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Or…maybe I should have paid more attention in that stats class! Kellee Thorburn McCrory, MPH National Resource Center for Family Centered Practice University of Iowa Brad McDowell, PhD Holden Comprehensive Cancer Center University of Iowa Learning Objectives Knowledge of common sources for valid and reliable cancer–related data Understanding of key statistical concepts State Health Registry of Iowa (SHRI) Iowa Cancer Registry Performs cancer surveillance across the entire state of Iowa Population-based cancer registry - documents every cancer case in Iowa Supported by the NCI since 1973 Housed at the University of Iowa Web address: http://www.public-health.uiowa.edu/shri/ (select Iowa Cancer Data) How do they do it? Cancer patient data are collected from hospitals, pathology laboratories, cancer treatment centers, and Iowa death certificates. The State Health Registry (SHRI) also collects data from targeted physicians that send their pathology specimens to out-of-state laboratories. Data are collected by 21 field representatives who are responsible for case finding in their coverage areas * SEER Registry The SEER Program of the National Cancer Institute works to provide information on cancer statistics in an effort to reduce the burden of cancer among the U.S. population SEER collects data on cancer cases from various locations and sources throughout the United States. Data collection began in 1973 with a limited amount of registries and continues to expand to include even more areas and demographics today. There are currently 17 SEER sites and this represents 28% of the U.S. population Web address: http://seer.cancer.gov/ *SEER: Surveillance, Epidemiology, and End Results The Iowa Health Fact Book Just released the 2011 version of the factbook Biennial publication produced through a collaborative effort between The University of Iowa College of Public Health and the Iowa Department of Public Health. Info on each of Iowa’s 99 counties and includes data on: o disease incidence and mortality, o health and social behaviors, health resources, o and environmental factors. http://www.public-health.uiowa.edu/factbook/ National Cancer Institute (NCI) Good for : common cancer site information all cancer type information search for clinical trials research and funding opportunities, and; research and funding information State cancer profiles (http://statecancerprofiles.cancer.gov/) http://www.cancer.gov/ Cancer Control P.L.A.N.E.T. The Cancer Control P.L.A.N.E.T. portal provides access to Web-based resources that can assist in: Assessing the cancer and/or risk factor burden within a given state. Identifying potential partner organizations that may already be working with high-risk populations. Understanding the current research findings and recommendations. Accessing and downloading evidence-based programs and products. Finding guidelines for planning and evaluation. http://cancercontrolplanet.cancer.gov/ Iowa Cancer maps You can view rates of incidence, late-stage, and mortality for: breast, colorectal, lung and prostate cancers. Some of these maps are also available for cervical and Non-Hodgkin's Lymphoma cancers Data is from 2000-2005; there are currently new maps in production for colorectal cancer. http://www.uiowa.edu/iowacancermaps American Cancer Society (ACS) Access to local resources Wide variety of resources and data about cancer Easy to use Facts and Figures Publication http://www.cancer.org Interpreting Cancer Data Making Comparisons Statistical Significance p < .05 Relative Rate Ratios Data Suppression Other sites you might find useful These sites aggregate data from other sites or sources CDC National Comprehensive Cancer Control Program Comprehensive cancer control (CCC) is a process through Which communities and partner organizations pool resources to reduce the burden of cancer. These combined efforts help to: Reduce cancer risk. Find cancers earlier. Improve treatments. Increase the number of people who survive cancer. Good for toolkits; finding out what other states are doing around cancer control http://www.cdc.gov/cancer/ncccp/ Iowa Cancer Consortium Your one-stop site for everything Iowa! Access to free cancer educational materials Interactive “resources by county” map Up-to-date information about the Iowa Cancer Consortium and its activities. http://www.canceriowa.org/