Download Northwest Tribal Comprehensive Cancer Program and Resource

Northwest Tribal Comprehensive
Cancer Program and Resource Development
September 7, 2007
Beadwork is courtesy Greg Vann, Cherokee
NPAIHB Organizational Chart
Northwest Portland Area Indian Health Board
Executive Committee Members
NPAIHB
Joe Finkbonner,
Executive Director
Northwest Tribal Epidemology Center
Victoria Warren-Mears,
Director
NTCCP & WTDP
Kerri Lopez,
Director
Northwest Diabetes Project
NTCCP
& WHPP
National Diabetes Project
Northwest Tribal Comprehensive Cancer
Program Goals
1.
Facilitate a process for Northwest tribes to promote cancer
risk reduction strategies.
2.
Provide information on the most current early detection,
screening and treatment practices through education and
resource materials.
3.
Provide education regarding quality of life for cancer
patients, their families and caretakers.
4.
Coordinate and collaborate with local and national cancer
organizations and individuals.
5.
Improve Indian-specific cancer control data.
NTCCP Mission
To envision and work toward cancerfree tribal communities by taking an
integrated and coordinated approach
to cancer control
2007
•20 Year Tribal Cancer Control Plan Revised
•Competitive Reapplication and Funding
•Application for Supplemental Funding to Develop Tribal
Community Colorectal Cancer Education and Outreach curriculum
Approved but not funded
1998
1999
2000
2001
2002
2003
2004
2005
2006
2007
Resource Guide
Design Considerations
•Area specific art (Nez Perce Baskets and Bags)
•Common footer, except introduction and section header pages
•Feather
•Page numbers
•Publication name and year
•Organization logos on outside corner when available
•Doublesided
•Sections begin on odd numbered pages (face forward when printed)
•Evaluation form
•Order form
•Information update form
•Funding Recognition
•Reduce loss of knowledge during staff turnover
Table of Contents (page 5)
•Section 1: Northwest Portland Area Indian Health Board
•Section 2: Northwest Tribal Cancer Contacts
•Section 3: Resources for Cancer Patients and Caregivers
•Section 4: Breast and Cervical Cancer Early Detection Programs
•Section 5: Tribal Cancer Control Planning Forms and Examples
•Section 6: Cancer Control Partnership Programs
•Section 7: Cancer Treatment Centers
•Section 8: Appendices
Section 1 (page 7)
Northwest Portland Area Indian Health Board
Intended Purposes:
•Describe NPAIHB - serves all 43 Federally Recognized Tribes in
Idaho, Oregon, and Washington
•Lists all NPAIHB Member Tribes
•Illustrates geographic diversity with map of states and Tribes
Section 2 (page 11)
Northwest Tribal Cancer Contacts
Intended Purposes:
•List Tribal Cancer Contacts at all NPAIHB Member Tribes
Contacts are:
Community Health Representatives
Women’s Health Providers
Medical Directors
Tribal Health Directors
All are vitally involved in addressing Cancer in their
community
•Multiple listings when requested
•Full Contact information including Tribe, Name, Position, Email,
Phone, Fax, Address, and Last Update
•Organizations interested in outreach have valid contact info
•Tribes have contacts to organize intertribal events
Section 3 (page 21)
Resources for Cancer Patients and Caregivers
Intended Purposes:
•List Resources related to Cancer available to individuals
Pages include:
General Information
Resources Available
How to Obtain Resources
Contact Information
•Information requested from official representative
•Sent for their review before publication
•Includes table of listed organizations
•Empowers individuals to access resources
•Improves access to organizations for events (ex. Health Fair)
Table of Section 3 Cancer Resources:
•Indicates which types of individual resources are available
oIncludes:
Financial
Housing
Transportation
Flight
Prescription
Homecare
Insurance Co-pay Assistance
Durable Medical Equipment
Prosthetics & Wigs
Support Group / Counseling
Education / Information
Page Number for Listing
Icons
Section 4 (page 41)
Breast and Cervical Cancer Early Detection Programs
Intended Purposes:
•List Centers for Disease Control and Prevention Funded Programs
Pages include:
General Information
Resources Available (Eligibility Guidelines)
How to Obtain Resources
Contact Information (Program Manager)
•Information requested from official representative
•Sent for their review before publication
•Includes table and contacts of prime contractors
•Indicates contractor responsible for serving tribes
•Contractor is necessary to access state funding for clinic services
Section 5 (page 53)
Tribal Cancer Control Planning Forms and Examples
Intended Purposes:
•Provide information about Planning
Strategic
Activity
•Sample plans included
•Blank Forms for use in developing plans
Section 6 (page 61)
Cancer Control Partnership Programs for
conducting Activities with Northwest Tribes
Intended Purposes:
•List Resources related to Cancer available to programs
Pages include:
General Information
Resources Available
How to Obtain Resources
Contact Information
•Information requested from official representative
•Sent for their review before publication
•Includes table of listed organizations
•Empowers program development to address burden of cancer
•Improves access to organizations for technical assistance
Table of Section 6 Cancer Resources:
•Indicates which types of technical assistance are available
Includes:
Grant
Presentations
Trainings
Speakers Bureau
Cancer Research
Conference/Workshop Organizer
Available Meeting Space
Data Provider
Program Evaluation
Materials Development
Grant Writing Assistance
Page Number for Listing
Icons
Section 6 (page 85)
Table of American College of Surgeons Certified Cancer
Centers:
•Organized by state, city
•Information accessed from website
•Contact includes:
•Name
•Address
•Phone Fax
•Website
•List options of treatment locations
Section 7 (page 93)
Appendices
Appendix A: Directory of Regional Branches of National Organizations
•Table of American Cancer Society Branches
•Addresses of American Cancer Society Branches
•Table of Susan G. Komen for the Cure Affiliates
•Addresses of Susan G. Komen Breast Cancer Foundation Affiliates
•Table of American Lung Association Regional Offices
•Addresses of American Lung Association Regional Offices
•Addresses for Sites of Northwest Tribal Cancer Navigator Program
•Table of Hospice Organizations Serving Washington Tribes
•Addresses of Hospice Organizations Serving Washington Tribes
Appendix B: ACS Article: Making Resources Available in Indian Communities
Appendix C: Screening Guidelines
Appendix D: Evaluation Form
Appendix E: Order Form
Appendix F: Update Form
Intended Purposes:
•Where to go for local assistance – know the resources in your
community
•Retain contact information during changes in staff
•Lists tribes in affiliate/branch/office service area
•All tribes, even those without affiliate coverage
•Where to access Hospice services – potential partner in Palliative Care
•Clarify ACS model of community operation and Resources
•Included article from Deb Schiro, Vice-President, Survivorship and Quality
of Life Great West Division, American Cancer Society
•Quick easy to access location for forms (evaluation, order, and update)
Project Director: Kerri Lopez
Project Staff: Eric Vinson
Northwest Tribal Data Registry: Doug White
Epidemiologist: Thomas Becker, MD, PhD
Tel: 503-228-4185
Fax: 503-228-8182
Email: [email protected]
Webpage: http://www.npaihb.org/
Funded by CDC Grant Number 1 U58 DP000786-1