Download CLC Resource Library – Diagnosis Specific

CLC Resource Library – Diagnosis Specific Section
Oncology Books and Journals
Child life specialist recommended books, organized by suggested age range:
•
The Amazing Hannah: Look at Everything I Can Do! By Amy Klett & Candlelighters. ISBN: 0972404317
(Ages 2 - 5) Published in 2002 Available through Candlelighters Childhood Cancer Foundation. Also available in Spanish. Real
photos and short explanations about various aspects of treatment including, taking vital signs, central line care, medical play, EKG,
wearing a mask and handwashing. The child featured in the book is a 3 year old female.
•
Sammy’s Mommy Has Cancer By Sherry Kohlenberg, Lauri Crow (Illustrator). ISBN: 0945354550
(Ages 3 - 5) 1993
•
Kathy’s Hats: A Story of Hope By Trudy Krisher, Nadine Westcott (Illustrator); Abby Levine (Editor). ISBN: 0807541168
(Ages 4 – 8) Published in 1992
•
The Gift: For Children Who are Bone Marrow Donors By Sue P. Heiney and Sheldon Lamphier. ISBN: 1889863009
(Ages 4 - 8) Published in 1996
•
The Jester Has Lost His Jingle By David Saltzman. ISBN: 0964456303
(Ages 4 - 8) Published in 1995. Colorful illustrations and rhyming words tell a story about how laughter can be healing, and humor
can help us deal with difficult situations. The Jester and his friend, Pharley, live in a kingdom that has lost its sense of humor. Jester
and Pharley set off on a quest in search of laughter only to find that humor is missing in the places they visit. They visit with a young
girl in the hospital who is being treated for a tumor. When entertaining the young girl she begins to laugh. The laughter is contagious
and soon brightens the day of all who hear it.
•
You and Your Cancer: A Child's Guide. By Lynda Cranston, Chantal LeBlanc, Maria Restivo, and Ronald Barr. ISBN: 1550091476
(Ages 4 - 8) Published in 2001. Simple, straight-forward information about cancer and cancer treatment including, definitions and
pronunciations of common terms. Book is interactive and provides a variety of activity pages. Information includes types of cancer,
at the hospital, tests and treatments, feelings school, resources for help, death and bereavement, and after treatment. Colorful
drawings and quotes from patients are included throughout the book.
•
My Name is Buddy, A Story for Children About Brain Tumors By Dave Bauer and the National Brain Tumor Foundation. ISBN:
B0006RYLR0
(Ages 5 – 10) Published in 2002. Available through the National Brain Tumor Foundation. Story of Buddy, a golden retriever, who
undergoes treatment for a brain tumor. Real photos depict Buddy having a CAT scan, radiation therapy and recovering from surgery.
Additional photos show a healthy Buddy interacting with children being treated for brain tumors.
•
Oncology Stupidology By Marilyn Hershey. ISBN: 0967355001
•
When Someone In Your Family Has Cancer By NIH/Diane Publishing Co. ASIN: B00010LHIS
(Ages 6 - 12) Published in 1995
•
Chemo Craziness & Comfort By Nancy Keens & Candlelighters. ISBN: 0972404309
(Ages 6-12) Published in 2002. Comprehensive information about childhood cancer including sections on healthy body function,
types of cancer, the hospital, tests and treatments, side effects, psychosocial concerns and life after cancer. Space is provided at the
end of each chapter to record thoughts and questions.
•
Me and My Marrow: A Kid's Guide to Bone Marrow Transplants By Karen Crowe. ISBN: 0970244606.
(Ages 8 - 15) Published in 1999. Available online at www.meandmymarrow.com. Short explanations and colorful illustrations give
information about bone marrow transplant. The book is divided into three sections: Before Transplant, During Transplant and After
Your Transplant. Specific topics include coping, chemo, radiation, protective isolation, communication, finding a donor, possible
complications, physical changes, keeping busy, leaving the hospital, food-handling tips, returning to school, and possible future health
concerns.
•
Our Mom Has Cancer By Abigail Ackermann, Adrienne Ackermann. ISBN: 0944235316
(Ages 9 - 12) Published in 2002
•
Rainbow Feelings of Cancer: A Book of Children Who Have a Loved One with Cancer By Carrie Martin, Chia Martin. ISBN:
1890772161
(Ages 9 - 12) Published in 2001
•
This Book is For All Kids, But Especially My Sister Libby. Libby Died. By Jack Simon. ISBN: 0970185308
(Ages 9 - 12) Published in 2000
•
When Your Brother or Sister has Cancer By L. Rudolph. ASIN: B0006YPVBI
(Teens and Young Adults) Free from the National Cancer Institute (www.cancer.gov). Information for siblings of cancer patients.
Sections include, learning about cancer, treatment, bone marrow transplant, being a bone marrow donor, changes in your family, how
to help a sibling with cancer, self care, finding support, and after treatment (includes information on grief/bereavement). Appendix
includes a list of cancer-related tests and definitions, and a list of cancer team members and their roles. Throughout the booklet
siblings of cancer patients share their personal stories and insights.
•
Drums, Girls & Dangerous Pie By Jordan Sonnenblick. ISBN: 0439755204. Read the Review
(Young Adult) Published in 2004
•
Fighting Chance: Journeys Through Childhood Cancer By Harry Connolly, Tom Clancy, Curt I.. Civin. ISBN: 0965634256
(Young Adults and Adults) Published in 1998. Photo documentary depicting the lives of three young patients with cancer. Book
includes photographs of patients in treatment and outside of the treatment center with friends and family. Includes quotes and insights
from patients, family members and healthcare staff.
•
Amanda’s Gift By Scott N. Maclellan. ISBN: 096652716X
(Adults) Published in 1998 (None – move to bottom)
•
Can I Kiss You? Answering Your Children’s Questions About Cancer By Neil Russell and Health Communications Inc. ISBN:
1558749284
(Adults) Published in 2001 (None – aimed at adults dealing with children’s awareness)
•
Cancer in the Family: Helping Children Cope With a Parent’s Illness By Sue Heiney, Joan Hemann, Katherine Bruss and Joy
Fincannon. ISBN: 0944235344
(Adult) Published in 2001. Available from the American Cancer Society. Developmentally based information on helping children
understand and cope with a parent’s illness. Sections include, understanding diagnosis and treatment, using psychosocial support
services, self care, time following treatment, and dealing with recurrence, progressive and terminal illness. Includes a thorough chart
of developmental age and children’s understanding and response to illness with suggestions for age appropriate interventions. At the
end of the book is a removable workbook with a variety of activities for children.
•
Childhood Cancer Survivors: A Practical Guide to Your Future By Nancy Keene, Kathy Ruccione, Wendy L. Hobbie. ISBN:
0596528515
(Adults) 2nd Edition published in 2006. Thorough and practical information for survivors of childhood cancer. Sections on emotional
and medical concerns, follow-up care, relationships, insurance and second cancers. Cancer survivors and caregivers share their
personal experiences throughout the book.
•
Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers By Honna Janes-Hodder, Nancy Keene. ISBN: 0596500149
(Adults) 2nd Edition published in 2002.Comprehensive information about all types of solid tumors and medical treatments. Additional
information about coping with procedures, nutrition, school, siblings, feelings, relapse, and death and bereavement. Patient and family
personal stories are interspersed throughout the book. Appendix includes an extensive list of resources, bibliographies for specific age
groups and a glossary of common terms.
•
Childhood Leukemia: A Guide for Families, Friends & Caregivers By Nancy Keene, Linda Lamb. ISBN: 0596500157
(Adults) 3rd Edition published in 2002. Detailed information about the diagnosis and treatment of Leukemia, including finding an
oncologist, side effects of treatment, clinical trials, chemotherapy, venous catheters, radiation therapy and stem cell transplantation.
Includes practical information about pain management, partnering with the medical team, family and friends, hospitalization, sources
of support, nutrition, school, siblings, feelings and communication, end of treatment, relapse, and grief and bereavement. Patient and
family personal stories are interspersed throughout the book. Also included is a detachable treatment record to keep track of medical
history.
•
Living With Childhood Cancer: A Practical Guide to Help Families Cope By Leigh A. Woznick, Carol D. Goodheart. ISBN:
1557988722
(Adults) Published in 2001
by Julie O'Neill, M Ed, CCLS.
•
Surviving Childhood Cancer: A Guide for Families By Margot Joan Fromer. ISBN: 1572241020
(Adults) Published in 1998
Out of print or hard to find books (possibly still good resources, if you have access to them):
•
An Alphabet About Kids with Cancer By Rita Berglund and Katy Tartakoff. ISBN: 0962936537
•
Andrew’s Story: A Book About a Boy Who Beat Cancer (Meeting the Challenge) By Chris Bridge. ISBN: 0822525879
•
Cancer and Self-Help: Bridging the Troubled Waters of Childhood Illness By Mark A. Chesler, Barbara K. Chesney. ISBN:
0299148203
•
Chemo Crusader and the Cancer Fighting Crew By Melodie Homer. ISBN: 0967139600
•
Chemo Girl: Saving the World One Treatment at a Time By Christina Richmond. ISBN: 0763703141
•
Children Are Images of Grace: A Pediatrician’s Trilogy of Faith, Hope, and Love By Diane M. Komp. ISBN: 0310206995
•
Children with Cancer: A Comprehensive Reference Guide for Parents By Jeanne Munn Bracken. ISBN: 0195147383
•
My ABC Book of Cancer By Shanin Chamberlain. ISBN: 0912184078
•
My Book for Kids with Cansur: A Child's Autobiography of Hope By Jason Gaes. ISBN: 093760304X
•
My Mommy Has Cancer By Carolyn Stearns Parkinson, Elaine Verstraete (Illustrator). ISBN: 0963028707
•
I’m Still Me, Coping With Leukemia (Dr. Wellbook, 7) By Tim Peters. ISBN: 1879874547
•
Life Isn’t Always a Day at the Beach: A Book for All Children Whose Lives Are Affected by Cancer By Pam Ganz, Tobi Scofield
(Illustrator). ISBN: 0965339203
•
Supportive Care of Children With Cancer: Current Therapy and Guidelines from the Children’s Oncology Group (The Johns Hopkins
Series in Hematology/Oncology) By Arnold J. Altman, MD (Editor). ISBN: 0801857279
•
The Problem With Hair: A Story for Children Who Are Learning About Cancer By Karen Sure Foss, Steve Wilda (Illustrator). ISBN:
1561230995
•
Too Old to Cry, Too Young to Die Compiled By Edith Pendleton. ISBN: 0840740867
•
Victoria’s Smile By Rita Geller, Rita Geller’s Students (Illustrator). ISBN: 0439058538
•
Zink By Cherie Bennett, Young Cancer Patients & Survivors (Illustrator). ISBN: 0440228107