors and activists fighting to save lives, empower people, ensure
quality care for all and energize science to find the cures.
Web site: www.y-me.org
Y-ME National Breast Cancer Organization
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.youngsurvival.org
Young Survival Coalition
Carcinoid
Web site: www.carcinoid.org *
The Carcinoid Cancer Foundation, Inc
Cervical
Web site: www.alliance-cxca.org
Alliance for Cervical Cancer Prevention
Web site: www.foundationforwomenscancer.org
Foundation for Women’s Cancer
Web site: www.nccc-online.org
National Cervical Cancer Coalition
Childhood
Web site: www.acco.org
American Childhood Cancer Organization
Web site: www.cancercare.org/tagged/children
Cancer Care for Kids
Web site: www.clf4kids.org
Childhood Leukemia Foundation
Web site: www.cbtf.org
Children’s Brain Tumor Foundation
Web site: www.childrenscause.org
Children’s Cause for Cancer Advocacy
Web site: www.chionline.org
Children’s Hospice International
Web site: www.cota.org
Children’s Organ Transplant Association
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.curingkidscancer.org
Coaches Curing Kids’ Cancer
Web site: www.curesearch.org
Cure Search National Childhood Cancer Foundation
Web site: www.eaglemount.org
Eagle Mount
Web site: www.hopestreetkids.org
Hope Street Kids
Web site: www.kidscancernetwork.org
Kids Cancer Network
Web site: www.kidscope.org
Kids Cope
Web site: www.kidskonnected.org
Kids Konnected
Web site: www.nationalchildrenscancersociety.org
National Children’s Cancer Society
Web site: http://archrespite.org/respitelocator
National Respite Locator Service
Web site: www.pbtfus.org
Pediatric Brain Tumor Foundation
Web site: www.starlight.org
Starlight Children’s Foundation
Web site: www.supersibs.org
SuperSibs!
Web site: www.ulmanfund.org
The Ulman Cancer Fund for Young Adults
Colorectal
Web site: www.fightcolorectalcancer.org *
C3: Colorectal Cancer Coalition
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.ccalliance.org
The Colon Cancer Alliance (CCA) is an organization of colon and rectal cancer
survivors, their families, caregivers, people genetically predisposed to the disease
and the medical community.
Web site: www.eifoundation.org/programs/eifs-national-colorectal-cancerresearch-alliance
National Colorectal Cancer Research Alliance
Esophageal
Web site: www.ecaware.org *
Esophageal Cancer Awareness Association
Gastrointestinal
Web site: www.gistsupport.org *
GIST Support International
Web site: www.liferaftgroup.org
The Life Raft Group
Head & Neck
Web site: www.spohnc.org *
Support for People with Oral & Head & Neck Cancer
Web site: www.headandneck.org
The Yul Brynner Head & Neck Cancer Foundation
Hodgkin’s Disease
Web site: www.lymphomainfo.net/hodgkins
Lymphoma Education Network
Kidney
Web site: www.ackc.org
Action to Cure Kidney Cancer
Web site: www.kidneycancer.org
Kidney Cancer Association
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Larynx
Web site: www.theial.com
International Association of Laryngectomees
Leukemia
Web site: www.themaxfoundation.org
Max Foundation
Web site: www.mds-foundation.org
Myelodysplastic Syndromes Foundation
Web site: www.nbmtlink.org
National Bone Marrow Transplant Link
Leukemia & Lymphoma
Web site: www.lls.org *
The Leukemia & Lymphoma Society is the world's largest voluntary health
organization dedicated to funding blood cancer research, education and patient
services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease
and myeloma, and improve the quality of life of patients and their families.
Web site: www.marrow.org
National Marrow Donor Program
Lung
Web site: www.lung.org
American Lung Association
Web site: www.cancerinformation.com
Cancer Information
Web site: www.lungcancer.org
LungCancer.org
Web site: www.lungcanceralliance.org
Lung Cancer Alliance
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.lungcancercap.org
Lung Cancer Caring Ambassadors Programs
Web site: http://lungcanceronline.org *
Lung Cancer Online Foundation is a comprehensive, annotated directory to
Internet information and resources for patients and families.
Web site: www.lungevity.org
The LUNGevity Foundation
Web site: http://events.lungevity.org/site/PageServer?pagename=v2_LCSC
LUNGevity Foundation’s Lung Cancer Support Community
Web site: www.nationallungcancerpartnership.org
National Lung Cancer Partnership
Lymphoma
Web site: www.clfoundation.org
Cutaneous Lymphoma Foundation
Web site: www.lymphomahelp.org
Lymphoma Foundation of America
Web site: www.lymphoma.org
Lymphoma Research Foundation
Web site: www.lymphomation.org
Patients Against Lymphoma
Melanoma
Web site: www.melanomainternational.org
Melanoma International Foundation
Web site: www.melanoma.org/community/mpip-melanoma-patientsinformation-page*
Melanoma Patients Information Page
Web site: www.melanoma.org
The Melanoma Research Foundation
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.melanoma.com
Melanoma.com
Web site: www.epa.gov/sunwise
SunWise School Program
Multiple Myeloma
Web site: www.imbcr.org
Institute for Myeloma & Bone Cancer Research
Web site: www.myeloma.org
International Myeloma Foundation
Web site: www.themmrf.org
The Multiple Myeloma Research Foundation (MMRF)
Oral
Web site: www.oralcancerfoundation.org *
The Oral Cancer Foundation
Web site: www.spohnc.org *
Support for People with Oral & Head & Neck Cancer
Ovarian
Web site: www.ovarian-news.org
Conversations
Web site: www.ovariancancer.com
Gilda Radner Familial Ovarian Cancer Registry
Web site: www.ovarian.org
The National Ovarian Cancer Coalition’s mission is to raise awareness and
promote education about ovarian cancer.
Web site: www.ovariancancer.org
Ovarian Cancer National Alliance
Web site: www.ocrf.org
The Ovarian Cancer Research Fund
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Pancreatic
Web site: www.pancreatic.org
Hirshberg Foundation for Pancreatic Cancer Research
Web site: www.lustgarten.org
The Lustgarten Foundation for Pancreatic Cancer Research
Web site: www.pancan.org
Pancreatic Cancer Action Network (PanCAN)
Prostate
Web site: www.apcap.org
Alliance for Prostate Cancer Prevention
Web site: www.urologyhealth.org
American Urological Association Foundation (AUA)
Web site: www.malecare.com *
Malecare Prostate Cancer Support
Web site: www.paactusa.org
Patient Advocates for Advanced Cancer Treatments (PAACT, Inc.)
Web site: www.pcf.org
Formerly CaPCURE, the Prostate Cancer Foundation (PCF) is the world's largest
philanthropic source of support for prostate cancer research. The PCF has a single
goal: To find better treatments and a cure for recurrent prostate cancer.
Web site: www.prostate-cancer.org
Prostate Cancer Research Institute
Web site: www.ustoo.org
Us TOO International
Web site: www.zerocancer.org
Zero – The Project to End Prostate Cancer
Sarcoma
Web site: www.alveolarspsarcoma.net
Alliance Against Alveolar Soft Part Sarcoma
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.sarcomacancer.org
Amschwand Sarcoma Cancer Foundation
Web site: www.liddyshriversarcomainitiative.org
Liddy Shriver Sarcoma Initiative
Web site: www.lmsdr.org
Leiomyosarcoma Direct Research Foundation
Web site: www.sarcomaalliance.org
Sarcoma Alliance
Web site: www.curesarcoma.org
Sarcoma Foundation of America
Skin
Web site: www.skincancer.org
The Skin Cancer Foundation
Testicular
Web site: www.acor.org/tcrc
The Testicular Cancer Resource Center
Thyroid
Web site: www.checkyourneck.com
Light of Life Foundation
Web site: www.thyca.org
ThyCa: Thyroid Cancer Survivors’ Association, Inc.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Financial
Children
Web site: www.acco.org
American Childhood Cancer Organization (ACCO), formerly Candlelighters
Childhood Cancer Foundation, is a nonprofit organization that provides
information, peer support, and advocacy through publications, an information
clearinghouse, and a network of local support groups. ACCO maintains a list of
organizations to which eligible families may apply for financial assistance.
Web site: www.cota.org
The Children's Organ Transplant Association helps children and young adults
who need a life-saving transplant by providing fundraising assistance and family
support.
Web site: www.nationalchildrenscancersociety.org
National Children’s Cancer Society
Web site: www.insurekidsnow.gov
The State Children's Health Insurance Program (SCHIP) is a Federal-State
partnership that offers low-cost or free health insurance coverage to uninsured
children of low-wage, working parents.
Disease Specific
Web site: www.bonemarrow.org
The mission of The Bone Marrow Foundation is to improve the quality of life for
bone marrow and stem cell transplant patients and their families by providing
financial aid, education and emotional support.
Web site: www.cdc.gov/CANCER/nbccedp/legislation/law106-354.htm
The Breast and Cervical Cancer Treatment Act provides, in most states, Medicaid
coverage for treatment to women who have been screened for and diagnosed with
breast or cervical cancer, including precancerous conditions, through the National
Breast and Cervical Cancer Early Detection Program.
Web site: www.lls.org *
The Leukemia and Lymphoma Society (LLS) offers information and financial aid
to patients who have leukemia, non-Hodgkin's lymphoma, Hodgkin's disease, or
multiple myeloma.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.lymphoma.org
The Lymphoma Research Foundation offers a limited financial assistance
program to help improve patients’ quality of life and assist them in receiving the
lifesaving treatments that they need.
Web site: http://www.braintumor.org
The National Brain Tumor Society is a national nonprofit agency that provides
information about brain tumors and related conditions for patients and their
families. Financial assistance is given through the agency’s BTS CARES
Financial Assistance Program. This program provides supplementary financial
assistance to individuals experiencing financial need. This program covers
specific nonmedical costs related to a primary brain tumor diagnosis. Direct
medical expenses are not covered.
General
Web site: www.cancer.org *
The national American Cancer Society (ACS) office can provide the telephone
number of the local ACS office serving your area. The local ACS office may offer
reimbursement for expenses related to cancer treatment including transportation,
medicine, and medical supplies. The ACS also offers programs that help cancer
patients, family members, and friends cope with the emotional challenges they
face.
Web site: www.tlcdirect.org
The ACS’s "tlc" Tender Loving Care® publication contains helpful articles and
information, including products for women coping with cancer or any cancer
treatment that causes hair loss. Products include wigs, hairpieces, breast forms,
prostheses, bras, hats, turbans, swimwear, and helpful accessories at the lowest
possible prices. The publication strives to help women facing cancer treatment
cope with the appearance-related side effects of cancer.
Web site: www.cancercare.org
CancerCare is a national nonprofit organization whose mission is to provide free
professional help to people with all cancers through counseling, education,
information and referral and direct financial assistance.
Web site: www.cancercare.org
CancerCare operates the AVONCares Program for Medically Underserved
Women, in partnership with the Avon Foundation. This program provides
financial assistance to low-income, under- and uninsured, underserved women
throughout the country who need supportive services (transportation, child care,
and home care) related to the treatment of breast and cervical cancers.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.cfoa.org
Cancer Fund of America is a non-profit organization set up to help cancer
patients, hospices, and other non-profit healthcare providers by way of sending
products free of charge directly to them.
Web site: www.livestrong.org
The LIVESTRONG™ SurvivorCare partnership between CancerCare and the
Lance Armstrong Foundation provides financial assistance to cancer survivors.
For patients who are 6 months post-treatment with no evidence of disease, limited
financial assistance is available for transportation to follow-up appointments,
medical copays, cancer-related medications, and neuropsychological evaluation.
Web site: www.patientadvocate.org
The Patient Advocate Foundation (PAF) is a national nonprofit organization that
provides education, legal counseling, and referrals to cancer patients and
survivors concerning managed care, insurance, financial issues, job
discrimination, and debt crisis matters.
Web site: www.uicc.org
The Union for International Cancer Control (UICC) is another resource for people
living outside the United States. The UICC consists of international cancer-related
organizations devoted to the worldwide fight against cancer. UICC membership
includes research facilities and treatment centers, and in some countries,
ministries of health. Other members include volunteer cancer leagues,
associations, and societies. These organizations serve as resources for the public
and may have helpful information about a variety of topics, including financial
assistance.
Government
Web site: www.benefits.gov
Benefits.gov is a partnership of Federal agencies with a shared vision to provide
improved, personalized access to government assistance programs. This Web
site’s online screening tool is free, easy-to-use, and completely confidential. The
user answers a series of questions, then the Web site generates a list of
government benefit programs that the user may be eligible to receive, along with
information about how the user can apply.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: http://bphc.hrsa.gov
The Health Resources and Services Administration’s (HRSA) Bureau of Primary
Health Care offers Health Centers that provide health care to low-income and
other vulnerable populations. Health Centers care for people regardless of their
ability to pay. They provide primary and preventive health care, as well as
services such as transportation and translation.
Web site: www.hrsa.gov/gethealthcare/affordable/hillburton/facilities.html
Hill-Burton is a program through which hospitals receive construction funds from
the Federal Government. Hospitals that receive Hill-Burton funds are required by
law to provide some services to people who cannot afford to pay for their
hospitalization.
Web site: www.irs.ustreas.gov
Income tax deductions: Medical costs that are not covered by insurance policies
sometimes can be deducted from annual income before taxes. Examples of tax
deductible expenses might include mileage for trips to and from medical
appointments, out-of-pocket costs for treatment, prescription drugs or equipment,
and the cost of meals during lengthy medical visits.
Web site: www.medicaid.gov
Medicaid (Medical Assistance) a jointly funded, Federal-State health insurance
program for people who need financial assistance for medical expenses, is
coordinated by the Centers for Medicare & Medicaid Services (CMS), formerly
the Health Care Financing Administration.
Web site: www.medicare.gov
Medicare is a Federal health insurance program also administered by the CMS.
Eligible individuals include those who are 65 or older, people of any age with
permanent kidney failure, and disabled people under age 65.
Web site: www.ssa.gov
Social Security provides a monthly income for eligible elderly and disabled
individuals. Information on eligibility, coverage, and how to apply for benefits is
available from the Social Security Administration.
Web site: www.ssa.gov/pubs/11011.html
Supplemental Security Income (SSI) supplements Social Security payments for
individuals who have certain income and resource levels. SSI is administered by
the Social Security Administration. Information on eligibility, coverage, and how
to file a claim is available from the Social Security Administration.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.va.gov/health
Veterans’ benefits: Eligible veterans and their dependents may receive cancer
treatment at a Veterans Administration Medical Center. Treatment for serviceconnected conditions is provided, and treatment for other conditions may be
available based on the veteran's financial need.
Prescription Drug Coverage
Web site: www.needymeds.org *
NeedyMeds is a 501(3)(c) nonprofit organization with the mission of helping
people who cannot afford medicine or health care costs. The information at
NeedyMeds can be obtained anonymously and is free of charge. NeedyMeds is an
information source similar to the Yellow Pages; it does not supply medications or
financial assistance, but helps people find assistance programs and other available
resources.
Web site: www.pparx.org
The Partnership for Prescription Assistance brings together America’s
pharmaceutical companies, doctors, other health care providers, patient advocacy
organizations and community groups to help qualifying patients who lack
prescription coverage get the medicines they need through the public or private
program that’s right for them.
Web site: www.copays.org
The Patient Advocate Foundation’s Co-Pay Relief Program provides limited
payment assistance for medicine to insured patients who financially and medically
qualify.
Travel and Housing
Web site:
www.cancer.org/Treatment/SupportProgramsServices/HopeLodge/index
Hope Lodge, a temporary housing program supported by ACS, provides free,
temporary housing facilities for cancer patients who are undergoing treatment.
Web site: www.angelflight.org
Angel Flight West arranges free air transportation in response to health care and
other compelling human needs.
Web site: www.corpangelnetwork.org
Corporate Angel Network is the only charitable organization in the USA whose
sole mission is to ease the emotional stress, physical discomfort and financial
burden of travel for cancer patients by arranging free flights to treatment centers,
using the empty seats on corporate aircraft flying on routine business.
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Web site: www.nahhh.org
The National Association of Hospital Hospitality Houses, Inc. is a non-profit
corporation serving facilities that provide lodging and other supportive
services to patients and their families when confronted with medical
emergencies. Each facility assures that a homelike environment is provided to
persons who must travel to be with a patient or to receive necessary outpatient
care.
Web site: www.patienttravel.org/
The National Patient Travel Center provides information about all forms of
charitable, long-distance medical air transportation and provides referrals to all
appropriate sources of help available in the national charitable medical air
transportation network.
Web site: www.rmhc.com
Ronald McDonald Houses, supported by Ronald McDonald House Charities,
provide a "home away from home" for families of seriously ill children receiving
treatment at nearby hospitals. Ronald McDonald Houses are temporary residences
near the medical facility, where family members can sleep, eat, relax, and find
support from other families in similar situations.
General Cancer Reference
Web site: www.mskcc.org/cancer-care/integrative-medicine/about-herbsbotanicals-other-products
About Herbs, Botanicals & Other Products
Web site: http://trc.wisc.edu
Alliance of State Pain Initiatives
Web site: www.amc.org
AMC Cancer Research Center
Web site: www.aacr.org
American Association for Cancer Research (AACR)
Web site: www.cancer.org *
American Cancer Society (ACS)
Web site: www.acscan.org
American Cancer Society Cancer Action network, Inc.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.facs.org/cancer
American College of Surgeons (ACoS)
Web site: www.americanhospice.org
American Hospice Foundation
Web site: www.aicr.org
American Institute for Cancer Research (AICR)
Web site: www.cancer.net
American Society of Clinical Oncology Cancer Foundation
Web site: www.hematology.org
American Society of Hematology
Web site: www.astro.org
American Society for Therapeutic Radiology & Oncology (ASTRO)
Web site: www.angelflightcentral.org
Angel Flight Central
Web site: www.angio.org
The Angiogenesis Foundation
Web site: www.aamds.org *
Aplastic Anemia & MDS International Foundation, Inc
Web site: www.apiahf.org
Asian & Pacific Islander American Health Forum
Web site: www.acor.org
Association of Cancer Online Resources
Web site: www.ajfca.org
Association of Jewish Family & Children’s Agencies
Web site: www.blochcancer.org
Bloch Cancer Hotline
Web site: www.thechainfund.com
The C.H.A.I.N. Fund
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.411cancer.org
Cancer411
Web site: www.cancercare.org
Cancer Care is a national nonprofit organization that provides free, professional
support services for anyone affected by cancer.
Web site: http://cancercontrolplanet.cancer.gov
Cancer Control Planet
Web site: www.cancereducation.com
The mission of this site is to improve cancer care through the dissemination of upto-date and accurate educational programming and information for healthcare
professionals, cancer patients and their family members
Web site: www.cancerhelp.org
Cancer Help
Web site: www.cancerhopenetwork.org
Cancer Hope Network
Web site: www.cancerindex.org
Cancer Index
Web site: www.cancer.gov/aboutnci/cis *
The National Cancer Institute's (NCI's) Cancer Information Service (CIS) is a
national information and education network. The CIS is a free public service of
the NCI, the Nation's primary agency for cancer research.
Web site: www.cancerfacts.com *
This online resource for cancer patients, their families, and caregivers is dedicated
to delivering accurate and personalized information at a time of need.
Web site: www.disabilityrightslegalcenter.org
Cancer Legal Resource Center
Web site:
www.fda.gov/ForConsumers/ByAudience/ForPatientAdvocates/CancerLiaisonPr
ogram/default.htm
Cancer Liaison Program
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.cancernews.com
Cancer News on the Net is dedicated to bringing patients and their families the
latest news and information on cancer diagnosis, treatment and prevention.
Web site: www.cancerproject.org
The Cancer Project
Web site: www.cancerquest.org *
Cancer Quest
Web site: www.preventcancer.org
Cancer Research and Prevention Foundation (CRPF)
Web site: www.cancerresearch.org
Cancer Research Institute
Web site: www.cancersupportcommunity.org
Cancer Support Community
Web site: www.cancersymptoms.org
Cancer Symptoms
Web site: www.caringbridge.org
Caring Bridge
Web site: www.caringforcarcinoid.org
Caring for Carcinoid Foundation
Web site: www.centerforcancer.org
The Center for Cancer Support & Education
Web site: www.cmbm.org
Center for Mind-Body Medicine
Web site: www.cdc.gov/cancer
Centers for Disease Control and Prevention (CDC)
Web site: www.chemotherapyfoundation.com
The Chemotherapy Foundation
Web site: www.cancertrialshelp.org
Coalition of National Cancer Cooperative Groups
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Website: www.curetoday.com
CURE: Cancer Updates‚ Research & Education is a quarterly magazine that
combines the science and humanity of cancer for those who have to deal with it
on a daily basis. CURE provides scientific information in easy-to-understand
language with equally understandable illustrations.
Web site: www.dreamfoundation.org
Dream Foundation
Web site: www.ecap-online.org
Exceptional Cancer Patients
Web site: www.fertilehope.org
Fertile Hope
Web site: www.fightingchance.org
Fighting Chance
Web site: www.facingourrisk.org *
FORCE: Facing Our Risk of Cancer Empowered
Web site: www.foundationforwomenscancer.org
Foundation for Women’s Cancer
Web site: www.hospicefoundation.org
Hospice Foundation of America
Web site: www.icare.org
International Cancer Alliance for Research and Education (ICARE)
Web site: www.stupidcancer.com
I’m Too Young For This Foundation
Web site: http://iccnetwork.org
The Intercultural Cancer Council (ICC)
Web site: www.hospicecare.com *
International Association for Hospice and Palliative Care (IAHPC)
Web site: www.jacobintl.org
Jews Against Cancer Of the Breast International
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Website: www.joeshouse.org
Joe’s House
Web site: www.livestrong.org
The Lance Armstrong Foundation is a registered 501(c) (3) nonprofit organization
located in Austin, Texas. Founded in 1997 by cancer survivor and champion
cyclist, Lance Armstrong, the LAF inspires and empowers people with cancer.
Web site: www.lookgoodfeelbetter.org
Look Good…Feel Better (LGFB)
Web site: www.lotsahelpinghands.com
Lotsa Helping Hands
Web site: www.wish.org
Make A Wish Foundation
Web site: www.canceractionnow.org
Marti Nelson Cancer Foundation
Web site: www.nlm.nih.gov/medlineplus
Medline Plus is a service of the U.S. National Library of Medicine and the
National Institutes of Health
Web site: www.nahc.org
National Association for Home Care
Web site: www.nahhh.org
National Association of Hospital Hospitality Houses
Web site: www.cancer.gov
National Cancer Institute (NCI)
Web site: www.nccam.nih.gov
National Centers for Complementary and Alternative Medicine (NCCAM)
Web site: www.canceradvocacy.org
National Coalition for Cancer Survivorship
Web site: www.collegiatecancer.org
National Collegiate Cancer Foundation
Web site: www.nccn.org
National Comprehensive Cancer Network
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.benefitscheckup.org
National Council on the Aging
Web site: www.nlm.nih.gov
The National Library of Medicine
Web site: www.lymphnet.org
National Lymphedema Network, Inc
Web site: www.natamcancer.org
Native American Cancer Research (NACR)
Web site: www.needymeds.org *
NeedyMeds.com
Web site: www.nueva-vida.org
Nueva Vida, Support Network for Latinas with Cancer
Web site: www.cancer.gov/cam
Office of Cancer Complementary & Alternative Medicine
Web site: http://dccps.nci.nih.gov/ocs
Office of Cancer Survivorship
Web site: http://minorityhealth.hhs.gov
Office of Minority Health (OMH)
Web site: www.oncolink.org
OncoLink
Web site: www.partnersagainstpain.com
Partners Against Pain
Web site: www.pparx.org
Partnership for Prescription Assistance
Web site: www.panfoundation.org
Patient Access Network Foundation (PAN)
Web site: www.patientadvocate.org
Patient Advocate Foundation
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.thepatientpartnerproject.org
The Patient/Partner Project
Web site: www.patientservicesinc.org
Patient Services, Inc
Web site: www.psfoundation.org
Pine Street Foundation
Web site: www.planetcancer.org
Planet Cancer
Web site: www.pregnantwithcancer.org
Pregnant with Cancer Network
Web site: www.prevencion.org
Prevencion, Inc. Wellness Through Media
Web site: www.rare-cancer.org
Rare Cancer Alliance
Web site: www.reachglobal.org
REACH Global
Web site: www.shiptalk.org
State Health Insurance Assistance Program
Web site: www.strikeoutcancer.com
Strike Out Cancer
Web site: www.teamsurvivor.org
Team Survivor
Web site: www.ulmanfund.org
The Ulman Cancer Fund for Young Adults
Web site: www.vitaloptions.org
Vital Options International
Web site: www.webmd.com *
Web MD
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.wellspouse.org
Well Spouse Association
Web site: www.wondersandworries.org
Wonders & Worries
Web site: www.yourcancersource.com *
Your Cancer Source
National Cancer Centers of Excellence
Web site: www.cityofhope.org *
City of Hope Cancer Center, Los Angeles, CA
Web site: www.dfhcc.harvard.edu
Dana-Farber/Brigham and Women's Cancer Center | Massachusetts General
Hospital Cancer Center, Boston, MA
Web site: www.dukecancerinstitute.org
Duke Cancer Institute, Durham, NC
Web site: www.fccc.edu
Fox Chase Cancer Center, Philadelphia, PA
Web site: www.huntsmancancer.org
Huntsman Cancer Institute at the University of Utah, Salt Lake City, UT
Web site: www.fhcrc.org
Web site: www.seattlecca.org
Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance, Seattle,
WA
Web site: http://cancer.osu.edu
Arthur G. James Cancer Hospital & Richard J. Solove Research Institute at The
Ohio State University, Columbus, OH
Web site: www.hopkinsmedicine.org/kimmel_cancer_center
The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, Baltimore,
MD
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.cancer.northwestern.edu
Robert H. Lurie Comprehensive Cancer Center of Northwestern University,
Chicago, IL
Web site: www.mskcc.org
Memorial Sloan-Kettering Cancer Center, New York, NY
Web site: www.moffitt.org
H. Lee Moffitt Cancer Center & Research Institute at the University of South
Florida, Tampa, FL
Web site: www.roswellpark.org
Roswell Park Cancer Institute, Buffalo, NY
Web site: www.siteman.wustl.edu
Siteman Cancer Center at Barnes-Jewish Hospital and Washington University
School of Medicine, St. Louis, MO
Web site: www.stjude.org
Web site: www.utcancer.com
St. Jude Children's Research Hospital/Boston Baskin Cancer
Foundation/University of Tennessee Cancer Institute, Memphis, TN
Web site: http://cancer.stanford.edu
Stanford Cancer Institute/Stanford Medicine, Stanford, CA
Web site: www.ccc.uab.eduUniversity of Alabama at Birmingham
Comprehensive Cancer Center, Birmingham, AL
Web site: http://cancer.ucsf.edu
UCSF Helen Diller Family Comprehensive Cancer Center, San Francisco, CA
Web site: www.cancer.med.umich.edu
University of Michigan Comprehensive Cancer Center, Ann Arbor, MI
Web site: www.nebraskamed.com/cancer
The Nebraska Medical Center, Omaha, NE
Web site: www.mdanderson.org
The University of Texas M. D. Anderson Cancer Center, Houston, TX
Web site: www.vicc.org
Vanderbilt-Ingram Cancer Center, Nashville, TN
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
State Cancer Centers
* American College of Surgeons Commission on Cancer (CoC) approved Cancer Treatment Centers
Web site: www.benefis.org/benefis/index/ourservices/cancer
Benefis Sletten Cancer Institute, Great Falls, MT*
Web site: www.billingsclinic.com/cancer
Billings Clinic Cancer Center, Billings, MT*
Web site: www.bozemandeaconess.org/service_home.php?service=68
Bozeman Deaconess Cancer Center, Bozeman, MT
Web site: www.frontiercancer.com
Frontier Cancer Centers and Blood Institute, Billings & Butte, MT
Cody, WY
Web site: www.gfclinic.com/department-detail.php?dept=7&id=32
Great Falls Clinic, Great Falls, MT
Web site: www.holyrosaryhealthcare.org
Holy Rosary Healthcare, Miles City, MT
Web site: www.nwhc.org/krmc
Kalispell Regional Medical Center, Kalispell, MT
Web site: www.mtcancer.com
Montana Cancer Center, Missoula, MT*
Web site: www.rockymountainoncology.com
Rocky Mountain Oncology, Casper, WY
Web site: www.stjameshealthcare.org
St. James Healthcare, Butte, MT
Web site: www.stpetes.org/CancerTreatmentCenter
St. Peters Hospital Cancer Treatment Center, Helena, MT*
Web site: www.stvincenthealthcare.org
St. Vincent Healthcare, Billings, MT *
Web site: www.sheridanhospital.org/welchcancercenter
Welch Cancer Center, Sheridan, WY
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Supportive Care
Web site:
www.cancer.org/Treatment/SupportProgramsServices/Index?sitearea=SHR&level
=1 *
ACS: Support Programs and Services
Web site: www.cancer.gov/cancertopics/factsheet/support/resources
NCI: How To Find Resources in Your Own Community If You Have Cancer
Web site: www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer
advocacy organization in the country, advocating for quality cancer care for all
Americans and empowering cancer survivors. NCCS believes in evidence-based
advocacy for systemic changes at the federal level in how the nation researches,
regulates, finances, and delivers quality cancer care.
Web site: www.canceradvocacy.org/toolbox
The Cancer Survival Toolbox is a free, self-learning audio program that has been
developed by leading cancer organizations to help people develop important skills
to better meet and understand the challenges of their illness. While created
primarily for people who have been recently diagnosed with cancer, the
Toolbox can help anyone who is facing hard decisions and changes in life due to
cancer. Family members and caregivers can also use the Toolbox on behalf of a
child or anyone else affected by cancer.
Web site: http://www.cancersupportmontana.org/
Cancer Support Community Montana, located in Bozeman, Montana, is one of 52
chapters of Cancer Support Community (CSC), a national non-profit organization
dedicated to providing emotional support, education and hope for people with
cancer and their loved ones, free of charge. We provide a full range of support
programs for people with cancer and their loved ones in a comfortable home-like
setting, completely free of charge. We offer drop-in and on-going support groups,
networking groups for people with specific types of cancer, educational
workshops, exercise activities, stress management sessions, lectures by experts in
the field of oncology, and social gatherings-all with laughter, joy and hope.
Web site: www.cancersupportcommunity.org
Cancer Support Community is a national non-profit organization dedicated to
providing emotional support, education and hope for people with cancer and their
loved ones, free of charge.
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SCIENCE AND EVIDENCE BASED CANCER INFORMATION WEBSITES
Web site: www.fertilehope.org
Fertile Hope is a national, nonprofit organization dedicated to providing
reproductive information, support and hope to cancer patients and survivors
whose medical treatments present the risk of infertility.
Web site: www.livestrong.org
The Lance Armstrong Foundation was founded in 1997 by cancer survivor and
champion cyclist Lance Armstrong, the LAF is a registered 501(c) (3) nonprofit
organization located in Austin, Texas.
Web site: www.cancer.net
Cancer.net is the patient information website of the American Society of Clinical
Oncology (ASCO).
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