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Cannon Cancer Ministry Resource Guide Table of Contents Information General Resources Wellness Centers and Cancer Programs Support Groups Breast Cancer and Women’s Support Groups Caregiver Support and Support Groups Page Numbers 2 3-4 5 6-7 8 Foundations and Organizations 9-13 Financial Assistance 14-18 Transportation 19-20 Nutrition Assistance 21 Resources for Seniors 22-23 Resources for Children 24-25 Resources for Immigrants Legal, Insurance, Work & Advocacy Issues 26 27-28 Respite Care 29 Home Health 30 Hospice & End of Life Issues 31 Bereavement & Grief Support 32 Additional Online Resources 33-36 *Cannon Cancer Ministry provides these resources as a service and is not responsible for information at these sites nor endorse any product or service. General Resources United Way 2-1-1 United Way of Metropolitan Atlanta 100 Edgewood Ave., Atlanta, GA 30303 www.unitedwayatlanta.org Dial 2-1-1 to speak to a specialist who will help you locate a variety of services (many free or based on income) in your area or you can go to their website and search the 2-1-1 database for a comprehensive listing of services. Gwinnett Helpline Gwinnett Coalition for Health and Human Services (777) 995-3339 www.gwinnettcoalition.org Provides information and referrals for family problems, health services, childcare, emergency food, legal referrals, senior services, counseling and more. American Cancer Society 1-800-227-2345 (24 hour assistance) Gwinnett Office 6500 Sugarloaf Pkwy. Ste.260 1-800-282-4914 www.cancer.org Provides information to patients and their families on cancer, treatment options, coping and clinical trials as well as local resources and support groups. You can call or search their website for a wide range of local services. CVS Procare Atlanta 560 Amsterdam Ave. Ste. E (404)892-9131 This pharmacy specializes in hard to find cancer medications and supplies. It keeps prescription medications in stock that other pharmacies usually have to order. 2 Wellness Centers and Cancer Programs Cannon United Methodist Church- Cancer Ministry 2424 Webb Ginn House Rd. Snellville (678) 501-6462 www.cannoncancerministry.org Cannon Cancer Ministry was created to walk with those who are in the midst of struggling with this devastating disease. Each cancer patient and/or caregiver is assigned an assessor who meets with him or her to assess ways that the Cancer Ministry may be of help. Services provided include prayer, house and yard work, transportation, home cooked meals and information. Serves residents east of I-85 in Snellville, Lawrenceville, Loganville, Lilburn and Grayson. Athens Regional Loran Smith Center for Cancer Support 1199 Prince Avenue, Athens, GA 30606 706.475.3428 www.armc.org Individual patient and family supportive counseling, grief counseling, genetic counseling, support groups, library, educational workshops, symptom management education, expressive arts workshops. Cancer Wellness at Piedmont Piedmont Hospital Cancer Center 275 Collier Road, NW, Suite 490, Atlanta, GA 30309 404.605.1962 www.piedmontcancerconnection.org Professionally-led programs include education, relaxation and stress reduction, movement and exercise, expressive arts, meditation, support groups, individual nutritional and psychological counseling, cooking demos, and social events. Hair With Care boutique Winship Cancer Institute – Emory University Hospital 1365 Clifton Rd. Bldg. C Atlanta (404)778-5180 www.winshipcancerinstitute.org Offers a resource center, boutique and a variety of support groups including one for families coping with cancer. Call for more information. Georgia Cancer Center for Excellence at Grady Health System Support groups, self-image center with free wigs and clothing, free legal aid program, patient and family health library, ACS Patient Resource Navigation, AVON Breast Patient Navigators, Lymphedema therapy program, ACS I Can Cope programming, Palliative care clinic, mental health services, chaplaincy services, social work services Jennifer Potter, Public Education Outreach www.gradyhealthsystem.org 3 Wellness Centers and Cancer Programs, continued The Wellness Community Atlanta Northside Hospital 5775 Peachtree Dunwoody Road, Building C, Suite 225, Atlanta, GA 30342 Christy Andrews 404.843.1880 www.thewellnesscommunityatlanta.org Free psychological and emotional support The Wellness Community 5780 Peachtree Dunwoody Rd Ste. 445, Atlanta (404)-845-5640 www.thewellnesscommunity-atlanta.org Provides psychosocial and educational support to cancer patients, survivors, their families and friends. The program, free of charge, offers support groups including one for children who have a parent or grandparent with cancer, facilitated by licensed psychotherapists, and a variety of education workshops, networking groups and stress reduction (yoga, tai chi) classes. Call for more information or dates and times of. upcoming classes and events.. . St. Joseph’s Hospital Cancer Survivors’ Network 5665 Peachtree Dunwoody Road, Atlanta, GA 30342 Renee Sevy 404.851.5051 www.stjosephsatlanta.org/cancersupport This program offers a variety of free services to individuals affected by cancer and their families and friends. Programs include support groups, lunch and learn, speaker's bureau, resource center and a Cancer 101 class for newly diagnosed. They also sponsor an annual Sharing the Journey Cancer Survivorship Conference. Support groups include: breast cancer (404)851-7118; head and neck cancer (404 )851 ~ 5585; gynecological cancers (404)851-5051; prostrate cancer (404)851-5051 and peripheral neuropathy (770)994-5474. Call for dates and times. 4 Support Groups (also check foundations) Cannon United Methodist Church - Stephen Ministry (770)972-5463 www.cannonchurch.org Stephen's Ministers are specially trained lay people who provide confidential one on one Christian care and support to people going through difficult times. General Cancer Support Group 1st and 3rd Thursdays, 6:30pm Hope House Cancer Wellness Center, 2424 Webb Gin House Road, Snellville Patti Fehlig, LCSW, 770.736.9765 [email protected] St. Matthew's Episcopal Church 1520 Oak Rd. Snellville (678)380-0234 www.stmatthews.episcopalatlanta.org A support group for those affected by cancer and their families. Meets monthly on 1st Mondays. Call for details. Reach for Recovery (800)282-4914 www.cancer.org American Cancer Society program that provides a woman facing a breast cancer diagnosis contact with a breast cancer survivor. 5 Breast Cancer and Women’s Support Groups Young Breast Cancer Survivors Support Group Hope House Cancer Wellness Center, 2nd and 4th Thursdays, 6:30pm 2424 Webb Gin House Road, Snellville 770.736.9765 [email protected] Emory Eastside Medical Center 1700 Medical Way, Snellville, GA 30078 www.emoryeastside.com 770.972.0200 Breast Center Resource Boutique Bosom Buddies, Duluth 897 Terrace Trace, 3rd Tuesdays, 7:15pm Alicia Franco, 770.623.0913 Bosom Buddies, Lawrenceville Gwinnett Women’s Pavilion, 2nd Wednesdays, 7pm Cindy Snyder 678.442.3235 Bosom Buddies, Snellville Emory Eastside Medical Center, 1st Thursdays, 7pm Ronnie Schmucker 770.262.4700 [email protected] Breast Cancer Survivors Network, Grayson Formerly a Bosom Buddies Support Group Grayson Senior Center, 2nd Thursday, 7pm Ronnie Schmucker 770.262.4700 [email protected] Georgia Cancer Specialists, Atlanta For women of childbearing age 975 Johnson Ferry Road, Suite 200, 1st Thursdays, 1pm Lisa Andreucci 404.256.4777 x450 Loran Smith Center for Cancer Support, Athens 2nd Thursday, 5:30pm Jill Clark 706.475.4900 www.armc.org Wellness Community, Atlanta 2nd and 4th Wednesdays, 12 noon Diane Malpass 404.843.1880 6 Breast Cancer and Women’s Support Groups, continued Y-Me National Breast Cancer Organization www.y-me.org Information and support to people with breast cancer and their families (they have a teen program). Look Good Feel Better American Cancer Society, Duluth (404)-816-4994 www.cancer.org A free, national public service program where women with cancer can learn how to apply alternatives using hairpieces, scarves, turbans, accessories and make-up. Participants will receive a complimentary cosmetic and skin care kit and professional make-up instructions. Offered at a variety of locations, including the Cannon United Methodist Hope House, www.cannoncancerministry.org Bosom Buddies 5404 Peachtree Rd. Chamblee (770)-455-7637 This agency seeks to enhance the quality of life for women living with breast cancer by providing support services and education during diagnosis, treatment and recovery. Georgia Ovarian Cancer Alliance (404)-255-1337 www.gaovariancancer.org In addition to other services, provides a one-to-one support service for women recently diagnosed with or undergoing treatment for ovarian cancer. Sister's Network Norcross (770)849-0285 www.sistersnetwork.org Offering support to African American women affected by breast cancer. Breast Friends, Inc. 180 Allen Rd. Ste. 204 S. Atlanta (404)-843-0839 Main number (404)-843-0677 (24 hr. support line) www.breastfriends.org This one-to-one breast cancer support network provides individual emotional support, practical assistance and information. Services include a 24-hour support line staffed by survivors and free transportation to treatments. 7 Caregiver Support Piedmont Hospital Cancer Center, Atlanta Men caring for their partners 2nd and 4th Mondays, 10am Dennis Brettiner 404.605.1962 www.piedmonthospital.org Wellness Community Atlanta Wednesdays 6pm Merilee Stewart 404.843.1880 The Caregiver's Home Companion P.O. Box 693, Southport, CT 06890 (203)254-3538 -. www.caregivershome.com This is a monthly newsletter and national website dedicated to addressing the information, resource and community needs of family caregivers to the elderly. The newsletter is available in both print and online. Today’s Caregiver (800)829-2734 or go online to subscribe www.todayscaregiver.com A monthly magazine that covers topics pertinent to and supportive of caregivers. Website has online articles, back issues, chat room and an online store. Christian Caregivers www.christiancaregivers.org Experience, learn and share the concerns of caregivers from a Christian perspective. Caregiver www.caregiver.org Promotes education, information and support. "Empowering caregivers through love and light" Online support including chat rooms, email newsletter, informative articles, journaling, and prayer. The Well Spouse Foundation www.wellspouse.org Information, printed materials, and links to other organizations. 8 Foundations and Organizations (Cancer Information) All groups listed offer information, services and support. Most offer printed material pamphlets and booklets, many in Spanish. Anything of special interest, such as financial assistance and/or local support groups, is noted if known. More may offer aid or support groups. Call or go online for more information. General National Cancer Institute (NCI) (800)4-CANCER (800-422-6237) www.cancer.gov www.MEDLINEplus.gov Federal agency that provides detailed information on specific cancers, treatments and statistics as well as finding and understanding clinical trails. US residents may call toll free to receive personalized responses to their questions. American Cancer Society (800)227-2345 (24 hour assistance) Gwinnett Unit Office, 6500 Sugarloaf Pkwy. Ste. 260, Duluth (404)-816-4994 www.cancer.org Provides information to patients and their families on cancer treatments options, coping and clinical trails as well as referrals to local resources and support groups. May offer limited patient aid in certain circumstances. Cancer Care (800)813-HOPE (4673) www.cancercare.org Offers financial assistance. Staffed by oncology social workers who provide personalized contact. The R.A. Block Cancer Foundation (800)433-0464 www.blochcancer.org Especially helpful to the newly diagnosed. Provides a listing of multidisciplinary institutions that provide second opinions. 9 Specific cancers Lymphoma Research Foundation (800)500-9976 www.lymphoma.org Financial assistance up to $500, to be used for a variety of expenses, including childcare incurred during treatment. The Leukemia-Lymphoma Society (800)955-4572 2620 Local Chapter Cumberland Pkwy., Atlanta (770)438-6006 www.leukemia-lymphoma.org Financial assistance of up to $500 per person per year. Local support group meets in Tucker. Also lots of educational resources. National Bone Marrow Transplant Link (800)-546-5268 www.nbmtlink.org National Marrow Donor Program (NMDP) (800)627-7692 www.marrow.org National Lymphedema Network (800)541-3259 www.lymphnet.org Georgia Transplant Foundation 2790 Brandywine Rd. Ste. 138 Atlanta (770)790-7916 (fax) www.gatransplant.org Financial assistance to transplant recipients and those on transplant waiting lists including utility, rent, mortgage and prescription assistance. American Lung Association (800)586-4872 (national) (770)434-5864 (local chapter) www.lungusa.org National Kidney Foundation of Georgia (770)452-I539 www.nkfg.org Offers $150 grant to those on dialysis or awaiting transplant. 10 Foundations, cont. American Kidney Fund, Atlanta (800)638-8299 www.kidneyfund.org Offers medical bill assistance Kidney Cancer Association (800)850-9132 www.kidneycancerassociation.org United Ostomy Association (800)826-0826 (National) (770)593-5808 (local) www.uoa.org Local support groups. Alliance for Lung Cancer Advocacy, Support and Education (800)298-2436 www.alcase.org Southeastern Brain Tumor Foundation 173 W. Wieuca Rd. Ste. 107 Atlanta (404)843-3700 www.sbtf.org American Brain Tumor Association (800)886-2282 www.abta.org The Brain Tumor Society (800)770-8287 www.tbts.org National Brain Tumor Foundation (800)934-2873 www.braintumor.org International Association of Laryngectomees www.larynxlink.com Assists people who have lost their voice as a result of cancer 11 Foundations, cont American Foundation for Urologic Disease Cancer Network (800)242-2383 www.afud.org Offers patient support services for those who have or have had a urologic disease including bladder and prostate cancers. Colon Cancer Alliance (877)422-422-2030 www.ccalliance.org Serves those who have or have had colon and rectal cancer. Colorectal Cancer Network 301-879-1500 www.colorectal-cancer.net International Myeloma Foundation (800)452-CURE (2873) www.myeloma.org International Waldenstrom's Macroglobulinemia Foundation (941)927-4963 www.iwm£com The Multiple Myeloma Research Foundation (203)972-1250 www.multiplemyeloma.org The Lustgarten Foundation for Pancreatic Cancer Research (866)789-1000 www.lustgartenfoundation.org Prostrate Cancer Foundation (800)757-2873 www.prostatecancerfoundation.org Support for People with Oral and Head and Neck Cancer (800)377-0928 www.spohnc.org The Susan G. Koman Breast Cancer Foundation (800)462-9273 www.breastcancerinfo.com 12 Foundations, cont National Alliance of Breast Cancer Organizations (888)806-2226 www.nabco.org Thyroid Cancer Survivors' Association (877)588-7904 www.thyca.org American Liver Foundation (800)465-4837 www.liverfoundation.org Survivorship Lance Armstrong Foundation P.O. Box 161150 Austin, TX 78716 (521)-236-8820 www.laforg . www.livingstrong.org Helps cancer survivors deal with the long tern emotional and physical side effects that cancer and/or treatment may cause. Cancervive www.cancervive.org Cancervive is a nonprofit organization that provides support, education and advocacy for survivors. The National Coalition for Cancer Survivorship (NCCS) (877)622-7937 www.canceradvocacy.org The only survivor lead advocacy group that helps those affected by cancer live with. through and beyond cancer. Provides, at no cost, an audio program called "The Cancer Survival Toolbox" which gives practical advice on the challenges of cancer, includes tapes on caregiving and raising funds. . 13 Financial Assistance (also check Seniors, Children, Immigrants and Foundations) Pharmaceutical Research and Manufacturers of America (800)-762-INFO www.ohnna.org/patients Provides a directory of the prescription drug assistance programs of pharmaceutical manufacturers. Eligibility varies by program. Pfizer for Living Lilly Answers Card (800)-717-6005 (877)-795-4559 www.lillymedicareanswers.com These two separate programs assist seniors without prescription drug benefits. Current eligibility: seniors with gross income of less than $18.000 for an individual and $24. 000 for a couple. The Medicine Program www.themedicineprogram.com A nationwide volunteer program that helps provide prescription assistance to those who do not have an insurance or government program that covers their medicine Needy Meds www.needymeds.org -offers listing of drug assistance programs Cancer Cares Financial Assistance Programs (800)-813-HOPE www.cancercares.org AvonCares: provides limited financial assistance to women with breast, cervical and ovarian cancer for transportation, childcare and homecare services. AstraZenaca: limited financial assistance for men with prostrate cancer for transportation, homecare, childcare and pain management. . Hirshburg Fund: limited financial assistance for people with pancreatic cancer. Mary Kay: limited financial assistance for women with all cancers for childcare, home care and transportation costs. Novartis: assistance for men with all cancers for transportation, homecare, childcare and pain medication. Sanofi: assistance for people with colon cancer for homecare, childcare. transportation~ pain medication, and colostomy supplies. Note-there are other programs for men with cancer and people with lung cancer that did not currently have funds available. You may wish to check on these, also, in case additional funding has become available. Friends of Disabled Adults and Children, Too 4900 Lewis Rd. Stone Mountain, GA 30083 (770)-491-9014 www.fodac.org Provides medical equipment to disabled people in the metro area who could not otherwise afford it. 14 Financial Assistance, continued (also check Seniors, Children, Immigrants & Foundations) Cooperative Ministries The following Cooperative Ministries provides a variety of assistance including utilities, prescriptions, rent assistance in addition to food, clothing, bus fare and gas money. Each cooperative serves the residents of their area. Call for any eligibility requirements. Southeast Gwinnett Cooperative Ministry 2515 Pine St. Snellville, GA 30078 (770)-985-5173 www.segwinnettcoop.org Service hours: 10am-2pm MWF North Gwinnett Cooperative Ministry 601 S. Hill St. Buford, GA 30518 (770)271-9793 www.northgwinnettcoop.org Service hours: lOam-12pmMWF Duluth Cooperative Ministry 3402 Fox St., Ste. 1 Duluth, GA (770)623-9563 www.duluthco-op.org Service hours: l0am-2pm MWF Norcross Cooperative Ministry 2275 Mitchell Rd. Norcross, GA 30071 (770)263-8268 www.norcrossco-op.org Service hours: l0am-2pm MWF-Sat Lilburn Cooperative Ministry 5329 Five Forks Trickum Rd. Lilburn, GA 30047 (770)931-8333 www.lilburncoop.org Service Hours: l0am-2pm MWF 9am -11 am Sat. (food only on Sat.) Lawrenceville Cooperative Ministry 490-B Buford Dr. Lawrenceville, GA 30046 Service hours: l0am-2pm MWF Sat.lOam-12pm (food only on Sat.) www.lawrencevilleco-op.org 15 Financial Assistance, continued North Fulton Community Charities 89 Grove Way Roswell, GA 30075 (770)640-0399 www.nfcchelp.org Service hours vary. Serves residents of North Fulton. Salvation Army-Gwinnett County Service Area (770)963-8802 www.salvationarmy-georgia.org Service hours: 9am-4pm M-F Call for intake and food pantry hours Provides utility, prescription, rent/mortgage assistance and food pantries. St. Vincent DePaul Society 2050 Chamblee-Tucker Rd. Ste. C Chamblee, GA 30341 (770)-458-9607 (770)-451-4850 (Spanish Intake) www.svdpusa.org Telephone main office for financial assistance. No financial assistance is available through thrift stores. No Walk-Ins. Service area includes Gwinnett. Provides a variety of services including prescription, medical bill, utility, rent/mortgage and funeral assistance as well as food pantries/vouchers, emergency road service, gas money, bus fare and return to point of origin. Will usually refer to local Catholic (:;hurct to receive assistance after approval. ACTS-A Congregation That Serves Atlanta (770)-491-0010 This agency offers assistance with minor car repairs, paying for storage, emergency funeral expenses and long distance transportation. Serves Newton, Walton & Gwinnett counties. Must be emergency/crisis situation. A Helping Hand Charity 4210 Flat Shoals Pkwy. Decatur, GA 30034 (404)-212-1112 www.newlifeccmin.com Service hours: 8am-5pm M-F 8am-12pm Sat. This organization provides care, pastoral counseling and supportive services (including prescription assistance) to those experiencing difficult times. Languages spoken include Spanish, French, Swahili and Lingala. Lifeline/Linkup –A telephone Assistance Program (404)-780-2388 www.lifeline.gov Lifeline -a government program that offers a discount of $11.35 on monthly local telephone bills. Link Up -a government program that helps to pay phone installation. Must be low income or elderly. 16 Financial Assistance, continued Gwinnett Co. Division of Family and Children Services (DFACS), 5030 Georgia Bell Ct. Ste. 7066 Norcross, GA 30093 Service hours: 8am-5pm M-F (770)-638-5790 www.gwinnettcounty.com State agency that provides utility and prescription assistance to families as well as providing food stamp, Medicaid and TANF applications. Partnership for Community Action 815 Park North Boulevard, Clarkston 404.929.2500 www.pcaction.org Service hours: 8:30-5:30 M-F This agency provides utility, rent and mortgage assistance, motel vouchers, fans, airconditioning and weatherization. Food Pantries www.cutouthunger.org Buford First Baptist 4550 Hamilton Mill Rd., Buford (770)945-9705 Service hours: 8:30-5:00 M-F Norcross First United Methodist Church 2500 Beaver Ruin Rd. Norcross (770)448-4142 Service hours: 8:30-4:30 M-F First Baptist of Grayson 2142Hwy.20 Grayson (770)963-3610 Service hours: 9:00-2:00 M-Th Church of Christ at Snellville 3025 Lenora Church Rd. Snellville 30078 (770)972-6988 Service hours: 1:00-4:00 Mon. & Thurs. only Rehoboth Baptist Church 2997 Lawrenceville Hwy. Tucker 30084 J (770)939-3182Servicehours:10:00-1:00M-F Utility Assistance Most gas and electricity providers, such as Walton EMC, have programs to assist customers in need. Contact them directly. 17 Financial Assistance, cont. Consumer Credit Counseling – Gwinnett County 6000 Live Oak Pkwy).Ste. 113 Norcross, GA 30093 (404)-527-7630 www.cccsatl.org www.cccsenespanol.org (website in Spanish) Non-profit agency provides credit counseling to individuals and families. These are free of charge regardless of age or income. Cancer Fund of America www.cfoa.org Provides cancer patients with "care" packages that include a variety of items like personal hygiene products, Boost drinks, etc. as well as seasonal packages. Items including shipping. Modest Needs www.modestneeds.org Applicants apply on line and demonstrate a "modest need" of financial help. Applicants are chosen based on need and availability of funds. 18 Transportation All transportation resources listed provide services at no cost to patients. American Cancer Society Road to Recovery (800)-282-4914 (Patient Resource Center) www.cancer.org Program that assists ambulatory cancer patients with ground transportation to and from cancer treatment. Patients must register with Patient Resource Center. Breast Friends, Inc. www.breastfriends.org (404)-843-0839 Main Client Number (888)-718-3523 (24 hour support line) Support network that helps provide transportation to breast cancer treatment. Must reside in the 13-countymetro area. Requests thee day notice but will arrange emergency transportation. Disabled American Veterans Transportation Network Office www.davga.org (770)-934-9667 9am -4pm M-F This agency offers medical transportation to disabled veterans to and from hospitals and clinics. Serves the 13-county metro area. The Leukemia Lymphoma Society 2625 Cumberland Pkwy. Ste. 205 Atlanta, GA 30339 (770)-438-6006 www.leukemia-lymphoma.org Their Patient Financial Program provides up to $500 per year per person for treatment related expenses including transportation. Provides reimbursement not actual transport. Transportation -Air travel There are several programs available. Many, including commercial airlines, use the Patient Air Travel HELPLINE listed below as their referral mechanism. For that reaSOl1 commercial airline programs are not listed individually. Some, such as those listed below the HELPLINE, allow patients to contact them directly. Other than the deep discount airline tickets available through the HELPLINE, all services are at no cost to the patient or their families although some programs require a financial need in some situations. 19 Transportation, continued Patient Air Travel HELPLINE (800)-296-1217 (available 24 hours a day) www.patienttravel.org After an initial screening of patient need and determination of a suitable means of transportation, callers are referred to the most appropriate charitable air transportation program that can best meet their needs. The Helpline is the only single source in the nation for full information on charitable or deep discount airline tickets programs for patients and their families. Miracle Flights for Kids (702)-261-0497 www.miracleflights.org Provides air transportation for children needing to travel to medical treatment The AirCare Alliance (888)-260-9707 www.aircareall.org A nationwide league of flying organizations whose volunteer pilots are dedicated to performing public service by facilitating f!ights for health, compassion and community service. Members include Angel Flight of Georgia, Inc., a local group who can be reached at (877)-426-2643or (770)-452-7958 or at www.angelflight-ga.org Corporate Angels Network Inc. White Plains, NY (866)-328-1313 www.CorpAngelNetwork.org Serves cancer patients and their families in need of air transportation using unfilled seats aboard corporatejets, worldwide. They work directly with patients to coordinate their travel needs within regularly scheduled corporate flight plans. Delta Buddy Passes Although not a "charitable program" Delta Buddy Passes is a program that allows Delta employees a certain number of tickets at a greatly reduced rate. With such a large number of Delta employees in this area it may be possible to find someone willing to donate their Buddy Passes to a care receiver or even a family member needing to fly here to visit or help a care receiver. Hospitality Guide for Cancer Patients Traveling to Atlanta for treatment www.joeshouse.org Includes info about public transportation, low cost housing, etc. 20 Nutrition Assistance Good Measure Meals www.goodmeasuremeals.com Meals available in four different calorie levels from 1200 to 2100 calories per day. Nutritionally balanced, 5 or 7 day full meal plans, pick up or delivery. Fresh N Fit Cuisine www.freshnfitcuisine.com 1-877-363-2572 Meals available in 1200 or 2000 calorie sizes. Pick up or delivery, 5 or 7 day meal plans. American Institute for Cancer Research www.aicr.org www.caring4cancer.com Recommended Nutrition Books: Eating Well Through Cancer by Holly Clegg and Gerald Miletello, MD Lickity Split Meals by Zonya Foco, RD The 5:30 Challenge: 5 Ingredients, 30 Minutes, Dinner on the Table By Jeanne Besser and Susan Puckett The Interactive Healthy Eating Index www.cnpp.usda.gov/healthyeating.html Meals on Wheels Association of American www.mowaa.org USDA Food and Nutrition Information Center www.nal.usda.gov/fnic 21 Resources for Seniors Senior care receivers often have needs that overlap or are in addition to their cancer related needs. The resources listed below may help to meet some of those needy. Gwinnett County Senior Services (770)822~8850 (678)377-4150 (Meals on Wheels) www.gnli.org This agency provides seniors and their families with a full range of services including senior centers, homemaker assistance, Meals on Wheels, day care, senior employment, transportation and medical supervision. .' Sixty Plus Program -Piedmont Hospital www.piedmont.org (404)-605-3867 Program serving seniors in Cobb, DeKalb, Fulton and Gwinnett counties. Offers caregiver support groups and workshops, respite care registries; senior ride programs and other specialized information and referrals for older adults. Alzheimer's Association, Greater Georgia Chapter (404)-728-1181 (800)-272-3900 24 Hour Helpline www.alz.org/georgia Information on Alzheimer's Disease, health related support groups, caregiver support groups and respite care registries. Norcross United Methodist Church –The Sunshine Club 2500 Beaver Ruin Rd. Norcross (770)448-4142 www.nfumc.org Nonprofit day program for seniors with mild to moderate Alzheimer's/dementia. Music, exercises, activity and games. 10am -2pm every Friday Westminister Presbyterian -Calvin Cove 2208 E. Main St. Snellville (770)979-9676 www.wpcsnellville.org Nonprofit day program for seniors including those with mild to moderate Alzheimer's. dementia, Parkinson's and stroke. Tues. -Fri. lOam-3pm Benefits Checkup www.benefitscheckup.org A service of the National Council on Aging. A free service that helps people ages 55 and over find programs that may pay for some of their costs of prescription drugs, health care, utilites and other essential items or services. 22 Resources for Seniors, continued Department of Health and Human Services-Centers for Medicare Medicaid Services 61 Forsyth 81.Atlanta www.medicare.gov (800)-633-4227 (24 hours) This organization provides the most current Medicare infonnation including infonnation on prescription drug programs and nursing homes. Veteran's Administration Medical Center 1670 Clairmont Rd. Decatur (404)-321-6111 www.va.gov/atlanta Veteran's Administration (800)-827-1000 (info. on non medical benefits American Association or Retired Persons (888)-OUR-AARP (888)-687-2277 M-F 8am-8pm www.aarp.org Association serving the interests and needs of people 50 and older. AARP programs include driver safety, grief and loss, tax aid, legal assistance and many others. The AARP Foundation, AARP's charitable affiliate, provides these services to seniors 55 and up at no cost and membership in AARP is not required to access the Foundation's services. Reaching Out to Senior Adults (ROSA) (404 )614-005 5 Serves frail senior adults and their caregivers. Services include in home respite care, friendly visiting and telephone reassurance. 23 Resources for Children Dekalb Medical Center The Treehouse Gang, Decatur For children ages 5-17 who have a parent with cancer. Dekalb Medical Center, Suite 130 Meets every quarter for three sessions with a child psychologist Rose McKeever 404.501.5701 www.dekalbmedicalcenter.org Wellness Community Atlanta “Kids Circle” for children 5-12 who have a parent or grandparent with cancer. 4-week program, Tuesdays 6:30pm Diane Rooks or Edna Bacon 404.843.1880 Camp Sunshine Programs for children with cancer. 1850 Clairmont Road, Decatur, GA 30033 404.325.7979 Young Adult and Teen Groups For ages 13-18 and 18-23 who are currently in treatment or were diagnosed as teenagers Young Adults 18-23, Camp Sunshine House, 3rd Thursdays 5:30pm Teen Group 13-18 Camp Sunshine House, 2nd and 4th Thursdays 5:30pm 404.325.7979 www.mycampsunshine.com CLIMB (Children’s Lives Include Moments of Bravery) Hope House, Snellville, GA 770.736.9765, quarterly 6-week program, Mondays 6pm Hope House, Snellville: Lisa Andreucci, 404.256.4777 x450 Emory Winship Cancer Institute: Rebecca Sizemore 404.778.5926 Cure Childhood Cancer 1835 Savoy Dr. Ste. 317 Atlanta (770)986-0035 www.curechildhoodcancer.org Offers bereavement support services to parents who have lost a child to cancer... The Front Porch of Atlanta Emory University Baptist Student Union House -Decatur (770)730-5858 www.thefrontporch.org A nonprofit center that supports the grief process by providing a safe and supportive environment that promotes healing for children who have experienced the death of a loved one. Age-specific groups (ages 3-18) and their families gather and share their issues surrounding loss. Services are free of charge. 24 Resources for Children, continued Gilda’s Club www.gildasclub.org Parents and children can access free social and emotional support. Rainbows Peer Grief Support Groups (770)321-9636 www.rainbows.org A nonprofit that provides grief support services to children, teens and adults. Groups are held at various schools and churches. Call for locations. Rainbows for AllGod's Children . -Perimeter Church 9500 Medlock Bridge Rd. Duluth (770)582-6690 ext. 2277 Support for children K-7thgrade. -Norcross First United Methodist Church 2500 Beaver Ruin Rd. Norcross (770)448-414 Support for children Pre-K-12th grade. KidsCope www.kidscope.org KidsCope’s purpose is to help children cope with changes in the family when a parent has cancer. Kids Konnected www.kidskonnected.org A national, nonprofit organization that offers programs and services for children whose parent has been diagnosed with cancer. Wonders and Worries www.wondersandworries.org A non profit organization that strives to help increase communication within families coping with a chronic or life-threatening illness. www.compassionbooks.com Many great books. Kate’s Club (404) 347-7619 www.katesclub.org Kate’s Club is to empower children and teens facing life after the death of a parent or sibling and helping them understand it is okay to grieve. Support groups, outings, camps. Grieving Child www.GrievingChild.org Materials and activities for the grieving child or teenager who has lost a loved one. Also provides information for parents. 25 Resources for Immigrants Salvation Army -Atlanta Hispanic Corps 3771 Central Ave. Doraville (770)-936-3036 www.salvationarmy-georgia.org Serves Hispanic individuals and offers rent and utility assistance, translation, food and clothin,g and homework assistance. Su Familia: The National Hispanic Family Health Hotline (866)783-2685 www.hispanichealth.org/sufamilia Latin American Association-Gwinnett Office 134 S. Clayton St. Ste. 29 Lawrenceville (770)-339-4335 www.latinamericanassoc.org Provides Latino families with transition for legal services, employment services, family and emergency assistance. Will make medical appointments for non-English speakers. Missionary Church of Christ -Refugee Ministry 2780 Sugarloaf Pkwy. P.O. Box 464298 Lawrencevil1e (770)623-4285 Provides food, clothing, translation, classes to teach English for Hispanics. Calvary Christian Fellowship -Hispanic Community Support 3116 Main St., P.O. Box 561, Duluth (770)513-0940 Provides day laborers with jobs, job training, English classes, spiritual help. Raksha, Inc. Atlanta (404)842-0725 www.raksha.org Services include crisis intervention, referrals, translation, legal aid, counseling to Asians. Asian American Service Agency 3610 Dekalb Technology Pkwy. Ste. 107 Atlanta (770)-986-0055 Provides counseling, job training and language translation including Chinese, Vietnamese and Korean. Clients must meet the 130% of federal poverty guideline. Good Shepherd Services of Atlanta -Multicultural Outreach and Referral 656 Indian Trail Rd., Suite 106 Lilburn 770.381.2011 Provides counseling, translation, English classes, elderly services, etc. to non-English speaking refugees from Southeast Asia. 26 Legal, Insurance, Work & Advocacy Issues Atlanta Legal Aid Society ]51 Spring S1.NW Atlanta (404)524-5811 Gwinnett Office (678)376-4545 www.atlantalegalaid.org Represented Atlanta's low income in civil legal cases since 1924. Georgia Seniors Legal Hotline, (404) 657-9915 or 1-888-257-9519. Georgia Legal Services Program 104 Marietta Street, Suite 250 Atlanta, GA 30303 404-206~5175 1-800-498-9469 (Clients Only) www.glsp.org Georgia Legal Services, an independent, non-profit organization, provides free legal services to low-income people in civil matters in the 154 Georgia counties outside the 5 county Atlanta metropolitan area. State of Georgia Insurance Commissioner Two Martin Luther King, Jr. Drive West Tower, Suite 704 Atlanta, Georgia 30334 404-656-2070 800-656-2298 www.gamsurance.org www.georgia.gov State agency that handles complaints against and inquires about insurance companies. State Attorney General's Office 40 Capital Square, SW Atlanta 30334 (404)656-4585 www.ago.georgia.gov Deals with consumer complaints including fraud and malpractice. Patient Advocate Foundation 700 Thimble Shoals Blvd. Suite 200 Newport News, VA23606 (800)532-5274 . www.patientadvocate.org National nonprofit that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve issues relative to their diagnosis including denial of benefits and appeal of insurance claims. 27 Legal, Insurance, Work & Advocacy Issues, continued BMT InfoNet 2900 Skokie Valley Rd., Ste. B Highland Park, IL 60035 (888)597-7674 www.bmtinfone1.org If a patient has been denied coverage (in whole or part) for a bone marrow, stem cell or cord blood transplant/replacementthis organization can provide referrals to agencies and attorneys who have successfully persuaded insurers to pay for transplant related costs in a timely manner usually without having to resort to litigation. Family and Medical Leave Act U.S. Department of Labor (DOL) (866)-4-US-WAGE www.dol.gov The Family & Medical Leave Act provides certain employees with the option of up to 12 weeks unpaid leave due to a family or medical reason. The DOL investigates complaints of employer's noncompliance. Americans With Disabilities Act (ADA) Equal Employment Opportunity Commission (EEOC) (800)669-4000 www.ada.gov The EEOC investigates complaints of employer's ADA noncompliance. Callers to their toll free number will be given complaint procedures and may be referred to local or state agencies. Disability Information www.disabilityinfo.gov Provides information on disability benefits and laws. 28 Respite Care in-home & out-of-home (also check Seniors) Respite care allows a caregiver to temporarily take a break of a few hours, days or weeks from caregiving. The caregiver may even be the cancer care receiver who needs respite care for a spouse or parent while they receive treatment. There is usually a charge for respite. Respite Care Locator (800)773-5433 www.respitelocator.org This free nationwide service helps caregivers find respite programs in their local area. FOCUS-Families Under Stress (770)234-9111 www.focus-ga.org Their Saturday Respite Program is located in seven metro areas and has caregivers who are experienced in caring for children who have special or ongoing medical needs. It is a chance for parents to enjoy a break from the intensive caregiving that their children may require. The suggested contribution for respite is $5.00 per child. Westminster Presbyterian Church – Calvin Cove 2208 E. Main St. Snellville (770)979-9676 Nonprofit day program for older adults, including those with mild to moderate Alzheimer's, dementia, Parkinson's and stroke. Tues. -Fri. l0am -3 pm Norcross First United Methodist Church -Sunshine Club 2500 Beaver Ruin Rd. Norcross (770)448-4142 Nonprofit day program for persons with mild to moderate dementia/Alzheimer's. Music, exercises, fellowship and games. 10am-2pm every Friday Georgia Division of Public Health Community Care Service Program -Atlanta Region (404)463-3224 Serves those who are medically-needy and eligible for Medicaid. Services include adult day care, in home respite care, nursing and group residences for adults with disabilities. Wesley Woods Geriatric Hospital 1821 Clifton Rd. Atlanta (404)728-6214 www.emoryhealthcare.org This agency is a hospital where older adults receive medical care and supportive services. including out of home respite care. Mommy Moments Supporting Moms in cancer treatment with free childcare. 770.621.5757 www.mommymoments123.com 29 Home Health Home Instead Senior Services 770.392.8952 www.hiscga.com Trimark Health 404.633.1935 www.trimarkhealth.com Visiting Nurses 770.454.0900 www.vnhs.org Staff Builders 678.323.1660 www.tlcatlanta.com Community HHC 770.222.9492 Senior Helpers (not just for seniors!) 770.982.6628 www.seniorhelpers.com [email protected] Edlercare Systems, Tucker, GA 770.496.5735 www.eldsys.com [email protected] 30 Hospice and End of Life Issues National Hospice and Palliative Care Organization (NHPCO) (800)338-8619 (800)658-8898 (Hospice Helpline) www.nhpco.org NHPCO is the nation's oldest and largest public benefit organization devoted exclusively to hospice care. Hospice Helpline provides the general public with information about hospice care, reimbursement sources as well as referrals to local hospices. NHPCO also publishes brochures on hospice, grief in the workplace and bereavement. Hospice Net www.hospicenet.org Provides both the dying person and their families with infonnation and well-written articles on death, dying and God. There are sections for the patient, children, caregivers and on bereavement. Children's Hospice International (800)24-CHILD www.chionline.org CHI works with hospices, children agencies, individuals and families who are caring for children with life-threatening conditions. Provides publications, support, education and assistance. Our Lady of Perpetual Help Home 760 Pollard Blvd. SW Atlanta (404)688-9515 (9am-4pm) Provides free hospice care for terminally ill cancer patients who cannot afford care. Embracing Hospice 2160 Fountain Dr. Snellville (678)344-9494 www.embracinghospicecare.com Dying Well www.DyingWell.org Resources for people facing life-limiting illness, their families and their caregivers. AARP-American Association of Retired Persons (866)797-2277 Grief Support Line (7 days a week 9am-9pm) www.aarp.org Has an "end of life" section (in Care and Family section) that discusses estate planning, POAs, wills, etc. Also has "grief and loss" section. You do not have to be a member to access and print. 31 Bereavement and Grief Support Snellville Bereavement Connection Emory Eastside Medical Center, Chaplain Ron Cole 770.736.2478 www.emoryeastsidemedicalcenter.com [email protected] Call for information. Duluth First United Methodist Church 3208 Highway 120, Duluth, GA 30136 Brenda Bridges 770.476.5126 [email protected] Adult Bereavement, 4th Mondays 7-8:30 Peachtree Christian Hospice 3430 Duluth Park Lane, Duluth, GA 30096 Dave Furlough 770.232.7727 x18 [email protected] Adult Grief Support 1st and 3rd Tuesdays at 7pm Harmony Grove United Methodist Church 50 Harmony Grove Road, Lilburn, GA 30047 Dr. Diane Kreutzer 770.378.6062 www.harmonygroveumc.com Grief Support Sundays at 3pm Compassionate Friends – Atlanta Chapters (770)474-6243 (877)969-0010 www.tcfatlanta.org Lawrenceville Chapter (770)932-5862 Offers friendship and hope to bereaved parents who have lost a child (including adult children) and to siblings who have lost a sibling. Northside Hospital (404)851-8751 A free six-week support group is offered for persons who have suffered a loss through death. Call for information about the next group of meetings. American Association of Retired Persons (AARP) (866)797-2277 Grief Support Line (7 days a week 9am-9pm) www.aarp.org Support line is open to any bereaved adult, not just AARP members. Staffed by trained volunteers who have suffered loss. 32 Bereavement and Grief Support, continued AARP Grief and Loss Program Lilburn (404)881-0292 www.aarp.org Offers a wide range of resources including bereavement outreach programs, online and Traditional support groups and a wide variety of publications directed towards family, friends and employers. Duluth First United Methodist Church 3208 Hwy. 120 Duluth (770)476-3776 9am-5pm M-F Offers bereavement support services. Loganville First Baptist Church (770)466-4250 . www.fbcloganville.org "Griefshare" is a recovery seminar and support group for those who have lost a loved one. Meets each Sunday night at 5pm. Childcare is available... Cannon United Methodist Church 2424 Webb Ginn House Rd Snellville (770)972-5463 www.cannonchurch.org Grief Recovery Group is made up of caring, Christian friends who have experienced great losses themselves. In Loving Memory 1416 Green Run Lane, Reston, VA (703)435-0608 www.inlovingmemoryonline.org Mutual support, friendship and help for parents who have lost their only child or all their children. Surviving Sorrow 3681 Mt. Cove Snellville (770)985-6542 ext.3 www.survivingsorrow.org Offers grief counseling and support groups to terminally ill people and their families. There is a charge for counseling but support groups are free. . Transitions Resource Center 3069 Panola Rd. Ste. B Lithonia (770)323-2523 Non-profit agency offering Christian counseling, groups seminars and grief support. 33 Additional Online Resources www.cancer.gov www.MEDLINEplus.gov 1-800-4-Cancer (1-800-422-6237) The National Cancer Institute (NCI) is a federal agency that provides information on specific cancers, treatments and statistics as well as information on finding and understanding clinical trials. US residents may call toll free to receive personalized responses to their questions. www.caringbridge.org This nonprofit organization offers free websites to those who have a serious illness, injury or disease. These websites provide a quick, easy way for patients to provide updates on their condition to families and friends. The websites include a section for photos and a guestbook. Websites are very easy to set up and update. websites are private in that visitors must know the specific address for the patient; visitors aren't allowed to do a 'search" to find a patient. www.acor.org Association of Cancer Online Resources. ACOR offers access to emailing lists that provide support, information and community. There are a large number of lists representing most types of cancer. Lists are an excellent way to receive support from others in similar situations. ACOR also provides an extensive listing of cancer related books divided by categories; i.e. caregiving, specific cancers, children. www.cancersymptoms.org This website, a service of the Oncology Nursing Society, is designed for patients and caregivers to provide information on managing each of six common cancer treatment symptoms: fatigue, anorexia, pain, depression, neutropenia and cognitive dysfunction. The website is easy to use and provides helpful "what to do" lists that can make a huge difference in how you feel. Questions about any of these symptoms can also be sent via confidential email and will be responded to by an oncology nurse within two days. www.acoponline.org The American College of Physicians offers a "Home Care Guide for Advanced Cancer" online for "when quality of life is the primary goal" The handbook can be downloaded and printed in it's entirety or by individual chapters. Go to the home page and put title in the "search" box or go to www.acoponline.org/public/h_care to download. www.cancer.gov Website of the National Institute of Cancer. www.cancer.org Website of the American Cancer Society www.cancercares.org Nonprofit organization providing information and services 34 www.oncolink.org Service of the University of Pennsylvania School of Medicine www.peoplelivingwithcancer.org Site of the American Society of Oncology www.cancerguide.org excellent beginning point for newly diagnosed www.caring4cancer.com virtual encyclopedia about all things cancer www.cancernet.gov Info and publications www.cancer.gov/clinical_trials Info about ongoing cancer clinical trials and an explanation of what a trial is. www.canceradvocacy.org National Coalition for Cancer Survivorship has links to online resources, support groups, survivorship programs, newsletter, self-help audio program, etc. www.nlm.nih.gov National Library of Medicine www.sharecancersupport.org SHARE (Self-Help for Women with Breast or Ovarian Cancer) www.amfoundation.org Alternative Medicine Foundation promotes ways to blend modern science and ancient practice for the promotion of health. http://nccam.nih.gov National Center for Complementary and Alternative Medicine, National Institutes of Health www.painmed.org American Academy of Pain Medicine www.theacpa.org American Chronic Pain Association www.painfoundation.org American Pain Foundation 35 Additional Online Resources, continued www.acor.org Association of Cancer Online Resources provides online and email support groups. www.cancercare.org CancerCare is a nonprofit organization that provides free, professional support services for anyone affected by cancer. Online support groups. www.chemoangels.org Patients can go online and register to have a "'chemoangel" assigned to them who will send them uplifting cards and small gifts during their treatments. www.laf.org Lance Armstrong Foundation provides practical information and tools needed to survive. 36