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Table of Contents Rideout Health Cancer Center Patient Resources 3 Wellness Programs 4 Financial Assistance Programs 5 University of California, Davis Financial Assistance Programs 5 Transportation 6-7 Lodging 8 Food Programs 9 Pharmacies offering Delivery 10 Housing 11-15 Low-Cost Housing, Section 8, Subsidized Housing 11-12 Emergency Shelters 11-12 Homecare Services 12-14 Financial Assistance: Utilities 14-15 Cancer Education Resources For Speaking With Children 16-17 17 Legal Services 18 Financial Assistance 19-22 Financial Assistance: All Cancers 19-20 Financial Assistance: Breast Cancer 20-21 Financial Assistance: Blood Cancers and Disorders 21 Financial Assistance: Government Programs 22 Supportive Services Local Counseling Services 1|Page 23-26 23 24-hour Support Lines 23 Online Social Support 24-26 Recommended Reading 27-28 Readings for Adults 27-28 Readings for Children and Youth 28 Other Support 29-30 Tobacco Cessation Programs 29 Oncology Massage Programs 29-30 Low-Cost Dental Services 30 Contact Information Cancer Center’s Most 30 Commonly Referred to Doctors and Services Appendix 21st Century Care Application Advanced Directives Form American Cancer Society Referral Form Donated Dental Services Application Local Skilled Nursing Facilities and Assisted Living Rideout Facilities Map Rideout Support Group Flyer Yoga Medical Clearance Form Yuba County Section 8 Housing Pre-Application 2|Page 31 Rideout Cancer Center Supportive Resources Resource Center: The Rideout Cancer Center has a comprehensive resource center where you can pick up booklets, magazines and brochures on topics related to your diagnosis, treatment, support, care givers and much more. If a resource is not available, mention it to the resource staff and efforts will be made to get the information you are seeking. Peer Navigator Program, Lorna Yatman: The WeCare! Community-Based Peer Navigator program provides special support on a one-on-one basis. It matches newly diagnosis cancer patients with trained cancer survivors. Peer navigators are survivors who have been trained to be “cancer coaches”. They will provide information on your disease and treatment options, as well as resources to help you and those you love. They are trained to assist with problem solving and coping strategies. To find out more information about the Peer Navigator program please contact the Patient Resource Office (530) 749-4400 x 1625. Oncology Clinical Educator, Lorna Yatman: The oncology clinical educator is a registered nurse that has a background in all facets of the medical oncology department. The educator’s focus is on teaching patients, and their friends and family, about their medical condition and the type of treatment their physician has prescribed. The oncology clinical educator is a resource for all patients, their friends and family, the community and also the nursing staff. The Educator is available to answer any questions you may have about your chemotherapy treatment. (530) 7514270 x 1603 Oncology Social Worker, Christine Means: The oncology social worker helps you focus on strategies to help improve your quality of life. The social worker plays a vital role as an interface between the medical team and you to help you and your family address fears and concerns, develop coping strategies and improve adjustments to a very stressful time in your life. The social worker provides psychosocial assessment; supportive counseling and referral to community agencies in an effort to assist patients and families cope with the psychological, emotional, financial, and spiritual effects of cancer. To contact Christine, please visit the Patient Resource Office or call (530) 749-4400 x 1692 or email [email protected]. Lending Library: Come sit, relax, and enjoy a book from the Lending Library located in the Patient Resource Center. No worries about checking the book out or bringing it back! The Lending Library is a collection of non-cancer related books for anyone to enjoy. Book donations are accepted in the Patient Resource Center. For more information please contact the Patient Resource Center (530) 749-4400x 1625 3|Page Wellness Programs Cancer Center Support Group: Cancer can be overwhelming. You are not alone. We are here to help. The Cancer Center Support Group provides a safe and confidential place for anyone affected by cancer to meet other cancer survivors and their families and friends. We discuss a wide range of topics and strategies for coping with the physical, emotional, and spiritual side effects of chemotherapy and a cancer diagnosis. Come meet new friends, help others, and find a new supportive network of people who know what you are going through. Meetings are held every Thursday in the Cancer Center’s Library of Life from 11:30 a.m.-12:45 p.m. For more information please contact the Social Worker (530) 749-4400 x 1692. Expressive Writing: This class is free for all community members as well as those affected by cancer and other chronic illnesses or injuries. Whether you’re a patient, family member, friend, caregiver or health-care provider, you have a story to share. This group is a supportive place for you to express yourself through writing. During group meetings, participants write and respond to each other’s creative work. Writing with others is inspirational, fun and healing. Come join us as we write together and share our voices. No experience in creative writing is required. The intention of the workshop is to create a sense of freedom and excitement about writing. Expressive writing takes place every other Thursday in the Wellness Room from 2:15-3:15 p.m. Please call the Patient Resource Center for class schedule (530) 749-4400 x 1625. Participation is free. Expressive Art: This class is free for all community members as well as those affected by cancer and other chronic illnesses or injuries. This class is a supportive place for you to express yourself through art. During group meetings participants create art and have the option to share it with other participants. Art can be healing, stress relieving, and fun. Expressive Art takes place every other Thursday in the Wellness Room from 2:15-3:15 p.m. Please contact the Patient Resource Center for class schedule (530) 749-4400 x 1625. Participation is free. Yoga: Living with cancer can create many stresses, which can in turn compromise immune functioning. Wellness of mind, body and spirit programs can help you learn to manage these stress levels. Despite new research showing that women and men respond differently to stress, the programs we offer at the Center cross over gender boundaries. These programs can evoke beneficial physiological effects and help reduce stress. Classes are free for all community members. All participants must complete a medical clearance prior to participating in Yoga. You can pick up application at the front desk or see appendix. For more information please contact the Patient Resource Center. (530) 749-4400 x 1625 4|Page Financial Assistance Programs If your cancer diagnosis has created financial hardship, please contact the social worker to see if you qualify for community resources. University of California, Davis Financial Assistance Programs UCD Medical Center Patient Financial Services: For billing/payment for treatment questions please call: (916) 734-9200. UC Davis Cancer Center Website: http://www.ucdmc.ucdavis.edu/cancer UC Davis Cancer Center 4501 X Street Sacramento, CA 95817 Placer Center for Health 550 West Ranch View Drive, Suite 2005 Rocklin, CA 957 5|Page Transportation To/From Your Cancer Treatment Many cancer patients require frequent, if not daily treatment. This can create stress on you and your caregivers. Ideally, you will have had the time to address your transportation needs before beginning treatment. However, with all the stress of a new diagnosis, insurance, and numerous doctors’ appointments we understand transportation arrangements can easily be overlooked. Your primary transportation ideally comes from your family and closest friends. It is a good idea, when undergoing daily treatment, to rotate who will help each day to avoid burn out of a single care-giver. Adult children, spouses, significant others, family friends, extended family and parents are typically the main source of transportation. Your second source of transportation should be your wider circle of friends, neighbors and community. If you belong to a church, club or group, they may help. Co-workers also may be able to help. It is normal to feel uncomfortable asking for help with transportation. However, many times family and friends want to help. Giving family and friends this opportunity to help you will help them feel more included and useful in your treatment. www.caringbridge.org offers an online tool for friends and family to sign up to help with transportation, errands, and chores. Other Transportation Resources The American Cancer Society offers transportation services ranging from .14 cent mileage reimbursement to a volunteer (if one covers your area) who can pick you up and bring you to your appointment. The volunteer service needs a one-week notice prior to your appointment. To learn more information visit the Cancer Center’s Patient Resource Center or visit American Cancer Society’s “Road to Recovery” 1(800) ACS-2345 (1-800-227-2345) www.cancer.org If you are living in a skilled nursing facility (SNF) you can inquire about the SNF’s transportation services. For patients with additional severe disabilities (for example, on daily dialysis, paraplegic, significant developmental delay, and severe seizure disorders) transportation is a benefit of your insurance, call your insurance provider for more details. Some transportation benefits are offered through the VA program. If you have Tri-Care, call 1(800) 827-1000 National helpline or California 1(800) 952-5626 www.va.gov If you are currently using a wheelchair and have Medi-Cal, Medi-Cal will pay for you to be transported to all of your non-emergent medical appointments. Below is a list of local transportation companies which accept Medi-Cal or offer low-cost non-emergent transportation services. 6|Page Bills Medi-Cal Everyday Friendly Transportation: (530) 751-9370 Heart to Heart Transportation (Travels to Colusa): (530) 674-1515 Lor Transportation: (530) 845-5353 Merit Medi-Transportation: (530) 743-9550 Guardian Angel: (530) 315-4836 Low-Cost Non-Emergent Transportation Budget Cab: (530) 755-1415 Case Management Transportation: (530) 743-1991. Provides transportation to important medical appointments for ambulatory passengers. Transports to out-of-area appointments. FREED Senior Transportation Voucher Program: (530) 742-4474. Offers transportation vouchers to individuals 60+ which can be used to access existing transportation services. Colusa County Transit: (530) 458-0466. Offers out-of-county transportation to medical appointments. Must be completely ambulatory. Yuba Sutter Transit and Dial-A-Ride: (530) 742-2877. Riders must be able to board bus independently. Drivers cannot assist with boarding. o Dial-A-Ride Full Price-$4 one way Discounted fare-$2 one way o Yuba-Sutter Transit To see a bus schedule and routes please visit: http://www.yubasuttertransit.com/lroutes.htm 7|Page Lodging This listing of overnight accommodations is provided solely for the use and convenience of patients and their families. Rideout Cancer Center neither endorses nor supports any of the facilities listed. This is only a partial listing of facilities in a two-mile radius. Budget Inn www.budgetinn.com 230 E. St, Marysville (530) 742-5900 Motel 6 www.motel6.com 803 E. St, Marysville (530) 743-5465 Americas Best Value Inn www.abvimarysville.com 721 10th St, Marysville (530) 742-8586 Townhouse Motel Marysville 322 9th St, Marysville www.reservation.magnusonhotels.com (530) 743-4639 Comfort Suites www.comfortsuites.com 1034 North Beale Rd, Marysville (530) 742-9200 Rio Inn & Suites www.rioinnsuites.com 899 North Beale Rd, Marysville (530)749-8344 Super 8 www.super8.com 1078 North Beale Rd, Marysville (530)742-8238 Baymont Inn & Suites www.baymontinns.com 1111North Beale Rd, Marysville (530)742-2700 8|Page Food Programs Congregate Lunch: Provides free lunch to individuals over 65. (RESERVATIONS ARE REQUIRED) Mon-Fri 11:45 a.m. Brownsville Senior Café: 17103 N. Ponderosa Way (530) 321-7651 Olivehurst Senior Café: 4979 Olivehurst Ave (530)635-4011 Wheatland Senior Café: 705 3rd St. (530) 635-4026 Yuba City Senior Café: 777 Ainsley Ave (530) 674-2338 Meals on Wheels: (530) 538-7158x 223 or (530) 891-2897 Option 4 ext. 245. Delivers meals to home bound older adults over 65. Project Angel Food: www.angelfood.org Provides home delivered meals to individuals with HIV/AIDS, cancer, or other life-threatening illness. SHARE: 1(800) 499-2506. Receive up to $30 of groceries for $15 and 2 hours of volunteering. Open to everyone. Yuba County Senior Snack Program: (530) 749-6471. Provides adults over 65 with snacks to supplement their meals. Yuba Sutter Gleaners Food Bank: http://www.ysgleaners.org/ (530) 673-3834, 760 Stafford Way, Yuba City, CA 95991 Camptonville Community Partnership: 16585 School Street Camptonville, CA 95922 (530) 288-9355. Family Resource Center helps provide food for families. Christian Assistance Network: 232 Teegarden Ave, Yuba City, CA (530) 671-2406 Open MondayThursday 9:00 am-4:00 pm. Assists families with food, rent, diapers, clothing, and gas for vehicles. Ask Social Worker for referral. Glad Tidings Church: 1179 Eager Road, Yuba City, (530) 671-3160. Provides food and psychosocial support for community members. Riverside Restoration Center: 5828 Riverside Drive Marysville. (530) 742-4673. Food Bank open Tuesdays 3:00-4:00 and Fridays 3:00-5:00. Assists with food and clothing emergencies. Also offers a snack program for children ages 7-14. Serves only Linda and Olivehurst residents. Saint Andrews Presbyterian Church: 1390 Franklin, Road Yuba City (530) 673-7353. Emergency food bank open Monday-Friday 1:30-3:15 pm. Saint Andrews also provides a free lunch every last Friday of the month between 12:00-1:00 p.m. Saint John’s Food Shelf: 800 D Street Maryville (530) 741-2877 Saint Joseph’s Church: 223 8th Street Marysville (530) 742-6461 St. Isidore’s Church: 222 Clark Ave Yuba City 9|Page Pharmacies Many people already have pharmacies they have used for years and are comfortable with, and if you already have a pharmacy you are happy with…GREAT!!! If you do not already have a pharmacy below is a listing of local pharmacies that deliver. There are many more great local pharmacies around and we encourage you to pick one you are comfortable with. Free Delivery The Medicine Shoppe: 812 Fifth St, Marysville, CA 95901 | (530) 743-4629 MediMart Pharmacy: 5993 Lindhurst Avenue, Marysville, CA 95901 | (530) 742-8808 Wal-Mart Pharmacy: Only delivers commonly prescribed medications prescribed in common amounts. Contact the pharmacy for more details and visit their webpage for more information: http://www.walmart.com/cp/Pharmacy-Home-Delivery/1042239 o Linda Wal-Mart: 1131 N Beale Rd, Marysville, CA 95901 (530) 634-9751 o Yuba City Wal-Mart: 1150 Harter Rd, Yuba City, CA 95993 (530) 751-0130 Walgreens: 602 10th St., Marysville, CA 95901 (530) 743-2594. Free Delivery on medications costing more than $25. 10 | P a g e Low Cost Housing The unfortunate thing about cancer is that we cannot plan for cancer. It’s just something that happens to you. Sometimes, during treatment some people decide to move to homes with lower rent. There are also programs called Subsidized Housing or Section 8 housing which help people below a certain income level pay for rent. To apply for these programs visit your county’s Housing Authority. Sutter County Housing Authority: (530) 671-0220. Helps low-income families and older adults apply for Section 8 housing. Yuba County Family Self Sufficiency Program: 915 8th Street, Suite 130, Marysville (530) 749-5460. The FSS Program is a voluntary program designed to assist low-income families in becoming economically independent and free from public assistance. Yuba County Section 8 Housing Choice Voucher Program: 915 8th Street, Suite 130, Marysville (530) 749-5460. The Section 8 Housing Choice Voucher Program assists lowincome residents of Yuba County to rent affordable, safe, and sanitary housing. The Department of Housing and Urban Development (HUD) provides Yuba County with Federal funds to administer the Section 8 Housing Choice Voucher Program. Please see application in appendix and visit http://www.co.yuba.ca.us/departments/community%20development/housing/housingchoi cevoucherprogram_NEW.aspx for more information on the program and for income eligibility requirements. Below is a listing of low-cost housing and emergency shelters in Sutter and Yuba counties. Alberta Gardens: Subsidized Housing, Has rental assistance program to reduce rent to 30% adjusted gross income. Must have good credit. No prior evictions. $20.00 credit check fee per- adult. No pets. Waiting list 6 to 8 months. 6024 Alberta Ave., Marysville, CA 95901 (530) 749-9403 Beale Star Apartments: Section 8 accepted. No prior evictions. Will work with credit, as needed. Located near public and school bus stops. Swimming pool and playground. Drug Free Zone. 1 Bedroom $495.00, 2 Bedroom $595.00 Deposit $500.00 1525 North Beale Rd., Marysville, CA 95901 (530) 741-9830 Beverly Terrace Apartments: 30% adjusted gross income sliding scale. 2 years or more waiting list. 5903 Lowe Ave, Marysville, CA 95901 (530) 742-7463 Birch Apartments: Section 8 accepted. No pets allowed. $25.00 credit check fee per adult. 1 Bedroom $575.00, 2 Bedroom $615.00 Deposit $350.00. 1215 Williams Way, Yuba City, CA 95991 (530) 675-3901 11 | P a g e Bridges to Housing: Information about where to apply for training and assistance for presenting applications to landlords. Training will be provided regarding tenant rights, expectations of landlords and money management. 909 Spiva Ave., Yuba City (530) 7420730 Casa De Esperanza: (530) 674-5400. Provides a safe shelter for victims of domestic violence, intimate partner abuse, and/or sexual abuse. Hands of Hope Homeless Shelter: 909 Spiva Ave., Yuba City (530) 755-3491. Offers a free food closet, clothing closet, showers, laundry, and hygiene supplies. National Association of Hospital Hospitality Houses: Provides a listing of lodging and support services to patients and their families who are confronted by medical emergencies. For more information please visit: http://www.nahhh.org/ Salvation Army Depot Family Crisis Center: 408 J Street, Marysville (530) 216-4530. Provides temporary housing for homeless families. Twin Cities Rescue Mission: 940 14th Street, Marysville, CA 95901 (530) 743-8777. Residential services for men 18+. Hygienic services for all adults 18+. Homecare Being a caregiver is one of the hardest jobs ever. Sometimes it is just as hard for a caregiver to ask for help as it is for the patient. If the caregiver isn’t doing well who is going to take care of the patient?! It’s OK to take a break and ask for help!!! Below is a listing of local homecare services. Always Best Care Senior Services: (530) 613-5789. Non-medical in home care and assisted living placement for older adults. Apria Healthcare: (530) 673-5513. 990 Klamath Lane, Suite 11, Yuba City. Provides respiratory equipment and medications, Oxygen Therapy Equipment, walking aids, patient room and bathroom equipment, and enteral therapy. www.apria.com Area Agency on Aging: (916) 486-1876. Homemaker aid, ombudsman, information, and referral for those over age 60. Butte Therapy Systems: (530) 671-5144. 1695 A Sierra Ave., Yuba City. Provides home oxygen and medical equipment. Colusa County Home Health: (530) 458-2075. 346 5th Street, Colusa. Provides in-home assistance to families. Contact your doctor for more information. 12 | P a g e Comfort Keepers: (530) 749-8800. Non-medical in-home care, minimum 4 hour increments. Eldercare Locator: Helps locate community services for older adults to remain in the home. www.eldercare.gov Family Home Medical: (530) 751-7900. 1200 Market Street, Suite A Yuba City. Provides respiratory and home medical supplies. Interim HomeStyle Services: (530) 673-0300. 1557 Starr Dr. Yuba City. Provides Inhome healthcare. www.interimealthcare.com Lifeline: (530) 743-5500. Provides a personal remote control device for emergency response for older adults, disabled, or isolated individuals. Call for rates. Rideout Home Health: (530) 749-4386. 939 Live Oak Blvd., Yuba City. http://www.frhg.org/Medical-Services/Fremont-Rideout-Home-Health.aspx Rideout Hospice: (530) 790-3006. 939 Live Oak Blvd Yuba City. For more information please contact Patient Resource Center or your doctor. Seniors Helping Seniors Handyman Program: (530) 822-4608. Helps individuals 60+ with simple fixes around the home. Only within Yuba City city limits. Sutter County In-Home Supportive Services: (530) 822-7618. Provides financial assistance for people over 65, permanently disabled, or Medi-Cal recipients to hire a caregiver. Sutter North Hospice: (530) 749-3460. 400 Plumas Blvd., Yuba City. For patients diagnosis with a terminal illness provides care to patients and their families. Yuba County In-Home Supportive Services: (530) 749-6471. Provides financial assistance for people over 65, permanently disabled, or Medi-Cal recipients to hire a caregiver. Yuba County Multipurpose Senior Services Program: 5730 Packard Ave. Suite 100, Marysville. (530) 749-6471. The primary objective of the Multipurpose Senior Services Program, MSSP, is to foster and maintain independence and dignity in community settings for frail seniors by preventing or delaying their inappropriate placement in a nursing facility. MSSP provides social and health case management services for seniors who are at risk of placement in a nursing facility, but wish to remain in their own home and community. A Social Worker and a Public Health Nurse work collaboratively together in providing case management services for seniors enrolled in the MSSP 13 | P a g e Program. For more information visit: http://www.co.yuba.ca.us/departments/hhsd/aps/MSSP.aspx In-Home Care Assistance: If you purchased long-term care insurance, or if you are covered under Veterans Tri-Care insurance, you may have in-home care costs covered as a benefit of your plan. Call your care provider to obtain information on contracted care givers. If you do not have long-term care insurance or Tri-Care insurance, you will most likely need to pay for in-home care. A resource for hiring in-home care givers is through Eskaton Caregiver Resource (916) 334-1072 or 1(866) 375-2866 Provides resources to supportive services. http://www.eskaton.org/home-based-support.html and http://www.eskaton.org/PDFs/CRG.pdf Financial Assistance for Utilities Gas and Electric Assistance Programs PG&E CARE Program: Provides a monthly discount on energy bills for income-qualified households. Qualifications are based on the number of persons living in your home and your total household income. For more information visit: http://www.pge.com/en/myhome/customerservice/financialassistance/care/index.page PG&E Energy Savings Assistance Program: Provides income qualified renters and homeowners with free solutions to help manage their energy use and save money on their monthly energy bills. For more information visit: http://www.pge.com/myhome/customerservice/financialassistance/energysavingsassistancepr ogram/ PG&E Family Electric Rate Assistance Program: Provides discounts to low-income qualified households of three or more people. For more information visit: http://www.pge.com/myhome/customerservice/financialassistance/fera/ PG&E Medical Baseline Program: To qualify for Medical Baseline, a California licensed physician must certify that a full-time resident in your home has one of these conditions: Dependent on life support equipment (example: oxygen, bi-pap, ect.) while at home, a paraplegic, hemiplegic, quadriplegic or multiple sclerosis patient with special eating and/or cooling needs, a scleroderma patient with special heating needs, or a life threatening illness or compromised immune system which requires special heating and/or cooling requirements to sustain the patient’s life. For more information visit: http://www.pge.com/myhome/customerservice/financialassistance/medicalbaseline/ 14 | P a g e PG&E Relief for Energy Assistance through Community Help: REACH is a one-time energy-assistance program sponsored by Salvation Army and PG&E. Those who have experienced an uncontrollable or unforeseen hardship may receive up to $200 to put towards a past due bill. Assistance is available once in an 18 month period with the exceptions for seniors, physically challenged, and the terminally ill. To apply please visit: http://www1.usw.salvationarmy.org/usw/www_usw_delorodiv.nsf/vw-dynamicindex/6256686998A986488825743B0080B90C?Opendocument For more information on this program please visit: http://www.pge.com/myhome/customerservice/financialassistance/reach/ Heat & Energy Assistance Program (HEAP): Assists families with PG&E payments. To apply please visit: http://www.cresource.org/programs_utility.html 15 | P a g e Cancer Education Having cancer can be scary. Please ask as many questions as possible. That is what we are here for. Never feel your question is too small or “stupid” to ask. If it’s important to you than it’s important! At the Cancer Center we offer a class called Chemotherapy and You every Wednesday in the Wellness Room from 2-4:00 p.m. The class covers chemotherapy side-effects, nutrition, and what to expect while receiving a chemotherapy treatment. RSVP to Lorna at (530) 749-4400, ext. 1603. American Cancer Society: Offers information on a variety of cancers, clinical trials, supportive services, and caregiver support. www.cancer.org BMT InfoNet: 1(888) 597-7674. A non-profit organization dedicated to serving the needs of the transplant community. www.bmtinfonet.org. Cancer Care: Offers cancer information as well as financial assistance programs. www.cancercare.org Cancer Connections: An online community where people affected by cancer can find information and support. http://www.cancerconnections.com.au/ Cancer Resource Center: Offers cancer information in multiple languages. http://www.crcfl.net/content/view/language-resources.html Cancer Support Community (The Wellness Community) 1(888)793-9355 Provides professional programs for emotional support, education and hope affected by cancer at no charge. www.thewellnesscommunity.org Chemo Care: Provides information about chemotherapy and its side effects. www.chemocare.com Frankly Speaking About Cancer: 888-793-9355. An education series that provides an in-depth look into a variety of concerns cancer patients and their loved ones face following a diagnosis. www.cancersupportcommunity.org Instituto Nacional del Cάncer: Provides information about cancers, treatments, and side effects. Informacion de cancer, estudios clinicos, tratamientos, y los effectos. http://www.cancer.gov/espanol LIVESTRONG: 1(855) 220-7777. Inspires and empowers people affected by cancer. With the belief that unity is strength, knowledge is power and attitude is everything. www.livestrong.org 16 | P a g e National LGBT Cancer Network: Listing for LGBT safe, welcoming and free/low cost cancer care in all 50 states http://www.cancer-network.org/ UC Davis Cancer Center Website: Offers educational and support information for patients, families and care givers. On-line support at http://www.ucdmc.ucdavis.edu/cancer Resources for speaking to children about cancer Cancer Council: offers an activity book to help parents talk to their children about cancer. http://www.cancercouncil.com.au/wp-content/uploads/2010/09/Talking-to-Kids-AboutCancer.pdf Dana-Farber Cancer Institute: Family Connections Program offers insight into how to talk to your kids about cancer. http://www.dana-farber.org/Adult-Care/Treatment-and-Support/Patientand-Family-Support/Family-Connections/Information-for-Parents/Talking-with-Kids-aboutCancer.aspx Kids Cope: Offers informational video and comic book for families with young children. The video features four mothers who have experience breast cancer treatment and their children. The children describe their difficulties learning to cope with significantly altered family life, displaying emotions and upsetting experiences, optimism, fear of loss of mother due to diagnosis. This video offers a variety of coping strategies, including humor. Video: http://vimeo.com/12039529 Comic Book: http://www.kidscope.org/kemo.html New York University Cancer Institute: How to speak with children of different ages about cancer. http://cancer.med.nyu.edu/patients/patient-care/supportive-services/straight-talk-kids UC Davis Camp Kesem: This is a FREE overnight camp for children ages 6-13 whose parents have, had, or have passed away from cancer. Campers participate in a range of activities including arts and crafts, swimming, hiking, athletics, drama, and various nighttime activities. Each night before bedtime the campers participate in “cabin chats” which is an activity where they can share their stories and express their emotions with peers in similar family situations. Please visit their website for more information. http://campkesem.org/ucdavis/about-us/ Me-One Foundation: This is a FREE three day retreat for adult cancer patients and their families in Santa Cruz, CA. Campers participate in a wide range of activities including arts and crafts, hiking, zip lining, spa treatments, and much more. Medical oncology staff onsite. To learn more visit their website. www.me-onefoundation.org 17 | P a g e Legal Services Advanced Directive: You have the right to give instructions about your own health care. You also have the right to name someone else to make health care decisions for you incase you are unable to. The Advanced Health Care Directive form lets you do one or both of these things. It also lets you write down your wishes about donation of organs and the selection of your primary physician. If you use the form, you may complete or change any part of it or all of it. Forms are located in all clinics and units within the medical setting. Please visit the Patient Resource Center for a form or use an on-line form at: http://oag.ca.gov/consumers/general/adv_hc_dir California Indian Legal Services: 1(800) 829-0284 or (916) 978-0960 117 J Street, Suite 300, Sacramento. Provides legal services for First Nation individuals. Cancer and Careers: A website dedicated to helping cancer patients continue working while undergoing treatment. www.cancerandcareers.org Cancer Legal Resource Center: Offers free information and resources on cancer-related legal issues to survivors, caregivers, healthcare professionals, employers, and others affected by cancer. http://www.lls.edu/academics/candp/clrc.html Disability Rights Legal Center: (866)-THE-CLRC. Provides free resources and information on cancer-related legal issues to cancer patients, survivors, healthcare professionals, employers, and others coping with cancer. https://www.disabilityrightslegalcenter.org/ Public Guardian: Sutter County: (530) 822-7250 Yuba County: (530) 741-6306 Helps individuals who are unable to make their own decisions about personal affairs when no other relative or designated person is able to do so. Yuba-Sutter Legal Center for Seniors/California Rural Legal Services: (530) 742-8289 725 D Street, Marysville, CA. Low-cost/no-cost legal Services provided to Yuba-Sutter residents. Handles cases related to Social Security, Medicare, Medi-Cal, Social Security overpayments. Represents at both local level and hearing level in Sacramento. Cases of elder abuse and competency as well as other problems of the senior citizen are often handled as well. 18 | P a g e Financial Assistance Health Insurance Questions and Guidance It’s common to feel anxiety, frustration, and stress about how to afford to pay for treatment. If you have private insurance through your employer the best way to find answers is on the back of your insurance card. Some questions to keep in kind are how much are your deductibles, copays, and what is your prescription coverage. Are you limited by your insurance to only see certain doctors or what type of treatment you can have? If you do not currently have insurance or if you have Medicare and/or Medi-Cal please contact the Patient Resource Center or your county Medi-Cal office to find out more about your coverage. Financial Assistance: All Cancers American Cancer Society: Assists with transportation costs (mileage reimbursement, transport, and gas cards), education, wigs, and support groups. www.Cancer.org Benefits Finder: Offers a search engine which helps people quickly find state and federal benefits www.benefits.gov Cancer Care: (800) 813-4673 Assists with costs associated with transportation to and from cancer treatment, co-payment assistance, home care, child care, pain medication, and lymphedema supplies (breast cancer only to qualifies patients.) http://www.cancercare.org/financial Cancer Care Multiple Myeloma Transportation Assistance: 1(800) 813-4673. Provides limited financial assistance for homecare, childcare, transportation, and pain medication. Chronic Disease Fund: Offers patient assistant, copay assistance, or transportation assistance. http://www.cdfund.org/Copay-Assistance.aspx Coverage for All: A list of all public and private health coverage options. http://www.coverageforall.org/finder/everyoutcomepage.php?st=1 Health Insurance Consumer Advocacy Program (HICAP): 1(800) 434-0222 Can provide information, advocacy, and assistance with Medicare benefits, prescription drug plans and health plans Health Well Foundation: Provides financial assistance to income eligible individuals to cover coinsurance, copayments, health care premiums, and deductibles for certain medications and therapies. http://www.healthwellfoundation.org/ 19 | P a g e Hill-Burton Facilities: A list of medical facilities which are legally obligated to offer free or reduced cost medical services. http://www.hrsa.gov/gethealthcare/affordable/hillburton/facilities.html National Brain Tumor Society 1(800) 934-2873 www.braintumor.org National Marrow Donor program 1(888) 999-6743 www.marrow.org National Organization for Rare Disorders 1(800) 999-6673 www.rarediseases.org Needy Meds: Offers assistance paying for prescription medication. Also offers educational resources for prescriptions and webinars on various health related issues. www.needymeds.org Partnership for Prescription Assistance: A partnership between drug companies, doctors, and the community to provide free or low-cost medicines through public or private programs http://www.pparx.org/en/prescription_assistance_programs Patient Access Network Foundation:Offers assistance for paying for medication, and financial assistance for a variety of illnesses. http://www.panfoundation.org/index.php Patient Advocate Foundation: Assists patients with insurance and healthcare access problems. http://www.patientadvocate.org/index.php Patient Services Incorporated 1(800) 366-7741 www.uneedpsi.org Patient Advocate Foundation Co-Pay Relief: Provides direct financial support for pharmaceutical co-payments to insured patients, including Medicare Part D beneficiaries, who financial and medically qualify. http://www.copays.org/ Rx Outreach: Helps provide affordable medications for people in need. http://www.rxoutreach.com/ Sarcoma Alliance 1(415) 381-7236 www.sarcomaalliance.org Together Rx Access Prescription Savings Program: Helps individuals without prescription drug coverage gain access to immediate savings on brand-name and generic prescription products at local pharmacies. http://www.togetherrxaccess.com/ Financial Assistance: Breast Cancer American Breast Cancer Foundation: Offers financial assistance to uninsured and underserved individuals of all ages for breast cancer screenings, diagnostic testing, prescription assistance, 20 | P a g e breast prostheses and specialized bras, wigs, and lymphedema compression garments. http://abcf.org/ AVONCares: Limited financial assistance for homecare, childcare and transportation. http://www.cancercare.org/financial/information Brain Mets BC: Offers assistance for women with metastatic breast cancer and their families learn about brain metastases from a patient’s perspective. http://www.brainmetsbc.org/ Breast Cancer Action: A breast cancer advocacy organization.http://bcaction.org/ Breast Cancer Solutions: Offers breast cancer patients with direct assistance, community referral, and compassionate support. http://www.bcsurvivors.org/ Cancer Care Get You There: Provides financial help for transportation for women with stage IV breast cancer. http://www.cancercare.org/financial/information Geweke’s Caring for Women Foundation: Helps women with whose breast cancer diagnosis has caused a financial hardship. This foundation helps pay for rent/mortgage expenses, transportation costs, credit card and utility bills, funeral expenses and medical bills. See our Social Worker to see if you qualify. www.pink-october.org John W Nick Foundation: Provides advocacy and education on male breast cancer. https://malebreastcancer.org/ Linking A.R.M.S.: Limited financial assistance for hormonal and oral chemotherapy, pain and anti-nausea medication, lymphedema supplies and durable medical equipment. http://www.cancercare.org/financial/information My Hope Chest: Funds reconstructive surgery for breast cancer survivors. www.myhopechest.org The Pink Fund: 1(877) 234-PINK Provides short-term financial assistance to women and men in active treatment in Michigan and California by making direct payment of bills such as: car payments, house or rent payments, payments for medical or auto insurance, and utility payments. The Pink Fund does not make payments for medical treatments, prescription drugs (including hormone therapy), co-pays, deductibles, prostheses, wigs, etc. www.thepinkfund.org Financial Assistance: Blood Cancers and Disorders Leukemia and Lymphoma Society: Provides educational resources for blood cancer patients and improves assess to latest therapy options and blood cancer trials. http://www.lls.org/ 21 | P a g e Financial Assistance: Government Programs Social Security: 1(800) 772-1213 Long-term disability coverage includes monthly income and medical health insurance for persons with qualifying medical conditions. www.ssa.gov Department of Health and Human Services: Check for your county’s office location and phone number. Provides public assistance, Medi-Cal, CalFresh (food stamps) and county health insurance for qualifying emergency and pre-existing conditions. Income based and must be a US citizens or National to qualify. www.os.shhs.gov For general help you can call MediCal 1(800) 541-5555 MediCare 1(800) 663-4227 Yuba County: 5730 Packard St, Suite 100 PO Box 2320 Marysville, CA 95901 Colusa County: 2445 Carmichael Dr. Chico, CA 95928 Sutter County: 539 Garden Highway PO Box 1535 Yuba City, CA 95991 Butte County 2445 Carmichael Drive Chico, CA 95928 US Administration on Aging: Benefits for older adults 55 and over. www.aoa.gov California Department of Aging 400 W 1st St Building D Chico, CA 95929-0001 (530) 898-5961 Area for Agency on Aging 2260 Park Towne Circle # 100 Sacramento, CA 95825 (916) 486-1876 California Department of Veteran Affairs: Any adult who was involved in active military services and not dishonorably discharged may qualify for assistance with health and mental health coverage. National Helpline: 1 (800) 827-1000 California Helpline: 1 (800) 952-5626 www.va.gov 22 | P a g e Counseling Services The Rideout Health Social Worker provides short-term supportive interventions with patients and their families. Getting help with you emotional needs is just as important as dealing with your physical health. The Rideout Cancer Center also offers a Cancer Support Group every Thursday 11:30-12:45 in the Library of Life. For more information please see flyer in appendix and contact the social worker, (530)749-4400 x 1692. Here are some steps to obtain on-going counseling to assist with the emotional stress and adjustments of a cancer diagnosis and treatment in the community: Patients with private insurance: Call the toll-free number for the “Mental Health” referral associated with the insurance provider. Often this is found on the back of the medical insurance card issued by the provider or contained within the booklet outlining the insurer’s benefits. You can also check online for a contact number. Most insurance providers have a list of mental health providers based on the area code in which you live. Many health insurance providers require that your medical doctor make a referral for counseling. Please call your insurance for specifics. Patients with Medi-Cal or private pay: American Cancer Society’s Man-to-Man Prostate Cancer Support Group: (530) 741-1366. For men with prostate cancer or prostate concerns and their families and close friends. Wives are welcomed and encouraged to attend. Meetings are held every second Wednesday of the month at 5:30 p.m. Please call for more details. Harmony Health Family Resource Center: (530) 742-5049. 1908 North Beale Road Marysville. Offers low-cost counseling services for community members. Hmong Cultural Community Center: 4853 Olivehurst Ave., Olivehurst (530) 749-2746. Offers culturally relevant individual and group counseling services. Passages Center: 901 Webster Street, Colusa (530) 458-5030. Offers free counseling, case management, and home care services to older adults. http://www.passagescenter.org/ Sutter-Yuba Mental Health Services (SYMH) Open Access Clinic: 1965 Live Oak Blvd Yuba City, CA 95991 (530) 822-7200. Hours: Tuesdays 9:00 am-3:00pm and Wednesdays 9:00 am-5:00 pm. Sutter-Yuba Mental Health Open Access Clinic is a twice-weekly walk-in clinic for adults 18 years of age or older in the SYMH service area who would like to be assessed for eligibility to receive specialty mental health services. No appointment needed. Please plan to arrive between the stated clinic hours. There is no availability to be seen earlier or later than the posted clinic times. 23 | P a g e 24 Hour Support Lines IF YOU ARE IN A CRISIS AND NEED HELP RIGHT AWAY, THE NATIONAL SUICIDE PREVENTION LIFELINE IS A 24 HOUR/ 7 DAY A WEEK PROGRAM FOR YOURSELF OR SOMEONE YOU CARE ABOUT: 1 (800) 273-8255. IF YOU ARE IN IMMEDIATE DANGER OF HURTING YOURSELF OR OTHERS CALL 911. American Cancer Society: Trained cancer information specialists are available 24 hours a day, seven days a week to answer your questions about cancer, and link caller with resources in your community. This service provides needed information and support through the warmth of a live phone call. Multiple language specialists are available. 1(800)-227-2345 CancerCare: Toll-free telephone support in English or Spanish for people with cancer and their families. Trained social workers provide emotional support, education, and referral. 1(800)-8134673- menu option #4 Chinese Cancer Hotline: 1(888) 566-6222 A Hotline for Chinese speaking cancer patients to receive emotional and educational support. . Seattle Cancer Care Alliance: The Crisis Clinic offers 24-hour telephone support for people who are in crisis, as well as referrals to community resources. Call 1(800) 804-8824 or (206) 461-3222 (voice and TDD) Yuba County Victim Witness: 530-741-6538 Other Support Lines Caring Calls: Offers daily telephone contact from volunteers. (530) 674-5253 Friendship Line: 1(800) 971-0016 A warm-line for older adults which provides scheduled telephone calls from volunteers. Online Social Support Breast Friends: Offers resources and support for women and families facing a diagnosis of breast cancer, ovarian cancer, and other women’s cancers. http://www.breastfriends.org/ California Breast Cancer Organizations: A coalition of 9 California breast cancer advocacy organizations. http://www.cabco-org.us/ 24 | P a g e Cancer and Careers: A supportive resource for women working with cancer. http://www.cancerandcareers.org/en Cancer Hope Network: 877-HOPENET. Free, confidential service provides one-on-one emotional support, encouragement and hope to people with cancer and their families. They will match patients with trained volunteers who have undergone a similar cancer experience. www.cancerhopenetwork.org Cancer Support Community: Provides free support, education and hope to people with cancer and their loved ones. There are 24 Wellness Communities around the United States plus 56 satellite and off-site programs and one online at The Virtual Wellness Community. http://www.cancersupportcommunity.org/ Caring Bridge: Offers a personal and private online space where patients can connect, share and receive support from their friends and family members. www.caringbridge.org Casting for Recovery: Provides fly-fishing retreats for women with breast cancer. http://castingforrecovery.org/ Sharsheret: Provides breast cancer support and resources for women and families with a Jewish descent. www.sharsheret.org SPOHNC-Support for People with Oral and Head and Neck Cancer: (800) 377-0928. A non-profit organization dedicated to raising awareness and meeting needs of oral and head and neck cancer patients. www.spohnc.org Kidney Cancer Association: (800) 850-9132. Works to improve care and increase survival of kidney cancer patients through information, research, and patient advocacy with employers, government and insurance companies. www.kidneycancer.org. Hope for Two: Information and support for women who have cancer while pregnant. http://www.pregnantwithcancer.org/ Mothers Supporting Daughters with Breast Cancer: A supportive online community for mothers supporting daughters with breast cancer. http://mothersdaughters.org/ Multiple Sclerosis MS Connection: MS Connection is an online community that allows you to find, store and share meaningful updates, posts, videos, articles and other content about MS and the topics you care about most. Connect with people, groups and discussions that relate to the topics that shape your world. www.msconnection.org 25 | P a g e MSWorld: MSWorld is a global virtual community, support people living with multiple sclerosis, place for people to meet, share ideas, gain resources, manage, cope. http://msworld.org/ Survivorship Fertile Hope: Provides reproductive information, financial assistance, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. http://www.fertilehope.org/ Journey Forward: Free software to help create custom survivorship care plans based on the American Society of Clinical Oncology treatment summary templates. http://journeyforward.org/ Living Beyond Breast Cancer: Provides information and support for women affected by breast cancer. http://www.lbbc.org/ Sisters Network: Provides breast cancer survivorship information, education, and support for African American women. http://www.sistersnetworkinc.org/ Sisterhood of Survivors: Support group which matches breast cancer survivors with newly diagnosed breast cancer patients. http://www.sisterhoodofsurvivors.org/ Young Survivor Coalition: Provides survivorship education and support to women. http://www.youngsurvival.org/ 26 | P a g e Recommended Reading These books are highly rated by cancer patients for usefulness and readability. All book descriptions are paraphrased from the American Library. Cancer: 50 Essential Things to Do by Greg Anderson. This guide to cancer recovery offers an easily accessible plan for patients and family members. Written by a cancer survivor, the book is an action-oriented roadmap for those who choose to adopt a stance of hope and take charge of their diagnosis. Anderson’s message is: “You must not simply treat illness; you must also create wellness-physically, emotionally and spiritually.” What to Eat if You Have Cancer: by Maurene Keane, Daniella Chance, et al. Keane, a nutritionist, cancer survivor, and coauthor of the best-selling Juicing for Life (Avery, 1992), and Chase, a natural-health writer and nutrition educator, describe the body’s physical components and how nutrition affects physical function. The author’s proposed nutritional therapy is designed to deny cancer the food elements it requires for growth while strengthening the body against the disease and the rigors of its treatments. I’d Rather Do Chemo than Clean out the Garage by Fran Di Giacomo. I’d rather Do Chemo by Fran Di Giacomo is an amazing approach to living with the Big C. The author is writing from her experience of ten surgeries and many years of intermittent chemo-therapy. She discovered that laughter is the best medicine and surrounded herself with anything that made her laugh…her own therapy. When she found how much better she was able to cope with her illness this way, she decided to write this humorous book, which takes every aspect of the traumas a cancer patient faces and gives a whimsical but realistic twist to them, in order to help other patients survive with laughter. Facing Cancer Together by Pamela N Brown. Pamela Brown, a cancer survivor, suggests the many ways you can help by your words and actions. In addition to a wealth of practical suggestions, Facing Cancer Together includes entries from the author’s journals, as well as Bible readings and prayers to share for support and comfort. Anti-Cancer by David Servan-Schreiber. In “Anti-Cancer: A New Way of Life,” French born psychiatrist and neuroscientist Dr. David Servan-Schreiber discusses his fifteen-year battle with brain cancer. Although conventional treatments worked initially, the cancer recurred. Fortunately, he has been cancer-free for the past seven years, and he attributes his success to anti-cancer regimen that, he asserts, boosts the body’s natural defenses. Dr. Servan-Schreiber 27 | P a g e does NOT encourage cancer patients to reject their doctors’ advice concerning surgery, chemotherapy, and radiation. However, he does believe that there is nothing to lose and everything to gain by making changes in one’s diet, level of physical activity, psychological attitude, and environment. Caregiving: A Step-By-Step Resource for Caring for the Person with Cancer at Home by Pater Houts, PhD and Julia A Bucher, RN, PhD. A practical guide offering manageable solutions to many conditions and situations caregivers face. Easy to use, this handy reference offers thorough, concise check-lists, questions to ask, signs and symptoms to note, and where to turn for help. What Can I Do To Help? : 75 practical ideas for family and friends from Cancer's frontline by Deborah Hutton. ISBN: 1904977391 Recommended Reading for Children What is Cancer Anyway? Explaining Cancer to Children of All Ages by Karen L. Carney. This book provides developmentally appropriate information on cancer and cancer treatment for children. She's Got What? by Carrie Lethborg & Angela Kirsner Melbourne: St Vincent's Hospital. ISBN: 1875271309 Why, Charlie Brown, Why? A Story About What Happens When a Friend is Very Ill By Charles M. Schulz. This is a story about a child dealing with great challenges and questions. Recommended Reading for Youth The C-Word: Teenagers and Their Families Living With Cancer: by Elena Dorfman. The stories of four teenagers and their families living and coping with cancer. Now What : a Resource Book For Young People Who Have a Parent Living With Cancer By Sydney: CanTeen ISBN: 9780980463712 28 | P a g e Other Support Tobacco Cessation Help: Quitting smoking takes practice and is easier if you have a plan and support. Tobacco Free California can help. You will find some useful facts and tips on how to go about quitting. If you need more help, check our additional resources, including California Smokers’ Helpline at www.tabaccofreeca.com English 1(800) NO-BUTTS (1-800-662-8887) Spanish 1(800) 45- NO-FUME (1-800-456-6386) Mandarin and Cantonese 1(800)838-8917 Vietnamese 1(800) 788-8440 Korean 1(800) 556-5564 Deaf/Hearing Impaired 1(800) 933-4TDD (1-800-933-4833) Chew/Smokeless Tobacco 1(800) 844-CHEW (1-800-844-2439) Rideout Health Group offers FREE Clean Break Classes. Classes are held at the Rideout Cardiac Rehabilitation. 401 I Street, Marysville from 5:30-7 pm. For information and registration call: (530) 741-3840 For those living outside California, you can contact the American Cancer Society or the American Lung Association for a list of referral services. American Cancer Society 1(800) ACS-2345 (1-800-227-2345) American Lung Association 1(800) LUNG-USA (1-800-586-4872) 29 | P a g e www.cancer.org www.lungusa.org Oncology Massage Services No-Cost Oncology Massage Clinic: As a service to the local cancer community, a volunteer Oncology Massage Therapist (OMT) offer oncology massage to people diagnosed with cancer that are currently or have been in treatment over the last six months. The Oncology Massage Clinic is at 2701 I Street in Sacramento. Please call 1(916) 731-4742 for more information and/or to schedule a massage appointment. Low-Cost Dental Services Access Dental: 940 Colusa Avenue, Yuba City, CA 95991 (530) 755-9900. Offers a wide range of low-cost dental services. California Donated Dental Services: (877) 357-8660 Donated Dental Services is a group of California Dentists who have agreed to provide their services for free or low-cost for medically at-risk, elderly, or permanently disabled individuals. For more information ask the social worker for an application. www.dentallifeline.org Western Dental: 727 Colusa Avenue, Yuba City, CA 95991 (530) 751-2999. Offers a wide range of services varying from general dentistry, cosmetic dentistry, and orthodontics. Contact Information of the Cancer Center’s Most Commonly Referred to Doctors Dr. Eric Delman, Surgeon: 470 Del Norte Ave., Yuba City (530) 751-7444 Dr. Ashraf Ekdawy, Surgeon: 460 Plumas Blvd., Yuba City (530) 749-3360 Dr. Michael Fahey, Surgeon: 481 Plumas Blvd., Yuba City (530) 751-1230 Dr. Schwartz, Surgeon: 460 Plumas Blvd., Yuba City (530) 749-3360 Dr. Michael Fairshter, Surgeon: 320 H St., Marysville (530) 743-6531 Contact Information of the Cancer Center’s Most Commonly Referred to Services Radiological Associates of Sacramento (RAS): 5 Medical Plaza Dr., Roseville (916) 797-1222 30 | P a g e Sutter Buttes Imaging: 945 Shasta Street, Yuba City (530) 674-9000 Yuba City Advanced Imaging Center: 470 Plumas Blvd., Yuba City (530) 673-6674 Sutter North Imaging Center: 440 Plumas Blvd., Yuba City, CA 95991 (530) 749-3301 Appendix 21st Century Care Application Advanced Directives Form American Cancer Society Referral Form Donated Dental Services Application Local Skilled Nursing Facilities and Assisted Living Rideout Facilities Map Rideout Support Group Flyer Yoga Medical Clearance Form Yuba County Section 8 Housing Pre-Application PG & E Medical Baseline Allowance Application 31 | P a g e 32 | P a g e