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Preliminary Findings From IMPACT (Improving Massachusetts Post Acute Care Transitions) Leveraging IMPACT to Accelerate S&I Framework’s LTPAC WG October 12, 2011 Larry Garber, MD PI/Informatics Terry O’Malley, MD Metrics Dawn Heisey-Grove, Project Manager Proposed Modifications to the LTPAC Roadmap • Define LTPAC more broadly • Include in the Relevant Scenarios information exchange to and from Acute Care Hospitals to and from LTPAC sites • Identify high priority transitions • Determine transition-specific data elements • Modify high level process flow Summary • We have implemented a survey process resulting in a draft data set of 300 elements identified as “required” by one or more “receivers” in 39 priority LTPAC transitions. • This same process can be used to further refine the core data set for LTPAC and help leverage the reuse of currently available electronic data in MDS and OASIS Draft LTPAC Data Set • The next eight slides contain the data elements. • Headers are in light blue. • Red elements need further consideration • Elements at the end are duplicates The slides that follow explain our approach to prioritizing transitions and the results of the survey Data Set: Slide 1 of 8 DATA ELEMENTS Date of Transfer Demographic information- Patient Last name, First name, Middle Initial Date of birth Next of Kin Address Phone Gender Marital Status Religion Race Ethnicity Primary Language: English Y/N Primary Language if not English_______ Links to patient or other computer applications for patient results, summaries, etc. Email of Patient Contact Name, Contact Number Last name, First name, Middle Initial Telephone Relationship (relative, guardian, durable power of attorney) Is this the health care proxy? If health care proxy is different: Name, Telephone Has health care proxy been invoked? Y/N Insurance Name, Phone #, Group #, Type, Member #, Subscriber Name, Financial responsibility Insurance Name Insurance Phone # Insurance Group # Insurance Type Member # Subscriber Name Financial responsibility Data Set: Slide 2 of 8 Origin of Transfer (Sent From) Name of Sending Site Role/Title of individual providing transfer information Address of "Sending" site Phone number of "Sending" site Type (HHA, SNF, etc) Date patient first arrived at the "Sending" site Where patient was before arrival at the "Sending" site Pager Email Links to provider or other computer applications for patient results, summaries, etc. Clinician at "Sending" site who is availble to answer questions (Sender) Clinician to call with questions about this patient Name Telephone Pager Email Cell phone Clinician(s) if different from above to call for each active problem (with contact info) Receiving Site Name of "Receiving" site Unit: Receiving Clinician (Receiver) Clinician Assuming Responsibility for Care at "Receiving" site Name Telephone Pager Email Name of clinician accepting transfer if different than above Has either clinician received a verbal hand-off Y/N Data Set: Slide 3 of 8 Patient Specific Medical Information Allergies (name of inciting agent, type of reaction, severity) Medications Food Other Date: Adverse medication reactions (name of medication, type of reaction, severity) Current Active Clinical Conditions Status Past Medical History Social History Chief Complaint Reason Patient is being referred Reason for Transfer History of Present Illness History of Major Surgeries with dates Hospital admissions in the past 12 months Issues requiring ongoing management Medications Current Active Medications on Transfer or Discharge Indication Route Dose Frequency Date and time last dose administered Pre-Admission Medication List (patient's home medications prior to admission) List of historical medication names, dose, route, frequency, date patient has taken prior Discharge Medications Medication Reconciliation: Discharge Medication List Discharge medications unchanged from Pre-admission Medication List Discharge medications on the Pre-admit Med List but with change of dose or frequency Explanation of change New medications (not on pre-admission medication list) Reason for addition Medications removed from the Pre-admission Medication List Reason for deletion Pertinent medications administered during the course of this episode of care not on Discharge medication list Data Set: Slide 4 of 8 Summary of expectations for care Code Status Do not resuscitate Do not hospitalize Full If not addressed, why not? Orders for Life Sustaining Treatment (POLST or MOLST Form) attached (Y/N) Summary of goals of care discussion attached (Y/N) Other Advance Care Planning information Immunizations Immunizations name dose route date administered to the patient Physical Findings (with time recorded) Heart rate Resp Rate Pulse Oxygen Saturation Temperature Blood Pressure Pain scale Weight Mental status at discharge/transfer Treatment Course by Active Problem Pertinent Findings by Active Problem Results and dates of Diagnostic Procedures Pertinent test results with dates Assessment of patient's active issues at discharge/transfer Proposed interventions and procedures for patient after transfer/discharge Follow-up plans Tests pending at Discharge/transfer Who is responsible for following up Number(s) to call for results Pressure ulcers at Discharge/Transfer Location(s) Stage Appearance Treatments Other wounds Wound care sheet attached Y/N VAC Dressing Setting Who will change dressing Frequency Teaching materials used for patient/family Data Set: Slide 5 of 8 Functional Status at Discharge/Transfer Activities of Daily Living (ADLs) Bathing Dressing Toileting Transfers Ambulation Eating Can ambulate _______distance with device or independent Continent of bowels Y/N Continent of bladder Y/N Last Bowel Movement Catheter last changed or removed Known risks or unidentified problems Devices, drains pacemaker foley IR drains Internal defibrilator (AICD) drains High risk lines Hemodialysis Ports Epidural catheters Total Parenteral Nutrition (TPN) Line PICC Placement documentation (chest xray, line length) Special treatments/interventions dialysis chemotherapy radiation Total Parenteral Nutrition (TPN) fluid restriction fingersitcks weight checks Nebulizers Tracheostomy Oxygen #liters via___ Suctioning Continuous Positive Airway Pressure (CPAP)/ Bilevel Positive Airway Pressure (BiPAP) Bariatric equipment IV medications (dose, frequency, duration, who supplies) Method of administration (push, cassette) Type of Pump Who is managing IV in home Other Data Set: Slide 6 of 8 Alerts, Restrictions Elopement Pain Restraints Trouble swallowing Y/N Special diet or consistency Y/N Needs assist with feeding Y/N Tube feeing Y/N Fall Risk Y/N interventions Aspiration Limited/non-weightbearing left/right, Upper/Lower Seizure Precautions High risk for pressure ulcer Wanderer Other Violent behavior Infection precautions methicillin-resistant Staphylococcus aureus (MRSA), VISA vancomycin-resistant enterococci (VRE) Clostridium difficile ESBL Other Pregnant, Y/N special circumstances or potential complications Know Limitations and Disabilities Cognitive Speech Hearing Vision Sensation Ability to consent to treatment Amputation Paralysis Contractures Adaptive devices sent with patient (Y/N) clearance to drive Pain Assessement and Treatment Pain score (x out of 10) at transfer (time recorded) Location(s) Medications. Y/N Scripts/Meds sent Y/N Other modalities Time last medicated prior to transfer (time recorded) medication administered dose Clinician providing consultation or follow-up (name, contact information) Pain narrative Data Set: Slide 7 of 8 Home Care Specific Elements Address where care is to be provided name of referring physician name of primary care physician Were supplies ordered Y/N If yes, were they sent Y/N What was ordered Quantity Where ordered from (contact information) Anticipated delivery date/time Name of Identified Learner for education Face to Face Certification Name of certifying physician Homebound Specific conditions requiring treatment Attestation of face to face encounter Condition Specific Elements Anticoagulation Warfarin Prescribed by Indication Target International Normalized Ratio Duration Who will prescribe dose changes Last 3 International Normalized Ratios Last 3 doses Next recommended dose and International Normalized Ratio Low Molecular Weight Heparin/Direct Thrombin Inhibitors Prescribed by Medication Dose Frequency Route Indication Duration Required lab work Contact information of prescriber Data Set: Slide 8 of 8 Congestive Heart Failure Ejection Fraction Goal weight Current weight Atrial Fibrillation or not Anticoagulation if not why not Beta blocker if not why not Angiotension Converting Enzyme Inhibitor/ Angiotension Receptor Blocker if not why not Last Hematocrit, Blood Urea Nitrogen, Creatinine, Potassium, Sodium Major Psychiatric Conditons Psychosis Severe depression Bipolar Potential New Elements for addition to data set Patient likes and dislikes Alternative Items-Duplicates in above list Diseases & Conditions Patient has suffered in the past Sequence of events proceeding patient's disease/condition Description of Patient's Complaint (narrative) All Surgeries with dates List of Hospital Diagnosis and dates Admission Diagnoses Conditions/Diseases identified during hospital stay and dates Problem list Medications names, doses, frequency, route ordered for the patient for after discharge Assessment of patients conditions and expectations/goals of care Headers Elements included in initial survey but to be removed in final version Expand Purview of LTPAC ToC WG • Traditional LTPAC Sites – – – – – – LTAC IRF SNF ECF Home Health Agency Hospice • “Additional” LTPAC Sites – Ambulatory Care (PCP) – CBO (Community based organizations) – Patient/Family – Others as needed Rationale: traditional sites of care will blur as care is organized more around patient needs and less around the site of care. Information exchange will grow in importance Include the Acute Care Hospital Connection • Most transitions to LTPACs start in the Acute care hospital – Discharges to LTPACs from In-patient units – Discharges or returns to LTPACs from the ED – Return to LTPACs from out-patient testing and treatment sites • Many transitions from LTPACs go to ACH sites – In-patient – ED – Out-patient testing or treatment • This expanded “Scope” results in a grid of eleven “sending sites” and eleven “receiving sites” 11x11 Sender (left column) to Receiver (top) Grid Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services In patient ED Out patient services LTAC IRF SNF/ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family Four Relevant Scenarios from the Expanded Scope 1. Exchange information between LTPAC providers 2. Exchange information from LTPAC providers to the patient/family 3. Exchange information from LTPAC providers to three Acute Care Hospital units: 1. In-patient floor 2. ED 3. Outpatient testing and treatment sites 4. Exchange information from Acute Care Hospital units to LTPAC providers and patient/family Four Relevant Scenarios: Transitions by Origin and Destination Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family In patient 4 ED Out patient services LTAC IRF SNF/ECF 3 1 HHA Hospice Ambulatory Care (PCP) Scenario 1: Exchange between LTPAC sites CBOs Patient/Family Scenario 2: Exchange from LTPAC sites to patient Scenario 3: Exchange from LTPAC sites to ACH sites Scenario 4: Exchange from ACH sites to LTPAC sites 2 Identifying High Priority Transitions • Three variables determine the priority of each transition: – Volume – Clinical instability of the patient – Time/Value of the clinical information • On the next grid, each transition is represented by a cell • Each cell has three sections, one for each variable • Each variable is either High (red), Medium (yellow) or Low (blue) • Cells with two or more “High” scores indicate priority transitions • Cells in grey or black are either out of scope or rare Prioritizing Transitions by Volume, Clinical Instability and Time-Value of Information Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services In patient ED Out patient services LTAC IRF SNF/ECF HHA Hospice Ambulatory Care (PCP) V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=L CI = H TV = H V=M CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=M CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = M TV = H V=H CI = M TV = H LTAC IRF SNF/ECF HHA Hospice V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = H TV = H V=H CI = M TV = H V=M CI = M TV = H V=H CI = M TV = H V=H CI = H TV = H V=H CI = M TV = H V=H CI = M TV = H V=H CI = L TV = H V=L CI = M TV = M V=H CI = M TV = H V=H CI = M TV = H V=H CI = M TV = H V=H CI = M TV = H V=H CI = L TV = H V=H CI = M TV = H V=L CI = L TV = L V=L CI = L TV = M V=M CI = M TV = M V=H CI = L TV = H V=M CI = M TV = H V=L CI = L TV = H V=M CI = M TV = H V=L CI = M TV = H V=M CI = M TV = M V=M CI = L TV = L V=L CI = L TV = M V=L CI = L TV = H V=L CI = H TV = H V=M CI = H TV = M V=L CI = M TV = M V=M CI = M TV = M V=L CI = M TV = H CBOs Patient/Family Black circles = highest priority Green circles = high priority Amb Care (PCP) V=H CI = M TV = H V=H CI = L TV = H V=H CI = L TV = H V=H CI = M TV = H V=H CI = L TV = H V=H CI = L TV = M V=H CI = L TV = L V=L CI = M TV = L V=L CI = L TV = M CBOs V=H CI = L TV = H V=M CI = L TV = H V=H CI = M TV = H V=H CI = L TV = H V=H CI = M TV = H V=H CI = L TV = L V=M CI = L TV = L V=M CI = L TV = M Patient/ Family V=H CI = M TV = H V=H CI = M TV = H V=H CI = L TV = L V=H CI = M TV = H V=H CI = L TV = H V=H CI = L TV = H V=H CI = L TV = L V=L CI = M TV = M V=L CI = L TV = L Prioritizing Transitions by Volume, Clinical Instability and Time-Value of Information Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services LTAC IRF SNF/ECF HHA Hospice In patient ED Out patient services LTAC IRF SNF?ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family Black circles = highest priority Green circles = high priority Amb Care (PCP) CBOs Patient/ Family Scenario #1: LTPAC TO LTPAC Priority Transitions Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services In patient ED Out patient services LTAC IRF SNF ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family LTAC IRF SNF ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family Scenario #2: LTPAC To Patient/Family Priority Transitions Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services In patient ED Out patient services LTAC IRF SNF/ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family Scenario #3: LTPAC To Acute Care Hospital Units Priority Transitions Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services In patient ED Out patient services LTAC IRF SNF/ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family Scenario #4: Acute Care Hospital Units to LTPAC Sites Priority Transitions Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services In patient ED Out patient services LTAC IRF SNF/ECF HHA Hospice Ambulatory Care (PCP) CBOs Patient/Family LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family Priority Transitions by Relevant Scenario Transitions to (Receivers) In Patient ED Out patient Transitions From (Senders) Services LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family In patient ED 4 Out patient services LTAC IRF SNF/ECF HHA Hospice 3 1 Ambulatory Care (PCP) CBOs Scenario 1: Exchange between LTPAC sites Scenario 2: Exchange from LTPAC sites to patient Patient/Family Scenario 3: Exchange from LTPAC sites to ACH sites Scenario 4: Exchange from ACH sites to LTPAC sites 2 Different Transitions Within Each Scenario • Transitions can be one of four different types depending on whether they are – “Permanent” or “Temporary” – “Elective” or ‘Urgent” • The types are: – Permanent and Elective: standard discharge – Temporary and Elective: out-pt testing and treatment or discharge from the ED – Temporary and Urgent: transfer to the ED – Permanent and Urgent: in-pt admission following ED • These transitions also vary by content and receiver types Scenarios, Priorities and Transition Types Total Transitions From (Senders) Total Surveys All Receivers Transitions to (Receivers) In Patient ED Out patient Services LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family 1135 42 43 21 36 27 664 132 18 77 30 45 In patient 194 0 0 0 9 9 125 22 5 11 6 7 ED 188 0 0 0 9 9 125 22 5 11 0 7 Out patient services 96 0 0 0 9 9 39 22 3 11 0 3 LTAC 198 7 8 7 0 0 125 22 5 11 6 7 IRF 202 7 8 7 9 0 125 22 0 11 6 7 SNF/ECF 68 7 8 7 0 0 0 22 0 11 6 7 HHA 164 7 8 0 0 0 125 0 0 11 6 7 Hospice 10 7 3 0 0 0 0 0 0 0 0 0 Ambulatory Care (PCP) 15 7 8 0 0 0 0 0 0 Transition Categories CBOs 0 0 0 0 0 0 0 0 0 Elective Patient/Family 0 0 0 0 0 0 0 0 0 Permanent Temporary Urgent Transition-Specific Data sets • Transitions can vary by: – – – – – Type: permanent or temporary Urgency: elective or emergent Origin Destination Essential “receivers” (RN, MD, CM, PT, etc): mix of roles varies by site • The essential elements are what the receivers identify as “essential”. • Transition-specific data sets share many common elements but vary in others Process to Develop Transition-specific Data Sets • The purpose of the data sets is to assure safe and efficient transfer of clinical responsibility • Receiving sites identified all essential role groups • Each role group reviewed a draft data set created by merging the S&I ToC Framework document with the Massachusetts Universal Transfer Form (UTF) • They classified elements as “required”, “optional” and “not needed”. • The sum of all “required” data elements constitutes the Transition-specific Data Set (TSDS) for that site. Role-groups by Receiving Site Priority Transitions Role Groups Responding Respondants by Role Transitions to (Receivers) Total In Patient ED Unit 49 6 6 5 Admin Out pt Services 3 LTAC IRF SNF/ECF HHA Hospice CBOs 1 Amb Care (PCP) 6 4 Patient/ Family 5 4 3 5 6 4 4 5 5 9 7 3 8 4 2 X X X X X X X X Care Transition Coach X Case Manager X EMT X MD X X X X OT X X X X X X X X X X Patient X PT X RN X X X X X X X X X X Social Work X Speech X Technician X X X X X X X X X Surveys received for each Priority Transition Total Transitions From (Senders) Transitions to (Receivers) In Patient ED Out patient Services LTAC IRF SNF/ECF HHA Hospice Amb Care (PCP) CBOs Patient/ Family Total Surveys All Receivers 1135 42 43 21 36 27 664 132 18 77 30 45 In patient 194 0 0 0 9 9 125 22 5 11 6 7 ED 188 0 0 0 9 9 125 22 5 11 0 7 Out patient services 96 0 0 0 9 9 39 22 3 11 0 3 LTAC 198 7 8 7 0 0 125 22 5 11 6 7 IRF 202 7 8 7 9 0 125 22 0 11 6 7 SNF/ECF 68 7 8 7 0 0 0 22 0 11 6 7 HHA 164 7 8 0 0 0 125 0 0 11 6 7 Hospice 10 7 3 0 0 0 0 0 0 0 0 0 Ambulatory Care (PCP) 15 7 8 0 0 0 0 0 0 0 0 0 CBOs 0 0 0 0 0 0 0 0 0 0 0 0 Patient/Family 0 0 0 0 0 0 0 0 0 0 0 0 Survey Responses by Role-group by Site Priority Transitions Priority Transitions with Data Number of Responding Sites Role Groups Responding Respondants by Role Admin Transitions to (Receivers) Total In Patient ED Unit 49 6 6 49 6 6 46 1 2 5 4 201 Out pt Services 3 3 1 4 LTAC IRF SNF/ECF HHA Hospice CBOs 1 1 1 3 Amb Care (PCP) 6 6 2 8 4 4 2 4 Patient/ Family 5 5 4 2 4 4 1 5 3 3 2 5 5 5 26 9 6 6 4 7 32 0 1 1 0 1 20 3 3 1 2 0 2 0 0 0 0 0 0 0 0 0 2 0 20 1 0 0 1 0 16 1 0 1 0 0 3 3 0 0 0 0 0 0 0 0 0 0 MD 18 1 2 0 1 3 10 0 0 1 0 0 OT 16 0 0 0 1 0 11 3 0 1 0 0 4 0 0 0 0 0 0 0 0 0 0 4 PT 23 1 0 0 0 1 17 3 0 1 0 0 RN 39 1 2 1 3 1 17 7 3 2 2 0 Social Work 19 0 0 0 0 0 19 0 0 0 0 0 Speech 19 0 0 0 0 0 12 2 0 1 0 4 6 0 0 2 0 0 0 0 0 0 0 4 Care Transition Coach Case Manager EMT Patient Technician Summary of Survey Results • 48 of 49 high priority transitions have four or more survey responses • Hospice to ED has EMT surveys only • 1135 transition-specific responses • From 12 role groups • Made up of 201 individuals • From 46 facilities Findings • More than 50 changes made to the initial draft data set • The “Current LTPAC Draft Data Set” has 300 data elements that include every required element by every essential role group in all priority transitions • Next step is to vet this more widely with essential receivers. Proposed High Level Process Flow Merged S&I ToC Data elements with UTF elements Created draft data element list for all PAC receivers Surveyed PAC receivers to determine required and optional elements 10/14/11 Map MDS 3, OASIS, IRF-PAI, CARE, VNS NY to data list Re-map data elements to S&I ToC CIM. Identify Gaps Establish CIM modifications & extension to support LTPAC HIE Identify, define, and ballot CDA modifications & extensions