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Proposal for ROCR Approval
Type of Collection?
See Note
1. Is this: See Note
ROCR
Enter ROCR reference number:
2. Title of proposed
collection
ROCR/OR/0018/FT6/004MAND
National Cancer Waiting Times Monitoring Dataset
3. Contact Details: See Note
Personal Details
Paul McDonnell
Department
Organisation
Analytical Services
NHS England
Email
[email protected]
Tel Number
0113 825 0572
4. What is being collected, and what is
the purpose of the collection?
See Note
The National Cancer Waiting Times Monitoring Dataset (NCWTM
•Monitor timed pathways of care for cancer patients; •Manage
•Report against the requirements of Everyone Counts: Planning
cancer services within the NHS Constitution (The Two week Wa
planning for cancer services. The full specification and a comple
http://www.datadictionary.nhs.uk/data_dictionary/messages/c
4a. Why is the information necessary
and not just useful?
These data are required to monitor commitments to patients se
No changes to the live dataset have been implemented since th
5. What has changed since this
collection was last approved, and what
is the overall effect of the changes?
the dataset (Amd 23/2011) which improved the availabile code
introduced from July 2012, by offering greater granularity will r
also update the dataset to support future implementation of XM
slight reduction in burden levels.
6. What is the latest date for approval?
See Note
02/12/2013
7. Which organisation will be collecting
this information?
8. List top three Keywords
Health and Social Care Information Centre
1st Keyword:
2nd Keyword:
3rd Keyword:
9. What is the start date for this
proposed collection?
See Note
01/05/2012
9a. Please state when you would like
the ROCR licence to run from.
18/11/2013
10. What is the finish date for this
proposed collection? Please also include
the date if the collection is ongoing.
01/06/2016
See Note
The cancer waiting times commitments introduced by the NHS
Outcomes: A Strategy for Cancer (2011). They were identified
therefore supports the monitoring of the following indicators wi
11. What Operating Framework
commitment does the proposal
support?
See Note
outpatient appointment for patients referred urgently with susp
treatment for all cancers; •the maximum two month wait from
appointment for patients referred urgently with breast symptom
where the treatment is surgery; •the maximum 31-day wait fo
wait for subsequent treatment where the treatment is radiothe
all cancers; and •the maximum 62-day wait following a consult
Waiting Times Monitoring Dataset (NCWTMDS) is also accessed
support the wider cancer programme and aspirations set out in
12. Who supports this proposal? See
Note
Minister:
PS (PH)
Group Director:
na
Policy Lead/Section Head support from:
Matt Fagg
Senior Civil Servant, to whom correspondence about the collection can be addressed:
(give name, organisation, section, telephone and email address)
Name
Organisation
Matt Fagg
NHS England
Section
Telephone
Email
Reducing Premature Mortality
07867 537703
[email protected]
Has evidence of Gateway Support: (eg date, person, Gateway number if
applicable)
No
Proposal for ROCR Approval
ROCR Contact Details
13. Burden calculation?
See Note
Frequency
Monthly
See Note
Organisational Type
Acute Trust Foundation
Number of organisations
102
Occupational Group
See Note
Days Hours Minutes
Burden
Days
Burden
Years
Annual
Burden £
Senior Managers
0
0
0
0
0
0
Managers
0
2
45
448.8
2.24
222609.29
Clerical & Administrative
1
2
35
1645.6
8.23
374604.38
Maintenance & Works
0
0
0
0
0
0
Healthcare Assistants and other support
0
staff
0
0
0
0
0
Healthcare scientists
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
0
Consultants
0
0
0
0
0
0
GPs
0
0
0
0
0
0
Hospital Doctors
0
0
0
0
0
0
CEO
0
0
0
0
0
0
Directors
0
0
0
0
0
0
Total
1
4
80
2094.4
10.47
597213.67
All Nurses, Midwives and health visiting
staff
Scientific, therapeutic & technical staff
(ST&T) (Inc. AHP's)
See Note
Organisational Type
Acute Non Foundation Trust
Number of organisations
64
Occupational Group
See Note
Days Hours Minutes
Burden
Days
Burden
Years
Annual
Burden £
Senior Managers
0
0
0
0
0
0
Managers
0
2
45
281.6
1.41
139676.42
Clerical & Administrative
1
2
35
1032.53
5.16
235045.89
Maintenance & Works
0
0
0
0
0
0
Healthcare Assistants and other support
0
staff
0
0
0
0
0
Healthcare scientists
0
0
0
0
0
0
All Nurses, Midwives and health visiting
0
staff
0
0
0
0
0
Scientific, therapeutic & technical staff
(ST&T) (Inc. AHP's)
0
0
0
0
0
0
Consultants
0
0
0
0
0
0
GPs
0
0
0
0
0
0
Hospital Doctors
0
0
0
0
0
0
CEO
0
0
0
0
0
0
Directors
0
0
0
0
0
0
Total
1
4
80
1314.13
6.57
374722.3
Insert another Organisation type
Grand Total Days
3408.53
Grand Total Years Grand Total Burden
17.04
971935.98
The burden for individual organisations is reduced due to less
need for free text entry. The number of organisations has
reduced overall - the last application included 7 PCTs.
Please state if this is an
increase or decrease in
burden.
See Note
Organisation numbers are as at Q1 2013/14. The burden of
collecting from private providers, not documented above as
there is no category to select on the drop downs, is unchanged
from the previous application. Burden calculations were based
on WTE days per anumn (20 per acute provider) and have
been converted into this format.
Are you planning on
collecting from Independent
and Voluntary
Sector Organisations?
Yes
Proposal for ROCR Approval
ROCR Contact Details
14. If sampling of organisations is not
being used please state why.
See Note
Sampling was not considered appropriate as these
data need to be complete to be used for service
planning and management and for use by cancer
registries for surveillance and historical trend and/or
population based analyses of cancer incidence and
survival.
15. Are the estimates above and the
design of the collection supported by
any pilots, consultation exercises, trials
or other tests of the proposal? If so,
please give details.
See Note
As detailed in the previous application to license these
estimates have been derived from discussions with
organisations and users currently entering data into
the Cancer Waiting Times Database.
16. If your proposal results in an
increase to the ongoing burden (as
indicated in Q13 above), please
indicate what measures you propose to
reduce the burden elsewhere to result
in a net zero change or decrease.
See Note
This ongoing continuation of this collection is not an
increase in the burden placed on the NHS.
Additionally, it is hoped that reductions in the burden
of data collection for cancer might be reduced by:
•The proposed changes to the recording of patient
choice that are intended to reduce the need for freetest reporting; and •Using this dataflow to form part of
the COSD at cancer registries, thereby removing the
need for duplication in collection.
17. What collection method do you
propose to use?
See Note
Web based collection
Email
Extract from existing NHS systems
Other electronic (e.g. spreadsheet or disk)
Unify2
Input to Database
Database extract
Telephone
Paper
Omnibus collection See Note
Other (give details)
17a. If other, please state:
Extracts from local NHS systems (including PAS) and
Multi-Disciplinary Team systems will be transmitted in
CSV format to the Cancer waiting Times Database, a
central secure web based system administered by NHS
Connecting for Health.
18. For Non Foundation Trusts is the
collection statutory, mandatory, part
mandatory, voluntary or not required?
See Note
MANDATORY
18a. For Foundation Trusts is the
collection statutory, mandatory, part
mandatory, voluntary or not required?
See Note
MANDATORY
19. Which of the following equalities
dimensions are included in the
collection?
See Note
Age/Date of Birth
Gender
Ethnicity (NHS standard 16 + 1)
Sexual Orientation
Faith
Disability
20. Of those you propose to include in
Q19, please give details of the
definitions you intend to use for each?
21. Is this request accompanied by a
No statement accompanies this request.
position statement from the NHS Data
Model & Dictionary Service and the
Information Standards Board for Health
and Social Care (ISB HaSC)? If
required, please contact Data
Standards - [email protected], or
ISB [email protected]
See Note
22. Is the information to be collected
intended for publication or other
release? If not, please give reasons
why.
See Note
Data collected via this mechanism are used to produce
official statistics on waiting times for suspected and
diagnosed cancer patients. Many of these data sets
have 'national statistics' designation. All are available
for reference at:
www.england.nhs.uk/statistics/statistical-workarea/career-waiting-times/
23. If the answer to Q22 was yes,
All official statistics dervied from these data are
please state your publication or release
published on the NHS England website in accordance
strategy.
with the UK Statistics Authority Code of Practice for
See Note
Official Statistics. In addition to these public releases
the Cancer Waiting Times Database uses these data to
automatically generate management reports for
providers, commissioners, Strategic Clinical
Networks,Regional offices and Area Teams.
24. Will the data collection generate
Cancer waiting times statistics frequently generate
any media interest, and if so, what
media interest. Full briefing to Ministers and medial
measures do you have in place to deal
handling guidance for Departmental staff are produced
with it?
and disseminated in line with the pre-release access
restrictions set out in the UK Statistics Authority Code
of Practice for Official Statistics.
25. Does the proposal have any impact
on Social Services?
See Note
25a. If the answer to Q25 was yes,
please give reason.
No
26. Do you intend to collect
information from NHS Foundation
Trusts?
See Note
Please attach documents that support
your ROCR application. Without a list of
the questions to be asked we will not
be able to process your application
Yes
Insert item
Proposal for ROCR Approval
ROCR Contact Det
27. If the answer to question Data are required from Foundation Trusts in order to monitor the 'Everyo
26 is yes, state why?
Counts: Planning for Patients' and the right to a two-week wait set out in
the NHS Constitution. To obtain comparative data on performance, all
providers of cancer services have to submit data. In addition to this patie
pathways may include both Foundation and non-Foundation Trusts due to
the complex nature of certain diagnostic processes and the specialised
nature of cancer treatments.
28. Is the information or any Yes, the complete dataset is currently collected from Foundation Trusts.
part of it already collected? If
This should be continued to allow monitoring of cancer services for the
so please state why this
complete. At the current time this is vital because: •these data and the
should be collected again.
patient pathways they are used to manage and monitor form part of
Monitor’s compliance framework; •patients often cross organisational
boundaries meaning that Foundation Trust support is required to monitor
the whole patient pathway; •the two week wait standard is in the NHS
constitution as an access right, these data are therefore required by
Foundation Trusts to support the management of any request for redress
•the cancer waiting times commitments are in the 'Everyone Counts:
Planning for Patients', this covers both Foundation Trusts and those
organisations that commission services from them; and •cancer registries
use these data, which are part of the current cancer registration dataset (
be replaced by COSD) as a secondary source for notifications of cancer,
these organisations require complete population based datasets to make
this viable.
29. Please explain why you
propose the frequency of
collection as stated in
Question 13.
These data are collected monthly to inform service management,
monitoring and performance management of local SLAs, with a quarterly
extract cycle (from the Cancer Waiting Times Database) used for
publication. Only quarterly data are published as national statistics, to
ensure a large enough sample size for meaningful analysis and to retain
patient confidentiality However, this approach is being reviewed with a vi
to moving to monthly publications, we anticipate measures can be put in
place to guard against disclosure in monthly publications. To support the
management of cancer services and the production of official statistics
these data are to be complete and validated on the central system (the
cancer waiting times database ) by the 25th working day after the end of
each month (or quarter). Full details of the required deadline dates are
published for the NHS at:
http:\\nww.hscic.gov.uk/nhais/cancerwaiting/prop-reports
30. If you are proposing to
collect from all Foundation
Trusts, please give reasons
why a sample cannot be
used?
A sample cannot be used as this data collection is used to support
monitoring over a period of time. To do this regular, periodic collections a
needed in order to monitor the performance of cancer services. In additio
to this, the patient records collected within the Cancer Waiting Times
Database are reported to commissioners (to monitor contracts and SLAs)
and passed to Cancer Registries to support the collection and production
National Statistics.
31. Can the proposed
information be provided by
commissioners rather than
directly from Foundation
Trusts? If not, why not?
These data cannot be collected from commissioners as not all of the
information relating to treatment modalities and diagnosis is available to
commissioners in a timely manner. In addition to this, the aim of the
Cancer Waiting Times Database is to provide a portal, by which NHS
Providers can supply these data to both Cancer Registries and
Commissioners.
32. Does all the data
requested fall into one or
more of these categories?
See Note
a. Vital for Patient Care
b. Essential for the flow of funds to
NHSFTs
c. The requesting body has a statutory
duty to provide the information
d. Very High ministerial profile
See Note
e. Necessary for Care Quality Commission
assessment
f. Directly underpins delivery of a target
(State which).