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CANCER SMART November 2009 • Issue 6 • FREE Cancer and Exercise INSIDE Wellspring Cancer Support Foundation with contribution from Jodi Steele, BKin. BSc (PT) and Ira Henderson Prostate Cancer: Lymphedema After Cancer Therapy p2 For Breast Cancer Patients & Survivors: Lymphedema 101 p3 The Value of Integrating Natural Medicine in Cancer Prevention and Treatment Strategies p4 One of the most exciting advances in improving the outcomes and lives of patients with cancer has nothing to do with new medications or treatments – it is good, old-fashioned exercise. Most of us have heard the recommendation that exercise is a good idea for health. But exercise for patients with cancer is much more than a healthy lifestyle practice. Recent research is showing that exercise can benefit some patients in many specific ways, including: • secondary prevention, meaning there is less chance of cancer coming back • symptom management, e.g., less fatigue, less nausea • improved treatment compliance, meaning that patients who exercise are more likely to complete their treatment without interruption • improved emotional well-being, e.g., less depression, less anxiety • improved quality of life, e.g., better body image, better sense of personal control • improved overall fitness, stamina and flexibility. These are exciting findings that are grabbing the attention of the medical community worldwide. There is no one medication or complementary medical intervention that shows so many benefits for patients’ well-being both during, and after, cancer treatment. Benefits of Exercise Although most of the research to date has focused on patients with breast, prostate or colorectal cancer, there is reason to be hopeful that research will show benefits for patients with other types of cancer as well. There are many research studies underway, and the understanding of its benefits for all patients will continue to grow. The following are just some of the important highlights based on current literature: • Research has shown that exercise can decrease mortality for patients with non-metastatic colorectal cancer, and women with hormone-responsive breast cancer tumours.1, 2 Continued on page 5 A Lifeline to Cancer Support www.wellspring.ca This newsletter is brought to you as an educational service of the Wellspring Cancer Support Foundation. Charitable Registration # 89272 8940 RR0001 PAGE 2 • CANCERSMART • November 2009 • Issue 6 PROSTATE CANCER Lymphedema After Cancer Therapy Early treatment and active self-management are the Pamela M. Hodgson, Msc, RMT Reprinted with permission from Parkhurst, Our Voice, Vol. 14 No. 3 • 2009 for prostate cancer, Lymphedema can occur in the lower part of the trunk, the genitals and/or the legs. What does Lymphedema feel like? Postoperative swelling often resolves spontaneously; if it persists, Lymphedema may be suspected. The swollen limb or body part may feel uncomfortable, painful, and heavy or awkward to move. There may be a feeling of fullness or tightness in the leg or genitals. The ankle or knee may feel stiff and less flexible. Genital edema can interfere with sitting or walking, and urination can be difficult. Lymphedema is a challenging condition that can arise following some prostate cancer treatments, as a result of damage to the lymph system. Understanding the symptoms, early diagnosis and treatment, and active participation in your management are important steps to minimize its effects on your quality of life. Body image, as well as social, family and work life can be affected. Especially for men with scrotal or penile swelling, psychological distress is as important a factor as the physical discomfort. With foot and leg swelling, finding appropriate shoes and trousers can present a challenge. What is Lymphedema? What should I look out for? Lymphedema is a buildup of fluid in body tissues leading to swelling, which occurs when the lymph system has been damaged or blocked. The lymph system plays a role in immunity and in circulating body fluids. Lymph nodes produce white blood cells to help fight infection; the lymph vessels transport these cells and help the veins return fluid and waste products from muscle metabolism, large protein molecules, and foreign substances from all parts of the body. Radical prostatectomy, lymph node removal or radiation therapy to the pelvis can damage the system. In addition, cancer itself can block the vessels and lead to Lymphedema. After treatment If your cancer treatment was aggressive to the lymph system, or if you have developed mild swelling, it is wise to follow certain precautions: • Protect the limb and trunk from infections, injury or burns and maintain a normal weight as much as possible. Being overweight or getting an infection (cellulitis) in the skin of the treated area increases the risk of lymphedema. The body responds to injury by making extra fluid that is hard to get rid of if the lymph drainage system is compromised. If injury occurs, clean the area immediately and apply standard first aid. • Skin care is important, because the • • • • affected tissues gradually thicken and are susceptible to inflammation and infections. Keep the skin clean, soft and supple by using lotion or oils as needed. Dry skin tends to crack more easily, creating an entry point for infection. Avoid fungal infections by keeping the skin between the toes dry and soft. Be aware of the signs of infections: heat, redness, swelling, tenderness, fever or chills. Cellulitis needs prompt treatment. Call your doctor right away or seek treatment if you think you have an infection, so you can get the proper antibiotics immediately. Deep vein thrombosis (DVT) is also a potential risk following cancer surgery. With DVT there may be symptoms of pain, redness, heat and swelling. It is best to check with your doctor when any symptoms of swelling occur. Other precautions to protect the skin and avoid injury include using sunscreen and insect repellent when outdoors in summer, avoiding extreme temperatures such as hot tubs that can increase swelling, wearing comfortable socks and shoes, and wearing loose clothing to avoid constriction of the limb or trunk. Regular exercise, such as walking and swimming, maintains strength and flexibility and helps reduce swelling and stiffness associated with treatment and/or Lymphedema. Check with a doctor or exercise specialist before beginning any new program, to ensure it is appropriate for your health and fitness level. When exercising, intensify your program gradually; listen to your body and avoid overexertion, swelling or discomfort. Continued on page 3 PAGE 3 • CANCERSMART • November 2009 • Issue 6 For Breast Canc ARE YOU AT RISK e best routes to success Kathleen Gotts, Lymphedema: Take Control Projec Have you... Treatment The aims of treatment are to reduce and control swelling and to encourage you to be an active participant in your own management. Health professionals (including nurses, physiotherapists, occupational therapists, massage therapists) with special training in Complex Decongestive Therapy (CDT) can offer assessment, education and treatment. The mainstay of treatment is compression. For mild Lymphedema, wearing a compression stocking and/or bicycle shorts may be enough. If it is more serious, the therapist may perform a special, light type of massage called manual lymph drainage and will often teach you how to do it yourself. This gentle massage encourages lymph flow and moves the excess fluid from the swollen part to an area where the lymph system still functions normally. This may be followed by the application of compression bandages that are worn day and night in the intensive, first phase of treatment. In the second, maintenance phase, CDT therapists will educate you about proper exercise, skin care, and long-term management with compression garments or different types of devices (special scrotal pouches, nighttime compression garments, etc.) and self-drainage techniques as necessary. Together, you and your therapist will find what works best for you. If you suspect you have lymphedema, seek prompt assessment and diagnosis; early treatment leads to best results. Where can I find help? Lymphedema support groups in many provinces of Canada provide education, links to therapists and patient support (see Resources table below). Lymphovenous Canada has also developed an informal network of contacts where support groups do not yet exist. The National Lymphedema Network and Cancer Supportive Care in the US, and Cancerbackup in the UK are among many informative websites offering patient-friendly information. The most specific site on Lymphedema following prostate cancer treatment (www. hrpca.org/lymphedemema.htm) is hosted by an enterprising patient with hormone refractory prostate cancer. I met Howard Hansen in Vermont, and was most impressed by his positive and generous approach to lymphedema and to life. We know how important it is to maintain an optimistic attitude throughout cancer diagnosis and treatment. It is the same with Lymphedema. Symptoms and swelling can vary with changes in weather, diet, exercise, etc. Lymphedema is a very individual condition the challenge is to find what works for you and to keep a positive outlook. Family, friends and a supportive therapist can all help. Fortunately, there are many more resources today than even 10 years ago, thanks in large part to the advocacy of patients and patient support groups. Resources: Lymphovenous Canada www.lymphovenous-canada.ca Cancer Supportive Care Programs (US) www.canersupportivecare.com/lymphedema.html Cancerbackup, a British charity www.cancerbackup.org.uk/info/ lymphoedema.htm National Lymphedema Network (US) www.lymphnet.org Howard Hansen’s Hormone Refractory Prostate Cancer site www.hrpca.org/lymphdema.htm Lymphedema support groups in Canada AB www.albertalymphedema.com BC www.bclymph.org ON www.lymphontario.org QC www.infolympho.org MB Edith Mulhull at: [email protected] CAN www.lymphovenous-canada.ca/groups1.htm been diagnosed with breast can had radiation treatment? had a lymph node dissection? had a mastectomy or lumpecto Treatment for breast cancer, and other cancers, condition called lymphedema. Although not li it can be debilitating and may seriously affect d functioning. With early detection and effective lymphedema can be improved or prevented fro an advanced stage. Breast Cancer Action (Ottawa) developed the f information to raise awareness about lymphed breast cancer and to promote the value of proa its risk reduction and management. READ ON to learn the basics of breast cancerlymphedema. What is the lymphatic system? The lymphatic system is the body’s filtration sy consists of organs, ducts and nodes located thr body. The lymphatic system has several functio • drains fluid from tissues back into the blo • filters the clear fluid called lymph • filters the blood • provides immune cells which fight infect What is lymphedema? Lymphedema (pronounced lim-fa-DEE-ma) o lymphatic system is unable to transport lymph affected area of the body. When lymphatic tissue or lymph nodes have b destroyed or removed, lymph fluid cannot dra the affected area. Excess lymph fluid builds up swelling that is characteristic of lymphedema. There are two types of lymphedema. Primary l caused by a faulty lymphatic system and is ofte Secondary or acquired lymphedema can develo surgery, radiation, infection or trauma. PAGE 3 • CANCERSMART • November 2009 • Issue 6 cer Patients & Survivors K? Lymphedema 101 ct Coordinator, Breast Cancer Action (Ottawa) ncer? omy? , can lead to a ife-threatening day-to-day e treatment, om progressing to following dema related to active strategies for -related ystem, which roughout your ons. It: loodstream tion. occurs when the h fluid through an What is secondary lymphedema related to breast cancer? Lymphedema risk reduction & management: What can you do? If you have been treated for breast cancer you may be at risk of developing lymphedema, which causes swelling of the chest, arm or hand. The swelling may be accompanied by numbness, discomfort and sometimes infection. Here are some strategies you can follow now. Lymphedema is not life threatening but it can occur immediately or months, even years, after cancer treatment. Early intervention can lessen its impact. What are some of the signs & symptoms of breast cancer-related lymphedema? • • • • Arm or chest feels full or heavy and tires easily Arm or chest feels achy or numb Skin feels tight Notice less movement or flexibility in your chest, shoulder, wrist or hand • Clothing or jewellery feels tight in the affected area Experts agree that recognizing early symptoms and starting treatment promptly is a good way to manage the condition. If you experience a sensation of heat or skin redness, consult your doctor immediately as this may be a sign of infection. What treatment options are available? You can help yourself by learning about lymphedema risk reduction and management from the healthcare professionals involved in your care. Treatment for lymphedema may focus on therapies to decrease or contain the swelling. Contacting a certified lymphedema therapist is a good place to start. With the help of a specialist, you can reduce the risk of developing lymphedema or manage an existing condition. been damaged, ain normally from and results in The most common treatment is Complete Decongestive Therapy. Treatment includes skin care, manual lymphatic drainage massage, compression bandaging and garment fitting. To learn more about these treatments, or to locate a certified lymphedema therapist in your area, contact Lymphovenous Canada at: www.lymphovenous-canada.ca lymphedema is en genetic in origin. lop as a result of Exercise has many benefits including decreasing the risk of cancer recurrence or of developing lymphedema. It also helps improve flexibility, well-being and overall quality of life. Skin Care • Avoid trauma or constriction to the affected area • Avoid injections or blood pressure monitoring on the affected arm • Use a skin moisturizer • Apply antibiotic cream immediately to small skin abrasions or cuts • Practice careful nail and cuticle hygiene to prevent entry points for infection • Avoid saunas or hot tubs if you have lymphedema Diet • Maintain a healthy body weight Compression Therapy • Compression garments can help reduce swelling • Consult a certified lymphedema therapist for proper fitting and advice Infection • Infection can be serious in those who have had surgery to the lymph nodes. It can cause lymphedema or worsen an existing condition • If you notice skin redness, swelling or heat to the affected area, call your doctor immediately This information and other resources were developed by Breast Cancer Action (Ottawa)’s Lymphedema: Take Control project (July 2007-August 2009). This community-based project was informed by current evidence on breast cancer rehabilitation. It was made possible with funding from the Canadian Breast Cancer Foundation – Ontario Region. For more information and resources, please visit: www.bcaott.ca/lymphedema/info PAGE 4 • CANCERSMART • November 2009 • Issue 6 The Value of Integrating Natural Medicine in Cancer Prevention and Treatment Strategies Christine Matheson, ND There is an unquestionable rise in public interest and demand for natural medicine. From a desire for a more holistic approach, many people now seek out natural medicine specifically for cancer prevention and/or to complement cancer treatment strategies. It is of utmost importance that natural medicine be administered by a qualified practitioner and that it is safely integrated with all conventional medicines or treatments. This is essential, for example, to avoid any drug/nutrient/ herbal interactions. Naturopathic doctors (ND’s) are qualified practitioners and leaders in the field of natural medicine. In a well-regulated profession with extensive training required, ND’s are able to offer health care that focuses on disease prevention, diagnosis and treatment using natural therapies and natural substances to promote healing. A key principle of naturopathic medicine is to tailor the treatment to the individual. Each patient’s protocol is unique utilizing a combination of the broad range of naturopathic therapies available that include: clinical nutrition, homeopathy, traditional chinese medicine and acupuncture, herbal medicine, lifestyle counseling, hydrotherapy and bodywork. Naturopathic Strategies for Cancer Prevention One of the fundamental themes of naturopathic medicine is prevention. By assisting patients to enhance their overall health and vitality, ND’s are always aiming to prevent chronic diseases. If a patient is concerned about preventing the onset of cancer, or is focused on avoiding a recurrence, here are examples of key naturopathic strategies that may be suggested. • • • • • • • Optimizing nutritional health Improving digestive health Assisting the body’s detoxification process Strengthening the immune system Decreasing exposure to environmental toxins Promoting regular and effective exercise Enhancing positive emotional health Naturopathic Strategies during Cancer Treatment Naturopathic medicine functions most often as supportive or complementary care. This means that it is used at the same time as conventional cancer treatments, such as chemotherapy or radiation, and does not replace these treatments. These are the most common reasons to safely include naturopathic therapies with conventional cancer treatment. • To enhance recovery time from surgery • To minimize the side effects of conventional treatments • To ensure proper nutrition when appetite is poor or body is depleted • To enhance the quality of sleep in order to aid healing • To safely protect healthy cells and tissues when possible post chemotherapy or radiation • To detoxify after use of potent conventional drugs • To regenerate the body post conventional treatments • To provide emotional support At whatever point a person is in their healing journey with cancer, natural medicine can add value to the experience of many patients. They may feel a sense of empowerment by choosing an effective blend of therapies/treatments that are suited to their own medical and emotional needs. In this way, it is an opportunity to ensure that the mind, body and spirit are all being addressed in a truly integrative medical approach. To ensure that natural therapies are both safe and effective it is essential that a qualified practitioner administer them. It is highly recommended that patients advise their oncologist of all complementary medicines being taken or being considered. For a list of qualified ND’s in your area, contact the Canadian Association of Naturopathic Doctors at www.cand.ca Tel: 416.496.8633 Toll-free: 1.800.551.4381 For more information, recommended resources are: • Complementary Cancer Therapies, Dan Labriola, ND • The Complete Natural Medicine Guide to Breast Cancer, Sat Dharam Kaur, ND www.ChristineMathesonND.com PAGE 5 • CANCERSMART • November 2009 • Issue 6 Cancer and Exercise Continued from page 1 Exercise decreases mortality for women with hormone-responsive breast cancer tumours2: < 3 hours per week: 3 to 9 hours per week: 9 to 15 hours per week: 15 to 24 hours per week: > 24 hours per week: 20% reduction 50% reduction 44% reduction 40% reduction 40% reduction • Exercise has been shown to reduce fatigue in men with prostate cancer3 and women with breast cancer. Women with breast cancer have also reported a decrease in nausea.2 • Women with breast cancer who exercise were more likely to complete their treatment without interruption compared with women who did not exercise. This is most likely due to the implication that exercise may boost white cell counts, which is an important indicator of chemotherapy readiness. 2 • Exercise can increase a patient’s level of physical fitness and ability to cope with anxiety and stress. Exercise improves body composition and decreases body fat; improves bone mineral density; increases functional capacity, muscle mass and strength.5 • A study of women with breast cancer also showed an increase in self-esteem.2 Patients who exercise have also reported an improved mood, sense of control and over all improved quality of life. Exercise is Accessible The research has also shown that exercise, as a complementary cancer intervention, is accessible to the majority of patients. To benefit, people need not be transformed into fitness experts, have been physically active before the cancer diagnosis, or invest in expensive equipment. Groups studied had the greatest benefits with moderate exercise, which is also equivalent to three to nine hours of walking per week at an average pace. There is little evidence that higher levels of exercise provide additional benefit.2 This means that most people can practice the level of exercise that provides the greatest benefit. In addition, a person’s level of physical activity before their illness was not predictive of mortality.1, 2 In other words, people with low levels of physical activity prior to their cancer diagnosis showed the same benefits from exercise as compared to people who were fit and physically active prior to their cancer diagnosis. This is a hopeful and encouraging finding for people who are not physically active prior to diagnosis, and means that it is never too late to start. Further, patients need not invest in expensive equipment or gym memberships to access the benefits of exercise. Walking as exercise has been shown to produce the same benefit as cardio exercise through other activities, such as at a gym or swimming pool. A good pair of running shoes is all that is needed. Tips for Getting Started Cancer patients may be initially concerned about exercising during cancer treatment, a time when many feel unwell and uncertain. Here are some suggestions to move forward with an exercise plan: • For guidance and confidence, talk with your oncologist before starting a personal exercise program, and address any concerns you might have. • Keep an exercise log (e.g., type, amount and frequency of exercise) for your own records, and to show to your oncologist if you have any questions or concerns. • If you can, integrate support into your exercise program by exercising with family, friends, or other patients. • Ask members of your medical team if there is a cancer exercise specialist in your area, or if there are cancer exercise programs (such as at the Wellspring Cancer Support Foundation; see sidebar) or research studies available to you. A detailed exercise routine may be available to you through these sources. If not, remember that benefits are achievable simply by walking at an average pace. References: 1. Chambers, Suzanne K., Lynch, Brigid M., Aitken, Joanne, et al. JCO Apr 1 2009: 1600-1606. 2. Holmes, Michelle D.; Chen, Wendy Y.; Feskanich, Diane; et al. JAMA. 2005;293:2479-2486. 3. Segal, Roanne J., Reid, Robert D., Courneya, Kerry S., et al. JCO May 1 2003: 1653-1659. 4. Marques, Kristan, Jamnik, Roni, York University, CSEP member newsletter, Communiqué, September 2007. Cancer Exercise Wellspring Cancer Exercise at Wellspring was introduced in January 2009, and was met with unprecedented demand. In the first six months, over 225 patients successfully completed the program in the comfort of Wellspring’s cancer support centres. Features of the program include: • Leadership by a team of qualified and trained cancer exercise specialists • Personalized physical fitness assessment, and personalized exercise plan • Consent from oncologists to ensure safety • Twice-weekly exercise sessions for ten weeks • Updated personal exercise plan at completion of program • Opportunity for re-assessment six months later Cancer Exercise is available at no charge and without referral at most of Wellspring’s centres. For more information, visit www.wellspring.ca LIVING WITH CANCER A Lifeline to Cancer Support Where do I start? Start here at Wellspring. WE CAN HELP YOU GET THE PERSONAL SUPPORT YOU NEED. WELLSPRING ODETTE HOUSE & THE COACH HOUSE Wellspring Niagara Stevensville Satellite 81 Wellesley Street East Toronto, Ontario M4Y 1H6 416.961.1928 2763 Stevensville Rd. Unit #3 Stevensville, Ontario L0S 1S0 905.382.6121 WELLSPRING SUNNYBROOK WELLSPRING CALGARY 2075 Bayview Avenue Toronto, Ontario M4N 3M5 416.480.4440 #4 Parkdale Crescent NW Calgary, Alberta T2N 3T8 403.521.5292 WELLSPRING HALTON-PEEL Wellspring at Doane House Hospice 2545 Sixth Line Oakville, Ontario L6H 7V9 905.257.1988 WELLSPRING CHINGUACOUSY 5 Inspiration Way Brampton, Ontario L6R 0L7 905.792.6480 WELLSPRING at WOMEN’S COLLEGE HOSPITAL (just off main lobby) 76 Grenville Street Toronto, Ontario M5S 1B2 416.323.6400 ext. 4240 Newmarket, Ontario 905.967.0259 Wellspring at Matthews House Hospice Alliston, Ontario 705.435.7218 Wellspring at Hospice of Windsor and Essex County Windsor, Ontario 519.974.7100 Wellspring at hospice northwest WELLSPRING LONDON AND REGION Thunder Bay, Ontario 807.626.5570 231 Hyman Street London, Ontario N6A 1N6 519.438.7379 Wellspring at Warmhearts Palliative Caregivers Sudbury/Manitoulin WELLSPRING NIAGARA 3250 Schmon Parkway, Unit #3 Thorold, Ontario L2V 4Y6 905.684.7619 Sudbury, Ontario 705.677.0077 Toll-free 1.877.499.9904 www.wellspring.ca A Lifeline to Cancer Support Wellspring is a network of centres that offer support, coping skills and educational programs to cancer patients and their loved ones at no charge and without referral. CANCERSMART is now available online. Please visit www.wellspring.ca/cancersmart Toll-free 1.877.499.9904 www.wellspring.ca CANCERSMART November 2009 • Issue 6 CANCERSMART is published three times a year as an educational service of the Wellspring Cancer Support Foundation, under the auspices of its Program Committee: Kathryn Lennox (Chair), Mary Brown, Yvette Matyas, Harvey Nelson, Dr. Yasmin Rahim, Dr. Sheila Tervit, and Magdalene Winterhoff. The information in this newsletter is for informational purposes only, and is not intended to be used for selfdiagnosis or as a substitute for medical advice. Readers should address all questions and concerns about their health to qualified health care professionals, such as their family doctor or oncologist, and seek their advice before acting upon any information contained in this newsletter. All information in this newsletter is owned by or licensed to Wellspring and all rights are reserved. Copyright in the newsletter as a compilation is owned by Wellspring. All requests for reproductions of any part of this newsletter should be directed to Wellspring. For more information about this newsletter and Wellspring’s privacy policies, please visit www.wellspring.ca or call 416.961.1928. For subscription inquiries contact: [email protected] © Copyright 2009 Wellspring Cancer Support Foundation Charitable Registration # 89272 8940 RR0001 100% post-consumer paper • FSC certified paper paper made with 100% green energy • certified processed chlorine free paper