Download (BHGI) Supportive Care Guidelines and thier Role in Advocacy

BREAST HEALTH GLOBAL
INITIATIVE(BHGI) SUPPORTIVE CARE
GUIDELINES& THEIR ROLE IN
ADVOCACY :
The Uganda Experience
Gertrude Nakigudde
Patient Advocate Uganda women’s Cancer Support
Organisation (UWOCASO) UGANDA,
Member of Stratified Guideline Advisory Group (GAG),
AMERICAN SOCIETY OF CLINICAL ONCOLOGY (ASCO)
2nd EAST AFRICAN WE CAN SUMMIT
10th- 12th September, 2014
BHGI SUPPORTIVE CARE GUIDELINES
• Defn.
These are Consensus, evidence based,
economically stratified medical tools
formulated to improve the quality of life for
breast cancer patients during treatment,
survivorship, palliative and end of life care, in
low and middle income countries (LMCs).
Purpose of BHGI supportive care
guidelines
Due to unmet supportive
care needs for Breast Cancer
patients in LMCs, BHGI
formulated “Supportive care
and Quality of Life
guidelines” to enhance
knowledge and
understanding of complex
issues of breast cancer
patients throughout the
continuum of care.
IT HAPPENED
Panel of experts at BHGI October 3rd-2012, Vienna Austria, came up with
recommendations for breast cancer supportive care program
implementation in LMCs resource settings.
ADVOCACY
• A process by individuals or organisations with
an aim to influence public policy and resource
allocation decisions within political,
economical and social systems and
institutions.
ROLE OF GUIDELINES IN ADVOCACY
1) They act as evidences to the attention of
policy makers and all stake holders.
Guidelines are formulated after
comprehensive research, patient stories,
health professionals’ experiences.
2) Help advocacy groups to plan for advocacy
activities based on recommendations
ROLES CONTD…..
3) Guidelines bridge the gap between
Advocates, policy makers and other
stakeholders since roles and responsibilities
are clearly indicated.
4) Guidelines allow partnerships, networking
and community engagements.
UGANDA EXPERIENCE
• DIALOGUE
•
• Public campaign
UGANDA EXPER.CONTD.
• Patient support
• Survivorship- support
group
TRAINING
MEDIA ENGAGEMENT
CONCLUSION
Having BHGI supportive care guidelines in place, UN
recommendations at high level meeting 2011,
WHO guidelines and commitments from NCI
Centre for Global health to address breast and
cervical cancers, Advocates from LMCs have
enough evidence to influence policy on resource
allocation for prevention, treatment and end of
life care.
TOGETHER WE CAN
THANK YOU