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Individual and Group Psychotherapy for Persons with MI/ID: Promoting Mental Wellness Presenters: Robert J. Fletcher, DSW, ACSW, FAAMR CEO, NADD Valerie L. Gaus, Ph.D. Senior Supervising Psychologist, YAI Private Practice January 24, 2006 Phoenix, Arizona Individual and Group Psychotherapy for Persons with MI/ID: Promoting Mental Wellness Outline of Presentation • • • • • • What is NADD? Concept of Dual Diagnosis Bio-Psychosocial Model of Assessment Application of Individual Therapy Group Therapy Cognitive Behavioral Therapy MISSION STATEMENT To advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. •NADD Bulletin Conferences/Trainings Training & Educational Products Consultation Services Robert Fletcher, DSW, ACSW, 2004 CONCEPT OF DUAL DIAGNOSIS • Co-Existence of Two Disabilities: Mental Retardation and Mental Illness • Both Mental Retardation and Mental Health disorders should be assessed and diagnosed • All needed treatments and supports should be available, effective and accessible Fletcher, 2005 DIAGNOSTIC CRITERIA OF INTELLECTUAL DISABILITY A. Significant sub-average intellectual functioning 1. IQ of 70 or below B. Concurrent deficits in adaptive functioning C. The onset before age 18 years Modified from DSM-IV-TR, 2000 DEGREE OF SEVERITY REFLECTING DEGREE OF INTELLECTUAL IMPAIRMENT Mild ID IQ 55-70 Moderate ID IQ 35-55 Severe ID _____IQ 20-35 Profound ID IQ below 20 Modified from DSM-IV-TR, 2000 WHAT IS MENTAL ILLNESS? • Severe disturbance of • Common Disorders thought mood behavior and/or social and interpersonal relationships Mood Disorders Anxiety Disorders Personality Disorders Psychotic Disorders Adjustment Disorders Sexual Disorders Robert Fletcher, DSW, ACSW, 2004 PREVALENCE Total U.S. Population: 296,000,000 (U.S. Census Bureau, Census 2005) Number of People In Total Population With ID: 6,000,000 (2% - AAMR, 2005) Number of People With ID Who Are Also Dually Diagnosed 2,000,000 (33% of ID – NADD, 2005) Robert Fletcher, DSW, ACSW, 2004 TERMINOLOGY Intellectual Disability Mental Retardation Developmental Disability Intellectual Impairment Learning Disability (UK) Dual Diagnosis Dual Disability Co-Occurring MI-ID Co-Existing Disorders Robert Fletcher, DSW, ACSW, 2004 A SUMMARY OF SIMILARITIES AND DIFFERENCES BETWEEN INTELLECTUAL DISABILITY (ID) AND MENTAL ILLNESS (MI) ID: MI: refers to sub-average (IQ) has nothing to do with IQ ID: MI: incidence: 1-2% of general population incidence: 16-20% of general population Robert Fletcher, DSW, ACSW, 2004 A SUMMARY OF SIMILARITIES AND DIFFERENCES BETWEEN INTELLECTUAL DISABILITY (ID) AND MENTAL ILLNESS (MI) ID: MI: present at birth or occurs before age 21 may have its onset at any age (usually late adolescent) ID: MI: intellectual impairment is permanent often temporary and may be reversible and is often cyclic Robert Fletcher, DSW, ACSW, 2004 A SUMMARY OF SIMILARITIES AND DIFFERENCES BETWEEN INTELLECTUAL DISABILITY (ID) AND MENTAL ILLNESS (MI) ID: MI: ID: MI: a person can usually be expected to behave rationally at his or her cognitive/emotional operational level a person may vacillate between normal and irrational behavior, displaying degrees of each adjustment difficulties are secondary to ID adjustment difficulties are secondary to psychopathology Robert Fletcher, DSW, ACSW , 2004 MYTH: INDIVIDUALS WITH INTELLECTUAL DISABILITY (ID) CANNOT HAVE A VERIFIABLE MENTAL HEATH DISORDER PREMISE: MALADAPTIVE BEHAVIORS ARE A FUNCTION OF ID REALITY: THE FULL RANGE OF PSYCHIATRIC DISORDERS CAN BE REPRESENTED IN PERSONS WITH ID TREATMENT IMPLICATIONS: PSYCHIATRIC DIAGNOSIS CAN BE MADE USING THE DSM-IV, BEHAVIORAL EQUIVALENTS, INTERVIEWS, REPORTS, OBSERVATION AND SCREENING TOOLS FOR MOST PEOPLE WITH ID Robert Fletcher, DSW, ACSW, 2004 FULL RANGE OF PSYCHIATRIC DISORDERS IN PERSONS WITH ID I. DISORDERES ASSOCIATED WITH CHILDHOOD LEARNING DISORDERS PERVASIVE DEVELOPMENTAL ATTENDTION DEFICIT DISORDER TIC DISORDERS II. DISORDERS ASSOCIATED WITH ADULTHOOD SCHIZOPHRENIA MOOD DISORDER DEPRESSIVE BI-POLAR ANXIETY DISORDERS Robert Fletcher, DSW, ACSW, 2004 FULL RANGE OF PSYCHIATRIC DISORDERS IN PERSONS WITH ID III. DISORDERS ASSOCIATED WITH OLDER ADULTS DELIRIUM DEMENTIA IV. OTHER DISORDERS SUBSTANCE ABUSE FULL RANGE OF PERSONALITY DISORDERS Robert Fletcher, DSW, ACSW, 2004 BEST PRACTICE ASSESSMENT: BIO-PSYCHOSOCIAL MODEL BIO PSYCHO PERSON SOCIAL Fletcher, 2005 BEST PRACTICE BIO-PSYCHO-SOCIAL MODEL MULTIPLE SOURCES OF ASSESSMENT 1. Review Reports 2. Interview Family 3. Interview Care Provider 4. Direct Observation 5. Clinical Interview Fletcher, 2005 BEST PRACTICE BIO-PSYCHO-SOCIAL MODEL MULTIPLE SOURCES OF ASSESSMENT • • • • • • • • • • • Reason for Referral Presenting Problem History of Challenging Behaviors Family History Personal Developmental History Medical History Psychiatric History Social History Substance Abuse History History of Sexual/Physical Abuse Forensic History Fletcher, 2005 DIAGNOSTIC OVER SHADOWING Suggesting that the condition of mental retardation decreases the diagnostic significance of a coexisting psychiatric disorder. Given this proposal, symptoms of PTSD may be overlooked and be thought of as a manifestation of the condition of mental retardation Reiss et al, 1982 FOUR ASPECTS OF MR THAT MAY INFLUENCE THE DIAGNOSTIC PROCESS 1. Intellectual Distortion 2. Psychosocial Masking 3. Cognitive Disintegration 4. Baseline Exaggeration Sovner, 1986 1. INTELLECTUAL DISTORTION Emotional symptoms are difficult to elicit because of deficits in abstract thinking and in receptive and expressive language skills. Sovner, 1986 2. PSYCHOSOCIAL MASKING Limited social experiences can influence the content of psychiatric symptoms (e.g., mania presenting as a belief that one can drive a car). Sovner, 1986 3. COGNITIVE DISINTEGRATION Decreased ability to tolerate stress, leading to anxiety-induced decompensation (sometimes misinterpreted as psychosis). Sovner, 1986 4. BASELINE EXAGGERATION Increase in severity or frequency of chronic maladaptive behavior after onset of psychiatric illness. Sovner, 1986 GUIDELINES FOR ASSESSMENT IN COUNSELING/PSYCHOTHERAPY I. ESTABLISH A BASELINE -CURRENT STATUS OF PROBLEM -EXTENT, SEVERITY, FREQUENCY II. PINPOINT TREATMENT TARGETS -IDENTIFY PROBLEM -DOES PROBLEM OCCUR ACROSS SITUATIONS? III. ASSESSMENT OF DEVELOPMENTAL LEVEL: IMPLICATION FOR TREATMENT APPROACHES -COGNITIVE AND LANGUAGE LEVEL - LEVEL OF SOCIAL-EMOTIONAL DEVELOPMENT Thompson, Prout & Strohmer, 1994 GUIDELINES FOR ASSESSMENT IN COUNSELING/PSYCHOTHERAPY (CONT.) IV. ASSESS CONSUMER’S VIEWS OF THE PROBLEM -CONSUMER’S PERCEPTIONS AND UNDERSTANDING -MOTIVATION FOR CHANGE -READINESS FOR TREATMENT V. ASSESS RELEVANT ENVIRONMENTAL FACTORS -SCHOOL -HOME/FAMILY -WORK -GROUP HOME -PEERS -SOCIAL/LEISURE Thompson, Prout & Strohmer, 1994 GUIDELINES FOR ASSESSMENT IN COUNSELING/PSYCHOTHERAPY (CONT.) VI. SELECT APPROPRIATE TREATMENT FACTORS ANXIETY DISORDER DEPRESSION RELAXATION PROCEDURES COGNITIVE APPROACH VII. EVALUATE EFFICACY -OUTCOME MEASURES -TARGET BEHAVIOR -LIFE SATISFACTION -IMPROVED RELATIONSHIPS Thompson, Prout & Strohmer, 1994 MYTH: PERSONS WITH ID ARE NOT APPROPRIATE FOR PSYCHOTHERAPY PREMISE: Impairments in cognitive abilities and language skills make psychotherapy ineffective. REALITY: Level of intelligence is not a sole indicator for appropriateness of therapy. TREATMENT IMPLICATIONS: Psychotherapy approaches need to be adapted to the expressive and receptive language skills of the person. Fletcher, 2000 PSYCHOTHERPAY/ COUNSELING • RELATIONSHIP BETWEEN A CLIENT AND A THERAPIST • ENGAGED IN A THERAPEUTIC RELATIONSHIP • TO ACHIEVE A CHANGE IN EMOTIONS, THROUGHTS OR BEHAVIOR Robert Fletcher, DSW, ACSW, 2004 GENERAL SIMILARITIES BETWEEN LIFE ISSUES FACED BY ADOLESCENTS WITHOUT MR AND ADULTS WITH MR • BOTH USUALLY DEPENDENT ON OTHERS • BOTH TEND TO BE IN SUPERVISED SETTINGS • BOTH HAVE COGNITIVE LIMITATIONS IN TERMS OF: PROBLEM SOLVING IMPULSE CONTROL CONCRETE THOUGHT • BOTH STRUGGLE WITH ISSUES OF: INDEPENDENCE PEER GROUP VOCATIONAL SEXUAL IDENTITY IDENTITY CHOICES AUTHORITY ISSUES • BOTH REFERRED TO THERAPY BY OTHERS Strohmer & Prout, 1994 COUNSELING & PSYCHOTHERAPY: WHO IS APPROPRIATE FOR THERAPY? A DEVELOPMENTAL PERSPECTIVE WITHOUT MR WITH MR 6-7 years old 6-7 years old cognitive level Mild MR Borderline MR Strohmer and Prout, 1994 PROBLEMS THAT CLIENTS WITH BORDERLINE MR AND MR WANT TO ADDRESS IN THERAPY Interpersonal Concerns General Psychological Functioning Work Sexuality Family Residential Living & Adjustment Behavior Financial & Material Resources Accepting & Coping with Disability Dealing with Authority Figures Other Wittman, Strohmer and Prout 1989 22% 18% 12% 6% 5% 5% 4% 4% 4% 4% 16% TYPES OF STRESS EXPERIENCED BY PERSONS WITH INTELLECTUAL CHALLENGES I. Ordinary Situations Which Are Not Typically Stressful To The General Population A. Social Interactions B. Meeting New People C. Going To Public Places II. Stress From Difficult To Manage Situations For All People. Even More Stress For People With Disabilities A. Major Changes In One’s Life 1. Job 2. Death In Family 3. Home Relocation B. Adult Expectations 1. Heterosexual Activities: Dating, Sex, 2. Money Management 3. Living Independently 4. Employment Duetsch, 1989 Robert Fletcher, DSW, ACSW, 2004 ISSUES AND BARRIERS CONCERNING PSYCHOTHERAPY FOR PERSONS WITH MENTAL RETARDATION • MENTAL HEALTH PROFESSIONALS PERCEIVE MALADAPTIVE BEHAVIOR AS A FUNCTION OF MENTAL RETARDATION. • MANY ASSUME THAT PERSONS WITH MENTAL RETARDATION ARE IMMUNE FROM MENTAL ILLNESS. • PROFESSIONAL BIAS IN VIEWING INTELLECTUAL DISABILITY AS A BARRIER TO PSYCHOTHERAPY. • DICHOTOMIZATION OF MENTAL RETARDATION AND MENTAL HEALTH REGULATORY ENTITIES. Robert Fletcher, DSW, ACSW, 2004 LIMITED LITERATURE & RESEARCH IN PSYCHOTHERAPY FOR PERSONS WITH MENTAL RETARDATION • EARLIER STUDIES SUGGESTED THAT PSYCHOTHERAPY YIELDED NO OR MINIMAL BENEFIT (Eysanck 1952, 1965) • RECENT STUDIES POINT TO POSITIVE FINDINGS (Lipsey & Wilson, 1993; Prout & Nowak-Drabik, 2003) • RESEARCH NEEDS MORE EMPIRICALLY BASED MODELS OF INVESTIGATION (Prout et al, 2000) • LACK OF METHODOLOGICAL RIGOR (Prout et al, 2003) Robert Fletcher, DSW, ACSW, 2004 PRINCIPLES FOR ACHIEVING A THERAPEUTIC RELATIONSHIP • EMPATHETIC • BE CONSISTENT UNDERSTANDING • CONFIDENTIALITY • RESPECT AND ACCEPTANCE OF CLIENT • DRAW THE CLIENT OUT • EXPRESS GENUINE • THERAPEUTIC GENUINENESS • CONCRETENESS INTEREST IN YOUR CLIENT • BE AWARE OF YOUR OWN • ACCEPT THE CLIENT’S LIFE FEELINGS CIRCUMSTANCES Robert Fletcher, DSW, ACSW, 2004 CONSIDERATIONS IN THERAPY WITH PERSONS WHO HAVE MENTAL ILLNESS AND MENTAL RETARDATION • SPECIAL CONSIDERATIONS • WATCH FOR PLEASERS • SLOW PROGRESS • MULTIPLICITY OF PROBLEMS • RELIABILITY OF REPORTING • DIFFICULTY RELATING TO ANALOGIES • PROBLEMS WITH TERMINATING Robert Fletcher, DSW, ACSW , 2004 CONFIDENTIALITY • What is discussed in therapy must be kept private • Care providers may bring pertinent information to the therapist. The information will be discussed with person in a manner he/she can understand • Nothing discussed in therapy will be released without the person’s permission • With the client’s permission, the therapist will work collaboratively other care providers Robert Fletcher, DSW, ACSW, 2004 SERVICE COMPONENTS Family Support Medical and Dental Housing Outpatient Mental Health Transportation Sexual Offender Service Inpatient Mental Health Person Hospital Diversion Substance Abuse Service Crisis Prevention and Intervention Day Service Vocational/ Employment Positive Behavioral Support Robert Fletcher, DSW, ACSW, 2004 TECHNIQUES FOR PROMOTING MENTAL WELLNESS HELP PEOPLE BETTER COPE WITH DAILY PROBLEMS • LISTEN • REFLECT • PROBE • SUPPORT • FACILITATE PROBLEM SOLVING • EVALUATE OUTCOME YAI TECHNIQUES FOR PROMOTING MENTAL WELLNESS ACTIVE LISTENING ATTENTIVE INTERESTED REFLECT REPEAT A FEW WORDS REFLECT DEMONSTRATES ACTIVE LISTENING YAI TECHNIQUES FOR PROMOTING MENTAL WELLNESS PROBE ASK DIRECT QUESTIONS AVOID INTERROGATION HOW AND WHAT QUESTIONS ARE USUALLY EASIER TO ANSWER THAN WHY QUESTIONS YAI TECHNIQUES FOR PROMOTING MENTAL WELLNESS SUPPORT SUPPORTIVE STATEMENTS INDICATE UNDERSTANDING EXPRESS THAT YOU CARE ACKNOWLEDGE HAVING BEEN IN A SIMILAR SITUATION YAI TECHNIQUES FOR PROMOTING MENTAL WELLNESS FACILITATE PROBLEM SOLVING EXPLORE ALTERNATIVE OPTIONS SUPPORT ACCEPTABLE SOLUTIONS YAI TECHNIQUES FOR PROMOTING MENTAL WELLNESS EVALUATE OUTCOME WAS OUTCOME ACCEPTABLE? WAS IT POSITIVE? WHAT WAS LEARNED? YAI Robert Fletcher, DSW, ACSW - 2004 - STAGES OF PSYCHOTHERAPY WITH PERSON WHO HAVE MENTAL RETARDATION I. INITIAL STAGE - THERAPY GOALS ESTABLISHED - GROUND RULES - RAPPORT DEVELOPED II. MIDDLE STAGE - SOLIDIFIED THERAPEUTIC RELATIONSHIPS - THERAPIST IS EMPATHIC - EMOTIONS ARE EXPRESSED - PROBLEMS ARE IDENTIFIED - ALTERNATIVE SOLUTIONS Robert Fletcher, DSW, ACSW, 2004 STAGES OF PSYCHOTHERAPY WITH PERSON WHO HAVE MENTAL RETARDATION III. TERMINATION STAGE - EXPLORE PAST LOSSES - REVIEWS GAINS MADE DURING THERAPY - EXPLORE FEELINGS OF TERMINATION Robert Fletcher, DSW, ACSW, 2004 PREDICTABLE CRISIS ASSESSMENT OUTLINE • Confirmation/realization of diagnosis of mental retardation • Birth of siblings • Starting school • Puberty and adolescence • Sex and dating • Being surpassed by younger siblings • Emancipation of siblings • End of education Levitas and Gilson, 1989 PREDICTABLE CRISIS ASSESSMENT OUTLINE • Out-of-home placement and/or residential moves • Staff/client relationships • Inappropriate expectations • Aging, illness and/or death of parents • Death of peers or loss of friends • Medical illness • Psychiatric illness • Other Levitas and Gilson, 1989 Robert Fletcher, DSW, ACSW - 2004 - NO QUICK FIX Robert Fletcher, DSW, ACSW , 2004