Survey
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
* Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project
FALL 2013 Influenza unmasked – how LHSC tackles the flu season One dialysis patient’s journey to independence We are family – the dream of family becomes a reality NHL star Brandon Prust helps launch Kids Kicking Cancer in Canada Who We Are One of Canada’s largest acute care teaching hospitals, London Health Sciences Centre (LHSC) cares for the most critically ill patients in the region. Located in London, Ontario, Canada, LHSC encompasses: • University Hospital • Victoria Hospital • Children’s Hospital Contents 02 NHL Star Brandon Prust helps launch Kids Kicking Cancer in Canada Discover how Brandon Prust helped empower sick children and youth to find peace, power and purpose in the face of disease with the Kids Kicking Cancer Program 11 We are family Vince and Lori Londini’s dreams of a large family almost shattered when they discovered they both faced fertility issues. Learn how The Fertility Clinic helped make their dream a reality 04 Did you know? LHSC’s pharmacy checks and balances are helping make drug delivery safer 13 London researcher answers the call to service LHSC critical care physician and Lawson Health Research Institute researcher, Dr. Raymond Kao has made a groundbreaking discovery that will save lives on the battlefield – and is named the first Chair in Military Critical Care Research 05 Influenza unmasked An inside look at how LHSC operates under the pressure of ‘flu’ season 09 Driving through the roadblocks Learn how the regional renal program helped Debbie and Ted Worley navigate dialysis treatment so they could find freedom on the open road 14 On the Scene @ LHSC See what we’ve been up to since our last issue • Byron Family Medical Centre • Victoria Family Medical Centre • Kidney Care Centre (at Westmount Shopping Centre) LHSC is the home of: •C STAR (Canadian Surgical Technologies and Advanced Robotics) • Fowler Kennedy Sport Medicine Clinic • London Regional Cancer Program • Children’s Health Research Institute • Lawson Health Research Institute • Children’s Health Foundation • London Health Sciences Foundation 15 You asked us How to stay healthy while you travel to escape the cold and snow ON THE COVER: Brandon Prust teams up with Children’s Health Foundation to launch Kids Kicking Cancer in Canada We inside.lhsc.on.ca want to hear from you Your feedback is important to us – please visit Your feedback is important to us – please visit inside.lhsc.on.ca to complete your survey. inside.lhsc.on.ca to complete your survey. Andmiss don’tthe miss theissue nextofissue of inside! And don’t next Inside! Sign up today at inside.lhsc.on.ca F O L LO W U S F O L LO W U S NOTES FROM THE CEO As health-care providers, in order to care for patients we must also take care of ourselves. This is especially important during the annual influenza season which is now upon us. It is of the utmost importance that staff and physicians receive their influenza vaccination to protect themselves – as well as our patients – from influenza. I am pleased that LHSC has taken the Children’s Hospital patient Kiara Szabo has taken control over her pain, thanks to the help of Brandon Prust and the Kids Kicking Cancer program. important step this year of strengthening I invite you to read more about how its influenza immunization policy. LHSC is tackling this year’s flu season, This policy mandates that staff receive and some of the innovative programs a flu shot, and those who have not we have in place to ensure we continue – including family and visitors – will providing exceptional experiences for be required to wear a mask in patient our patients. care areas when the influenza virus is As always, I hope you enjoy your widely circulating in our community. time “inside.” This policy protects our staff, and most Bonnie Adamson importantly protects our patients. President & CEO KICKING CANCER THEIR WAY BRANDON PRUST AND KIDS KICKING CANCER EMPOWER PATIENTS TO FIND PEACE, POWER AND PURPOSE Kiara Szabo pulls air deep into her lungs until it looks like her tiny chest can’t expand any further. “Then you breathe in a little more,” she says softly to Sensei Joel Ender. Today, teacher turns student as Kiara shows him what she has learned over the past few months through the Kids Kicking Cancer program. They stand together in LHSC’s Children’s Hospital, in full martial arts uniforms. Ender towers above the 10-year-old as he follows her instruction. Like many of the patients at Children’s Hospital, Kiara’s curiosity was piqued by the senseis who have been roaming the halls of Children’s Hospital since the spring. When a child life specialist asked her if she’d like to learn martial arts as part of the Kids Kicking Cancer program, she was keen to sign up. Kiara is a natural – and a perfect fit for the program, as she is exactly the type of patient that it was designed to empower. Since being diagnosed with leukemia in 2011, Kiara has struggled with fatigue, irritability, pain and a compromised immune system. She’s missed out on social interaction at school and has fallen behind in her studies. “One of the greatest challenges for a child that has been given a difficult diagnosis is that they become different from their friends. Their life is different, not fair,” says Kids Kicking Cancer Founder Rabbi Elimelech Goldberg, known affectionately as Rabbi G. “Kids Kicking Cancer really is a movement of empowerment, our mission statement is to ease the pain of sick children while empowering them to heal physically, spiritually and emotionally.” Rabbi G Headquartered in Detroit, Michigan, Kids Kicking Cancer is a non-profit organization that helps children with cancer manage the stress and pain of their disease and treatments through personalized coaching, instructed by volunteer black belt martial artists. Children practice the techniques and teach them to others to help reduce stress. Since its inception almost 15 years ago, the program has spread across the U.S. and the world – touching base in cities such as Los Angeles, Florence and Jerusalem. However, it was not available in any children’s hospitals in Canada until a very special fundraising force – Brandon Prust – joined with Children’s Health Foundation to launch it here in London. Prust first began visiting Children’s Hospital as a London Knight over a decade ago and the children made an incredible impact on him. “When you see the way they go about life it’s very humbling. Just to be there and put a smile on their face is what makes you go back,” he says. Now with the Montreal Canadiens, Prust found himself looking for a way to support London’s Children’s Hospital on a larger scale. When he heard about the Kids Kicking Cancer program, the decision to get involved was easy. In 2012, he hosted a fundraising golf tournament under the name of his charity, Prusty4Kids. With the support of other NHL stars, Children’s Hospital staff and Children’s Health Foundation, the inaugural event raised almost $130,000 – more than enough to bring the program to London. “We’re very proud of it,” says Prust. “You’re just trying to help out…having the status I have as a professional hockey player helps and it’s good to give back.” Joel Ender, a local black belt martial artist, was one of the first to volunteer with the program in London. He is one of four local martial artists that made the cut through the rigorous screening process and training program that Kids Kicking Cancer and Children’s Hospital requires. Since the start of this year, he has been participating in twice-weekly rounds of Children’s Hospital inpatient and outpatient clinics, where he sees four to five patients each visit, on average. Melissa Zurch, child life specialist, talks about the importance of the Kids Kicking Cancer program. visit us at inside.lhsc.on.ca 02 DID YOU KNOW RAISING HOPE FOR CHILDREN…… At Children’s Health Foundation, raising hope is more than a slogan. It’s a philosophy that encompasses everything we do for children, youth and their families from across Southwestern Ontario LHSC’s pharmacy checks and balances are helping make drug delivery safer. and parts of Northern Ontario. All medications given to patients at LHSC are provided by LHSC Pharmacy Services. As one of Canada’s leaders in progressive hospital pharmacy practices, LHSC has a strong history of innovation and operates under a rigorous process, which helps ensure that the right dose of the right drug is delivered to the right patient at the right time. Children’s is proud to be raising funds and hope across the continuum of children’s health care, supporting the highest quality treatments at Children’s Hospital, London Health Sciences Centre, Safety checks at each stage of drug delivery rehabilitation at Thames Valley Children’s Centre, and innovative research at Children’s Health Research Institute. Thanks to the incredible support of Brandon Prust and Prusty4Kids, London’s Children’s Hospital is Kids Kicking Cancer sensei Joel Ender leads Kiara Szabo through martial arts techniques that are proven to reduce pain and anxiety. An accurate and up-to-date medication history is completed by the medical team, patient and/or family. the first in Canada to bring Kids Kicking Cancer to our young patients. This unique program teaches stress and pain management techniques not only “Kids Kicking Cancer has helped me,” says her mother Roxanne. “By seeing Kiara have power, peace and purpose over this horrible, horrible disease – she can breathe through the pain and take back control over her body.” Since the launch, Kids Kicking Cancer continues to gather momentum. Soon, the program hopes to add off-site classes, as well as expand into additional children’s hospitals across Canada. In addition, Prust plans to host his golf tournament every second year in support of the program, so that it may continue to help the children and families from across Ontario who use Children’s Hospital’s services. Kiara was one of the first patients to demonstrate the “You want (the children) to be stronger in the heart program’s effectiveness to Ender. and in the mind. It’s going to help them and help their Upon arriving at Children’s Hospital for a routine families, as everyone gets involved with the breathing appointment, Kiara’s mother Roxanne realized that she had techniques – it can be a whole family thing,” he says. forgotten Kiara’s EMLA cream – a topical anesthetic that For Roxanne and Kiara, being involved in numbs Kiara from the pain of the needles used in treatment. Kids Kicking Cancer has had an incredible impact Kiara had a choice. She could either wait the hour it on both mother and child. would take to get the cream, apply it and have it take effect, “Kids Kicking Cancer has helped me,” says Roxanne. or, she could go through the procedure without it. “By seeing Kiara have power, peace and purpose over this Kiara opted to forgo the anesthetic. Instead, she and horrible, horrible disease – she can breathe through the pain her mother used the techniques they had learned through and take back control over her body.” Kids Kicking Cancer. Indeed, each and every day, First, Roxanne walked her daughter Kiara’s body is becoming her through a relaxation technique called a own again. October 25 marks a body scan, and then Kiara used power monumental milestone – her last breathing to reduce the pain. chemotherapy treatment. “For the first time ever she made it When asked what her plans are through…without pain killers,” says Ender. for the future, soft-spoken and The effectiveness of this ‘mind thoughtful Kiara talks about the over matter’ technique is no trick of school year, her love of science and the imagination. When a child is math, and, with a gentle smile states empowered in their own treatment, Brandon Prust and Kiara Szabo that she wants to be an oncologist. the biological indicators of pain share a high-five. become less present. “Distraction is a proven and valid methodology for Inside the Kids Kicking Cancer managing pain or pain responses,” says Val Rousom, techniques with Joel Ender director of children’s care at Children’s Hospital. “Purposeful breathing, mindful meditation, imagery and thinking differently about the control one has over pain, empowers children in a way that allows them to manage their own pain.” 03 visit us at inside.lhsc.on.ca Processing the Order Initial Assessment to cancer patients, but other children faced with chronic illnesses. Kids Kicking Cancer is just one of the specialized paediatric programs that are funded Patient’s condition is reviewed by an interdisciplinary team (e.g., physician, nurse, pharmacist). All medications to be administered to a patient require a prescription or doctor’s order. through community support. Other examples of current programs funded Prescriptions are written by physician, sometimes with help of pharmacist based on: through Children’s Health Foundation are: • Art therapy: creativity and expression through •w hat drug is best, art to help young patients express their emotions and gain a sense of control during what can be a difficult and uncertain time. •p ossible drug interactions and/or side effects and, • medication reconciliation information. A nurse enters prescription into the medication administration record (MAR), which is used to document any time a medication is given to the patient. A pharmacist comprehensively reviews every medication order before authorizing the technicians to fill the order. Technicians enter order into a system, which performs an additional electronic check to ensure no history of allergies to a drug or drug interactions. • Injury prevention: focuses attention on preventing injuries — the leading cause of death in children and adolescents — through education and awareness • Therapeutic clown: Ollie the Clown uses humour, laughter and spontaneity to help improve families’ hospital experiences and create a positive, hopeful environment. Final Safety Check Before administering the medication the nurse must verify 8 rights: right PATIENT right MEDICATION to be given right REASON right DOSE To learn more about how you can positively impact the health of children, youth and their families and support the Children’s Family, please visit right ROUTE right FREQUENCY right TIME/DAY of order right SITE www.childhealth.ca. 04 Prescription information is sent to the appropriate pharmacy production area – either to: A pharmacy robot (PACO) – using bar-code technology, PACO can dispense up to 10,000 doses per day virtually error free. OR • Child life: helps children and their families understand and adjust to the hospital environment – reducing the stress and anxiety of their health care journeys. • Eating disorders shared care: supports our regional health care teams who provide timely support for children and adolescents with mental health needs, while staying close to home. Filling & Checking the Order Additional Check & Del ivery Medications for patients are dispensed daily (instead of weekly), so the nurse has the most accurate and current medication and dosage available for administration to the patient. Porters transport medications, which are labelled in detail with patient’s specific information, to the nursin g unit for the nurse to administer. Each patient has his or her own personalized bin where their medications for the day are kept. Nurse checks the medication against the medication administra tion record (MAR) to ensure it is the sam e medication that was called for in the pre scription. The pharmacy technician at a filling station. The technician receives list of medications and picks proper medications and doses manually. These filled orders are reviewed by a second technician. OR Intravenous medication go to a special sterile location called a clean room, which has monitors and controls that ensure the environment is sterile at all times. Technicians perform double checks on each other’s work to ensure order filled properly. 04 PANEL DISCUSSION ON INFLUENZA Influenza unmasked Laurie Gould, executive vice president of patient – centred care at LHSC Dr. Michael John, medical director, infection prevention and control and medical microbiologist at LHSC Dr. Gary Joubert, city-wide chief/chair of the emergency department at LHSC number of visitors. Influenza has an impact on the patient – not just on the hospital. It has a significant impact on the whole patient and family experience when in the hospital. Not to be confused with the stomach ‘flu’ (which is an upset in the gastro-intestinal tract), the ‘flu’ actually refers to the influenza virus, which causes a respiratory infection as well as headache, chills, cough, fever, appetite loss, muscle aches and tiredness. Influenza is a serious matter. Annually, the infection takes between 500 and 1,500 lives in Canada, with young children, individuals over 65 and those with other systemic diseases like diabetes, cancer and respiratory illness, being the most vulnerable. How LHSC tackles the ‘flu’ season During the months that stretch from November to May, you will hear mention of the ‘flu’ season more often, as health organizations across the nation urge the public to sanitize hands, cover sneezes and coughs and get the flu shot. 05 Dr. Gary Joubert, city-wide chief/ chair of the emergency department at LHSC, Laurie Gould, executive vice president of patient-centred care at LHSC, and Dr. Michael John, medical director, infection prevention and control and medical microbiologist at LHSC, are no strangers to the effects that influenza can have on the function of a hospital, as well as the health of patients. Recently, they joined us for a panel discussion, bringing us behind the scenes to unmask the truth about how health-care professionals at LHSC manage the ‘flu’ season. 1. Explain how influenza season impacts the hospital Dr. Gary Joubert: The impact on emergency services is significant. Normal volumes at our sites are around 180–200 patients a day at Victoria Hospital (VH) and 130 each day at University Hospital (UH). During our peak flu season, volumes at VH increase to about 250–300 adult patients a day, plus another 20–30% increase in paediatric patients and, at (UH), volumes rise to approximately 175 patients a day. While some patients are very ill and may require the use of emergency services and hospitalization, there are others who are unwell but really don’t need to be using emergency services, so they may have to wait while sicker patients are seen first. Plus, given the high number of patients who are seen in the emergency department every day, patients without the flu, who aren’t immunized, can contract influenza in the emergency waiting room. This is why we ask people to seek other health care services unless they need to use emergency services because of the illness severity. During influenza season, we still have all of our normal emergency department business and when we add the burden of influenza on top of that, we don’t have capacity within the system to have all influenza patients use emergency services. Laurie Gould: The biggest impact is that patients fill up our emergency department, but there are a couple of other things that people may not know. When influenza patients are admitted, it puts pressure on the hospital with the high number of patients who require an inpatient bed. We have to isolate those with influenza in separate rooms and anyone coming in contact with them must be gowned and gloved. This concerns me from a patient and family experience perspective because patients who are isolated with influenza may not get many visitors – or if they do, they can only have a minimum Get the facts – not the flu For more information on influenza, influenza immunizations and influenza in the community, the following resources offer reliable and accurate information: • Middlesex-London Health Unit https://www.healthunit.com/ • Health Canada http://www.hc-sc.gc.ca/hc-ps/dcma/influenza-eng.php • Ontario Ministry of Health and Long-Term Care http://www.health.gov.on.ca/en/ public/programs/publichealth/flu/ Dr. Michael John: Certainly in the laboratory, the flu season has a big impact because many more respiratory viral specimens are sent for testing. We also do testing on weekends, which requires us to bring in extra staff and there’s a very significant cost associated with this testing. Last year, we spent an enormous amount of money doing the requisite testing. There’s also a significant increase in workload within infection prevention and control as all these patients have to be followed up and hospital outbreaks, if they occur, dealt with. 2. It has been said that last year was a particularly bad year for influenza. Why is that? Dr. Gary Joubert: It was an interesting flu season. Usually we see the peak flu surge towards the end of December through January, and last year it started in September, which was very early. It caught us off-guard in terms of being ready to institute some of our protocols. The vaccine hadn’t been delivered from the manufacturer yet, and the degree of illness was much higher. The surge came before public health had any chance to intervene. In addition, it seemed to be a very virulent strain and the impact on patients with comorbidities (i.e. the presence of more than one disorder) seemed to be much greater, so we were seeing much sicker patients coming to the emergency department than in other flu seasons. These patients required more workup and investigation. Dr. Michael John: I agree with all of that. One of the things I have wondered about was whether the 2009/10 H1N1 pandemic flu played a factor. During the pandemic, 06 “You need to get vaccinated and if you do get the we had really good immunization rates, followed by much less illness than was expected. As a result, there were a lot of people the following season who just stopped getting the vaccine. Of course, what they forget is that pandemic may have had less of an impact because immunization rates were so good. Providing another line of defense against the spread of influenza. Because transmission of hospital acquired infections is a major patient safety concern, Infection Prevention and Control (IPAC) and Occupational Health and Safety Services (OHSS) at LHSC partnered in 2009 to form the infection safety champion initiative. that experience – and what will be different this year? Dr. Michael John: Also, I’ve learned that we will be getting the vaccine earlier this year – and to expand on what Gary was saying, the new policy will be in all the city’s hospitals. Once influenza is deemed to be circulating the community, staff will be required to either be immunized or to wear a mask while providing patient care. Unimmunized visitors will also be asked to wear masks. 07 Dr. Gary Joubert LHSC’s infection safety champions 3. What have we learned from Dr. Gary Joubert: An important step is that the hospital has gone to a staffwide immunization policy. Previously, staff members have been asked to voluntarily become immunized, but this year we’ve created and implemented a hospital-wide immunization policy. Last year, this policy was only in place for physicians and the immunization rate increased from 40–50% to about 83%. Some areas, like emergency medicine, were 100% immunized. Now, with the policy staff-wide, the immunization does two things: it helps protect the individual, which is important, but more importantly it helps protect all of the patients we deal with. You can be an asymptomatic carrier of the influenza virus and be spreading that while you’re working. The staff-wide immunization policy will give us what is called ‘herd immunity’ (i.e. the immunized population will help prevent the spread of the virus). flu, then you need to seek care at your family doctor first.” Currently, more than 250 staff members across various service areas including nursing, respiratory therapy, physiotherapy, environmental services and many others, serve as infection safety champions. These individuals have a high level of infection prevention and safety awareness. In addition to receiving regularly monthly training, these staff members also have an understanding of their own area’s infection control and safety concerns. Under a new policy, those who work in patient care areas who are not immunized must wear a mask – such as the one seen here on Dr. Michael John. Laurie Gould: One of the most important things we learned is to educate staff that immunization is not just about protecting themselves – it’s about protecting every patient that they come into contact with. This is about patient safety. So, one of the things that we’re highlighting in our education sessions is myth busting around influenza vaccines. Dr. Gary Joubert: Internally, our organization has also looked at our response to hospital occupancy. We’ll now know what steps to take at different levels of occupancy, so that eventually we can occupy every space in the hospital that is able to be safely occupied for clinical care. We’re hoping we never have to get that far, but we do have a strategy. Laurie Gould: To clarify – by occupancy, we’re talking about how busy the hospital is. Even when we are full, we have to find emergency department stretchers and inpatient beds to put people in because we don’t close the doors or turn people away. So we have strategies now on how to manage patients as they keep coming into the hospital in a flu season. 4. When does the hospital start preparing for the flu season? Laurie Gould: We start advertising and educating people before the flu season, usually in early September. We have a whole communication strategy around awareness that flu season is coming – that you have to be diligent about washing your hands, you have to get your vaccine and if you don’t, our new policy is that you’ll have to wear a mask in patient care areas. We’re also making it easier for staff to get their vaccine. Roving teams will go around to each unit at different times, giving peer vaccines so that all staff can get immunized. In addition to their regular job duties, infection safety champions promote a culture of staff and patient safety through education, monitoring, and formal auditing of principles and practices related to infection prevention and control across LHSC. They are a resource to colleagues and leaders in their area on items such as isolation practices, hand hygiene, additional precautions, routine practices, and more. Dr. Gary Joubert: I can also tell you, that in the medical advisory committee, which is the physician body that is responsible for quality of care, we think about it all year. We’re planning right from the end of the season for the next super bug. We think, “ok, this is what we’ve done this year, what can we do next year to make it a safer and better environment?” Not only during the influenza season, but all year long infection safety champions aim to reduce health-care associated infections (HAI) and creating a safe workplace through: Dr. Michael John: We also have a working group headed up by occupational health, which starts meeting early in the summer to plan the launch of the hospital’s internal influenza campaign. • making deviation unacceptable • promoting personal accountability for infection prevention • harnessing peer influence/be an influencer for change • creating a team mentality where reminding one another is the norm 5. If a visitor to the hospital sees a staff member with a mask on, is there a legitimate reason why that employee didn’t get their vaccine? Dr. Gary Joubert: A past history of a disease called Guillain–Barré syndrome, which is a neuro-muscular disease, or an allergy – either to the media that the vaccine is carried in, and/or the way the vaccine was prepared, are all valid reasons why someone would not get vaccinated. 6. Are there any other impacts to the staff around flu season? Laurie Gould: There’s an impact on their workload, for sure. When staff members have to gown, glove and mask to interact with isolated patients, it puts a lot of burden on the nurses. It takes more time and it uses up more resources. The flu season is not business as usual – it’s business as usual ‘plus’. 7. What happens at the hospital that the public won’t see? Laurie Gould: We have some experts like Dr. John, who are part of a national network that monitors influenza. If they see something significant, they’ll notify us and we’ll start to implement actions to address it. For example, if they started to see a new flu strain, then we would be alerted. Dr. Michael John: Yes, very much so. We’re likely to find out if there’s flu in the community by isolating it in our lab. By the time we’ve got a couple of people with influenza within the hospital, it’s already circulating the community – as they represent the tip of the iceberg. We send the first couple dozen isolates to the public health lab where they’ll look at the type of influenza strain and see if it is the vaccine strain or any other strain. Health Canada does the same thing country-wide, tracking the strains that are present across Canada and the World Health Organizations does the same thing globally. All of this data is available. Some of it we have direct access to and some is passed to us by the Middlesex-London Health Unit, so we know what’s going on. Dr. Gary Joubert: The other piece of information we get is whether or not the vaccine matches the flu strains. We can see how many patients who were immunized actually got infected. There’s a lot of information that goes back and forth, and it’s readily available – our Middlesex-London Health Unit is excellent. I receive regular updates during influenza season. The communication process is excellent across the board. 8. What would you say to someone in the community who had some flu symptoms that were quite bad – what would your advice be to them? Dr. Gary Joubert: I think that unless you have significant comorbidities – in other words, other diseases like diabetes, COPD, congestive heart failure – that you probably should seek care with your primary health-care provider (e.g., family doctor) first. Because coming to the emergency department, you’re not going to get seen quickly when there are lots of other people, and your primary health-care provider has the skills and tools necessary to care for you. Obviously if you have symptoms you’re extremely concerned about that are outside of the normal influenza illness, then I think it would make sense to go to an emergency department, realizing that you may have to wait. 9. What is the one message that you’d want the community to hear? Dr. Gary Joubert: You need to get vaccinated and if you do get the flu, then you need to seek care at your family doctor first. There are a lot of unfortunate misrepresentations about immunizations – get the real story from the Middlesex-London Health Unit. Laurie Gould: Get your flu shot, and also, staff should encourage each other to get vaccinated. Dr. Michael John: Get your flu shot and if you’re sick, don’t come and visit patients unless it’s absolutely critical. We’ll be working hard to ensure that we can provide patients with the safe, high-quality care that they require. Dr. Joubert (left), Laurie Gould (centre) and Dr. Michael John (right) discuss how last year’s heavy flu season has translated into new precautions and procedures for this year. 08 What is dialysis and why is it necessary? Dialysis treatment replaces the function of kidneys for patients with acute or chronic kidney failure. Generally, patients are classified as having kidney failure when kidney function falls below 20%. In the case of chronic kidney failure, the patient must undergo dialysis for the rest of their life. Driving through the roadblocks treatments around their lifestyle, providing them with freedom and flexibility. After receiving six weeks of intensive training that covered everything from using needles, hooking up access lines, setting parameters on the machine, and cleaning and maintaining the equipment, the Worleys were sent home to put their learning to practice. “At first it was scary,” says Debbie, as she and Ted recount a few mistakes they made with wry smiles. “The first thing they say is not to panic,” says Ted. “So that’s the first thing we did,” adds Debbie with a laugh. “But the Kidney Care Centre has a helpline and there’s always someone there 24/7 to help you out.” With the help of the regional renal program, With their minor blunders Debbie and Ted took their home — and their behind them, they have now fallen into a routine of shorter, home dialysis — on the road. more frequent treatments. Each morning, seven days a week, “Look who’s talking,” she retorts with a smile as a playful Debbie spends two hours undergoing dialysis. The frequency tension dances between them. has made a difference that she can feel and Ted can see. It’s clear by watching them interact, that Debbie and Ted “You have more energy now,” says Ted as Debbie nods share the special bond that exists between two people who and mentions her love of running in the morning hours, have been through it all together. when the air is cool and crisp. Ted moves about the machine with ease, explaining the Now, wherever the Worleys may travel, staff at the various functions and processes with in-depth knowledge regional renal program ensure that the water quality at their chosen campsite is up to standard for use with the dialysis machine. They also help ensure that Debbie has an adequate supply of medications and that she can access a test centre for her monthly blood tests. A 24/7 phone line is available in case they need to troubleshoot issues with the dialysis machine. This winter they will embark on their longest journey yet – a four-month trek to California where one of their daughters is hosting her wedding. It is just one of the many trips that the Worleys hope to make as they wind their way across North America to visit family and see the places that they’ve never been, untethered from issues of access to This winter, Debbie and Ted will spend four continuous months on the dialysis and limited only by the network road, visiting family across North America. of roadways that crisscross the continent. Dialysis is necessary to help the body: • Balance pH • Balance body fluids • Control electrolytes • Remove waste • Produce red blood cells • Regulate blood pressure that could pass him as an expert. It is the second dialysis machine that the Worleys have; the other has been installed in their permanent residence. Debbie is now completely free to conduct dialysis away from a clinic. The couple is just two of almost 200 people in the London region that the regional renal program has trained to conduct their own home dialysis through the home hemodialysis and peritoneal dialysis clinics. For motivated patients, home dialysis allows individuals to tailor their • Chronic Kidney Disease clinics and health education. took their home – and their home dialysis – on the road. This past June, technicians from the biomedical division of LHSC installed a dialysis machine in the couple’s 40-foot motorhome. The tall white machine with tubes, filters, saline pouches and containers of solution appears starkly medical in contrast with the warmth of the coach’s leather furniture, but the dialysis machine is a welcome and comforting addition. “Having it installed was one of the best decisions I could have made for myself,” says Debbie. “The couch was becoming her best friend,” says Ted. Thanks to help from the regional renal program, Debbie Worley (left) can conduct her own dialysis while vacationing in the 40-foot motorhome she shares with her husband Ted (right). One dialysis patient’s journey to independence 09 For Debbie and Ted Worley, spending time with extended family is the ultimate retirement dream. With family members scattered throughout North America, from Grimsby to California, the journey to each home has the potential to become an adventure in itself. But before the Worleys could hit the highway – an act that most of us take for granted – they first had to overcome an incredible roadblock. Debbie has polycystic kidney disease, a condition that she lived with unassisted for almost 30 years until her kidney function suddenly reduced to next to nil only a few years before Ted joined her in retirement. “When a patient’s kidney function falls below 20 per cent dialysis can assist with the blood purifying functions that kidneys would normally provide,” says Barb Dalrymple, coordinator of the hemodialysis unit at LHSC’s Kidney Care Centre in Westmount Shopping Centre. Typically, dialysis patients spend four hours, three times a week in a clinic undergoing dialysis treatment. The time commitment is equivalent to a part-time job. For Debbie to undergo treatment while travelling, it meant sacrificing time away from family. In the instances that she did undergo dialysis while travelling through the United States, she found herself squeezed into appointments at odd times – and after the treatment, too exhausted to do anything but sleep. Through the regional renal program at LHSC, travelling patients can have dialysis treatments coordinated around the world, but in order to obtain complete independence while away, the Worleys stretched their ingenuity one step further. With the help of the regional renal program, Debbie and Ted Debbie and Ted Worley bring us inside their journey. visit us at inside.lhsc.on.ca About the regional renal program at LHSC With the goal of enhancing or sustaining health and overall quality of life, London Health Sciences Centre’s (LHSC) regional renal program provides comprehensive care for approximately 950 chronic kidney disease (pre-dialysis) patients and 760 end stage renal disease (on dialysis) patients in Southwestern Ontario. The program provides hemodialysis services in the following locations: • Victoria Hospital (serving acute, inpatient and chronic patients); • University Hospital (serving acute, inpatient and chronic patients); • The Kidney Care Centre (serving chronic patients); • Eight additional regional satellite locations including: Chatham Kent, Goderich, Hanover, Owen Sound, Sarnia, Stratford, Tillsonburg and Woodstock (serving chronic patients on an outpatient basis). The Kidney Care Centre at Westmount Shopping Centre celebrates one year anniversary Opened in November 2012, the Kidney Care Centre at Westmount Shopping Centre is a London satellite location. Previously located at South Street Hospital, the centre’s new location within the community helps promote a wellness environment and enhances the patient experience. The Kidney Care Centre provides the following services and resources: • In-facility hemodialysis treatment for chronic dialysis patients on an outpatient basis. • Peritoneal and home hemodialysis assessment, training and maintenance. • Aboriginal resource room containing Aboriginal medicines, resources, information about Aboriginal cultures as well as Aboriginal arts and crafts. • Support centre for the regional satellite dialysis units. 10 “The lack of certainty and the lack of control can be stressful as there is no guarantee of success and there is a fear of the unknown,” he says, adding that the entire process of fertility treatments can cause women to feel emotionally and physically vulnerable as the procedures they must undergo can feel invasive. We are family Hannah (top left) and Abigail Londini (top centre) enjoy fun and games on a sunny day with their parents Vince (bottom left) and Lori (top right) as their sister Kayla takes a rest on their mother’s lap. How The Fertility Clinic helped one couple’s dream of family become a reality 11 Watching Abigail (8), Hannah (6) and Kayla Londini (3) chase each other around the backyard in a heated game of tag, it’s hard to imagine that these large personalities have such small beginnings – all three were conceived under a microscope in a lab at The Fertility Clinic at LHSC. Even harder to wrap one’s mind around is that both Hannah and Kayla were conceived from frozen embryos, which were bathed in liquid nitrogen before being carefully thawed, rehydrated and implanted into their mother’s womb. While the story of the Londini family’s conception may read like science fiction, fertility treatments, such as in vitro fertilization (IVF), are becoming a necessary reality for a growing number of individuals who hope to start a family. For Vince and Lori Londini, the discovery of fertility issues came as a surprise. The young couple had been eager to start a large family, but after a few years of trying, pregnancy was not happening as planned. Vince discovered that he had male factor infertility – and they almost abandoned all hope. For a few years, they tried to imagine a different future – living as just a couple and exploring the world – but the desire for a family simply would not fade, no matter how the odds seemed stacked against them. “We decided we’d rather have tried and failed than not know,” says Vince. “They are super helpful,” says Lori of the staff. “They just walk every step with you to make sure you know what is going on.” So in 2003, they took their first step towards starting a family by setting an investigation appointment at The Fertility Clinic at London Health Sciences Centre. Unfortunately, they discovered that not only had Vince’s diagnosis not changed, but that Lori also faced fertility issues. She describes the discovery of blocked fallopian tubes as devastating. “It was one more negative thing, one more obstacle to overcome,” she says. The Fertility Clinic’s medical team explained that despite the challenges the couple still had options, including a procedure to retrieve sperm, surgery to unblock Lori’s fallopian tubes or in vitro fertilization (IVF) using donor sperm. According to The Fertility Clinic psychologist Dr. Christopher Newton, fertility patients can face some complicated and emotion-laden decisions. The following egg retrieval procedure went as planned and Lori’s eggs and the donor sperm were combined in the lab, creating a number of embryos. Two were selected for transplant into Lori’s womb and the others were preserved through cryogenic freezing for use in later treatments. “The worst time is the two weeks after the transfer and before you find out if it’s worked or not. Two weeks felt like forever,” says Lori. While Vince was in Venezuela on business, Lori became pregnant. In understanding of these difficulties, The Fertility “Not many men can say that,” he says with a laugh. Clinic offers ongoing counselling services – under The clinic delivered the good news to the couple standard practice, a preliminary counselling session is over the phone. “We just started crying, we were just so provided before couples begin treatment. happy,” said Lori. After thoroughly examining their options from When asked about the day their first daughter Abigail emotional, spiritual and ethical angles, Vince and Lori was born in March 2005, Lori says the day passed in a blur. decided on in vitro fertilization (IVF) using donor sperm. “She was born late in the afternoon and I just remember that night, “The donor sperm not being able to sleep decision was a big and checking in on her one,” says Vince. to make sure she was “Nothing would be ok. She had dark hair further from the truth and was so cute. It was than to say we picked so amazing to finally an option off the see this little person menu and went with after all this time.” it. We agonized.” Less than a year later, After selecting Vince and Lori were a donor whose excited to try again. attributes most “I think I knew even matched Vince’s, before Abby was born that Lori began the we wanted to do it again intensive process of Shy Abigail (left), outspoken Hannah (centre) and fiercely independent – basically we went back to Kayla (right) share a close bond. preparing for IVF. the clinic,” says Lori. In order to explain all of the considerations around Their second daughter, Hannah was born in 2006 and treatment, as well as answer questions, The Fertility was later joined by younger sister Kayla, in 2010. Clinic assigns a primary care nurse to each patient, Now, with their family complete, the Londinis talk who then acts as an advocate and an information hub about the journey with words of amazement. “It’s hard between the patient and the medical team. to believe that at one point, my daughters were frozen The Londini’s primary care nurse, Megan, walked the embryos. It all seems too crazy to believe now that couple through the entire IVF process, explaining what they’re running around,” says Vince before noting that their family is exactly like any other. “This is the ‘normal life’ that we wanted, but we never thought we were going to have,” he says. “We just wanted to have a family with all the trials and tribulations that come with it and now we do. We survived the rollercoaster process of starting a family.” “And we’re still surviving it,” Lori says with a laugh. “It’s great, it’s amazing.” About The Fertility Clinic at LHSC. For over 35 years, The Fertility Clinic at LHSC has delivered successful fertility treatment with a focus on personalized care. As one of the few academic, hospital-based programs in the country, The Fertility Clinic and its state-of-the-art-facility offer patients several advantages: • As part of the women’s program, The Fertility Clinic provides comprehensive women’s health care – including consults to medical genetics, maternal fetal medicine, surgical and medical support, obstetrical and neonatology care. • Dedicated and caring staff includes reproductive endocrinology specialists, PhD scientists/embryologists, psychologists, counsellors and registered nurses. • Medical staff members are graduates of the Royal College of Physicians and Surgeons of Canada’s accreditation programs, ensuring the highest standard and quality of care. • Affiliation with Children’s Health Research Institute, Lawson Health Research Institute and Western University allows innovative research and advances to further clinical practice. • All resources – from fertility services to medical therapies – are housed on-site, offering convenience, efficiency and continuity of care for patients. • The Fertility Clinic offers OHIP-funded fertility treatments, as well as a competitive fee schedule for non-OHIP funded services. The Fertility Clinic, a history of success. Fertility treatment services were first offered at University Hospital during the 1970’s. When The Fertility Clinic was established in 1984, it became one of the first and largest IVF programs in North America. Since that time, approximately 5,000 babies have been born through various treatment programs, and in the last 15 years alone, more than 2,500 patients have participated in over 6,000 treatment cycles. The Fertility Clinic, here for you: The Fertility Clinic offers a range of fertility and gynecological services, as well as advanced gynecological surgeries. With full accreditation from Accreditation Canada, The Fertility Clinic specializes in offering on-site assessment and treatment for: • Primary and secondary infertility • Third-party reproduction, including egg donation, gestational carrier and donor sperm • Male factor infertility including microsurgical sperm aspiration • Endometriosis • Polycystic ovarian syndrome Lynda Hughes, lab technologist works in the laboratory at The Fertility Clinic. • Recurrent pregnancy loss Lori could expect at each stage of treatment. She also taught Lori how to perform self-injections, which women must complete for approximately two weeks in order to prepare the body to release eggs. “Basically anytime there were results, she would give me a call,” says Lori. “They are super helpful,” she says of the staff. “They just walk every step with you to make sure you know what is going on.” • Early pregnancy assessment • Management and treatment of uterine fibroids or anomalies Take a deeper look inside The Fertility Clinic visit us at inside.lhsc.on.ca For more information, or if you suspect you may be experiencing fertility issues, you can contact The Fertility Clinic at 519.663.2966 ext. 1 or at [email protected]. 12 RESEARCH ON THE SCENE AT LHSC London researcher answers the call to service LHSC surgeons first in Canada to use single incision for living donor kidney transplant the kidneys, is combined with saline, it can improve the flow of blood and oxygen to injured tissue – preserving it for longer periods of time and allowing the injured individual a better chance at reaching medical treatment, including transfusions. “Erythropoietin can be easily given in the field through a syringe, and helps preserve tissues while injured personnel await transfer to definitive care,” he says. The solution does require refrigeration, but this obstacle can be overcome in the field. Having served in various military units as a medical officer since 1991, Dr. Kao’s dedication to his work on and off the battlefield is palpable. “What drives me is my passion for the military and my understanding of what our soldiers go through Dr. Raymond Kao, pictured here in a Hercules aircraft, has uncovered the tissue-preserving ability when they are wounded,” says of erythropoietin – a discovery that will help save lives on the battlefield. Dr. Kao. “These young soldiers deserve everything we can do to bring them back alive, safe and in For the past 10 years, Lawson Health Research Institute’s a state where they can return to their families and friends and live as Dr. Raymond Kao has applied his medical expertise, both as an normal of a life as they can.” attending physician in the critical care unit at London Health Dr. Kao says accepting the first Chair in Military Critical Care Sciences Centre and on the battlefield. Research is humbling. The Chair is named after Group Captain A member of the Canadian Armed Forces since 1977, Dr. Kao G. Edward Hall. Although best known in the London area for his has served in Bosnia, Africa and the Middle East. More recently, service as Western’s University’s Dean of Medicine and longest-serving president, another of Hall’s “While military technology has advanced great contributions to Canada was as a military dramatically since the early days of war – getting health researcher. “If I can only strive to achieve a fraction of what wounded soldiers back through the lines quickly to Hall did during his career, I’ll be satisfied,” says receive proper medical care and blood transfusions Dr. Kao. Hall’s research into the development of oxygen equipment and protective clothing – is still one of the greatest challenges today.” for pilots made such a huge contribution to the Canadian and Allied war effort, he was one of a very few non-aircrew officers to be awarded the Air Force Cross. Dr. Kao served four tours in Afghanistan-Kandahar as an Internal The Chair, provided by the Canadian Armed Forces, will Medicine and Critical Care physician and to Mazer-e-Sherif as an help fund Dr. Kao’s ongoing research projects. Recently, advisor to the Afghan 209th Army Medical Corp. Dr. Kao has been studying the use of C-peptide in shock and In recognition of his ongoing contributions to the military, resuscitation. C-peptide is an insulin-connecting protein, which has Dr. Kao was awarded the first Canadian Chair in Military Critical anti-inflammatory and other protective effects on stressed organs. Care Research this past January. “Early results have been promising,” says Dr. Kao. “We have Canada has a strong tradition of sending medical personnel to found that it reduces both lung and gut injuries after hemorrhagic war. Founded in 1904, the Canadian Army Medical Corps has shock and fluid replacement.” played an essential role in keeping soldiers alive. But, while military Dr. Kao says his Chair position will allow him to be more proactive technology has advanced dramatically since the early years of war – and prepared for whenever and wherever the next conflict begins. getting wounded soldiers back through the lines quickly to receive “The Research Chair makes me much more enthusiastic to do proper medical care and blood transfusions – is still one of the as much as I can for the research and clinical work on behalf of greatest challenges today. the men and women who serve in the armed forces…we cannot be “An evacuation takes time – usually 45 to 60 minutes to get slacking off. When the time comes, we have to be ready – not only soldiers out by helicopter or vehicles,” says Dr. Kao, whose research military wise, but in support of our soldiers. Because of what I have discovery bridges the gap between the time of injury and the point seen in Kandahar, I feel our soldiers deserve the best we can give at which care can be given. them and that’s really the bottom line for me.” Dr. Kao found that when erythropoietin, a protein produced by 13 Canada’s first robotic assisted single-site nephrectomy was performed by LHSC surgeons on kidney donor Kelley Kunkel, who underwent the procedure to provide her husband Steve with a new lease on life. The surgeons performed the procedure using the da Vinci robotic surgical system, which allowed them to carefully extract the healthy kidney through a small (4-6 cm) incision in her navel. “By using robotic assisted lapro-endoscopic single site surgery (LESS) on living kidney donors, we are able to minimize risk, shorten recovery times, and return the donor back to their normal day-to-day activities sooner,” said Dr. Alp Sener, who performed the surgery with Dr. Patrick Luke. Iron Man, meet Iron Man When Carter Robbins was diagnosed with a stage three Anaplastic Ependymoma brain tumour at the age of four, it was clear he would have a tough battle to fight. Five surgeries, a round of chemotherapy and 33 sessions of radiation later, Carter had not only fought a winning battle, but he had also earned himself a nickname from his surgeon – “Iron Man”. After a two-year period free from cancer, Carter – now seven – recently suffered a recurrence of his tumour, and his superhero strength kicked in once again. To celebrate the end of his radiation treatments, staff at LHSC’s London Regional Cancer Program arranged to have his favourite superhero join him in sounding the ceremonial gong that each radiation patient rings when their treatments come to an end. Dr. Kao receives the Chair in Military Critical Care Research from Surgeon General BrigadierGeneral Jean-Robert Bernier on behalf of the Canadian Armed Forces. What is a Chair in Military Critical Care Research? The Chair in Military Critical Care Research is a three-year renewable position. During the Chair’s tenure, he or she is responsible for preparing a three-year strategic plan, submitting research proposals, and reporting progress in accordance with the existing requirements of the Surgeon General Health Research Program. The formalization of Captain (Navy) Kao’s existing arrangements at the Lawson Health Research Institute into the position of Chair in Military Critical Care Research will enhance the credibility and visibility of military health-related research interests across the public and throughout academia. The appointment of this Chair serves to increase the public and academic recognition of the Department of National Defence/Canadian Force’s existing investments in military health research and enhances the interest of other university medical centres in providing them with clinical opportunities and research support. Finally, the establishment of the Chair demonstrates the high calibre of military health professionals and the research they conduct. Presidents Awards program recognizes the extraordinary people at LHSC The President’s Award program recognizes remarkable people at London Health Sciences Centre (LHSC) who demonstrate the core values of trust, respect and collaboration through care delivered to patients, interactions with colleagues, and the countless hours given to helping others in the community. LHSC is also home to dedicated innovators and leaders (both formal and informal) who are committed to helping the organization reach its full potential. At a special ceremony on June 7, LHSC President and CEO Bonnie Adamson awarded five recipients with a 2013 President’s Award. Pictured from left are: Bonnie Adamson, Sandy Jansen, Janet Robinson, Dr. Simon Levin, Dan Logie, and Ruthe Anne Conyngham, Chair of LHSC’s Board of Directors. Absent from photo is Dr. Richard Owen. Each winner’s name also now appears on the perpetual plaques honouring award recipients, located in the President’s Gallery at Victoria and University hospitals Byron Believers surprise hospital visitors with paid parking In memory of the friends they lost to cancer, sisters Kristin MacDonnell and Jody Wakelin MacDonnell founded the Byron Believers for Sarah and Sue. Each year, the group hosts a yearly book sale out of MacDonnell’s garage, with the proceeds going to local charities. This year’s sale raised $1,020 and the family decided to use the money to surprise patients and visitors at LHSC’s London Regional Cancer Program with paid parking. “We thought, wouldn’t it be fun to pay for parking (at the London Regional Cancer Program)?” says Wakelin, explaining that she and her sister believed it would also be a great experience for their children to see the impact of their fundraising. In only a few short moments, the group elicited smiles and words of appreciation from half a dozen individuals, including one elderly woman who stopped to embrace the girls and thank them for their generosity. 14 YOU ASKED US... Travelling somewhere sunny this winter to escape the cold? The primary health care team from London Health Sciences Centre’s Victoria Family Medical Centre recommends these healthy travel tips: o o o o o o List Medication edications escription m te of pr ith w g lin y a no If travel ty u should carr ctor, a , and get plen d supplies yo do et an di ily y m th fa al ur he yo a m Exercise, eat explanation fro cription, and there should es of rest. copy of the pr acy label on the original ent. Visit m m ss ar se ph as r th ea customs. be a cl travel heal oid issues at avel health av tr Set-up a preto a r or ne or ai carried in ct nt co ily do lp ion should be age in case at ic ed with your fam your health needs and he m l ia lugg Essent ss These visits eces of hand clinic to asse and injuries. o different pi olen. Ensure you pack ss tw ne ill t ns io en at ev iz or st mun you pr n. one gets lost ecific travel im , ur trip duratio – as well as sp vered by your health plan enough for yo an th e or m co include these – may not be at require ur health and ical needs th ting resort ed m ve ha u so invest in yo el budget! If yo act your visi trav e n abroad cont io nt costs in your te ents in advanc at nce and uss arrangem ra sc di su . in to ed l th te ne al ho or u may avel he y supplies yo le travelling. Obtain full tr and bring an coverage whi of f and oo pr y rr ca t lag, altitude, : to manage je eep schedule that includes ed t ar ki ep th pr al e he B sl el n . Adjust your to gradually Prepare a trav card with your medicatio a new culture e n Plan e. nc va ad in an informatio me, address, and a phon cise, several days na at require exer da list, allergies, se activities th adjust to a new ily doctor an ation ea m cr fa in ur yo r body to commod number fo allowing your local habits and customs, l in Canada; ac ics at your ew in family/friend vi , loca cl l/ Re ita e. altitud expectations ion; hosp of greetings, and destinat Embassy; te n no ia g ad in ak an C m ; s. d er d food choice destination an ct repellant; hand sanitiz schedules an se ts bi ha er at w sunscreen; in d safe food an and a list of g. lin el while trav Itinerary o Before you g o o o me elling or beco sick while trav ur you’ve been turn to Canada, inform yo If re ur yo r te iately. sick af ovider immed health-care pr friends and riences with pe ex ur yo s (including re Sha os and storie the way!) ot ph h ug ro family th up along s you picked any travel tip o visit us at inside.lhsc.on.ca Don’t miss the next issue of inside! F O L LO W U S ® ✂ London Health Sciences Centre 800 Commissioners Road East PO Box 5010 London, Ontario N6A 5W9 Ph: 519-685-8500 turn When you re Medical History o Insurance o o der running s with soap un sanitizer – nd ha ur yo h nd ha Was in alcohol-based water or use e most important practices th of e on is g. is th avellin ness while tr preventing ill Only drink, of safe fluids. from purified Drink plenty e eth and use ic sinfected or di brush your te d, ile . s been bo water that ha ttled in sealed containers bo d ly oi al ci Av . er fe m com lly sa inks are usua Carbonated dr iry products. da unpasteurized prevent and caffeine to cohol at your Al Avoid alcohol s. d headache u are dehydration an be much stronger than yo t no ay m do n d io ation an destinat drink in moder me localities ly on – to ed So us ewed alcohol. drink drink home-br excessive drinking. Never te ra le to t no d. ay m ibite here it is proh in countries w e sun, wear travelling in th lock If lf: se ur yo e sunb Protect d a hat, and us sunglasses an er) regularly; avoid insect gh (SPF 15 or hi opriate protective clothing pr ap r ea w s; te tivities. bi llent during ac pe re ct se and in Emergency Contact vel While you tra