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Welcome Welcome..... to Maria Fareri Children’s Hospital at Westchester Medical Center and thank you for choosing us to help meet your child’s healthcare needs. Our team of more than 4,000 physicians, nurses, technologists, therapists, pharmacists, residents, volunteers and others are dedicated to providing the best medical care available and to make your child’s stay at Maria Fareri Children’s Hospital at Westchester Medical Center as brief and as restful as possible. For every staff person you meet, there are dozens of highly trained professionals that you don't see, all working to ensure that you and your child are comfortable and all committed to restoring your child’s health quickly. This booklet is for you, the parent of a child in Maria Fareri Children’s Hospital. Whether your child is in the hospital for a critical illness or injury, an operation, a medical evaluation or a diagnostic test, this can be an overwhelming and stressful time for you. As a parent you are the most important person in your child’s life. While your child is in the hospital, your attention, love and concern are still his or her greatest comfort. To meet this need, we encourage you to participate in your child’s care whenever possible. We will work with you and your family to understand this hospitalization. We hope that this informational booklet will answer some of your questions and be helpful in your adjustment to the hospital environment. Do not hesitate to speak up, to ask questions or to express any concerns. 1 If during your stay, you have any concerns, questions or comments about your care, treatment or any of our services, please speak with your nurse, physician or a Patient Advocate, extension 8877, so that we can address the issue quickly and to your satisfaction. Mission Statement The Mission of Maria Fareri Children’s Hospital at Westchester Medical Center is to set the standard for family centered, compassionate care in an environment that attracts outstanding physicians and staff, positively impart healing and wellness to all children and families and to be an advocate for children’s health in the extended community. Family Centered Care Statement Maria Fareri Children’s Hospital at Westchester Medical Center is committed to Family Centered Care. We recognize the family unit as the primary source of strength and support for our patients. We realize the information families provide is invaluable and comes from a unique perspective which can impact clinical decision making. We acknowledge that the implementation of Family Centered Care leads to better health outcomes. As healthcare professionals in partnership with the family we hope to assist in achieving the child’s health care goals in a mutually supportive and compassionate environment. The Maria Fareri Children’s Hospital embraces the core principals of Family Centered Care: • Treating each child and his or her family with dignity and respect • Providing complete, unbiased and timely medical information to families • Encouraging the family to participate in the care and decision making of the child to the level they feel most comfortable • Recognizing the importance of racial, ethnic, cultural, and socioeconomic diversity and its impact on the family’s experience and perception of care • Identifying and building on the strengths of each child and family, even in difficult and challenging situations. 2 Maria Fareri’s Story Maria Fareri Children’s Hospital at Westchester Medical Center was born from a vision shared by many people, including Brenda and John Fareri. In 1995, Brenda and John’s 13 year-old daughter Maria became ill for no apparent reason. She was taken to a local hospital, however a firm diagnosis of her condition was not made. As her symptoms progressed, it was suggested that Brenda and John take Maria to Westchester Medical Center with its many pediatric specialists. Within a day, Maria was diagnosed with rabies. Rabies is 100 percent curable if detected and treated immediately, but 100 percent fatal if left untreated for a period of time. By the time Maria got to Westchester Medical Center, it was too late. In a little more than a week, Maria passed away. Brenda and John were devastated over the death of their daughter, but as they slowly emerged from their grief they started to think: “Why shouldn’t there be a world-class children’s hospital to serve the Hudson Valley and Fairfield County, Connecticut?” With the support of the medical center’s administration and the Department of Pediatrics, the journey began to create a facility unlike any before that would be a lasting tribute to Maria while helping countless children and their families for decades to come. Soon thereafter, Maria’s teacher contacted Brenda and John and shared with them the results of an assignment given to Maria’s class before she became ill: “If you had one wish, what would it be?” Maria’s wish was: “For the health and well-being of all the children in the world.” With Maria’s spirit guiding them, her parents, family and over 20,000 members of the community made Maria’s wish a reality. 3 Contents About Our Hospital Welcome to Maria Fareri Children’s Hospital ..........................1 Mission Statement............................2 Family Centered Care Statement .....2 Maria Fareri’s Story .........................3 About the Hospital ...........................5 Welcome to Our Neighborhood Staying With Your child...................6 Neighborhoods.................................6 Visitors .............................................7 Hospital Routines.............................7 In General.........................................8 Safety ...............................................8 Infection Control..............................8 Pain Management.............................9 Child Life and Creative Arts Therapy Department ........................9 Family Resource Center.................11 Who’s Taking Care of Your Child? ....................................12 Glossary of Terms ..........................16 Where Do I Find? Parking ...........................................18 Telephone.......................................18 TV service ......................................18 Transportation ................................18 Religious services ..........................19 Hotels/Motels.................................20 Restaurants.....................................20 Shopping ........................................20 Movie Theaters ..............................21 ATM ...............................................21 Banks..............................................21 Relaxation ......................................21 Family Resource Center.................21 4 Safe Spaces ....................................21 Laundry Room ...............................21 Kosher Refrigerator .......................22 Children’s Hospital Foundation .....22 Internet Access ...............................22 Interpreter Services ........................22 Directions.......................................22 Commonly Asked Questions..........23 Children’s Reaction to Hospitalization Developmental Reactions ..............25 Patients’ Bill of Rights ............27 Notes ......................................29-31 TV Channels .............................32 About the Hospital Westchester Medical Center is the leading academic medical center, tertiary care center and Level I Trauma Center serving the Hudson Valley and surrounding areas. Our 635 bed facility is home to some of the nations top specialists. The Medical Center consists of the following; Main Hospital, Maria Fareri Children’s Hospital, Behavioral Health Center. The following Centers of Excellence are also part of the Medical Center: George E. Reed Heart Center, Zalmen Arlin Cancer Institute, Transplant Center, Neuroscience Center and Joel A. Halpern Trauma and Burn Center. IMPORTANT TELEPHONE NUMBERS Hospital (914) 493-7000 Concierge Services (914) 493-7505 Emergency Department (914) 493-7307 Family Resource Center (914) 493-8503 Parking Information (914) 493-7932 Patient Advocates (914) 493-8877 Pediatric Emergency Department (914) 493-8671 Privacy Officer (914) 493-2600 Social Work (914) 493-7631 Volunteer Office (914) 493-7850 5 WELCOME TO OUR NEIGHBORHOOD Having a hospitalized child can be a stressful event for the entire family. Staff of Maria Fareri Children’s Hospital at Westchester Medical Center are sensitive to this and will assist in orienting you and your family to the unit and to the routine occurrences of the day. Staying with your Child – Parents are encouraged to stay with their child. Each room is equipped with sleeping accommodations for one family member. Please, only one family member may spend the night and appropriate sleeping attire must be worn. Siblings of the patient may visit on a planned basis but may not sleep overnight. For safety reasons, parents are not to sleep in bed with their child or allow their child to sleep with them in their bed. Unfortunately, it may be necessary to turn the lights on in the room at night to provide nursing care, administer medication or treatments. We are sorry if you are disturbed. We encourage you to personalize your child’s room with familiar items from home. Things such as special blankets or pillows, pictures or stuffed animals can be comforting for your child during stressful times. Please do not use tape on the walls. Each room has a telephone and a TV/VCR-DVD. Please refer to the section on Telephones and TV in the Where Do I Find Section for more information. Neighborhoods – The general pediatric units are located on the third floor of the Children’s Hospital. The units are divided by age group into different “neighborhoods”. Every effort is made to admit your child to the age appropriate unit. However, bed availability may at times require an alternative unit assignment. Each neighborhood has its own theme and décor and are situated around a communications center. Younger children are in one of three neighborhoods: • Infants are in the Sailing Neighborhood. (Rooms 3102-3118) • Toddlers are in the Heroes Neighborhood. (Rooms 3120-3138) • Preschool children are in the Flight Neighborhood. (Rooms 3140-3156) Older children are in different neighborhoods: • School-aged children are in the Theater Neighborhood. (Rooms 3200-3218) • Adolescent Unit is the Literature Neighborhood. (Rooms 3240-3256) • Oncology Unit is in the Arts Neighborhood. (Rooms 3220-3238) Pediatric Intensive Care Unit provides specialized care for seriously injured or ill children and adolescents. 6 Please feel free to walk around to see the other neighborhoods and enjoy the unique character of each. Due to infection control concerns we ask that you not visit the Arts neighborhood. To acquaint you with your neighborhood, each has a nutritional center containing juice and snacks. There is a separate sitting area for families so you can be close to your child, but you do not have to be in their room. There are separate playrooms off of each communications center containing age appropriate toys for each age group. For teens and other technology-savvy children, there is the Lion’s Den (room 3272), an interactive game room that provides kids with a respite during their hospital stays. In addition to gaming and other electronic equipment, the rooms have the latest communications tools so children can connect with family and friends anywhere in the world. The Lion’s Den at Maria Fareri Children’s Hospital (there are Lion’s Dens in other children’s hospitals in North America) has multiple video game systems, personal computers with Internet access, a video conference pod and a large, flat screen television. Now for your room. Most of our patient rooms on the third floor are single rooms. Each room is equipped with a bathroom, closets, telephone, a flat plasma screen television and DVD/VCR player. There is also a sofa that converts to a single bed to accommodate the parent staying overnight. Please do not bring any additional furniture/mats to the hospital as they may impede the staff’s ability to care for your child. The nursing station is in the center of all the rooms in each neighborhood. Visitors – We encourage your family and friends to visit your child. It is up to you to decide who can visit, when they visit and how long they stay. Please talk to your nurse about who can visit and what your plans are for visitation with your child. If any of your visitors are not feeling well, please ask them to reschedule. Your child does need rest periods during the day. Rest is an important part of the recovery process. Please keep this in mind when scheduling visits. We need to plan together to provide an environment that is conducive to healing. If younger children are visiting, please be sure they have adult supervision at all times. For infection control reasons, the playroom is for use by patients only. Parents may stay with children 24 hours a day. Hospital Routines – each day can be different for your child depending on needed tests or procedures. Some basic things to expect on a daily basis are: • Physician rounds – The attending physicians usually visit each patient with the medical residents responsible for their care in the morning and 7 evening. Speak to your child’s nurse or physician about the usual rounding time. Parents are encouraged to be present during physician rounds in order to provide input and learn from the team regarding their child’s medical condition and progress. • Vital signs – Vital signs is a term used to describe taking temperature, pulse, respirations and blood pressure. These are usually taken about every four hours on the pediatric floors and more often, sometimes every one to two hours in the Intensive Care Units. The frequency of vital signs often depends on your child’s medical condition, the treatments and the medications he/she is receiving. • Meals – are delivered to each patient three times a day. • Bathing – there is a private bathroom in each patient room on the general pediatric neighborhoods on the third floor. You and your child may use this. In the Pediatric Intensive Care Unit (PICU) there are bathrooms for families in the Family Lounge. In General • Smoking is prohibited in all areas of Westchester Medical Center. Smoking outside is restricted to designated smoking areas • Patients may not leave the patient care unit without permission from your nurse. • Take all medication only as prescribed. Do not take medication brought from home, including over-the-counter medications. • Carefully follow diet and exercise plans. Safety • Please supervise your children at all times; they should not be left unattended anywhere in the hospital. • Please do not disconnect any monitoring equipment without the knowledge of the nurse responsible for your child’s care. • Always put the side rails up when leaving your child in their crib. • Please inform your nurse if you are taking your child out of the neighborhood. • All patients will be required to wear an electronic bracelet that is part of our Child Abduction Safety System. Infection Control Issues • Hand washing – ANYONE touching your child should have washed his/ her hands. Do not hesitate to ask if any person touching your child has washed their hands. Staff use soap and water or the special gel provided to wash hands. Watch a video about hand hygiene at www.worldclassmedicine.com/ handhygiene • Isolation – if your child has been placed in isolation, please speak to the nurse to be sure you understand the reasons why and what precautions you and visitors need to take. 8 Pain Management Pain management is the right of every child and an important part of their care and recovery. Our goal is to keep your child as comfortable as possible during his/her stay. With the addition of our Distraction Station, other therapeutic methods can be used to assist your child with uncomfortable procedures. We expect that you will be involved in helping us to meet the pain management goals for your child. Please do not hesitate to speak to a team member. We also have a special booklet, Stopping the Ouch that explains more about the importance of pain management. Child Life and Creative Arts Therapy Department The Child Life and Creative Arts Therapy Department helps children and families adjust to and understand hospitalization, illness, injury, and treatment. The Child Life team is comprised of Certified Child Life Specialists, Board Certified Music Therapist and a Board Certified Art Therapist. These are professionals with advanced training in areas related to working with children and families in medical settings. All team members hold either Bachelor’s or Master’s degrees in the areas of child life, child development, music therapy or art therapy. In addition, each team member maintains professional certification in their respective field Child Life and Creative Arts Therapy Department includes: Developmentally Appropriate Activities in Groups or at Bedside Children’s activities are based on age, ability, interest, and needs. Group activities are held in the infant, toddler and preschool playroom, the school-age playroom, Companions in Courage Lion’s Den or the art studio. If your child is unable to leave the room, activities can be brought to the bedside. Group activities help children socialize with peers, serve to normalize the hospital experience and provide opportunities for selfexpression. Bedside activities are designed to meet individual needs. Medical Play Children of all ages are encouraged to play with “pretend” or actual medical equipment as a way of learning about the hospital environment and its procedures. Medical play allows children to act out their feelings and concerns, while also alerting the Child Life Specialist to any misconceptions the child may have. Preparation Research has shown that preparing children properly before a procedure helps them cope both during and after their hospitalization. Using developmentally appropriate language, children learn about upcoming procedures, focusing on the sensations they are likely to experience such as sight, sound, taste, smell and touch. Special teaching dolls and photo preparation books are commonly used. 9 Procedural Support Child Life and Creative Art Therapy staff members help children in developing their own coping strategies through the use of imagery, distraction, relaxation and music, in order to reduce anxiety and stress during procedures. Child Life staff also assist parents in supporting the child during procedures. Special Programs and Visitors Special programs are planned throughout the year to provide entertainment as well as distraction from the daily hospital routine. Special events and visitors to the hospital are important components of our program as they offer our children something to look forward to during their hospitalization. These events include holiday celebrations, boat building, and regular performances by magicians, among others. Music Therapy Heather on Earth Music Therapy is available for all children and families. A Board Certified music therapist uses music activities, both instrumental and vocal, designed to help with pain reduction, stress management, selfesteem and emotional expression. Art Therapy Art Therapy uses the creative process of art making to improve and enhance the physical, mental and emotional well-being of patients of all ages. The creative process helps children cope with illness, reduces stress and increases self-esteem. Psychosocial and Emotional Support The Child Life and Creative Arts Therapy team provides social and emotional support for children and their families. Support comes in many ways, such as connecting families who are facing similar conditions/illnesses, providing education on hospitalization issues that arise, helping siblings cope and lending a listening ear when needed. Please do not hesitate to contact our office for support and assistance. The Child Life and Creative Arts Therapy Department staff may be reached by dialing 493-6640. 10 Family Resource Center The Family Resource Center is located on the first floor of the Maria Fareri Children’s Hospital in Room 1118. The Center is a welcoming relaxed setting with comfortable sofas and chairs, five computers with internet access and a multitude of children’s books. Families utilize this space for a variety of reasons including conducting computer searches for healthcare, parenting, finances and education; obtaining children’s books for the patient and siblings to read or just to get away for a few minutes to rejuvenate. All families of hospitalized children are encouraged to use the space. The focus of the Center is to assist families of hospitalized children with supportive services according to the family’s individual needs. For individual assistance, please visit the Family Resource Center or call extension 8503. An invaluable addition to the program is the multitalented volunteer force who pride themselves in being flexible and available to help families in whatever way necessary. Family Resource Center volunteers assist with a variety of different services. Some of the services provided include staffing the Laundry Room, organizing the library books in the Family Resource Center and in Patient areas and assisting families in developing private webpages for their child through CarePages. If you would like the assistance of a volunteer, speak with the Director of Family Support and the Family Resource Center for further information. Housed within the Family Resource Center is the Family Business Center. It is equipped with a fax machine, photo copier, scanner and networked printer. It is open Monday through Friday from 9:30 AM to 4:30 PM. Families are welcome to use the Family Resource Center to: • Participate in a coffee hour or support group for family members of hospitalized children • Access the internet and e-mail • Develop an individualized private webpage for your child through www.carepages.com • Conduct personal business • Recharge your cellphone with the multitelephone recharger • Talk with someone who understands how difficult it is to have a child in the hospital • Take a break and relax just a few steps away from your child’s bedside 11 Who is Taking Care of Your Child? You will see a team of professionals involved in your child’s care. The different roles and responsibilities of each team member can be confusing at times. The following list of team members and their responsibilities should help in understanding what you can expect. • Attending Physician Will supervise care and treatment, working closely with all the staff. All tests, medications, nutritional needs and other aspects of your child’s care will be administered according to the Attending Physician’s instructions. My Child’s Attending Physician is: _______________________________ Phone Number: _______________________________________________ • Fellow A licensed physician who has completed a residency and is preparing to become certified in a specialty area. (e.g. pulmonary, gastroenterology, etc.) • Resident Physician Licensed physician who has graduated after completing medical school. The Resident works with the Fellows and attending physicians to provide medical care. My Child’s Resident Physician is: ________________________________ Phone number: _______________________________________________ Medical students may also participate in rounds and examine your child they will be appropriately identified. Physicians Assistants (healthcare professionals licensed to practice medicine with physician supervision), Nurse Practitioners and Registered Nurses (RNs) who have advanced education and clinical training in a healthcare specialty area, may also assist the Attending Physician in your child’s care and treatment. • Nurse Manager/Nursing Supervisor A Registered Nurse and the manager of a patient care unit. Special requests or concerns should be directed to the Nurse Manager. My Child’s Nurse Manager is: ____________________________________ Phone number:_________________________________________________ 12 • Registered Nurse A Registered Nurse supervises the “hands on” care of your child. RN’s are educated and trained in a variety of specialty areas. There is always a registered nurse assigned to your child. My Child’s Nurses are: __________________________________________ Phone number:_________________________________________________ • Nursing Assistant Under the direction of a Registered Nurse, Nursing Assistants provides direct care for infants and children including taking vital signs, feeding and bathing. My Child’s Nursing Assistant’s are: ________________________________ Phone number:_________________________________________________ • Unit Clerk Responsible for the clerical work on the unit. The Unit Clerk is at the nursing station and can take messages for the team and help you find the people you need to see. They are also responsible for the patients chart and making sure that all lab reports and information are properly placed. My Child’s Unit Clerk’s is: _______________________________________ Phone number:_________________________________________________ • Discharge Planning RN Discharge Planning Nurses coordinates any healthcare needs the patient will have after discharge. My Child’s Discharge Planning Nurse is: ____________________________ Phone number:_________________________________________________ • Clinical Nurse Specialist A Clinical Nurse Specialist is a Registered Nurse who has advanced training in assisting patients and nurses with clinical issues and education. My Child’s Clinical Nurse Specialist’s is: ____________________________ Phone number:_________________________________________________ 13 • Child Life and Creative Arts Therapy Specialists Child Specialists, including Music Therapists and Art Therapists, are specially trained in dealing with children’s concerns and reactions to hospitalization and illness. Through education, play and activities, Child Life Specialists help children and families understand what is happening to them physically and emotionally. My Child’s Child Life Specialists and Creative Arts Specialists are:______ ____________________________________________________________ Phone number: _______________________________________________ • Pastoral Care/Chaplains Chaplains are members of the healthcare team who provide spiritual/ religious resources to meet the needs of patients, families and staff during times of change and uncertainty. Our team of chaplains is specially trained to minister to people of diverse faiths in the hospital setting. Clergy of all faiths and denominations are available to you and your family for prayer, sacraments and counseling. The chapel is located in the University Hospital in the Macy Pavilion and is open 24 hours a day. You or your nurse may call extension 7125 to request a visit from a Chaplain. My Family’s Chaplain is: _______________________________________ Phone number: _______________________________________________ • Social Worker A Social Worker is available Monday through Friday from 8:30 a.m. to 4:30 p.m. to assist you with problems and concerns related to your child’s hospitalization. Please let your nurse know if you would like to speak to a Social Worker. Our Social Worker is: __________________________________________ Phone number: _______________________________________________ • Physical Therapist Physical Therapists are professionals with special training in helping people whose illness affects their joints and muscles, helps develop muscle tone, endurance, balance and movement. My Child’s Physical Therapist is: _________________________________ Phone number: _______________________________________________ • Occupational Therapist Occupational Therapists are professionals with special training in helping children to meet the learning challenges of normal growth and development. My Child’s Occupational Therapist is: _____________________________ Phone number: _______________________________________________ 14 • Speech Therapist Speech Therapists are professionals trained in speech and swallowing disorders. My Child’s Speech Therapist is: __________________________________ Phone number: _______________________________________________ • Respiratory Therapist Respiratory Therapists are professionals with special training in breathing disorders and the respiratory equipment needed to treat them. Respiratory Therapists administer respiratory treatments when ordered by the physician. My Child’s Respiratory Therapist is: ______________________________ Phone number: _______________________________________________ • Clinical Dietician Clinical Dieticians are available for personal nutritional counseling. Specially trained dieticians and clinical aides will gladly assist you with your child’s specific dietary needs during their hospital stay and can be reached at extension 7290. My Child’s Dietician is: ________________________________________ Phone number: _______________________________________________ • Volunteers Volunteers are from every sector of the community and work in nearly every department of the hospital, offering the most valuable commodities…time and caring. Volunteers perform a wide variety of nonmedical services to help make your and your child’s stay as comfortable and pleasant as possible. Some of the Volunteer’s names are: _______________________________ • Patient Advocates Advocates are available to discuss any problems or concerns you may have about your child’s care or hospital stay. A patient advocate is a trained professional whose primary responsibility is to serve as your liaison to the Medical Center and all of its services. Patient Advocate name is:_______________________________________ Phone number is: 493-8877 15 Glossary of Terms Ambulatory: able to walk; not confined to bed Antibiotic: medication used to treat various infections Apnea: a temporary halt in breathing Aspiration: the act of breathing in fluid or a foreign body or substance Biopsy: an examination of tissues removed from the body to make a diagnosis Bradycardia: An abnormally slow heartbeat CAT Scan, CT Scan: computerized x-ray of a part of the body or the entire body, more detailed and precise than an ordinary x-ray Catheter: a thin, hollow tube that can be inserted into the body to withdraw or insert fluid Cardiac: pertaining to the heart CBC (complete blood count): a blood test to see how many and what kind of blood cells an individual has. The test is done with a very small amount of blood Chart: patient’s medical record; holds the complete history of the child’s illness, medicines and tests from the time of admission until he/she goes home EEG (electroencephalogram): Recordings of the electrical activity of the brain. The EEG may be useful in recording seizures EKG (electrocardiogram): study of heart activity (also ECG) Endoscopy: a test/procedure in which a flexible tube with a light is used to look inside a body cavity or organ Febrile: pertaining to fever Gastrointestinal: pertaining to all or some of the organs of the digestive tract, from mouth to anus Hyperglycemia: a condition where there is too much sugar in the bloodstream Hypoglycemia: a condition where there is not enough sugar in the bloodstream Infusion: the slow injection of a fluid into a vein or tissue I & O’s: Input and Output that is measured and recorded I.V.: intravenous, method of putting medicines, fluids or nourishment (liquid food) directly into the body through a vein Lumbar Puncture (Spinal Tap): withdrawal of fluid from or injection of fluid/medicine into the subarachnoid space of membranous coverings of the lumbar (lower back) spine 16 Nasogastric tube (NG tube): a tube inserted through the nose to the stomach, placed to drain the contents of the stomach or to provide nourishment if a patient’s swallowing is impaired NICU: neonatal intensive care unit NPO: nothing to eat or drink OR: operating room PICU: pediatric intensive care unit Pulse: number of heartbeats per minute PO: take in orally Pulmonary: pertaining to the lungs Renal: pertaining to the kidneys Rounds: when the healthcare team meets together to discuss patient care Saline: a watery solution that contains a small amount of salt and is often used to administer drugs Seizure: a sudden, involuntary contraction of muscles that results in rhythmic movements of the body Sepsis: the infection of tissues by disease causing organisms Shunt: A device that is inserted into the body to redirect the flow of blood or other fluid from one area to another Sputum: a mixture of saliva and mucus that is coughed up from the respiratory tract Stenosis: an abnormal narrowing of a passageway, such as a blood vessel or other type of opening in the body Suction: removing secretions with a suction devise Syringe: device used to inject fluid (ie medicine) into IV, muscle or vein; also used without a needle to give medicine in the mouth Tachycardia: an abnormally rapid heartbeat Vital signs: temperature, pulse, blood pressure and respiration If you have additional questions, please speak with your child’s team of medical providers. 17 WHERE DO I FIND? Parking – Visitor parking is available in the front of the Children’s Hospital and the front of the University Hospital. The first 15 minutes of parking is free, with an hourly rate applied up to a daily maximum fee. Discounted 30 day parking is available by contacting the hospital’s parking management office at extension 7932. IMPORTANT: If you park in the Children’s Hospital main lot, be sure to take your parking ticket with you to the hospital. When you are leaving, look for the parking payment machine in the Children’s Hospital lobby to obtain your payment voucher before you leave the hospital. Telephone – There is no charge for local telephone service calls within the 914 area code from your child’s room phone. Long distance calls need to be made collect, with a phone card or by dialing 30 and having the call charged to your home phone number. Please use only the phone in your child’s room. TV Service – TV service is complimentary for all pediatric patients in the children’s hospital. Transportation Bus Information (914) 813-7777 Railroads • Metro North • AMTRAK 1 (800) METRO-INFO 1(800) 872-7245 Taxi Service • Classic Ride • Kelly Transportation • Kelly’s Taxi • Greenburgh Taxi • New Town Taxi (914) 968-4444 (914) 939-3410 (914) 939-7775 (914) 592-4949 (914) 747-0999 18 Religious services and locations – The chapel is located in the University Hospital in the Macy Pavilion. It is always open as a quiet place for meditation and prayer. The chapel is available for memorial services, weddings and special religious observances of all faiths. Special needs can be accommodated by calling the Pastoral Care Office at extension 7125. Worship Services at Westchester Medical Center Sunday Noon Roman Catholic Mass* Main Chapel Monday Noon Roman Catholic Mass* Main Chapel Tuesday Noon Roman Catholic Mass* Main Chapel Wednesday Noon Interfaith Prayers for Wholeness* Main Chapel Thursday Noon Eucharistic Service* Main Chapel Friday Noon Roman Catholic Mass Main Chapel 1:30 pm Juma (Muslim Prayer Service)* Main Chapel * Services are broadcast on WMC Channel 68 on hospital television. 19 Local Dining and Overnight Accommodations There are a number and variety of hotel and motel accommodations and restaurants within a short driving distance of Westchester Medical Center. A listing can be obtained by calling the Concierge Desk in the Main Lobby at extension 7505. Hotels/Motels – some nearby hotels include: • Comfort Inn & Suites (914) 592-8600 • Hampton Inn (914) 592-5680 • Westchester Marriott Hotel (914) 631-2200 • Tarrytown Hilton (914) 631-5700 Restaurants – An Au Bon Pain coffee shop is located on the main floor of the Children’s Hospital off of the main lobby with hours of operation from 7 a.m. to 9 p.m. Monday - Friday. This located is closed on weekends. There is an additional Au Bon Pain Cafe located in The University Hospital open 24 hours, 7 days a week. The Market Place Cafe is located on the lower level of the University Hospital. • Other restaurants are within a two-mile radius of the hospital. • Tramontos (Continental) (914) 347-8220 27 Saw Mill River Rd. (Route 9A), Hawthorne • Applebees (American) (914) 592-9144 20 Saw Mill River Rd. (Route 9A), Hawthorne • Gasho of Japan (Japanese steakhouse) (914) 592-5900 2 Saw Mill River Rd. (Route 9A), Hawthorne • Executive Diner (914) 592-5415 26 Saw Mill River Rd. (Route 9A), Hawthorne • Oriental Diner – Chinese (914) 769-0038 58 Saw Mill River Rd. (Route 9A), Hawthorne • Wendy’s, 91 Saw Mill River Rd, (Route 9A) Elmsford • Dunkin Donuts, Saw Mill River Rd, (Route 9A), Elmsford • McDonalds, Saw Mill River Rd, (Route 9A), Elmsford Shopping – there are several shopping malls in White Plains. They are easily accessible by car or bus from the hospital. Ask at the Information Desk for directions and bus schedules. 20 Movie theaters – There are two movie theaters located within a mile of the hospital. • Saw Mill Multiplex, 151 Saw Mill River Rd, (Route 9A), Hawthorne • Greenburgh Multiplex Cinema, 320 Saw Mill River Rd, (Route 9A), Elmsford ATM – An ATM is located in the Main Hospital lobby, next to the gift shop. Banks – • JP MorganChase, Saw Mill River Rd, (Route 9A), Elmsford • Fleet Bank, Route 119, Tarrytown • Chase Bank, 1150 Knollwood Rd, White Plains Relaxation – There are several outdoor gardens, one outside the Children’s Hospital, and another off of the main floor in the University Hospital near Radiology. A quiet place to get away. Family Resource Center – Located just off the Children’s Hospital lobby. This is a centralized place for patients and families to obtain health information. It is also a space for support groups and a comforting place to get away from the stress of the nursing unit. Safe Spaces – The Child Life Playrooms, the neighborhood activity areas, Art Studio and Lions Den computer room, are places where kids can have fun. They are places where procedures and treatments cannot be performed. We want you and your child to be able to visit the many exciting areas within the hospital. We also need to know where your child is at all times for their safety. Please let your child’s nurse know if you plan to leave your neighborhood to visit another area. Your child should not leave the floor without adult supervision. All patients will have an electronic bracelet that is part of our Child Abduction Saftey System. Laundry Room – On the third floor of the Maria Fareri Children’s Hospital there is a laundry room which is available to all families of hospitalized children. It is located in room 3519. The room is staffed by volunteers. The service is complementary. Laundry detergent and softener are provided. The hours of the Laundry Room are posted on the outside of the room. 21 Kosher Refrigerator – On the third floor of the Maria Fareri Children’s Hospital there is a refrigerator stocked with kosher food by Bukur Cholim. The refrigerator is located in room 3421. Children’s Hospital Foundation – Maria Fareri Children’s Hospital at Westchester Medical Center would not have been possible without the support of the community. Anyone interested in further supporting Maria Fareri Children’s Hospital is encouraged to call the Foundation Office at (914) 493-2575. Internet Access – WiFi is available throughout the Westchester Medical Center campus. Interpreter Services – Please ask your child’s nurse or call 493-7850 to arrange for an interpreter. Directions From the East and South I-287 West to Exit 3 (Sprain Brook Parkway – North). Follow the Sprain Brook Parkway to the second exit (Route 100 – Hawthorne). At the stop sign at the top of the exit, turn left. At the next stop sign turn left onto Woods Road. Pass the University Hospital at Westchester Medical Center. Make a right into the entrance for Maria Fareri Children’s Hospital. From the North Taconic Parkway or Saw Mill River Parkway south to the Sprain Brook Parkway. Exit at Medical Center – Hawthorne exit. Make a right at the top of the exit onto Route 100 South. Make a right at the first traffic light onto Hospital Road. At the next stop sign turn left onto Woods Road. Pass the University Hospital at Westchester Medical Center. Make a right into the entrance for Maria Fareri Children’s Hospital. From the Tappan Zee Bridge Take the Tappan Zee Bridge (I-87 South/I-287 East) and follow signs for the Cross Westchester – Route 287 East. Take I-287 to Exit 4. Make a left at the top of the exit onto Route 100A North, which becomes Route 100 North. Follow 3.2 miles from exit to the stop sign at Hospital Road. Make a left onto Hospital Road. At the next stop sign turn left onto Woods Road. Pass the University Hospital at Westchester Medical Center. Make a right into the entrance for Maria Fareri Children’s Hospital. 22 Commonly Asked Questions Parking Where do get information about parking issues? Can I get a monthly parking voucher? Is it at a discounted rate? See the Where Do I Find (Page 18) Food Are there local restaurants for me to order food from? Yes, look in the Where Do I Find (Page 18) or ask any of the nursing staff to assist you. Security I don’t want to leave my child alone. Is there someone I can call to sit with my child while I go to get something to eat or drink? Speak to the staff about the availability of someone being able to stay with your child for a short time. Activities How do I find out about different activities to help occupy my child’s time? Events and activity schedules are posted at all playrooms, the Art Studio, the Lions Den, at each nurses’ station and across from the elevator. Can my child leave the room? Or the Unit? It is important that the nursing staff be aware of your child’s whereabouts at all times. Speak to your child’s nurse before leaving the unit. Unless your child has been placed on isolation, he/she may leave the room. Parent Resources If I am having a frustrating moment, or if I need someone to help me understand my child’s diagnosis, whom can I call? Is there someplace I can go to research information? How can I get my email? Where can I find a Hotel/Motel? There are numerous resources available for you. You certainly can speak to your doctor or nurse at any time regarding your child’s diagnosis. The Family Resource Center, located off of the Main Lobby, is a rich resource where you can obtain written information through the internet utilizing reputable websites. 23 Use the Family Resource Center for information on hotels, parking or just to have someone to talk to. Computer Can I use my laptop in my child’s room? And where can I hook up? You can connect to the internet via your personal laptop in your child’s room. You may also access the Internet in the Family Resource Center off of the lobby on the main floor. Call the Help desk at extension 1543 to arrange for wireless access for your laptop. CarePages What are CarePages? CarePages are free, personal, private web pages that help family and friends communicate when someone is receiving care. It takes just a few minutes to create a CarePage, share it with friends and family and build a community of support. The Family Resource Center is equipped to assist you in developing a CarePage for your child. 24 CHILDREN’S REACTION TO HOSPITALIZATION Developmental Reactions Children at different developmental levels react differently to hospitalization. Knowing the behaviors that are typical for your child at various ages makes it easier for you to address them. It is also important for you to know how the stresses of illness and hospitalization affect your child’s feelings and behaviors. We encourage you to spend as much time as possible with your child. Your involvement in your child’s care is very important to your child’s comfort and security. If you can’t be here, try to have family and/or friends spend time with your child. It is important to be honest with children, especially if something is going to hurt. Below are possible reactions as well as suggestions to help comfort your child. Children 3 years of age and younger Children younger than three years generally cannot understand their illness, or the new change in their familiar environment. They are more concerned about being away from their family and their home. Toddlers may have difficulty coping with these changes in their routines, especially related to eating, sleeping and toileting. You can help your child by being with them in the hospital. If you can’t be here try to have family or friends spend time with your child. Children 3 – 6 years old Possible Reaction: Children in this age often view the hospital and procedures as punishment. Suggested Response: Reassure your child that he/she hasn’t done anything wrong. Possible Reaction: Loss of control and fear of the unknown. Suggested Response: Simple, honest and developmentally appropriate explanations can help children in this age range feel more secure. Bring a favorite toy, blanket or clothes from home which may be comforting. Encourage walking around or playing outside of his/her room with permission of medical/nursing staff. 25 Children 7- 12 years old Possible Reaction: Children in this age range are often worried about painful procedures; may believe that hospitalization and procedures are a form of punishment; and experience a loss of control and independence. Suggested Response: It is very important to provide information to this age group. Ask staff, whenever possible, to inform your child in advance of what is going to happen (procedures, changes in the environment etc.). Giving your child choices when they exist is important in helping them regain some control. Adolescents 12 and up Possible Reaction: Adolescents are concerned about loss of control; separation from their friends; and may be very self-conscious. Suggested Response: It is important to respect their privacy whenever possible. Encourage an adolescent to ask questions and include him/her in discussions and decision making. Support social interactions with friends via phone, email and visits. Parents and caregivers The hospital environment is not only stressful for the child but also the family. It is very important for parents and caregivers to make sure to meet their own needs during this time. This will help best support your child. If you would like to speak with someone further about developmental reactions, have questions or would like to participate in a support group, please contact the Family Resource Cener at extension 8503. 26 Patients’ Bill of Rights As a patient in a hospital in New York State, you have the right, consistent with the law, to: 1. Understand and use these rights. If for any reason you do not understand these rights or you need help understanding them, the hospital must provide assistance, including an interpreter. 2. Receive treatment without discrimination as to race, color, religion, sex, national origin, disabilities, sexual orientation or source of payment. 3. Receive considerate and respectful care in a clean and safe environment free of unnecessary restraints. 4. Receive emergency care if you need it. 5. Be informed of the name and position of the doctor who will be in charge of your care in the hospital. 6. Know the names, positions and functions of any hospital staff involved in care and refuse their treatment, examination or observation. 7. A no smoking room. 8. Receive complete information about your diagnosis, treatment and prognosis. 9. Receive all the information that you need to give informed consent for any proposed procedure or treatment. This information shall include the possible risks and benefits of the procedure or treatment. 10. Receive all the information that you need to give informed consent for an order not to resuscitate. You also have the right to designate an individual to give this consent for you if you are too ill to do so. If you would like additional information, please ask for a copy of the pamphlet Do Not Resuscitate Orders–A Guide for Patients and Families. 11. Refuse treatment and be told what affect this may have on your health. 12. Refuse to take part in research. In deciding whether or not to participate, you have the right to a full explanation. 13. Privacy while in the hospital and confidentiality of all information and records regarding your care. 14. Participate in all decisions about your treatment and discharge from the hospital. The hospital must provide you with a written discharge plan and written description of how you can appeal your discharge. 15. Review your medical records without charge and obtain a copy of your medical records for which the hospital can charge a reasonable fee. You can not be denied a copy solely because you cannot afford to pay. 27 16. Receive an itemized bill and explanation of all charges. (Westchester Medical Center uses an "all inclusive" charge approved by New York State.) 17. Complain without fear of reprisals about the care and service you are receiving and to have the hospital respond to you and, if you request it, a written response. If you are not satisfied with the hospital's response, you can complain to the New York State Health Department. The hospital must provide you with the Health Department’s telephone number (914) 654-7000. 18. Authorize those family members and other adults who will be given priority to visit consistent with your ability to receive visitors. 19. Make known your wishes in regard to anatomical gifts. You may document your wishes in your health care proxy or on a donor card, available from the hospital. A video entitled “Your Rights as a Patient” is shown several times a day on the hospital's patient education channel. If you have any questions about these rights, please contact a Patient Advocate at extension 8877. 28 Notes 29 Notes 30 Notes 31 TV Channels CH 2 CBS CH 32 COURT TV CH 3 E! CH 33 SCI – FI CHANNEL CH 4 NBC CH 34 CARTOON NETWORK CH 5 FOX CH 35 BLOOMBERG NEWS CH 6 CNN CH 36 TBS CH 7 ABC CH 37 HEALTH CHANNEL CH 8 UNIVISION (Spanish) CH 38 WORD CH 9 UPN CH 40 QVC CH 10 DISCOVERY CHANNEL CH 41 BET CH 11 WPIX (WB –11) CH 42 NICK JR. CH 12 TELEMUNDO (Spanish) CH 43 FOX NEWS CH 13 WNET (PBS) CH 45 MARQUEE CHANNEL CH 14 VH –1 CH 66 BULLETIN BOARD CH 15 WEATHER CHANNEL CH 67 VIDEO SCHEDULER CH 16 TNT CH 68 CHAPEL (free) CH 17 ABC FAMILY CH 69 PATIENT EDUCATION CH 22 MSG CH 70 PATIENT EDUCATION CH 23 USA CH 71 PATIENT EDUCATION CH 24 AMC (American Movie Classics) CH 72 PATIENT EDUCATION CH 73 CH 25 TLC RELAXATION CHANNEL CH 26 CNBC CH 75 CH 27 DISNEY NEWBORN CHANNEL English Version (Maternity Only) CH 28 ANIMAL PLANET CH 76 CH 29 MSNBC NEWBORN CHANNEL Spanish Version (Maternity Only) CH 31 CNN HEADLINE NEWS 32