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Team Heart — · TeamHeart · A Collaborative Project for Creating an Independent Cardiac Surgery Program in Rwanda P Shekar, MD, L Nascimben*, MD, V Formanek*, MD, L Sabatino, RN, BSN, S Breakey, RN, PhD, C Patton Bolman, RN, MSN, J Connell, MD, MPH, RM Bolman III, MD Divisions of Cardiac Surgery and *Cardiac Anesthesia, Brigham and Women’s Hospital, Boston MA BACKGROUND… LONG TERM GOALS… OUTCOMES… The Problem: In collaboration with Partners-In-Health and the Rwandan Ministry of Health: 10 males, 1 female 17-39 years 11 surgeries performed on Cardiopulmonary Bypass: Rheumatic Fever (RF) and Rheumatic Heart Disease (RHD) 1. To establish a sustainable independent cardiac surgery program in Rwanda. Caused by untreated Group A Streptococcal infections Consequences result in valvular dysfunction and heart failure Disproportionately affect children and young adults in developing countries: 2. To improve the identification and treatment of RF/RHD in Rwanda. 15.6 million world-wide (incidence in industrialized countries <1/100,000) 282,000 new cases, 233,000 deaths yearly 2.4 million children between 5 and 15 1 million of whom live in sub-Saharan Africa 3. To establish a heart disease registry to identify and follow patients who have had complex cardiac procedures. valve replacements mitral valve repairs ASD repair double valve surgery 100% survival The Treatment: Effective primary and secondary prevention strategies including antibiotic therapy to treat and prevent recurrence Surgical intervention to repair damaged valves 7 2 1 1 for RF/RHD FIRST SURGICAL MISSION (APRIL 2008) GOALS… EDUCATION… 1. To perform surgery on young adults with advanced rheumatic heart disease and congenital heart disease. Patient/Family Education: 2. To begin a collaborative relationship with King Faisal Hospital to build a sustainable cardiac surgery program over a 7 to 10 year period. Barriers to Treatment in Developing Countries Health Care Determinants: Lack of access to primary health clinics Scarcity of health providers Lack of awareness among health workers, patients, and families Lack of availability of cardiology and cardiac surgery resources Lack of Cardiovascular Centers in Africa (18/900 million) Social Determinants that impact health: Inadequate housing/shelter Lack of access to education Other effects of poverty (e.g. poor nutrition, access to clean water) 3. To begin education with KFH staff, patients, and families focused on RF/RHD awareness, cardiac surgical care, and post-discharge care to increase awareness of the effects of RHD and to optimize surgical outcomes. Continuous patient/family teaching pre-and post-operatively Booklets in Kinyarwanda that focus on RHD and its effect on the heart, on post-operative care, on discharge and on warfarin. Providers Education: Assessment of their current knowledge and skills and education through preceptoring/partnering and direct involvement with care POST MISSION EVALUATION… METHODS… Team Selection Funding 37 volunteers: surgeons, anesthesiologists, intensivists, cardiologists, perfusionists, OR, ICU, stepdown unit RNs, RN Educator, respiratory therapists Annual Team Heart Fundraiser Corporate Grants Local fundraisers events and initiatives Individual donations Examples of purchases made with funds: Shipping, pharmaceutical supplies, specialized cardiac surgery equipment, cautery machine Conclusions Cardiac surgery with adequate follow-up is possible in Rwanda. Collaboration with both PIH and the Rwandan Government is essential for success. Collaborative and respectful relationships were established between Team Heart and KFH staff that can serve as the foundation for sustainability. Equipment Procurement Generous vendors BWH, MGH Biomedical Departments Private individual and anonymous sponsors Examples of donations: cardiopulmonary bypass machine, infusion pumps, invasive hemodynamic monitors, specialized cardiac surgical packs, cell-saver machine Areas for Improvement/Goals for 2009 Increase number of post-operative local nurses Procure new radiographic technology Coordinate methods to guarantee adequate longterm patient follow-up Continue and expand fund raising and equipment procurement. Involve other Medical Institutions Expand methods for education of KFH staff, for patients and their families Patient Selection RWANDA: HEALTH PROVIDERS MDs: 401 RWANDA: Population: Nurses: Gross National Income: 1,270 Life expectancy at birth (M/F): 51/53 Midwives: Pharmacists: Dentists: Community Health Workers: Lab Techs: 3953 54 278 Expenditure on health per capita ($): 21 12,000 39 9,464,000 136 (US: 6350) Expenditure on health (% GDP): 7.2 (US:15.2) Pre-screening done prior to arrival by PIH cardiologist Daily team meetings to finalize cases for next day Decisions required critical evaluation of physiologic factors (surgical complexity, co-morbidities, nutritional status) and resources (ICU beds, ventilators, equipment, supplies) Explore opportunities for screening, prevention, and early intervention of RF/RHD in Rwanda It was awesome medically, as it always is, when the pericardium is opened; it was awesome personally, as someone who has fought alongside many others to make sure that quality medical care be made available to the poorest; and it was awesome spiritually to see, on the exact anniversary of the 1994 genocide, that the power to heal continues to trump the power to maim, sicken, or kill. —Paul Farmer, MD, PhD Http://teamheart.blogspot.com