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Long Term Conditions PROGRAMME BOARD – CITY AND HACKNEY CCG Examples of long term What do they have in conditions? common? What is a long term condition? “A Long Term Condition is defined as a condition that cannot, at present be cured; but can be controlled by medication and other therapies. Examples of Long Term Conditions are diabetes, heart disease and chronic obstructive pulmonary disease. There are 15.4 million people living with a long-term condition in England. Numbers are expected to rise due to an aging population and unhealthy lifestyle choices”. Department of Health In City and Hackney we have approximately 70,000 people with a long term condition Why does it matter? Living with a long-term condition can have wide ranging impacts including: family roles relationships ability to work education accommodation finance and others…. Which conditions do we cover? Diabetes COPD Hypertension Asthma Coronary Heart Disease Sickle cell disease Heart Failure Epilepsy Atrial Fibrillation Parkinson’s disease Stroke Multiple Sclerosis, Motor Neurone Disease, other neurological conditions Peripheral arterial disease Chronic Kidney Disease Learning Disabilities Cross over with other boards e.g. depression / dementia / cancer Clinical leads and sub-boards….. Area Clinical Lead Meetings Diabetes Dr. Kathleen Wenaden Diabetes Ops and Local Strategic Advisory Group (each 3X / year) Cardiac and stroke Dr. Chris Carvalho Cardiac LIT and stroke board each 3X /year Respiratory Dr. Meena Krishnamurthy Respiratory board 3X /year Learning Disabilities Vacant Regular joint LD commissioning board (with LBH) bi-monthly Sickle Cell Dr. Jenny Darkwah Regular commissioner / provider meetings Social Prescribing Dr. Patrick Hutt Steering group quarterly Renal New area – being covered by Dr. Clare Highton Steering group set up Overall clinical lead for LTC board is Dr. Clare Highton Patient and Public Involvement 2 PPI reps on the LTC board with a wide range of experience and skills between them Consultation with PPI committee on specific plans such as commissioning intentions or service specification Wider consultation with members of the public e.g. Commissioning intentions event Consultation on specific issues with specific groups e.g. stroke unit review Work with Healthwatch e.g. sickle cell LTC Board – overall aim “To help people with long term conditions feel more supported to manage their own condition” Why? Because….. People with long term conditions account for: 50% of all GP appointments 64% of outpatient appointments 70% of all inpatient bed days In total, around 70% of the total health and care spend in England is attributed to caring for people with long term conditions This means that 30% of the population account for 70% of the spend More importantly….. It improves quality of life and reduces complications of disease and ill health Patient.co.uk say: “Research suggests that the people who do best are those who take responsibility for managing their own long-term condition in partnership with their doctors” How do we work towards our aim? Long Term Conditions locally enhanced service – ask GPs in City and Hackney to carry out a range of activities to provide additional support to people with long term conditions such as: Case finding Annual reviews / health checks Controlling risk factors such as blood pressure and high cholesterol – very important in extending years of healthy life and preventing complications of disease Additional consultation time for people with multiple problems Referring to services such as smoking cessation and exercise on referral Commissioning support services such as TLC stroke care, Ability Bow, community heart failure nursing and Acute COPD Early Response Service (ACERS) Commissioning a “step-down” unit for people with brain injury to transition from a hospital environment to home by learning more community skills and independence in daily living How do we work towards our aim? (2) Non-recurrent funding and innovation grants such as Epilepsy Society – self-management course Additional support for sickle cell team – psychology, social care liaison, and a 24 hour telephone helpline Additional resources for the diabetes team to help people with foot problems, young adults with diabetes and people not engaging with health care Funding training for local health care staff to learn how to deliver the Certificate in Diabetes Care training course to other local staff An Asthma specialist nurse working with patients with brittle asthma at high risk of hospital admission Cardiac rehabilitation in the community and a new rapid access service for people with Atrial Fibrillation Long Term Conditions Programme Board Meets every other month including clinical leads, patient representatives, hospital representatives, Public Health (London Borough of Hackney), finance, prescribing, and outcomes lead Receives reports from sub-boards on their work Reviews bids for non-recurrent funding; audits in clinical areas; national guidelines such as NICE; service specifications and performance metrics; budget review; risk register; conflicts of interest Presentations on research or locally applicable services Partnership working Across programme boards e.g. prescribing, Mental Health and planned care We work closely with colleagues in the London Borough of Hackney on Public Health issues (prevention of disease and healthy lifestyles), Learning Disabilities, Continuing Health Care for people requiring ongoing care from the NHS and social prescribing Voluntary sector organisations including HCVS; Sickle Cell Society, Epilepsy society; TLC stroke services, Ability Bow and others