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CANCER: PAEDIATRIC AND YOUNG ADULT May 2010 This bulletin is produced every two months and relates to both cancer and the young adult and paediatric oncology, and should be of interest to staff working in this area. Topics covered include symptom management, screening/pathology/staging, psychological and survivorship issues. . Many of the following articles are available online via the NHS Scotland eLibrary. Please use the links where provided and your ATHENS password. A complete list of available online journals and registration for ATHENS can be found at http://www.knowledge.scot.nhs.uk/home.aspx If the article you require is not available via the NHS Scotland e-Library and you would like to request a print copy, please submit your request online at www.gglss.scot.nhs.uk This bulletin contains a selection of material gathered from a search of the evidence base, and is not intended to be comprehensive. Professional judgment should be exercised when appraising the material. The Library takes no responsibility for the wording, content and accuracy of the information supplied, which has been extracted in good faith from reputable sources. NHSGGC is not responsible for the content of external internet sites. Contents: Communication and Decision Making ……………………………………………………………….2 Prognosis, Risk Factors and Incidence ……………………………………………………………. 2 Psychological Issues …………………………………………………………………………………..3 Screening/Pathology/Staging/Biomarkers …………………………………………………………..3 Survivorship Issues and Quality of Life ………………………………………………………………4 Symptom Management ……………………………………………………………………………… 5 Therapies ………………………………………………………………………………………………..5 Working with Paediatric and Young Adult Patients …………………………………………………6 Compiled by: Alison McEwan Assistant Librarian Level 0, Education Suite, Beatson West of Scotland Cancer Centre, 1053, Great Western Road, Glasgow G12 0YN 0141 3017283, [email protected] Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 1 Communication and Decision Making Berg, S.L. (2010). Reasons for participation in optional pharmacokinetic studies in children with cancer: A Children’s Oncology Group phase 1 consortium study. Pediatric Blood and Cancer. 55(1): 119-122. De Vries, M. (2010). Pediatric oncologists’ attitudes towards involving adolescents in decision-making concerning research participation. Pediatric Blood and Cancer. 55(1): 123128. Frazier, L. (2010). Decision analysis to compare treatment strategies for Stage I/favourable histology Wilms tumor. Pediatric Blood and Cancer. 54(7): 879-884. Hazen, R.A. (2010). A feasibility trial of a video intervention to improve informed consent for parents of children with leukaemia. Pediatric Blood and Cancer. 55(1): 113-118. Kars, M.C. (2010). Factors influencing parental readiness to let their child with cancer die. Pediatric Blood and Cancer. 54(7): 1000-1008. Liem, R.I. (2010). Parental attitudes toward research participation in pediatric sickle cell disease. Pediatric Blood and Cancer. 55(1): 129-133. Prognosis, Risk Factors and Incidence Ahmed, H.U. (2010). Testicular and paratesticular tumours in the prepubertal population. Lancet Oncology. 11(5): 476-483. Barr, R.D. (2010). Imatinib mesylate in children and adolescents with cancer. Pediatric Blood and Cancer. 55(1): 18-25. Brennan, B. & Stevens, M. (2010). Synovial sarcoma in childhood and adolescence: a retrospective series of 77 patients registered by the Children’s Cancer and Leukaemia Group between 1991 and 2006. Pediatric Blood and Cancer. 55(1): 85-90. Demir, A. (2010). Thoracic neuroblastic tumors in childhood. Pediatric Blood and Cancer. 54(7): 885-889. D'Orazio, J. (2010). Inherited Cancer Syndromes in Children and Young Adults. Journal of Pediatric Hematology/Oncology. 32(3):195-228. Ginsberg, J. P., Carlson, C. A. & Lin, K. (2010) An Experimental Protocol for Fertility Preservation in Prepubertal Boys Recently Diagnosed With Cancer: A Report of Acceptability and Safety. Obstetrical & Gynecological Survey. 65(4):238-239. Murray, M.J. & Nicholson, J.C. (2010). Germ cell tumours in children and adolescents. Paediatrics and Child Health. 20(3): 109-116. Tabori, U. & Baskin, B. (2010). Universal poor survival in children with Medulloblastoma Harboring Somatic TP53 Mutations. Journal of Clinical Oncology. 28(2): 1345-1350. Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 2 Psychological Issues Clinton-McHarg, T. (2010). Measuring the psychosocial health of adolescent and young adult (AYA) cancer survivors: a critical review. Health & Quality of Life Outcomes. 8:25. Hardy, K.K. & Willard, V.W. (2010). Perceived social competency in children with brain tumors: comparison between children on and off therapy. Journal of Pediatric Oncology Nursing. 27(3): 156-163. Kazak, A.E., Derosa, B.W. & Schwartz, L.A. (2010). Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls. Journal of Clinical Oncology. 28(12): 2002-7. Larsson, G. & Mattsson, E. (2010). Aspects of quality of life, anxiety, and depression among persons diagnosed with cancer during adolescence: A long-term follow-up study. European Journal of Cancer. 46(6): 1062-1068. Michel, G. (2010). Psychological distress in adult survivors of childhood cancer: the Swiss Childhood Cancer Survivor Study. Journal of Clinical Oncology. 28(10): 1740-1748. Robert, R.S. (2010). Psychosocial and functional outcomes in long-term survivors of osteosarcoma: a comparison of limb-salvage surgery and amputation. Pediatric Blood and Cancer. 54(7): 990-999. Williamson, H. & Harcourt, D. (2010). Adolescents’ and parents’ experiences of managing the psychosocial impact of appearance change during cancer treatment. Journal of Pediatric Oncology Nursing. 27(3): 168-175. Yi J. Z. (2010). Self-portraits of families with young adult cancer survivors: using photovoice. Journal of Psychosocial Oncology. 28(3):219-43. Screening/Pathology/Staging/Biomarkers Bate, J. (2010). Immunisation practices of paediatric oncology and shared care oncology consultations: a United Kingdom survey. Pediatric Blood and Cancer. 54(7): 941-946. Carlos, R.C. & Dempsey, A.F. (2010). Cervical cancer prevention through human papillomavirus vaccination: using the "teachable moment" for educational interventions. Obstetrics & Gynecology. 115(4):834-8. Conter, V. & Bartram, CR. (2010). Molecular response to treatment redefines all prognostic factors in children and adolescents with B-cell precursor acute lymphoblastic leukemia: results in 3184 patients of the AIEOP-BFM ALL 2000 study. Blood. 115(16):3206-14. Cooper Robbins, S.C., Bernard, D. & McCaffery, K. (2010). "Is cancer contagious?": Australian adolescent girls and their parents: making the most of limited information about HPV and HPV vaccination. Vaccine. 28(19):3398-408. Ridenour, R.V. (2010). Clinical and histopathologic features of chordomas in children and young adults. Pediatric & Developmental Pathology. 13(1):9-17. Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 3 Survivorship Issues and Quality of Life Andres, M.M. & Wallace, W. (2010). Practical and ethical issues for fertility preservation for children and young people with cancer. Paediatrics and Child Health. 20(3): 135-142. Bekkering, W.P. & Vliet, V. (2010). Quality of life in young patients after bone tumor surgery around the knee joint and comparison with healthy controls. Pediatric Blood & Cancer. 54(5):738-45. Castellino, S., Muir, A. & Shah, A. (2010). Hepato-biliary late effects in survivors of childhood and adolescent cancer: A report from the Children's Oncology Group. Pediatric Blood & Cancer. 54(5):663-9. Henderson, T.O. (2010). Systematic review: surveillance for breast cancer in women treated with chest radiation for childhood, adolescent, or young adult cancer. Annals of Internal Medicine. 152(7):444-55. Knopman, J.M. (2010). Surviving childhood and reproductive-age malignancy: effects on fertility and future parenthood. Lancet Oncology. 11(5): 490-498. Lancashire, E.R. & Frobisher, C. (2010). Educational attainment among adult survivors of childhood cancer in Great Britain: a population-based cohort study. Journal of the National Cancer Institute. 102(4): 254-270. Madden, J.R. & Mowry, P. (2010). Creative arts therapy improves quality of life for pediatric brain tumor patients receiving outpatient chemotherapy. Journal of Pediatric Oncology Nursing. 27(3): 133-145. Revel-Vilik, S. & Menahem, M. (2010). Post-thrombotic syndrome after central venous catheter removal in childhood cancer survivors is associated with a history of obstruction. Pediatric Blood and Cancer. 55(1): 153-156. Schwartz, L.A. & Mao, J.J. (2010). Self-reported health problems of young adults in clinical settings: survivors of childhood cancer and healthy controls. Journal of the American Board of Family Medicine: JABFM. 23(3):306-14. Skinner, R. (2010). Glomerular toxicity persists 10 years after ifosfamide treatment in childhood and is not predictable by age or dose. Pediatric Blood and Cancer. 54(7): 983-989. Sudour, H. (2010). Fertility and Pregnancy Outcome After Abdominal Irradiation That Included or Excluded the Pelvis in Childhood Tumor Survivors. International Journal of Radiation Oncology Biology Physics. 76(3): 867-873. Tai, E. & Pollack, L.A. (2010). Differences in Non-Hodgkin Lymphoma Survival Between Young Adults and Children. Archives of Pediatrics and Adolescent Medicine. 164(3): 218-224. Taylor, N. & Absolom, K. (2010). Comparison of self-reported late effects with medical records among survivors of childhood cancer. European Journal of Cancer. 46(6): 1069-1078. Tukenova, M. (2010). Role of cancer treatment in long-term overall and cardiovascular mortality after childhood cancer. Journal of Clinical Oncology. 28(2): 1308-1315. Wasilewski-Masker, K. (2010). Severity of health conditions identified in a pediatric cancer survivor program. Pediatric Blood and Cancer. 54(7): 976-982. Yeh, J. (2010). A Model-Based Estimate of Cumulative Excess Mortality in Survivors of Childhood Cancer. Annals of Internal Medicine. 152(7):409-417. Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 4 Symptom Management Ammann, R.A. & Bodmer, N. (2010). Predicting adverse events in children with fever and chemotherapy-induced neutropenia: the prospective multicenter SPOG 2003 FN Study. Journal of Clinical Oncology. 28(12): 2008-2014. Gibson, F. & Auld, E. (2010). A Systematic Review of Oral Assessment Instruments: What Can We Recommend to Practitioners in Children's and Young People's Cancer Care? Cancer Nursing. Published ahead of print. Glenny, A.M. (2010). The development of evidence-based guidelines on mouth care for children, teenagers and young adults treated for cancer. European Journal of Cancer. 46(8): 1399-1412. Nguyen, T.N. (2010). Music therapy to reduce pain and anxiety in children with cancer undergoing lumbar puncture: a randomized clinical trial. Journal of Pediatric Oncology Nursing. 27(3): 146-155. Pritchard, M. (2010). Factors that distinguish symptoms of most concern to parents from other symptom of dying children. Journal of Pain and Symptom Management. 39(4): 627-636. Rajapakse, D. (2010). Symptom management during chemotherapy. Paediatrics and Child Health. 20(3): 129-134. Rugiero, A. & Barone, G. (2010). Groshong catheter-related complications in children with cancer. Pediatric Blood and Cancer. 54(7): 947-951. Tomlinson, D. & Gibson, F. (2010). Refinement of the Children’s International Mucositis Evaluation Scale (ChIMES): Child and parent perspectives on understandability, content validity and acceptability. European Journal of Oncology Nursing. 14(1): 29-41. Wedrychowicz, A., Spodaryk, M. & Krasowska-Kwiecien, A. (2010). Total parenteral nutrition in children and adolescents treated with high-dose chemotherapy followed by autologous haematopoietic transplants. British Journal of Nutrition. 103(6):899-906. Therapies Bisogno, G. & Ferrari, A. (2010). Sequential intensified chemotherapy with stem cell rescue for children and adolescents with desmoplastic small round-cell tumor. Bone Marrow Transplantation. 45(5):907-11. Dunkel, I.J. (2010). High-dose chemotherapy with autologous hematopoietic stem cell rescue for stage 4B retinoblastoma. Pediatric Blood and Cancer. 55(1): 149-152. Dunkel, I.J. (2010). Intensive multimodality therapy for patients with stage 4a metastatic retinoblastoma. Pediatric Blood and Cancer. 55(1): 55-59. Eftekhari, F. (2010). Imaging assessment of osteosarcoma in childhood and adolescence: diagnosis, staging, and evaluating response to chemotherapy. Cancer Treatment & Research. 152:33-62. Horton, T.M. (2010). Toxicity assessment of molecularly targeted drugs incorporated into multiagent chemotherapy regimens for pediatric acute lymphocytic leukaemia (ALL): Review from an international consensus conference. Pediatric Blood and Cancer. 54(7): 872-878. Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 5 Laufer, M.R. & Upton, J. (2010). Ovarian tissue autologous transplantation to the upper extremity for girls receiving abdominal/pelvic radiation: 20-year follow-up of reproductive endocrine function. Journal of Pediatric & Adolescent Gynecology. 23(2):107-10. Mulder, R.L. (2010). Cyclophosphamide versus ifosfamide for paediatric and young adult bone and soft tissue sarcoma patients. Cochrane Database of Systematic Reviews. Spunt, S.L. & Irving, H. (2010). Phase II, Randomized, Open-Label Study of PegfilgrastimSupported VDC/IE Chemotherapy in Pediatric Sarcoma Patients. Journal of Clinical Oncology. 28(2): 1329-1336. Tai, B.C. (2010). On the importance of accounting for competing risks in pediatric cancer trials designed to delay or avoid radiotherapy: I. Basic concepts and first analyses. International Journal of Radiation Oncology Biology Physics. 76(5): 1486-1492. Working with Paediatric and Young Adult Patients Anderson, A.K. (2010). The use of emergency boxes for children with advanced cancer. European Journal of Palliative Care. 17(2): 80-83. Bishop, F.L. (2010). Prevalence of complementary medicine use in pediatric cancer: A Systematic Review. Pediatrics. 125(4): 768-776. Burns, D. (2010). Parental Perspectives of an Adolescent/Young Adult Stem Cell Transplant and a Music Video Intervention. Cancer Nursing. Published ahead of print. Dang-Tan, T. & Trottier, H. (2010). Determinants of delays in treatment initiation in children and adolescents diagnosed with leukemia or lymphoma in Canada. International Journal of Cancer. 126(8):1936-43. Davis, C. (2010). Treating young cancer patients in a place they can call their home. Cancer Nursing Practice. 9(3): 16-19. Dussel, V. & Joffe, S. (2010) Considerations About Hastening Death Among Parents of Children Who Die of Cancer. Archives of Pediatrics and Adolescent Medicine. 164(3): 231-237. Forinder, U. (2010). “Now we have to cope with the rest of our lives”. Existential issues related to parenting a child surviving a brain tumour. Supportive Care in Cancer. 18(5): 543552. Latham, G. & Greenberg, R. (2010). Anesthetic considerations for the pediatric oncology patient - part 2: systems-based approach to anesthesia. Pediatric Anesthesia. 2(5):396-420. Link, N.J. & Maurer, E. (2009). Kids, adolescents, and young adult cancer study-a methodologic approach in cancer epidemiology research. Journal of Cancer Epidemiology. 2009: E publication 2010, 354257. Neil, L. & Clarke, S. (2010). Learning to live with cancer: a literature review of the parental perspective. International Journal of Palliative Nursing. 16(3): 110-119. Pearson M. (2010). Caring for children and adolescents with osteosarcoma: a nursing perspective. Cancer Treatment & Research. 152:385-94. Punzalan M. & Hyden G. (2010). The role of physical therapy and occupational therapy in the rehabilitation of pediatric and adolescent patients with osteosarcoma. Cancer Treatment Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 6 & Research. 152:367-84, 2010. Please note that the journal articles you are accessing may be protected by copyright legislation so there may be a limit on the number of articles you can download or print from any single issue of a journal. If you obtain a copy via your local library's document request service, you may be required to complete a copyright declaration form. Consult your local library with any queries, or for further information see the website of the Copyright Licensing Agency at www.cla.co.uk. If you have any questions regarding this or any other library services please contact Library staff – contact details are at the beginning of the bulletin. Sources used for this bulletin: Jornals scanned: Annals of Oncology Cancer European Journal of Oncology Nursing Journal of Clinical Oncology Neuro-Oncology Pediatric Blood and Cancer Psycho-Oncology Seminars in Oncology Supportive Care in Cancer Journal alerts: Archives of Diseases in Childhood Archives of Pediatrics and Adolescent Medicine Clinical Journal of Oncology Nursing Current Problems in Pediatric and Adolescent Health Care Journal of Adolescence Journal of Adolescent Health Journal of Cancer Nursing Journal of Pediatric and Adolescent Gynecology Journal of Pediatric Health Care Journal of Pediatric Hematology/Oncology Journal of Pediatric Nursing Journal of Pediatric Oncology Nursing Paediatric Nursing Pediatrics Paedatrics and Child Health Pediatrics and Neonatology Seminars in Oncology Nursing Alerting services: Zetoc alert OvidSP Auto Alerts – MEDLINE and CINAHL Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 7 Cancer: Paediatric and Young Adult, May 2010 Alison McEwan, Assistant Librarian, NHSGGC Library Network 8