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Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] SAFTINet Overview What is SAFTINet? Funding Partners and collaborators Information Technology Infrastructure Distributed network based on TRIAD technology Observational Medial Outcomes Partnership (OMOP) Common Data Model ROSITA and TRIAD node Data Extracts Data Use Use of ROSITA for population management, quality improvement Use of the network for research and comparative reporting Data Governance Next Steps for SAFTINet and AppNet What you can do Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Who is SAFTINet? A network of stakeholders interested in improving health care delivery and outcomes of underserved populations What is SAFTINet? A practice-based research network and distributed data network with a distributed database of clinical and claims data collected during routine care, to support both research and quality improvement SAFTINet Research and Quality Improvement Goals Improve health care quality and value, and reduce health disparities, in low income patients with chronic conditions who receive care in public safety net clinics, by generating evidence that will inform health policy, health services delivery, and practice at the point of care Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] AHRQ (American Recovery and Reinvestment Act 2009): Scalable Distributed Research Networks for Comparative Effectiveness Research Develop a distributed data network that collects and links data from multiple and different healthcare delivery settings ▪ Clinical data from electronic health records (EHR) ▪ Medicaid claims data Demonstrate capabilities for conducting methodologically rigorous Comparative Effectiveness Research (CER) ▪ Capability for enhanced data collection (e.g., patient-reported outcomes) R01; PI: Lisa Schilling, MD, MSPH Initial funding for infrastructure development: 9/30/2010 – 9/29/2013 Enhancement and Sustainability: 9/30/13 – 3/31/15 Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] COORDINATING CENTER University of Colorado School of Medicine: Director: Lisa Schilling, MD MSPH PARTNERS Partner Type LEADERSHIP DARTNet Institute Partner practice-based research network (PBRN) Deborah Graham, MSPH Wilson Pace, MD Bi-State Primary Care Association Partner network (clinical and claims data from 8 Vermont FQHCs) Katherine Simmons, MBA, MPH Cherokee Health Systems Safety net health care provider in Tennessee Parinda Khatri, PhD Colorado Community Managed Care Network (CCMCN) Partner network (clinical and claims data from Salud and MCPN) Jason Greer, BA Metro Community Provider Network (MCPN) Safety net health care provider in Colorado Alicyn Kaiser, PA-C, MMSc Safety net health care provider in Colorado Maria de Jesus Diaz, PhD Salud Family Health Centers Denver Health & Hospital Authority Fletcher Allen Health Care LA Community Health Resource Network Safety net health care provider in Colorado Safety net health care provider in Vermont Arthur Davidson, MD, MSPH Adam Buckley, MD Partner PBRN (Clinical data from CHAP) Lyndee Knox, PhD Community Health Alliance of Pasadena (CHAP) Safety net health care provider in California Grace Floutsis, MD AppNET Partner PBRN (clinical data from 5 FQHCs) Fred Tudiver, MD Ohio State University Academic/Technical Partner Philip Payne, PhD University of Vermont Academic Partner Rodger Kessler, PhD Technology infrastructure: Multi-node Web Portal Queries and Data Transfers Internet Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Data Type Examples Person Patient demographics Medications SNOMED codes Encounters Provider of record, date and place of service Diagnosis ICD-9 codes Procedures CPT codes Observations Vital signs, lab results Costs Paid claims Cohort Membership Clinical trial participation Death Date of death Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] FQHC1 FQHC2 FQHC3 FQHC4 FQHC5 FQHC6 FQHC7 FQHC8 CINA CDR CINA CDR CINA CDR CINA CDR CINA CDR CINA CDR CINA CDR CINA CDR XML XML XML XML XML XML XML XML ROSITA Payer Database (Medicaid, BCBS, etc) Clear Text PHI TRIAD Limited Dataset OMOP V4 Web Portal Firewall Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Firewall Secure Network Queries and Data Transfers Internet Practice Technical Requirements Install hardware and software on Practice network (PC or VM) Create access to EMR database Practice must be able to create a new user login to the EMR dBase Establish remote access to SAFTINet PC / VM Set up EMR UI and user log in on SAFTINet PC / VM Establish ability to pass files securely to ROSITA Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Our responsibilities (may not apply in all cases) Establish / create data connectors to EMR database Map identified data elements for import into CDR Testing / Validation of identified data elements in CDR Create automated secure data upload from Practice to CDR Create XML output for import into ROSITA Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Practice responsibilities Contract execution Identify IT and Clinical / EMR documentation liaison Perform activities defined under Technical Requirements Serve as a resource for assisting with location of data elements understanding documentation patterns, if needed Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] ROSITA-based queries Single or multiple FQHC, linked clinical & claims data Fully identified patient-level raw data ROSITA administrator prepares reports as desired SQL and analytic skills needed Report writing within ROSITA JasperReports Current reports focused on data quality assessments Access restricted to personnel with appropriate permissions Collaborate to identify additional reporting needs and corresponding technology enhancements Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Queries to the AppNet and other TRIAD nodes Single or multiple nodes Limited dataset of patient-level raw data (requires IRB/DUA for research, access to others’ nodes) Counts Quality metrics Access restricted to those with TRIAD accounts, with appropriate permissions Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Comparative Reporting and Benchmarking DARTNet Institute Practice Performance Reports ▪ Practice-level data in charts showing network-wide performance statistics (e.g., percent of patients at goal for blood pressure control) Comparative Effectiveness Research Analytic data sets to test relationships among different types of treatments, services, service delivery models and health outcomes Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Master consortium agreement (MCA) Describes the terms and conditions under which Consortium Members will participate in a network to permit the transfer, use and disclosure of data to a network-enabled database. Data use agreements (DUAs) A legally binding agreement between parties (e.g., contractor, private industry, academic institution, other Federal government agency, or state agency), when an external entity requests the use of Protected Health Information in the form of a Limited Data Set. Service Level Objectives (SLO) Defines roles, responsibilities and objectives for adoption and maintenance of SAFTINet technology and security Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Introduction to Practice / IT contact to discuss technical installation (determine feasibility, potential hardware / software costs, etc) If technical install feasible: Execute DARTNet Agreements CINA software license agreement (through DARTNet Institute as software reseller) Master Service Agreement (with DARTNet) BAA Statement of Work Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected] Facilitate decision making Approve technology solution Execution of contracts / agreements Champion this project with your providers and IT staff Identify opportunities for collaboration and data use for research/QI Scalable Architecture for Federated Translational Inquiries Network (SAFTINet) Supported by the Agency for Healthcare Research and Quality (AHRQ) R01-HS019908 Principal Investigator: Lisa Schilling, MD, MSPH | [email protected]