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Chronic conditions (Type 2 DM) care – Clinical Connectathon Narrative Objectives: use of FHIR clinical resources to capture and view data (including use of Care Plan) relevant to care of patient with chronic health conditions (Type 2 DM and associated health risks/concerns) Description The purpose of this use case is to describe a series of events related to the generation, capture and retrieval of clinical data relevant to the care of patient with chronic health conditions (Type 2 DM and cardiovascular risks/concerns). Exclusions Emergency conditions such as acute complications of Type 2 DM Actors PCP: Dr Patricia Primary Nurse: Ms Nancy Nightingale Patient: Mr Adam Everyman Pre-condition Mr Adam Everyman with known medical history of hypercholesterolemia and moderate hypertension presents to his PCP with complaints suggestive of Type 2 Diabetes Mellitus Trigger Patient arrives at PCP clinic seeking medical consultation and care for a set of complaints Narrative of Events November, 12 – First consultation The patient: On 12 November, Mr Adam Everyman, a 52 year old male patient known to the clinic presented at Dr Patricia Primary’s (PCP) clinic with a set of complaints suggestive of Type 2 Diabetes Mellitus. These signs and symptoms appeared about 3 months ago before he decided that they were bad enough for him to seek medical help. Clinic Nurse: The patient was escorted by the clinical nurse, Nancy Nightingale, to the examination room where routine nursing assessments were performed, which included: Height (5.6 feet or 170 cm), weight (215.6 pounds or 98 kg; fully clothed), waist circumference Blood pressure measured on left upper arm with patient in sitting position (179/98; second reading 10 min later = 162/92. Patient is obese. Arm circumference=37.6cm/14.8in. A large adult cuff was used). Based on the height and weight, the BMI calculation (=33 [30+ = obese]) indicated that the patient was obese. The waist circumference (102.5 cm; 40.35 in) is >50% of his height. And the nurse also noted that the blood pressure indicated that patient was still moderately hypertensive (sitting blood pressure is 162/92) despite the prescribed medications of a thiazide diuretic and ACE inhibitor he is taking. The medication list also indicated that the patient was prescribed statin for cholesterol control. Urine dipstix test revealed mild glycosuria (glucose 1+; ketone –ve; RBC –ve; albumin –ve), SG = 1024 Spot blood sugar test showed a reading of 11.7 mmol/L (210mg/dl) PCP: The patient was next seen by Dr Primary. A review of his medical record revealed: Family history: biological father suffered hypercholesterolemia, hypertension. His father suffered first acute myocardial infarction at age of 44 and died from a third attack at age of 57. No family history of DM. No known allergy/intolerance record in his EMR. Lifestyle/social history: Patient was a smoker (12.75 pack year [15 cigarettes per day for 17 years: 15/20 x 17]; current cigarette consumption = 5-10 cigarettes/day). Previous attempts to quit smoking (including participation in quit smoking programs and use of nicotine patches) produced very ineffective results. He tended to smoke more when stressed He was a social drinker (4 standard drinks per week [1 Australian standard drink = 10gm alcohol]). Medical history: patient was diagnosed with hypercholestrolaemia and hypertension 6 years ago. Medication treatment: (Simvastatin 20mg daily; Telmisartan 80mg daily) Patient indicated that he occasionally skipped a dose of the anti-hypertensive medications prescription by his PCP. He admitted that he was relatively stressed by his work and also the recent ill health. He also did not cut down on the amount of daily salt intake as instructed. Dr Primary recorded the patient’s chief complaints, conducted a thorough physical examination which revealed no abnormality of most body systems. Examination of the feet revealed very mild decrease in sensation and temperature of patient’s both feet. Dr Primary explained to the patient that based on his presenting signs and symptoms, the spot urine and blood sugar levels, he might be suffering from Type 2 diabetes and recorded that as a provisional diagnosis in the medical record. The PCP discussed with the patient and created an initial general care plan to manage his health issues before the next visit: Health Concern Difficulty in weight management Health Goal 5-10% (of 98kg) weight loss (milestone: 0.5kg/week) Waist circumference <94cm Non-adherence to dietary salt reduction target Reduction of total dietary sodium intake to =<6g/day Increased CVS risk from smoking Cigarette consumption reduced to 0 per day Care Activity Diet order: low kilojoule (e.g. 5025kJ-6670kJ [1200-1600kcal] /day); low glycaemic index; low saturated fat; high fibre diet Regular exercise: walking (1.5km in 15 min), jogging, riding push bike, or swimming, e.g. for 15-30 min 3 times/week Diet order: low salt diet (total daily salt = 5-6g/day); low sodium foods (<120mg/100g) Patient education: clinic nurse to counsel patient on importance of low salt diet and salt substitution strategies Referral to cardiac rehabilitation nurse to initiate smoking cessation counselling sessions Poor BP control related to possible nonadherence to treatments To determine median BP to guide medication and diet adjustment Anxiety/stress disorder Reduce anxiety/stress level Potential case of Type 2 DM To confirm/rule out that patient has Type 2 DM Re-enrol in smoking cessation program Medication: Varenicline tartrate days 1–3: 0.5 mg daily; days 4–7: increase to 0.5 mg twice daily; then 1 mg twice daily from day 8 to the end of a 12-week treatment course BP monitoring: patient to measure his blood pressure twice daily at home for a week before next follow-up visit Medication education: clinic nurse to initiate medication compliance education sessions Counselling and relaxation therapy: clinic nurse to provide counselling on how to deal with stress and anxiety; recommends relaxation therapies such as mediation, tai chi, etc Review at next follow-up Diagnostic order: Fasting blood glucose Oral glucose tolerance test1 Fasting blood lipids (cholesterol, triglyceride, HDL, LDL) HbA1c PCP reviewed care plan with the patient, and the patient agreed with the goals and planned care activities. Blood pressure measurement: As patient is obese (BMI=33, arm circumference=37.6cm/14.8in), he is advised to use a large adult cuff when measuring his BP He receives instruction from the clinic nurse on how to correctly perform the BP measurement including: rest and relax in seated position for 10 mins2 and correct application of the cuff The patient fasted after dinner on 12 November and went next morning to his preferred path laboratory for blood specimens to be taken for the ordered tests. The results were sent back to the PCP electronically two days later. 1 NOTE – Glucose challenge test is no longer a recommended diagnostic test for Diabetes Mellitus. As of 1 November 2014, the recommended diagnostic tests are: fasting blood glucose and HbA1c (http://www.comlaw.gov.au/Details/F2014L01441/Explanatory%20Statement/Text) 2 Journal of Human Hypertension (2014) 28, 56–61; doi:10.1038/jhh.2013.38; published online 30 May 2013 [Office BP recorded after 10 min is more representative of true BP reading] (http://www.nature.com/jhh/journal/v28/n1/full/jhh201338a.html) At the meanwhile, the patient measured his blood pressure at home twice daily (morning and evening). He recorded on a paper chart given by his PCP: the BP readings, the extremity used, cuff size and position. November, 19 – Follow-up visit The patient: Mr Everyman returns to the PCP clinic in the morning of 19 November for the follow-up consultation. He brings with him the BP observation chart that recorded the week of his blood pressure measurement. Mr Everyman informs Dr Primary that over the past week he had trouble falling asleep, woke up most of the nights in the middle of the night and stayed awake for 1-2 hours. He feels anxious, stressed and his mood has worsened on waking up in the morning and when the day draws towards the evening. He also has mild difficulty in concentrating. He still experienced those signs and symptoms that appeared since 12 November The nurse: Nancy Nightingale measures the patient’s body weight, waist circumference which records a 0.3 kg decrease in weight (98kg on 12 September) with no change in waist circumference. His blood pressure reading is: 168/92 PCP: Dr Primary reviews the patient’s clinical status and records in the EMR with updated signs and symptoms. She reviews the patient’s blood test results: Fasting blood glucose = [10.3 mmol/L]; [(185 mg/dl)] 2 hours post glucose load (75 gm) = [13.9 mmol/L]; [(230mg/dl)]3 The HbA1c level = 7.5% (≥ 6.5% (48 mmol/mol) = cut off for diagnosing diabetes). His fasting lipid profile: Cholesterol = [6.5 mmol/L (reference range3.9 – 5.5)]; [251.4mg/dl]; Triglyceride = [2.9 mmol/L (reference range 0.6 – 2.0)]; [256.9mg/dl]; HDL = [1.32 mmol/L (reference range 0.90 – 1.50)]; [51.0mg/dl] Total cholesterol/HDL ration = [4.9:1 (reference <3.5:1)] Based on the clinical assessment of the patient’s signs and symptoms and the blood results, Dr Primary confirms and informs the patient of the diagnosis of Type 2 Diabetes Mellitus and records the assessment findings in the EMR. She also assesses the patient’s psychological/mood changes symptoms and records the diagnosis of anxiety and depression symptoms (including mood changes, stress and insomnia) related to Type 2 diabetes. Dr Primary reviews the patient’s 1 week blood pressure readings – the readings range from 149/82 to 182/98, the median/average reading being 158/92. The higher readings are recorded in the morning. Upon further questioning of the patient’s medications and diet, the patient tells Dr Primary that he forgets taking his blood pressure tablets 2-3 times per week. But he has cut down on the amount of daily salt intake. Dr Primary explained to the patient that Type 2 Diabetes is a complex problem. It has implications (risks) for his existing cardiovascular comorbidities: hypercholestrolaemia and hypertension. Both 3 No longer used as DM diagnostic test in Australia as of 1 November 2014 (http://www.comlaw.gov.au/Details/F2014L01441/Explanatory%20Statement/Text) conditions and the psychological issues (sleep and mood disturbances) require to be managed carefully. Dr Primary discusses with the patient about oral anti-diabetic drugs and prescribes an extended release biguanides (Metformin/Glucophage: 500mg daily after evening meal) with a plan to review in 2 weeks to titrate the drug dose) She discusses with the patient the benefits of initiating a Type 2 DM care plan. The care plan could be used to effectively monitor and manage a number of health concerns related to the diagnoses, and to coordinate the care with other providers such as diabetic educator, dietitian, etc The patient agrees and a care plan is created. The PCP emphasizes to the importance of adherence to anti-hypertensive medications for blood pressure control and reduction of CVS risks especially with the addition risks arising from the newly diagnosed DM. Type 2 DM and CVS Care Plan: Health Concern Confirmed: Type 2 DM Problem in effective glycaemic control Health Goal and Review Goal/Targets: Medication: Metformin/Glucophage 500mg after evening meal; and review in 2 weeks to titrate drug dose based on BSL results Diet: low kilojoule (e.g. 5025kJ6670kJ [1200-1600kcal] /day); low glycaemic index; low saturated fat; high fibre diet (for review and adjustment by dietitian) Exercise: Regular exercise: walking (1.5km in 15 min), jogging, riding push bike, or swimming, e.g. for 1530 min 3 times/week Referral: to dietitian for diabetic diet plan Medications: Telmisartan 80mg daily Diet: low salt diet (total daily salt = 5-6g/day); low sodium foods (<120mg/100g) Patient education: clinic nurse to provide education on (a) adherence to medications as prescribed (urine frequency will decrease with effective BSL control), (b) importance of reduced salt intake; and their importance in reducing CVS and Neuro-vascular risks BSL: 6–8 mmol/L fasting (108144mg/dl); and 8–10 mmol/L postprandial; (108180mg/dl) HbA1c: ≤7% (range 6.5–7.5) [≤53 mmol/mol (ref range 48– 58)] Increased CVS risks (hypertension, AMI) associated with Type 2 DM and poor BP control (due to non adherence to treatment) Care Activity [Goal/milestone review – average BP shows sustained moderate hypertensive state: 1 week average BP reading being 158/92] Short term goal: reduce BP readings to below 140/90 Long term goal to reduce BP readings to 130/80 (RCAGP Type 2 DM guideline) [US JNC 8 guideline: hypertensive persons 30 - 59 Referral: to community pharmacy for years of age: diastolic goal of less than 90 mmHg]4 Medication: Atorvastatin 40mg/day in the evening (increased from 20mg) Diet: low saturated fat Referral: dietitian for better cholesterol control / lowering diet plan [Goal/milestone review – anxiety/stress worsen with mood and sleep disturbance despite sedative medication] Medication: Lexapro 5 mg daily for 4 weeks Recommend enrol into relaxation therapy/meditation sessions Target: Referral: to psychologist for stress management and cognitive behavioural therapy [Goal/milestone review – 0.3 kg reduction in BW in 1 week; no change in waist circumference] Targets: 5-10% (of 98kg) weight loss (milestone: 0.5kg/week) Waist circumference <94cm [Goal/milestone review – cigarette smoked dropped to 3- Diet order: low kilojoule (e.g. 5025kJ-6670kJ [1200-1600kcal] /day); low glycaemic index; low saturated fat; high fibre diet (for review and adjustment by dietitian) Regular exercise: walking (1.5km in 15 min), jogging, riding push bike, or swimming, e.g. for 15-30 min 3 times/week Referral: to exercise physiology for weight reduction exercise plan Patient education: patient advised to continue with cardiac Persistent [Goal/milestone review – hypercholesterolemia hypercholesterolemia despite prescribed medications & diet] Targets (RACGP 2014 guideline) Worsening anxiety/stress disorder Difficulty in weight management Increased CVS risk from smoking 4 medication management education (not in US) Total cholesterol: <4.0 mmol/L; (<154.5 mg/dl) HDL-C: ≥1.0 mmol/L; (≥38.5mg/dl) LDL-C: ≤2.0 mmol/L5 (≤77.0mg/dl) Non HDL-C: <2.5 mmol/L Triglycerides: <2.0mmol/L; (<177mg/dl) Reduce anxiety/stress Improved sleep at night There is strong evidence to support treating hypertensive persons aged 60 years or older to a BP goal of less than 150/90 mm Hg and hypertensive persons 30 through 59 years of age to a diastolic goal of less than 90 mm Hg; however, there is insufficient evidence in hypertensive persons younger than 60 years for a systolic goal, or in those younger than 30 years for a diastolic goal, so the panel recommends a BP of less than 140/90 mm Hg for those groups based on expert opinion. The same thresholds and goals are recommended for hypertensive adults with diabetes or nondiabetic chronic kidney disease (CKD) as for the general hypertensive population younger than 60 years. [JAMA. 2014;311(5):507-520. doi:10.1001/jama.2013.284427] 5 American College of Cardiology and Circulation 2013 guideline – makes no recommendation for specific LDL and non-HDL targets as there is no evidence of benefit from randomized controlled clinical trials to support treatment to such targets, (Stone NJ, Robinson J, Lichtenstein AH, et al. 2013 ACC/AHA guideline on the treatment of blood cholesterol to reduce atherosclerotic cardiovascular risk in adults: A report of the American College of Cardiology/American Heart Association. J Am Coll Cardiol 2013. Circulation 2013) 6/day] Target: Cigarette consumption reduced to 0 per day rehabilitation nurse for smoking cessation counselling and smoking cessation program Medication: Varenicline tartrate days 1–3: 0.5 mg daily; days 4–7: increase to 0.5 mg twice daily; then 1 mg twice daily from day 8 to the end of a 12-week treatment course Review medication at next follow-up PCP documents in the EMR the plan to review the patient’s hypertension in 2 weeks and decide whether the patient requires a referral to see a cardiologist for blood pressure management. Referral Example referral to dietitian/nutrition services (outside PCP practice) [Referral] Date: 19 November From: Dr Patricia Primary; Address: 111 Any Street, Any Suburb, Any State, Postcode 123456; Phone: (123) 1234 567 Patient: Mr Adam Everyman; Sex: male; Date of birth: 10 August 1962; Age: 52 To: Ms Nutri Deli, Address: 222 Near Street, Near Suburb, Near State, Postcode 12345; Phone (123) 2234 789 Discipline: Nutrition Services Priority: Normal Referral Reason: newly diagnosed Type 2 Diabetes Mellitus patient with blood glucose control, cholesterol and weight control problems Services Requested: (1) nutrition assessment; (2) Develop and coach patient on implementation of a diet plan for diabetic, cholesterol reduction and weight reduction; (3) diet counselling and educate patient on importance of and strategies on effective blood glucose control, cholesterol and weight reduction Supporting information: Medical history: patient has a medical history of hypertension, hypercholesterolaemia, and obesity. He is newly diagnosed with Type 2 DM Social/lifestyle: Current smoker with cigarette consumption approximately 5-10 cigarettes/day Social drinker: consumes approximately 4 standards drinks per week Uses smoking as means to help reduce anxiety/stress and reduce weight Recent Laboratory test (reported on 17 November) results showed: Lipid Profile: Cholesterol = [6.5 mmol/L (reference range3.9 – 5.5)]; [251.4mg/dl] Triglyceride = [2.9 mmol/L (reference range 0.6 – 2.0)]; [256.9mg/dl] HDL = [1.32 mmol/L (reference range 0.90 – 1.50)]; [51.0mg/dl] Total cholesterol/HDL ration = [4.9:1 (reference <3.5:1)] Glucose Challenge Test: Fasting blood glucose = [10.3 mmol/L]; [(185 mg/dl)] 2 hours post glucose load (75 gm) = [13.9 mmol/L]; [(230mg/dl)] (see footnote 1) The HbA1c level = 7.5% Physical Measurements: Height (5.6 feet or 170 cm) Weight (214.9 pounds or 97.7 kg; fully clothed): reduced 0.3kg (0.7 lb) from a week before BMI (33) Waist circumference(102.5 cm; 40.35 in): >50% of his height Blood Pressure: 168/92 (measured at clinic on 19 November)