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Proposal for ROCR Approval Type of Collection? See Note 1. Is this: See Note ROCR Enter ROCR reference number: 2. Title of proposed collection ROCR/OR/0018/FT6/004MAND National Cancer Waiting Times Monitoring Dataset 3. Contact Details: See Note Personal Details Paul McDonnell Department Organisation Analytical Services NHS England Email [email protected] Tel Number 0113 825 0572 4. What is being collected, and what is the purpose of the collection? See Note The National Cancer Waiting Times Monitoring Dataset (NCWTM •Monitor timed pathways of care for cancer patients; •Manage •Report against the requirements of Everyone Counts: Planning cancer services within the NHS Constitution (The Two week Wa planning for cancer services. The full specification and a comple http://www.datadictionary.nhs.uk/data_dictionary/messages/c 4a. Why is the information necessary and not just useful? These data are required to monitor commitments to patients se No changes to the live dataset have been implemented since th 5. What has changed since this collection was last approved, and what is the overall effect of the changes? the dataset (Amd 23/2011) which improved the availabile code introduced from July 2012, by offering greater granularity will r also update the dataset to support future implementation of XM slight reduction in burden levels. 6. What is the latest date for approval? See Note 02/12/2013 7. Which organisation will be collecting this information? 8. List top three Keywords Health and Social Care Information Centre 1st Keyword: 2nd Keyword: 3rd Keyword: 9. What is the start date for this proposed collection? See Note 01/05/2012 9a. Please state when you would like the ROCR licence to run from. 18/11/2013 10. What is the finish date for this proposed collection? Please also include the date if the collection is ongoing. 01/06/2016 See Note The cancer waiting times commitments introduced by the NHS Outcomes: A Strategy for Cancer (2011). They were identified therefore supports the monitoring of the following indicators wi 11. What Operating Framework commitment does the proposal support? See Note outpatient appointment for patients referred urgently with susp treatment for all cancers; •the maximum two month wait from appointment for patients referred urgently with breast symptom where the treatment is surgery; •the maximum 31-day wait fo wait for subsequent treatment where the treatment is radiothe all cancers; and •the maximum 62-day wait following a consult Waiting Times Monitoring Dataset (NCWTMDS) is also accessed support the wider cancer programme and aspirations set out in 12. Who supports this proposal? See Note Minister: PS (PH) Group Director: na Policy Lead/Section Head support from: Matt Fagg Senior Civil Servant, to whom correspondence about the collection can be addressed: (give name, organisation, section, telephone and email address) Name Organisation Matt Fagg NHS England Section Telephone Email Reducing Premature Mortality 07867 537703 [email protected] Has evidence of Gateway Support: (eg date, person, Gateway number if applicable) No Proposal for ROCR Approval ROCR Contact Details 13. Burden calculation? See Note Frequency Monthly See Note Organisational Type Acute Trust Foundation Number of organisations 102 Occupational Group See Note Days Hours Minutes Burden Days Burden Years Annual Burden £ Senior Managers 0 0 0 0 0 0 Managers 0 2 45 448.8 2.24 222609.29 Clerical & Administrative 1 2 35 1645.6 8.23 374604.38 Maintenance & Works 0 0 0 0 0 0 Healthcare Assistants and other support 0 staff 0 0 0 0 0 Healthcare scientists 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Consultants 0 0 0 0 0 0 GPs 0 0 0 0 0 0 Hospital Doctors 0 0 0 0 0 0 CEO 0 0 0 0 0 0 Directors 0 0 0 0 0 0 Total 1 4 80 2094.4 10.47 597213.67 All Nurses, Midwives and health visiting staff Scientific, therapeutic & technical staff (ST&T) (Inc. AHP's) See Note Organisational Type Acute Non Foundation Trust Number of organisations 64 Occupational Group See Note Days Hours Minutes Burden Days Burden Years Annual Burden £ Senior Managers 0 0 0 0 0 0 Managers 0 2 45 281.6 1.41 139676.42 Clerical & Administrative 1 2 35 1032.53 5.16 235045.89 Maintenance & Works 0 0 0 0 0 0 Healthcare Assistants and other support 0 staff 0 0 0 0 0 Healthcare scientists 0 0 0 0 0 0 All Nurses, Midwives and health visiting 0 staff 0 0 0 0 0 Scientific, therapeutic & technical staff (ST&T) (Inc. AHP's) 0 0 0 0 0 0 Consultants 0 0 0 0 0 0 GPs 0 0 0 0 0 0 Hospital Doctors 0 0 0 0 0 0 CEO 0 0 0 0 0 0 Directors 0 0 0 0 0 0 Total 1 4 80 1314.13 6.57 374722.3 Insert another Organisation type Grand Total Days 3408.53 Grand Total Years Grand Total Burden 17.04 971935.98 The burden for individual organisations is reduced due to less need for free text entry. The number of organisations has reduced overall - the last application included 7 PCTs. Please state if this is an increase or decrease in burden. See Note Organisation numbers are as at Q1 2013/14. The burden of collecting from private providers, not documented above as there is no category to select on the drop downs, is unchanged from the previous application. Burden calculations were based on WTE days per anumn (20 per acute provider) and have been converted into this format. Are you planning on collecting from Independent and Voluntary Sector Organisations? Yes Proposal for ROCR Approval ROCR Contact Details 14. If sampling of organisations is not being used please state why. See Note Sampling was not considered appropriate as these data need to be complete to be used for service planning and management and for use by cancer registries for surveillance and historical trend and/or population based analyses of cancer incidence and survival. 15. Are the estimates above and the design of the collection supported by any pilots, consultation exercises, trials or other tests of the proposal? If so, please give details. See Note As detailed in the previous application to license these estimates have been derived from discussions with organisations and users currently entering data into the Cancer Waiting Times Database. 16. If your proposal results in an increase to the ongoing burden (as indicated in Q13 above), please indicate what measures you propose to reduce the burden elsewhere to result in a net zero change or decrease. See Note This ongoing continuation of this collection is not an increase in the burden placed on the NHS. Additionally, it is hoped that reductions in the burden of data collection for cancer might be reduced by: •The proposed changes to the recording of patient choice that are intended to reduce the need for freetest reporting; and •Using this dataflow to form part of the COSD at cancer registries, thereby removing the need for duplication in collection. 17. What collection method do you propose to use? See Note Web based collection Email Extract from existing NHS systems Other electronic (e.g. spreadsheet or disk) Unify2 Input to Database Database extract Telephone Paper Omnibus collection See Note Other (give details) 17a. If other, please state: Extracts from local NHS systems (including PAS) and Multi-Disciplinary Team systems will be transmitted in CSV format to the Cancer waiting Times Database, a central secure web based system administered by NHS Connecting for Health. 18. For Non Foundation Trusts is the collection statutory, mandatory, part mandatory, voluntary or not required? See Note MANDATORY 18a. For Foundation Trusts is the collection statutory, mandatory, part mandatory, voluntary or not required? See Note MANDATORY 19. Which of the following equalities dimensions are included in the collection? See Note Age/Date of Birth Gender Ethnicity (NHS standard 16 + 1) Sexual Orientation Faith Disability 20. Of those you propose to include in Q19, please give details of the definitions you intend to use for each? 21. Is this request accompanied by a No statement accompanies this request. position statement from the NHS Data Model & Dictionary Service and the Information Standards Board for Health and Social Care (ISB HaSC)? If required, please contact Data Standards - [email protected], or ISB [email protected] See Note 22. Is the information to be collected intended for publication or other release? If not, please give reasons why. See Note Data collected via this mechanism are used to produce official statistics on waiting times for suspected and diagnosed cancer patients. Many of these data sets have 'national statistics' designation. All are available for reference at: www.england.nhs.uk/statistics/statistical-workarea/career-waiting-times/ 23. If the answer to Q22 was yes, All official statistics dervied from these data are please state your publication or release published on the NHS England website in accordance strategy. with the UK Statistics Authority Code of Practice for See Note Official Statistics. In addition to these public releases the Cancer Waiting Times Database uses these data to automatically generate management reports for providers, commissioners, Strategic Clinical Networks,Regional offices and Area Teams. 24. Will the data collection generate Cancer waiting times statistics frequently generate any media interest, and if so, what media interest. Full briefing to Ministers and medial measures do you have in place to deal handling guidance for Departmental staff are produced with it? and disseminated in line with the pre-release access restrictions set out in the UK Statistics Authority Code of Practice for Official Statistics. 25. Does the proposal have any impact on Social Services? See Note 25a. If the answer to Q25 was yes, please give reason. No 26. Do you intend to collect information from NHS Foundation Trusts? See Note Please attach documents that support your ROCR application. Without a list of the questions to be asked we will not be able to process your application Yes Insert item Proposal for ROCR Approval ROCR Contact Det 27. If the answer to question Data are required from Foundation Trusts in order to monitor the 'Everyo 26 is yes, state why? Counts: Planning for Patients' and the right to a two-week wait set out in the NHS Constitution. To obtain comparative data on performance, all providers of cancer services have to submit data. In addition to this patie pathways may include both Foundation and non-Foundation Trusts due to the complex nature of certain diagnostic processes and the specialised nature of cancer treatments. 28. Is the information or any Yes, the complete dataset is currently collected from Foundation Trusts. part of it already collected? If This should be continued to allow monitoring of cancer services for the so please state why this complete. At the current time this is vital because: •these data and the should be collected again. patient pathways they are used to manage and monitor form part of Monitor’s compliance framework; •patients often cross organisational boundaries meaning that Foundation Trust support is required to monitor the whole patient pathway; •the two week wait standard is in the NHS constitution as an access right, these data are therefore required by Foundation Trusts to support the management of any request for redress •the cancer waiting times commitments are in the 'Everyone Counts: Planning for Patients', this covers both Foundation Trusts and those organisations that commission services from them; and •cancer registries use these data, which are part of the current cancer registration dataset ( be replaced by COSD) as a secondary source for notifications of cancer, these organisations require complete population based datasets to make this viable. 29. Please explain why you propose the frequency of collection as stated in Question 13. These data are collected monthly to inform service management, monitoring and performance management of local SLAs, with a quarterly extract cycle (from the Cancer Waiting Times Database) used for publication. Only quarterly data are published as national statistics, to ensure a large enough sample size for meaningful analysis and to retain patient confidentiality However, this approach is being reviewed with a vi to moving to monthly publications, we anticipate measures can be put in place to guard against disclosure in monthly publications. To support the management of cancer services and the production of official statistics these data are to be complete and validated on the central system (the cancer waiting times database ) by the 25th working day after the end of each month (or quarter). Full details of the required deadline dates are published for the NHS at: http:\\nww.hscic.gov.uk/nhais/cancerwaiting/prop-reports 30. If you are proposing to collect from all Foundation Trusts, please give reasons why a sample cannot be used? A sample cannot be used as this data collection is used to support monitoring over a period of time. To do this regular, periodic collections a needed in order to monitor the performance of cancer services. In additio to this, the patient records collected within the Cancer Waiting Times Database are reported to commissioners (to monitor contracts and SLAs) and passed to Cancer Registries to support the collection and production National Statistics. 31. Can the proposed information be provided by commissioners rather than directly from Foundation Trusts? If not, why not? These data cannot be collected from commissioners as not all of the information relating to treatment modalities and diagnosis is available to commissioners in a timely manner. In addition to this, the aim of the Cancer Waiting Times Database is to provide a portal, by which NHS Providers can supply these data to both Cancer Registries and Commissioners. 32. Does all the data requested fall into one or more of these categories? See Note a. Vital for Patient Care b. Essential for the flow of funds to NHSFTs c. The requesting body has a statutory duty to provide the information d. Very High ministerial profile See Note e. Necessary for Care Quality Commission assessment f. Directly underpins delivery of a target (State which).