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Culture and DSM-5 Transkulturellt Centrum November 8, 2013 Roberto Lewis-Fernández, MD Professor of Psychiatry, Columbia University Medical Center Director, NYS Center of Excellence for Cultural Competence and Hispanic Treatment Program New York State Psychiatric Institute Overview Main point: Culture-related changes in DSM-5 help enhance the cultural validity of diagnostic practice • Inclusion of culture in DSM-5 ▫ ▫ ▫ ▫ Section I: Introduction Section II: Disorders Section III: Cultural formulation Appendix: Glossary of Cultural Concepts of Distress Inclusion of culture in DSM-5 Wish list for DSM-5 • Provide clear definitions and explain value of cultural approach to diagnostic practice • Include missing symptom variants in disorder criteria • Provide more guidance in text about cultural issues • Make Cultural Formulation more implementable • Revise “Glossary of Culture-Bound Syndromes” Section I DSM-5 Basics Introduction Overview of culture: • ▫ ▫ ▫ ▫ ▫ ▫ ▫ ▫ • • Interpretive framework for symptoms, signs, behaviors Transmitted, revised, and recreated within families and society Affects boundaries between normality and pathology, thresholds of tolerance, coping, and interpretations of need for help Awareness of impact of culture may reduce misdiagnosis Culture may help determine support and resilience By contrast, may contribute to vulnerability and stigma Helps shape the clinical encounter Affects help-seeking choices, adherence, course, recovery Outline of cultural material in DSM-5 Revision of “culture-bound syndrome” concept Cultural Concepts of Distress • • • Cultural idioms of distress Cultural syndromes Cultural explanations Section II Essential Elements: Diagnostic Criteria and Codes Changes to criteria Add missing symptom variants • • • • • • Panic Attack Social Anxiety Disorder Posttraumatic Stress Disorder Dissociative Identity Disorder Other Specified Dissociative Disorder Anorexia Nervosa Changes to criteria Contextualize presentations Specific Phobia, Agoraphobia, Social Anxiety Disorder • ▫ The fear or anxiety is out of proportion to the actual threat posed by the [PHOBIC STIMULUS] and to the sociocultural context “De-specify” criteria/boost cross-disorder links • • • • • Acute Stress Disorder Panic Attack Anxiety Specifier for Mood Disorders Schizophrenia Subtypes/ Catatonia Specifier Alternate criteria for Personality Disorders Missing symptoms Panic attack Should we revise the list of Panic Attack symptoms to include missing cultural variants? Panic attack symptoms Cambodians with panic attacks (N=100) Dizziness Shortness of breath Flushes/chills Trembling/shaking Tinnitus Fear of death Numbness/tingling Sweating Chest pain/discomfort Neck soreness Palpitations Nausea Headache Choking Fear of losing control/going crazy Derealization/depersonalization 0% 20% 40% 60% 80% 100% Hinton et al., 2010 Missing symptoms Panic attack Note: Culture-specific symptoms (e.g., tinnitus, neck soreness, headache, uncontrollable screaming or crying) may be seen. Such symptoms should not count as one of the four required symptoms. Changes to text description Changes to criteria described in Diagnostic Features Cultural variation in Prevalence • • ▫ ▫ ▫ 12-month prevalence in the US Range of prevalence internationally Variation by race/ethnicity Culture-related risk and prognostic factors Separate section on Culture-Related Diagnostic Issues • • ▫ ▫ Cultural variations in onset, severity, symptom expression Relationship to cultural concepts of distress Risk factors PTSD Should we include cultural variability in the risk of onset of PTSD after traumatic exposure? Risk factors % meeting all PTSD criteria PTSD Onset after Hurricane Andrew (N=404) * 60 50 50 38 40 31 30 16 18 20 10 9 Non-Hispanic White Non-Hispanic Black 21 10 10 Latino-Spanish 0 Low Moderate Personal Trauma Includes only significant effects on PTSD from SEM High *p<.05 Perilla et al., 2002 Risk factors PTSD Risk and prognostic factors Environmental: …cultural characteristics (e.g., fatalistic or self-blaming coping strategies)… minority racial/ethnic status… Culture-related diagnostic issues Risk of onset and severity of PTSD may differ across cultural groups as a result of variation in: ▫ Other cultural factors (e.g., acculturative stress) Section III Emerging Measures and Models Cultural Formulation DSM-IV Cultural Formulation A. Cultural Identity Cultural reference group(s) Language Cultural factors in development Involvement with culture of origin and host/majority culture B. Cultural Explanations of Illness Idioms of distress and local illness categories Meaning and severity Causes and explanatory models Help-seeking experiences and plans C. Cultural Factors Related to Psychosocial Environment and Levels of Functioning Social Stressors Social Supports Levels of functioning and disability D. Cultural Elements of the Clinician-Patient Relationship Perceived similarities and differences E. Overall Cultural Assessment Applying information to diagnosis and treatment Revision of the Cultural Formulation DSM-IV Limitation DSM-5 Solution Lack of operationalization •Cultural Formulation Interview (CFI) Limited guidance •Use at beginning of initial evaluation •16 standardized questions in 4 sections •Apply with all patients Risk of stereotyping •Person-centered approach •Collaborative, shared decision making CFI structure CFI sections 1. Cultural definition of the problem* (#1-3) 2. Cultural perceptions of cause, context, and support A. Causes* (#4-5) B. Stressors and supports (#6-7) (e.g., kinds of support that make problem better) C. Role of cultural identity (#8-10) (e.g., aspects of background or identity that make a difference to your problem) *Explores role of “family, friends, or others in your community” CFI sections 3. Cultural factors affecting self-coping and past help seeking A. Self-coping (#11) B. Past help seeking (#12) C. Barriers to care (#13) CFI sections 4. Cultural factors affecting current help seeking A. Preferences for care* (#14-15) B. Clinician-patient relationship (#16) (“Sometimes doctors and patients misunderstand each other because they come from different backgrounds or have different expectations. Have you been concerned about this and is there anything that we can do to provide you with the care you need?”) *Explores role of “family, friends, or others in your community” Glossary of Cultural Concepts of Distress DSM-IV & Caribbean cultural concepts Major Depression GAD Ataques de nervios Altered perceptions PTSD Panic Disorder Schizophrenia Dissociative Disorder NOS Undiff. Somatoform D/o Borderline Personality D/o Suffer from nerves Be sick with nerves Be loco Have facultades Suffer from a demon Be nervous since childhood Examples Includes description, DSM differential diagnosis, related categories in other cultures, and sometime prevalence/distribution Concept Main Type Region Ataque de nervios Syndrome Latin America Dhat syndrome Explanation South Asia Khyal cap Syndrome Cambodia Kunfungisisa Idiom Zimbabwe Maladi moun Explanation Haiti Nervios Idiom Latin America Shenjing shuairuo Syndrome China Susto Explanation Latin America Taijin kyofusho Syndrome Japan/Korea Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Differential diagnosis Ataque de nervios • • • • • • • • • Panic attack Panic disorder Other specified anxiety disorder Other specified dissociative disorder Other specified trauma- and stressor-related disorder Conversion (functional neurologic symptom) disorder Intermittent explosive disorder V code Normal reaction to adversity Conclusions Completed wish list • Provide clear definitions and explain value of cultural approach to diagnostic practice • Include missing symptom variants in disorder criteria • Provide more guidance in text about cultural issues • Make Cultural Formulation more implementable • Revise “Glossary of Culture-Bound Syndromes” Cultural inclusions in DSM-5 Enhance validity of diagnostic criteria and text • ▫ ▫ ▫ Reduce over-specification and de-contextualization of diagnoses Provide information on risk, severity, course Clarify relationship between diagnoses and cultural concepts of distress Provide systematic cultural evaluation in CFI • ▫ ▫ ▫ ▫ For use with every patient Person-centered to avoid stereotyping Operationalized and implementable To guide assessment and treatment negotiation Ultimate goal • A nosology that helps integrate cultural information into diagnostic practice in order to inform treatment Conducting an initial cultural assessment: The core CFI Transkulturellt Centrum November 7, 2013 Roberto Lewis-Fernández, MD Professor of Psychiatry, Columbia University Medical Center Director, NYS Center of Excellence for Cultural Competence and Hispanic Treatment Program New York State Psychiatric Institute DSM-5 definition of culture • Values, orientations, knowledge, and practices that individuals use to understand their experiences, based on their identification with diverse groups, such as: ▫ Ethnic groups, faith communities, occupational groups, veterans, etc. • Aspects of a person’s background, experience, and social contexts that may affect his or her perspective, such as: ▫ Geographical origin, migration, language, religion, sexual orientation, race/ethnicity, etc. • The influence of family, friends, and other community members (the individual’s social network) on the individual’s illness experience Cultural Formulation DSM-IV Cultural Formulation A. Cultural Identity Cultural reference group(s) Language Cultural factors in development Involvement with culture of origin and host/majority culture B. Cultural Explanations of Illness Idioms of distress and local illness categories Meaning and severity Causes and explanatory models Help-seeking experiences and plans C. Cultural Factors Related to Psychosocial Environment and Levels of Functioning Social Stressors Social Supports Levels of functioning and disability D. Cultural Elements of the Clinician-Patient Relationship Perceived similarities and differences E. Overall Cultural Assessment Applying information to diagnosis and treatment Revision of the Cultural Formulation DSM-IV Limitation DSM-5 Solution Lack of operationalization •Cultural Formulation Interview (CFI) Limited guidance •Use at beginning of initial evaluation •16 standardized questions in 4 sections •Apply with all patients Risk of stereotyping •Person-centered approach •Collaborative, shared decision making CFI structure Cultural definition of the problem Cultural definition of the problem • Q1: Own definition of problem or concern • Q2: How describe to social network* • Q3: Most troubling aspect *Explores role of “family, friends, or others in your community” Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Cultural perceptions of cause, context, and support Causes • Q4: Cause of problem • Q5: Cause according to social network* Stressors and Supports • Q6: How environment is supportive • Q7: How environment is stressful *Explores role of “family, friends, or others in your community” Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Cultural perceptions of cause, context, and support Role of Cultural Identity • Q8: Key aspects of background or identity • Q9: Effect on problem • Q10: Other concerns regarding cultural identity Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Cultural factors affecting coping and help seeking Self-coping • Q11: Methods of self-coping Past help-seeking • Q12: Past help seeking from diverse sources Barriers • Q13: Barriers to obtaining help Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Current help seeking Preferences • Q14: Most useful help at this time • Q15: Other help suggested by social network* *Explores role of “family, friends, or others in your community” Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Current help seeking Clinician-Patient Relationship • Q16: Misunderstanding and how to provide care “Sometimes doctors and patients misunderstand each other because they come from different backgrounds or have different expectations. Have you been concerned about this and is there anything that we can do to provide you with the care you need?” Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Field Trial • Led by: ▫ Study Group on Gender & Culture ▫ NYSPI Cultural Competence Center • N=321 outpatients in 12 cities and 6 countries • Aims are to assess: ▫ Feasibility: Can clinicians do it? Do patients answer? ▫ Acceptability: Do patients and clinicians like it? ▫ Perceived clinical utility: How useful do they think it is? Field Trial sites Montréal, Québec Amsterdam, Netherlands Toronto, Ontario Minneapolis, MN Sacramento, CA San Francisco, CA New Haven, CT New York, NY New Delhi, India Lima, Peru Nairobi, Kenya Pune, India Methods Training • • • Review CFI guidelines Video Role-playing } 1½-2 hrs Recruitment • • • New or existing patients Existing patients referred by usual clinicians Patients could be accompanied by relatives Methods Procedure • • CFI, followed by diagnostic interview Debriefing ▫ Questionnaires ▫ Qualitative interviews ▫ Relatives From CFI-14 to CFI-16 • • • Specify definition of culture in guidelines Shorten questions Ask about perspective of family, friends, and others in patient’s community ▫ Description of problem, causes, kinds of help From CFI-14 to CFI-16 • • Provide definition of “background or identity” Change questions about identity ▫ Most important aspects, impact on problem, cause of concern in itself • Change how ask about patient-clinician relationship Informant version Collects information from informant • ▫ ▫ To supplement patient information When patient unable to provide information Follows same format as patient CFI Clarifies informant’s relationship with patient Obtains informant’s views about illness and care in addition to social network’s • • • ▫ (e.g., Why do you think this is happening to [INDIVIDUAL]?) Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Supplementary modules 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. Explanatory model Level of functioning Social network Psychosocial stressors Spirituality, religion, and moral traditions Cultural identity Coping and help-seeking Patient–clinician relationship School-age children and adolescents Older adults Immigrants and refugees Caregivers Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved Culture and Psychiatric Diagnosis Transkulturellt Centrum November 7, 2013 Roberto Lewis-Fernández, MD Professor of Psychiatry, Columbia University Medical Center Director, NYS Center of Excellence for Cultural Competence and Hispanic Treatment Program New York State Psychiatric Institute Overview Main point: Culture-related information enhances the validity and clinical usefulness of diagnostic practice • Value of culture-related information for diagnostic practice • Reasons for engaging DSM-5 revision ▫ Limitations of DSM-IV ▫ Psychiatric diagnoses and cultural concepts of distress Value of culture-related information for diagnostic practice DSM-5 definition of culture • Values, orientations, knowledge, and practices that individuals use to understand their experiences, based on their identification with diverse groups, such as: ▫ Ethnic groups, faith communities, occupational groups, veterans, etc. • Aspects of a person’s background, experience, and social contexts that may affect his or her perspective, such as: ▫ Geographical origin, migration, language, religion, sexual orientation, race/ethnicity, etc. • The influence of family, friends, and other community members (the individual’s social network) on the individual’s illness experience Culture in mental health • Culture is NOT ONLY geographic origin, race or ethnicity • Culture is dynamic, not static • Cultural identity varies from person to person • Cultural Competence refers to the ability of mental health professionals and services to provide personcentered care to patients by taking into account the multiple, ever-changing, and highly individualized cultural identities of each person receiving services… Diagnosis is central to care-seeking pathway Illness Treatment interpretation Risk Access choice factors to care Treatment participation Treatment Symptoms Selfgoals and coping Treatment Impairment retention DIAGNOSTIC EVALUATION Diagnosis is central to care-seeking pathway Illness Treatment interpretation Risk Access choice factors to care Treatment participation Treatment Symptoms Selfgoals and coping Treatment Impairment retention DIAGNOSTIC EVALUATION Culture, symptoms and impairment Altered perceptions • Auditory ▫ Name ▫ Noises (knocking, steps, chains) • Visual ▫ “Glimpses” or shadows (celajes) ▫ Spirits of the dead • Tactile ▫ Presence around person ▫ Touched or pushed Lewis-Fernández et al., 2005 Altered perceptions as outcome marker (N=2,554) Adjusted OR’s (95% CI) of perceptions vs. no perceptions: MH-related disability Suicidal ideation Outpatient MH care 1.8 2.3 1.7 (1.2-2.7) (1.5-3.6) (1.1-2.6) Adjusted for age, gender, education, income, marital status, psychiatric disorders, chronic medical conditions, traumatic exposure, ethnic origin, time in US, language, use of religion for MH problems Lewis-Fernández et al., 2009 Re-diagnosis using Cultural Formulation (n=323) 80 70 Of n=70 with psychosis 60 50 49% Psychotic to Nonpsychotic Diagnosis 40 30 20 Of n=253 without psychosis 10 Nonpsychotic to Psychotic Diagnosis 5% 0 Re-diagnosis Adeponle et al., 2012 Diagnosis is central to care-seeking pathway Illness Treatment interpretation Risk Access choice factors to care Treatment participation Treatment Symptoms Selfgoals and coping Treatment Impairment retention DIAGNOSTIC EVALUATION Culture and treatment choice 44-year old Dutch man UN Peacekeeper in Bosnia Witnessed mass graves PTSD, Cluster B PD traits Strong military culture Rejects individual therapy Favors group therapy with military patients and therapist Diagnosis is central to care-seeking pathway Illness Treatment interpretation Risk Access choice factors to care Treatment participation Treatment Symptoms Selfgoals and coping Treatment Impairment retention DIAGNOSTIC EVALUATION Culture and treatment goals 54-year old Dominican woman with MDD Lives with 28 yo bipolar, violent son w/ SUD IPT less effective Unable to renegotiate role dispute Resolved by son’s providers Reasons for engaging DSM-5 revision From DSM-IV to DSM-5 Limited role of cultural psychiatry in DSM-IV Major achievement, OCF, placed in Appendix • • ▫ • • • • Exoticized by link to Glossary of CBSs Uncertain future of OCF in DSM-5 Maturation (Crisis?) of psychiatry created an opening for culture focus Opportunity to further develop OCF Increasingly globalized use of DSM Fuller diagnostic assessment in DSM-5 • • • • Dimensional measures Fuller assessment of impairment Inclusion of evaluation instruments Chapter subheadings for contextual factors ▫ ▫ ▫ ▫ Development and course Risk and prognostic factors Culture-related diagnostic issues Functional consequences Critiques of DSM-III to DSM-IV: Neurobiology to anthropology • • Reliability >> validity Inadvertent reification ▫ Symptoms AS diagnosis, not SIGNS of diagnosis • • Missing symptom variants Limited attention to “environment”/ context in mechanisms of disease Critiques of DSM-III to DSM-IV: Neurobiology to anthropology • Result in over-specification and decontextualization of disorders ▫ Yield: Potential misdiagnosis Overuse of Not Otherwise Specified diagnoses Artificially high comorbidity ▫ Hide: Dimensionality of psychopathology Cross-cutting etiologies and mechanisms 12-mo. prevalence of Social Anxiety Disorder Prevalence of Social Anxiety Disorder, by percentage 15 South Korea China Nigeria 10 Japan Australia 6.8% South Africa 5 0 Mexico Europe 0.8% 0.2%0.2%0.3% CIDI for DSM-IV 1.3% 1.7% 1.9% 2.3% U.S. Lewis-Fernández et al., 2010 DSM-IV & Caribbean cultural concepts Major Depression GAD Ataques de nervios Altered perceptions PTSD Panic Disorder Schizophrenia Dissociative Disorder NOS Undiff. Somatoform D/o Borderline Personality D/o Suffer from nerves Be sick with nerves Be loco Have facultades Suffer from a demon Be nervous since childhood Symptom domains & cultural concepts Dissociation Anxiety Cultural Concept Somatization Depression Symptom frequency of 1st ataque de nervios Panic-like symptoms Became nervous Trembled a lot Palpitations Chest pressure Felt like was suffocating Heat in chest Afraid of going crazy Afraid of dying Dizzy Dissociative symptoms 90% 77% 75% 75% 61% 56% 53% 39% 35% Loss of control Became hysterical 69% Lost/afraid of losing control 64% Screamed a lot 56% Guarnaccia et al., 1996 (N=77) Surroundings unreal Body felt unreal Lost consciousness Period of amnesia 53% 42% 35% 29% Anger and aggression Felt anger Broke things 52% 26% Suicidality symptoms Suicidal thoughts Suicide attempt 26% 14% Other symptoms Cried/attacks of crying Fainted 88% 43% Differential diagnosis Ataque de nervios • • • • • • • • • Panic attack Panic disorder Other specified anxiety disorder Other specified dissociative disorder Other specified trauma- and stressor-related disorder Conversion (functional neurologic symptom) disorder Intermittent explosive disorder V code Normal reaction to adversity Ataque as outcome marker (N=2,554) Adjusted OR’s (95% CI) of ataque vs. no ataque: MH-related disability Suicidal ideation Outpatient MH care 2.25 2.4 2.2 (1.5-3.4) (1.5-3.7) (1.3-3.8) Adjusted for age, gender, education, income, marital status, psychiatric disorders, chronic medical conditions, traumatic exposure, ethnic origin, time in US, language, use of religion for MH problems Lewis-Fernández et al., 2009 Conclusions Culture-related information • Fits expanded DSM-5 approach to diagnosis • Enhances validity and clinical usefulness of diagnostic practice ▫ ▫ ▫ ▫ Limits misdiagnosis and overuse of NOS Better guides treatment choice, goals, and retention Identifies new markers of morbidity Calibrates risk and severity assessments Conducting a comprehensive cultural assessment: The CFI supplementary modules Transkulturellt Centrum November 8, 2013 Roberto Lewis-Fernández, MD Professor of Psychiatry, Columbia University Medical Center Director, NYS Center of Excellence for Cultural Competence and Hispanic Treatment Program New York State Psychiatric Institute Comprehensive assessment Informant CFI and supplementary modules expand on core CFI May use in two ways: • • ▫ ▫ • • As adjuncts to core CFI for additional information on specific aspects of illness As tools for in-depth cultural assessment independent of core CFI May use individual questions, subdomains, domains, modules or entire set of modules May use at intake or any time over course of care Comprehensive assessment Especially useful in cases of: • ▫ ▫ ▫ ▫ ▫ • Cultural differences that complicate diagnostic assessment Uncertainty of fit between symptoms and DSM categories Difficulty in judging severity or impairment Disagreement between patient and clinician on course of care Limited treatment engagement or adherence Helpful to identify area of concern to select approach Modules that expand sections of CFI 1. Explanatory model (14 items) Clarifies patient’s understanding of the problem based on his/her ideas about cause and mechanism (explanatory models) and past experiences of, or knowing someone with, a similar problem (illness prototypes). The patient may identify the problem as a symptom, a specific term or expression (e.g., “nerves,” “being on edge”), a situation (e.g., loss of a job), or a relationship (e.g., conflict with others). In the examples below, the patient’s own words should be used to replace “[PROBLEM]”. If there are multiple problems, each relevant problem can be explored. ▫ ▫ ▫ ▫ ▫ General understanding of the problem Illness prototypes Causal explanations * Course of illness * Help seeking and treatment expectations * 2. Level of functioning (8 items) * Aims to clarify patient’s level of functioning in relation to his/her own priorities and those of the cultural reference group. The interview begins with a general question about everyday activities that are important for the patient. Questions follow about domains important for positive health (social relations, work/school, economic viability, and resilience). * Includes perspective of social network Modules that expand sections of CFI 3. Social network (15 items) Identifies the influences of the informal social network on the patient’s problem. Informal social network refers to family, friends and other social contacts through work, places of prayer/worship or other activities and affiliations. Question #1 identifies important people in the patient’s social network, and the clinician should tailor subsequent questions accordingly. These questions aim to elicit the social network’s response, the patient’s interpretation of how this would impact on the problem, and the patient’s preferences for involving members of the social network in care. ▫ ▫ ▫ ▫ ▫ Composition of the patient’s social network Social network understanding of the problem * Social network response to problem * Social network as a stress/buffer * Social network in treatment * 4. Psychosocial stressors (7 items) * Clarifies the stressors that have aggravated the problem or otherwise affected the health of the patient. (Stressors that initially caused the problem are covered in the module on Explanatory Models.) In the examples below, the patient’s own words should be used to replace “[STRESSORS]”. If there are multiple stressors, each relevant stressor can be explored. * Includes perspective of social network Modules that expand sections of CFI 5. Spirituality, religion & moral traditions (16 items) Clarifies the influence of spirituality, religion, and other moral or philosophical traditions on the patient’s problems and related stresses. People may have multiple spiritual, moral, and religious affiliations or practices. If the person reports having specific beliefs or practices, inquire about the level of involvement in that tradition and its impact on coping with the clinical problem. In the examples below, the patient’s own words should be used to replace “[NAME(S) OF SPIRITUAL, RELIGIOUS OR MORAL TRADITION(S)]”. If the patient identifies more than one tradition, each can be explored. If the patient does not describe a specific tradition, use the phrase “spirituality, religion or other moral traditions” instead of the specific name of a tradition. ▫ ▫ ▫ ▫ Spiritual, religious, and moral identity * Role of spirituality, religion, and moral traditions * Relationship to the [PROBLEM] Potential stressors or conflicts related to spirituality, religion, and moral traditions * Includes perspective of social network Modules that expand sections of CFI 6. Cultural identity (34 items) Clarifies the patient’s cultural identity and how this has influenced the patient’s health and well being. The following questions explore the patient’s cultural identity and how this may have shaped his or her current problem. We use the word culture broadly to refer to all the ways the person understands his or her identity and experience in terms of groups, communities or other collectivities, including national or geographic origin, ethnic community, racialized categories, gender, sexual orientation, social class, religion/spirituality, and language. ▫ ▫ ▫ ▫ ▫ ▫ ▫ National, ethnic, racial background * Language Migration Spirituality, religion, and moral traditions * Gender identity Sexual orientation identity Summary * Includes perspective of social network Modules that expand sections of CFI 7. Coping and help seeking (13 items) Clarifies the patient’s ways of coping with the current problem. The patient may have identified the problem as a symptom or mentioned a term or expression (e.g., “nerves,” “being on edge,” spirit possession), or a situation (e.g., loss of a job), or a relationship (e.g., conflict with others). ▫ ▫ ▫ ▫ Self-coping Social network * Help- and treatment-seeking beyond social network Current treatment episode * 8. Patient-clinician relationship (12 items) * Addresses the role of culture in the patient–clinician relationship with respect to the patient’s presenting concerns and to the clinician’s evaluation of the patient’s problem. We use the word culture broadly to refer to all the ways the person understands his or her identity and experience in terms of groups, communities or other collectivities, including national or geographic origin, ethnic community, racialized categories, gender, sexual orientation, social class, religion/spirituality, and language. The first set of questions evaluates four domains in the clinician-patient relationship from the point of view of the patient: experiences, expectations, communication, and possibility of collaboration with the clinician. The second set of questions is directed to the clinician to guide reflection on the role of cultural factors in the clinical relationship, the assessment, and treatment planning. * Includes perspective of social network Modules for special populations 9. School-age children and adolescents (28 items) Identifies, from the perspective of the child/youth, the role of age-related cultural expectations, the possible cultural divergences between school, home, and the peer group, and whether these issues impact on the situation or problem that brought the youth for care. The questions indirectly explore cultural challenges, stressors and resilience, and issues of cultural hybridity, mixed ethnicity or multiple ethnic identifications. Peer group belonging is important to children and adolescents, and questions exploring ethnicity, religious identity, racism or gender difference should be included following the child’s lead. Some children may not be able to answer all questions; clinicians should select and adapt questions to ensure they are developmentally appropriate for the patient. Children should not be used as informants to provide socio-demographic information on the family or an explicit analysis of the cultural dimensions of their problems. An Addendum lists cultural aspects of development and parenting that can be evaluated during parents’ interviews. ▫ ▫ ▫ ▫ ▫ Feelings of appropriateness in different settings Age-related stressors and supports Age-related expectations * Transition to adulthood/maturity (for adolescents only) * Addendum for parents’ interview * * Includes perspective of social network Modules for special populations 10. Older adults (17 items) The following questions are directed to older adults. The goal of these questions is to identify the role of cultural conceptions of aging and age-related transitions on the illness episode. ▫ ▫ ▫ ▫ ▫ ▫ Conceptions of aging and cultural identity * Conceptions of aging in relationship to illness attributions and coping Influence of comorbid medical problems and treatments on illness Quality and nature of social supports and caregiving * Additional age-related transitions Positive and negative attitudes towards aging and clinicianpatient relationship * Includes perspective of social network Modules for special populations 11. Immigrants and refugees (18 items) Aims to collect information from refugees and immigrants about their experiences of migration and resettlement. Many refugees have experienced stressful interviews with officials or health professionals in their home country, during the migration process (which may involve prolonged stays in refugee camps or other precarious situations), and in the receiving country, so it may take longer than usual for the interviewee to feel comfortable with and trust the interview process. When patient and clinician do not share a high level of fluency in a common language, accurate language translation is essential. ▫ ▫ ▫ ▫ ▫ ▫ ▫ Background information Pre-migration difficulties * Migration-related losses and challenges * Ongoing relationship with country of origin * Resettlement and new life * Relationship with problem Future expectations * Includes perspective of social network Modules for special populations 12. Caregivers (14 items) This module is designed to be administered to individuals who provide caregiving for the patient being assessed with the CFI. This module aims to explore the nature and cultural context of caregiving, and the social support and stresses in the patients’ immediate environment from the perspective of the caregiver. ▫ ▫ ▫ ▫ Nature of relationship Caregiving activities and cultural perceptions of caregiving * Social context of caregiving * Clinical support for caregiving * * Includes perspective of social network CFI structure Supplementary modules A. B. C. D. E. F. G. H. I. PROBLEM CAUSES STRESSORS & SUPPORTS CULTURAL IDENTITY SELF-COPING PAST HELP BARRIERS PREFERENCES PATIENT-CLINICIAN RELATIONSHIP 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. Explanatory model Level of functioning Social network Psychosocial stressors Spirituality, religion, and moral traditions Cultural identity Coping and help-seeking Patient–clinician relationship School-age children and adolescents Older adults Immigrants and refugees Caregivers Reprinted with permission from the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, (Copyright © 2013). American Psychiatric Association. All rights reserved